# PHELAN-MCDERMID SYNDROME FOUNDATION UK

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1157423
- **Other names:** PMSF UK
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** June 10, 2014
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1157423


## Contact

- **Address:** 99 HIGHGATE WEST HILL, LONDON
- **Postcode:** N6 6NR
- **Phone:** 020 7419 4554
- **Email:** info@pmsf.org.uk
- **Website:** www.pmsf.org.uk



## Activities

**Objects:** THE OBJECT OF THE CIO IS:THE RELIEF OF NEEDS OF PEOPLE WHO HAVE BEEN DIAGNOSED WITH PHELAN-MCDERMID SYNDROME (CHROMOSOME 22Q13.3 DELETION) AND THEIR FAMILIES, IN PARTICULAR BUT NOT EXCLUSIVELY BY PROVIDING SUPPORT, FAMILY DAYS, INFORMATION, FINANCIAL GRANTS FOR DIFFERENT THERAPIES FOR THE PERSON WITH THE SYNDROME AND RESEARCH ENDORSED BY THE INTERNATIONAL PHELAN-MCDERMID SYNDROME FOUNDATION.

**Activities:** Relief of the needs of people who have been diagnosed with PMS and their families in the UK and Ireland ? in particular, but not exclusively, by providing support, family days, information, financial grants for different therapies for the person with the syndrome and research endorsed by the international Phelan-McDermid Syndrome Foundation




## Classification

- **How:** Makes Grants To Individuals, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
- **What:** Disability
- **Who:** Children/young People, People With Disabilities



## Geography

- Ireland
- Northern Ireland
- Scotland
- Camden





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **ALISON JANE TURNER** | Chair | Nov. 11, 2017 |
| LYNDA WHITE |  | Nov. 12, 2016 |
| Natalie James |  | Nov. 17, 2018 |
| Tanith Sherwood |  | March 13, 2024 |




