## **Trustees' Annual Report for the period** Period start date Day1 Month10 Year202 0 Period end date Day30 Month09 Year2021 **From** **To** ## Section A Reference and administration details **Charity name** Joseph’s Goal **Other names charity is known by Registered charity number (if any)** 1151548 **Charity's principal address** 32 Charlotte Drive Highfield Wigan **Postcode WN3 6BF** ## **Names of the charity trustees who manage the charity** **----- Start of picture text -----**
Name of person (or body)
Dates acted if not for
Trustee name Office (if any) entitled to appoint trustee
whole year
(if any)
1 Greg Farrimond
2 Mark Hayes
3 Alan Houghton Chairman
4 Susan Houghton
5 Ann Kendrick
6 Emma Kendrick
7 Norman Kendrick Vice-Chairman
8 Paul Kendrick
9
10
11
12
13
14
15
16
17
18
19
20
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## **Names of the trustees for the charity, if any, (for example, any custodian trustees)** **Name Dates acted if not for whole year** March **2012** **TAR** 1 ## **Names and addresses of advisers (Optional information)** **----- Start of picture text -----**
Type of adviser Name Address
Finance Gary Edgerton Fairhurst, Douglas Bank House, Wigan Lane, Wigan
Legal Paul Aynsley McCarthy Bennett Holland, 26 Bridgeman Terrace,
Wigan
Data Protection Keith Golding 7 Hinds Head Avenue, Wrightington, Wigan
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**Name of chief executive or names of senior staff members (Optional information)** ## **Section B Structure, governance and management** ## **Description of the charity’s trusts** Charitable Trust: Model Trust Deed Type of governing document - (eg. trust deed, constitution) A Trust consisting of 8 Trustees - How the charity is constituted - (eg. trust, association, company) Trustees are family members or professional associates Trustee selection methods appointed by the Chairman. (eg. appointed by, elected by) ## **Additional governance issues (Optional information)** All Trustees give their time voluntarily and receive no You **may choose** to include remuneration or other benefits additional information, where relevant, about: - policies and procedures adopted for the induction and training of trustees; - the charity’s organisational structure and any wider network with which the charity works; - relationship with any related parties; - trustees’ consideration of major risks and the system and procedures to manage them. ## **Section C Objectives and activities** March **2012** **TAR** 2 1) To advance the education of the public by the funding and promotion of medical and/or scientific research into NonKetotic Hyperglycinemia (NKH) with the aim of finding **Summary of the objects** improved treatments and developing a cure for the **of the charity set out in** condition and to publish the useful results arising from **its governing document** such research. 2) The relief of sickness and the promotion and presentation of good health by the provision of grants and/or equipment to anyone in the UK suffering from NKH. In planning our activities for the year, we kept in mind the Charity Commission’s guidance on public benefit at our Trustees’ meetings We have interacted with both Professor Nick Greene, UCL, and NKH Crusaders in the USA regarding the current state and progress with the Research and this has reinforced our previous decision to channel all funding to UCL. The Conferences in both the UK and USA are both on hold pending travel restrictions as a result of the Covid pandemic. **Summary of the main** However we are hopeful that these will take place in 2022. If **activities undertaken for** there are any issues of critical importance to be addressed by **the public benefit in** these forums we would set up the appropriate Conferences **relation to these objects** online. **(include within this section the statutory** Similarly the Business Expos have not taken place due to the **declaration that trustees** Covid pandemic and this has removed an element of our ability **have had regard to the** to communicate with a section of the public. **guidance issued by the Charity Commission on public benefit)** ## **Additional details of objectives and activities (Optional information)** March **2012** **TAR** 3 All policies are reviewed on an annual basis. The grantmaking policy forms part of our Financial Controls package. A significant contribution has been made by our loyal band of volunteers to the numerous Fund Raising and Sponsored events, without which the Charity would not have been able to achieve so much. You **may choose** to include further statements, where relevant, about: We were supported by a number of NKH families – in particular Team Mikaere, Daisy’s Diary and Remembering Rowan. - policy on grantmaking; - policy programme related investment; - contribution made by volunteers. ## Section D Achievements and performance March **2012** **TAR** 4 Section D Achievements and performance Fundraising Events **Summary of the main** A total of £73,968 was raised during the year **achievements of the** Events were severely affected by the Coronavirus pandemic, **charity during the year** although we did manage to have a “Legends” football match. We introduced a Monthly Lottery in December 2020 which now has 550 members. ## Sponsored Events A total of £7,516 was raised during the year. Events were severely affected by the Coronavirus pandemic. ## Donations A total of £12,465 was received during the year and comprises both personal donations and the expansion of our Charity Box collection programme. ## Research During the year UCL published another paper acknowledging the generous funding from Joseph’s Goal. This is published Open Access. Leung KY, Castro SCP, Galea GL, Copp AJ, Greene NDE. Glycine Cleavage System H Protein is essential for embryonic viability, implying additional function beyond the glycine cleavage system. Frontiers in Genetics. 12: 625120, 2021. https://doi.org/10.3389/fgene.2021.625120 ## Board Matters The Financial Controls package and Data Protection issues have been reviewed and Trustees continue to receive Monthly Management Accounts. Major fundraisers also receive Monthly Reports. The Board met on 4 occasions during the year. ## Future Issues ## Charities of the Year It has been impossible to network effectively with the Business community due to the Coronavirus pandemic, but we retain the support of Nice-Pak, Arnold Clark, Visions Design, Baxters, NEG and Orrell Red Triangle Cricket Club. ## **Section E Financial review** March **2012** **TAR** 5 Surplus funds are held in bank to meet any unforeseen **Brief statement of the** expenditure, working capital and potential grants. All **charity’s policy on** expenditure decisions are taken in line with the Charity’s **reserves** Reserve Policy, a constituent part of our Financial Controls & Policy package. **Details of any funds materially in deficit** ## **Further financial review details (Optional information)** The principal sources of funds are Fund Raising events, You **may choose** to include Sponsored events, Donations and a Monthly Lottery additional information, where relevant about: Key Objectives: - the charity’s principal Research payments in the year totalled £90,000. - sources of funds No Grants were made in the year.. - (including any fundraising); - how expenditure has supported the key objectives of the charity; - investment policy and objectives including any ethical investment policy adopted. ## **Section F Other optional information** ## **Section G Declaration** **The trustees declare that they have approved the trustees’ report above.** **Signed on behalf of the charity’s trustees** **Signature(s)** Norman Kendrick **Full name(s)** Alan Houghton **Position (eg Secretary,** Chairman Vice-Chairman **Chair, etc) Date** 17th November 2021 March **2012** **TAR** 6 **Charity Name JOSEPH'S GOAL** **No (if any) 1151548** ## **Receipts and payments accounts** **For the period** Period start date Period end date **To from** 10/1/2020 9/30/2021 ## **Section A Receipts and payments** **----- Start of picture text -----**
Unrestricted Restricted Endowment
Total funds
funds funds funds
to the nearest
to the nearest £ to the nearest £ to the nearest £
£
A1 Receipts
Donations 12,465 - - 12,465
Fund Raising Events 73,968 - - 73,968
Sponsored Events 7,516 - - 7,516
Merchandise Sales 2,686 - - 2,686
Interest on Deposit Account 1 - - 1
- - - -
- - - -
- - - -
96,636 - - 96,636
Sub total (Gross income for AR)
A2 Asset and investment sales,
(see table).
- - - -
- - - -
Sub total - - - -
Total receipts 96,636 - - 96,636
A3 Payments
Reaearch Funding 90,000 - - 90,000
Coat of Merchandise 278 - - 278
Cost of Fundraising Events 13,480 - - 13,480
Cost of Sponsored Events - 870 - - - 870
Administration Expenses 1,705 - - 1,705
Publicity 900 - - 900
Cost to collect Donations/Sponsorship
1,178 - - 1,178
Insurance 198 - - 198
Conferences 40 - - 40
Sub total [ 106,909 ] - - 106,909
A4 Asset and investment
purchases, (see table)
- - - -
- - - -
Sub total [ - ] - - -
Total payments 106,909 - - 106,909
Net of receipts/(payments) - 10,273 - - - 10,273
A5 Transfers between funds - - - -
A6 Cash funds last year end 18,577 - - 18,577
Cash funds this year end 8,304 - - 8,304
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## **Section B Statement of assets and liabilities at the end of the period** ||||**Unrestricted**||**Restricted**| |---|---|---|---|---|---| |**Categories**|**Details**||**funds**||**funds**| |**B1 Cash funds**|Cash at Bank|**_Total cash funds_**|**to nearest £**
**8,304**
**-**
**-**
**8,304**|


|**to nearest £**
**-**
**-**
**-**
**-**| ||(agree balances with receipts and payments
account(s))||OK|OK|| ||||**Unrestricted**||**Restricted**| ||||**funds**||**funds**| |**B2 Other monetary assets**|**Details**
Other Debtors
Gift Aid||**to nearest £**
**320**
**280**
**-**
**-**
**-**
**-**|




|**to nearest £**
**-**
**-**
**-**
**-**
**-**
**-**| |**B3 Investment assets**|**Details**||**Fund to which**
**asset belongs**|**Cost (optional)**
**-**
**-**
**-**
**-**
**-**|| |**B4 Assets retained for the**|**Details**||**Fund to which**
**asset belongs**|**Cost (optional)**
**-**|| |**charity’s own use**||||






|**-**
**-**
**-**
**-**
**-**
**-**
**-**
**-**| ||||**Fund to which**||**Amount due**| |**B5 Liabilities**|**Details**||**liability relates**|



|**-**
**-**
**-**
**-**
**-**
**(optional)**| |Signed by one or two trustees on
behalf of all the trustees||Signature|Print|Name|| ||||ALAN HOUGHTON
NORMAN KENDRICK||| **----- Start of picture text -----**
CC16a
**----- End of picture text -----**
## **Last year** ## **to the nearest £** **10,877 87,189 29,355 4,968 54 - - - 132,443** **132,443** **135,000 615 - 1,245 2,582 - 2,658 1,826 198 144,124** **144,124 - 11,681 - 30,258 18,577** ## **Endowment funds** **to nearest £ - - - -** OK **Endowment funds to nearest £ - - - - - -** **Current value (optional) - - - - -** **Current value (optional) - - - - - - - - - When due (optional)** Date of approval CHARITY COMMISSION FOR ENGLAND AND WALES I Independent examinerfs report on the accounts Section A Independent Examiner's Report Report to the trusleesl , members of JOSEPH'S GOAL On accounts forthe year ended 3010912021 Charlty no (rf any) 1151548 Set out on pages 1 I report to th8 truslees on my examination of the accounts of the abov8 charity ("the Trust") for the year ended 30/0 1 I l ol I Responsibilities and As the challty Irust8es of the Trust, you are respjnsible for the preparation basis of report of the accounts in accordance with th8 r8quirements of th8 Charities Act 2011 (Ihe Act.). I report in respect of my examlnation of the Trust's accounts carri8d out under s8CtTr￿ 145 of the 2011 Act and in ￿￿YIng out my examination, I hav8 followed the applicable Direction$ given by the Charity Commission under section 145{5Mbl of the Act. I havè complétèd my examination. I confimi that no material matters have com8 to my attention (othèr than that disclos8d below ') in connection with th8 èxamination which gives me cause to b81i8vé that in. any material respect.. accounting rec￿rdS w8r8 not kept In accordance with $8ctlon 130 of the Act or the accounts do not accord with the accounting reo)rds I have rK) concems and have come across no other matters in Cc￿nectIon with the examinati￿ to whith attention should be drawn in order to ènable a proper understanding of the accounts to be reached. ' Please delete the wortls in the brackets rfthey do not apply. Independent examiner's statement Slgnod." Dat•: ZeLI Name: GARY EDGERTON Relevant professlonal qualification(s) or body (ff any}: FCS Cert PFS Address: Fairhurst. tkmjglas Bank House Wigan Lane. Wigan WN1 2TB IER October 2018