# ASSOCIATION FOR MULTIPLE ENDOCRINE NEOPLASIA DISORDERS

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1153890
- **Other names:** AMEND
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Sept. 20, 2013
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1153890


## Contact

- **Address:** AMEND, Tyler House, 58-66 Morley Road, Tonbridge, Kent
- **Postcode:** TN9 1RA
- **Phone:** 01892 516076
- **Email:** info@amend.org.uk
- **Website:** www.amend.org.uk



## Activities

**Objects:** TO RELIEVE PEOPLE WHO SUFFER FROM MULTIPLE ENDOCRINE NEOPLASIA (M.E.N.) OF ALL TYPES, THEIR FAMILIES, FRIENDS AND CARERS BY ALL OR ANY OF THE FOLLOWING MEANS:(1) ACTING AS A RELIABLE AND ACCURATE SOURCE OF INFORMATION FOR THE PUBLIC CONCERNING M.E.N. AND ITS ASSOCIATED SPORADIC GROWTHS, BY:(A) WORKING WITHIN THE APPROVAL OF MEMBERS OF THE MEDICAL PROFESSION WHO ARE DIRECTLY INVOLVED IN THE TREATMENT OF AND RESEARCH INTO M.E.N.(B) COLLECTING, COLLATING AND DISTRIBUTING APPROPRIATE AND APPROVED INFORMATION.(C) PRODUCING THE CHARITY’S OWN PATIENT-AIMED APPROVED INFORMATION.(2) PROMOTING A WIDER KNOWLEDGE OF THE ILLNESS AMONG THE MEDICAL PROFESSION TO ASSIST IN EARLY AND ACCURATE DIAGNOSIS.(3) PROVIDING RELIABLE AND ACCURATE INFORMATION WITH REGARD TO GENETIC TESTING FOR PEOPLE WITH M.E.N. AND ITS ASSOCIATED FAMILIAL GROWTHS, THEIR FAMILIES, FRIENDS AND CARERS.(4) PROVIDING EMOTIONAL SUPPORT TO PATIENTS, THEIR FAMILIES, FRIENDS AND CARERS IN THE FORM OF CONTACT WITH OTHERS IN SIMILAR SITUATIONS IN ORDER TO FACILITATE THE SHARING OF EXPERIENCES.

**Activities:** AMEND PROVIDES SUPPORT AND INFORMATION TO PATIENTS FAMILIES AND CARERS AFFECTED BY THE RARE GENETIC DISORDERS MULTIPLE ENDOCRINE NEOPLASIA, AS WELL AS TO THOSE WITH ASSOCIATED FAMILIAL AND SPORADIC TUMOURS.  AMEND AIMS TO PROMOTE GREATER KNOWLEDGE OF THE BEST CARE AND MANAGEMENT OF MEN AND ASSOCIATED TUMOUR PATIENTS AMONGST THE MEDICAL PROFESSION.




## Classification

- **How:** Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** People With Disabilities



## Geography

- Northern Ireland
- Scotland
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| Andrew Price |  | Aug. 14, 2021 |
| Dr John Ayuk |  | Aug. 15, 2020 |
| GILL MASTERS |  | Sept. 12, 2013 |
| Graeme Cohen |  | Oct. 29, 2022 |
| Lauren Wheeler ACA |  | Aug. 15, 2024 |
| Miriam Asia |  | Aug. 15, 2020 |
| PROFESSOR KARIM MEERAN |  | Sept. 12, 2013 |
| Robert Millinship |  | Oct. 29, 2022 |
| Sarah Norman |  | Oct. 29, 2022 |
| Shahab Khan |  | Sept. 28, 2023 |




