2022-04-06-accounts

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Daisy Chains IW Charity Number: 1156801 Trustees annual report and end of year accounts For the year ended 5[th] April 2022

Daisy Chains IW – contents page Year-end 5[th] April 2021

Administration Details………………………………………………………………………. 3 Structure and Governance…………………………………………. ………………………. 3 Objectives and Activities……………………………………………. ………………………. 4 Achievements and Performance………………………………………………………. 5/6,7 Trustee Declaration………………………………………………………. ……………………. 7 Statement of Financial Activity………………………………………………………… 8/9,10 Balance Sheet ………………………………………………………………………………. 11 Independent Examination Report………………………………………. ……….…... 12

The Trustees have the pleasure of presenting their report and annual accounts for the year end 5[th] April 2022

Administration Details

Charity registration number: 1156801 Principal address: 1 Acre Cottages Chale Green PO38 2HS

Trustees

Clare Plant – Chairperson Pauline Groves Elyse Rose

Structure Governance and Management

Charitable Incorporated Association Foundation Model

Trustee Appointing: Trustees are appointed through the existing trustee members after receiving a nomination and majority vote by the board of trustees. Trustee applications will be subject to suitability checks before nominations are accepted.

Reserves Policy: The Trustees do not have a reserves policy at present

Objectives and Activities

To support families with children between birth and 18 years of age on the Isle of Wight that suffer long term health problems, life limiting conditions and disabilities that need essential life changing treatment, hospital treatment at mainland hospitals, or long-term care, this also includes preterm infants transferred to mainland units.

Support is provided by way of travel grants to families, we assist with the booking and payment of travel costs to include ferry travel, train, and taxis we can also provide where needed financial support for any accommodation the family may require while tending to their child.

The funding is available for both emergency and general medical appointments for the above children and their families, emergency appointments will however take precedence if funds are low.

Our team offer 24-hour family support as and when it is needed and are available via text, phone, or email anytime. Families are referred to us via local community nurses, health visitors, NICU Staff to name a few and also by way of self-referral.

Financial support is also provided for equipment that will aid or help improve the well-being of a child and for costs of recognised therapies that are not available through the NHS.

We have the flexibility to assess any child between 0-18 years that may need support on the Island and can offer support where needed.

During the year we also run and hold family enrichments events such as our Christmas party, day trips and “wishes” for those who are on our support system. During these events children may receive a gift, be entertained by children’s entertainers or anything which we feel will offer the children some fun with their siblings and parents. This can also include gifts being sent to children who are in hospital for a long time or those who are isolated in their home due to illness.

Our NICU box project is running permanently within Southampton General Hospital. This is where we keep boxes with all the essentials the mum of an unexpected premature baby will need for the first few days after birth, along with info on the support we provide.

Achievements and Performance

2021-2022 has been another challenging year to be a charity, after coming through the worst of the Covid 19 pandemic we have found ourselves in a position where we are still unable to fundraise in the usual way via our annual events, this is due to the current guidelines and risks involved, meaning we have had to continue with online events as best we can and asking for donations via our social media channels.

Many charities have found that in this post pandemic time it is harder to fundraise than in the actual pandemic, people are slowly going back to ‘normal’ but there are still many restrictions in place limiting what we can do.

This has been tricky to manage as we are receiving exceptionally high volumes of requests for help due to the many missed appointments, worsening of illness and the financial impact of work changes that families have faced due to covid 19.

As we were unable to hold events in this funding year our accounts will show that our income is reduced this year and yet our funding for families has increased to more than double last year’s costs, this is due to a combination of rising costs of travel and the increase in families supported.

We were however able to attend a late IOW Festival with our pop-up café in September which helped hugely towards the end of the year, we hope this is the start of us being able to return to our usual events.

Families Supported: The Number of families we have supported this year has increased as it does year on year for travel and equipment support, with 31 new families being referred to us this year.

We continued to support 33 families that were already with us from previous years.

Over 2021-22 we have supported 64 Island families. As mentioned in previous years, the length of time support is given to each family can range from weeks to years.

Usually, the premature babies will be referred to us for the period they are in the NICU on the mainland our longest being 1 year, these families usually have a lot of support over a shorter period, we then close the referral when they go home unless other medical issues are found then they will stay on our system.

Children that have a long-term diagnosis will usually stay with us until their 18[th] birthday or sadly until they are no longer with us, these children can have times when they need us a lot and times when they don’t need us as much.

Each year all our families fill in an update form so we can look at how things are going and if they still need support if not, they will be closed from the system.

This meant that by the end of this financial year we managed to close 18 referrals due to the child being premature and going home, finishing treatment, recovering, or sadly passing away.

46 families continue to receive support from us into 2022-23.

Brief roundup of support given in 2021-2022

Number of children supported from previous years 33 Newly referred children 31 Total supported this year 64 Referrals closed during the year 18

Families who will continue to receive support into 2022-23 46

Total number of families support since we began 246

It has been another tough year for Daisy Chains. However, we are proud of how we managed to come through what has been some of the most difficult and trying times we have ever faced.

We hope that going into the next financial year we can bring back our much-loved events such as our Easter Egg Hunt and Festival of Heroes and also be able to get our families together again for some much-needed treats and fun.

As in previous years our relationship with Southampton NICU and Portsmouth continue to strengthen. We are now both units “go to” charity as soon as an Island baby is admitted. This ensures no family is missed or left to struggle alone.

We still get many Isle of Wight referrals from Community Nurses and Health Visitors and lot of families finding us themselves and using our self-

referral system. We always help where we can, however, there are rare times when the family do not meet our criteria. In these cases, we always signpost them and talk them through who can help and how to apply for alternative support.

Zoom calls have stayed with us this year and for the latter part of the restrictions we ran a Zoom Premature Baby Support Group once a week which was funded by HIWCF , we had mums who had been through the premature journey already along with new mums of preemies , some still in hospital, it has been a valuable tool to allow mums to meet and not feel alone, we did not continue with this group once funding ran out as we were able to meet face to face again at this point .

We continue to work closely with Red Funnel, Wightlink and Hover travel, to ensure families are supported and able to get across the Solent with the minimum amount of disruption.

Our NICU box project is slowly coming back in to use, however we only managed one small delivery this year but aim to get it back in full swing in the coming months.

Our Annual Christmas Party was unfortunately unable to go ahead again this year due to the restrictions, so we again sent our Elves out to the children and families with lots of Christmas goodies and treats. We have again been lucky enough to be supported by The IOW Toy Appeal and Hamilton and Marshall Funeral directors.

Funding: Funding has again been extremely difficult this year as we have been unable to do our events. We have been extremely lucky to have been supported by some large companies such as ICR Touch, Co-op, Newport youth Football team and be the beneficiary of some Christmas light displays, all of which have made a huge difference to us. We look forward to the return of our event to be able to fundraise again for ourselves.

In conclusion this has been another challenging year to be a charity, but we have managed to keep enough of an income to be able to support lots of families.

The Trustees declare they approve the above trustees report Signed on behalf of the charity trustees

Clare Plant

Chairperson 17/01/2023

Daisy Chains IW

Statement of Financial Activities Year-end April 2021

Income. 2021/2022 Donations

Public Donations £7,555.44

Public donations over £500 Matt Wilson £1436 Whitecross Lane Christmas Lights £850 Long Lane Christmas Lights £2250 K Miles - £500

Business Donations.

£14,378.09 Business donations over £500

ICR Touch £3186.95 HIWCF £ 2986 Milford Del £2000 Masonic Charitable Foundation £500 Newport Youth Football Team £1214.02 Co-op Charity of the year £2617.23 Wight Aid Foundation £500 Apes Vapes £1000

JustGiving Donations. £4741.38

JustGiving donations over £500 Ryde Town Club £1000 Ryde House £1000

JustGiving Gift Aid £631.39

Events Income

Daisy Events £0

Online Events

£1789.28

Pop up Café £4488.32

Festival of Heroes £0

Less costs of Events and Sponsored Activities

£2146.76

Total Net Income

£31,654.50

Expenditure

Family Travel Granting £12,217.22

Premature baby travel £5673.71 General family travel £6543.51

All Other Family Support Costs

£14,389.37 Equipment Grants £0 Treatment, Therapy and Family Treats £2459.42 Regular family support £11,700

NICU Boxes £229.95

Insurance £194.72

Rent, Rates and Utilities £3241.93

Postage and Stationery £26.42

Advertising £187.26

JustGiving Fees £216

Miscellaneous £135.27

Office Equipment £158.11

Volunteer Costs £100

Total spending at bank £30,866.30

………………………………………………………………………………………………… ………………………………………..

Daisy Chains IW Statement of fnancial activities year end April 2021

Opening Balance £5704.81

………………………………………………………………………………………………… ………………………………………..

Gross Income £33,801.26

Total Expenditure £33,013.06

…………………………………………………………………………………………………

………………………………………

Total Funds Carried Forward £6493.01

The above financial information is approved by the trustees and signed for on their behalf by

Mrs Clare Plant Chair of Trustees

Signed………Clare Plant ………………………………. Date … 17/01/23………………………………….

Daisy Chains IW Balance Sheet Year-end April 2020

(All unrestricted funds)

Current Assets

Cash at bank and in hand

£6493.01

Creditors

Amounts falling due within 1 year £0

Net current assets £6493.01

Total assets less current liabilities £6493.01

Total Funds £6493.01

These financial statements are approved by the board and signed on their behalf by

Chairperson …Clare Plant ……………………………Date ……… 26/01/22………………….

Independent Examiners Report of Daisy Chains IW

I report on the accounts for the charity for the year end April 5[th] , 2022 as set out in this document.

The charity Trustees are responsible for the preparation of accounts. The Trustees consider that an audit is not required for this year under the section 144(2) of the charities act 2011 (the 2011 act) but that an independent examination is sufficient.

I can confirm I have examined the accounts and must state if any particular matters have come to my attention, I have examined the accounting records of the charity and made a comparison with the accounts presented with those records.

I have also considered if any items are unusual in any way and would seek explanations if this was the case, the procedures undertaken do not provide all the evidence that would be required in an audit and consequently no opinion can be given as to whether the accounts present a true or fair view, and this report is limited to those matters set out in the statement below.

No Matter has come to my attention:

1) Which gives me reasonable cause to believe that, in any material respect, the requirements:
To keep accounting records in accordance with section 130 of the 2011 Act.
To prepare accounts which accord with the accounting records and comply with the accounting requirements of the 2011 Act and principles of statement of recommended practice,
accounting and reporting by charities have not been met or
2) To which my opinion, attention should be drawn in order to enable a proper understanding of the account’s to be reached.

Examiner: Amy Graham Date: 17/01/2023 Address: 69 Manor Crescent, Newport, Isle of Wight, PO30 2BJ. Position: Finance Assistant.