# PHELAN-MCDERMID SYNDROME FOUNDATION UK

## Details

- **Country:** England & Wales
- **Charity number:** 1157423
- **Other names:** PMSF UK
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** June 10, 2014
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1157423


## Contact

- **Address:** 99 HIGHGATE WEST HILL, LONDON
- **Postcode:** N6 6NR
- **Phone:** 02074194554
- **Email:** info@pmsf.org.uk
- **Website:** www.pmsf.org.uk



## Activities

**Objects:** THE OBJECT OF THE CIO IS:THE RELIEF OF NEEDS OF PEOPLE WHO HAVE BEEN DIAGNOSED WITH PHELAN-MCDERMID SYNDROME (CHROMOSOME 22Q13.3 DELETION) AND THEIR FAMILIES, IN PARTICULAR BUT NOT EXCLUSIVELY BY PROVIDING SUPPORT, FAMILY DAYS, INFORMATION, FINANCIAL GRANTS FOR DIFFERENT THERAPIES FOR THE PERSON WITH THE SYNDROME AND RESEARCH ENDORSED BY THE INTERNATIONAL PHELAN-MCDERMID SYNDROME FOUNDATION.

**Activities:** Relief of the needs of people who have been diagnosed with PMS and their families in the UK and Ireland ? in particular, but not exclusively, by providing support, family days, information, financial grants for different therapies for the person with the syndrome and research endorsed by the international Phelan-McDermid Syndrome Foundation




## Classification

- **How:** Makes Grants To Individuals, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
- **What:** Disability
- **Who:** Children/young People, People With Disabilities



## Areas of operation

- Ireland
- Northern Ireland
- Scotland
- Camden



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Sept. 30, 2024 | £63259 | £103738 | — | — |
| Sept. 30, 2023 | £89017 | £60857 | — | — |
| Sept. 30, 2022 | £94538 | £60559 | — | — |
| Sept. 30, 2021 | £43749 | £33346 | — | — |
| Sept. 30, 2020 | £41138 | £35805 | — | — |



## Trustees

- **ALISON JANE TURNER** (Chair) — appointed Nov. 11, 2017
- LYNDA WHITE — appointed Nov. 12, 2016
- Natalie James — appointed Nov. 17, 2018
- Tanith Sherwood — appointed March 13, 2024