# ACTION FOR PULMONARY FIBROSIS

## Details

- **Country:** England & Wales
- **Charity number:** 1152399
- **Other names:** PULMONARY FIBROSIS UK
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** June 12, 2013
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1152399


## Contact

- **Address:** Action for Pulmonary Fibrosis, Stuart House, East Wing, St John's Street, Peterborough
- **Postcode:** PE1 5DD
- **Phone:** 01733 475642
- **Email:** info@actionpf.org
- **Website:** www.actionpf.org



## Activities

**Objects:** THE RELIEF OF SICKNESS AND THE PRESERVATION OF HEALTH IN PARTICULAR BY:A) ADVANCING EDUCATION AND RAISING AWARENESS OF PULMONARY FIBROSIS, THE SYMPTOMS ASSOCIATED WITH IT AND ENCOURAGING EARLIER DIAGNOSIS OF THE CONDITION.B) PROMOTING RESEARCH INTO THE UNDERSTANDING, DIAGNOSIS, CAUSES AND TREATMENTS OF PULMONARY FIBROSIS THROUGH DONATIONS AND GRANTS TO RELATED RESEARCH PROJECTS IN ORDER THAT THE USEFUL RESULTS OF RESEARCH ARE DISSEMINATED FOR PUBLIC BENEFIT.C) PROVIDING SUPPORT TO PATIENTS AND FAMILIES SUFFERING FROM PULMONARY FIBROSIS IN ANY OTHER WAY THE TRUSTEES SEE FIT.

**Activities:** APF raises awareness and understanding of pulmonary fibrosis with patients, families, the general public and the medical profession.  We advocate for patients nationally to improve treatment and care. We support patients by assisting in setting up patient support groups, hold information events and by personal contact.  We offer study sessions for health professionals and offer research grants.




## Classification

- **How:** Makes Grants To Individuals, Makes Grants To Organisations, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Other Charitable Activities
- **What:** Education/training, The Advancement Of Health Or Saving Of Lives
- **Who:** Other Defined Groups, The General Public/mankind



## Areas of operation

- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| June 30, 2025 | £1991368 | £1784066 | £1012998 | 34 |
| June 30, 2024 | £1485083 | £2191881 | £805696 | 32 |
| June 30, 2023 | £1446900 | £1204155 | £1512494 | 21 |
| June 30, 2022 | £974578 | £795238 | £1269749 | 16 |
| June 30, 2021 | £651809 | £601408 | £1090409 | 11 |



## Trustees

- **Dr Michael James Stubbins** (Chair) — appointed May 7, 2022
- Dr HELEN PARFREY BM,BCH,PHD — appointed April 9, 2013
- Dr Simon Hart — appointed April 9, 2016
- Emma Goodes — appointed Nov. 9, 2024
- Matthew Kemp — appointed Feb. 3, 2024
- Matthew Suddart — appointed May 7, 2022
- Stephen Morgan-Hyland — appointed Jan. 27, 2018
- Wendy Anne Dickinson — appointed May 2, 2020