Registered number: 08229467 Charity number: 1152591
HAEUK
(A company limited by guarantee)
UNAUDITED
TRUSTEES' REPORT AND FINANCIAL STATEMENTS
FOR THE YEAR ENDED 30 SEPTEMBER 2022
HAEUK
(A company limited by guarantee)
CONTENTS
| Page | |
|---|---|
| Reference and administrative details of the company, its Trustees and advisers | 1 |
| Trustees' report | 2 - 5 |
| Independent examiner's report | 6 |
| Statement of financial activities | 7 |
| Balance sheet | 8 - 9 |
| Notes to the financial statements | 10 - 20 |
(A company limited by guarantee)
HAEUK
REFERENCE AND ADMINISTRATIVE DETAILS OF THE COMPANY, ITS TRUSTEES AND ADVISERS FOR THE YEAR ENDED 30 SEPTEMBER 2022
Trustees
Ann Marie Harding, Chair Rosemary Frances Joseph, Treasurer June Cole, Trustee Dr Timothy Crouch, Trustee Barrie Sidney Hurley, Trustee Simon Jeremy Mumford, Trustee (appointed 19 November 2021) Dana Shapiro, Trustee
Company registered number
08229467
Charity registered number
1152591
Registered office
2 Sheridan Close Bridgwater Somerset TA6 5SN
Accountants
GMBC LLP Chartered Tax Advisers and Accountants Marine House 151 Western Road Haywards Heath West Sussex RH16 3LH
Page 1
HAEUK
(A company limited by guarantee)
TRUSTEES' REPORT FOR THE YEAR ENDED 30 SEPTEMBER 2022
The Trustees present their annual report together with the financial statements of the company for 1 October 2021 to 30 September 2022. The Annual report serves the purposes of both a Trustees' report and a directors' report under company law. The Trustees confirm that the Annual report and financial statements of the charitable company comply with the current statutory requirements, the requirements of the charitable company's governing document and the provisions of the Statement of Recommended Practice (SORP) applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102) (effective 1 January 2019).
Since the company qualifies as small under section 382 of the Companies Act 2006, the Strategic report required of medium and large companies under the Companies Act 2006 (Strategic Report and Directors' Report) Regulations 2013 has been omitted.
Objectives and activities
a. Policies and objectives
The main purpose of the charity is to promote and protect the physical and mental health of sufferers of Hereditary Angioedema in the United Kingdom through the provision of support, education and practical advice and to advance the education of the general public in all areas of the condition.
In setting objectives and planning for activities, the Trustees have given due consideration to general guidance published by the Charity Commission relating to public benefit, including the guidance 'Public benefit: running a charity (PB2)'.
b. Activities undertaken to achieve objectives
HAEUK has identified the following activities to promote the achievement of its objectives:
-
. To ensure the UK has the highest possible standards of treatment for HAE
-
. To provide patient advocacy and support, arranging periodic Patient Meetings, and maintaining and enhancing the website.
-
. To make representations on various NHS consultation processes and to medical professionals and their professional bodies.
-
. To commission the production and dissemination of best practice documentation for the management of HAE, including advancing training of medical professionals specifically in recognition and treatment of HAE.
Page 2
(A company limited by guarantee)
HAEUK
TRUSTEES' REPORT (CONTINUED) FOR THE YEAR ENDED 30 SEPTEMBER 2022
Achievements and performance
a. Review of activities
HAEUK was incorporated on 26th September 2012 and registered as a charity in England and Wales on 25 June 2013. The charity has more than 700 patients on its database and continues to provide information, advocacy and support to both them and newly diagnosed patients through its website, through patient contact over the telephone and by providing speakers to attend patient days at individual hospitals. Patients also value the opportunity to share their experiences via the confidential Facebook page.
Patient day is booked for 20 May 2023 and intend to continue moving forward.
The 24/7 helpline which provides advice and information via phone, e-mail and social media became an invaluable source of information for patients, whether newly diagnosed, enquiring or needing ongoing support. The website was regularly updated with news and information on new medications, best practices and with advice and support for patients.
Phone calls increased greatly with most contact from patients requiring either moral support, advice for identification of HAE or for reassessment, and in many cases were simply for a patient to be able to be listened to and heard. There were many incidents of medication availability and we were able in some cases to make contact with the local NHS commissioning pharmacy to realign home delivery.
b. Fundraising activities and income generation
The primary source of income remains donations from pharmaceutical companies and the Anderson Foundation following submission of the necessary business plans to them. Individual members have undertaken fundraising activities of their own.
Financial review
a. Going concern
After making appropriate enquiries, the Trustees have a reasonable expectation that the company has adequate resources to continue in operational existence for the foreseeable future. For this reason, they continue to adopt the going concern basis in preparing the financial statements.
b. Reserves policy
It is the policy of the Trustees to maintain a level of reserves sufficient to cover 3 months anticipated expenditure. At 30 September 2022 the level of reserves was consistent wiht this policy.
c. Principal funding
Donations from pharmaceutical companies remain the primary source of funding.
Page 3
(A company limited by guarantee)
HAEUK
TRUSTEES' REPORT (CONTINUED) FOR THE YEAR ENDED 30 SEPTEMBER 2022
Structure, governance and management
a. Constitution
HAEUK is registered as a charitable company limited by guarantee and was set up by a Memorandum of Association.
It is exempt from the use of the word 'limited'.
b. Methods of appointment or election of Trustees
The management of the company is the responsibility of the Trustees who are elected and co-opted under the terms of the Articles of Association.
Plans for future periods
HAEUK will continue to encourage patients and the wider public to fundraise, eg, by way of donations, sponsorship, and regular/payroll giving in order to broaden the scope of its funding sources.
HAEUK will continue to update/produce a range of policies to formalise its operating arrangements etc; together with developing a secure data storage/filing system. . The feasibility of funding research projects for the benefit of patients will be investigated.
A continued development plan for the website to ensure dissemination of current information and support.
HAEUK will aim to focus more on the needs of children and young people and envisage that volunteers will play an increasing role in this process.
HAEUK is proposing to extend its influence and support to patients in other parts of the United Kingdom.
The trustees will keep HAEUK's 5 Year Strategic Plan under review and updated.
Members' liability
The Members of the company guarantee to contribute an amount not exceeding £1 to the assets of the company in the event of winding up.
Page 4
(A company limited by guarantee)
HAEUK
TRUSTEES' REPORT (CONTINUED) FOR THE YEAR ENDED 30 SEPTEMBER 2022
Statement of Trustees' responsibilities
The Trustees (who are also the directors of the company for the purposes of company law) are responsible for preparing the Trustees' report and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).
Company law requires the Trustees to prepare financial statements for each financial year. Under company law, the Trustees must not approve the financial statements unless they are satisfied that they give a true and fair view of the state of affairs of the company and of its incoming resources and application of resources, including its income and expenditure, for that period. In preparing these financial statements, the Trustees are required to:
-
select suitable accounting policies and then apply them consistently;
-
observe the methods and principles of the Charities SORP (FRS 102);
-
make judgments and accounting estimates that are reasonable and prudent;
-
state whether applicable UK Accounting Standards (FRS 102) have been followed, subject to any material departures disclosed and explained in the financial statements;
-
prepare the financial statements on the going concern basis unless it is inappropriate to presume that the company will continue in business.
The Trustees are responsible for keeping adequate accounting records that are sufficient to show and explain the company's transactions and disclose with reasonable accuracy at any time the financial position of the company and enable them to ensure that the financial statements comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.
Approved by order of the members of the board of Trustees on 9 June 2023 and signed on their behalf by:
Ann Marie Harding
(Chair of Trustees)
Page 5
(A company limited by guarantee)
HAEUK
INDEPENDENT EXAMINER'S REPORT FOR THE YEAR ENDED 30 SEPTEMBER 2022
Independent examiner's report to the Trustees of HAEUK ('the company')
I report to the charity Trustees on my examination of the accounts of the company for the year ended 30 September 2022.
Responsibilities and basis of report
As the Trustees of the company (and its directors for the purposes of company law) you are responsible for the preparation of the accounts in accordance with the requirements of the Companies Act 2006 ('the 2006 Act').
Having satisfied myself that the accounts of the company are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of the company's accounts carried out under section 145 of the Charities Act 2011 ('the 2011 Act'). In carrying out my examination I have followed the Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act.
Independent examiner's statement
I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe:
-
accounting records were not kept in respect of the company as required by section 386 of the 2006 Act; or
-
the accounts do not accord with those records; or
-
the accounts do not comply with the accounting requirements of section 396 of the 2006 Act other than any requirement that the accounts give a 'true and fair' view which is not a matter considered as part of an independent examination; or
-
the accounts have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities [applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)].
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
This report is made solely to the company's Trustees, as a body, in accordance with Part 4 of the Charities (Accounts and Reports) Regulations 2008. My work has been undertaken so that I might state to the company's Trustees those matters I am required to state to them in an Independent examiner's report and for no other purpose. To the fullest extent permitted by law, I do not accept or assume responsibility to anyone other than the company and the company's Trustees as a body, for my work or for this report.
Signed: Dated: 12 June 2023 Tina Pearce
GMBC LLP
Chartered Tax Advisers and Accountants Marine House 151 Western Road Haywards Heath West Sussex RH16 3LH
Page 6
(A company limited by guarantee)
HAEUK
STATEMENT OF FINANCIAL ACTIVITIES (INCORPORATING INCOME AND EXPENDITURE ACCOUNT) FOR THE YEAR ENDED 30 SEPTEMBER 2022
| Note Income from: Donations and legacies 3 Total income Expenditure on: Raising funds 4 Charitable activities 5 Total expenditure Net movement in funds Reconciliation of funds: Total funds brought forward Net movement in funds Total funds carried forward |
Unrestricted funds 2022 £ 95,158 95,158 200 88,565 88,765 6,393 152,644 6,393 159,037 |
Total funds 2022 £ 95,158 95,158 200 88,565 88,765 6,393 152,644 6,393 159,037 |
Total funds 2021 £ 69,379 |
|---|---|---|---|
| 69,379 | |||
| - 60,527 |
|||
| 60,527 | |||
| 8,852 | |||
| 143,792 8,852 |
|||
| 152,644 |
The Statement of financial activities includes all gains and losses recognised in the year.
The notes on pages 10 to 20 form part of these financial statements.
Page 7
HAEUK (A company limited by guarantee) REGISTERED NUMBER: 08229467
BALANCE SHEET AS AT 30 SEPTEMBER 2022
| Note Fixed assets Tangible assets 9 Current assets Debtors 10 Cash at bank and in hand Creditors: amounts falling due within one year 11 Net current assets Total assets less current liabilities Total net assets Charity funds Restricted funds 13 Unrestricted funds 13 Total funds |
1,362 161,079 162,441 (5,102) |
2022 £ 1,698 1,698 157,339 159,037 159,037 - 159,037 159,037 |
- 156,103 156,103 (5,581) |
2021 £ 2,122 |
|---|---|---|---|---|
| 2,122 150,522 |
||||
| 152,644 | ||||
| 152,644 | ||||
| - 152,644 |
||||
| 152,644 |
Page 8
HAEUK
(A company limited by guarantee) REGISTERED NUMBER: 08229467
BALANCE SHEET (CONTINUED) AS AT 30 SEPTEMBER 2022
The company was entitled to exemption from audit under section 477 of the Companies Act 2006.
The members have not required the company to obtain an audit for the year in question in accordance with section 476 of Companies Act 2006.
The Trustees acknowledge their responsibilities for complying with the requirements of the Act with respect to accounting records and preparation of financial statements.
The financial statements have been prepared in accordance with the provisions applicable to entities subject to the small companies regime.
The financial statements were approved and authorised for issue by the Trustees on 09 June 2023 and signed on their behalf by:
Ann Marie Harding
(Chair of Trustees)
The notes on pages 10 to 20 form part of these financial statements.
Page 9
HAEUK
(A company limited by guarantee)
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2022
1. General information
HAEUK is a private company, limited by guarantee, domiciled in England and Wales, registration number 08229467. The registered charity number is 1152591. The registered office of the company is 2 Sheridan Close, Bridgwater, Somerset, TA6 5SN.
2. Accounting policies
2.1 Basis of preparation of financial statements
The financial statements have been prepared in accordance with the Charities SORP (FRS 102) - Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019), the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) and the Companies Act 2006.
HAEUK meets the definition of a public benefit entity under FRS 102. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy.
2.2 Income
All income is recognised once the company has entitlement to the income, it is probable that the income will be received and the amount of income receivable can be measured reliably.
2.3 Expenditure
Expenditure is recognised once there is a legal or constructive obligation to transfer economic benefit to a third party, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably.
Expenditure is accounted for on an accruals basis and has been included under expense categories that aggregate all costs for allocation to activities.
Expenditure on raising funds includes all expenditure incurred by the company to raise funds for its charitable purposes and includes costs of all fundraising activities events and non-charitable trading.
Expenditure on charitable activities is incurred on directly undertaking the activities which further the company's objectives, as well as any associated support costs.
All expenditure is inclusive of irrecoverable VAT.
Page 10
HAEUK
(A company limited by guarantee)
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2022
2. Accounting policies (continued)
2.4 Tangible fixed assets and depreciation
Tangible fixed assets costing £100 or more are capitalised and recognised when future economic benefits are probable and the cost or value of the asset can be measured reliably.
Tangible fixed assets are initially recognised at cost. After recognition, under the cost model, tangible fixed assets are measured at cost less accumulated depreciation and any accumulated impairment losses. All costs incurred to bring a tangible fixed asset into its intended working condition should be included in the measurement of cost.
Depreciation is charged so as to allocate the cost of tangible fixed assets less their residual value over their estimated useful lives, on a reducing balance basis.
Depreciation is provided on the following basis:
Office equipment - 20%
2.5 Debtors
Trade and other debtors are recognised at the settlement amount after any trade discount offered. Prepayments are valued at the amount prepaid net of any trade discounts due.
2.6 Cash at bank and in hand
Cash at bank and in hand includes cash and short-term highly liquid investments with a short maturity of three months or less from the date of acquisition or opening of the deposit or similar account.
2.7 Liabilities and provisions
Liabilities are recognised when there is an obligation at the Balance sheet date as a result of a past event, it is probable that a transfer of economic benefit will be required in settlement, and the amount of the settlement can be estimated reliably.
Liabilities are recognised at the amount that the company anticipates it will pay to settle the debt or the amount it has received as advanced payments for the goods or services it must provide.
Provisions are measured at the best estimate of the amounts required to settle the obligation. Where the effect of the time value of money is material, the provision is based on the present value of those amounts, discounted at the pre-tax discount rate that reflects the risks specific to the liability. The unwinding of the discount is recognised in the Statement of financial activities as a finance cost.
Page 11
(A company limited by guarantee)
HAEUK
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2022
2. Accounting policies (continued)
2.8 Financial instruments
The company only has financial assets and financial liabilities of a kind that qualify as basic financial instruments. Basic financial instruments are initially recognised at transaction value and subsequently measured at their settlement value with the exception of bank loans which are subsequently measured at amortised cost using the effective interest method.
2.9 Fund accounting
General funds are unrestricted funds which are available for use at the discretion of the Trustees in furtherance of the general objectives of the company and which have not been designated for other purposes.
Page 12
(A company limited by guarantee)
HAEUK
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2022
| 3. Income from donations and legacies Unrestricted funds 2022 £ Donations CSL Behring 36,500 The Anderson Foundation 35,125 Takeda UK 10,000 HAE international 7,669 BioCryst Pharmaceuticals 500 Pharming Pharmaceuticals - Innospec - Subtotal detailed disclosure 89,794 Donations 5,364 Subtotal 5,364 Total 2022 95,158 Total 2021 69,379 |
Total funds 2022 £ 36,500 35,125 10,000 7,669 500 - - 89,794 5,364 5,364 95,158 69,379 |
Total funds 2021 £ 44,000 - - 5,299 2,500 3,900 3,592 |
|---|---|---|
| 59,291 | ||
| 10,088 | ||
| 10,088 | ||
| 69,379 | ||
4. Expenditure on raising funds Costs of raising voluntary income
| Unrestricted | Total | Total | |
|---|---|---|---|
| funds | funds | funds | |
| 2022 | 2022 | 2021 | |
| £ | £ | £ | |
| Quiz days expenses | 200 | 200 | - |
Page 13
(A company limited by guarantee)
HAEUK
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2022
5. Analysis of expenditure on charitable activities
Summary by fund type
| Unrestricted funds 2022 £ Support and education to help sufferers of Hereditary Angioedema in the UK 88,565 Total 2021 60,527 |
Total 2022 £ 88,565 60,527 |
Total 2021 £ 60,527 |
|---|---|---|
6. Analysis of expenditure by activities
| Support and education to help sufferers of Hereditary Angioedema in the UK Total 2021 |
Activities undertaken directly 2022 £ 34,893 4,604 |
Support costs 2022 £ 53,671 55,923 |
Total funds 2022 £ 88,564 60,527 |
Total funds 2021 £ 60,527 |
|---|---|---|---|---|
Page 14
HAEUK
(A company limited by guarantee)
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2022
6. Analysis of expenditure by activities (continued)
Analysis of direct costs
| Patient survey costs Patient ad boards Virtual patient days Research into the lived experience of Hereditary Angioedema Research Immunology Psychology project Total 2022 Total 2021 |
Activities 2022 £ 4,349 800 - 9,744 20,000 34,893 4,604 |
Total funds 2022 £ 4,349 800 - 9,744 20,000 34,893 4,604 |
Total funds 2021 £ - - 4,604 - - |
|---|---|---|---|
| 4,604 | |||
Page 15
HAEUK
(A company limited by guarantee)
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2022
6. Analysis of expenditure by activities (continued)
Analysis of support costs
| Activities 2022 £ Depreciation 424 Communication costs 341 Website costs 1,507 Postage, printing and stationery 428 Travel and subsistence 311 Subscription costs 578 CEO consultancy fees 33,000 EO consultancy fees 14,145 Sundry expenses 336 Hoodies, T shirts, wristbands - Insurance 280 Accountancy fees 1,087 IT software and consumables 1,217 Bank fees 17 Design services - Total 2022 53,671 Total 2021 55,923 7. Independent examiner's remuneration Fees payable to the company's independent examiner for the independent examination of the company's annual accounts Fees payable to the company's independent examiner in respect of: All other services not included above |
Total funds 2022 £ 424 341 1,507 428 311 578 33,000 14,145 336 - 280 1,087 1,217 17 - 53,671 55,923 2022 £ 870 204 |
Total funds 2021 £ 531 315 1,170 1,233 - 266 33,000 13,800 958 592 280 841 2,508 2 427 |
|---|---|---|
| 55,923 | ||
| 2021 £ 780 48 |
Page 16
HAEUK
(A company limited by guarantee)
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2022
8. Trustees' remuneration and expenses
During the year, no Trustees received any remuneration or other benefits (2021 - £NIL) .
During the year ended 30 September 2022, expenses totalling £ NIL were reimbursed or paid directly to Trustee (2021 - £NIL to Trustee) . The expenses incurred related to travel costs.
9. Tangible fixed assets
| Cost or valuation At 1 October 2021 At 30 September 2022 Depreciation At 1 October 2021 Charge for the year At 30 September 2022 Net book value At 30 September 2022 At 30 September 2021 |
Office equipment £ 6,924 |
|---|---|
| 6,924 | |
| 4,801 425 |
|
| 5,226 | |
| 1,698 | |
| 2,122 |
10. Debtors
| Due within one year Prepayments and accrued income |
2022 £ 1,362 1,362 |
2021 £ - - |
|---|---|---|
Page 17
(A company limited by guarantee)
HAEUK
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2022
11. Creditors: Amounts falling due within one year
| Accruals and deferred income Financial instruments Financial assets Financial assets measured at amortised cost Financial liabilities Financial liabilities measured at amortised cost |
2022 £ 5,102 2022 £ 161,079 2022 £ (5,102) |
2021 £ 5,581 2021 £ 156,103 2021 £ (5,581) |
|---|---|---|
12. Financial instruments
Financial assets measured at amortised cost comprises cash at bank and in hand.
Financial liabilities measured at amortised cost comprises accruals.
Page 18
(A company limited by guarantee)
HAEUK
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2022
13. Statement of funds
| Statement of funds - current year Unrestricted funds General Funds Statement of funds - prior year Unrestricted funds General Funds |
Balance at 1 October 2021 £ 152,644 Balance at 1 October 2020 £ 143,792 |
Income £ 95,158 Income £ 69,379 |
Expenditure £ (88,765) Expenditure £ (60,527) |
Balance at 30 September 2022 £ 159,037 |
|---|---|---|---|---|
| Balance at 30 September 2021 £ 152,644 |
Page 19
HAEUK
(A company limited by guarantee)
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2022
14. Analysis of net assets between funds
Analysis of net assets between funds - current year
| Unrestricted funds 2022 £ Tangible fixed assets 1,698 Current assets 162,441 Creditors due within one year (5,102) Total 159,037 |
Total funds 2022 £ 1,698 162,441 (5,102) 159,037 |
|---|---|
Analysis of net assets between funds - prior year
| Tangible fixed assets Current assets Creditors due within one year Total |
Unrestricted funds 2021 £ 2,122 156,103 (5,581) 152,644 |
Total funds 2021 £ 2,122 156,103 (5,581) 152,644 |
|---|---|---|
Page 20