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2025-09-30-accounts

Trustees' Annual Report for the period

Period start date Day01 Month10 Year2024

Period end date

Day30 Month09 Year2025

From

To

Section A Reference and administration details

Joseph’s Goal

Charity name Joseph’s Goal Other names charity is known by Registered charity number (if any) 1151548 Charity's principal address 32 Charlotte Drive Highfield Wigan Postcode WN3 6BF

Names of the charity trustees who manage the charity

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Trustee name Office (if any) Dates acted if not for whole
**year **
Name of person (or body) entitled
to appoint trustee (ifany)
GregFarrimond
Alan Houghton Chairman
Susan Houghton
Ann Kendrick
Emma Kendrick
Norman Kendrick Vice-Chairman
Paul Kendrick
HarrySmith From 22/01/2025

Names of the trustees for the charity, if any, (for example, any custodian trustees)

Name Dates acted if not for whole year

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Names and addresses of advisers (Optional information)

Names and addresses of advisers (Optional information) Names and addresses of advisers (Optional information) Names and addresses of advisers (Optional information)
Type of adviser
Name
Address
Finance Gary Edgerton Fairhurst, Douglas Bank House, Wigan Lane, Wigan
Legal TBA
Data Protection Keith Golding 7 Hinds Head Avenue, Wrightington, Wigan

Name of chief executive or names of senior staff members (Optional information)

Not Applicable

Section B Structure, governance and management

Description of the charity’s trusts

Charitable Trust: Model Trust Deed Type of governing document (eg. trust deed, constitution) A Trust consisting of 8 Trustees How the charity is constituted (eg. trust, association, company) Trustees are family members or professional associates appointed by the Trustee selection methods Chairman.

Additional governance issues (Optional information)

You may choose to include additional information, where relevant, about:

All Trustees give their time voluntarily and receive no remuneration or other benefits

Section C Objectives and activities

Summary of the objects of the charity set out in its governing document

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In planning our activities for the year, we kept in mind the Charity Commission’s guidance on public benefit at our Trustees’ meetings

We have interacted with both Professor Nick Greene at UCL and NKH Crusaders in the USA regarding the current position and future progress with the Research and this continues to reinforce our previous decision to channel all current funding to UCL.

Conferences

We are planning to hold an online conference for NKH families within the next 6 months.

Summary of the main activities undertaken for the Trustees are planning to attend the Boston NKH conference scheduled public benefit in relation to for April 2026. these objects (include within this section the statutory declaration that trustees have had regard to the guidance issued by the Charity Commission on public benefit)

Additional details of objectives and activities (Optional information)

All policies are reviewed on an annual basis. The grantmaking policy forms part of our Financial Controls package.

A significant contribution has been made by our loyal band of volunteers to the numerous Fund Raising events, Sponsored events, Monthly Lottery Draws and Charity Box proprietors, without which the Charity would not have been able to achieve so much.

You may choose to include further statements, where relevant, about:

We were supported by a number of NKH families – in particular Daisy’s Diary, In memory of Chloe Harris, and Remembering Rowan. In addition a number of NKH families and friends are members of the Lottery.

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Section D Achievements and performance

Summary of the main achievements of the charity during the year

Fundraising Events

A net total of £29,093 was raised during the year. The main events were the Monthly Lottery which averaged 570 members throughout the year, the Latics Legends Dinner and Match.

Sponsored Events

A total of £23,113 was raised during the year

The main events were the Walk4Joseph to Wrexham and Joe’s Xmas Jumper Day.

Donations

A total of £20,828 was received during the year.

The majority was raised through over 700 Charity Box collections in the local community. In addition we received further donations from Lottery Winners and generous individuals.

Research

We continue to receive comprehensive 6 monthly Research Update Reports from UCL. A simplified version will be made available to NKH families and supporters via social media platforms. We have, in the current year, introduced a comprehensive 6 monthly Financial Statement in conjunction with UCL, which incorporates details of all appropriate financial transactions and a financial reconciliation.

UCL Donor Wall

As Joseph’s Goal has reached the very prestigious landmark of “raising over £1 Million” for NKH research, UCL contacted us re sculpting Joe’s hand for a “donator sculpture of hands” on their Millionaire’s Donor Wall. A cast of Joe’s hand was taken recently, with a more formal celebration to follow in the Spring at UCL for Joe and his family. The hand will then be hung in the atrium of UCL along with others who have hit the million pound mark for their respective projects.

Board Matters

The Financial Controls package and Data Protection Policy and Procedures have been reviewed.

The Board were pleased to appoint Harry Smith as a new Trustee. The Board met on 4 occasions.

The Trustees continue to receive Monthly Management Accounts.

Future Issues

The new Website is expected to be functional by the end of the year. We intend to review strategies to further engage all NKH families with periodic Research updates and to raise more funds for the Research programme.

Charities of the Year

We retain the support of Nice-Pak, Launch Events and NW Auto Time Systems Northern.

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Section E Financial review

Brief statement of the charity’s policy on reserves

Surplus funds are held in bank to meet any unforeseen expenditure, working capital and potential grants. All expenditure decisions are taken in line with the Charity’s Reserve Policy, a constituent part of our Financial Controls & Policy package. In addition funds for Research are also held in separate interest earning deposit accounts which are available for draw down by UCL.

Details of any funds materially

in deficit

Further financial review details (Optional information)

You may choose to include additional information, where relevant about:

The principal sources of funds are Fund Raising events, Sponsored events, Personal Donations, Charity Boxes and a Monthly Lottery.

Key Objectives

Note feedback comments from UCL stating that Joseph’s Goal has advanced the research into NKH significantly and changed the way NKH treatment has evolved.

Section F Other optional information

Section G Declaration

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees

Signature(s) Norman Kendrick Full name(s) Alan Houghton Position (eg Secretary, Chair, Chairman Vice-Chairman etc) Date 24/11/2025

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Charity Name No (if any) JOSEPH'S GOAL 1151548

Receipts and payments accounts

CC16a Period end date To 9/30/2025

Period start date 10/1/2024

For the period from

Section A Receipts and payments

Unrestricted Restricted Endowment funds funds funds

Total funds Last year

Section A Receipts and payments
Unrestricted
funds
Restricted
funds
Endowment
funds
Total funds Last year
A1 Receipts
Donations
20,828
Fund RaisingEvents
46,118
Sponsored Events
23,113
Merchandise Sales
2,289
Grants Received
-
Interest on Deposit Account
495
-
-
92,843
-
-
Sub total -
Total receipts 92,843
A3 Payments
Reaearch Funding
25,000
Coat of Merchandise
166
Cost of FundraisingEvents
17,025
Administration Expenses
4,265
Publicity
1,440
Cost to collect Donations/Sponsorship
1,386
Insurance
164
Conferences
-
-
Sub total 49,446
-
-
Sub total -
Total payments 49,446
Net of receipts/(payments) 43,397
A5 Transfers between funds
-
A6 Cash funds last year end
7,109
Cash funds this year end 50,506
to the nearest £
Sub total(Gross income for AR)
A2 Asset and investment sales,
(see table).
A4 Asset and investment
purchases,(see table)
to the nearest £
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-
-
-
-
-
-
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-
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-
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-
to the nearest £ to the nearest £
20,828
46,118
23,113
2,289
-
495
-
-
92,843
-
-
-
92,843
25,000
166
17,025
4,265
1,440
1,386
164
-
-
49,446
-
-
-
49,446
43,397
-
7,109
50,506
to the nearest £
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-
-
-
-
-
-
-
-
20,828 20951
46,118 58006
23,113 30263
2,289 250
- 0
495 11
- -
- -
92,843 109,481
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-
-
-
- -
- -
- 92,843 109,481
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-
-
-
-
-
-
-
-
-
25,000 80000
166 440
17,025 20480
4,265 4,420
1,440 1,244
1,386 1,501
164 157
- 3,716
- -
49,446 111,958
-
-
-
-
-
- -
- 49,446 111,958
- -
-
-
-
43,397 - 2,477
- - -
- 7,109 9,586
- 50,506 7,109
Section B Statement of assets and liabilities at the end of the period Section B Statement of assets and liabilities at the end of the period Section B Statement of assets and liabilities at the end of the period
Categories
B1 Cash funds
B2 Other monetary assets
B3 Investment assets
B5 Liabilities
B4 Assets retained for the
charity’s own use
Signed by one or two trustees on
behalf of all the trustees
Details
Cash at Bank
Details
Details
Details
Details
Signature
Total cash funds
(agree balances with receipts and payments
account(s))
to nearest £
to nearest £
50,506
-
-
-
-
-
50,506
-
OK
OK
to nearest £
to nearest £
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-
-
-
-
-
-
-
-
-
-
-
Cost (optional)
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-
-
-
-
Cost (optional)
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-
-
-
-
-
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-
Print Name
ALAN HOUGHTON
NORMAN KENDRICK
Unrestricted
funds
Restricted
funds
Unrestricted
funds
Restricted
funds
Fund to which
asset belongs
Fund to which
asset belongs
Fund to which
liability relates
Amount due
(optional)
to nearest £
Endowment
funds
-
-
-
-
OK
to nearest £
Endowment
funds
-
-
-
-
-
-
Current value
(optional)
-
-
-
-
-
Current value
(optional)
-
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-
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-
When due
(optional)
Date of
approval
ALAN HOUGHTON 11/24/2025
NORMAN KENDRICK 11/24/2025

CHARITY COMMISSION FOR ENGLAND AND WALES Independent examiner's report on the accounts Section A Independent Examiner's Report Roport to the trust•esl m¢m￿r5 of JOSEPH'S GOAL On accounts for the year ended 3010912025 Charlty no (11 any) 1151548 Set out on pages I report to the trustees on my examination of the accounts of the above charity (Ihe Trust.) for the year ended Responslbllltles and As the charity trustees of the Trust. you are responsibl8 for th8 preparation ba$l$ of report of the accounts in accordance with the requirements of the Charities Act 2011 ('the Act"). I report in respect of my examination of the Trust's accounts carried out under sedion 145 of the 2011 Act and in ¢arying out my examination, I have foll0v￿d the applicable Directions given by the Charity Commission under section 145(5)(b> ol the Act. I have completed my examination. I confinn that no material matters have come to my attention (other than that disclosed below ') in connection with the examinakn'on which gNes me cause to believe that in. any material respect.. accounting re￿rdS Were not kept in accordance With s8Ction 130 of th8 Act or the accounts do not accord the accounting records Independ•nt examlnerfs statement I have no concerns and have come across no other matters in connection with the examination to vthich attention should be drawn in order to enable proper understanding of th8 accounts to be reached. ' Pl8as8 del8t8 th8 words in the brackets rf they do not apply. Slgned: Date: L3/ic Name". GARY EDGERTON Relevant professional quallficatlon(sl or body (If anyl: FCA CertPFS Address: Fairhurst Accountants Lirnited. Douglas Bank House Wigan Lane. Wigan WN12T8 IER October 2018