# HAEMOPHILIA WALES

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1158941
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Oct. 23, 2014
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1158941


## Contact

- **Address:** 17 Alfreda Road, Whitchurch, CARDIFF
- **Postcode:** CF14 2EH
- **Phone:** 07979 527599
- **Email:** info@haemophiliawales.org
- **Website:** www.haemophiliawales.org



## Activities

**Objects:** THE OBJECT OF THE CIO IS TO RELIEVE PEOPLE WITH HAEMOPHILIA, VON WILLEBRANDS DISEASE AND OTHER BLEEDING DISORDERS, THEIR FAMILIES, CARERS AND BEREAVED FAMILIES WHO ARE IN NEED PARTICULARLY BY THE PROVISION OF INFORMATION, ADVOCACY AND SUPPORT.

**Activities:** Haemophilia Wales provided information, support and advocacy to everyone affected by Inherited Bleeding Disorders. We have representation on the All Wales Advisory Group and the Cross Party Group on Haemophilia and Contaminated Blood. We organise events for families to network and gain mutual support, we campaign on behalf of Haemophiliacs with contaminated blood.




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information
- **What:** General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, Elderly/old People, People With Disabilities



## Geography

- Throughout Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| CRAIG SUGAR |  | Nov. 1, 2013 |
| DAVID THOMAS BA HONS |  | Nov. 1, 2013 |
| Michael O&#x27;Driscoll Mr |  | Nov. 1, 2019 |
| NICHOLAS PATRICK KELLY |  | Nov. 1, 2013 |
| NICK MORAN |  | Nov. 1, 2013 |
| Nigel Miller |  | July 27, 2018 |
| PATRICIA GAYNOR SUMMERS |  | Nov. 1, 2013 |
| TONY SUMMERS |  | Nov. 1, 2013 |




