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2024-09-30-accounts

Registered number: 08229467 Charity number: 1152591

HAEUK

(A company limited by guarantee)

UNAUDITED

TRUSTEES' REPORT AND FINANCIAL STATEMENTS

FOR THE YEAR ENDED 30 SEPTEMBER 2024

HAEUK

(A company limited by guarantee)

CONTENTS

Page
Reference and administrative details of the company, its Trustees and advisers 1
Trustees' report 2 - 6
Independent examiner's report 7
Statement of financial activities 8
Balance sheet 9 - 10
Notes to the financial statements 11 - 21

(A company limited by guarantee)

HAEUK

REFERENCE AND ADMINISTRATIVE DETAILS OF THE COMPANY, ITS TRUSTEES AND ADVISERS FOR THE YEAR ENDED 30 SEPTEMBER 2024

Trustees

Ann Marie Harding, Chair Rosemary Frances Joseph, Treasurer June Cole, Trustee Dr Timothy Crouch, Trustee Barrie Sidney Hurley, Trustee Simon Jeremy Mumford, Trustee Dana Shapiro, Trustee

Company registered number

08229467

Charity registered number

1152591

Registered office

2 Sheridan Close Bridgwater Somerset TA6 5SN

Accountants

GMBC LLP Chartered Tax Advisers and Accountants Marine House 151 Western Road Haywards Heath West Sussex RH16 3LH

Page 1

HAEUK

(A company limited by guarantee)

TRUSTEES' REPORT FOR THE YEAR ENDED 30 SEPTEMBER 2024

The Trustees present their annual report together with the financial statements of the company for 1 October 2023 to 30 September 2024. The Annual report serves the purposes of both a Trustees' report and a directors' report under company law. The Trustees confirm that the Annual report and financial statements of the charitable company comply with the current statutory requirements, the requirements of the charitable company's governing document and the provisions of the Statement of Recommended Practice (SORP) applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102) (effective 1 January 2019).

Since the company qualifies as small under section 382 of the Companies Act 2006, the Strategic report required of medium and large companies under the Companies Act 2006 (Strategic Report and Directors' Report) Regulations 2013 has been omitted.

Objectives and activities

a. Policies and objectives

The main purpose of the charity is to promote and protect the physical and mental health of sufferers of Hereditary Angioedema in the United Kingdom through the provision of support, education and practical advice and to advance the education of the general public in all areas of the condition.

In setting objectives and planning for activities, the Trustees have given due consideration to general guidance published by the Charity Commission relating to public benefit, including the guidance 'Public benefit: running a charity (PB2)'.

b. Activities undertaken to achieve objectives

HAEUK has identified the following activities to promote the achievement of its objectives:

Page 2

(A company limited by guarantee)

HAEUK

TRUSTEES' REPORT (CONTINUED) FOR THE YEAR ENDED 30 SEPTEMBER 2024

Achievements and performance

a. Review of activities

HAEUK was incorporated on 26th September 2012 and registered as a charity in England and Wales on 25 June 2013. The charity has more than 700 patients and carers on its database and continues to provide information, advocacy and support to both them and newly diagnosed patients through its website, through patient contact over the telephone and by providing speakers to attend patient days at individual hospitals. Patients also value the opportunity to share their experiences via the confidential Facebook page.

Continued redevelopment of printed resources was carried out with a reprint order of the Percy the Pufferfish paediatric explainer booklet, together with a number of items of literature supporting the ‘Shared Decision Making’ programme. Additionally, a new leaflet discussing mental health called “HAE and Me” was also published.

The website was updated and renewed over 2024 with many new resources such as downloadable literature, plus videos added to support patients with a diagnosis and to better give a landing page that supplies information for people searching for a possible diagnosis.

The Annual Patient Day was held in York with over 70 delegates attending. Varied speakers including clinicians and patients heard talks about new medications, treatments and current best practice.

HAEUK was represented at regional hospital patient days, at the Immunology and Allergy Nurses Conference, as well as attending the HAEi event in Munich

HAEUK continues to work closely with Genetic Alliance and Rare Disease UK in maintaining a top level dialogue with the Department of Health. The CEO and several trustees attended an event in Parliament organised by Takeda called ‘Been Seen Been Heard’ with a panel discussion raising awareness of HAE.

The Chief Executive Officer (CEO) was formally appointed with responsibilities to the Trustees for the day to day operational management of HAEUK and to take the organisation forward in the context of its Strategic Plan. The CEO continues to represent patient interests on the NHS England Clinical Review Group. The CEO is also on the GRC for immunology and Allergy specification working group and the PPV representative for revised service specifications.

b. Fundraising activities and income generation

The primary source of income remains donations from pharmaceutical companies following submission of the necessary business plans to them. Other funding includes Foundation and members fundraising events.

Financial review

a. Going concern

After making appropriate enquiries, the Trustees have a reasonable expectation that the company has adequate resources to continue in operational existence for the foreseeable future. For this reason, they continue to adopt the going concern basis in preparing the financial statements.

Page 3

(A company limited by guarantee)

HAEUK

TRUSTEES' REPORT (CONTINUED) FOR THE YEAR ENDED 30 SEPTEMBER 2024

b. Reserves policy

It is the policy of the Trustees to maintain a level of reserves sufficient to cover 3 months anticipated expenditure. At 30 September 2024 the level of reserves was consistent with this policy.

c. Principal funding

Donations from pharmaceutical companies remains the primary source of funding. However have secured additional funding from a Foundation Trust.

Page 4

(A company limited by guarantee)

HAEUK

TRUSTEES' REPORT (CONTINUED) FOR THE YEAR ENDED 30 SEPTEMBER 2024

Structure, governance and management

a. Constitution

HAEUK is registered as a charitable company limited by guarantee and was set up by a Memorandum of Association.

It is exempt from the use of the word 'limited'.

b. Methods of appointment or election of Trustees

The management of the company is the responsibility of the Trustees who are elected and co-opted under the terms of the Articles of Association.

Plans for future periods

HAEUK will continue to encourage patients and the wider public to fundraise eg, by way of donations, sponsorship, and regular/payroll giving in order to broaden the scope of its funding sources.

HAEUK will to update/produce a range of policies to formalize its operating arrangements etc; together with developing a secure data storage/filing system.

A comprehensive update of its website will be finalized, including working towards a specific member's only section.

HAEUK will aim to focus more on the needs of children and young people and envisage that volunteers will play an increasing role in this process.

HAEUK is proposing to extend its influence and support to patients in other parts of the United Kingdom.

The trustees will keep HAEUK's 5 Year Strategic Plan under review and updated.

Members' liability

The Members of the company guarantee to contribute an amount not exceeding £1 to the assets of the company in the event of winding up.

Page 5

(A company limited by guarantee)

HAEUK

TRUSTEES' REPORT (CONTINUED) FOR THE YEAR ENDED 30 SEPTEMBER 2024

Statement of Trustees' responsibilities

The Trustees (who are also the directors of the company for the purposes of company law) are responsible for preparing the Trustees' report and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).

Company law requires the Trustees to prepare financial statements for each financial year. Under company law, the Trustees must not approve the financial statements unless they are satisfied that they give a true and fair view of the state of affairs of the company and of its incoming resources and application of resources, including its income and expenditure, for that period. In preparing these financial statements, the Trustees are required to:

The Trustees are responsible for keeping adequate accounting records that are sufficient to show and explain the company's transactions and disclose with reasonable accuracy at any time the financial position of the company and enable them to ensure that the financial statements comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

Approved by order of the members of the board of Trustees on and signed on their behalf by: _______

Ann Harding Ann Harding (Jun 11, 2025 13:04 GMT+1)

Ann Marie Harding (Chair of Trustees)

Page 6

(A company limited by guarantee)

HAEUK

INDEPENDENT EXAMINER'S REPORT FOR THE YEAR ENDED 30 SEPTEMBER 2024

Independent examiner's report to the Trustees of HAEUK ('the company')

I report to the charity Trustees on my examination of the accounts of the company for the year ended 30 September 2024.

Responsibilities and basis of report

As the Trustees of the company (and its directors for the purposes of company law) you are responsible for the preparation of the accounts in accordance with the requirements of the Companies Act 2006 ('the 2006 Act').

Having satisfied myself that the accounts of the company are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of the company's accounts carried out under section 145 of the Charities Act 2011 ('the 2011 Act'). In carrying out my examination I have followed the Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act.

Independent examiner's statement

I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe:

  1. accounting records were not kept in respect of the company as required by section 386 of the 2006 Act; or

  2. the accounts do not accord with those records; or

  3. the accounts do not comply with the accounting requirements of section 396 of the 2006 Act other than any requirement that the accounts give a 'true and fair' view which is not a matter considered as part of an independent examination; or

  4. the accounts have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities [applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)].

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.

This report is made solely to the company's Trustees, as a body, in accordance with Part 4 of the Charities (Accounts and Reports) Regulations 2008. My work has been undertaken so that I might state to the company's Trustees those matters I am required to state to them in an Independent examiner's report and for no other purpose. To the fullest extent permitted by law, I do not accept or assume responsibility to anyone other than the company and the company's Trustees as a body, for my work or for this report.

Signed: Dated:

Graham Hole

GMBC LLP

Chartered Tax Advisers and Accountants Marine House 151 Western Road Haywards Heath West Sussex RH16 3LH

Page 7

(A company limited by guarantee)

HAEUK

STATEMENT OF FINANCIAL ACTIVITIES (INCORPORATING INCOME AND EXPENDITURE ACCOUNT) FOR THE YEAR ENDED 30 SEPTEMBER 2024

Note
Income from:
Donations and legacies
3
Total income
Expenditure on:
Charitable activities
4
Total expenditure
Net movement in funds
Reconciliation of funds:
Total funds brought forward
Net movement in funds
Total funds carried forward
Unrestricted
funds
2024
£
73,100
73,100
129,363
129,363
(56,263)
178,554
(56,263)
122,291
Total
funds
2024
£
73,100
73,100
129,363
129,363
(56,263)
178,554
(56,263)
122,291
Total
funds
2023
£
108,548
108,548
89,031
89,031
19,517
159,037
19,517
178,554

The Statement of financial activities includes all gains and losses recognised in the year.

The notes on pages 11 to 21 form part of these financial statements.

Page 8

HAEUK (A company limited by guarantee) REGISTERED NUMBER: 08229467

BALANCE SHEET AS AT 30 SEPTEMBER 2024

Note
Fixed assets
Tangible assets
8
Current assets
Cash at bank and in hand
Creditors: amounts falling due within one
year
9
Net current assets
Total assets less current liabilities
Total net assets
Charity funds
Restricted funds
11
Unrestricted funds
11
Total funds
125,604
125,604
(5,544)
2024
£
2,231
2,231
120,060
122,291
122,291
-
122,291
122,291
180,868
180,868
(5,102)
2023
£
2,788
2,788
175,766
178,554
178,554
-
178,554
178,554

Page 9

HAEUK

(A company limited by guarantee) REGISTERED NUMBER: 08229467

BALANCE SHEET (CONTINUED) AS AT 30 SEPTEMBER 2024

The company was entitled to exemption from audit under section 477 of the Companies Act 2006.

The members have not required the company to obtain an audit for the year in question in accordance with section 476 of Companies Act 2006.

The Trustees acknowledge their responsibilities for complying with the requirements of the Act with respect to accounting records and preparation of financial statements.

The financial statements have been prepared in accordance with the provisions applicable to entities subject to the small companies regime.

The financial statements were approved and authorised for issue by the Trustees on and signed on their behalf by: _______

Ann Harding Ann Harding (Jun 11, 2025 13:04 GMT+1)

Ann Marie Harding

(Chair of Trustees)

The notes on pages 11 to 21 form part of these financial statements.

Page 10

HAEUK

(A company limited by guarantee)

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2024

1. General information

HAEUK is a private company, limited by guarantee, domiciled in England and Wales, registration number 08229467. The registered charity number is 1152591. The registered office of the company is 2 Sheridan Close, Bridgwater, Somerset, TA6 5SN.

2. Accounting policies

2.1 Basis of preparation of financial statements

The financial statements have been prepared in accordance with the Charities SORP (FRS 102) - Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019), the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) and the Companies Act 2006.

HAEUK meets the definition of a public benefit entity under FRS 102. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy.

2.2 Income

All income is recognised once the company has entitlement to the income, it is probable that the income will be received and the amount of income receivable can be measured reliably.

2.3 Expenditure

Expenditure is recognised once there is a legal or constructive obligation to transfer economic benefit to a third party, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably.

Expenditure is accounted for on an accruals basis and has been included under expense categories that aggregate all costs for allocation to activities.

Expenditure on charitable activities is incurred on directly undertaking the activities which further the company's objectives, as well as any associated support costs.

All expenditure is inclusive of irrecoverable VAT.

Page 11

HAEUK

(A company limited by guarantee)

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2024

2. Accounting policies (continued)

2.4 Tangible fixed assets and depreciation

Tangible fixed assets costing £100 or more are capitalised and recognised when future economic benefits are probable and the cost or value of the asset can be measured reliably.

Tangible fixed assets are initially recognised at cost. After recognition, under the cost model, tangible fixed assets are measured at cost less accumulated depreciation and any accumulated impairment losses. All costs incurred to bring a tangible fixed asset into its intended working condition should be included in the measurement of cost.

Depreciation is charged so as to allocate the cost of tangible fixed assets less their residual value over their estimated useful lives, on a reducing balance basis.

Depreciation is provided on the following basis:

Office equipment - 20%

2.5 Cash at bank and in hand

Cash at bank and in hand includes cash and short-term highly liquid investments with a short maturity of three months or less from the date of acquisition or opening of the deposit or similar account.

2.6 Liabilities and provisions

Liabilities are recognised when there is an obligation at the Balance sheet date as a result of a past event, it is probable that a transfer of economic benefit will be required in settlement, and the amount of the settlement can be estimated reliably.

Liabilities are recognised at the amount that the company anticipates it will pay to settle the debt or the amount it has received as advanced payments for the goods or services it must provide.

Provisions are measured at the best estimate of the amounts required to settle the obligation. Where the effect of the time value of money is material, the provision is based on the present value of those amounts, discounted at the pre-tax discount rate that reflects the risks specific to the liability. The unwinding of the discount is recognised in the Statement of financial activities as a finance cost.

Page 12

(A company limited by guarantee)

HAEUK

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2024

2. Accounting policies (continued)

2.7 Financial instruments

The company only has financial assets and financial liabilities of a kind that qualify as basic financial instruments. Basic financial instruments are initially recognised at transaction value and subsequently measured at their settlement value with the exception of bank loans which are subsequently measured at amortised cost using the effective interest method.

2.8 Fund accounting

General funds are unrestricted funds which are available for use at the discretion of the Trustees in furtherance of the general objectives of the company and which have not been designated for other purposes.

Page 13

(A company limited by guarantee)

HAEUK

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2024

3.
Income from donations and legacies
Unrestricted
funds
2024
£
Donations
CSL Behring
-
The Anderson Foundation
16,500
Takeda UK
-
HAE international
17,428
BioCryst Pharmaceuticals
20,150
University Hospital Birmingham
13,030
Subtotal detailed disclosure
67,108
Donations
5,992
Subtotal
5,992
Total 2024
73,100
Total 2023
108,548
Total
funds
2024
£
-
16,500
-
17,428
20,150
13,030
67,108
5,992
5,992
73,100
108,548
Total
funds
2023
£
35,000
36,500
3,000
11,712
16,500
-
102,712
5,836
5,836
108,548

Page 14

(A company limited by guarantee)

HAEUK

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2024

4. Analysis of expenditure on charitable activities

Summary by fund type

Unrestricted
funds
2024
£
Support and education to help sufferers of Hereditary
Angioedema in the UK
129,363
Total 2023
89,031
Total
2024
£
129,363
89,031
Total
2023
£
89,031

5. Analysis of expenditure by activities

Support and education to help sufferers of
Hereditary Angioedema in the UK
Total 2023
Activities
undertaken
directly
2024
£
39,206
16,367
Support
costs
2024
£
90,157
72,664
Total
funds
2024
£
129,363
89,031
Total
funds
2023
£
89,031

Page 15

HAEUK

(A company limited by guarantee)

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2024

5. Analysis of expenditure by activities (continued)

Analysis of direct costs

Patient survey costs
Virtual patient days
Research into the lived experience of Hereditary Angioedema
Research Immunology Psychology project
Costs of activity-Campaign cost
Total 2024
Total 2023
Activities
2024
£
2,096
1,892
28,738
-
6,480
39,206
16,367
Total
funds
2024
£
2,096
1,892
28,738
-
6,480
39,206
16,367
Total
funds
2023
£
3,055
3,312
-
10,000
-
16,367

Page 16

HAEUK

(A company limited by guarantee)

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2024

5. Analysis of expenditure by activities (continued)

Analysis of support costs

Activities
2024
£
Depreciation
558
Professional fee
-
Communication costs
398
Website costs
5,046
Postage, printing and stationery
2,713
Travel and subsistence
8,684
Subscription costs
1,489
CEO consultancy fees
36,575
EO consultancy fees
15,180
Sundry expenses
316
Insurance
201
Accountancy fees
1,421
Film production
16,605
IT software and consumables
971
Bank fees
-
Design services
-
Total 2024
90,157
Total 2023
72,664
6.
Independent examiner's remuneration
Fees payable to the company's independent examiner for the independent
examination of the company's annual accounts
Fees payable to the company's independent examiner in respect of:
All other services not included above
Total
funds
2024
£
558
-
398
5,046
2,713
8,684
1,489
36,575
15,180
316
201
1,421
16,605
971
-
-
90,157
72,664
2024
£
960
294
Total
funds
2023
£
697
1,200
396
1,172
4,871
11,457
650
34,375
15,180
151
280
1,087
-
884
30
234
72,664
2023
£
870
204

Page 17

(A company limited by guarantee)

HAEUK

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2024

7. Trustees' remuneration and expenses

During the year ended 30 September 2024, no Trustees received any remuneration or other benefits (2023 - £NIL).

During the year ended 30 September 2024, expenses totalling £1441.25 were reimbursed or paid directly to 4 Trustees. The expenses related to travel cost.

8. Tangible fixed assets

Cost or valuation
At 1 October 2023
At 30 September 2024
Depreciation
At 1 October 2023
Charge for the year
At 30 September 2024
Net book value
At 30 September 2024
At 30 September 2023
Office
equipment
£
8,711
8,711
5,923
557
6,480
2,231
2,788

Page 18

(A company limited by guarantee)

HAEUK

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2024

9. Creditors: Amounts falling due within one year

2024 2023
£ £
Accruals and deferred income 5,544 5,102

10. Financial instruments

Financial assets
Financial assets measured at amortised cost
Financial liabilities
Financial liabilities measured at amortised cost
2024
£
125,604
2024
£
5,544
2023
£
180,868
2023
£
5,102

Financial assets measured at amortised cost comprises cash at bank and in hand.

Financial liabilities measured at amortised cost comprises accruals.

Page 19

HAEUK

(A company limited by guarantee)

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2024

11. Statement of funds

Statement of funds - current year

Unrestricted funds
General Funds - all funds
Statement of funds - prior year
Unrestricted funds
General Funds - all funds
Balance at 1
October
2023
£
178,554
Balance at
1 October
2022
£
159,037
Income
£
73,100
Income
£
108,548
Expenditure
£
(129,363)
Expenditure
£
(89,031)
Balance at
30
September
2024
£
122,291
Balance at
30
September
2023
£
178,554

Page 20

HAEUK

(A company limited by guarantee)

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2024

12. Analysis of net assets between funds

Analysis of net assets between funds - current period

Unrestricted
funds
2024
£
Tangible fixed assets
2,231
Current assets
125,604
Creditors due within one year
(5,544)
Total
122,291
Total
funds
2024
£
2,231
125,604
(5,544)
122,291

Analysis of net assets between funds - prior period

Tangible fixed assets
Current assets
Creditors due within one year
Total
Unrestricted
funds
2023
£
2,788
180,868
(5,102)
178,554
Total
funds
2023
£
2,788
180,868
(5,102)
178,554

Page 21

HAEUK 2024 Accounts

Final Audit Report

2025-06-11

Created: 2025-06-10 By: Graham Hole (graham@gmbc.uk) Status: Signed Transaction ID: CBJCHBCAABAAG8OUZNyHbNolfsZrzPmzlxjrl0sJxfQd

"HAEUK 2024 Accounts" History

2025-06-10 - 8:21:27 PM GMT

Document emailed to Ann Harding (ann.harding@haeuk.org) for signature 2025-06-10 - 8:21:31 PM GMT

Agreement completed.

2025-06-11 - 12:04:17 PM GMT