Trustees’ Annual Report for the period
From 1/4/20221 Period start date 31/3/2022 Period end date
Charity name: FPIES UK
Charity registration number: 1159635
Objectives and Activities
| SORP reference | ||
|---|---|---|
| Summary of the purposes of the charity as set out in its governing document |
Para 1.17 | (1) The relief of sickness and preservation of health of people suffering from Food Protein Induced Enterocolitis Syndrome (FPIES), in particular but not exclusively by the provision of support to families affected by this condition within the UK. (2) The advancement of education for the public benefit by raising awareness of FPIES within the UK and providing up to date information and recommendations on the management of FPIES for patients and healthcare professionals. |
| Summary of the main activities in relation to those purposes for the public benefit, in particular, the activities, projects or services identified in the accounts. |
Para 1.17 and 1.19 |
We have continued to provide support for families of children with FPIES, through resources on our website, our online peer support group and direct enquires to the charity. We have collaborated with specialist dieticians to produce an information sheet on Complementary feeding in FPIES, which is available on request and will be added to our website. In order to try and raise awareness of FPIES, we produced a video as part of Allergy Awareness week in April. This was widely shared on social media. |
| Statement confirming whether the trustees have had regard to the guidance issued by the Charity Commission on public benefit |
Para 1.18 | In planning our activities for the year, we kept in mind the charity commissions’ guidance on public benefit. |
Achievements and Performance
| SORP reference | ||
|---|---|---|
| Summary of the main achievements of the charity, identifying the difference the charity’s work has made to the circumstances of its beneficiaries and any wider benefits to society as a whole. |
Para 1.20 | This has been a period of transition for the Charity, with appointment of a new Chairperson and Trustee, and 2 of our Trustees standing down after long periods of service. The pandemic has meant that we have not been able to attend medical conferences, as these have not been running face-to-face. Consequently, it has been a quiet year in terms of activity and new projects. Our online support group remains a valued resource for families/carers of babies and children with FPIES, and this has continued to grow. We were very pleased to be able to collaborate with specialist dieticians (one of whom is a member of our medical board) and produce an information sheet on addition of complementary foods in FPIES. We identified that some people weren’t able to get information about this in a timely fashion and the informal feedback that we have had is that the information sheet has proved very helpful. The feedback that we have had suggests that there is still a lack of awareness/knowledge about FPIES amongst healthcare professionals. In future we will be looking to get back to attending medical conferences, and will seek other ways to reach healthcare professionals (e.g. through publications and existing online educational resources). We recruited a new volunteer at the start of 2022, and will look to continue to grow our team moving forward. |
Financial Review
| Review of the charity’s financial position at the end of the period |
Para 1.21 | Our treasurer has helped to ensure that the finances have been kept up to date and manageable in this financial period, and a prudent reserve remains. Our income (coming primarily from donations and fundraising by individuals and sales of our children’s book) in this financial period was insufficient to cover our costs. We will plan specific fundraising activities and look at ways to reduce running costs during the next financial period. |
|---|---|---|
| Statement explaining the policy for holding reserves stating why they are held |
Para 1.22 | We maintain a prudent reserve in order to respond to any immediate need. |
|---|---|---|
| Amount of reserves held | Para 1.22 | £7902 |
| Reasons for holding zero reserves |
Para 1.22 | N/A |
| Details of fund materially in deficit |
Para 1.24 | N/A |
| Explanation of any uncertainties about the charity continuing as a going concern |
Para 1.23 | N/A |
Structure, Governance and Management
| Description of charity’s trusts: |
||
|---|---|---|
| Type of governing document (trust deed, royal charter) |
Para 1.25 | Constitution adopted 14th December 2014 |
| How is the charity constituted? (e.g unincorporated association, CIO) |
Para 1.25 | Charitable Incorporated Organisation |
| Trustee selection methods including details of any constitutional provisions e.g. election to post or name of any person or body entitled to appoint one or more trustees |
Para 1.25 | Appointed or elected at our AGM held in January each year. |
Reference and Administrative details
| Charity name | FPIES UK |
|---|---|
| Other name the charity uses | |
| Registered charity number | 1159635 |
| Charity’s principal address | 128 City Road London EC1V 2NX |
Names of the charity trustees who manage the charity
| 1 2 3 4 |
Trustee name | Office (if any) | Dates acted if not for whole **year ** |
Name of person (or body) entitled to appoint trustee (ifany) |
|---|---|---|---|---|
| Katrina McNulty | Chairperson | |||
| ToryWenyon | ||||
| HayleyWoodhouse | From May2021 | |||
| Louise Littler | Until Feb 2022 |
Funds held as custodian trustees on behalf of others
Description of the assets N/A held in this capacity Name and objects of the N/A charity on whose behalf the assets are held and how this falls within the custodian charity’s objects Details of arrangements for N/A safe custody and segregation of such assets from the charity’s own assets
Declarations
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
| Signature(s) Full name(s) Position (eg Secretary, Chair, etc) Date |
||
|---|---|---|
| Katrina McNulty | Hayley Woodhouse | |
Chairperson |
Trustee | |
| 26/1/2021 | ||
| 26/1/2021 |
Profit and Loss
FPIES UK
Date Range: Apr 01, 2021 to Mar 31, 2022
| ACCOUNTS | Apr 01, 2021 to Mar 31, 2022 |
|---|---|
| Income | |
| Individual Donations | £455.55 |
| Sales | £171.43 |
| Total Income | £626.98 |
| Total Cost of Goods Sold | £0.00 |
| Gross Profit | £626.98 |
| As a percentage of Total Income | 100.00% |
| Operating Expenses | |
| Bank Service Charges | £216.00 |
| Computer – Hosting | £332.92 |
| Insurance - General | £163.88 |
| Miscellaneous Expense | -£216.00 |
| Payroll – Salary & Wages | £867.38 |
| Postage & Delivery | £5.19 |
| Printing and Reproduction | £48.00 |
| Total Operating Expenses | £1,417.37 |
Profit and Loss - FPIES UK Date Range: Apr 01, 2021 to Mar 31, 2022
Created on Jan 11, 2023
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Net Profit As a percentage of Total Income
-£790.39 -126.06%
Profit and Loss - FPIES UK Date Range: Apr 01, 2021 to Mar 31, 2022
Created on Jan 11, 2023
Page 2 / 2