REGISTERED CHARITY NUMBER: 1155846
REPORT OF THE TRUSTEES AND
UNAUDITED FINANCIAL STATEMENTS
FOR THE YEAR ENDED 31 MARCH 2024
FOR
PRADER-WILLI SYNDROME ASSOCIATION UK CIO
Johnson Tidsall Limited
Chartered Accountants
81 Burton Road
Derby
Derbyshire
DE11TJ

PRADER-WILLI SYNDROME ASSOCIATION UK CIO
CONTENTS OF THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 31 MARCH 2024
Page
R•port of the Tm8tee8
Independent Examlnof8 Report
Statement of Flnanclal A¢tlvltle8
10
Balance Sh••t
Note8 to t￿ FIna￿la1 Statem•nl•
12 to 23

PRADER-WILLI SYNDROME ASSOCIATION UK CIO
REPORT OF THE TRUSTEES
FOR THE YEAR ENDED 31 MARCH 2024
The trustees present Ihelr ￿port with ihe financial 8tat8menls of the chaiity for the year ended 31 March 2024. The trustees
have adopted the provisions of Accounting and Reporting by Charities.. Statement of Recommended Pra¢ticE applicable to
charities preparing their acCc￿nIS in accordance with the Financial Reporting Standard appliGable in the UK and Republic of
Ireland (FRS 102) {effecliv8 1 January 2019).
OBJECTIVES AND ACTIVITIES
ObJectlve8 and alms
Thls section has been prepared in a way la ensure we meet Ihe public benefit reporting requirements as Set out in the
Charity Commission reporting guidance.
The obJ•¢ts of PWSA UK (the Associallon) are to relieve the charilable n88ds of people wilh Prader-wlli Syndrome and
their families and carers by the provlsion of s8rvi¢es, advice and support as the Trustees shall detemiine.
The vlslon of PVISA UK Is to overcome the challenges of Prader-wlll Syndrome.
The m188lon of PWSA UK is to ensure every member of the PWS community has acce88 to high quality care. opportunity,
and support, and lo promote aWa￿ne&S. bulld knowledge and further research in order to overcome the challenges of PV48.
The valu•s of PWSA UK are to work wrth th￿• aff￿ted by PWS with integrity, objectivity, accountabllity. op8nne8$,
ht)nesty, and clear leadership.
Prader-wlli Syndrome (PW3) is a rare Complex disease whlch proloundty affects Ih08e wilh PWS and their famllles. PWS
remain5 little undefStt)od relative to other conditions arKI as a rèsult. the medlcal, 50clal, educatlonal, and parental support for
Ihose with PWS requires ¢onlinued input and support from the As$ociatS0n.
The A880ciatlon Is UK wide and aims to meet the needs of those wilh PWS, parents, ca￿r8, academic5, and professionals
via the provision of infomalion, training, athice. guidance, famlly friendly aclivitles, cri818 inteNention, conferences, SUPPOrt
for re$oarch and access to 5peciallst expertise.
PV%EA UK is a membership organi8alion. and the decision was taken during th• year to remove all 8ubscfl￿Ion fees. On 31st
March 2024 had 806 members in total lincludlng 345 Members with PWS) whlch is an incrèase of almost 8% from the
previous year.
Charitable activlti
The A$$ociation meets its charitable and strategic objectives by providing a range of support 8erviGes for peoplè wlth PWS.
Iheir families and th¢)se who work alongsbje them.
Our staff team continue to support the PWS community by providing a telephL￿e helpline. email and online support, a wlde
range of infomation resources, community days and weekends as well as providlng Irainlng, and organi3ing confer8nce8
and webinar8.
Page 1

PRADER-WILLI SYNDROME ASSOCIATION UK CIO
REPORT OF THE TRUSTEES
FOR THE YEAR ENDED 31 MARCH 2024
ACHIEVEMENT AND PERFORMANCE
Charltable actlvltles
Trustees agreed Soveral key areas of work for the year 2023 24 for the slx core 8trateglc obJectlv88 of the
A8sociation. The board revlewed progre$$ against the8e 8peclfic areas at the quarterly meotlngs.
1. To bo the leadlng knowledge and Informatlon hub for PWS.
Revlew of website to slmplify Infomiatlon with Specific arga for adults wlth PWS.
A re-Stw¢ture and update of the web$•te took place during 2023 whith now focuses on three distinct audiences (parents,
professionals. and adults with PWS).
- Dellver quorterly weblnafs on PWS toplc•.
Four webinars were delivered during the year with 39 attendees. In addition, four Makalon sessions were dellvered online
with 53 attendees.
- Develop PWS portlon 61z• rn8ource.
An expert steèring group has been established lo oversee Ihe developmenl of th8 re80urce. PWSA UK has engaged The
Nutrition and Diet Resources UK, to projecl manage Ihe development of Ihe resource which wlll be availabl8 lata summer
2024. Funding has been secured for the development and dellvery of this resource.
2. To provlde the ￿•t PQ88lble 8UPPOrt to the PWS eommunlty.
The PWSA UK team supported familles and professlonals throughout the year with 1,154 issues whlch resulted in 2.738
actions {2% increase) phone calls, letters, and meelin9S to resolve the Issues.
Our wime source5 01 request8 for help wer•:
Helpline 350
- Emall 4V
- Facebook.. 10%
- Clinicsl Family Net. 2%
- Website.. 6%
The￿ were 31 new di8gnose8 reported lo PWSA UK this year and a further 23 possib18 new diagnoses.
More lamilies are conla¢ling us via email with a modest feductlon in the number of calls to the helpllne.
PWSA UK delivered 22 training sessions during the year with 29) participants. Th88e liainlng se88ion8 wem malnly for
wofessional8 v￿rkIng in education and health and social care.
. Develop plan of UK wlde event8 and ¢onfer•nce8 for key PWS 8lak•hold•r8.
PWSA UK manages a network of peer-lo-peer support groups and nehvorking events across the UK. Thls Includes
community days and weekends as well as online peer to P8er meelins8,
During Ihe year we deliv8red 69 events with a total of 1147 attendees.
- D•flno ¢a8e work And bu8ln•s¥ case lo further develop support lor PWS communlty.
Work has slarted on 8coping ihe key slep8 for different areas of case work. A small Sub9r￿p hos been eslabllshed 10
oversee this work.
- Féa8lblllty work to deflne PWS UK rol• in supportlng b88t 8tandard8 and quallty of Ilfv In PWS ro•ldenllal 8ètt1ng•.
A fixed term project manager was appointed lo scope opllons 8S to how PWSA UK could influence slandards of care in PWS
residenllal settings. Engagement work has been undertaken wilh parent5, adults wlth PWS and care home providers.
Feasiblllty work is now looking al several apwoaches including app-based Iralnlng for care home staff, a forum for
professional carers,. and larg￿e4 consultancy 8nd tralning for PINS sp8clali$t care home provlders.
3. To b• tho volc• of tho•e affectsd by PWS.
. L18tenlng (Town Hall) events wlth Chalr and CEO for PWSA LIK membernhlp.
We held tha first Town Hall evenl in October 2023 with Ihe $8cond one in April 2024. Membarn joined the Chair of trustees
and CEO to hear updates and then share Iheir 11)oughl8 on work of the Associalion. Several areas were discussed including
support for older families; support for community events lo allow families lo nelwork and a desire to know mor8 about clinical
trials.
- R•vlow of membernhlp fe•8 to In¢re08e engag•ment wlth PWS communlty.
We consulted with the PWSA UK membership. and il was agieed to remove the charge for membership. The aim is to
increase engagement through removing any financial barrier to memb&rshlp. This change came into effect In A￿1 2024 and
there has been an inuease in Ihe mefflbership numbers of 50 (from 75010 800).
- Further devolop engagement wlth adults wlth PWS to en8ure Ihelr volce Is heard.
Working with and supporting adults with PWS has been a k8y priority aGross the Association during th8 year. The OWL (Our
Way of Lifel group has been promoted and expanded and the first adult conference planned for April 2024.
. Bulld rolatlonshlp¥ and sharo data wlth koy Influèn¢lng oryanlsatlong.
Page 2

PRADER-WILU SYNDROME ASSOCIATION UK CIO
REPORT OF THE TRUSTEES
FOR THE YEAR ENDED 31 MARCH 2024
There has been a concerted effort to develop effective worting relab'onships during the year. Partnershlps have been
developed with FPWR UK. IPWSO. Sibs UK 8fKI the Disabled Children's Partnetship where there hav8 b88n shared areas of
interest and opportunity to ￿hleVe mor8 by working together.
4. To develop arKI malntaln r•glonal r•a¢h.
- Benchmafk reach acn)$8 UK and target area8 of lowest ongagement.
A mapping exercise was undèrtaken to identify lower areas of engagement whl¢h identifled Scotland. Northem Ireland and
London as key areas. During the year we have increased our overall reach by just over 1% but a 2% increase in Scotland, a
5Vo increase in Northern Ireland and a 2Yo increase in London.
We havè developed plans to increase our engagemenl in these 8reas as well as a specific plan for EDI (equality, diversity,
and inclusion). Our program8, events and activities are planned in different geographical locations a$ well as providing
broader range of activities.
- Dovolop volunteer network to 8UPPOrt 8•rvice dellvery arKI UK reach.
Funding was secured for a part time Volunleer Development Officer who was appointed in January 2024. The aim is to
develop robusl systems and wocesses, establish volunlaer trainlng and Support resultlng in an increased pool of volunteers
that refle¢l the PWS community.
- Map PWS 8peclall•t cllnlcs and d•velop outreach.
A Projecl Manager was appointed for a Short perlod of lime to map the PWS clinics across the UK. One of Ihe wtcomes is a
firm recommendation to establish outreach volunteers to attend all PWS cilnlcs. PWSA UK is now working on plans to recruit
and support a UK wide team of outreach dinic volunteers.
6. To Support and prnmol• r•••arch Into tho managornont and allevlatlon of thg ¢hall•ngo8 of Ilh wlth PWS.
. Collaborate wlth key partner8 Includlng FPWR UK and IPWSO.
This ha8 been a key area of focus for PWSA UK and we have been realignlng outselve8 wlth FPWR UK and are committed
lo working collaboratively on fijrtherlng PWS research.
The fo￿3 ha8 been on t4VO principal areas, the first being a joint awareness Cam￿1gn (Move It May) and ralsing additional
funds lor ageing research. The second area is working collaboralively to anable the approval and funding of new PWS drug8.
. Establl•h Jolnt approach to promotlng and 8UPPOrtlng rosoarch.
Through the new partnershlp wrth FPV4R UK the two organisailons (as PWS Slronger Togelher) ara worklng on plans lo
promote and support research. This ha$ seen the organisations meeting with phamiaceulicals and developing plans lor
PWS ctjnmunity updates webinars in clinical trials.
6. To •u8taln the charfty.
- Dlver81fy Income 8tream8 and r•fre8h PWSA UK m•r¢handl8e offef.
Fundraisin9 remained a challenge with the ongoing cost of living crlsis. Plans to diverslfy income are developlng and belng
tested. The Associ81ion has seen some success wilh match funding. Y￿rkIng wilh corporates and developing donor 9ivlng,
Despite the challenging environment Ihe Association saw improved suexe8J with applications to trusts and loundation8. 23
grants were 8e¢ured (13 in 200314) lotalling £184K1£72K in 200314).
A new range of merchandlse was developèd. Sourced. and launched. A PWS hidden di8abllity lanyard was also Soufced in
response lo a specific request from the PWS adult group.
. Imploment ongolng Impact mea•uras and annual Impact reportlng.
The first PWSA UK Impact report was publlshed whlch demonslraled the diffarence made by the Association to the Pl+VS
cofflmunily and how this was achieved. The report w85 based on 8n Independenl Oulcomes Evaluatk)n conducted by Insley
Consulling Ltd, for which we consulted with 120 people Ihrough Surveys, focus groups and intervi8WS.
- Board 8UCC•88lon planning.
The boo￿ undertook a skills audil whlch identified gap5 10 inform largeted recruitment. During Ihe year three new Irust88S
were appointed to the board: Dr Evelien Ge¥ers, Consultanl Paediatrician and Reader In Endocrinology and Diabetes at
Barts Health NHS Trust," Susan Passmore recently relired CEO of PWSA UK.. and Rosa Polaschek who has a younger
brother wilh PWS and is a barrister wilh Doughty Slreel Chambers. Twstees have agreed plans for ongoing 8ucco$5ion
planning lo ensure Gontinuity and maintaining an effecliv8 board.
Page 3

PRADER-WILLI SYNDROME ASSOCIATION UK CIO
REPORT OF THE TRUSTEES
FOR THE YEAR ENDED 31 MARCH 2024
ACHIEVEMENT AND PERFORMANCE
Volunteering
The Association has aKvays relled upon the commitment, goothvlll, kn¢)wledge, and 8XP8rience of its volunteers. We cufrentfy
have 31 registered volunteers who Ofganise and support community events and facilitate parent to parent meetings onllne.
The Association also ￿lieS on the goodwill and support of inforrnal volunteers who rAlse funds, marshal at events. provide
sp8ciali5t ski118 to the charity. serve as Truslees and mLKh more.
We will always be grateful to our community and volunteérs - wlthout whom the charity simply would not be abl& to achieve
what il does year on year.
Income Generatlon
PWSA UK is not only member-led but also depends on Ihe fundraising efforts of ils members for much of its fundlng. Ilfjthout
this. th8 Associalion would be unable lo operate and conlinue to provlde ils vital services lo the PWS community. Th8
fundraising environment remalns Challenging wilh Ihe ongoing cost of livlng crisis and increased compelliion for trusts and
foundation funding.
We are hugely grateful to the following..
- Tower Bridge Intemational - £4.014.n
- Muriel Jon88 Foundation - £25,Ot)O
- The Ardwick Trust- £200 - (PWS Walkovers)
- Inch Cape FourK18tion - £750
F B Coales- £1,000- (New Dlagnosisl
- Alp Kll Foundalion - £175 - {Nene Park Walkover)
- E¢¢lesiaslical Insurance Group - £1,(X)O
Philip 8arnes & Co Lld - £1,500- IResearch)
- P05tcode Places - £24,09) - (Volunteer Co Ordinalar)
- Augustine Courtauld Trust- £1.500
- TSG Foundation - £10.OtXJ - (New Diagnosis) ' Steven Cooper Charflable Twst - £1,000
- The Oak Trust - £750
- Alp Kit Foundalion - £245- (Nene Park Walkover)
Masonic Charilable Tru8t- £1.000
- The Vthitehead Moncklon Trust- £500- Hasting8 Walkover
- The James Ellis Charitable Trust - £2.000 (Research)
Children In Need 2024 - £10,000 - (Support)
- Postcode Lottery - £70,OIX)
D'oyly Carte Charllable Trust £3.160 - Dorset Community Weekend
FINANCIAL REVIEW
Flnanclal posltlon
In Ihe financial year under revlew. the Asstxialion received in¢¢Jme of £497.574 (2023. £383.3831 and incurred expendlture
of £501.101 (2023: £518,900) resulting in a deficit on operating actNitiès of £3,527 {2023'. dèficit £135.517).
Income incregsed by 30Yo whilst expenditure decreased by 3rh* compared wilh 2022-23.
Total funds as al 31 March 2024 sto¢)d at £430,273 (2023: £433,800) of which £63,618 (2023: £31,585) ar8 restrlcted funds.
Of the remaining funds £116.003 (2023: £166.173) are designated lor specific projects.
The general environment for srnall charities continues to be flnancially challenging and the Association's ablllly lo maintain a
posftion of mid-term viats'lity remains k8y to maintaining our charitable services.
Page 4

PRADER-￿LL1 SYNDROME ASSOCIATION UK CIO
REPORT OF THE TRUSTEES
FOR THE YEAR ENDED 31 MARCH 2024
FINANCIAL REVIEW
Prlnclpal fundlng Sou￿e$
The principal adivilie5 of the Association have been funded from our ￿re income. The Associalion has been heavily reliant
upon Ihe efforts of our membership and others associated with the chaiity for Iheir lundraising efforts.
Ho￿￿ver, the A8stxiation continues to be affected by the reduced levels of disposable income available lo support the
tharitable sector arKI th8 continuing squeeze on our costs. Long term fIna￿[al sustainability remains a top priority and the
Association continues to seek to divefsify incom8 sources.
Invè81m•nt pollcy and obJectlve•
The inveslment policy of the Association 1$ detemiined by the Tru31ee Board and enacted by the Chlef Executiv8 in
o)nsullation with the Flnance Working Group. As of 31st March 2024, all rèservès were held in the bank deposbt account and
n))ney market short term deFrf)sits. There are no inveslmenls in 8quilles, gifts, or bonds.
Reserves pollcy
11 is the poI￿Y of the Assoclation to mainlain a general resorve as well as a designated r8seNe lo support sp￿lfi¢ future
ojects. The 'designaled" reserves al the end ol the financlal year were £116.003. The charity Trustees will review this
ring the comlThJ financial year lo realign with a review of the plans, budgetary constraints and assessment of wiorities.
Th8 Trustees have agreed thal Ihe unrestricled reserves should nol fall below six monlhs, operating costs. Th8 balance of
the As8¢xiation's general re8erves at Ihe 31st of March 2024 18 £250,652 which represents 6 nM)nths of unreslrScled
operating costs which Is in line with the targ6t sel by twstee3.
P•n8lon Commltmonts
The A8$0¢ialion OP8fate$ 8 defined conlributlon pension 8cheme for its staff. PWSA UK r8ached their staging date for
aulomalic enrolmÈnl in March 2016 and as required all eligible slaff are enrolled into a quallfying pension scheme.
Page 5

PRADER-WILLI SYNDROME ASSOCIATION UK CIO
REPORT OF THE TRUSTEES
FOR THE YEAR ENDED 31 MARCH 2024
FUTURE PLANS
Strateglc Objecllves for 2024 -5
Trustees conlinue to wort lowards the core slrateglc objectives of the Assoclation. For each of th8se several key areas of
work have been agreed for Ihe year 2024- 25.
1. To be the leadlng knowledge and Infomiatlon hub for PWS.
1.1 Informatlon
- Re¥iew of websile for medium to longer term development
PWSA magazine to be sent out electronically.
- Review of ¢ommunicati¢)n$ and engagement.
Produce and distribule the 'PVIS Portion Size, booklet.
- Produce and distribute 'consensus' besi practice guidance.
Research inlonnalion requlremenls for adults with PWS.
1.2 Trnlning
In￿ease and promote face to face and 'live' onllne tralning for those supporting paople Ilvlng with PWS.
Review the online PWS Academy and dec4de on ils long-temi viability.
Pilot and roll out Ihe BOSS (Build our S¢xial Skills) tralning for adutts with PV¥E.
Increase delivery of Makaton tralning to support the PWS community.
Research Oplions for accredited trainlng for professional care givers.
2. To provld• the b08t po8slbl0 8UPPOrt to the PWS communlty.
- Dellver a diverse Fxogfam of community events and week8nds Ihat meet the needs of the PWS community.
Pllol a revised approach to PWS conferen¢es
Facilitate a parent-t(>pareni forum for parents of ageing adults wllh PWS.
F8cllitate a parent-lo-parenl forurn for parents ol individuals for MUPD subtype of PWS.
Continue lo develop and pilot slrategi8S to Improve standards in ￿sIdential settings wllh a focu8 on training. 8upport and
working with care provider8.
3. To be the volc• of tho•• affected by PWS.
- Town Hall 8venl will be held every 6 month5 and other opportunities to engage and Ilsten to the Pllf6 community.
Systematic gatherlng and review of trends and is$u&$ presenting to PWSA UK
Increase engagemenl with adults with PWS through the 014VL group and adult conference.
- Enable a wlder membership through increa8ed engagemenl and Increa88 numbers of registered members.
Increase engagement with key stak8hold6rs and partner8 to increase lh6 influenc6 and Imp8d of PWSA UK
4. To develop and malntaln reglonal r•ach.
- Undertake a mapping exercise on an annual ba81s lo asse88 changes to our reach and eng8g8ment.
- Secure funding and appoint in-counlry PIfyE support workers for Northern Ireland and Scotland.
Dellvary of EDI plans
Increase Ihe number of activ8 volunteers to support lundraising, raising profile, outreach at cllni¢s, feedlng back on local
service8, peer lo peer support and buddying, providing 8UPPOrt for local events and networking opportunilies.
Increasing our attendance at PWIS clinic6 Ihrough rKrultment and tralning of volunleers.
5. To support and promoto r¢8•arch Into th• management and all•vlatlon of the ¢hallenge8 of Ilf• wlth PWS.
- Deliver updates on PWS research for the communlty in parfnership with FPWR UK and IPINSO.
Deliver a joint campawn wilh FPWR UK to raise additional furKls for ageing research.
Promote opportun￿leS for partkipalion in research and clinl¢al trials
- Establish fundlng rAiterlon for suNeys. revkws. and $tudie8.
8. To 8u$laln the charfty.
6.1 Governance
Continue with succession planning for Ihe board and developlng a recrultsnent plan based on skills gaps.
Ensure Ihal M&E Imoniloring and evaluation) and demonslraling impact ar8 embedded into PWSA UK,
- Review of IT requirements with a focus ¢Jn CRM and cyber security.
6.2 Flnancial Management
Diversify income through sales of our now mer¢handise range. promoling legacie5', developing opportunities for malch
funding.. establishing joint fundraising for research with FPiIfft UK., creating relationships with corporates and
pharmaceuticals.. focusing on regular and maior donors.. and increasing income from training and consultancy.
Page 6

PRADER-WILU SYNDROME ASSOCIATION UK CIO
REPORT OF THE TRUSTEES
FOR THE YEAR ENDED 31 MARCH 2024
6.3 Stafflng
Review of core staff with the aim of reduclng fixed costs.
- Review and update of staff handbook, staff poli￿e$ and procedures. T&Cs and slaff employment contracts.
- Review and refresh PWSA UK values and embed across the charrty.
STRUCTURE. GOVERNANCE AND MANAGEMENT
Governlng document
The charity Is controlled by Its govemlng documenl. a deed of trusl and constitut88 an unincorporaled charity.
Charlty constltutlon
The Prader-willi Syndrome Assoaation UK (the A88txiatv)n) was ￿lginallY registered as a charlty on 13 May 1982: Charity
Numlxr 284583. In 2014 a new Chantable Incorporated Organisalion {CIO) was formed and registered with the Charity
Comnissioners under Charity Number 115584S. The original Unincorporated Organisation Charity Number
2845&3 was then merged Snlo Ihe new CIO and all assets and Ilabilities transferred. Th8 original unincorporaled organisalion
wa$ ITr￿n dosed and removed Irom the Charity Commissionerfs regisler.
The CIO PWSA UK 08 controlled by its governlng document and its regislared address is in Northampton In UK.
ganllatlonal structur•
The Assoclalion is govemed by a Board of Tw8lee8 con81$ting of not les8 than four member8 of the A$sociation. These are
elected by the membership for three years al the Annual General Meeting {AGM). At Ihe first meeling after the AGM, the
Trustees ele￿ frorn its number a Chalman and Treasurer who are known as the Honorary Officers of the Associalion, The
Board dTIu81ees normally mee16 four tlmes a y8ar wlth one face lo face meeling in London.
A new recrLti¢ment proce86 has been agréed by the Trustee8 to anjure thal Tw8teeg are Selected based on requlred skllls
and eXI￿lienCe. As part of the ongoing review of 9ovemance the prevlou8 working groups were dosed and replaced by new
sub-comittees wh￿h better meet Ihe needs ol our operats'on8'.
Finance and General Purposes Commlttee
- Medicd Advisory and Research Committee
Services, Informatlon and Training Committee
FundralBing and Communications Cornmlllee
The comrnltteas operale within agreed T8nn8 of Reference and make recommendation8 lo the Tntstee Board.
The day-to-day managemenl of Ihe Assoclalion's activities are delegated to the Chief Execulive who reports on progres8
againsl plan$ agreèd by the board. The Association has a supervisory and appraisal system In place. All employees have
deslgnated line manager WIK) directs and support8 Staff to fulfil Iheir own and the organisatlon's objectives which are
conslstenl with the $lrateglc aims set by Ihe Trustee Board.
Declaratlon of Int•r••t and Internal Control8
The Associalion has in place general decision-making and financial controls., the Chief Executive and all staff members are
fully accountable to the Twstee Boaid and there are 881 levels of ffinanclal d818gation requiring Trustee approval.
The Associallon has agreed a Declaralion of Interest statemenl that requires boa￿ meeling participants to declare any
pecuniary and non-pecuniary interest al the outsel of every Board meeting. Thls Is in additbn to the Register of Intere818 and
transactions wllh relaled parties. annual declaration.
Rlsk management
The Trustee Board have agreed a ri8k management policy covering the principal areas of Governance, Operatlonal,
Financial, Environrnental and External, Law and Regulalion.
Truslee8 have developed a risk management register which identifies and assesses the likelihood and impact of
organisational risks. Actions are agreed to fflitigale risks to help Trustees identify and focus on residual risks.
The risk management p)licy and register are ￿vieWed annually by the l)oard. The board reviews higher risk$ on a more
frequent basis to help manage uncert8inty and to ensure delivery of objectives and the long-lerffl survival of the Association.
Page 7

PRADER-WILLI SYNDROME ASSOCIATION UK CIO
REPORT OF THE TRUSTEES
FOR THE YEAR ENDED 31 MARCH 2024
REFERENCE AND ADMINISTRATIVE DETAILS
Reg18tered Charlty number
1155846
Prlnclpal addre88
CIO Melcalf s Commercial Decorators Lld
Unil 5. 3 Deer Park Road
Moulton Pafk Irxlustrial Estate
Northamplon
NN3 6RX
Tru8ts••
Royal Patron
HRH The Pwincess Michael of Kent
Patron
Prof Tony Holland CBE
Tru9t•e8
Ll Col Danny Leslie (Chairman)
Matthew Christensen (Tffjasurer)
Andrew Abbott
Catherine Carey
Dr Robin Chung
Dr Evellen Gevern (November 2023)
Anne Good
Dr Anne Livesey
lan Melcalf
Susan Passmore (November 2023)
Rosa Polaschek (November 2023)
Karen Potts
Slephanle Sokolowski
Chl•f Ex•cutlve and
Honor•ry S•erotary
Jackie Lodge
Independent Examln•r
Johnson Tidsall Limited
Chartered A¢counlanls
818urton Road
Derby
Derbyshire
DE1 1TJ
Bank•rn
HSBC Bank PIC
1 St Peters Str8Ot
Derby
Derbyshire
DE12AE
Approved by order of the board ol truslees on ....19110r2024..................... and signed on its behalf by..
O Leslie - Tru$teo
Page 8

INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES OF
PRADER-WILLI SYNDROME ASSOCIATION UK CIO
Independent examlnerfs report to the truslee9 01 Prader-wllll Syndrome Association UK CIO
I report to the ¢harily truslee8 on my examination of the accounts of Prader-willi Syndrome Association UK CIO (the Trust)
for the year ended 31 March 2024.
Re$pon8lbilltla8 and ba$1$ of report
As the charity tntstees of the Trust you ar8 ￿SPOnsible for the preparation of the accounls in xcordance with the
requirements of the Charities Act 2011 {Ihe Act).
I report In respect of my 8xamination of the TN8fs accounts carried oul under Seclion 145 01 the Act and in camiing out my
examinati￿ I have followed all applicable Directions given by the Charity Commission under Section 145(5){bl of the Act.
Independent oxam5nofs •tatement
Since your charity's gross income exc8eded £250,OCQ your examiner musl be a member of a listed body. l Can confirm that I
am qualified to undertake Ihe examinalion because l am a mèmber of the Inslitule of Charlered Accounlarrts in England and
Wa188. which is one of Ihe li81ed bodies.
I have Completed my examination. I confirm that no materlal matters have come to my attention In connectlon wlth the
examinalion giving me cau88 to believe that in any material respe¢l-
accounting records vlere not kept in respect of the Trust as required by Section 130 of th8 Act., or
Ihe accounts do not accord with those records., or
the accounts do not comply wilh the applicable requirements concerning the form and content of accounts set out in
the Charities {Accounls and Reports) Regulations 2008 other than any requlr8ment that the ac¢ount8 give a true and
fair view which is not a matter considered as part of an independent examination.
I have no concérns and have come across rn other matters in connection with the examinatlon to whlch attentk)n should be
drawn In this report in order to enable a proper underslanding of the accounts to be reached.
David Mellor
Johnson Tidsall Llmited
Chartered Accountants
81 Burton Road
Derby
Derbyshire
DE11TJ
%*)Ivl¥oLf........
Page 9

PRADER-WILLI SYNDROME ASSOCIATION UK CIO
STATEMENT OF FINANCIAL ACTIVITIES
FOR THE YEAR ENDED 31 MARCH 2024
2024
Total
funds
2023
Total
funds
Unrestricted
funds
Restricted
funds
Notes
INCOME AND ENDOWMENTS FROM
Donations and legacies
324,108
78,342
402,4SO
298.683
Charltable actlvlties
Charitable activities
79,177
79,1TI
77,864
Olher trading activities
Investment income
4,531
4,531
11.416
5,217
1,619
Total
419 232
383 383
EXPENDITURE ON
Raising funds
12.083
1,716
13,798
11,738
Charltabl• actlvltle8
Charilable activrties
437 468
487 303
Total
501101
NET INCOMEI(EXPENDITURE)
Tran$f•rn betwe•n lund8
(30,319)
28,792
17
13,527)
(135.5171
Net mov•ment in fund•
135.661)
32,034
(3,527)
{135,517)
RECONCILIATION OF FUNDS
Total fund8 broughl forward
402,215
31,585
433,800
569,317
TOTAL FUNDS CARRIED FORWARD
433,800
The notes form part of thes8 financlal stalements
Page 10

PRADER-WILLI SYNDROME ASSOCIATION UK CIO
BALANCE SHEEr
31 MARCH 2024
2024
Total
funds
2023
Tolal
lunds
Unrestrfcted
fund5
Restrictod
funds
Notes
FIXED ASSETS
Tangible assets
13
3,598
3,598
2,874
CURRENT ASSETS
Stocks
Debtors
Cash at bank and in hand
14
15
4.186
9,853
4,186
9,853
421658
3,189
4,763
445,638
372.079
63,618
435,697
453,588
CREDITORS
Amounts falling due within one year
18
(9,022)
19,0221
(22,882)
NET CURRENT ASSETS
363 057
426 675
430.926
TOTAL ASSETS LESS CURRENT LIABILITIES
366.66S
63,618
430,273
433.800
NET ASSETS
366 635
433,800
FUNDS
Unre$lricted funds
Restricted funds
17
366,655
402,215
TOTAL FUNDS
430 273
The financial 6tstem•nts were approved by the Board of Truslee8 and authorlsed for issue on ,,.19110r2024................. and
were Signed on it8 behalf by..
D Le81ie - Tnrntee
I Chflitenw . Tn4l•e
The notes form part of those financial statemen15
Page 11

PRADER-WILLI SYNDROME ASSOCIATION UK CIO
NOTES TO THE FINANCIAL STATEMENTS
FOR THE YEAR ENDED 31 MARCH 2024
STATUTORY INFORMATION
Prader-lmlli Syndmme Asso¢ialion UK CIO 18 a charity, reglstered in England and Wales. The charity's registered
charity number and business address can be found in the reference and administrative detalls of Ihe R8POrt of the
TTUSte8s.
ACCOUNTING POLICIES
Ba818 of preparing the Ilnanclal statsments
The finandal statements of the charity. which is a public benefit enlily under FRS 102. have been prepared In
a¢cordance with the Charilles SORP (FRS 102) 'Accounting and Reporting by Charities.. Statement of
Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting
Standard applicable In the UK and Republlc of Ireland (FRS 102) {effectiV8 1 January 2019)., Fsnancial Reporting
Standard 102 'The Financial Reporting Standard applicable in the UK and Republic of Ireland, and the Charities Act
2011. The financtal statements have b8en prepared under the hist￿1¢41 c081 convention.
The currancy basi8 lor the p￿paratIon of these financial slatements 18 pound sterling (£).
Goln9 con¢em
The tru81ees regularly monitor the charity's reser¥es policy, risk assessment and ca8h to 88ses$ the viats'llty of
the charlty. To date, no material uncertainlles exl$l that would 8ffect the weparation of the finanoal ststements on a
going concern bas18.
Slgnlfl¢#nt Judgements and e8tlmat•8
The following judgemenls (apart from those Invofving e81imales) have been made in the wo¢es8 of applying the
charity's accounting policie8 that have had the mo61 signlfrAnt effect on amount8 recogni3ed in the financial
statements..
Legacies - when Calculating amounts due on legacies. management considers the wllls of th• deceased, executor8
accounts, nolificalions received from &xo¢iJtor8 and consultelion wilh Solicitors. Total per financial stalements
£35,&39.
Grants - when ￿lculatIng grant commitmenls, managèment considers the nature of grants a5 bein9 Within th•
charity's objectives, their 8ntillemenl and the p068ible future beneffils foT people affected by PWS.
In¢ome
All income is recogni8ed in the Ststement of Financial A¢tlvltles once the charity has entitlement to Ihe funds, il Is
probable th81 the Income will be recelved and Ihe amount can be measured reliably.
Donated seNices and goods ar8 recognlsod as income when the charity has control over Ihem. the economic beneflt
is probable and can measured ￿1labty. In &cordance with the Charitles SORP (FRS102), volunteer lime is not
recognised. Inforynalion about Iheir contrlbulion 18 provlded In the Trustee8' Annual Report.
For donations lo be recogni8ed the charlty will have baen notified of th8 amounts and Ihe settlement dale, If there are
condltlons attached to the donalion and this requires a level of performance before entillemenl can be obtsined, then
in¢m Is deferred unlil I￿se conditlons are fulty met or the fulfilment of those conditions is within the control of the
charity and1118 probabl8 Ihat they will be fulfilled.
For legacies, entitlement Is the earfier of Ihe charity being notified of an Impending distribution or the legacy belng
received. At this point income is re￿)gnised.
Income from trading activilie8 includes incom8 eamed from fundraising events and Irading activllies to raise funds for
the charity Income is recelved In exchange for supptying goods and services in Ofder to raise funds and is
recognised when enlitlement has occu¥red.
Investment income is oamed through holding a55els for investmenl purposes such as shares and bank deposit
ac¢ounls It includes bank inlerest. It 1$ included vthen the amount can be measured reliably.
Pag8 12

PRADER-WILU SYNDROME ASSOCIATION UK CIO
NOTES TO THE FINANCIAL STATEMENTS- contlnuod
FOR THE YEAR ENDED 31 MARCH 2024
ACCOUNTING POLICIES- conllnued
Incom•
Other deblors are recognised at the settlement amount due. Prepayments are valued at the amwnt prepaid.
Exp￿dIlure
Llabilities are recognised as expenditure as soon as there IB a legal or ¢on$tructive obligallon ￿mMitt1ng the charlty
lo thal expenditure. il is probable that a transfer of economic benefits will be required in settlement and the amount of
the obligation can be measured r81iably. Expendlture 16 accounled lor C￿ an accru818 basis and has been Glassified
under heading8 that aggregat8 all cosl related lo the category, ￿*here costs cannot be dlre¢tly attribuled to particular
headings they have been allocated to activllies on a b881$ consistent with the us8 of resources.
Irrecoverable VAT 18 charged as a cost against the activity for which the expendlture was incuffed.
Credltof•
Credilors are recogni8ed vthere the charlty has a present obligation resulting tr￿￿ a past event that will probably
result in the transfer of funds lo a thifd paty and the amount due to Settle th8 obligation Can be measured or
estimated rellably. Creditols are recognised al their settlemenl amount.
Tanglblo Ilxéd 48s0ts
Depreciation is provlded al Ihe followlng annual rates in order lo write off each as8el over its estimated useful Ilfe.
Fixtures and fitting8
25% on cost
Tangible fixeil assels are staled at CO8t or deemed Costs le63 accumulated depreciation. Cost includes Costs directly
attributable to making the agset capable ol operating &8 InleThSed.
Stock8
Stock8 are valued at the lower of c06t and net r8ali8able value, after maklng due allowance lor obsolele and slow
moving ilems.
Stock Is valued on a first in first out ba815 IFIFOI.
T•xatlon
The charlty is exempt from tax on its charitable activities.
Fund accountlng
The chaTily has both restricted and unrestrtcted I￿)d$. All funds are used lo beneflt and promole its Charitable
objects.
Re8lrKted funds are those donatad for use in a particular area or for $peclflc purposes. the us• of whlch is festricled
lo Ihat area or purpose and lh• re8lricllon means that th8 funds can only be used for Specif￿ proJe¢l$ or aclivilies.
1Othen donors specify that donations and grants are for particular purposes whlch do not amount to pre-condition6
regarding entitlemenl, this income is included in incoming resources of restricted lunds when receivable, The relevant
expendiluie is then matched as restricted expendlture.
Unrestricted funds are general funds that are avallable fi>r use at the trustees, discretion in furtherance of any
otyectives of the charity.
Designated funds ar8 un￿strICted lunds set aside at th8 dlscretion of the truslees lor speclfic purposes.
Pen8lon costs and olher po8t*rntlrement benefits
The charity opeiates a defined contnbution pension scheme. Contributs'ons payable lo Ihe charity's pension scheme
are charged lo the Statement of Financial Activities in Ihe p8riod to which they relate.
Oporallng leases
Rentals applicable to operating leases vhlere substantialty all of the benefits and risks of ¢)wnership remain with the
lessow are charged lo the SOFA on a straight Ine basi$ over the penod of the lease.
Page 13

PRADER-WILLI SYNDROME ASSOCIATION UK CIO
NOTES TO THE FINANCIAL STATEMENTS- contlnued
FOR THE YEAR ENDED 31 MARCH 2024
ACCOUNTING POLICIES- contlnued
R•8•rv•s
The charftable company mainlains a level of fe$erve$ required to fulfil its objectives. The trustee$ monitor reserves at
regular meetings.
Flnanclal In•truments
Flnan¢ial instruments are classified and accounted for. according to lh8 substance of the contractual arrangement, as
eilher financial assets. financial liabililies or equlty instruments. An equity instrument is any contract Ihat evidences
sidual interest in thè a8sels of the Company after deducliThJ all of ils liabililies.
DONATIONS AND LEGACIES
2024
2023
Donations
Legacies
402,450
263,014
298 683
OTHER TRADING ACTIVITIE8
2024
2023
Promots'onal sales
INVESTMENT INCOME
2024
2023
Deposit accwnt intere81
INCOME FROM CHARITA8LE ACTIVITIES
2024
2023
Adlvlly
Confer•nce8 holiday8 &
support
Fundraislng event$
Charitable activilies
Charitable acllvhies
20.965
16,437
79.177
Page 14

PRADER-WILLI SYNDROME ASSOCIATION UK CIO
NOTES TO THE FINANCIAL STATEMENTS- contlnued
FOR THE YEAR ENDED 31 MARCH 2024
CHARITABLE ACTIVITIES COSTS
Direct
Cosls (see
nole 8)
Support
cosls (see
note 9)
Totals
Charitable activities
479 210
487 303
DIRECT COSTS OF CHARITABLE ACTIVITIES
2024
2023
Staff costs
Insurance
Telephone
Postage and stationery
Printing costs
Bank charges
Evenls
Travel and accommodatlon
Family v￿ekend
Staff Iraining
IT costs
Office machine maintenance
Subscriptions
Projects support
Research
406,363
1.316
4,670
6,451
5,012
419
10,75S
8,158
342,905
1,276
5,670
7,088
5,262
402
25,794
10,134
1,473
1,265
12,481
4,591
2.846
51,465
3,150
16,495
4,757
2,738
3,061
479 210
SUPPORT COSTS
Human
resources
GovemanGe
costs
Managament
Othar
Totals
Chafitablo actlvities
254
Accountancy and legal fewd include £3.300 in respect of the Independent Examination fee.
Support C08ts, included in the above, are as follows..
2024
Charitable
aclivitie$
2023
Total
actlvilles
Trustees, expenses
Sundries
Depreciation ol langible fixed assets
Loss on sale of langible fixed assels
Accountancy and legal fees
1.197
254
2,536
2,345
477
1,908
142
Page 15

PRADER-WILU SYNDROME ASSOCIATION UK CIO
NOTES TO THE FINANCIAL STATEMENTS- continued
FOR THE YEAR ENDED 31 MARCH 2024
10.
TRUSTEES. REMUNERATION AND BENEFITS
There were no truslees, remuneration or other b8n8frt$ lor the year ended 31 March 2024 nor for the year ended
31 March 2023.
Tru8t••8' eXPeMaS
2024
2023
Trustees, expenses
Tru$t•es' expenses relate to attendanc8 at meeting Costs.
STAFF COSTS
2024
2023
Wages and salarie8
Social security costs
Other pension cost8
369,892
30,499
303,786
27,265
342.905
The average monthly number ol employees durlng the year was as follow8.'
Charilable activities
Management and administratlon
2024
2023
10
No employees received emoluments In exce6$ of £60,000.
Durlng the yeai one employee12023 one employee) recelved total employee benefit8 of rmre than £80.000.
The key management pewsonnel of the charity comprise3 the Chlef Execullve Officer. The total employee benefits of
the key managemenl personnel of the thaflty, includin9 employef$ penslon contributlons, amounted to £89.173
(2023. £77,603).
11
COMPARATNES FOR THE STATEMENT OF FINANCIAL ACTIVITIES
Unrestrfcted
lunds
Restricted
funds
Total
fund$
INCOME AND ENDOWMENTS FROM
Donations and legacies
226,878
71.805
298,e83
Charltable actlvltle8
Charitable activitles
77,864
77,864
Other tradlng acllwlies
Investment income
5.217
6,217
T¢)tal
311578
71,805
EXPENDITURE ON
Raising funds
9,805
1,933
11,738
Page 16

PRADER-WILLI SYNDROME ASSOCIATION UK CIO
NOTES TO THE FINANCIAL STATEMENTS- contlnued
FOR THE YEAR ENDED 31 MARCH 2024
12.
COMPARATIVES FOR THE STATEMENT OF FINANCIAL ACTIVITIES - contlnued
Unrestricted
funds
Restricted
funds
Total
funds
Charltable actlvltlos
Charitable activiti68
99,502
Totsl
101,435
NET INCOMeiiEXPENDITURE)
Tran8fev8 ￿tween funds
(105.887)
(29,630)
44)
(135.517)
Not movement In lund8
(105,843)
{29.874)
(135.5171
RECONCILIATION OF FUNDS
Tolal funds brought fon•iard
508,058
61,259
569.317
TOTAL FUNDS CARRIED FORWARD
402 215
433.800
13.
TANGIBLE FIXED ASSETS
Flxtures
and
fittings
COST
At 1 Aprll 2023
Addilions
22,629
At 31 March 2024
DEPRECIATION
At 1 April 2023
Charge for year
19,755
At 31 March 2024
NET BOOK VALUE
At 31 March 2024
At 31 March 2023
Page 17

PRADER-WILLI SYNDROME ASSOCIATION UK CIO
NOTES TO THE FINANCIAL STATEMENTS- continued
FOR THE YEAR ENDED 31 MARCH 2024
14.
STOCKS
2024
2023
Finished go¢x15
15.
DEBTORS: AMOUNTS FALLING DUE WITHIN ONE YEAR
2024
2023
Trade debtors
Other deblors
Prepaymenls and accrued income
3,923
759
171
698
4.065
4,763
18.
CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR
2024
2023
Other credilorn
Page 18

PRADER-WILU SYNDROME ASSOCIATION UK CIO
NOTES TO THE FINANCIAL STATEMENTS- contlnued
FOR THE YEAR ENDED 31 MARCH 2024
17.
MOVEMENT IN FUNDS
Net
movemenl
in funds
Transfer$
belween
funds
At
3113r24
At 114r23
Unre8tr1cted fiAnd8
Gen8ral fund
Research
Communications Manager
Research: Ageing in PWS
PWS Slblings projecl
Residential Care Projecl Manager
Stsff and Trustee Away Day
Clinlc8
236,042
10,000
20,165
100,000
36,008
14,766
250.652
10,000
(20,165)
12,000
(36,008
10,000
3,000
98,000
17.782)
2,218
3.000
R•6trlcted funds
R8search
O.W,L Group
Chlldren in Need
Research - Phllip Bam8s & Co Ltd
Famitynet Wales & Southwèst
ICAP
Alpkit Foundatlon
Awards 4 All
Toyota Ea81 Midlands
Jeans 4 Genes
Better Break8 Scolland 2023
Toyota
Postcode Places
Northem Ireland
TSG Foundalion
PWSA Funds- The Big Glve Campalgn
The Whitehead Monckton Trusl
D'oyly Carter Charitable Twsl
402,215
(30,318)
15,242)
366,655
2,195
3,760
10,000
12,1951
15511
12751
(5,3331
3.209
9,725
$,245
1,012
2,924
12,477)
447
8,478
1,292
1.836
15.3161
14941
11,836)
274
1795)
19,385
11,102
5.211
7,586
352
3,162
{798)
274
795
19,385
11,102
8,211
7,586
352
TOTAL FUNDS
430 273
Pag& 19

PRADER-WILLI SYNDROME ASSOCIATION UK CIO
NOTES TO THE FINANCIAL STATEMENTS- continued
FOR THE YEAR ENDED 31 MARCH 2024
17.
MOVEMENT IN FUNDS - contlnued
Nel movement in funds. included in Ihe above are as follows:
Incoming
resources
Resources
expended
Movement
in fur)ds
Unro6trlcted lunds
Gen8ral fund
Communications Manager
Residential Care Project Manager
Clinics
419,232
1419,388
(20,165)
{7.782)
(156)
120,165)
17,782)
R•strlcled fvnds
Research
O.W.L Group
Childr8n in Need
Research - Philip Bames & Co Ltd
Famllynel Wale8 & Southbvest
ICAP
Alpkil FL￿ndatIon
Award$ 4 All
Toyota East Mldlands
Jeans 4 Genes
Better Break8 Scotland 2023
The ￿dWiCk Trust
FB Coales No 4
Toyota
Postcode Places
Thomson Roddl¢k Scottish Auctlons
Northern Ireland
TSG Foundalion
PWSA FurKI8 - The Big Give Campalgn
The Wh6tehead Monckton Tru81
D'oyly Cartèr Charltable Trust
419,232
(449.SS0)
(30.318)
(2,195)
1552)
110,275)
(6,833)
(1.012)
{2,478)
141 S)
{5,316)
{4941
{1,836
(6,706)
{200)
(1,000)
(796)
(4.705)
(1,761)
140)
{4,790)
<2,1951
15511
12751
IS,3331
11,0121
12,4771
10,000
1.800
420
15.316)
1494)
11,836)
274
6,980
200
1,000
1795)
19,385
24,090
1,761
11,142
10,001
7.586
500
11,102
5,211
7,688
352
(148)
TOTAL FUNDS
497 674
501 1011
Page 20

PRADER-WILLI SYNDROME ASSOCIATION UK CIO
NOTES TO THE FINANCIAL STATEMENTS- continued
FOR THE YEAR ENDED 31 MARCH 2024
17.
MOVEMENT IN FUNDS- conllnuad
Comparatlves for movement In fund8
Net
movement
in funds
T￿nSferS
befvieen
fund6
At
3113123
At 114122
Unmlrfcted fund8
General fund
Research
Communicatlons Manager
Research.. Ageing in PWS
PWS Siblings projecl
280.878
19.956
57.224
100.¢YJO
50.000
{44,836)
{10,OCK))
(37,059)
236,042
10,000
20,165
100.CQO
508,058
(105,887)
402,215
Re8trfct•d funds
Research
O.W.L Group
Children in Need
Research - Philip Bames & Co Ltd
Research Rokety School
Familynet evants
Familynet Wales & Southwest
Familynet Cheshire & Hertfordshire
National Conference 2020 . Outsourclng
activltles
mat￿nal Conference 2020
Familynet Essex
CAF
ICAP
St James's Pla¢e
Awards 4 All
Toyola Easl Midlands
Jeans 4 Genes
1,924
3,981
23
4,361
315
767
1,938
1,000
271
2.195
3,760
10,000
(221)
9,977
<4,273)
(315)
(767>
(926)
(1,000)
1.012
1,576
709
1,414
33,431
7,320
2.500
(1,576)
(7119)
(1,414)
(33,431)
(4,396)
{2,500)
8,478
1,292
2,924
8,478
1.292
29.630
TOTAL FUNDS
569 317
135 517)
Page 21

PRADER-WILLI SYNDROME ASSOCIATION UK CIO
NOTES TO THE FINANCIAL STATEMENTS- contlnued
FOR THE YEAR ENDED 31 MARCH 2024
17.
MOVEMENT IN FUNDS- contlnued
Comparalive net movement in funds, included in the above are as follows..
Incoming
resources
Resources
expended
Movement
in funds
Unre8trlcted fund•
General fund
Research
Communications Manager
PWS Slblings projecl
311,578
(356,414)
(10,000)
(37,059)
13992)
(44,836)
(10,OCM))
(37,059)
13992>
311.578
Re8trfcted fund8
O.W.L Group
Children in Need
Hospital Saturday fijnd
Resea￿ - Philip Bames & Co Ltd
Familyn&t events
Famllyn8t Wales & Southwest
Familynet Cheshire & Hertfordshire
National Confeien¢e 2020- Outsourcing
activities
Natlonal Conference 2020
Familynel Essex
Masonic Chantable Trust
CAF
ICAP
A Clarf( Automoblles
St James's Place
Boshier Hlnlon Foundation
Awards 4 All
Toyota East Midlands
Jeans 4 Genes
(417,465)
(105,887)
(221)
{10,023)
(2,000)
<5,773)
(767)
(926}
(1,000)
<221)
9.977
20,000
2.000
1,500
(4,273)
(787)
(926)
(1.000)
(1,576)
(709)
(1,414)
(5,OCrf))
{69,518)
(4,397)
(1,000)
12,500>
(2,000)
11,447)
(1,576)
<709)
(1,414)
5,000
26,087
{33,431)
(4,396)
1.000
12.500)
2.000
9,925
1,292
8.478
1,292
101.435
29,630
TOTAL FUNDS
383 383
135 $171
Deslgnated Funds a8 at 31 March 2024
Research - funding for research projects
Research: Agelng in PWS - fijndlng for a Specific research projeGt
Residential Care Project Manager
Staff and Trustee Away Day
Clinics
Rg•trlctsd Fund8 a8 at 31 March 2024
OWL Group - 8UPPOrt for meetings and awayday8
Chlldren in Need- Funding for a member of Support Team
Research Rokeby- funding for research projects
Familynel 8venls - funding for family activilies
Familynel Cheshire and Hertfordshlre- lundlng for family activities
National Conference 2020- outsourcing acti¥ilies - funding for cre¢he faciltties
Familynet Essex - fundin9 for family aclivilies
CAF - funding for Support Team arKI online activili8S
ICAP funding for family aclivlties
A Clark Automobiles - PV*lS animation proj8Ct
Page 22

PRADER-WILLI SYNDROME ASSOCIATION UK CIO
NOTES TO THE FINANCIAL STATEMENTS- contlnued
FOR THE YEAR ENDED 31 MARCH 2024
17.
MOVEMENT IN FUNDS - ¢ontlnued
St James's Place - lunding for animatlon videos
Awards4 All . funding for diagnosis support
Alpkit Foundats'on - for use for community event at Nene Park
Better Breaks Scotland 2023 - for use in Scotland only. for communty eventslfamily weekends
Posl¢ode Places - for a new post recruited in January 2024 - volunleer CO•ordinator who is taking a lead in all things
volunteer related
Northern Ireland - for work to be undertaken within Northem Ireland to reach the communty Ihere
TSC Foundolion - this is towards a new diagn¢X8iS lead in the support teams salary
PWSA Funds - The Big Give FOur￿allon . lo develop a resource fof the community on how best to control diet withln
pws
The ￿llehead Monckton Trust - towards any costs relating to the PWS Walkover communty event taking part in
Haslings in July 2024
D'oyly Carter Charitable Trust - to be used against any costs agaln8t the Dorsel Communily weèkénd taklng place in
September 2024
Tran¥fer8 belween fund•
Transfers represent ￿alloCation between various research grants.
EMPLOYEE BENEFIT OBLIGATIONS
18.
Tho tolal contribution paid lo Personal Pension Plans in the year for certain employees amounled lo £15.962 {2023'.
£11,854)
1•.
RELATED PARTY DISCLOSURE8
There were no related paty transactlons lor Ihe year ended 31 March 2024.
Page 23