AMEND 2021 Annual Report & Accounts
Contents
| Page | 3 | Constitutional Aims and Objectives |
|---|---|---|
| Page | 3 | AMEND and the Trustees |
| Page | 4 | Changes to AMEND and the Trustee Board |
| Page | 5 | Chairperson’s Report |
| Page | 5 | CEO’s Report |
| Page | 6 | 2021 Overview |
| Page | 8 | 2022 and Beyond |
| Page | 9 | Membership Report |
| Page | 10 | Fundraising Report |
| Page | 11 | Treasurer’s Report |
| Page | 12 | Statement of Financial Activities |
| Page | 13 | Balance Sheet |
| Page | 14 | Notes to the Financial Statements |
| Page | 19 | Independent Examiner’s Report |
| Page | 20 | Contact Information |
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CONSTITUTIONAL AIMS AND OBJECTIVES
The object of the CIO is to relieve people who suffer from Multiple Endocrine Neoplasia (M.E.N.) of all types, their families, friends and carers by all or any of the following means:
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(1) Acting as a reliable and accurate source of information for the public concerning M.E.N. and its associated sporadic growths, by:
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(a) Working within the approval of members of the medical profession who are directly involved in the treatment of and research into M.E.N.
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(b) Collecting, collating and distributing appropriate and approved information.
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(c) Producing the Charity’s own patient-aimed approved information.
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(2) Promoting a wider knowledge of the illness among the medical profession to assist in early and accurate diagnosis.
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(3) Providing reliable and accurate information with regard to genetic testing for people with M.E.N. and its associated familial growths, their families, friends and carers.
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(4) Providing emotional support to patients, their families, friends and carers in the form of contact with others in similar situations in order to facilitate the sharing of experiences.
AMEND AND THE TRUSTEES
The Trustee Board present their annual report together with the financial accounts of the Charity for the year ended 31 December 2021.
Structure, Governance and Management
AMEND is a Charitable Incorporated Organisation governed by a Constitution, vesting control and responsibility in the Trustee Board on behalf of the membership. The Trustees hold regular meetings to administer the Charity and their terms of office are determined by the AMEND Constitution. The term of office for an AMEND Trustee is three years beginning from the Annual General Meeting when voting in takes place.
Trustees’ Responsibilities for the Financial Statements
The trustees are responsible for preparing the Trustees’ Annual Report and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).
The law applicable to charities in England & Wales requires the trustees to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the charity and of the incoming resources and application of resources of the charity for that period. In preparing these financial statements, the trustees are required to:
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select suitable accounting policies and then apply them consistently;
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observe the methods and principles in the Charities SORP;
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make judgements and estimates that are reasonable and prudent;
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state whether applicable accounting standards have been followed, subject to any material departures disclosed and explained in the financial statements;
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prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charity will continue in operation
The trustees are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the financial position of the charity and enable them to ensure that the financial statements comply with the Charities Act 2011, the Charity (Accounts and Reports) Regulations 2008 and the provisions of the trust deed. They are also responsible for safeguarding the assets of the charity and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.
The trustees are responsible for the maintenance and integrity of the charity and financial information included on the charity’s website. Legislation in the United Kingdom governing the preparation and dissemination of financial statements may differ from legislation in other jurisdictions.
CHANGES TO AMEND AND THE TRUSTEE BOARD
New Trustees:
The following Trustees were appointed to the Board at the 2021 AGM:
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Andy Price
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Karen Williams
Retiring Trustees:
The following Trustees retired during 2021 and we thank them wholeheartedly for their service to AMEND over the years:
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Dr Simon Williams
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Edel Murphy
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Joel Russell-Winter
Trustee Executive Committee:
There were no changes to the Executive Committee during 2021
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CHAIRPERSON’S REPORT
Key principles of AMEND include - Patient Support and Information / Patient Representation and Disease Awareness Raising / Research Funding and Involvement. There is much activity in these areas at present, best summarised as ‘We can always do more’. With three new AMEND Trustees and the skill set that each brings, it is clear that the Charity continues to move in the right direction.
Barney Harrison Chair of the AMEND Board of Trustees 25[th] September, 2022
CHIEF EXECUTIVE’S REPORT
Dear all,
Thanks to the rapid adaptations we made in 2020 and despite the occasional restrictions from new surges of coronavirus, we continued with our work as best we could and certainly achieved plenty to be proud of (pages 7-9).
Our adaptability was typified by our determination to ensure production of numerous film resources that we had been planning for some time. Project Rollercoaster’s filming of adolescents and young adults discussing issues important to them went virtual during lockdown, with the films interjected with appropriate social media graphics to bring it as close as possible to its demographic. This was followed by location filming as soon as restrictions lifted (but with all precautions taken) to produce 6 excellent films – 3 each about MEN1 and MEN2.
At the heart of everything we do is our membership which continues to grow steadily. Not only do our members use our services and resources, but they also contribute massively to our projects, including all those who have starred in our patient experience films, our Community Advisory Groups members, Trustees, Medical Advisory Teams, fundraisers, and many, many more. You drive us to be better and to do more. Thank you for your confidence in us.
Wishing everyone the best of health,
Jo Grey AMEND Chief Executive Officer 25[th] September, 2022
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2021 OVERVIEW
Source of Information
76 members attended the 2021 Annual Patient Information Day in London for free at a cost of £55 per head to AMEND
AMEND spent over £14,888 on audio visual resources: 6 films about MEN1 and MEN2 costing and 16 short films for adolescents and young adults.
Provision of Support
137 membership packs (worth £10 each) were sent out by AMEND to new members costing £1,370
182 new patient & family members joined AMEND for free in 2021
Over 200 counselling and supervision sessions were provided to AMEND members and volunteers at a cost of between £50 to £80 per hour respectively
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8 virtual peer support meetings were held during 2021 for the benefit of almost 50 members. 100% of those surveyed were keen to repeat the experience
Raise Awareness of MEN & Associated Endocrine Conditions
AMEND increased its social Media awareness activities, getting involved in World Cancer Day, Thyroid Cancer Month and Phaeo Para Awareness Week, amongst others
AMEND had a presence at 2 in-person UK medical conferences (exhibition stands) and 1 online European conference where AMEND hosted a patient hub session with our Patron, Professor Raj Thakker
The AMEND CEO gave two patient participation lectures to 2[nd] year medical students at University College London, and an online public talk about patient involvement in research for the University of Birmingham
Advocacy
AMEND recruited 2 patient experts and made submissions to NICE and the SMC for the successful temporary approval of selpercatinib in RETmutated thyroid cancer
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Research
AMEND set up and began recruitment for 6 Community Advisory Groups to assist in providing the patient voice to research. The ACC and MTC CAGs began work on relevant research projects.
AMEND approved funding of 3 research projects (MEN1, PPGL, ACC) worth a total of almost £30,000 (1 invoice for £10,000 outstanding)
2022 AND BEYOND
We have a plethora of information resources that are due to be updated in 2022, as well as some adaptations for our other group, Phaeo Para Support UK, including a cartoon for children aged 5-8.
Our project to develop a smartphone app to replace and expand the utility of our MEN Passports across all the disease we support will begin this year. We expect this project to take 2-3 years to completion.
Our project to help reduce the time to diagnosis for our rare endocrine tumours and syndromes is still in the exploration stage but is gradually taking shape and will be recruiting volunteers to assist in due course.
We continue to recruit volunteers for our Community Advisory Groups for MEN2, MEN3 and PPGL syndromes, and look forward to our existing Groups getting involved in more research projects during 2022.
For anyone interested in getting involved, please visit our website where you will find information on volunteering.
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MEMBERSHIP REPORT
AMEND offers free membership to patients, their family and friends, as well as to healthcare professionals. Our patient communities cover multiple endocrine neoplasia disorders, phaeochromocytoma & paraganglioma syndromes, adrenocortical cancer, sporadic phaeochromocytomas and medullary thyroid cancer.
AMEND’s patient/family members totalled 1060 by the end of 2021 (878 in 2020), showing its continued upward membership registrations.
----- Start of picture text -----
Total Membership 2018-
2021
1060
878
711 730
2018 2019 2020 2021
Number of members
----- End of picture text -----
Whilst much of our membership base is understandably in the UK, patients from many countries around the world also continue to appreciate AMEND’s membership benefits. A charge applies to overseas members to cover the cost of shipping Membership Packs where requested.
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FUNDRAISING REPORT
Huge thanks go to the following for their extraordinary fundraising efforts and financial or in-kind donations during 2021:
Thank you to 2021 supporters: the Houghton Dunn Charitable Trust, the Nick Fayers Research Fund, Ipsen, AAA UK & Ireland Ltd, the Society for Endocrinology, the Barnes Group Ltd
Big thanks to our committed fundraisers who found great ways to support AMEND during 2021: Josh Dickson and Jan Burbie (London Marathon), London 10k runners Jaspreet Bhatiwal, Jatinder Bell, Gurminder Kainth, Nadia Krauhaus, James Donaldson and David Thomas. Paula McGough (Ring of Kerry Virtual Challenge), Emma Williams, Sarah Norman and Lisa Kramer Fit to Fight, Nicki Swindells (Auction and fundraising dinner), George, Isaac, Joe, Harvey and Finn (Duke of Edinburgh Bronze Award fundraising), Danyal and Dilhan Akarca (various fundraising over the year), Anthony and Gillie O’Flaherty (Etape Loch Ness), Jack Maynard (3 peaks challenge), Alan Grey (Isle of Wight trek), William Fayers (Cambridge Half Marathon), Wildridings primary school and Jessica Heyland.
Finally, thank you to everyone who has donated (anonymously or not), or offered their time for free over the past year. You really make a difference!
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TREASURER’S REPORT
2021 results . The charity’s total incoming resources were £93,239 (2020 £109,814) – down 15% on the previous year and now less than 50% of the income we received prior to the Covid-19 pandemic. We would like to thank our members and grant funders who continued to support us during another difficult year.
The extent of the fall in income was not reflected by comparable fall in expenses which led to the charity ending the year with a deficit of £36,398. Despite this, we managed to designate a further £9,000 towards our very valuable counselling service and made research grants and awards totalling £19,595 during the year. Another significant expense for AMEND this year was £14,888 on patient education films.
Reserves . AMEND’s undesignated unrestricted reserves now stand at £47,821 (2020 £46,775). Due to the high-risk nature of our main funding stream (voluntary grants and donations), we aim to retain general funds of £60,000. This is a level reasonable enough to ensure that AMEND could continue to operate its core activities for six months while enabling it to identify and utilise replacement funding streams.
Catherine Hamilton-Woodthorpe Treasurer 25[th] September 2022
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STATEMENT OF FINANCIAL ACTIVITIES
For the Year ended 31 December 2021
| 2021 | 2020 | |||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| notes | Restricted | Unrestricted | Total Funds | Restricted | Unrestricted | Total Funds | ||||||||
| £ | £ | £ | £ | £ | £ | |||||||||
| Income and endowments from: | ||||||||||||||
| Donations and legacies | 5 | - | 81,428 | 81,428 | 7,079 | 81,129 | 88,208 | |||||||
| Charitable activities | 6 | 10,880 | 193 | 11,073 | 19,636 | 79 | 19,715 | |||||||
| Other trading activities | 7 | 10 | 689 | 699 | 800 | 893 | 1,693 | |||||||
| Investments | - | 39 | 39 | - | 198 | 198 | ||||||||
| Total income and endowments | 10,890 | 82,349 | 93,239 | 27,515 | 82,299 | 109,814 | ||||||||
| Expenditure on: | ||||||||||||||
| Raising funds | 8 | - | 8,427 | 8,427 | - | 8,235 | 8,235 | |||||||
| Charitable activities | 9 | 40,966 | 57,827 | 98,793 | 23,583 | 60,766 | 84,349 | |||||||
| Support costs | 10 | - | 21,498 | 21,498 | - | 17,435 | 17,435 | |||||||
| Governance costs | 11 | 36 | 883 | 919 | - | 1,336 | 1,336 | |||||||
| Total expenditure | 41,002 | 88,635 | 129,637 | 23,583 | 87,772 | 111,355 | ||||||||
| Net income / (expenditure) | (30,112) | (6,286) | (36,398) | 3,932 | (5,473) | (1,541) | ||||||||
| Transfers between funds | 13 | 6,533 | (6,533) | - | 1,404 | (1,404) | - | |||||||
| Net movement in funds | (23,579) | (12,819) | (36,398) | 5,336 | (6,877) | (1,541) | ||||||||
| Reconcilation of funds | ||||||||||||||
| Total funds brought forward | 37,601 | 164,589 | 202,190 | 32,265 | 171,466 | 203,731 | ||||||||
| Total funds carried forward | 14,022 | 151,770 | 165,792 | 37,601 | 164,589 | 202,190 |
BALANCE SHEET
As at 31 December 2021
| 2021 | 2020 | ||||||
|---|---|---|---|---|---|---|---|
| note | £ | £ | |||||
| Fixed assets | 12 | 1,710 | 511 | ||||
| Current assets | |||||||
| Stocks | 3,321 | 3,978 | |||||
| Trade debtors | - | 200 | |||||
| Prepayments and accrued income | 1,300 | 1,896 | |||||
| Cash at bank | |||||||
| Deposit account | 155,066 | 144,878 | |||||
| Current accounts | 5,712 | 52,918 | |||||
| 165,399 | 203,870 | ||||||
| Creditors: amounts falling due | |||||||
| within one year | |||||||
| Trade creditors | (6) | (889) | |||||
| Payroll taxes | (363) | (473) | |||||
| Pensions payable | (348) | (229) | |||||
| Accruals | (600) | (600) | |||||
| (1,317) | (2,191) | ||||||
| Net current assets | 164,082 | 201,679 | |||||
| Total net assets | 165,792 | 202,190 | |||||
| Funds of the Charity | |||||||
| Restricted income funds | 13 | 14,022 | 37,601 | ||||
| Designated funds | 14 | 103,949 | 117,814 | ||||
| Unrestricted funds | 47,821 |
46,775 | |||||
| Total Charity Funds | 165,792 | 202,190 |
These financial statements were approved by the Trustees on 28[th] September, 2022 , and are signed on their behalf by
Catherine Hamilton-Woodthorpe Treasurer 28[th] September, 2022
NOTES TO THE FINANCIAL STATEMENTS
For the year ended 31 December 2021
1. ACCOUNTING POLICIES
The financial statements have been prepared under the historical cost convention and in accordance with applicable accounting standards and with the Charities Accounting Statement of Recommended Practice (SORP FRS 102).
a) Grants and voluntary income
All grants and voluntary income are accounted for in the year when they are received unless receipt has become certain at the balance sheet date.
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b) Deferred income Income which has been received for a purpose which has not been commenced at the balance sheet date is deferred to a future period.
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c) Other income and expenditure
Other income and expenditure is accounted for on the accruals basis.
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d) Resources expended
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Resources expended are recognised in the period in which they are incurred, and include attributable VAT which cannot be recovered. Expenditure is allocated by activity in the first instance and, where practical, is also allocated to a cost centre.
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e) Allocation of costs
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Costs directly related to an activity are allocated to that activity. Support costs which are necessary to deliver an activity but do not themselves deliver the activity, are allocated in proportion to the benefit attributable based on an internal assessment of time spent and resources used. Governance costs are those costs incurred in meeting statutory and constitutional requirements.
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f) Investments
All investments stated as current, being monetary assets, are stated at cost.
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g) Stocks Promotional merchandise, held for sale, is valued at cost.
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h) Fixed assets and depreciation Fixed assets are capitalised and depreciated over the estimated useful life as follows: 33% on cost.
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i) Funds
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Unrestricted funds are those which are received from funding bodies and other donors and can be spent on the general objectives at the discretion of the trustees.
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Restricted funds are those which are given for a specific purpose or project as defined by the funder, and where the funder may require repayment if the conditions are not met.
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Designated funds are unrestricted funds which have been earmarked by the trustees for specific, usually short term, purpose within the general objectives.
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j) Donated goods and services Donated goods and services are included at their value to the charity as determined by the trustees.
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NOTES TO THE FINANCIAL STATEMENTS (continued) For the year ended 31 December 2021
2. TAXATION
As a registered Charitable Incorporated Organisation, the association is not liable to income or capital taxes.
3. TRUSTEE REMUNERATION
No trustee received any remuneration. One trustee received reimbursement of travel and subsistence expenses amounting to £149.65 (2020: Two trustees; £310.85) to enable them to attend conferences, the AGM and trustee meetings.
4. STAFF COSTS AND AVERAGE NUMBERS
| Wages and salaries Employer pension contributions Management and administration Patient Support administrator Total |
2021 £ 39,109 1,173 40,282 1 1 2 |
2020 £ 38,395 577 38,972 1 1 2 |
|---|---|---|
| 2021 | 2020 | |||||
|---|---|---|---|---|---|---|
| **Restricted ** | Unrestricted | Total | Total | |||
| £ | £ | £ | £ | |||
| 5. DONATIONS AND LEGACIES | ||||||
| Donations and gift aid | - | 51,428 | 51,428 | 58,208 | ||
| Grants | - | 30,000 | 30,000 | 30,000 | ||
| - | 81,428 | 81,428 | 88,208 | |||
| 6.INCOME FROM CHARITABLEACTIVITIES | ||||||
| Grants for charitable activities | 10,880 | - | 10,880 | 19,636 | ||
| Other | - | 193 | 193 | 79 | ||
| 10,880 | 193 | 11,073 | 19,715 | |||
| 7. INCOME FROM OTHER TRADING ACTIVITIES | ||||||
| Grant of licence to show ACC film clips | - | - | - | 800 | ||
| Sale of merchandise | 10 | 689 | 699 | 893 | ||
| 10 | 689 | 699 | 1,693 | |||
| ~~15 | ~~ | ~~a~~ | ||||
| ~~g~~ | ||||||
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NOTES TO THE FINANCIAL STATEMENTS (continued)
For the year ended 31 December 2021`
| 2021 | 2021 | 2020 | |||||||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
| **Restricted ** | Unrestricted | Total | Total | ||||||||||||||
| £ | £ | £ | £ | ||||||||||||||
| 8. RAISING FUNDS | |||||||||||||||||
| Staff costs | - | 6,445 | 6,445 | 6,236 | |||||||||||||
| Merchandise | - | 657 | 657 | 1,763 | |||||||||||||
| Other | - | 1,325 | 1,325 | 236 | |||||||||||||
| - | 8,427 | 8,427 | 8,235 | ||||||||||||||
| 9. CHARITABLEACTIVITIES | |||||||||||||||||
| Staff costs | - | 22,265 | 22,265 | 21,588 | |||||||||||||
| Patient information printing, booklets and website | - | 2,943 | 2,943 | 4,306 | |||||||||||||
| Patient information events and conferences | 10,082 | 7,820 | 17,902 | 3,203 | |||||||||||||
| Patient education films | 14,888 | - | 14,888 | 11,413 | |||||||||||||
| Patient representation | - | - | - | 851 | |||||||||||||
| Research grants and awards | - | 19,595 | 19,595 | 17,996 | |||||||||||||
| ACC support and ACC research gran | 840 | - | 840 | 1,847 | |||||||||||||
| ACC staff costs | 8,056 | - | 8,056 | 7,794 | |||||||||||||
| Patient support and counselling | 7,100 | 5,204 | 12,304 | 15,183 | |||||||||||||
| International development | - | - | - | 168 | |||||||||||||
| 40,966 | 57,827 | 98,793 | 84,349 | ||||||||||||||
| 10. SUPPORT COSTS | |||||||||||||||||
| Rent | - | 14,534 | 14,534 | 12,298 | |||||||||||||
| Staff costs | - | 3,516 | 3,516 | 3,355 | |||||||||||||
| Printing, postage and office supplies | - | 846 | 846 | 540 | |||||||||||||
| IT support | - | 209 | 209 | 30 | |||||||||||||
| IT software and consumables | - | 606 | 606 | 446 | |||||||||||||
| Insurance | - | 632 | 632 | 611 | |||||||||||||
| Finance charges | - | 122 | 122 | 120 | |||||||||||||
| Depreciation | - | 999 | 999 | - | |||||||||||||
| Legal fees | - | 35 | 35 | 35 | |||||||||||||
| - | 21,498 | 21,498 | 17,435 | ||||||||||||||
| 11. GOVERNANCE | |||||||||||||||||
| Independent examiner | - | 600 | 600 | 600 | |||||||||||||
| Trustee meetings, AGM and other | 36 | 283 | 319 | 736 | |||||||||||||
| 36 | 883 | 919 | 1,336 | ||||||||||||||
| 12. TANGIBLE FIXED ASSETS | Equipment £ 10,723 2,198 12,921 10,212 999 11,211 1,710 511 |
||||||||||||||||
| £ | |||||||||||||||||
| Cost | |||||||||||||||||
| At1/1/21 | 10,723 | ||||||||||||||||
| Additions | 2,198 | ||||||||||||||||
| At 31/12/21 | 12,921 | ||||||||||||||||
| Depreciation | |||||||||||||||||
| At1/1/21 | 10,212 | ||||||||||||||||
| Chargeforthe year | 999 | ||||||||||||||||
| At 31/12/21 | 11,211 | ||||||||||||||||
| Net book value at 31/12/21 | 1,710 | ||||||||||||||||
| Net book value at 1/1/21 | 511 |
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NOTES TO THE FINANCIAL STATEMENTS (continued)
For the year ended 31 December 2021
| 13. RESTRICTED INCOME FUNDS | 13. RESTRICTED INCOME FUNDS | 13. RESTRICTED INCOME FUNDS | ||||||||
|---|---|---|---|---|---|---|---|---|---|---|
| B/forward | Income | Direct costs | Transfer from reserves |
Balance | ||||||
| £ | £ | £ | £ | £ | ||||||
| Anonymous donor | 677 | - | - | 677 | ||||||
| ACC Support UK | 8,140 | 10 | (8,896) | 746 | - | |||||
| TheBig Give2016-Project Rollercoaster | 4,513 | - | (6,917) | 2,404 | - | |||||
| CartoonLicence | 380 | 380 | ||||||||
| Sanofi | 86 | 86 | ||||||||
| Ipsen-MEN2A films | 2,190 | (5,178) | 2,988 | - | ||||||
| AAA Pharma MEN1Films | - | 4,000 | (4,230) | 230 | - | |||||
| ITM Solucin | 1,636 | - | (1,801) | 165 | - | |||||
| Barnes ConstructionGolf Day | 7,079 | 7,079 | ||||||||
| HRA Pharma- ACCfilms | 5,000 | 5,000 | ||||||||
| Licence to useACCfilmclips | 800 | 800 | ||||||||
| NationalLottery-Counselling | 7,100 | - | (7,100) | - | - | |||||
| Ipsen2021Patient InformationDay | - | 1,400 | (1,400) | - | - | |||||
| Ipsen-MEN1films | - | 5,480 | (5,480) | - | - | |||||
| ~~-~~ | ||||||||||
| 37,601 | 10,890 | (41,002) | 6,533 | 14,022 |
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A trust fund, who prefer to remain anonymous, provided £11,000 in 2018 for redevelopment of the AMEND website.
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ACC Support UK is for a standalone group for patients in the UK with adrenocortical cancer, in
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a joint venture with Neuroendocrine Cancer UK.
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Project Rollercoaster was a project to develop resources to support young adults
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through transition from paediatric to adult endocrine services.
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A cartoon licence was granted to Belangengroup MEN in The Netherlands to translate and use our children's cartoons on MEN.
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Sanofi provided a patient group grant towards the costs of sporadic medullary thyroid cancer patient event in 2018
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Ipsen provided an unrestricted grant to develop patient films about MEN2A
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AAA Pharma provided an unrestricted grant to develop patients films about MEN1
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ITM Solucin provided a grant for the 2020 Annual Patient Information Day, deferred to 2021 due to covid-19 pandemic
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The proceeds of Barnes Construction's Golf Day are to be used for MEN1 research awards
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HRA Pharma provided a grant in 2019 to produce ACC patient films
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Licence given to HRA Pharma for use of ACC patient film clips
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The National Lottery covid-19 Emergency Fund provided a grant to help fund the Counselling Service
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NOTES TO THE FINANCIAL STATEMENTS (continued)
For the year ended 31 December 2021
| 14. DESIGNATED FUNDS | 14. DESIGNATED FUNDS | ||||||||||
|---|---|---|---|---|---|---|---|---|---|---|---|
| B/forward | Income | Direct costs | Staff costs | Balance | |||||||
| £ | £ | £ | £ | £ | |||||||
| Counselling service | - | 9,000 | (3,270) | 5,730 | |||||||
| Research Fund | 83,064 | - | (19,595) | - | 63,469 | ||||||
| Hardship fund | 750 | - | - | - | 750 | ||||||
| Personnel contingency fund | 30,000 | - | - | - | 30,000 | ||||||
| Research Registry Project | 4,000 | - | - | - | 4,000 | ||||||
| 117,814 | 9,000 | (22,865) | - | 103,949 | |||||||
| 15. RELATED PARTY TRANSACTIONS | |||||||||||
| There were no relatedpartytransactions in 2 | 021 or 2020. |
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INDEPENDENT EXAMINER’S REPORT TO THE TRUSTEES
I report on the accounts of the charity for the year ended 31 December 2021 which are set out on pages 12 to 18.
Respective responsibilities of trustees and examiner
The charity’s trustees are responsible for the preparation of the accounts. The charity’s trustees consider that an audit is not required for this year under section 144(2) of the Charities Act 2011 (the 2011 Act) and that an independent examination is needed.
It is my responsibility to:
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examine the accounts under section 145 of the 2011 Act;
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follow the procedures laid down in the general Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act; and
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state whether particular matters have come to my attention.
Basis of independent examiner's report
My examination was carried out in accordance with the general Directions given by the Charity Commission. An examination includes a review of the accounting records kept by the charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit and consequently no opinion is given as to whether the accounts present a “true and fair view” and the report is limited to those matters set out in the statement below.
Independent examiner's statement
In connection with my examination, no matter has come to my attention:
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1 which gives me reasonable cause to believe that, in any material respect, the requirements:
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to keep accounting records in accordance with section 130 of the 2011 Act; and
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to prepare accounts which accord with the accounting records and comply with the accounting requirements of the 2011 Act
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have not been met; or
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2 to which, in my opinion, attention should be drawn in order to enable a proper understanding of the accounts to be reached.
Brian Luxford Independent Examiner Raymond Benn & Co. Ltd
- 1 Sheffield Road, Southborough Tunbridge Wells, Kent TN4 0PD
26[th] September, 2022
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CONTACT INFORMATION
AMEND
Tyler House, 58-66 Morley Road Tonbridge, Kent, TN9 1RA 01892 516076 / 841032 info@amend.org.uk Website: www.amend.org.uk Facebook: www.facebook.com/AssociationforMENdisorders Twitter: www.twitter.com/AmendInfo (@AmendInfo)
Jo Grey (CEO) Tel: 01892 516076 Email: jo.grey@amend.org.uk Helen Blakebrough (Exec Admin) Tel: 01892 841032 Email: helen@amend.org.uk
AMEND Trustee Board
Barney Harrison (Chair) Catherine Hamilton-Woodthorpe (Treasurer) Gill Masters Professor Karim Meeran Mrs Laura Jones Ms Louise Breen, RN Dr John Ayuk Ms Miriam Asia, RN Andy Price Karen Williams Robert Millinship (co-opted 2021) Sarah Norman (co-opted 2022) Graeme Cohen (co-opted 2022)
Patrons
Recorder, Mrs Jo Delahunty, KC, MA (Oxon) Jurisprudence Professor Rajesh Thakker, May Professor of Medicine, OCDEM, Churchill Hospital, Oxford
Mr Shaun Williamson, Actor
AMEND UK Medical Advisory Team (AMAT)
Dr Caroline Brain, Professor Maralyn Druce, Professor Ashley Grossman, Dr Fiona Lalloo, Mr David Scott-Coombes, Professor Rajesh Thakker, Dr Scott Akker, Dr Ruth Casy, Professor Wiebke Arlt, Professor Nick Reed, Mr Radu Mihai
Independent Examiner
Mr Brian Luxford,FCA Raymond Benn & Co Limited Sheffield Stables 1 Sheffield Road Southborough Tunbridge Wells Kent TN4 0PD
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