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2022-09-30-accounts

PMSF UK ANNUAL REPORT

& AGM MINUTES

AGM Held, Sun 15[th] January 2023, 14:30-15:30 via Zoom

1

AGM Minutes

# Agenda Item Presenter Notes
1 Welcome / Introductions Penny • Attendees were – Penny Bradley (T) (Chair), Alison Turner (T),
Giles Bradley (T), Lynda White (T), Natalie James (T), Sarah
Bickerstaffe (T)
• 6 trustees, shown as (T) above (min 2 required)
2 Regional Membership Status Lynda /
Alison		 • Now 320 region 6 members in UK/Ireland (as of Fri 6/1/23) (was
292 at last AGM in Nov 2021)
3 List of achievements in 2022 Giles • Summary of 2022 achievements approved and will be shared with
the PMSF UK communication
• Photo highlights of the last PMSF UK year discussed
4 Review and approval of accounts Giles • Draft accounts presented for review and agreed
• Will be presented for Independent Examination and then
submitted to Charity Commission before the deadline of July
2023.
5 Presented for agreement:
a. Confirmation of Charity Objectives
b. Confirmation of trustees
c.
Review of Charity Policies
d. Plans for next year		 All • Agreed. See separate slide
• UK wide Family Day likely to be held in 2025 to be in alternate
years with the Global Foundation (to be confirmed). Will continue
Regional Events and potential Family Day meet-up (details to be
confirmed, open to all UK families)
6 Any other business Penny to
chair
7 Closing Penny

2

Agenda Item 3: Key achievements for 2021-2022

Key Achievements and Performance Highlights – for the year to 30[th] September 2022

This is now our 8[th] full year as a charity!

Our community has grown to 320 people in the UK and Ireland with PMS now. As a reminder, it was just over 100 when we began as a registered charity in 2014.

Highlights for this financial year include:

3

Agenda Item 3: A few highlights of our PMSF UK year

4

Agenda Item 3: A few highlights of our PMSF UK year

5

Agenda Item 3: A few highlights of our PMSF UK year

6

Agenda Item 3: A few highlights of our PMSF UK year

7

Agenda Item 4: Financial Highlights for 2021-22

8

Agenda Item 4: Financial Results Detail Will be submitted for Independent Examination and then to Charity Commission

This has been the charity’s best year ever… And our healthy cash balance means we are continuing the great work (Family Days, Awards etc.) in 2022/3

We continue to manage our out-goings carefully – which are mainly for the website, admin support and postal costs as well as merchandise and fundraising event places

This Year (2022)
1-Oct-21 to 30-Sep-22		 2021
1-Oct-20 to 30-Sep-21
Cash
Openingcash balance £37,863.12 £27,459.32
Closingcash balance[bank & PayPal] £71,842.83 £37,863.12
Receipts £94,538.40 £43,749.49
Donations £87,488.81 £38,218.75
Restrictedfunds(1)
Direct(2) £56,216.89 £9,847.49
JustGiving £28,920.76 £25,988.60
VirginGiving [Closed now] £0.00 £0.00
FaceBook £477.85 £1,422.07
Amazon £548.10 £604.79
PayPal £1,260.05 £314.16
Benevity £0.00 £0.00
EasyFundraising £65.16 £41.64
Sales of merchandise(3) £7,049.59 £5,530.74
Sales of merchandise(Bank credits) £2,230.90 £4,083.20
Sales of merchandise(PayPal) £4,818.69 £1,447.54
Payments -£60,558.69 -£33,345.69
Awards to PMSF families -£43,725.05 -£25,375.71
Awards Programme(excl. Travel) -£43,725.05 -£25,375.71
Travel awards
Research Awards(to US Foundation) -£2,070.08 £0.00
Donation to PMSF(US Foundation) -£1,000.00 £0.00
Website costs -£732.25 £0.00
Event costs(incl. FamilyDays) -£1,948.86 £0.00
Purchase of CharityEvent Places -£1,688.01 -£530.00
Purchase of merchandise -£5,629.44 -£4,737.59
Purchase ofprinted leaflets £0.00 £0.00
Postal expenses -£716.60 -£505.13
JustGiving& Virgin costs -£561.60 -£561.60
Other expenses(4) -£2,486.80 -£1,635.66

9

Agenda Item 4: 2021-22 Donations Summary

We appreciate every donation to PMSF UK. - Thank you to all of our supporters

10

Agenda Item 5: Items for agreement

Item Proposal for agreement
a. Confirmation of Charity
Objectives		 • No change to the charity’s Objectives
b. Confirmation of
Trustees		 • For noting: Renewal of 3 year Trustee term (until 2025) for Lynda
• For completeness, 6 trustees remain: Alison, Giles, Lynda, Natalie, Penny, Sarah.
c. Review of Charity
Policies		 • No change to the charity’s Policies
d. Plans for next year • Plan to continue existing activities (building awareness, regional family days, focus on awards to PMS
families, donate to & support research)
• Hold further regional gatherings in 2023 (as we did in 2022)
• UK wide Family Day likely to be held in 2025 to be in alternate years with the Global Foundation (to be
confirmed). Will continue Regional Events and potential Family Day meet-up open to all UK families in
2023 (details to be confirmed)

11

Agenda Items 6 & 7

# Agenda Item Presenter Notes
1 Welcome / Introductions Penny • Confirmation of trustee attendance (min 2 required)
2 Regional Membership Status Lynda /
Alison		 • Now 292 region 6 members in UK/Ireland (as of Tue 26/10/21)
(was 281 at last AGM in Nov 2020)
3 List of achievements in 2022 Giles • Summary of 2021 achievements noted
• Recognition in appreciation of PMSF UK Awards noted
4 Review and approval of accounts Giles • Draft accounts presented for review
• Subject to agreement, will be presented for Independent
Examination and then submitted to Charity Commission before
the deadline of July 2022.
5 Presented for agreement:
a. Confirmation of Charity Objectives
b. Confirmation of trustees
c.
Review of Charity Policies
d. Plans for next year		 All • See separate slide
6 Any other business Penny to
chair
7 Closing Penny

12

1157423

Phelan McDermid Syndrome UK

Receipts and payments accounts For the period 1-Oct-21 To from

30-Sep-22

Section A Receipts and payments

Unrestricted Restricted Endowment Total funds funds funds funds to the nearest to the nearest £ to the nearest £ to the nearest £ £

----- Start of picture text -----
to the nearest £ to the nearest £ to the nearest £
£
A1 Receipts
Donations 87,489 - - 87,489
Merchandise Sales 7,050 - - 7,050
- - - -
- - - -
- - - -
- - - -
- - - -
- - - -
94,538 - - 94,538
Sub total (Gross income for AR)
A2 Asset and investment sales,
(see table).
- - - -
- - - -
Sub total - - - -
Total receipts 94,538 - - 94,538
A3 Payments
Awards to Families 43,725 - - 43,725
Research Awards 2,070 - - 2,070
US Donation 1,000 - - 1,000
Website costs 732 - 732
Events 1,949 - - 1,949
Charity Event Places Purchase 1,688 - - 1,688
Merchandise Purchase 5,629 - - 5,629
Other 3,765 - - 3,765
- - - -
Sub total [ 60,559 ] - - 60,559
A4 Asset and investment
purchases, (see table)
- - - -
- - - -
Sub total [ - ] - - -
Total payments 60,559 - - 60,559
Net of receipts/(payments) 33,980 - - 33,980
A5 Transfers between funds - - - -
A6 Cash funds last year end 37,863 - 37,863
Cash funds this year end 71,843 - - 71,843
----- End of picture text -----

Section B Statement of assets and liabilities at the end of the period

Unrestricted Unrestricted Restricted
Categories Details funds funds
to nearest £ to nearest £
B1 Cash funds Cash in bank / PayPal
Total cash funds


71,843
-
-
71,843


-
-
-
-
(agree balances with receipts and payments
account(s))		 OK OK
Unrestricted Restricted
funds funds
B2 Other monetary assets Details to nearest £
-		 to nearest £
-
- -
- -
- -
- -
- -
Details Fund to which
asset belongs		 Cost (optional)
B3 Investment assets
-
-
-
-
-
Details Fund to which
asset belongs		 Cost (optional)
B4 Assets retained for the PMSF merchandise stock value, all items Unrestricted -
charity’s own use -
-
-
-
-
-
-
-
Fund to which Amount due
Details liability relates (optional)
B5 Liabilities
-
-
-
-
-
Signed by one or two trustees on
behalf of all the trustees		 Signature Print Name
Giles Bradley

----- Start of picture text -----
CC16a
----- End of picture text -----

Last year

to the nearest £ 38,219 5,531 - - - - - - 43,749

43,749

25,376 - - - - 530 4,738 2,702 - 33,346

33,346 10,404 - 27,459 37,863

Endowment funds to nearest £

-

OK

Endowment funds to nearest £

-

Current value (optional)

-

Current value (optional)

When due (optional)

Date of approval

Independent examiner’s report to the trustees of PMSF UK

I report to the trustees on my examination of the accounts of PMSF UK for the year ended 30 September 2023.

Responsibilities and basis of the report

As the charity trustees you are responsible for the preparation of the accounts in accordance with the requirements of the Charities Act 2011 (‘the Act’).

I report in respect of my examination of PMSF UK’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.

Independent examiner’s statement

I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:

  1. accounting records were not kept in respect of PMSF UK as required by section 130 of the Act, or

  2. the accounts do not accord with those records

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.

Signed:

Name: Elizabeth Cain

Relevant professional qualification or membership of professional bodies: ACA qualification from the ICAEW

Address: 33 Hoodcote Gardens, London, N21 2NG

Date: 26 May 2023