| Trustees' Annual Report for the period | |||||||
| From | Period start date | To | Period end date | ||||
| 01 | Sept | 2022 | 31 | Aug | 2023 |
Section A Reference and administration details
Charity name Microtia UK
Other names charity is known by
Registered charity number (if any) 1158688
Charity's principal address
Microtia UK 20-22 Wenlock Road London United Kingdom Postcode N1 7GU
Names of the charity trustees who manage the charity
| 1 2 3 |
Trustee name | Office (if any) | Dates acted if not for whole year |
Name of person (or body) entitled to appoint trustee (if any) |
|---|---|---|---|---|
| Elizabeth Compton- Jones |
||||
| Hana Thalova Salussolia |
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| Alison Daniels |
Names of the trustees for the charity, if any, (for example, any custodian trustees)
Name Dates acted if not for whole year
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Names and addresses of advisers (Optional information)
| Type of adviser | Name Address |
Name Address |
|---|---|---|
| Alex Seifalian Markiewicz_Consultant_ Neil Bulstrode Ken Stewart Catriona Moffat David McAlpine Walid Sabbagh Greg O'Toole Sebastian Hendricks Celia Flatley-Priddey |
University College London,Gower St, London WC1E 6BT Chelsea and Westminster Hospital Great Ormond Street Hospital,London WC1N 3JH Edinburgh Sick Children’s Hospital Edinburgh Sick Children’s Hospital University College London,Gower St, London WC1E 6BT Royal Free Hospital, London NW3 2QG Royal Free Hospital, London NW3 2QG Great Ormond Street Hospital,London WC1N 3JH |
|
| Professor of Nanotechnology and | ||
| Regenerative Medicine | ||
| Paediatrician | ||
| Consultant Plastic Surgeon and Lead Clinician | ||
| for the Department of Plastic Surgery | ||
| Consultant Plastic Surgeon and Lead Clinician | ||
| for Plastic Surgery (NHS Lothian) | ||
| Chartered Clinical Psychologist (NHS Lothian) | ||
| Professor of Auditory Neuroscience | ||
| Consultant Plastic Surgeon | ||
| Consultant Plastic and Reconstructive Surgeon | ||
| (Royal Free Hospital) | ||
| Consultant Audiovestibular Physician and | ||
| Paediatrician (GOSH) | ||
| Adult with microtia | ||
| Name of chief executive or names of senior staff members (Optional information) |
||
| Non-executive director of fundraising and communications |
Tina Rycroft | East Yorkshire |
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Section B Structure, governance and management
Description of the charity’s trusts
Type of governing document
Trust Deed
- (eg. trust deed, constitution)
How the charity is constituted
Trust
- (eg. trust, association, company)
Trustee selection methods
- (eg. appointed by, elected by)
Additional governance issues (Optional information)
You may choose to include additional information, where relevant, about:
-
policies and procedures adopted for the induction and training of trustees;
-
the charity’s organisational structure and any wider network with which the charity works;
-
relationship with any related parties;
-
trustees’ consideration of major risks and the system and procedures to manage them.
We employ Tina 8 days p/m to support with co-ordinating our fundraising events, to apply for grants, to manage our social media and website, and other administrative tasks linked to the day-to-day running’s of the charity. She keeps a log of work completed and continues to develop her skills and network by applying for free courses when available.
As a small charity we have not felt it necessary to appoint any other trustees. This is something that we will consider in the future as the charity grows.
-
We have 11 non-executive advisors that support us with keeping up to date in the various fields of microtia, including: hearing technology advancement, ear reconstruction or prosthetic methods, psychological perspectives and understanding visible difference.
-
We continue our relationship with several hearing aid technology companies (Cochlear, Oticon, and MED-EL) who also sponsor our London event, the website and the printing of a few of our resources. We also continue working alongside of them – advertising their latest technology and events with the wider community. The hearing aid companies also send us free merchandise and information leaflets from their companies, which allowed us to post these out for free to families.
We have developed good working relationships with other charities e.g. CSSEF, Auditory Verbal UK, Changing Faces, National Deaf Children’s Society, CLAPA, Face Equality National (which we sponsor) and BATOD and these have led to various continued collaborations. The same applies to CAR and Aston University for research studies.
Section C Objectives and activities
Summary of the objects of the charity set out in its governing document
To relieve the physical and psychological needs of those with microtia in the UK by helping them to make informed choices about their treatment options and by facilitating the dissemination of research results relating to the condition.
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| Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit) |
Charity members were able to visit Marwell Zoo together in September 2022. Charity members paid a small contribution towards the cost of the tickets and 71 charity members attended the event. We received free tickets to Legoland in Manchester for October 2022 from Merlin Magic Wand.100 tickets were ordered for Microtia UK charity members. We collaborated with other charities to hold an event in Scotland in March 2023.Joining forces with other charities that support those with a visible difference meant that we could come together for a free fun day out which was kindly funded. Our London event took place in June 2023.We offered free activities, food and a range of talks from medical professionals and those born with microtia to talk about lived experiences. The day was a huge success with hearing aid companies sponsoring the day as well. Charity members requested local buildings to light up in orange.A range of families volunteered their time to ask local buildings to light up in orange for microtia awareness day. We shall continue the tradition and have more buildings do the same next year. Northern Ireland held their own mingle event in August 2023.We were really pleased to see families come together for the event and we have offered to support them with plans for another Mingle event next year. The Microtia UK website was updated on a regular basis and backed upwhich provides free and up to date information for people with microtia. Sections include resources, frequently asked questions, inspirational life stories, and information about fundraising events. We continued changing the pages to become more mobile friendly. Free information booklets distributed.This includes our New Parents Guide and Reconstruction booklet, as well as our charity leaflets to help raise awareness and give support to families. These are also downloadable from the website for free. Charity awareness raising merchandise distributedto raise awareness of the condition within the community and to raise funds for Microtia UK. The items |
|---|---|
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also help to promote positive self-image (including pin badges, books, teddies, clothing, Christmas cards, bracelets, trolley coins, bags). Virtual monthly meetings with families and professionals continued. A new approach was discussed in reaching more families and we decided to set up a monthly virtual meet where families could come together to share stories, ask questions, get to know one another and speak with medical professionals. This has been a great success, and we will continue to do the virtual meets.
Additional details of objectives and activities (Optional information)
We have supplied leaflets, collection pots, and free merchandise to help our You may choose to include further community raise funds and awareness at their sponsored events. We have had statements, where relevant, about: fundraisers pay for their own fundraising events and raise money for the charity • policy on grantmaking; with our support, from running the London marathon, one off donations from their place of work, bun sales and a range of other events. We have supplied • policy programme related them with a free fundraising vest or t-shirt as well as giving them a winner’s investment; medal and certificate.
- contribution made by volunteers. We have volunteers who have offered their services and support to organise smaller mingles and raise positive awareness by offering to speak at events.
Section D Achievements and performance
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Section D Achievements and performance
| Summary of the main achievements of the charity during the year |
Blue Sky CAD are our new sponsor for our free charity t-shirts and running vests.The company director has microtia himself and is keep to support our charity which we are very thankful for. MI9: The Beginning book has been distributed in schools for free by CSSEF charity. Creating a new right sided microtia teddy with hearing aidwhich will look the same as our current left sided microtia elephant and bilateral elephant teddies. We look forward to receiving those next year. Continued support and growing as a charity.We continue to grow and develop every year as a charity, supporting more families than ever before. We are keen to continue reaching more people by raising more awareness about microtia. Our website has been updated throughout the year and we continue to create newslettersto help share our news and latest information to more people. The website includes new upcoming fundraising events and to share community news. Website is accessed regularly by medical professionals, new parents, and our community members. Free information leaflet handed out for new parents/carerswhich outilines what to expect when you have a baby with microtia and where to go for support. Medical professionals also share this leaflet with their patients. It is downloadable from the website. We continue using all our social media accountswith a growing number of followers. This includes the use of Instagram, YouTube, Twitter and Facebook. We also use WhatsApp as a contact method and have our own charity phone number. We linked with Run For Charity to help us find new fundraising events.Linking with them means we have less unfilled places. Going forward to should see an improvement of this next year. Participants set up fundraising pages which were shared on social media. We fully support those who would like to fundraise or help raise awareness for our charity. We give out medals / trophies to thank our fundraisers. |
|---|---|
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Section D Achievements and performance
Daily support and advice for our charity members. This is given through our online support group, social media accounts, email and telephone. We also have our monthly virtual meets.
Microtia UK have been involved with the following fundraising events in 20222023:
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5 places at Skydive GB in Yorkshire – Total raised £3,579. After deductions - £2,329.
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5 places at the 5k Inflatable Run, held all over the UK – Total raised £1,168. After deductions - £1,038.
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£5,000 raised by a charity member who ran 200 miles non-stop. Fantastic effort!
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3 Peaks Challenge - £470 raised.
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Coastal Walk - £564
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1 place at the Great North Run – Total raised £537. After deductions - £490.
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2 places at the Royal Parks Half event – Total raised £1,323. After deductions - £755.
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5 places at the London Landmarks event – Total raised £555. After deductions - -£145. (Due to illness, only 2 ran the event).
We received sponsorship from the hearing aid companies, and we have had many people take on a range of challenges to raise funds for us. We have also received large one-off donations from companies throughout the year.
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Section E Finaniial review Brlef statement of the ¢hartiVs pollcy on resep Detalls of any funds materlally In deficlt rther financl?I revlew detalls Ioptlonal Informatlonl You maychoose to include additional informat¢on. where relevant aboul: the chariVs principal sources of funds lincludlnKany lundralsingl: how expenditure has supported key objectNes of the charity.. Invernent policy and objectNes includln8 any ethical investrneTht policy adopted. section F Othor optional Information section G Declaraiion The1ne¢S dedire th•t thry h•ve approved the trurtees. rewt above. ned on behall ofthe thrWstruAees SI•ture(sI Full nam•l51 Pos1 leiSetretsryChalr, ettl TAR 2022-2023
Section G Declaration
The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
Signature(s) Full name(s) HANA SALUSSOLIA Position (eg Secretary, Chair, etc) TRUSTEE
Date 22/03/2024
Section G Declaration The trustees declare that they have approved the trustees’ report above.
Signed on behalf of the charity’s trustees
Signature(s) Full name(s) Position (eg Secretary, Chair, etc)
Date
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| Charity Name | Charity Name | Charity Name | Charity Name | Charity Name | No (if any) | No (if any) | No (if any) | CC16a | |
|---|---|---|---|---|---|---|---|---|---|
| For the period from |
01/09/2022 Period start date |
To | 31/08/2023 Period end date |
||||||
| Section A Receipts and payments | |||||||||
| A1 Receipts | Unrestricted funds to the nearest £ 48,793 627 - - - - - - 49,420 - - - 49,420 45,593 6,583 - - - - - - - 52,176 - - - 52,176 - 2,756 |
Restricted funds to the nearest £ |
Endowment funds to the nearest £ |
Total funds to the nearest £ |
Last year to the nearest £ |
||||
| Donations & FunsraisingIncome | 48,793 | - | - | 48,793 | 35,643 | ||||
| Interest | 627 | - | - | 627 | 33 | ||||
| - | - | - | - | - | |||||
| - | - | - | - | - | |||||
| - | - | - | - | - | |||||
| - | - | - | - | - | |||||
| - | - | - | - | - | |||||
| - | - | - | - | - | |||||
| Sub total(Gross income for AR) |
49,420 | - | - | 49,420 | 35,676 | ||||
| A2 Asset and investment sales, (see table). |
|||||||||
| - | |||||||||
| - | - | ||||||||
| Sub total | - | - | |||||||
| Total receipts A3 Payments |
|||||||||
| 35,676 | |||||||||
| Expenses | 45,593 | 40,334 | |||||||
| Cost of Sales | 6,583 | 12,610 | |||||||
| - | - | ||||||||
| - | - | ||||||||
| - | - | ||||||||
| - | - | ||||||||
| - | - | ||||||||
| - | - | ||||||||
| - | - | ||||||||
| **Sub total ** | 52,176 | 52,944 | |||||||
| A4 Asset and investment purchases, (see table) |
|||||||||
| - | |||||||||
| - | |||||||||
| **Sub total ** | - | - | |||||||
| Total payments Net of receipts/(payments) A5 Transfers between funds A6 Cash funds last year end Cash funds this year end |
|||||||||
| 52,944 | |||||||||
| - 2,756 | - | - | - 2,756 | - 17,268 | |||||
| - | - | - | - | - | |||||
| 72,165 | - | - | 72,165 | 89,433 | |||||
| 69,409 | - | - | 69,409 | 72,165 |
CCXX R1 accounts (SS)
01/07/2024
1
Section B Statement of assets and liabilities at the end of the period
| Categories Signed by one or two trustees on behalf of all the trustees B5 Liabilities B3 Investment assets B2 Other monetary assets B4 Assets retained for the charity’s own use B1 Cash funds |
Details Details Details Details Total cash funds (agree balances with receipts and payments account(s)) Details Signature |
Unrestricted funds Restricted funds to nearest £ to nearest £ 69,409 - - - - - 69,409 - OK OK Unrestricted funds Restricted funds to nearest £ to nearest £ - - - - - - - - - - - - Fund to which asset belongs Cost (optional) - - - - - Fund to which asset belongs Cost (optional) - - - - - - - - - Fund to which liability relates Amount due (optional) - - - - - Print Name Hana Salussolia |
Endowment funds to nearest £ |
|---|---|---|---|
| - | |||
| - | |||
| - | |||
| - | |||
| OK | |||
| Endowment funds to nearest £ |
|||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| Current value (optional) |
|||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| Current value (optional) |
|||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| - | |||
| When due (optional) |
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| Date of approval |
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| Hana Salussolia | 12/03/2024 | ||
CCXX R2 accounts (SS)
01/07/2024
2
CHARITY COMMISSION FOR ENGLAND AND WALES Independent examiner's report on the accounts Section A Independent Examiner's Report Report to the trusteesl members of MICROTIA UK On accounts for the year ended 31 AUGUST 2023 Charity no {If any) 1158688 Set out on pages I report to the trustees on my examination of the accounts of the above charty {Ihe Trust.) for the year ended 3110812023. Responsibilitles and As the chartty trustees of the Trust, you are responsible for the preparation basis of report of the accounts in acc¢)rdance with the requirements of the Charities Act 2011 (°the Act.). I report in respect of my examination of the Trust's accounts carried out under section 145 of the 2011 Art and in carrying out my examination, I have followed the applicable Directions given by thè Chanty Commission under sec*ion 14515){b) of the Act. I have completed my examination. I confim) that no material matters have come to my attention (other than that disclosed below "l in connection with the examination which gives me cause to believe that in, any material respect.. accounting records were not kept in accordan with section 130 of the Act or the accounts do not accord with the accounting records Independent examiner's statement I have no COnmS and have come across no other matters in connection with the examination to which attention should be drawn in order to enable proper understanding of the accounts to be reached. ' Plaase delete the w0S in the brackets rfthey do not apply. Date: Signed: I2 Name: CEREDIG JONES FCA Relevant professional qualification(sl or body lif any): ICAEW Address: THE COOMBES, NELL HILL BISHOPSTONE, SWNDON SN6 8PW IER October 2018
Section B Disclosure Only complete if the examiner needs to highlight matters of concern (see CC32. Independént examination of charity accounts. directions and guidance for examiners). Giv8 here brief details of any Items that the examiner wishes to disclose. IER October 2018