TAR 2021-2022 TAR 2021-2022 TAR 2021-2022 **Trustees' Annual Report for the period** Period start date Period end date 01 Sept 2021 31 Aug 2022 **From To** Section A Reference and administration details **Charity name** Microtia UK **Other names charity is known by Registered charity number (if any)** 1158688 **Charity's principal address** Microtia UK 20-22 Wenlock Road London United Kingdom **Postcode** N1 7GU **Names of the charity trustees who manage the charity** **----- Start of picture text -----**
Name of person (or
Dates acted if not
Trustee name Office (if any) body) entitled to
for whole year
appoint trustee (if any)
Elizabeth
1
Compton-Jones
Hana Thalova
2
Salussolia
Alison Daniels
3
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## **Names of the trustees for the charity, if any, (for example, any custodian trustees)** **Name Dates acted if not for whole year** **TAR** 2021-2022 4 ## **Names and addresses of advisers (Optional information)** **----- Start of picture text -----**
Type of adviser Name Address
Professor of Nanotechnology and Alex Seifalian University College London, Gower
St, London WC1E 6BT
Regenerative Medicine
Paediatrician Chelsea and Westminster Hospital
Markiewicz
Consultant
Consultant Plastic Surgeon and Lead
Great Ormond Street Hospital,
Clinician for the Department of London WC1N 3JH
Neil Bulstrode
Plastic Surgery
Edinburgh Sick Children’s Hospital
Ken Stewart
Consultant Plastic Surgeon and Lead
Clinician for Plastic Surgery (NHS
Edinburgh Sick Children’s Hospital
Catriona Moffat
Lothian)
University College London, Gower
Chartered Clinical Psychologist (NHS David McAlpine
St, London WC1E 6BT
Lothian)
Walid Sabbagh
Royal Free Hospital, London
Professor of Auditory Neuroscience
NW3 2QG
Greg O'Toole
Consultant Plastic Surgeon
Royal Free Hospital, London
Consultant Plastic and NW3 2QG
Sebastian Hendricks
Reconstructive Surgeon (Royal Free
Hospital) Celia Flatley-Priddey Great Ormond Street Hospital,
London WC1N 3JH
Consultant Audiovestibular Physician
and Paediatrician (GOSH)
Adult with microtia
Name of chief executive or
names of senior staff members
(Optional information)
Non-executive director of fundraising Tina Rycroft East Yorkshire
and communications
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**TAR** 2021-2022 5 ## **Section B Structure, governance and management** ## **Description of the charity’s trusts** Type of governing document Trust Deed - (eg. trust deed, constitution) Trust How the charity is constituted - (eg. trust, association, company) Trustee selection methods - (eg. appointed by, elected by) ## **Additional governance issues (Optional information)** You **may choose** to include additional information, where relevant, about: - policies and procedures adopted for the induction and training of trustees; - the charity’s organisational structure and any wider network with which the charity works; - relationship with any related parties; - trustees’ consideration of major risks and the system and procedures to manage them. As a small charity we have not felt it necessary to appoint any other trustees. This is something that we will consider in the future as the charity grows. We employ Tina 8 days per month to support with co-ordinating our fundraising events, to apply for grants, to manage our social media and other administrative tasks linked to the day-to-day running’s of the charity. She keeps a log of work completed and continues to develop her skills and network. We have 11 non-executive advisors that support us with keeping up to date in the various fields of microtia, including: hearing technology advancement, ear reconstruction or prosthetic methods, psychological perspectives and understanding visible difference. We continue our relationship with several hearing aid technology companies (Cochlear, Oticon, MED-EL and BHM-Tech) who also sponsor some of our events, the website and the printing of a few of our resources. MED-EL still sponsor our adult fundraising vests as well. We also continue working alongside of them – advertising their latest technology and events with the wider community. The hearing aid companies also send us free merchandise and information leaflets from their companies, which allowed us to post these out for free to families. Our main event in London was back in June 2022 for the first time since covid and three out of the four hearing aid companies were able to attend. We have developed good working relationships with other charities e.g. Auditory Verbal UK, Changing Faces, National Deaf Children’s Society, CLAPA, Face Equality National (which we sponsor) and BATOD and these have led to various continued collaborations. **Section C Objectives and activities** **TAR** 6 2021-2022 **Summary of the objects of the charity set out in its governing document** **Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)** To relieve the physical and psychological needs of those with microtia in the UK by helping them to make informed choices about their treatment options and by facilitating the dissemination of research results relating to the condition. ## **We offered 100 free MI9: The Beginning books to 100** **schools.** The incentive was offered to help promote our new published children’s book about acceptance and inclusion to 100 schools. We’re pleased that we had a good response to this offer. **A new charity mobile phone number was set up.** This gave families and professionals a contact number to speak to Tina, our Non-Executive Advisor, to make us more accessible. We also set up WhatsApp for people to get in touch with us. **We received free tickets to Legoland in Manchester for October 2022 from Merlin Magic Wand.** Families can apply for tickets to access the free fun day out. ## **We revamped and published Liz Jones’ children’s book** **about Similarities and Differences.** The new version was published under our ‘Proud to be Me’ publishing name and the book was made available on our charity website, Amazon, and Waterstones. ## **Families attended our Space Centre event in Leicester.** Approx. 70 families attended our first face to face meet up since the pandemic. This was an opportunity for new families who had given birth to children with microtia over the pandemic to meet others for the first time, and for our regular charity members to see each other again. ## **Our London event was back for the first time since the** **pandemic.** It was great to be back with a range of professionals and the day was our biggest yet. We offered free activities, food and a range of talks from medical professionals and those born with microtia. We set up a card machine for the first time for our merchandise. ## **Charity members requested local buildings to light up in** **orange.** A range of families volunteered their time to ask local **TAR** 2021-2022 7 buildings to light up in orange for microtia awareness day. We hope to have more buildings do the same next year. **Discussions began in organising a zoo event down South.** We are hoping to have events throughout the UK this year so families have a chance to get together. **The Microtia UK website was updated on a regular basis and backed up** which provides free and up to date information for people with microtia. Sections include resources, frequently asked questions, inspirational life stories, and information about fundraising events. We began changing the pages to become more mobile friendly. **Free information booklets distributed.** This includes our New Parents Guide and Reconstruction booklet, as well as our charity leaflets to help raise awareness and give support to families. These are also downloadable from the website for free. **Free microtia friendly facemasks** were created and distributed to families as the ongoing uncertainty of the pandemic continued in early 2022. **Charity awareness raising merchandise distributed** to raise awareness of the condition within the community and to raise funds for Microtia UK. The items also help to promote positive self-image (including: books, teddies, clothing, Christmas cards, bracelets, trolley coins, bags). We also created new microtia badges which were a huge success for families. ## **Virtual monthly meetings started with families and** **professionals.** A new approach was discussed in reaching more families and we decided to set up a monthly virtual meet where families could come together to share stories, ask questions, get to know one another and speak with medical professionals. This has been a great success and we will continue to do the virtual meets. **We continued our relationships with audiology** **departments to inform them of our charity** and to encourage them to sign post patients to our charity and support group. We also sent out more copies of our New Parent Guide, **TAR** 8 2021-2022 BAHA book and Similarities and Differences book across clinics in England, Scotland and Ireland and this is something that we will continue doing. ## **Additional details of objectives and activities (Optional information)** You **may choose** to include further statements, where relevant, about: - policy on grantmaking; - policy programme related investment; - contribution made by volunteers. We have supplied collection pots, teddies, wrist bands, pens and pencils to help our community raise funds and awareness at their sponsored events. We have had fundraisers pay for their own fundraising events and raise money for the charity with our support, from running the London marathon, one off donations from their place of work, golf days, fishing and more. We have supplied them with a free fundraising vest or t-shirt as well as giving them a winner’s medal and certificate. We have volunteers who have offered their services and support to organise smaller mingles and raise positive awareness by offering to speak at events. Section D Achievements and performance **TAR** 9 2021-2022 Section D Achievements and performance ## **Summary of the main achievements of the charity during the year** **Continued support and growing as a charity.** We continue to grow and develop every year as a charity, supporting more families than ever before. We are keen to continue reaching more people by raising more awareness about microtia. **The children’s book about Similarities and Differences has been published and made available on our website, Amazon and Waterstones.** **Our website has been updated throughout the year and we continue to create newsletters** to help share our news and latest information to more people. The website includes upcoming fundraising events and to share community news. Website is accessed regularly by medical professionals, new parents, and our community members. ## **Free information leaflet handed out for new** **parents/carers** which outilines what to expect when you have a baby with microtia and where to go for support. Medical professionals also share this leaflet with their patients. It is downloadable from the website. **We continue using all of our social media accounts** with a growing number of followers. This includes the use of Instagram, YouTube, Twitter and Facebook. We also use WhatsApp as a contact method and have our own charity phone number. **Awareness raised through a range of fundraising events.** Participants set up fundraising pages which were shared on social media. We fully support those who would like to fundraise or help raise awareness for our charity. We give out medals / trophy’s to thank our fundraisers. **Charity awareness raising merchandise distributed** to raise awareness of the condition within the community and to raise funds for Microtia UK (including: Christmas cards, badges, bracelets, trolley coins, bags, toy elephants). We have continued using our new machine to make our own charity branded clothing throughout the year. **Daily support and advice** for our charity members. This is given through our online support group, social media accounts, **TAR** 10 2021-2022 Section D Achievements and performance email and telephone. We also have our monthly virtual meets. Microtia UK have been involved with the following fundraising events in 2021-2022: - 5 places at Skydive GB in Yorkshire – Total raised £2,880. After deductions - £2,204. - 17 places at the 5k Inflatable Run, held all over the UK – Total raised £1,949. After deductions - £1,444. - 2 places at the Royal Parks Half event – Total raised £1,323. After deductions - £755. - 2 places at the London Landmarks event – Total raised £751. After deductions - £461. Support and funds have been raised despite there being financial difficulties throughout the UK for families which we really appreciate. We received sponsorship from the hearing aid companies and we have had many people take on a range of challenges to raise funds for us. We have also received large one-off donations from companies throughout the year. Amazon has donated on a regular basis from those who have picked us as their chosen charity and are shopping with them. We also held a charity raffle from a donated signed football and shirt. **TAR** 2021-2022 11 Section E Financial review Reserves held in bank account as cash. Brief statefflent of the chartys pollcy on rÈserve5 Details of any fund5 rnaterlally in defldt None Further Ilnancial revlèw detslls (Optlonal Infomiation) You may choose to include additional information, where relevant about.. the charivs principal sour￿$ of funds (including any fundrai5ingl: how expenditure ha5 supported the key obiertive5 of the charity", investment poliry and oblectives including any ethical investment policy adopted. Section F Other option31 inforrnatton Section G Oeclaration The trustees declare that they have appfo¥ed the trustees, report abo¥e. Slgned on beham of the charws trustees Signaturels) Full narne(s) Posltlon (eg Secretary. Chalr, etcl Date 713lw3 TAR 12 2021-2022 FOR ENGLAND AND WALES Receipts and payments accounts CC16a For th• wlod To 0lnJ9r2021 31m8r2022 Section A Receipts and payments Unr•*trlct•d fund* R•*tri¢t•d fund• Endowmrt fund• Total fund• L•st y••r lh• nMrn•t£ * lh• wrn•t£ lo lh• M•rnt¢ A1 R•￿1 Don•tL)n#& Funiiwn Intere•t In¢om• 3&64J J5.64J 4J.317 Sub total fGmss income for AR) 30.678 43.324 A2 A•••t and Inv••tm•nt Ml•*, IM• tabl•l. Sub 1001 36.676 43,324 A3P• m•nts Exwns 21.11S 10 Sub tol•l A4 AM•t •nd Inv••tm•nt Pur¢ha￿S, {M• tabl•l Sub lol•l 52,944 944 21.945 N•t of rncelpts/fpaym•nts) AS Tran•f•rs b•tw••n lund• A6 Ca•h fvnd• l••t yMr •nd Cash funds thls yMr •nd 17368 17,268 13,379 81.4J3 711 19A33 72,165 76,OS4 89,433 CCXX R1 accounts ISSI Section B Statement of assets and liabilities at the end of the period Endowm•nt funds lund• fvnds to nMr••t£ B1 Ca•h fund• 7l10S Totsl c•sh funds 72.115 Endowm• lund• to nMr••te lund• fun Dètails Fund CoBtloptb)n• CuMfitv•lu• O•tails Fund Dètails C••tloptkn• 84 Au•ts r•tsln•d for th• ¢h•rlty'8 rii- Fund bm thth•n d l)etai15 BS Uabllltl•8 Slgnod by on• tr￿•8 on hoif of•ll tho tyu*•OS Prinl Nwne roval Hona Saktssoli& 2810212023 CCXX R2 accourhts (SSI CHARITY COMMISSION FOR ENGLAND AND WALES Independent examinerfs report on the accounts Section A Independent Examiner's Report Report to the I￿stee51 members of On accounts forthe ￿ar ended Charity no 111 an 31 hu&ti&r loz 115&6&& 8et out on pages I re￿rt to the trustees on my examinalion of the accourrts ofth8 above chartyllhe Trustl for the year ￿ded31 08 WIL Respon•lbllltlos and As the ¢harity trustees of Ihe Trust. you ar& responsibk8 for the preparats'on basls of report of the a￿oUnts In awdance with the requirements of the Charriies Act 2011 Ilhe Ad) I report In respect of my examination of the Trust's accounts carrled out under section 145 of thè 2011 Act and in carying oul ry examinatlon, I have followed the appli¢abl8 ￿'rectionS gnfftn by the Charty Commlsslon under section 145(51{b) of the Act. I hava completed my examination. l Confim that no matérlal matters have com& lo my attention in connection with the examination which gives me cause to belie￿ that in, any matarlal respect 8ccounling records were not k8Pt In accordance wlth section 130 of the Act or the accounts do not a¢¢ord wbth the accountlng records Independent examlnef s statement I no concerns and ha￿ come acros$ no other m8tters In connetxlon wlth the examination to which atterrtion should be drawn in order to enable a proper understanding of the accounts to be reached. . Hease delete words in t￿ brxkets if t1￿Y do apply. Slgned: 0 6/2023 Name: Relevant professlonal qualificatlonls} or body Iir any): Address: IER October 2018 Section B Disclosure Onty complete rf the examiner needs to hb3hlight matters of concern (see CC32, Independent examinats'on of chartiy accounts.. directions and guidanca for examiners). Glve here brlef details of any ttems that the examinerwishes to dlsclose. IER October 2018