hfin
ers
neuromuscular
alliance
ANNUA
REPOR
20
DECEMBER 11 2022
01.
Cover
02.
Contents
03.
Chair of Trustees Foreword
04.
Mission, Vision and Values
Charitable Objectives
06. Our Aims
07.
Our Aims
08. CEO'S Reflections
09. Key Achievements
10.
Achievements Against Objectives & Financial Review
Organisational Development, Support & Advocacy
12.
Uplift & Content Creators
13.
Online Skills & Transition Research
14.
Housing Accessibility Campaign
Training for PAS and Carers
16.
Acknowledgements
Pathfinder5 Neuromuscular Alliance
STRATEGIC PLAN FOR 2022-2023
CHAIR OF
TRUSTEES
Pathfinders Neuromuscular Alliance has made huge
strides this year. A big thank you to dedicated staff,
volunteers and supporters for their part in creating
such a supportive space, reaching out to others and
building on our reputation as a user-led organisation.
There have been a number of projects running and
more in the planning stages. The PA Training
modules are an example of how the charity listens,
identifies a need and does something about it.
Congratulations to all involved in bringing this
project to life.
4¢
With the pandemic still very much present, the
online socials have played a vital role in keeping in
touch, enabling us to share our experiences and
support each other. The Uplift project will also
provide opportunities to connect with each other
and develop skills. We look forward to seeing how
this project develops.
Sarah Rose - co-chair of Trustees
This has been a period of stability. building on
foundations and consolidating the charity's position.
There is much going on in the background that is not
always visible for example, the research project on
Transition and the campaigning about Personalised
Care needs. Always keeping our core values in mind,
the coming year is going to be an exciting one for
Pathfinders.
Vicky Mozley- co-chair of Trustees
Co-chair of the Board of Trustees
Pathfinder5 Neuromuscular Alliance
STRATEGIC PLAN FOR 2022-2023
MISSION
Pathfinders Is a user-led organi5ation by and for people with muscle-
weakening conditions. We want everyone to have choice and control
over where and how they live their lives. with access to peers, community
and connection. We offer social and educational opportunities, providin8
advice, information, support and advocacy, as well as campaigning, and
running projects designed to help our members overcome barriers.
VISION
We want to build a society in which people with muscle-weakenin8
conditions are able to lead full. expansive, and self-determined lives. We
believe social care and healthcare should be easily accessib11e, and
treatments should be publicly funded and freely available.
We recognise the skills, aspirations. and achievements of our members.
and look to a world which enables everyone to reach their f ull potentiaL
VALUES
Pathfinder5 believes in:
Bein8 a user-led or8anisation
Bein8 diverse and inclusive
Recognising everyone has different situations. achievements, skill5,
and aspirations
Empowering our members
The value of collective experience
Working constructively and collatrM)ratively with other organisations
Campaigning for change
Creating a positive. fun. and engaging environment
Pathfinder5 Neuromuscular Alliance
STRATEGIC PLAN FOR 2022-2023
CHARITABLE
OBJECTIVES
1. The promotion of social inclusion of people with neuromuscular
conditions who are socially excluded f rom society, or parts of society
as a result of having Muscular Dystrophy and related neuromuscular
conditions by:
a) Providing a network of groups that encourage and enables
them to participate more eff ectively with the wider community,
b) Increasing or co-ordinating opportunities for them to engage
with organisations and service providers to enable those
providers to adapt services to better meet their needs,
c) Raising public awareness of the issues affecting them in aLI
areas relating to having a neuromuscular condition,
d) Providing support to those between the age of18 and 30 who
are socially excluded to establish and grow a business or
enterprise to relieve their needs and assist them to integrate into
society.
2. To promote and protect the physical and mental health of people
with Muscular Dystrophy and related neuromuscular conditions in the
United Kingdom as the trustees shall determine.
Pathfinder5 Neuromuscular Alliance
STRATEGIC PLAN FOR 2022-2023
OUR AIMS
Every year, we look at our aims as a charity, and assess
what we have done to achieve those aims. This helps us
understand whether we are providing the community with
the things we have said we will offer as a charity.
To provide a voice for adults living with Muscular
Dystrophy and related neuromuscular conditions
We have engaged on matters of policy, including those around the COVID-19
pandemic. housing. and access to treatments for people with Spinal Muscular
Atrophy
To provide information. advice and peer support to
adults living with Muscular Dystrophy and related
neuromuscular conditions
We have continued to manage peer facilitsted support through our online
forum
To provide a forum for adults living with Muscular
Dystrophy and related neuromuscular conditions to
share experiences, ideas and opinions in complete
confidence
We have created and updated website resource5, and run a range of
workshops, talks, and discussion events that have allowed adults with
muscular dystrophy and related neuromuscular conditions to network. seek
support. and offer support to one another.
Pathfinders Neuromuscular Alliance
ANNUAL REPORT 2021-22
To identify. promote, and develop best practice, innovative treatments
and technologies for adults living with Muscular Dystrophy and related
neuromuscular conditions.
We have identified challenges in the housing market and made
recommendations about increasing the stock of accessible housing. We have
also supported campaigns for treatments for Spinal Muscular Atrophy to be
available to appropriate adults.
We have carried out research into the process of transitioning to adulthood
for people with DMD and are currently disseminatingthose findings and
looking to UtiSe them for policy inf luence
To campaign and influence treatments for adults
living with Muscular Dystrophy and relaled
neuromuscular conditions within health and local
authorities, government, relevant professionals.
disability organisations and charities.
We have been involved with a range of campaigns, with a particular focus on
housing, social ca, and personalised care
To work with health and local authorities,
overnment, disability organisations and charities in
improving care, support and services for adults
living with Muscular Dystrophy and related
neuromuscular conditions.
As well as our direct support and advocacy work and our housing research and
campaigns, we have led a campaign on allowing people acce55 to their
Personal Assistants IPAS) or carers while in hospital, and developed a training
package for PAS on supporting people with muscle-weakeningconditions
To increase awareness of adults living with Muscular
Dystrophy and related neuromuscular conditions.
Through designingtrainingfor PAS and carers and our campaign work, we
have increased awareness of adults with muscular dystrophy and related
conditions
Pathfinders Neuromuscular Alliance
ANNUAL REPORT 2021-22
REFLECTIONS
During this financial year, the COVID-19 pandemic ha5 continued
to affect our members, and radically limit our ability to undertake
in-person work. We have, however. continued to provide a wide
range of services online, including support and advocacy. training
and development. advice and information, and research and
campaigns.
Jamie Hale
CEO
We have been able to develop projects applied for during the
previous financial year, ensuring that we have continued to
support people with DMD specifically, whilst also widening our
provisions for people with other muscle-weakening conditions.
The events and programmes we have run to benefit people with
muscle-weakening conditions including direct 1..1 support and
advocacy, supporting and managing peer-facilitated discussion
and advice spaces, running social events, and leading on a wide
range of projects. includin8 research into transition to adulthood
for young people with Duchenne Muscular Dystrophy (DMD),
designing and running a training programme for Personal
Assistants {PAs) of people with muscle-weakening conditions.
running an 'online skills, training project for people with DMD. and
running an accessible housing campaign.
We also put considerable time into updating our procedures,
including a new membership process and fundraising guide.
Finally. we began the process of running UpLift. a National Lottery
funded project which will run for four years. supporting young
people aged 18-30 to build self-advocacy and campaigning skills
through a series of online and in-person events.
Jamie Hale
Pathfinders Neuromuscular Alliance
ANNUAL REPORT 2021-22
KEY ACHIEVEMENTS
The first independent-living based training programme
for PAS and carers designed and led by people with
muscle-weakening conditions
confident in th
to
r4
The first research project on the experiences of people
with DMD, led by people with DMD themselves, giving
people the chance to develop their academic skills, and
have research published
so that I could use
I wanted to join the project
academic research skills to
help produce research which
may directly benefit others
Ivith DND and other
neuromuscular conditions.
c,
e¥sit
Projects supporting people with DMD to develop skills
as online freelancers, whilst creating resources for the
community
- where
I felt this improved
my confidence and
helpedme a lot in
talkin8 to newpeople
Pathfinders Neuromuscular Alliance
ANNUAL REPORT 2021-22
ACHIEVEMENTS AGAINST
OBJECTIVES SET
In our last strategic Pn, we prioritised organisational and financial stabilisation and development.
increased engagement, information and advice, running campaigns, and events. and securin8
funding applications for future projects.
We almost completed our policy review, and have the remaining policy development in progress.
We also moved to more resilient financial management software, allowing for us to better analyse
our f inancial situation. reflecting our organisational growth.
All our projects are proceeding well and comfortably within reporting deadlines and requirements.
and we have added a lot of valuable resources to our website. which we continue to do.
Where we have stru8gled to reach our objectives, this has been due to limited staff capacity
and time - a sector-wide problem, and one we are endeavouring to resolve by trying to create
a situation in which staff are not always expected to be working at capacity.
FINANCIAL REVIEW
In our last stratewc plan we had the objective of £10,000 of community fundraising during the
year. We did not achieve this objective, but identified a number of factors that affected this, and
intend to focus on brand. identity, and marketing to support our community fundraising work
going forward, alongside applying for funds for this important work.
We set out different objectives for grant fundraising and comfortably acheived those. We are
principally funded by grant-making organisations, including the Tudor Trust and National Lottery,
by government bodies such as SkilL5 for Care, and by pharmaceutical companies including PTC
TherapeutlC5. We are also funded in partnership working with other neuromuscular organisations
such as Duchenne UL.
The funding we have secured from the National Lottery witL allow us to run a multi-year project
titled UpLift, developing campaign and self-advocacy skills in people with muscle-weakening
conditions.
We are confident in the ongoing reserves situation and in the financial stability of the organisation.
Pathfinders Neuromuscular Alliance
ANNUAL REPORT 2021-22
OUR WORK
ORGANISATIONAL DEVELOPMENT
We continued to work with jamie Hale and lon Hastie as CEOS, and had a significant number
of staff across the year including:
Michaela Hollywood
Suzanne Glover
Cath McNicol
lacqui Adeniji-williams
Adam Langley
julian Fiorentini
Olivia Morgan
Melissa Gordon
Sanjeev Mann
We focused on building capacity with regard to social media and membership administration.
Our social media work was carried out primarily by Sanjeev Mann whilst funded by the Tudor
Trust as a development off icer, and included commissioning blogs and articles as well as day
to day management and growth. This has benefited our members through the increased
awareness and outreach that Pathfinders now has.
By employing Kate Mellor as an administration assistant. we were able to design new
membership processes and StamIlne many of our administration and payroll tasks. This has
benefited our members in that less of our charity resource is spent on administration and
payroll, meaning members are better contacted and supported, and that staff time is able to
be managed to maximise member benefit.
SUPPORT AND ADVOCACY
We have continued our 1.1 support and advocacy work, assisting members, families, and
professionals around them. The two key areas of need we have identified have been around
access to social care and to employment. This has had a significant impact on the individual
beneficiaries. As well as supporting individuals with these processes, we have also ensured that
we are providing information for groups who need it.
This includes running a series of sessions around work for people with DMD on the Online
Skills project, and the training course we designed for Personal Assistants. with the intention of
ensurirE better quality support for people with muscle-weakening conditions. This has allowed
our work to have a benefit for the wider community of people with muscle-weakening
conditions that we serve, regardless of their membership of the organisation.
Pathfinders Neuromuscular Alliance
ANNUAL REPORT 2021-22
OUR WORK
PROJ ECT: UpLift: Disability Advocacy Project
We received a funding agreement for UpLift
from the National Lottery
a youth
development project focused on supporting
people to build skills in areas including self-
advocacy and campaigns, whilst also focusing
on an independent adulthood with muscle-
weakening conditions.
We set up a steering committee and began work on the pilot year, which will run from 2022 to
2023 and includes a range of events on adult living with neuromuscular conditions, including
around sex, relationships, driving, care. housing, and independence.
PROJ ECT: Content Creators Academy
At the start of the year we started our
Content Creators Academy- Specifically
for people living with DMD. This offered
training in working f reelance as a conter)t
creator with DMD, alongside offering paid
work in content creation. supporting
people in building skills and a portFolio,
whilst producing content relevant to
other young people with DMD (and other
muscle-weakening conditions).
At project outset, we delivered 3
workshops online to support freelance
content creators:
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including articles. infographics. and a
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completing and publishing over the next
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Pathfinders Neuromuscular Alliance
ANNUAL REPORT 2021-22
OUR WORK
PROJECT:
Online Skills Trainin
We designed a proFct for people with DMD, connecting young
people with DMD, adults with DMD, and parents of young
people with DMD, focused on Encouraging Independence,
through online webinars and coaching sessions titled Ask the
Adults, Ask the Parents, and Ask Gen Z, leading to open
conversation and connection.
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Areas?
How people th
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conditior15 live
across the world
We also worked with two cohorts of young people with DMD to
support them in developing skills to run online events, through
weekly event planning meetings and workshops led by people
with muscle-weakening conditions. These covered research.
marketing, flyer design, and public speakin& The workshops
empowered young people with DMD to run online events,
including Shut Up and Drive - an event on driving with DMD,
Wheelie Good Holidays
an event on travelling with DMD,
Anime Explained, and Access All Areas.
bt èprn
AKiMe ExpldiKed
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The project had a significant impact on a wide range of
participants. One mother noted that her son had gained some
confidence and "it was a good opportunity for him to engage
with others online and do something differenv. Another
participant said "I felt this improved my confidence and helped
me a lot in talking to new people" and others said they had
become more confident in "presenting in front of people"
"workingas part of a team" and "being able to speak clearly"
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RESEARCH: Transition to Adulthood with DMD
We have continued into a second year of our peer-led research into transition to adulthood for
people with DMD. This research has developed significantly with important findinES emerging.
Our Research Officer. Dr Suzanne Glover worked with peer researchers to carry out interviews
acr055 Europe, analysing them to undeistand how adults with DMD understand their
experience5 of transitioning to adulthood.
It showed how young adults with DMD often see the wodd as incompatible for people with
DMD when considering many of the important milestones of transition to adulthood. This
includes transitions in educational settings. post-educational opportunities. as well as
navigating new and existing social relationships entering adult life. The research suggests that
much of this perceived incompatibility is fuelled by experiences of ableism and subsequent
internalised ableism. Once the analysis has been completed, we wll be focusing on
disseminating these findings. hoping to use them to create change.
Pathfinders Neuromuscular Alliance
ANNUAL REPORT 2021-22
OUR WORK
RESEARCH: Housing Accessibility Campaign
This took place from April to October, and was a research study and scoping exercise to inform
future work on housing accessibility foradults with DMD.
Dr lon Rey-Hastie (CEO at Pathfinders) worked with Dr Janet Hoskin at the University of East
London to carry out research into future housing acce55ibility for adults with DMD. Thi5 found
that there 15 not enough accessible housing in the UK and not enough information available for
people to find current accessible housing.
This led us to make key recommendations, including.
Information about finding accessible housing on the private housing market needs to be
readily available and accessible for disabled people
Information about finding social housin8 needs to be readily available and. accessible for
disabled people
Government and Local Authorities must commit to increase the provision of accessible
housing
Local Authority housing services should be joined up with social care and health sUPPOrt
This research has led to a better understanding of the housing market for disabled people, with
benefit to disabled people more broadly, outside our membership. but grounded in a specific
knowledge of the needs of people with neuromuscular conditions. The knowledge has also
informed much of our support and advocacy work around housing.
"Working on the accessibility housing research project
illuminated to me the amount of work there is yet to be
done to get enough suitable accessible housing in the UK.
On a personal leveL working on this project was my first
employment and gave me confidence and I built on skills I
had gained at university. The project also led to my
following two employed positions at Pathfinders"
Kate Mellor
Pathfinders Neuromuscular Alliance
ANNUAL REPORT 2021-22
OUR WORK
PROJECT:
Training for PAS and Carers
Pathfinders identified that people with muscle-weakening conditions often have specific
requirements in accessing personal support, and that having a training programme for Personal
Assistants (carers) of people with muscle-weakening conditions would be very beneficial. Through
informal polling and di5CUs5ions with members. we identified Significant challenges Wlth
recruitment and retention. and a lack of training material which both explored the common factors
shared by people with muscle-weakening conditions, and the role of the PA.
Thi5 training programme offeT5 a transferable certification of completion. allowing PAS to move
between roles while demonstrating knowledge of the needs of our community.
We developed 13 modules in total:
1. Introduction to neuromuscular conditions
2. Independence and the social model of disability
3. Neuromuscular conditions and common emergencies
4.Common equipment used by people with neuromuscular conditions
5.Ventilation
6. Posture. skin and position
7. Swallowing and nutrition
8. Physiotherapy and exercise
9.Wor*ing in someone's home and workplace
10. Supporting disabled people as parents
11. Respect, intimacy and personal care
12.Supporting people with sex and relationships
13.Supporting people with their emotional health
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KSS
The modules were all led by people
with muscle-weakening conditions,
with specialists contributing where
appropriate, and were delivered
across a range of training days.
I've been employing carers for over 10 years and
I've never come across training that is so relevant
and up-to-date for someone with a muscle
wasting condition. I frequently send carers on
mandatory training which does not cater for any
of my specific care needs. I feel this can have a
negative impact on the quality of my care and
staff morale. I can honestly Say that there has
been a buzz in the air with my care team over the
past few weeks because of thi5 training.
Following the end of this project,
these modules are available for free
online for anyone to take- whether a
PA or carer, a friend, a family
member. or a professional. offering a
range of information in what muscle-
weakening conditions are and how
they affect people.
Pathfinders Neuromuscular Alliance
ANNUAL REPORT 2021-22
Prepared by jamie Hale fof the Board of Trustees, November 2022
With thanks to:
The staff, trustees and volunteers who
keep Pathfinders going. and the members
who generously share their advice and
support in our facebook groups and at our
events,
Thank you for your continued
support of Pathfinders
Contact:
General - infotDpathf indersalliance.org.uk
Trustees - trusteesdjpathf indersalliance.org.uk
CEO - jamie Hale jamieopathfindersalliance.org.uk
Pathfinders Neliromuscular Alliance
ANNUAL REPORT 2021-22
|**Charity Name**
**No (if any)**
**Pathfinders Neuromuscular Alliance**
**1155884**
**Receipts and payments accounts**
**For the period**
**from**
Period start
**To**
Period end
6th April 2021
5th April 2022|**CC16a**|
|---|---|
## **Section A Receipts and payments**
**----- Start of picture text -----**
Unrestricted Restricted Endowment Total Last year
to the nearest to the to the nearest to the to the nearest
£ nearest £ £ nearest £ £
A1 Receipts
Fundraising 5,463 - - 5,463 4,149
Grants 37,565 195,837 - 233,401 78,789
Reimbursements 5,199 - - 5,199 3,651
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
Sub total (Gross 48,226 195,837 - 244,062 86,589
A2 Asset and
- - - -
- - - - -
Sub total - - - - -
Total receipts 48,226 195,837 - 244,062 86,589
A3 Payments
Bank interest and charges 102 12 X - 114 69
Employment costs 29,396 79,995 - 109,391 49,419
Insurance, governance, and 4,078 2,045 - 6,123 2,693
Office, equipment and 7,799 - - 7,799 3,500
Project and event costs 53 11,682 - 11,735 354
Promotional activity 210 - 210 168
Payment and transaction costs 2 - - 2 1,030
- - - - -
- - - - -
Sub total 41,430 93,944 - 135,374 57,233
CORRECT CORRECT
A4 Asset and
- - - -
- - - -
Sub total - - - - -
Total payments 41,430 93,944 - 135,374 57,233
Net of receipts/(payments) 6,795 101,893 - 108,688 29,356
A5 Transfers between funds - - - - -
A6 Cash funds last year end 37,952 32,478 - 70,430 41,073
Cash funds this year end 44,747 134,371 - 179,118 70,429
**----- End of picture text -----**
|**Section B Statement of assets and liabilities at the end of the per**
|**Section B Statement of assets and liabilities at the end of the per**
|**Section B Statement of assets and liabilities at the end of the per**
|**Section B Statement of assets and liabilities at the end of the per**
|
|---|---|---|---|
|**Categories**
Signed by one or two
**B5 Liabilities**
**B3 Investment assets**
**B4 Assets retained for**
**the charity’s own use**
**B2 Other monetary**
**assets**
**B1 Cash funds**|Signature
**Details**
Unpaid invoice to NJC
Secretarial
Unpaid invoice to Luca Buccella
**Details**
**Details**
(agree balances with receipts and
payments account(s))
**Details**
**_Total cash funds_**
**Details**|**Unrestricted Restricted**
**to nearest £**
**to nearest £**
**44,747**
**134,371**
**-**
**-**
**-**
**-**
**44,747**
**134,371**
OK
OK
**Unrestricted**
**funds**
**Restricted**
**funds**
**to nearest £**
**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**Fund to which**
**asset belongs**
**Cost**
**(optional)**
**-**
**-**
**-**
**-**
**-**
**Fund to which**
**asset belongs**
**Cost**
**(optional)**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**Fund to which**
**Amount due**
PTC Research
**58**
PTC Research
**1,156**
**-**
**-**
**-**
Print Name|**Endowment**
**to nearest £**
**-**
**-**
**-**|
||||**-**|
||||OK|
||||**Endowment**
**funds**
**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**Current value**
**(optional)**
**-**
**-**
**-**
**-**
**-**
**Current value**
**(optional)**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**When due**
**13/10/22**
**30/11/22**
Date of|
## **INDEPENDENT EXAMINER’S REPORT TO THE TRUSTEES OF PATHFINDERS NEUROMUSCULAR ALLIANCE**
I report to the trustees on my examination of the accounts of Pathfinders Neuromuscular Alliance (‘the charity’) for the year ended 5 April 2022.
## **Responsibilities and basis of report**
As the charity’s trustees, you are responsible for the preparation of the accounts in accordance with the requirements of the Charities and Trustee Investment (Scotland) Act 2005 (the ‘2005 Act’), the Charities Accounts (Scotland) Regulations 2006 (as amended), and the Charities Act 2011 (‘the 2011 Act’). You are satisfied that your charity is not required by charity law to be audited and have chosen instead to have an independent examination.
I report in respect of my examination of the Trust’s accounts carried out under section 44 (1) (c) of the 2005 Act and section 145 of the 2011 Act. In carrying out my examination I have followed the requirements of Regulation 11 of the Charities Accounts (Scotland) Regulations 2006 (as amended) and all applicable Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act.
## **Independent examiner’s statement**
I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
1. accounting records were not kept as required by Section 44 (1) (a) of the 2005 Act and Regulation 4 of the Charities Accounts (Scotland) Regulations 2006 (as amended) and section 130 of the 2011 Act; or
2. the accounts do not accord with those records; and
3. the accounts do not comply with the accounting requirements of Regulation 8 of the Charities Accounts (Scotland) Regulations 2006 (as amended).
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
Mr J P Foxwell FCCA FCIE independent-examiner.net
39 Enfield Road, Poole, BH15 3LJ
Date: 13 December 2022
|**Charity Name**
**No (if any)**
**Pathfinders Neuromuscular Alliance**
**1155884**
**Receipts and payments accounts**
**For the period**
**from**
Period start
**To**
Period end
6th April 2021
5th April 2022|**CC16a**|
|---|---|
## **Section A Receipts and payments**
**----- Start of picture text -----**
Unrestricted Restricted Endowment Total Last year
to the nearest to the to the nearest to the to the nearest
£ nearest £ £ nearest £ £
A1 Receipts
Fundraising 5,463 - - 5,463 4,149
Grants 37,565 195,837 - 233,401 78,789
Reimbursements 5,199 - - 5,199 3,651
- - - - -
- - - - -
- - - - -
- - - - -
- - - - -
Sub total (Gross 48,226 195,837 - 244,062 86,589
A2 Asset and
- - - -
- - - - -
Sub total - - - - -
Total receipts 48,226 195,837 - 244,062 86,589
A3 Payments
Bank interest and charges 102 12 X - 114 69
Employment costs 29,396 79,995 - 109,391 49,419
Insurance, governance, and 4,078 2,045 - 6,123 2,693
Office, equipment and 7,799 - - 7,799 3,500
Project and event costs 53 11,682 - 11,735 354
Promotional activity 210 - 210 168
Payment and transaction costs 2 - - 2 1,030
- - - - -
- - - - -
Sub total 41,430 93,944 - 135,374 57,233
CORRECT CORRECT
A4 Asset and
- - - -
- - - -
Sub total - - - - -
Total payments 41,430 93,944 - 135,374 57,233
Net of receipts/(payments) 6,795 101,893 - 108,688 29,356
A5 Transfers between funds - - - - -
A6 Cash funds last year end 37,952 32,478 - 70,430 41,073
Cash funds this year end 44,747 134,371 - 179,118 70,429
**----- End of picture text -----**
|**Section B Statement of assets and liabilities at the end of the per**
|**Section B Statement of assets and liabilities at the end of the per**
|**Section B Statement of assets and liabilities at the end of the per**
|**Section B Statement of assets and liabilities at the end of the per**
|
|---|---|---|---|
|**Categories**
Signed by one or two
**B5 Liabilities**
**B3 Investment assets**
**B4 Assets retained for**
**the charity’s own use**
**B2 Other monetary**
**assets**
**B1 Cash funds**|Signature
**Details**
Unpaid invoice to NJC
Secretarial
Unpaid invoice to Luca Buccella
**Details**
**Details**
(agree balances with receipts and
payments account(s))
**Details**
**_Total cash funds_**
**Details**|**Unrestricted Restricted**
**to nearest £**
**to nearest £**
**44,747**
**134,371**
**-**
**-**
**-**
**-**
**44,747**
**134,371**
OK
OK
**Unrestricted**
**funds**
**Restricted**
**funds**
**to nearest £**
**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**Fund to which**
**asset belongs**
**Cost**
**(optional)**
**-**
**-**
**-**
**-**
**-**
**Fund to which**
**asset belongs**
**Cost**
**(optional)**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**Fund to which**
**Amount due**
PTC Research
**58**
PTC Research
**1,156**
**-**
**-**
**-**
Print Name|**Endowment**
**to nearest £**
**-**
**-**
**-**|
||||**-**|
||||OK|
||||**Endowment**
**funds**
**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**
**Current value**
**(optional)**
**-**
**-**
**-**
**-**
**-**
**Current value**
**(optional)**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**
**When due**
**13/10/22**
**30/11/22**
Date of|
## **INDEPENDENT EXAMINER’S REPORT TO THE TRUSTEES OF PATHFINDERS NEUROMUSCULAR ALLIANCE**
I report to the trustees on my examination of the accounts of Pathfinders Neuromuscular Alliance (‘the charity’) for the year ended 5 April 2022.
## **Responsibilities and basis of report**
As the charity’s trustees, you are responsible for the preparation of the accounts in accordance with the requirements of the Charities and Trustee Investment (Scotland) Act 2005 (the ‘2005 Act’), the Charities Accounts (Scotland) Regulations 2006 (as amended), and the Charities Act 2011 (‘the 2011 Act’). You are satisfied that your charity is not required by charity law to be audited and have chosen instead to have an independent examination.
I report in respect of my examination of the Trust’s accounts carried out under section 44 (1) (c) of the 2005 Act and section 145 of the 2011 Act. In carrying out my examination I have followed the requirements of Regulation 11 of the Charities Accounts (Scotland) Regulations 2006 (as amended) and all applicable Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act.
## **Independent examiner’s statement**
I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
1. accounting records were not kept as required by Section 44 (1) (a) of the 2005 Act and Regulation 4 of the Charities Accounts (Scotland) Regulations 2006 (as amended) and section 130 of the 2011 Act; or
2. the accounts do not accord with those records; and
3. the accounts do not comply with the accounting requirements of Regulation 8 of the Charities Accounts (Scotland) Regulations 2006 (as amended).
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
Mr J P Foxwell FCCA FCIE independent-examiner.net
39 Enfield Road, Poole, BH15 3LJ
Date: 13 December 2022