Docusign Envelope ID.. 33E8012E-70LIF4242-8F97-D694E70CE8F3 REGISTERED CHARITY NUMBER." 1155001 Report of the Trustees and Unaudlted Flnanclal Staiements lor the Year Ended 31 March 2024 for TRIGEMINAL NEURALGIA ASSOCIATION UK Cooper Parry Advi50ry Limited New De￿ent House 69-73 Theobalds Road London WC1X 8TA Docusign Envelope ID.. 33E8012E-7QDF4242-8F97-D694E70CE8F3 TRIGEMINAL NEURALGIA ASSOCIATION UK Contents of the Flnanclal Statements for the year ended 31 March 2024 Page CEO Report Report of the Trustoes Independent Examinerfs Report ststomont of Flnpnclal Actlvlllo$ Statoment ol Flnanelal Po8ltlon Notes to tho Flnanclal Statements 9 10 14 Detalled Slatemont ol Flnanclal A¢tlvlt108 15 ro 16 Docusign Envelope ID.. 33E8012E-70DF4242-8F97-D694E70CE8F3 TRIGEMINAL NEURALGIA ASSOCIATION UK CEO Report for the year ended 31 March 2024 Aneeta Prem MBE JP CEO Annual Report Trigomlnal Neuralgla Association UK ITNA UK) As CEO of TNA UK, l am privileged 10 present this report. TNA UK ha5 wnlinued lo make slgnifir2nl progress and become more resilient over this lasl year, despite the pressures caused by the ¢osl-of-living crisis and inueasing reli3n¢e on the seNicÉs we providc. We have remained siéadfasl in our mission lo reduce i501alion. tackle misinformation. and deliver tailored support 10 those living wih lrigeminal neuralgia and f8oal pain ITNFPI. 1. Member Engagement TNFP Survey.. This year. we ￿ndUCted one of our most extensive suNeys, wlh over 570 ré$p)nse&represenling more Ihan a quarter ol our membership. The results highlighted wailing limes. gaps In uncfeislanding. and the emotional loll ol TNFP. These insights have been invaluatde In shaping lunding bids and informing our luiure priorilies. We look lolwar d lo publishing the results lo guide our continued Wofk Reglonal Support Groups IRSG$}: During my travels across the country. I had Ihe privilège of meeling members lac¢.lo-face al RSG meetings. I repeatedly heard how vJlLtable Ihese meelings are and how Members hope lo expand reoular lace-10-lace g8lherings a longside existing online RSG sesslons Natlonal Weblnais.. Hoslino naiional webinar5 with Iniernaiionally recognI5ed experts has been a highllghl ol the year These evenis provided viial advice on managing TNFP while addressin9 membefs. pressing concems. Members. thoughtful wnlribul ions and questions shaped the ¢iscussion5, maklng Ihem hi9hly practical and impa¢tful. 2. Regular Membor Updates Frequent Communlcallons: Throughoul the year, I sent re9ular updates lo all members, sharing key dEvelopmenls. upcoming evenls, and Ihe lalesl news in TNFP care. These updales have been described as invaluable, offering re8SSUran￿, connection, a nd reliable inlormalion. Strongthonlng Trust; Members ¢onsislenlly expfessed how thèsa updates reduced misinform811on and slrenglhened their Irusl In TNA UK 3. Rlsing OomAnd for Helpllno Servlces Incroasod Ca115'. Calls 10 our Ireephone helpline, &helpline, and Friendship Line have risen Significantly this year. including a Iroubl Ing increase In syicide-relaled cas8s. many ol which wefe redirected lo the Samaril8ns. Frlendshlp Lln¢ Impact: One member shared. I was completely alone wilh my TNFP. The pain was unbc8rable, and my family were fed up wilh me ialking about it. Having someone Irom TNA c411 me once a week has given me hope. someonè lo talk lo, and support.11'5 my Illeline FeeL1ba¢k like Ihis high1ighlS the crilical role Ihe Friendship Line plays in reduGing isolab'on and providlng emolional support. parlicularly lor members who feel overlooked or alone. Member Challonge8: The nse in demand reflects Ihe immense pressure5 on members. worsened by Ihe cosi-ol-living crisi s. which has Intensified bolh emolional and financi31 hardships. 4. Advocacy and Representstion Engaging Pollcymakers: Thi5 year, l fftèi wlh ministers and MPS lo raise awareness ol Ihe posicode loitery affe¢ling TNFP Irealmeni. advocating for reloms lo Personal Independence Payments IPIPI. Strenglhenlng Influencg: My appointment as a Trustee ol The Neurologieal Alionce has amplified TNA UK'S volce. enabling us lo push for gr caler recognition ol TNFP within heallhtsre policy. Ongoing Advocacy: We have continued our work with NHS leads. policymakers, and healthcare organisalions lo address syslemic ga ps. promote equitable Irealmenl. and improve oulcome5 for those living wilh TNFP. 5. Medlcal Collaborat]on P8rtnerin9 With Professlonals: We 51renglhen&d felaiionships vAlh neurologists. neurosurgeons. pain nurses, GPS. and denlisls, equipping them wlh accuraie. evidence-based Inlomialion lo Improve care for TNFP patients. Educational Resources: Tailored resources have been dislnbuleij 10 healthcare professionals to ￿mbaI misinlormalion and ensur e TNFP is better undersloocs and recognised. Medical Advlgory Board: l am gralelul lor the leadership of our Medical Advisory Board. induding Or Giorgio Lambru and Mi Sinan Baraz i. who have provided invaluable expertise and gui{Jan￿ lo our work. 6. Fundraising and Financial Stsbillty Nlainlaining Finanoal Resilience.. We maintained a healthy reserve lo ensure continued service delivery during a year ol uncertainly and rising demand Securing Fundlng: A significant grant from a national provider has allowed us lo expand cn'iical initiatives and services. Donate a Mernbershlp: Through the generosity of our membets. we have been alje to provide ¢ornplirnentary memberships to Ihose l aong finanoal hardship. ensuiing inclusivity. Page 1 Docusign Envelope ID.. 33E8012E-70DF4242-8F97-D694E70CE8F3 TRIGEMINAL NEURALGIA ASSOCIATION UK CEO Report forthe yearended 31 March 2024 Legacy Planning. I have worked dosely wlh families arKI indiwduals on legacy Planning, ensuAng their conln'butions leave a lasling impaci. One famlly expiessed how their legacy gift brought them closer lo our mlssion and gave them a renewerj sense ol purpose. Simplified Donatlons: The inlfoduGlion of QR codes has made donating simpler and more accessible, b)OSling engagement and support. 7. Volunieerand Staff Development Volunteer Training: Comprehensive Iraining programmes were delivered for helpline s13ff. RSG leaders. and Friendship Line volunt eers. ensunng they are well.equippeQ lo provide compassionate. tailored support. New Volunteer and Fundralslng Officer: This role has been pivotal in enhanong grassroots Initiatives and Iosiering slron9er supporter engagement. Expandlng Volunteer 8as¢: Actively recrurting new volunteers remains a priority lo mget the Increaslng dèmand lor our services, Heather Morrls: As Finan¢2 and Membership Mana9ei, Heaihe¢s conlribulions have been Invaluable in malnlalning accuraie financial records and ensuring smoolh membership support. 8. Dlgltal Enhancemonts Updated Webslte: Our rebranded and relreshtd web511e offers Improved accessibility ancs clearer inlomalion, providing a vital r esource for membors and healthcare prolessionals. Acce8slble Informatlon: Meaical updates, eveni details, and donalton Oplions are now easier lo find and navigate, ensufing the websiie rema Ins central lo our oulfeach 9. Media and Public Awareness Show TNFP 3 Flngers Campalgn: Achieved an 80% In¢rease In soTral media en9agemenl. raising public awaieness and 51renglhening community con nections. Short Fllm Collabornllon: Partnered wilh an independeni film compsny lo produce a short film on hidden disabilities. praised for il s impaclful slorytelling and ability to hiohlighl the challenges faced by those living wlh TNFP. 10. Challenges and Reslllencè C051•01.Llvlng Crlsl8: Many mombefs have faced increased financial pressures, exacerbalin9 the challenges ol living wiltt TNFP. We res ponded by expandin9 membership assistance and mainlainlng crilical support se￿1￿5. Winter Pressures: The cold weaihef has woisened symploms lor many. lurthèr reinforcing the need for our lailored support. Volunteor Fatlgue: Recognlsing this thallenge. we provided additional SUPPDrt lo sustain morale and mainiain seNice quality. 11. Looklng Ahead Our goals for the year ahead includ8.' Expanding the volunlcor base and enhanong training programmes. Growing the Friendship Line and RSG nehvork lo further reduce isolation. Sirenglhening advocacy efforts lo ensure TNFP care is priorili8ed wilh1n he311hcare policy. Sustaining and divorsifying lundlaising inslialiyes lo Secure long.leriii financial slabilsty. Driving lomard collaboratsve research partnerships lo improve oulcomes lor members. 12. A¢kno￿edge￿Qnts l extend my deepest thanks 10., Our helpline, *helpline, RSG leaders, and Friendship Line volunteers for their compassion and dedicalion. Our Medical Advisory Board. including Dr Giorgio Lambru and Mr Sinan Bar￿1. lor theif coniinued guidance and expertise. Heather Morris, for her vital coniribulions lo finance and membership rnanagemenl. Our IrusEees. lor their commitment lo ensuring strong govemance. Our members. lor Iheir engagement. Irusl. and support Families and Individuals who have contributed Ihrough lega￿ giwng. ensuring TNA ules work ￿n11n￿eS for generalioris lo come Togelher. we are reducing isolation. empowering members, and ueats'ng a stronger. more inclusive community for Ihose living with TNFP. Page 2 Docusign Envelope ID.. 33E8012E-70DF4242-8F97-D694E70CE8F3 TRIGEMINAL NEUIULGIA ASSOCIATION UK Report of the Trusts63 for the year ended 31 March 2024 The Iruslees Present their report wlth the financlal statements of the charify for the year ended 31 March 2024. The InJstees have adopted the provisions of Accounting and Reporting by Charities.. Slalemenl of Recommended Practlce applicable lo charities prepadng their accounts in arxordancE with the Financial Reporting Slandard applicable in the UK and Republic of Irèland (FRS 1021 (effective 1 January 2019). As Chaiman of TNA UK, il is my privilege to present this yeaffs report. Despite the challeng88 posed by th& cosl-of-living crlsis and increased demand for our services. TNA UK has continued lo make a méaningful difference in the lives of those many individuals affected by Irigeminal neuralgia (TN} and chronic fa¢i81 pain. The Trustèes are r8sponsible for &nsuring that TNA UK operates in compliance wnh ils charitable oblecllves and ils legal obligations. Throughout th8 year, we have cornducled regular Board meetings lo review perfom)anc&, manag8 risks, and sel strategic priorities. We have also reviewed and approved updated poliaes, which were developed by the CEO lo rellect bast practice and èvolving member needs. The Trustees have overs8en the Charily's financlal management, ensuring that resources are used efficlenlly and suslalnably lo maximlse Impact and lo avold risk by maintaining a healihy reserve. The Charity has been abl& lo lespond effectively lo extemal challenges while mainlainlng lianspaien¢y and accountability. Thls year. TNA UK has made significant progress under the slralegic dSfe¢tion of the Board. Membèrship has grown, thanks lo inilialives such as the Donate a Membètship" s¢heme, whl¢h ensures inclusivrly for those in financial hardship. Critical services such as the FrlendshSp L5ne, n81ion81 w6blnars, and the e.helpline have eonlinued to provide valuable support to Isoialèd members. Our Charitls advocacy efforts have been strengthèned through the CEO'8 appointment as a Trustee of The Neurological Alliance, enhancing TNA UK'S nallon81 influencè. We have conllnued lo champlon greater recognilion of TN within heallhcare policies and our demand for improvements In Petsonal Independencè Paymenls (PIP) for Ihose Ilvlng with TN. In difficult times TNA has mainlalngd financlal siabllity, sustained by members, conldbullons, donallons and Innovative fundraising inillallves, inclu¢Ying 'Yea for TNA" Legacy-giving campaigns will hopéfully bolster the Charity's future financial resiliencè. The Tru51ees have fully supported the launch of a free wlll-wrillng seNce, empthvering members lo leav8 a lasting Impact on the Charills work. We have been able to respond posiliv81y lo new research ventures, induding a proposed study Snlo paln management, Thls demonslrales TNA UK'S ongoing commilmenl lo promoting the advancement of care. LookSng ahead, the 8oard'$ prioritles include.. Slren9thening advocacy efforts to ensure TN Is recognlsed as a priority condilion In national heallh¢are pollclgs. Supporting the growth of digital resour￿9 lo engage a broader and younger audience. Expandlng the range of fundralsing inilialives lo ensure the long-lerm sustainability of our servic8S. Continuing lo partner with medical experts lo advance research, stay across the latest developments and improv8 outcomes for TN siifferers. Training our volunteers who generously provide their lime and expertlse lo support those who suffer the d&vaslating effects of TN I would like lo extend my sincere gratitude to our CEO, Aneeta Prem MBE JP, for hei vlsionary leadership and tireless commitment lo the Charity. l also wish lo thank our dedicated staff. volunteers, and donors. whose efforts have enabled TNA UK lo remain a lifellne for so many. Together, we are building a stronger and more Indusive community for thos@ living with trigeminal neuralgia and chronlc fa¢ial pain. Financlal Review The results for the year are set out in the attached accounts. r￿al unrestricted funds a131 March 2024 were £224 326 compared with £216,772 al 31 March 2023. Total income during the year was £189.1CI8 12023.. £127.174) and total expenditure during the year was £148,749 {2023'. £163,745). Page 3 Docusign Envelope ID.. 33E8012E-70DF4242-8F97-D694E70CE8F3 TRIGEMINAL NEU114LGIA ASSOCIATION UK Report of the Tn5Stees for the year ended 31 March 2024 In the pasl finanual year. our charity has strategically invested beyond our projected budget. This overspend, while significant, was a consoous decision aligned wilh our long-lemi obieclives. 11 encompassed vslal aieas such as research and developmenl, event hosling. and enhancing our operational capabilities. These inveslmenls, includin9 ihe scoping of new funding OPPOrtunilies and upskilling our team. are lundamenlal to oui 9rowlh and continued compliance wlh legal standards. Although partially offset by increased revenue from memberships and other SQUfces. this expèndilure represents our commilmenl lo advancing our mission and ensuring our sustainability in Ihe long leim. Reserves Pollcy The Iruslees have decided Ihai Ihe amount ol 'fTee' reserves lie unreslricled reseNes not desi9naled as tangible 3sseisI held by Ihe charity should be maintained al a level equal 10 the approximate runnlng c051s of the charity for elve monlh period This Is esbmaled lo be around £120,000. Rlsk Asses3ment The Tfuslees have assessed Ihe major risks lo which Ihe Trigemlnal Neuralgia Asscdolion UKIS exposed, in particular those related lo ils operalion and finances, and are $8bsfied that sufficient syslem5 and insurance polldes 8re in pl8CQ lo miligaie exposure lo major risk5. Our objective ol provicling ad¥Ace and support 10 benefio8ries In vulnerable clrcumslan¢e5 means that some exposure lo nsk Is unavoid8ble, and cannDI be predicted. We continue lo lake action and care 10 reduce such losses, bul accept some Oegfee ol risk as incumbent on our core responsibility lo provide our service 10 individuals living with extreme pain and monlal angu15h. often in Isol8led and chaolic siluaiions. Granls provided Iof iesearch purposes arc c105oly monitored an(5 measured so Ih81 Iha chanty can choose to foclts ils limited resource5 on support for projecis most likely lo bring optimum resulls. Structuro, 9ovornance and management The chanty 15 govérned accordin9 10 ils Conslilulion and ig a Charitable Incorwaled Organlsallon, havlng been entered in the regisl81 of Charities on 13 Decemb2r 2013. Page 4 Docusign Envelope ID. 33E8012E-70DF4242-8F97-D694E70CE8F3 TRIGEMINAL NEURALGLA ASSOGIATION UK Roport oftho TruBtO08 for tho year ended 31 March 21)24 Referen￿ and admlnlstratlvo dotsllo Registored Chartty number 1155IXJ1 Addrogs Hellesdon Hguse 28 Hellesdon Mill Lane Norwch NR6 SAY TruBtoos Robert Jackson JP Deborah E(Iward8 Kirsten co0￿r Loryaine Woolley MBE (resigned In 2024) Tony Williams Ch8rles Lucchetti lappoinled in 2024} Ind•pondont Examlnorn Cooper Pary Advisw Limlled New Derwèni Housé 69.73 Theol)alds Road London WC1X 8TA Bankorn Nabonal We51minsl&r Bank PIC Weslem Avgnue Waiotsi¢e Coun Chatham Marillmfr Caalham Kent ME4 4RT HS8C UK Bank rlc 18 London Slreel Norwch Norfolk NR2 1LG Approveme will be received and lh& amount ¢8n be measured reliably. Tax rèclairns on donsllons Incoming resources from tax reclalms are Included In the SOFA al the same Ilme as the gift lo whlch Imey relate Expendlture Liabililies are recognised as expendilure as soon as there is a legal or c¢nslruclive obllg81ion committin9 the charity lo Ihal expenditure, il Is probable that a transfer of economic benefits will be required in settlement and the amount ol the obligaiion can be measured reliably. Expenditure is accounted for on an accruals basis and has been dassified under headings that aggregate all cosl felaled lo the ¢Jlegory. Where costs cannol be directly attributed lo particular headings they have been allccaied 10 activities on 8 basis consislenl wilh Ihe use ol resources. Govomance costs Govemance cosis indude the preparation and examination of siaiutory acL¥Junts. the cos15 Qf Iru$lee meetings ènd Ihe cosl ol any le9al advi￿ 10 Irusiees governance or consts'iutional mailèrs. Tangible fixed assets Depreoatson is provided al the lollowng annual rales in order lo write off eath asset over ils eslimaled uselul Fixlures and fitting5 25•10 on cost Taxation The chgrity is exempl from lax on ils charitable adiwlies. Fund accounting UnrestnGl¢¢J lunds ¢an be usea in accordance Wlh Ihe thontabie Obieciives. P3ge 9 Docusign Envelope ID.. 33E8012E-70DF4242-8F97-D694E70CE8F3 TRIGEMINAL NEURALGIA ASSOCIATION UK Note5 to the Financial Staiements - contFnued for the year ended 31 March 2024 Accounting policles - continued Fund accountlng Roslricted funds ean only be used for particular re5tnct8d purp030S Yithin the objeds of Ihe charity. Reslri¢tions arise when spe¢*fied by the donor or when fvnds are raised for particular reslricled purpose5. Oebtors #nd ¢￿ditOrS Deblots and creditors wth staled inleresl rale and falling due wlhin on& year are recorded 81 transaction pri￿. Other trading activltie8 2024 2023 Fundraising events Shop income 4,570 230 3,316 3,316 4.800 Investment Income 2024 2023 Doposil account intere81 3,757 816 Trustoos. romuneratlon and benefits There were no truslees, remuneration or other benefits lor the year ended 31 Marth 2024 rK>r for Ihe year ènded 31 March 2023. Trustees. expen6QS 2024 2023 Trustees, expenses 2,662 815 Compara￿veS for the 8thtomont ol flnanclal actlvltles Unieslriaed fund Reslncled funds Tolal funds Income and endowm¢nts fr¢m Oonaiions and legaues 62.015 18,786 80.801 Charftable activities Charitable actiwlies 40.757 40,757 Olher trading aclivilies Inveslmenl incomè 4,800 816 4,800 816 Total 108.388 18,786 127.174 Expenditure on Raisin9 funds 22.701 22,701 Charitable activities Chart13ble acts'vilies 135.763 5,281 141.044 Tot31 158.464 5.281 183.745 Page 10 Docusign Envelope ID.. 33E8012E-70DF4242-8F97-D694E70CE8F3 TRIGEMINAL NEURALGIA ASSOCIATION UK Notes to the Flnancial Statements - continued forthe year ended 31 March 2024 Comparatives lor the statement of financlal acllvlues - Contlnued Unr¢slricied fund Restricted ncjs Total funds NET INCOMEI{EXPENDtTUREI {50,076) 13.505 136,S711 Reconcillation of funds Tolal lunds brought lO￿ard 266.848 4,798 271,646 Total funds carrled fOr￿ard 216,772 18.303 235,075 Tanglble fixed assets Fixtures nd rittings Cost Al 1 April 2023 and 31 March 2024 5,585 Dopreclation Al 1 April 2023 Charge lor year 2,183 1,396 Al 31 Marcn 2024 3.579 Not book valuo Al 31 Mafch 2024 2,008 Al 31 March 2023 3.402 Oebtorn: amounts falling due wlthln one year 2024 2023 Trade debtors Other debiors 20 15.394 20 15,394 Page 11 Docusign Envelope ID.. 33E8012E-70DF4242-8F97-D694E70CE8F3 TRIGEMINAL NEURALGIA ASSOCIATION UK Notes lo the Financlal Statements - conilnued forthe year ended 31 March 2024 Creditots: amounts falllng due wthln one year 2024 2023 Trade creditors Oiher creditors 6,875 3,600 1,714 8.SOO 10.475 10,214 Movement In funds Nei movemenl in funds Al 31.324 Al 1.4.23 Unrestrlctod lundB General fund 216,772 7.$54 224,326 Restrlcted funds Restricted Capital Training Education and Advocacy Wellness Projecl Raisin9 Awareness Research 18.303 11,3981 26,000 2,000 2,000 5,200 16,907 25,000 2,000 2,000 5,200 18,303 32,804 51,107 TOTAL FUNDS 235,075 40,358 275,433 Nel movement in funijs, included in the above are as follows.. Incoming resources ResoufGe5 expended Movemenl In funds Unrestricted fund8 Gener81 lunJ 154.908 1147,352) 7,554 Restricted fund$ Reslricled Capiial Training Educalion and Advocacy Wellness Proje Raisin9 Awareness Research 11,3961 11.396} 25,000 2,000 2,000 5,200 25,000 2.000 2.000 5,200 34,200 11,396} 32,804 TOTAL FUNDS 189,106 148,7481 40,358 Page 12 Docusign Envelope ID.. 33E8012E-70DF4242-8F97-0694E70CE8F3 TRIGEMINAL NEURALGIA ASSOCIATION UK Notes to the Flnanclal Ststements- contlnued for the year ended 31 M3r¢h 2024 Movomont In funds- Continued Comparatlve5 for movomont In lund6 Nel movement In funds Al 31.3.23 At 1.4.22 Unrestricted lunds General lur 266,848 150.0761 216,772 Re$trlcted fund5 Restricted Capilal Mombers Support Support Seryices co.ordinator Volunleer Trdining Easi Anglia Region offi￿ Equipmenl Ireland Support Group 4.798 11.3981 3,5 5.250 1.365 2.OCQ 3,402 3.500 5,250 1,365 2,588 200 200 4,798 13.505 18,303 TOTAL FUNDS 271.648 136,571) 235,075 Compaialive nel movement in lunds, included in the above are as lollrAs'. Incoming resource5 Resources expended Movement in funds Unrestricted fund$ General fund 108,388 1158,4641 ISQ.078) Restrlcled lunds Restricted C?pilal Members Support Support SeNices Co-ordinator Volunieei Training East Anglia Region oirice Equipment Ireland Support Group 11,3961 (1,398) 3.$00 5.250 1,365 2,000 3.500 5.500 s,000 2,000 2.588 2L)) 12501 {3.635) 200 18.786 15,2811 13.505 TOTAL FUNDS 127,174 1163,7451 136,5711 The reslricled eapilal fund represents fixed assels obtained with resln¢ted donations or legaaes for the purpose of ¢apilal purchases. Page 13 Docusign Envelope ID.. 33E8012E-70DF4242-8F97-D694E70CE8F3 TRIGEMINAL NEURALGIA ASSOCIATION UK Notes to the Firianclal Statements- eontlnued for the year ended 31 Mar¢h 2024 10. Related paty dlsclosures There were no relaied paty Iransactsons for Ihe year ended 31 March 2024. 11. Average employees The average number of employees during the peric¥J was NIL12023' NIL). Page 14