**Registered number: 08229467 Charity number: 1152591** 

## **HAEUK** 

**(A company limited by guarantee)** 

## **UNAUDITED** 

**TRUSTEES' REPORT AND FINANCIAL STATEMENTS** 

**FOR THE YEAR ENDED 30 SEPTEMBER 2020** 



## **HAEUK** 

## **(A company limited by guarantee)** 

## **CONTENTS** 

||Page|
|---|---|
|**Reference and administrative details of the company, its Trustees and advisers**|1|
|**Trustees' report**|2 - 6|
|**Independent examiner's report**|7|
|**Statement of financial activities**|8|
|**Balance sheet**|9 - 10|
|**Notes to the financial statements**|11 - 20|





**HAEUK** 

**(A company limited by guarantee)** 

## **REFERENCE AND ADMINISTRATIVE DETAILS OF THE COMPANY, ITS TRUSTEES AND ADVISERS FOR THE YEAR ENDED 30 SEPTEMBER 2020** 

## **Trustees** 

Ann Marie Harding, Chairman Rosemary Frances Joseph, Treasurer Dr Timothy Crouch, Trustee Barrie Sidney Hurley, Trustee Samantha Jane Oxley, Treasurer (resigned 28 January 2021) Thomas Oliver Pickering, Trustee (resigned 28 January 2021) Edward George Thomas Price, Trustee Dana Shapiro, Trustee 

## **Company registered number** 

08229467 

## **Charity registered number** 

1152591 

## **Registered office** 

2 Sheridan Close Bridgwater Somerset TA6 5SN 

## **Accountants** 

Brian Cook Associates Chartered Tax Advisers and Accountants Marine House 151 Western Road Haywards Heath West Sussex RH16 3LH 

Page 1 



**HAEUK** 

**(A company limited by guarantee)** 

## **TRUSTEES' REPORT FOR THE YEAR ENDED 30 SEPTEMBER 2020** 

The Trustees present their annual report together with the financial statements of the company for 1 October 2019 to 30 September 2020. The Annual report serves the purposes of both a Trustees' report and a directors' report under company law. The Trustees confirm that the Annual report and financial statements of the charitable company comply with the current statutory requirements, the requirements of the charitable company's governing document and the provisions of the Statement of Recommended Practice (SORP) applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102) (effective 1 January 2019). 

Since the company qualifies as small under section 382 of the Companies Act 2006, the Strategic report required of medium and large companies under the Companies Act 2006 (Strategic Report and Directors' Report) Regulations 2013 has been omitted. 

## **Objectives and activities** 

## **a. Policies and objectives** 

The main purpose of the charity is to promote and protect the physical and mental health of sufferers of Hereditary Angioedema in the United Kingdom through the provision of support, education and practical advice and to advance the education of the general public in all areas of the condition. 

In setting objectives and planning for activities, the Trustees have given due consideration to general guidance published by the Charity Commission relating to public benefit, including the guidance 'Public benefit: running a charity (PB2)'. 

## **b. Activities undertaken to achieve objectives** 

HAEUK has identified the following activities to promote the achievement of its objectives: 

- . To ensure the UK has the highest possible standards of treatment for HAE 

- . To provide patient advocacy and support, arranging periodic Patient Meetings, and maintaining and enhancing the website. 

- . To make representations on various NHS consultation processes and to medical professionals and their professional bodies. 

- . To commission the production and dissemination of best practice documentation for the management of HAE, including advancing training of medical professionals specifically in recognition and treatment of HAE. 

Page 2 



**HAEUK** 

**(A company limited by guarantee)** 

## **TRUSTEES' REPORT (CONTINUED) FOR THE YEAR ENDED 30 SEPTEMBER 2020** 

## **Achievements and performance** 

## **a. Review of activities** 

HAEUK was incorporated on 26th September 2012 and registered as a charity in England and Wales on 25 June 2013. It has more than 680 patients on its database and continues to provide information, advocacy and support to both them and newly diagnosed patients through its website, through patient contact over the telephone and by providing speakers to attend patient days at individual hospitals. Patients continue to value the opportunity to share their experiences via the confidential Facebook page. 

Various policies and publications were produced/updated, including the availability of HAE A&E Cards for individual patients, updating patient literature to reflect developments in treatment, revisions and additions to the website, publication of regular newsletters, regular engagement with patients via social medi etc. 

The HAEUK Annual Patient Day 2019 was held in Manchester on 23rd November 2019 with around 100 people attending, including  consultant immunologists and specialist nurses,The presenters were drawn mainly from the local Immunology Centres, but also some of our Medical Advisory Panel assisted. Presentations included the optimum management of HAE, home therapy and quality of life issues, as well as a forum for patients to discuss current issues around their personal HAE management plans. 

HAE UK Annual Scottish Patient Day 2019 was held in Glasgow on 2nd November 2019. More than 50 delegates attended, together with consultant immunologists and specialist nurses. There were presentations covering a range of treatment issues, as well as a number of patient stories. 

HAEUK was represented at the UK PIN Conference held in Liverpool, but sadly the usual conferences planned for in 2020 were cancelled owing to Covid 19, including the biennial HAE International Conference. This was however replaced with a very successful ‘virtual’ conference. 

The HAEUK 'Youth Ambassadors’ assisted at the Patient Day by running specific workshops for young members, and also maintained contact with younger members via Facebook, Whatsapp etc. 

## COVID response 

The Covid 19 pandemic and subsequent ‘lockdowns’ caused us to have to redress our plans for face-to-face meetings and activities. Our first task was to inform and reassure patients with advice from the Medical Advisory Panel and the HAE Clinical Network which we kept updated as more information about the virus became available. Fortunately, the advice was that those with HAE (and no other underlying conditions) were no more liable to contract Coronavirus, nor to have worse outcomes if they did contract it, than people who do not have HAE. We kept our members informed by email, our social media channels and publishing updates on a dedicated page on our website. 

In order to keep in contact with patients and to attempt to raise morale, we took out a Zoom contract and have run various virtual meetings ranging from fun quizzes to presentations by some of our clinicians. For HAE Day we ran a fancy dress competition and we also had competitions for younger members. 

We have also maintained the 24/7 help line and provided advice and information via phone, e-mail and social media 

HAEUK works closely with Genetic Alliance and Rare Disease UK in maintaining a top-level dialogue with the Department of Health. In this context, the Chief Executive Officer continued to work with health care professionals in the NHS, nationally and locally, to facilitate the wellbeing of patients and their continued access to appropriate medication. HAE UK also provided input to NICE and the Scottis Medicines Consortium in order to inform the eventual addition of a new medication, lanadelumab, to the commissioned and funded treatments available for treatment of HAE. 

Page 3 



**(A company limited by guarantee)** 

## **HAEUK** 

## **TRUSTEES' REPORT (CONTINUED) FOR THE YEAR ENDED 30 SEPTEMBER 2020** 

## **Achievements and performance (continued)** 

The Executive Officer continued to maintain the Google Drive secure data storage/filing system to facilitate the safe keeping of policies, minutes and other documentation. 

A comprehensive update of the HAE UK website was completed in 2018 to help better present information about Hereditary Angioedema and this has been under continual review and editing. 

HAE UK is a member of HAE International and the Executive Officer is a member of the Board of Directors for HAEi. HAE UK participated in International HAE Awareness Day on 16th May 2020 by encouraging members to take part in the HAEi global walk and sharing a selfie of themselves walking on social media with the hashtag #7daysofhae. We also held ‘Silly Saturday’ with members sharing photos of themselves wearing creative or silly clothes or a hat, to show each other having fun during the difficult time. On the Saturday evening we also held a quiz via zoom, with individuals and family groups taking part. These activities helped us to stay connected with the wider HAE community and to raise awareness generally.. 

## **b. Fundraising activities and income generation** 

The primary source of income remains donations from pharmaceutical companies following submission of the necessary business plans to them. Individual members have undertaken fundraising activities of their own. 

## **Financial review** 

## **a. Going concern** 

After making appropriate enquiries, the Trustees have a reasonable expectation that the company has adequate resources to continue in operational existence for the foreseeable future. For this reason, they continue to adopt the going concern basis in preparing the financial statements. Further details regarding the adoption of the going concern basis can be found in the accounting policies. 

## **b. Principal funding** 

Donations from pharmaceutical companies remain the primary source of funding. 

## **Structure, governance and management** 

## **a. Constitution** 

HAEUK is registered as a charitable company limited by guarantee and was set up by a Memorandum of Association. 

It is exempt from the use of the word 'limited'. 

## **b. Methods of appointment or election of Trustees** 

The management of the company is the responsibility of the Trustees who are elected and co-opted under the terms of the Articles of Association. 

Page 4 



**(A company limited by guarantee)** 

## **HAEUK** 

## **TRUSTEES' REPORT (CONTINUED) FOR THE YEAR ENDED 30 SEPTEMBER 2020** 

## **Plans for future periods** 

HAEUK will continue to encourage patients and the public to fundraise, through JustGiving or other means, eg, donations, sponsorship, regular/payroll giving, in order to broaden the scope of its funding sources. 

HAEUK will continue to update/produce a range of policies to formalise its operating arrangements. The feasibility of funding research projects for the benefit of patients will be investigated. 

The Youth Ambassador will continue to assist HAEUK to focus more on the needs of children and young people, including meetings and producing appropriate literature for schools, travel, etc. 

HAEUK will continue to expand its influence and support to patients in Scotland and other parts of the United Kingdom. 

There have been some benefits from the Coronavirus pandemic in that we have improved our virtual comms and these will be maintained as a valuable addition to our services to patients. 

## **Members' liability** 

The Members of the company guarantee to contribute an amount not exceeding £1 to the assets of the company in the event of winding up. 

Page 5 



**(A company limited by guarantee)** 

## **HAEUK** 

## **TRUSTEES' REPORT (CONTINUED) FOR THE YEAR ENDED 30 SEPTEMBER 2020** 

## **Statement of Trustees' responsibilities** 

The Trustees (who are also the directors of the company for the purposes of company law) are responsible for preparing the Trustees' report and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice). 

Company law requires the Trustees to prepare financial statements for each financial year. Under company law, the Trustees must not approve the financial statements unless they are satisfied that they give a true and fair view of the state of affairs of the company and of its incoming resources and application of resources, including its income and expenditure, for that period. In preparing these financial statements, the Trustees are required to: 

- select suitable accounting policies and then apply them consistently; 

- observe the methods and principles of the Charities SORP (FRS 102); 

- make judgments and accounting estimates that are reasonable and prudent; 

- state whether applicable UK Accounting Standards (FRS 102) have been followed, subject to any material departures disclosed and explained in the financial statements; 

- prepare the financial statements on the going concern basis unless it is inappropriate to presume that the company will continue in business. 

The Trustees are responsible for keeping adequate accounting records that are sufficient to show and explain the company's transactions and disclose with reasonable accuracy at any time the financial position of the company and enable them to ensure that the financial statements comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities. 

Approved by order of the members of the board of Trustees on 24 June 2021 and signed on their behalf by: 

**Ann Marie Harding** Chairman 

Page 6 



**(A company limited by guarantee)** 

## **HAEUK** 

## **INDEPENDENT EXAMINER'S REPORT FOR THE YEAR ENDED 30 SEPTEMBER 2020** 

## **Independent examiner's report to the Trustees of HAEUK ('the company')** 

I report to the charity Trustees on my examination of the accounts of the company for the year ended 30 September 2020. 

## **Responsibilities and basis of report** 

As the Trustees of the company (and its directors for the purposes of company law) you are responsible for the preparation of the accounts in accordance with the requirements of the Companies Act 2006 ('the 2006 Act'). 

Having satisfied myself that the accounts of the company are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of the company's accounts carried out under section 145 of the Charities Act 2011 ('the 2011 Act'). In carrying out my examination I have followed the Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act. 

## **Independent examiner's statement** 

I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe: 

1. accounting records were not kept in respect of the company as required by section 386 of the 2006 Act; or 

2. the accounts do not accord with those records; or 

3. the accounts do not comply with the accounting requirements of section 396 of the 2006 Act other than any requirement that the accounts give a 'true and fair' view which is not a matter considered as part of an independent examination; or 

4. the accounts have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities [applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)]. 

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached. 

This report is made solely to the company's Trustees, as a body, in accordance with Part 4 of the Charities (Accounts and Reports) Regulations 2008. My work has been undertaken so that I might state to the company's Trustees those matters I am required to state to them in an Independent examiner's report and for no other purpose. To the fullest extent permitted by law, I do not accept or assume responsibility to anyone other than the company and the company's Trustees as a body, for my work or for this report. 

Signed: Dated: 28 June 2021 Brian T Cook FCA 

## **Brian Cook Associates** 

Chartered Tax Advisers and Accountants Marine House 151 Western Road Haywards Heath West Sussex RH16 3LH 

Page 7 



**(A company limited by guarantee)** 

## **HAEUK** 

## **STATEMENT OF FINANCIAL ACTIVITIES (INCORPORATING INCOME AND EXPENDITURE ACCOUNT) FOR THE YEAR ENDED 30 SEPTEMBER 2020** 

|**Note**<br>**Income from:**<br>Donations and legacies<br>3<br>Other trading activities<br>4<br>**Total income**<br>**Expenditure on:**<br>Raising funds<br>5<br>Charitable activities<br>7<br>**Total expenditure**<br>**Net movement in funds**<br>**Reconciliation of funds:**<br>Total funds brought forward<br>Net movement in funds<br>**Total funds carried forward**|**Unrestricted**<br>**funds**<br>**2020**<br>**£**<br>**57,169**<br>**746**<br>**57,915**<br>**-**<br>**76,433**<br>**76,433**<br>**(18,518)**<br>**162,310**<br>**(18,518)**<br>**143,792**|**Total**<br>**funds**<br>**2020**<br>**£**<br>**57,169**<br>**746**<br>**57,915**<br>**-**<br>**76,433**<br>**76,433**<br>**(18,518)**<br>**162,310**<br>**(18,518)**<br>**143,792**|_Total_<br>_funds_<br>_2019_<br>_£_<br>_77,145_<br>_-_<br>_77,145_<br>_152_<br>_78,003_<br>_78,155_<br>_(1,010)_<br>_163,320_<br>_(1,010)_<br>_162,310_|
|---|---|---|---|



The Statement of financial activities includes all gains and losses recognised in the year. 

The notes on pages 11 to 20 form part of these financial statements. 

Page 8 



## **HAEUK (A company limited by guarantee) REGISTERED NUMBER: 08229467** 

## **BALANCE SHEET AS AT 30 SEPTEMBER 2020** 

|**Note**<br>**Fixed assets**<br>Tangible assets<br>11<br>**Current assets**<br>Debtors<br>12<br>Cash at bank and in hand<br>Creditors: amounts falling due within one<br>year<br>13<br>**Net current assets**<br>**Total assets less current liabilities**<br>**Total net assets**<br>**Charity funds**<br>Restricted funds<br>15<br>Unrestricted funds<br>15<br>**Total funds**|**-**<br>**145,878**<br>**145,878**<br>**(4,739)**|**2020**<br>**£**<br>**2,653**<br>**2,653**<br>**141,139**<br>**143,792**<br>**143,792**<br>**-**<br>**143,792**<br>**143,792**|_700_<br>_163,405_<br>_164,105_<br>_(4,043)_|_2019_<br>_£_<br>_2,248_|
|---|---|---|---|---|
|||||_2,248_<br>_160,062_|
|||||_162,310_|
||||||
|||||_162,310_|
|||||_-_<br>_162,310_|
||||||
|||||_162,310_|



Page 9 



# **HAEUK** 

# **(A company limited by guarantee) REGISTERED NUMBER: 08229467** 

# **BALANCE SHEET (CONTINUED) AS AT 30 SEPTEMBER 2020** 

The company was entitled to exemption from audit under section 477 of the Companies Act 2006. 

The members have not required the company to obtain an audit for the year in question in accordance with section 476 of Companies Act 2006. 

The Trustees acknowledge their responsibilities for complying with the requirements of the Act with respect to accounting records and preparation of financial statements. 

The financial statements have been prepared in accordance with the provisions applicable to entities subject to the small companies regime. 

The financial statements were approved and authorised for issue by the Trustees on 24 June 2021 and signed on their behalf by: 

## **Ann Marie Harding** 

Chairman 

The notes on pages 11 to 20 form part of these financial statements. 

Page 10 



**HAEUK** 

**(A company limited by guarantee)** 

## **NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2020** 

## **1. General information** 

HAEUK is a private company, limited by guarantee, domiciled in England and Wales, registration number 08229467. The registered charity number is 1152591. The registered office of the company is 2 Sheridan Close, Bridgwater, Somerset, TA6 5SN. 

## **2. Accounting policies** 

## **2.1 Basis of preparation of financial statements** 

The financial statements have been prepared in accordance with the Charities SORP (FRS 102) - Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2019), the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) and the Companies Act 2006. 

HAEUK meets the definition of a public benefit entity under FRS 102. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy. 

## **2.2 Income** 

All income is recognised once the company has entitlement to the income, it is probable that the income will be received and the amount of income receivable can be measured reliably. 

## **2.3 Expenditure** 

Expenditure is recognised once there is a legal or constructive obligation to transfer economic benefit to a third party, it is probable that a transfer of economic benefits will be required in settlement and the amount of the obligation can be measured reliably. Expenditure is classified by activity. 

Expenditure is accounted for on an accruals basis and has been included under expense categories that aggregate all costs for allocation to activities. 

Expenditure on raising funds includes all expenditure incurred by the company to raise funds for its charitable purposes and includes costs of all fundraising activities events and non-charitable trading. 

Expenditure on charitable activities is incurred on directly undertaking the activities which further the company's objectives, as well as any associated support costs. 

Grants payable are charged in the year when the offer is made except in those cases where the offer is conditional, such grants being recognised as expenditure when the conditions attaching are fulfilled. Grants offered subject to conditions which have not been met at the year end are noted as a commitment, but not accrued as expenditure. 

All expenditure is inclusive of irrecoverable VAT. 

Page 11 



**HAEUK** 

**(A company limited by guarantee)** 

## **NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2020** 

## **2. Accounting policies (continued)** 

## **2.4 Tangible fixed assets and depreciation** 

Tangible fixed assets costing £NIL or more are capitalised and recognised when future economic benefits are probable and the cost or value of the asset can be measured reliably. 

Tangible fixed assets are initially recognised at cost. After recognition, under the cost model, tangible fixed assets are measured at cost less accumulated depreciation and any accumulated impairment losses. All costs incurred to bring a tangible fixed asset into its intended working condition should be included in the measurement of cost. 

Depreciation is charged so as to allocate the cost of tangible fixed assets less their residual value over their estimated useful lives, on a reducing balance basis. 

Depreciation is provided on the following basis: 

Office equipment - 20% 

## **2.5 Debtors** 

Trade and other debtors are recognised at the settlement amount after any trade discount offered. Prepayments are valued at the amount prepaid net of any trade discounts due. 

## **2.6 Cash at bank and in hand** 

Cash at bank and in hand includes cash and short-term highly liquid investments with a short maturity of three months or less from the date of acquisition or opening of the deposit or similar account. 

## **2.7 Liabilities and provisions** 

Liabilities are recognised when there is an obligation at the Balance sheet date as a result of a past event, it is probable that a transfer of economic benefit will be required in settlement, and the amount of the settlement can be estimated reliably. 

Liabilities are recognised at the amount that the company anticipates it will pay to settle the debt or the amount it has received as advanced payments for the goods or services it must provide. 

Provisions are measured at the best estimate of the amounts required to settle the obligation. Where the effect of the time value of money is material, the provision is based on the present value of those amounts, discounted at the pre-tax discount rate that reflects the risks specific to the liability. The unwinding of the discount is recognised in the Statement of financial activities as a finance cost. 

## **2.8 Financial instruments** 

The company only has financial assets and financial liabilities of a kind that qualify as basic financial instruments. Basic financial instruments are initially recognised at transaction value and subsequently measured at their settlement value with the exception of bank loans which are subsequently measured at amortised cost using the effective interest method. 

Page 12 



**(A company limited by guarantee)** 

## **HAEUK** 

## **NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2020** 

## **2. Accounting policies (continued)** 

## **2.9 Fund accounting** 

General funds are unrestricted funds which are available for use at the discretion of the Trustees in furtherance of the general objectives of the company and which have not been designated for other purposes. 

## **3. Income from donations and legacies** 

|**Unrestricted**<br>**funds**<br>**2020**<br>**£**<br>**Donations**<br>CSL Behring<br>35,000<br>Shire Pharamaceutical<br>13,020<br>BioCryst Pharmaceuticals<br>3,000<br>Oracle Fieldwork<br>1,400<br>Pharming Pharmaceuticals<br>-<br>**Subtotal detailed disclosure**<br>52,420<br>Donations<br>4,749<br>**Total 2020**<br>57,169<br>_Total 2019_<br>_77,145_|**Total**<br>**funds**<br>**2020**<br>**£**<br>**35,000**<br>**13,020**<br>**3,000**<br>**1,400**<br>**-**<br>**52,420**<br>**4,749**<br>**57,169**<br>_77,145_|_Total_<br>_funds_<br>_2019_<br>_£_<br>_35,000_<br>_-_<br>_-_<br>_-_<br>_35,000_|
|---|---|---|
|||_70,000_|
|||_7,145_|
|||_77,145_|
||||



## **4. Income from other trading activities** 

## **Income from fundraising events** 

||**Unrestricted**|**Total**|_Total_|
|---|---|---|---|
||**funds**|**funds**|_funds_|
||**2020**|**2020**|_2019_|
||**£**|**£**|_£_|
|Fun day raffle|746|**746**|_-_|



Page 13 



**HAEUK** 

**(A company limited by guarantee)** 

## **NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2020** 

## **5. Expenditure on raising funds Costs of raising voluntary income** 

|**Unrestricted**<br>**funds**<br>**2020**<br>**£**<br>Manchester 10k run fees<br>-<br>_Total 2019_<br>_152_<br>**6.**<br>**Analysis of grants**<br>**Grants to**<br>**Institutions**<br>**2020**<br>**£**<br>Grants paid<br>-<br>**7.**<br>**Analysis of expenditure on charitable activities**<br>**Summary by fund type**<br>**Unrestricted**<br>**funds**<br>**2020**<br>**£**<br>Support and education to help sufferers of Hereditary<br>Angioedema in the UK<br>76,433<br>_Total 2019_<br>_78,003_|**Total**<br>**funds**<br>**2020**<br>**£**<br>**-**<br>_152_<br>**Total**<br>**funds**<br>**2020**<br>**£**<br>**-**<br>**Total**<br>**funds**<br>**2020**<br>**£**<br>**76,433**<br>_78,003_|_Total_<br>_funds_<br>_2019_<br>_£_<br>_152_|
|---|---|---|
|||_Total_<br>_funds_<br>_2019_<br>_£_<br>_7,500_|
|||_Total_<br>_funds_<br>_2019_<br>_£_<br>_78,003_|
||||



Page 14 



**(A company limited by guarantee)** 

## **HAEUK** 

## **NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2020** 

## **8. Analysis of expenditure by activities** 

|Support and education to help<br>sufferers of Hereditary<br>Angioedema in the UK<br>_Total 2019_<br>**Analysis of direct costs**<br>Manchester patient day<br>Book commission<br>Nurses education programme<br>Glasgow patient day<br>Edinburgh patient day<br>Farnborough patient day<br>Drayton Park patient day<br>Virtual patient day<br>UK Healthcare Expo<br>**Total 2020**<br>_Total 2019_|**Activities**<br>**undertaken**<br>**directly**<br>**2020**<br>**£**<br>20,329<br>_19,031_|**Grant**<br>**funding of**<br>**activities**<br>**2020**<br>**£**<br>-<br>_7,500_|**Support**<br>**costs**<br>**2020**<br>**£**<br>56,103<br>_51,472_<br>**Activities**<br>**2020**<br>**£**<br>5,628<br>-<br>11,352<br>1,500<br>-<br>-<br>-<br>1,375<br>474<br>20,329<br>_19,031_|**Total**<br>**funds**<br>**2020**<br>**£**<br>**76,432**<br>_78,003_<br>**Total**<br>**funds**<br>**2020**<br>**£**<br>**5,628**<br>**-**<br>**11,352**<br>**1,500**<br>**-**<br>**-**<br>**-**<br>**1,375**<br>**474**<br>**20,329**<br>_19,031_|_Total_<br>_funds_<br>_2019_<br>_£_<br>_78,003_|
|---|---|---|---|---|---|
||||||_Total_<br>_funds_<br>_2019_<br>_£_<br>_-_<br>_1,200_<br>_8,844_<br>_-_<br>_2,660_<br>_3,924_<br>_2,403_<br>_-_<br>_-_|
||||||_19,031_|
|||||||



Page 15 



**HAEUK** 

**(A company limited by guarantee)** 

## **NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2020** 

## **8. Analysis of expenditure by activities (continued)** 

## **Analysis of support costs** 

|**Activities**<br>**2020**<br>**£**<br>Depreciation<br>663<br>Communication costs<br>388<br>Website costs<br>360<br>Postage, printing and stationery<br>992<br>Travel and subsistence<br>2,806<br>Subscription costs<br>266<br>CEO consultancy fees<br>32,250<br>EO consultancy fees<br>13,273<br>Sundry expenses<br>529<br>Hoodies, T shirts, wristbands<br>20<br>Insurance<br>280<br>Accountancy fees<br>996<br>Film production<br>-<br>IT software and consumables<br>2,272<br>Research costs<br>-<br>Trustees' expenses reimbursed<br>959<br>Bank fees<br>49<br>**Total 2020**<br>56,103<br>_Total 2019_<br>_51,472_<br>**9.**<br>**Independent examiner's remuneration**<br>Fees payable to the company's independent examiner for the independent<br>examination of the company's annual accounts<br>Fees payable to the company's independent examiner in respect of:<br>All other services not included above|**Total**<br>**funds**<br>**2020**<br>**£**<br>**663**<br>**388**<br>**360**<br>**992**<br>**2,806**<br>**266**<br>**32,250**<br>**13,273**<br>**529**<br>**20**<br>**280**<br>**996**<br>**-**<br>**2,272**<br>**-**<br>**959**<br>**49**<br>**56,103**<br>_51,472_<br>**2020**<br>**£**<br>**780**<br>**48**|_Total_<br>_funds_<br>_2019_<br>_£_<br>_562_<br>_532_<br>_118_<br>_2,018_<br>_2,345_<br>_216_<br>_28,800_<br>_11,500_<br>_690_<br>_431_<br>_280_<br>_1,058_<br>_950_<br>_557_<br>_460_<br>_955_<br>_-_|
|---|---|---|
|||_51,472_|
|||_2019_<br>_£_<br>_780_<br>_48_|



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## **HAEUK** 

## **(A company limited by guarantee)** 

## **NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2020** 

## **10. Trustees' remuneration and expenses** 

During the year, no Trustees received any remuneration or other benefits _(2019 - £NIL)_ . 

During the year ended 30 September 2020, expenses totalling _£_ 959 were reimbursed or paid directly to 7 Trustees _(2019 - £955 to 6 Trustees)_ . The expenses related to travel costs. 

## **11. Tangible fixed assets** 

|**Cost or valuation**<br>At 1 October 2019<br>Additions<br>At 30 September 2020<br>**Depreciation**<br>At 1 October 2019<br>Charge for the year<br>At 30 September 2020<br>**Net book value**<br>At 30 September 2020<br>_At 30 September 2019_<br>**12.**<br>**Debtors**<br>**Due within one year**<br>Prepayments and accrued income|**2020**<br>**£**<br>**-**<br>**-**|**Office**<br>**equipment**<br>**£**<br>**5,856**<br>**1,068**|
|---|---|---|
|||**6,924**|
|||**3,608**<br>**663**|
|||**4,271**|
|||**2,653**|
|||_2,248_|
|||_2019_<br>_£_<br>_700_<br>_700_|



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**(A company limited by guarantee)** 

## **HAEUK** 

## **NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2020** 

## **13. Creditors: Amounts falling due within one year** 

||**2020**|_2019_|
|---|---|---|
||**£**|_£_|
|Accruals and deferred income|**4,739**|_4,043_|



## **14. Financial instruments** 

|**Financial assets**<br>Financial assets measured at amortised cost<br>**Financial liabilities**<br>Financial liabilities measured at amortised cost|**2020**<br>**£**<br>**145,878**<br>**2020**<br>**£**<br>**(4,739)**|_2019_<br>_£_<br>_163,405_|
|---|---|---|
|||_2019_<br>_£_<br>_(4,043)_|



Financial assets measured at amortised cost comprises cash at bank and in hand. 

Financial liabilities measured at amortised cost comprises accruals. 

Page 18 



**(A company limited by guarantee)** 

## **HAEUK** 

## **NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2020** 

## **15. Statement of funds** 

|**Statement of funds - current year**<br>**Unrestricted funds**<br>General Funds<br>**Statement of funds - prior year**<br>**Unrestricted funds**<br>General Funds|**Balance at 1**<br>**October**<br>**2019**<br>**£**<br>**162,310**<br>_Balance at_<br>_1 October_<br>_2018_<br>_£_<br>_163,320_|**Income**<br>**£**<br>**57,915**<br>_Income_<br>_£_<br>_77,145_|**Expenditure**<br>**£**<br>**(76,433)**<br>_Expenditure_<br>_£_<br>_(78,155)_|**Balance at**<br>**30**<br>**September**<br>**2020**<br>**£**<br>**143,792**|
|---|---|---|---|---|
|||||_Balance at_<br>_30_<br>_September_<br>_2019_<br>_£_<br>_162,310_|



Page 19 



**HAEUK** 

**(A company limited by guarantee)** 

## **NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 30 SEPTEMBER 2020** 

## **16. Analysis of net assets between funds** 

## **Analysis of net assets between funds - current period** 

|**Unrestricted**<br>**funds**<br>**2020**<br>**£**<br>Tangible fixed assets<br>2,653<br>Current assets<br>145,878<br>Creditors due within one year<br>(4,739)<br>**Total**<br>143,792|**Total**<br>**funds**<br>**2020**<br>**£**<br>**2,653**<br>**145,878**<br>**(4,739)**<br>**143,792**|
|---|---|



## **Analysis of net assets between funds - prior period** 

|Tangible fixed assets<br>Current assets<br>Creditors due within one year<br>**Total**|_Unrestricted_<br>_funds_<br>_2019_<br>_£_<br>2,248<br>164,104<br>(4,043)<br>162,309|_Total_<br>_funds_<br>_2019_<br>_£_<br>_2,248_<br>_164,104_<br>_(4,043)_<br>_162,309_|
|---|---|---|



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