||||||||| |---|---|---|---|---|---|---|---| ||**Trustees' Annual Report for the period**||||||| |**From**|Period start date|||**To**|Period end date||| ||01|Sept|2019||31|Aug|2020| Section A Reference and administration details **Charity name** Microtia UK **Other names charity is known by Registered charity number (if any)** 1158688 **Charity's principal address** Microtia UK 20-22 Wenlock Road London N1 7GU United Kingdom **Postcode** EC1V 4PW **Names of the charity trustees who manage the charity** |1
2
3|**Trustee name**|**Office (if any)**|**Dates acted if not for**
**whole year**|**Name of person (or body)**
**entitled to appoint trustee (if**
**any)**| |---|---|---|---|---| ||Elizabeth Compton-
Jones|||| ||Hana Thalova
Salussolia|||| ||Alison Daniels|||| ## **Names of the trustees for the charity, if any, (for example, any custodian trustees)** **Name Dates acted if not for whole year** **TAR** 1 2019-2020 ## **Names and addresses of advisers (Optional information)** |**Type of adviser**|**Name**
**Address**|**Name**
**Address**| |---|---|---| ||Alex Seifalian
Markiewicz_Consultant_
Neil Bulstrode
Ken Stewart
Catriona Moffat
David McAlpine
Walid Sabbagh
Greg O'Toole
Sebastian Hendricks
Celia Flatley-Priddey|University College London,Gower St,
London WC1E 6BT
Chelsea and Westminster Hospital
Great Ormond Street Hospital,London
WC1N 3JH
Edinburgh Sick Children’s Hospital
Edinburgh Sick Children’s Hospital
University College London,Gower St,
London WC1E 6BT
Royal
Free
Hospital,
London
NW3 2QG
Royal
Free
Hospital,
London
NW3 2QG
Great Ormond Street Hospital,London
WC1N 3JH| |_Professor of Nanotechnology and_||| |_Regenerative Medicine_||| |_Paediatrician_||| |_Consultant Plastic Surgeon and Lead Clinician_||| |_for the Department of Plastic Surgery_||| |_Consultant Plastic Surgeon and Lead Clinician_||| |_for Plastic Surgery (NHS Lothian)_||| |_Chartered Clinical Psychologist (NHS Lothian)_||| |_Professor of Auditory Neuroscience_||| |_Consultant Plastic Surgeon_||| |_Consultant Plastic and Reconstructive Surgeon_||| |_(Royal Free Hospital)_||| |_Consultant Audiovestibular Physician and_||| |_Paediatrician (GOSH)_||| |Adult with microtia||| |||| |||| |**Name of chief executive or names of senior**
**staff members (Optional information)**||| |**Tina Rycroft – Non-executive director of**
**fundraising and communications**||| |||| **TAR** 2 2019-2020 ## **Section B Structure, governance and management** ## **Description of the charity’s trusts** Type of governing document Trust Deed - (eg. trust deed, constitution) How the charity is constituted Trust - (eg. trust, association, company) Trustee selection methods - (eg. appointed by, elected by) ## **Additional governance issues (Optional information)** You **may choose** to include additional information, where relevant, about: - policies and procedures adopted for the induction and training of trustees; - the charity’s organisational structure and any wider network with which the charity works; - relationship with any related parties; - trustees’ consideration of major risks and the system and procedures to manage them. As a small charity we have not felt it necessary to appoint any other trustees. This is something that we will consider in the future as the charity grows. We employ Tina 11 days per month to support with co-ordinating our fundraising events, to apply for grants, to manage our social media and other administrative tasks linked to the day-to-day running’s of the charity. She keeps a log of work completed and continues to develop her skills and network. - We have 11 non-executive advisors that support us with keeping up to date in the various fields of microtia, including: hearing technology advancement, ear reconstruction methods, psychological perspectives and understanding visible difference. - We have developed a relationship with several private hearing aid technology companies (Cochlear, Oticon, MED-EL and BHM-Tech) who have sponsored some of our events and the printing of some resources. We continue working alongside of them – advertising their latest technology and events with the wider community. The hearing aid companies also sent us free merchandise from their companies which allowed us to create hearing awareness goody bags which we posted for free to families during COVID-19. Our main event was cancelled so this enabled us to continue supporting families during the pandemic. We have developed good working relationships with other charities e.g. Auditory Verbal UK, Changing Faces, National Deaf Children’s Society, CLAPA, Face Equality National and BATOD and these have led to various collaborations. ## **Section C Objectives and activities** **Summary of the objects of the charity set out in its governing document** To relieve the physical and psychological needs of those with microtia in the UK, in particular by helping them to make informed choices about their treatment options and by facilitating the dissemination of research results relating to the condition. **TAR** 3 2019-2020 **We have funded research projects linked to our main objectives: hearing, reconstruction and psychological.** - Evelina London, Dr Orla Fehily and Melinda Edwards are creating an audio-visual resource for young people who have microtia and atresia. Lead by the ‘experts by experience’, the film will provide an invaluable resource for young people, their friends and family, and professionals involved in their welfare, from healthcare to education. **We finalised our talks with two audiology projects which we indicated funding for (as previously mentioned):** **1)** Aston University, Saira Hussain and GOSH, Robert Nash, Neil Bulstrode and Lindsey Edwards are aiming to understand the patient experiences of those with microtia and improving their clinical decision-making processes. The two institutions will be working in parallel to help enhance the knowledge currently available on this population to help improve outcomes for those with microtia. **2)** GOSH, Robert Nash, Neil Bulstrode and Lindsey Edwards for a study to compare academic attainments in literacy and numeracy with those predicted on the basis of intellectual ability, in children with unilateral microtia. **Summary of the main activities undertaken for the public benefit in relation to these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)** **We received funding from The National Lottery and Community Grant** which was in line with the COVID-19 PPE support. We were awarded £8,660 in July 2020 which we used to support those born with microtia across the world. We provided families with hand sanitiser, microtia friendly face masks, face visors, face mask holders, face mask filters and online fun sessions for children. The zoom sessions were well received and it gave families educational fun during an isolating time. We provided families with ukulele’s, animal zoom sessions, active football sessions and music classes. Our charity mascot took part in some of these sessions so that the children could see him and it brought more fun to the zoom classes. **Our funding for the creation of a new children’s book continued** despite COVID-19 affecting things. We asked for an extension which we were granted. During this year we have found our author and illustrator and a volunteer has also offered to create illustrations for us too. The book is being finalised and we are hoping it will be ready for print in 2021. **Large scale events held in London for children and adults with microtia were sadly cancelled due to the pandemic.** We are hoping to begin organising our next event soon. To replace the loss of the events, we upped our support online by engaging more with the community and checking in on them. Our support to families has been available throughout the pandemic and we continue to supply free PPE. **The Microtia UK website was updated and backed up** which provides free and up to date information for people with microtia. Sections include: resources, frequently asked questions, inspirational life stories, information about fundraising events. **Free information leaflet distributed for new parents/carers.** It outlines what to **TAR** 4 2019-2020 expect when you have a baby with microtia and where to go for support. It is also downloadable from the website for free. **Charity awareness raising merchandise distributed** to raise awareness of the condition within the community and to raise funds for Microtia UK (including: Christmas cards, bracelets, trolley coins, bags). **Toy elephant mascot distributed** to raise awareness of microtia and to promote positive self-image. We also began developing a new, larger teddy mascot to include hearing aids. **Children’s books about Bone Anchored Hearing Aid Surgery and introducing microtia to young children** distributed to parents and medical professionals. Printing was funded by two private hearing aid technology companies. **We reviewed and updated our New Parents Guide** with the guidance of professionals to ensure all information was relevant and up to date. **We continued our relationships with audiology departments to inform them of our charity** and to encourage them to sign post patients to our charity and support group. We also sent out more copies of our New Parent Guide, BAHA book and Similarities and Differences book across clinics in England, Scotland and Ireland. **We have applied for the following grants:** - Applied for the Health Grant. - Applied for £7,500 to the Morrisons Grant for costs of producing the school leaflet, printing, and distributing. - Applied for £3,000 with AVIVA to help with costs of face masks and hand sanitiser. - Applied for grant with St. James’ Place Charitable Foundation for school booklets. - Applied to Foyle Foundation for support to help cover wages. - Applied to the Big Lottery Community Fund for support with developing and posting out free PPE across the world. We successfully received a grant of £8,660. **Aftershokz have donated a bone conduction headset** for the community to trial. Members of the community can trial the headphones for a period of time and then be given a discount code if they wish to purchase some. **Additional details of objectives and activities (Optional information)** **TAR** 2019-2020 5 You **may choose** to include further statements, where relevant, about: - policy on grantmaking; - policy programme related investment; - contribution made by volunteers. We have also supported many others by supplying collection pots, teddies and wrist bands, pens to help them raise funds at bake sales, dress down days and more. Some of those items went to schools who picked us as their charity of the year. We also created new pencils for them. We have some fundraisers pay for their own fundraising events and raise money for the charity with our support. Volunteers have helped us to fundraise through a range of means, such as: sports events, merchandise, cake sales and jewellery sales. They have also helped us to gain one off donations from various sources. We have volunteers helping us to send out Christmas cards purchased through the website again and we’ve had many people volunteer their services as and when. Volunteers have helped organise small mingles with the support from ourselves. Section D Achievements and performance **TAR** 6 2019-2020 Section D Achievements and performance |**Summary of the main**
**achievements of the charity during**
**the year**|**Continued support and growing as a charity**despite a worldwide pandemic.
We are proud to have supported so many families during the most isolating and
challenging times that many have faced.
**We created a new information leaflet which discusses reconstruction.**The
leaflet was put together with the help of Centre of Appearance Research and a
range of professionals. The leaflet is available for free on our website or via
post.
**The new children’s book has been written and is currently being finalised for**
**printing.**
**Our website has been updated throughout the year and we continue to create**
**newsletters**to help share our news and latest information to more people. The
website includes upcoming fundraising events and to share community news.
Website is accessed regularly by medical professionals, new parents, and our
community members.
**Free information leaflet handed out for new parents/carers**which outilines
what to expect when you have a baby with microtia and where to go for
support. Medical professionals also share this leaflet with their patients. It is
downloadable from the website.
**We continue using all of our social media accounts**with a growing number of
followers. This includes the use of Instagram, YouTube, Twitter and Facebook.
**Awareness raised through a range of fundraising events.**Participants set up
fundraising pages which were shared on social media. We didn’t have as many
people fundraise for us this year but that was due to the pandemic.
**Charity awareness raising merchandise distributed**to raise awareness of the
condition within the community and to raise funds for Microtia UK (including:
Christmas cards, bracelets, trolley coins, bags, toy elephants). We ordered more
books and medals and created pencils and new leaflets. Our charity clothing
was a huge hit with families so we purchased our own machines to make our
own clothing and other items.
**We helped to organise an event with GOSH**at the Italian Embassy which
supported work in the field of microtia. Gross amount - £39,977.97
**Daily support and advice**for our members given through our online support
group, social media accounts and email.
Microtia UK have been involved with the followingfundraisingevents in 2019-| |---|---| **TAR** 2019-2020 7 Section D Achievements and performance 2020: - 1 place at Skydive GB – Total raised = £436. After deductions = £236. - 4 places at The Royal Parks Event – Total Raised £882. After deductions - £163. We also began booking places at a range of events so that they were set up for 2020. These included a number of places across the UK at the 5k Inflatable Run, 5 x Hackney Half places, 5 x Vitality places and 5 x ASICS places. Sadly, all of these events were cancelled due to COVID-19, but we obtained a refund for all of them. Despite this, we still had some people raise money during lockdown for us, whether that be for a new idea that they’d thought of or for their event that was postponed, and we also received large one-off donations from companies or peoples place of work. We also gave out our first trophy to our top fundraiser of the year for 2019. **TAR** 8 2019-2020 ## **Section E Financial review** Reserves held in bank account as cash. **Brief statement of the charity’s policy on reserves** **Details of any funds materially in** None **deficit** **Further financial review details (Optional information)** You **may choose** to include additional information, where relevant about: - the charity’s principal sources of funds (including any fundraising); - how expenditure has supported the key objectives of the charity; - investment policy and objectives including any ethical investment policy adopted. ## **Section F Other optional information** ## **Section G Declaration** **The trustees declare that they have approved the trustees’ report above.** ## **Signed on behalf of the charity’s trustees** **Signature(s) Full name(s) Position (eg Secretary, Chair, etc)** **Date** **TAR** 9 2019-2020 SectionG Declaration The tfUSteesdedareth•t theyhave appmved thetrustees, report Jbtyve. Slgn•don beh¥fof theth•ltys trustees SI￿•￿1e(sI Full nwne{s) Posltlonle8S•ty•tsry. ch￿r, •trl (Lq-g-21 Seclion G Declaration The t￿￿e$ded**that thÈyha¥e approved th• trustees, report 4bo¥e. sI￿dan beh4f ofthe d4•1tVs Irustees $18natuf•lsl Full nam•{s) POSI￿(e@S￿l*¥. C￿1r, etcl TAR 10 2019-2020 Mkrell• VK 115e888 Recei tsand ments accounts CC16a For th• p•rfjod 01KW2019 Section A Receipts arid payments Un¥*strictsd funds Restricted funds EndowmÈnl funds TIA41 lund5 Lasl yoav A1 R•c• 74m2 107 Sub tot•l(Gross Incon￿ lor . AR) 741 A2 ￿￿*t *rtd ITrv•strn•nt Ml••, Tot•1 rne•lpts 74.1 A)P• 57813 17*1J JQJ37 Sub tot•1 A4 A•s•t and Inv•stm•nt urch•Ms, • t•bl• Sub total N•t (rfrn¢•lp￿fp•ym•nty . AS Tr•n*f•r5 b•hbY•n funds A6 C•sh lunds y•4r •nd C•*h fund* th1• y•*r •rtd Section B Ststement of assets and liabilities at the end of the period Unrestrict•d lunds Rostrictod lunds Et)dowM•nt 81 C••h fund• T¢x•i ¢••h lurtd• 76.054 Unr••trt¢t•d R•stthd End0*7M lur*d• lunds Deta*15 lo raAw•bt¢ lonMrul¢ B2 I￿r mon•t•ry ••••ts Delatls B3 Inv••tm•nt a￿•¢* Delai B4 A•••t• r•taln•d lor th• rlty'• own u Details BS U*lAlItI•• SwJn8d by om or on ol•ll th•truth•5 Prhil Nam• z41l￿1202I CHARITY COMMISSION FOR ENGLAND AND WALES ••• Independent examiner's report on the accounts Section A Independent Examiner's Report Report to the trusteesl members of MIC rtoripr Ull< On accounts forthe year ended sl 6(44-￿ST 2010 Charity no (if any) 115 gLfg Set out on pages I report to the trustees on my examination of the accounts of the above charity ("the Trust) for the year ended) l 08 2010. Responsibilities and As the charity trustees of the Trust, you are responsible for the preparation basis of report of the accounts in accordance with the requirements of the Charities Act 2011 ("the Act.). I report in respect of my examination of the Trust's accounts carried out under section 145 of the 2011 Act and in carying out my examination, I have followed the applicable Directions given by the Charrty Commission under section 145(5)(b) of the Act. I have completed my examination. I confirm that no material matters have come to my attention (other than that disclosed below ") in connection with the examination which gives me cause to believe that in, any material respect: accounting records were not kept in accordance wrth section 130 of the Act or the accounts do not accord with the accounting records I have no concerns and have come across no other matters in connection wrth the examination to which attention should be drawn in order to enable a proper understanding of the accounts to be reached. . Please delete the words in the brackets if they do not apply. Date: 26 J(4K'c 2oLI Independent examinerfs statement Signed: Name: Relevant professional qualification(s) or body (if any): Address: 00, ILL £ SFltsrsroAJ IER October 2018 Section B Disclosure Only complete if the examiner needs to highlight matters of concern (see CC32, Independent examination of charrty accounts: directions and guidance for examiners). Give here brief details of any items that the examiner wishes to disclose. IER October 2018