Daisy Chains IW Charity Number: 1156801 Trustees annual report and end of year accounts For the year ended 5[th] April 2023 1 ## Daisy Chains IW – contents page Year-end 5[th] April 2023 Administration Details………………………………………………………………………. **3** Structure and Governance…………………………………………. ………………………. **3** Objectives and Activities……………………………………………. ………………………. **4** Achievements and Performance………………………………………………………. **5/6,7** Trustee Declaration………………………………………………………. ……………………. **7** Statement of Financial Activity………………………………………………………… **8/9,10** Balance Sheet ………………………………………………………………………………. **11** Independent Examination Report………………………………………. ……….…... **12** 2 The Trustees have the pleasure of presenting their report and annual accounts for the year end 5[th] April 2023 ## **Administration Details** Charity registration number: 1156801 Principal address: 1 Acre Cottages Chale Green PO38 2HS ## **Trustees** Clare Plant – Chairperson Pauline Groves Elyse Rose ## **Structure Governance and Management** ## Charitable Incorporated Association Foundation Model **Trustee Appointing:** Trustees are appointed through the existing trustee members after receiving a nomination and majority vote by the board of trustees. Trustee applications will be subject to suitability checks before nominations are accepted. **Reserves Policy:** The Trustees do not have a reserves policy at present 3 ## **Objectives and Activities** To support families with children between birth and 18 years of age on the Isle of Wight that suffer long term health problems, life limiting conditions and disabilities that need essential life changing treatment, hospital treatment at mainland hospitals, or long-term care, this also includes preterm infants transferred to mainland units. Support is provided by way of travel grants to families, we assist with the booking and payment of travel costs to include ferry travel, train, and taxis we can also provide where needed financial support for any accommodation the family may require while tending to their child. The funding is available for both emergency and general medical appointments for the above children and their families, emergency appointments will however take precedence if funds are low. Our team offer 24-hour family support as and when it is needed and are available via text, phone, or email anytime. Families are referred to us via local community nurses, health visitors, NICU Staff to name a few and also by way of self-referral. Financial support is also provided for equipment that will aid or help improve the well-being of a child and for costs of recognised therapies that are not available through the NHS. We have the flexibility to assess any child between 0-18 years that may need support on the Island and can offer support where needed. During the year we also run and hold family enrichments events such as our Christmas party, day trips and “wishes” for those who are on our support system. During these events children may receive a gift, be entertained by children’s entertainers or anything which we feel will offer the children some fun with their siblings and parents. This can also include gifts being sent to children who are in hospital for a long time or those who are isolated in their home due to illness. Our NICU box project is running permanently within Southampton General Hospital. This is where we keep boxes with all the essentials the mum of an unexpected premature baby will need for the first few days after birth, along with info on the support we provide. 4 ## **Achievements and Performance** ## 2022-2023 As we move into the 10[th] year of our charity being formed it has been another challenging year to be a charity as we are now solidly in a cost-ofliving crisis and this has really affected our Income with our business donations and donations from the public being well down, thankfully we were able to bring back our outdoor events which have been hugely successful and well supported, this along with our online fundraising has kept us going this year. The year started off as we would expect with our monthly travel support being about £500 a month however as the year has gone on we have seen a big rise in requests with some months requests doubling our usual rate, we think this is due to the closure of the only 2 other charities that were supporting with travel on the Island leaving us as the only one doing this now , we fully expect this trend to continue into the future and possibly growing even more over the time as we take on more families that were with the other charities. While we continue with our usual objectives we are now beginning to support the families with more cost of living support as it is so needed to help with this we are applying for more and more grants that can be used for this as you can see in the financial round up, we believe this is something we will need to do into the future as people are finding general living costs so tough at the moment , we do keep this funding just for the families we support who all have a child with a long term, life limiting/long term health condition or disability so we are keeping within our expected support area. Due to the success of our events our income has risen back to prepandemic levels and we hope that we can now continue and grow as we were before Covid 19 hit, we aim to do this mostly by growing our events as the success of them is clear with our Easter Egg Hunt, Festival of Heroes and pop up café at IW Festival raising £25k of out total income. - **Families Supported:** The Number of families we have supported this year has increased as it does year on year for travel and equipment support, with 20 new families being referred to us this year. 5 We continued to support 46 families that were already with us from previous years. Over 2022-23 we have supported 66 Island families. As mentioned in previous years, the length of time support is given to each family can range from weeks to years. Usually, the premature babies will be referred to us for the period they are in the NICU on the mainland our longest being 1 year, these families usually have a lot of support over a shorter period, we then close the referral when they go home unless other medical issues are found then they will stay on our system. Children that have a long-term diagnosis will usually stay with us until their 18[th] birthday or sadly until they are no longer with us, these children can have times when they need us a lot and times when they don’t need us as much. Each year all our families fill in an update form so we can look at how things are going and if they still need support if not, they will be closed from the system. This meant that by the end of this financial year we managed to close 35 referrals due to the child being premature and going home, finishing treatment, recovering, or sadly passing away. 31 families continue to receive support from us into 2023/24. ## **Brief roundup of support given in 2022-2023** Number of children supported from previous years **46** Newly referred children **20** Total supported this year **66** Referrals closed during the year **35** Families who will continue to receive support into 2023-24 **31** Total number of families support since we began **266** It has been another tough year for Daisy Chains. However, we are proud of how we managed to come through and bring back our events and get things back on track. Our aim going into the next financial year is to continue to grow our events and be ready to support even more families. We will be looking to grow our Daisy’s Wishes side of the charity and also look at how best to help with the COL crisis as we move forward, and things change. 6 As in previous years our relationship with Southampton NICU and Portsmouth continue to strengthen. We are now both units “go to” charity as soon as an Island baby is admitted. This ensures no family is missed or left to struggle alone. We still get many Isle of Wight referrals from Community Nurses and Health Visitors and lots of families finding us themselves and using our self-referral system. We always help where we can, however, there are rare times when the family do not meet our criteria. In these cases, we always signpost them and talk them through who can help and how to apply for alternative support. We continue to work closely with Red Funnel, Wightlink and Hover travel, to ensure families are supported and able to get across the Solent with the minimum amount of disruption. Our NICU box project has been on hold for this year due to the other things we have funded and the time we need to do them however we aim to bring them back for the coming year and recruit a volunteer to run this project with us. Our Annual Christmas Party did not happen this year but instead we had a cinema day for those that could come and Elf deliveries for those that couldn’t. This worked well, and we hope to do something different each Christmas now. We have again been lucky enough to be supported by The IOW Toy Appeal, cash for kids and Hamilton and Marshall Funeral directors. We also held an extra celebration this year a 10[th] Birthday party for the charity, this was an amazing day with families old and new coming to see us over the day to enjoy activities, characters, magic shows, pottery painting and more. **Funding:** Funding as we mentioned has been down this year, business and the public are being a lot more careful with spending so both kinds of donations were down this year, however as mentioned we more than made this up with our events. Having said this, we have still has some fabulous donations from Island Rds., Ford Takeover, Ryde Town Club to name a few. In conclusion this has been another challenging year to be a charity, but we have managed to keep enough of an income to be able to support lots of families. 7 The Trustees declare they approve the above trustees report Signed on behalf of the charity trustees Clare Plant Chairperson 26/01/2024 **Daisy Chains IW** **Statement of Financial Activities Year-end April 2023** **Income. 2022/2023 Donations** **Public Donations £3779.82** Public donations over £500 Calbourne car boot £1193.58 Melodic choir £538.69 Sunrise Rotary £500 **Business Donations. £4178.31** Business donations over £500 Ford Takeover £500 Ryde Town Club £1000 Vestas £500 Island Rds £721.48 **Grants for Specific use. £1650** 8 Grants over £500 Cash for kids Cost of Living £1650 **JustGiving Donations. £7116.62** JustGiving donations over £500 Apex Competition £1425 Glynn Groves memorial £840 Charlotte Wellard £500 Adrian Godfrey £2000 Emily Newman £620 Batemans-Collins £1000 **JustGiving Gift Aid £954.47** ## **Events Income** **Small Events £998.74** **Online Events** **£1176.93** **IW Festival £6,959.75** **Festival of Heroes £18,470.90** **Gross Income** **£45,285.54** **Less costs of Events and Sponsored Activities** **£15608.86** **Total Net Income** **£29,676.68** **Expenditure** **Family Travel Granting £9203.95** Premature baby travel £2829.38 General family travel £6374.57 9 **All Other Family Support Costs £21,419.44** Equipment Grants £278.74 Treatment, Therapy and Family Treats £6430.70 Regular family support £12230 NICU Boxes £0 Food , Heat and Basic Essentials Funding £2480 **Insurance £186.08** **Rent, Rates and Utilities £2086.27** **Postage and Stationery £476.37** **Advertising £315.09** **JustGiving Fees £216** **Office Equipment £135.10** **Volunteer Costs £349.06** **Events and Sponsored activities £15608.86** **Total spending at bank £34390.36** **…………………………………………………………………………………………………** **………………………………………..** **Daisy Chains IW Statement of fnancial activities year end April 2023** **Opening Balance £6493.01** 10 **………………………………………………………………………………………………… ………………………………………..** **Gross Income £45,285.24** **Total Expenditure £49,996.22** **………………………………………………………………………………………………… ………………………………………** **Total Funds Carried Forward £1782.03** **Total at Bank £1782.03** **The above financial information is approved by the trustees and signed for on their behalf by** **Mrs Clare Plant Chair of Trustees** **Signed………Clare Plant ………………………………. Date … 26/01/24………………………………….** 11 **Daisy Chains IW Balance Sheet** **Year-end April 2023** **(All unrestricted funds)** **Current Assets** **Cash at bank and in hand £1782.03** **Creditors** **Amounts falling due within 1 year £0** **Net current assets £1782.03** **Total assets less current liabilities £1782.03** **Total Funds £1782.03** **These financial statements are approved by the board and signed on their behalf by** **Chairperson …Clare Plant ……………………………Date ……… 26/01/24………………….** 12 ## **Independent Examiners Report of Daisy Chains IW** **I report on the accounts for the charity for the year end April 5[th] , 2023 as set out in this document.** **The charity Trustees are responsible for the preparation of accounts. The Trustees consider that an audit is not required for this year under the section 144(2) of the charities act 2011 (the 2011 act) but that an independent examination is sufficient.** **I can confirm I have examined the accounts and must state if any particular matters have come to my attention, I have examined the accounting records of the charity and made a comparison with the accounts presented with those records.** **I have also considered if any items are unusual in any way and would seek explanations if this was the case, the procedures undertaken do not provide all the evidence that would be required in an audit and consequently no opinion can be given as to whether the accounts present a true or fair view, and this report is limited to those matters set out in the statement below.** No Matter has come to my attention: - 1) Which gives me reasonable cause to believe that, in any material respect, the requirements: - To keep accounting records in accordance with section 130 of the 2011 Act. - To prepare accounts which accord with the accounting records and comply with the accounting requirements of the 2011 Act and principles of statement of recommended practice, - accounting and reporting by charities have not been met or - 2) To which my opinion, attention should be drawn in order to enable a proper understanding of the account’s to be reached. **Examiner:** Amy Graham **Date:** 26/01/2024 **Address:** 69 Manor Crescent, Newport, Isle of Wight, PO30 2BJ. **Position:** Finance Assistant. 13