**Trustee Annual Report and Financial Statement 1[st] April 2023 – 31[st] March 2024** ## **Charity Number: 1158250** **Reference & administrative details For the year ended 31 March 2024** 1 |**Status**|The National Association for Hospice at Home is a
Charitable Incorporated Organisation registered as a
charity with the Charities Commission on 15thAugust
2014.|The National Association for Hospice at Home is a
Charitable Incorporated Organisation registered as a
charity with the Charities Commission on 15thAugust
2014.| |---|---|---| |**Governing**
**document**|The National Association for Hospice at Home is
governed by
their Constitution, which is approved by the Charities
Commission.|| |**Charity number**|1158250|| |**Registered ofce**
**and operational**
**address**|Lancaster Court
8 Barnes Wallis Road
Fareham
Hampshire
PO15 5TU|| |**Trustees**|Sue Eskins
Chair|Debbie
Robson
Vice Chair| ||Debbie Robson
Secretary|Heather Barley
Treasurer| ||David Stewart Marks|Louise Clapton| ||Tricia Evans|Jonathon Wellbeck-Pure| ||Lyndsay Cardwell|| |**Principal**
**bankers**|Barclays Bank
Leicester
LE87 2BB|| |**Auditors**|N.W. Saville & Co
Accountants
29 Plymouth Road
Shefeld S7 2DE|| ## **National Association for Hospice at Home Report of the Trustees for the Year ended 31[st] March 2024** 2 The National Association for Hospice at Home (NAHH) Trustees are pleased to present their report and audited financial statement for the year ended 31[st] March 2024. The Reference and Administrative information set out on page 1 forms part of this report. The financial statement complies with current statutory requirements, the Constitution and the Statement of Recommended Practice – Accounting and Reporting by Charities (SORP 2005 & 2008). ## **Structure, Governance and Management** ## **Charitable objects** For the benefit of the public to promote the efficiency and effectiveness of charities and the effective use of resources for charitable purposes by charitable and non-charitable bodies providing end of life care for people in their own homes. The Association is the national umbrella and representative body for Hospice at Home organisations in the United Kingdom (UK). The Association exists to support the members (60 organisations) and other organisations as they strive to develop and improve the palliative and end of life care they provide in patients own homes. The aim is for the very best care for everyone facing the end of life, no matter where they live, who they are or what their condition is. The Association also exists to support the public by providing information and guidance on palliative and end of life care provision in their locality. The Association’s vision is to both inspire and influence in order to support its members to deliver the highest quality hospice care at home. With reference to national guidance, it will seek to support the ‘right’ care at the ‘right’ time in the ‘right’ place. ## **Brief summary of NAHH activities ensuring achievement of intended charitable** aims for public benefit: The Association has supported 63 member organisations and 3 honorary members. The NAHH continue to support individuals who have requested help, support or guidance concerning any matters related to Hospice at Home. The annual conference was deferred from Sept 2022 to January 2023 due the Queens death. Despite the sudden cancellation all speakers and member were able to attend the new date. It was a successful virtual conference. It was very well supported and evaluated. The coffee and chat has changed to a Learning Network meeting where a specialist speaker has presented on a chosen topic followed by group discussion. This has been well attended. Support to members 3 is also given via an online forum with a Trustee responsible for checking the forum and ensuring responses are made in a timely manner. The overall strategy of the Charity is regularly reviewed along with the associated work plan of activity to help deliver it. The Association has complied with their duty to have due regard to the commissions public guidance when exercising any powers or duties to which the guidance is relevant. The Association is governed by their constitution (11 August 2014), which was revised in August 2016. The Charity contracts the services of N.W. Saville to ensure the effective operations of the Charity and that regulatory requirements are fulfilled. A full review of the website content has commenced. However, this has been limited by resources, time and money. Web-Feet continue to support with web hosting and security. Compleat have continued to lead on this project. The organisation is always keen to attract new Trustees to the Charity and applications are considered using an agreed application process that includes the completion of an application form, skills audit, written references and an interview. The welcome pack for new Trustees has been reviewed and all who are appointed to the Board receive information concerning role descriptions, NAHH Constitution together with the last NAHH report, NAHH finance statement and a copy of the last Trustees minutes. Trustees are recruited via the annual conference and by direct discussion or approach by existing Trustees. ## **Activities and Objectives** ## **The NAHH has undertaken the following in the reported year:** - There has been a change of roles for The Board of Trustees with a new chair and Vice chair. We are also delighted to have a new Trustee in position. The previous Chair has stepped down. The new trustees bring a diverse range of skills and experience including clinical, management and community engagement. - Regularly reviewed and updated the work plan to support the Strategic aims of the Charity - Maintained a risk register in line with the Risk Management policy to ensure effective governance of the CIO - Monitored the formal contract with the Compleat Conference Company to ensure continued effective governance and effective use of the Charity’s funds - Built upon and consolidated relationships with key stakeholders in the field of Palliative and End of Life care . We have given Support of the Optimum Hospice at Home Services for End of Life Care (OPEL) research project -- A Toolkit for Health Professionals and carers in end of life care in the Community. 4 - The 2022 conference was rescheduled due the death of Queen Elizabeth. This allowed workplaces and colleagues to support each other and their patients and carers. This was held in January 2023 entitled – ‘Taking what we have learnt into the Future ‘ - Delivered the AGM online in December 2023. - Managed the Association within budget requirements and delivered a reserves policy - Held six Trustee meetings, which included meeting face to face. - Maintained an online donation facility ## **Achievements and performance** The NAHH has achieved the following in line with the 2022 - 2025 Strategy ## **Vision** The NAHH vision is to inspire and support health professionals, carers and families to deliver best quality palliative and end of life care in patients’ homes by learning from each other through sharing good practice, supporting each other and facilitating access to resources. ## **Aims** 1. To be a credible, sustainable, national organisation who can support the NAHH members 2. To ensure NAHH offers an evidence-based research approach to education and advice in order to promote the resilience and capacity of NAHH members to care for those at the end of life. 3. To extend the NAHH reach to a wider community of patients, carers, families and health professionals in order to encourage equitable access to NAHH support for those involved in end-of-life care. 4. To strive for a national and public awareness of the NAHH vision through robust communication with members, stakeholders and other charities. The NAHH strategy is inspired by and in alignment with current publications and NAHH partnerships within end-of-life care. This includes ensuring NAHH follows guidelines from the Care Quality Commission to be Safe, Caring, Effective, Well Led and Responsive. ## **Hospice UK CSNAT** **Leadership Alliance for the Care of Dying people** (2014b) Priorities of Care for the Dying Person 5 **Ambitions for Palliative and End of Life Care** : A National Framework for Local Action 2015- 2020 National Palliative and End of Life Care Partnership ## **Aims and Objectives** ## **1. A credible, sustainable, robust organisation who can support the NAHH members** - Increase and sustain membership to the organisation - Review and develop trustee roles - Recruit to Trustee roles - Review partnerships with other charities - Measure value for money and the NAHH offer to members - Measure effectiveness ## **2. Ensure we offer an evidence-based approach to education and advice in order to promote resilience and capacity of members to ensure high quality standards of care for those at the end of life** - Evaluate and continue the yearly Conference as a flagship for NAHH - Review and develop regular workshops according to identified need - Continue to support research through designated advisers e.g. OPEL study - Develop critical friend and mentor networks - Recognise, acknowledge and retain quality end of life care by maintaining the essential and core skills agenda. ## **3. Extend the NAHH reach to a wider community of Health Professionals, patients, carers and families in order to encourage equitable access to NAHH support for those involved in the end of life** - Consider membership from other organisations such as domiciliary care, care homes - Collaboration with other charities from a non-cancer background such as neurological disease, dementia, heart failure, COPD - Ensure ethnicity and diversity are represented and recognised in particular ‘hard to reach’ groups. - Actively engage with communities who don’t normally use EOL services. 6 ## **4. Strive for a national and public awareness of the NAHH vision through robust communication with members, stakeholders and other charities.** - Promote NAHH as a national and public organisation • Awareness and sharing of current research in the H@H field. - Encourage posters and presentations from members and outside organisations - Develop smarter ways of delivery through updated IT systems, webinars, Whats App Groups, Recording Conference - Review and develop current partnerships– CSNAT and Hospice UK - Continue to develop a national and public awareness by diversity of membership - Encourage a wider attendance at the online learning sessions and regular contact with the membership - Ongoing development and evaluation of the NAHH website ## **Financial review** - The reserves policy is regularly reviewed in line with the governance framework. - No funds held by means of a custodian Trustee. A detailed report of ratified accounts has been provided at the end of this report. ## **Conclusion** April 2023- March 2024 has been a time to continue to adapt to the ‘new normal’ as the world recovers from the pandemic. This was reflected in the annual conference aptly named “Taking What We Have Learnt into the Future’. An important theme being self-care and support of colleagues to aid resilience in a changing world. Attendance at the virtual conference continues to be strong with excellent feedback from attendees and speakers. Reaching the members virtually has taken adjustment and we are all now familiar with on line working. It cannot be underestimated the impact the pandemic and lockdown has had on small charities and the general ways of working. We are starting to emerge with a realistic approach to the scope of NAHH due to the financial challenges such as lack of sponsors for on line conferences and voluntary time given by the Trustees to attend meetings. We are starting to adjust our expectations and using the virtual platform positively especially the Learning network meetings and Trustee meetings. However, we have been able to schedule 7 some Trustee meetings face to face during the year which has been hugely beneficial for morale. Membership numbers are stable this year, despite organisations rationalising their budgets and reviewing allocation of funding, however they are still lower than pre pandemic. Also, the environment for end-of-life care has continued the big shift to Nursing home care and private homecare. As a result, we are encouraging these carers and Nurses to join the NAHH to have access to much needed support outside of the NHS. We are fortunate to have a strong Board of Trustees who bring a wide range of skills, experience and resilience. It is the continuity of the Trustees which has supported NAHH to adapt and be flexible to the shifting patterns of healthcare and the world we live in now. We continue to be hugely grateful to Compleat Conference for all their support which goes above and beyond at times. Their counsel is extremely important and keeps NAHH on track Sue Eskins Chair to the Board of Trustees. Heather Barley Treasurer. 8 notional association for hospice at home Financially. there has been an impact on the NAHH due to reduced membershlp and reduced income from virtual conferences. Attendance at the virtual conference continues to be strong with good feedback from attendees. We have seen a greater adaptation to virtual meetings through the members and the Trustee meetings. stsff resourcing and stsff management continues to be a challenge with huge demands on the Trustees time. This has resulted in increased pressure on the Trustees, leaving less time and resource to attend virtual meeting5 and gatherings. The coffee and chat sessions are proving to be a valuable benefit of NAHH membership with expert speakers in frailty, Prison environments, end of life planning. Despite the challenges of the last few years, the NAHH goes from strength to strength. We have been learning, reflecting and consolidating our experiences to ensure the NAHH is fit for purpose. This is thanks to the ha rd work and commitment from the Trustees on top of their 'normal' workload. They show a commitment to continuous improvement and a belief in the NAHH. This has included planning the next face to face conference in 2024, the relaunch of face-to-face meetings for the Trustees with the flexible option of attending remotely. Development of the social media presence to improve marketing and discussions on ways to reach out to a more diverse membership. We also remain incredibly grateful to Compleat Conference Company for all thelr Input often above and beyond that for which we pay. They continue to Support the Association in many ways and we look forward to working with them in the upcoming year. Sue Eskins Vice Chair Heather Barley Treasurer NATIONAL ASSOCIATION FOR HOSPICE AT HOME INCOME AND EXPENDITURE STATEMENT AND STATEMENT OF FUNDS ASSETS AND UABILITIES FOR THE YEAR ENDED 31ST MARCH 2024 Treasurer: Heather Barley The National Association for Hospi￿ at Home Lancaster Courl 8 Barnes Wallis Road Fareham Hampshire P015 STU Bankers.. Barclays Bank Le￿ester LE87 2BB Audltors: N.W. Samlle & Co Accountants 29 Plymouth Road Sheffield S7 2DE NATIONAL ASSOCIATION FOR HOSPICE AT HOME INCOME AND EXPENDITURE STATEMENT FOR THE YEAR ENDED 31ST MARCH 2024 Income 4,269 Piivale Donations 5,000 Nrtembership Fees R￿1Ved 2022 NAHH Conference (Postponed to Jan 20231 2.575 2023 NAHH Conference 2.106 7,750 375 2.375 11,844 12.606 Ey onditure 9,323 Administration & confe[en￿ Costs 14,698 O Expenses and Travoling 422 1,450 Website and IT Costs 1.185 327 Insuran￿$ 327 76 M¢scellaneous & sundry Expenses 65 100 AudTt and Accountancy Fe8S 120 11.276 567 EXCESS OF INCOME {EXPENDITUREI £ {4,2111 NATIONAL ASSOCIATION FOR HOSPICE AT HOME STATEMENT OF FUNDS ASSETS AND LIABIUTIES AS AT: 31ST MARCH 2024 Incomè and Ex enditure Fund 16.061 Bal8nre blfwd. - 0110412023 567 Excess of Income ovor IExpendilure)- YIE 3110312024 16,628 16,628 £ 12,417 Assets 20,988 8alance al Barclays BankQommunily Acwunt 990 Prep8ym&nts IWeb4eet) Llablli1Ses (5.25012024-25 Membershlp Fees in Advance 2024 NAHH Conference Fees in Advance 100 Isundry Credttors 18.616 14,8751 19051 41 16,628 £ 12.417 AUDITORS REPORT We have prepared the above Slatements from the bwks, vouohers and information supplied to us in order to veTIfy the Income and Expenditur8 of the Nats"onal Asso¢lallon foi Hosplce at Home for the year 8nded 31st March 2024. N.W. S VILLE & CCOUN ANTS Ju