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2020-12-31-accounts

Trustees, Annual Report and Accounts ,1111

FOREWORD

2020 has been a challenging year for Standing Voice, people with albinism and our partners. Following the outbreak of COVID-19, the Governments of Tanzania and Malawi took steps to control the spread of the virus, banning public gatherings and closing educational institutions. These measures forced us to consider new approaches to our projects. As well as postponing non-urgent activities, we had to prepare for the possibility that health workers could be pulled away from delivering services to people with albinism to support the countries’ responses to COVID-19. Furthermore, the pandemic meant people with albinism were more vulnerable than ever. To prepare us for all eventualities in April 2020 we developed an action plan, to help us mitigate the risk of infection while continuing to provide life-saving services and support to people with albinism.

As a result of this plan and through the determination of our staff and volunteers throughout the pandemic, we have managed to maintain the running of our programmes in Tanzania and Malawi with COVID-19 management measures in place. These have included social distancing, increased hygiene and sanitation, distribution of protective masks and reducing the number of patients attending each clinic by extending our services to a larger network of hospitals and health centres. We have integrated COVID-19 prevention into our health education sessions in hospitals, and developed an information leaflet on COVID-19 and albinism, which we’ve distributed to thousands of people with albinism. In addition, we have established a helpline so people with albinism and their caregivers can directly contact us with any concerns relating to their health, social situation or security.

Despite COVID-19, 2020 has seen the total number of people with albinism supported through our projects climb to over 7,500 across Tanzania and Malawi. Our work in dermatology has continued to see reductions in rates of skin cancer across both countries. We have trained 144 teachers to better support students with albinism in schools. We have delivered vocational training to 120 people, aimed at improving the socioeconomic security and physical and mental wellbeing of people with albinism and their families on Ukerewe Island in the following disciplines: tailoring, batik cloth-making, soap-making, music, art, drama, photography, and radio production. In March, we launched our latest advocacy and research initiative funded by the Wellcome Trust, which empowers people with albinism to engage with their own health data and explore creative responses to questions around albinism and skin cancer. We also began an exciting new trauma rehabilitation initiative for people with albinism funded by the United Nations Voluntary Fund for Victims of Torture. The project provides tailored material assistance and peer-to-peer counselling to people with albinism who have survived physical and psychological violence in Malawi.

Despite global travel restrictions, we have continued to advocate for the rights of people with albinism everywhere. In February we attended a historic meeting in Paris, where activists voted unanimously to form a global albinism alliance. The vote was an important step toward building solidarity among albinism groups around the world. In March, we returned to Geneva where we continued to utilise our special consultative status with the United Nations, to present our work in an address to the 43rd Session of the United Nations Human Rights Council. In June, we joined with albinism advocates and organisations around the world in a virtual conference to commemorate International Albinism Awareness Day.

With the prolonged restrictions on international travel and the majority of our staff working from home, the pandemic forced us to reevaluate how we work as an organisation. 2020 has been challenging, but also a time for reflection and positive internal growth. We have brought our work online, into shared workspaces across all our country teams. This has led to improvements in our systems and processes, aided better communication and made us into an ever more efficient team.

We extend our deepest thanks to our funders who have rallied around us in these testing times, and whose support has enabled us to keep saving lives. We are unable to mention everyone, but particular thanks this year go to: the Fondation Pierre Fabre, the Wellcome Trust, the Bilton Charitable Trust, the Tropical Health and Education Trust, the International Foundation for Dermatology and International League of Dermatological Societies, the United Nations Voluntary Fund for Victims of Torture, the Sir Halley Stewart Trust, the British and Foreign School Society and the James Tudor Foundation. Thanks also to Esther Ireland, the Wheeler family, the Edge and all Standing Voice Malawi supporters in Ireland. Our programmes would not operate without the support of our key partners: the Governments of Tanzania and Malawi, the Regional Dermatology Training Centre, the Tanzania Albinism Society, the Association of Persons with Albinism in Malawi, Beyond Suncare, Under the Same Sun and many others.

We give heartfelt thanks to our staff, advisory committees, volunteers, and local partners. Our work would not be possible without your strength and dedication. We are humbled by and grateful for the individuals who give their time and energy every day to help us improve the lives of people with albinism in Africa.

Presented by

Sabine Zetteler Chair of the Board of Trustees 28/10/2021

Contents

Contents
1. Legal and Administrative Information 4
2. Report of the Trustees 5
2.1 Constitution 5
2.2 Board of Trustees 5
2.3 Organisational Structure 5
2.4 Contribution of Volunteers 5
2.5 Our Purpose and Objectives 6
2.6 Principal Activities 8
2.6.1 Skin Cancer Prevention 8
2.6.2 Vision & Education 11
2.6.3 Trauma Recovery 12
2.6.4 Economic Empowerment 13
2.6.5 Advocacy 14
2.7 Funding Matters 15
2.7.1 Grant-Making Policy 15
2.7.2 Fundraising Activities in the UK 15
2.7.3 Financial Performance 15
2.7.4 Expenditure Supporting Key Objectives 16
2.8 Governance and Risk 18
2.8.1 Future Plans of the Charity 18
2.8.2 Risk 18
2.8.3 Responsibilities of the Board of Trustees 18
2.8.4 Public Beneft 19
2.8.5 Trustees’ Declaration 19
3. Accounts 21
3.1 Independent Examiner’s Report to the Trustees of Standing Voice 21
3.2 Statement of Financial Activities (SoFA) 22
3.3 Balance of Sheet 23
3.4 Basis of Preparation 24
3.4.1 Accounting Policies 24
3.4.2 Analysis of Income and Endowments 25
3.4.3 Analysis of Resources Expended 26
3.4.4 Tangible Fixed Assets 26
3.4.5 Debtors and Prepayments 27
3.4.6 Creditors and Accruals 27
3.4.7 Restricted Funds 27
3.4.8 Details of Certain Items of Expenditure 28
3.4.9 Staf Costs 28
3.4.10 Grant-Making 29
3.4.11 Transactions with Related Parties 29

___ Cover Photo by Andrea Zvadova

Standing Voice Report of the Trustees 1st January 2020 - 31st December 2020

LEGAL AND ADMINISTRATIVE INFORMATION

Charity Name Standing Voice (UK)
No. 1151250 Charitable Incorporated Organisation (CIO)
Unit 34b
Regent Studios
8 Andrews Road
London
E8 4QN
P.O. BOX 1902
Isamilo, Mwanza
Tanzania
49 Newick Road
London
E5 0RP
P.O. BOX 180
Ukerewe Island, Mwanza
Tanzania
Sabine Zetteler
Gurmeet Kaur
Harry Freeland
Johanna Freeland
Sabine Zetteler
Harry Freeland, Jon Beale, Sam Clarke, Emily Spence
Rosa Shindler, Nofal Ali Pasha, Bonface Massah
Supported by a growing team of dedicated volunteers
Charity No.
Postal Addresses
Registered Addresses
Board of Trustees
Chair
Administration

A group of students with albinism receiving sunscreen at one of our clinics in Malawi

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Standing Voice Report of the Trustees 1st January 2020 - 31st December 2020

REPORT OF THE TRUSTEES

Constitution

Standing Voice (UK) was originally constituted under a Foundation Constitution that came into effect on 14th March 2013, on which date Standing Voice became registered as a Charitable Incorporated Organisation (CIO). The trustees are the only members of the CIO. If the CIO is wound up the members have no liability to contribute to its assets and no personal responsibility for settling its debts or liabilities.

Board of Trustees

Trustees are appointed by existing trustees through an electoral process. There may be no fewer than three trustees at any one time on the Board of Trustees. There are four at present, and we aim to expand the Board further during 2021.

Standing Voice trustees hold quarterly board meetings. The board also addresses governance matters as and when necessary, through e-mail or other means as necessary.

Decisions are made either at a meeting of the charity trustees, or by resolution in writing or electronic form and agreed upon by all of the charity trustees. Agreements may comprise either a single document, or several documents containing the text of the resolution in like form to each of which one or more charity trustees has signified their agreement.

No decision shall be made at a trustee meeting unless a quorum is present at the time the decision is taken. The quorum is two charity trustees, or the number nearest to one third of the total number of charity trustees, whichever is greater, or such larger number as the charity trustees may decide from time to time.

In selecting trustees, consideration is given to the overall breadth of knowledge and experience required of the Board of Trustees. Candidates are typically interviewed by at least two existing trustees and nominations are then presented for approval to the board. Successful candidates, once appointed, receive appropriate training documentation about the roles and responsibilities of being a Standing Voice trustee.

Organisational Structure

The trustees manage the affairs of the Charity on a voluntary basis and meet as necessary for this purpose, usually at least once a quarter. Harry Freeland is Standing Voice’s Executive Director (since April 2014) and remains on the Board of Trustees. During the report period the charity had 6 paid staff members in the UK supported by a committed team of volunteers. Our global team comprises an additional 13 paid staff members based in Tanzania and 2 based in Malawi, as well as international consultants.

Contributions of Volunteers

Standing Voice continues to work closely with skilled volunteers from a variety of professional and academic backgrounds who are committed to ending human rights abuses against people with albinism in Tanzania and Malawi.

Our Skin Cancer Prevention and Vision Programmes continue to be clinically delivered by Tanzanian and Malawian health professionals with the strategy and coordination support of the Standing Voice country teams. International researchers, professors, optometrists and dermatologists complemented our skilled Tanzanian and Malawian volunteers through providing guidance over the report period.

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Standing Voice Report of the Trustees 1st January 2020 - 31st December 2020

Our volunteer engagement development is resulting in a unique pool of expertise associated with and leveraged by Standing Voice’s operations. We are currently formalising this provision of expertise by further developing our advisory committees, which inform our Board and staff team.

We are extremely grateful to all of our volunteers who continued to inform and shape our life-saving programmes this year.

Our Purpose and Objectives

Standing Voice is an international NGO working in Tanzania and Malawi, with its headquarters in the United Kingdom. Standing Voice’s primary objective is to end human rights violations against marginalised groups.

The objectives of the CIO are:

For the purposes of the above:

Standing Voice exists as a catalyst to amplify the voices of others. We aim to empower the people we work with to be the agents of change in their own lives, to build resilience and be healthy and self-sufficient. We currently focus on promoting the social inclusion of people with albinism in Tanzania and Malawi. Our team has over 14 years’ experience working with this group. We are currently planning further expansion to other countries in Sub-Saharan Africa, through the replication of our programme models in collaboration with key partners.

People with albinism are commonly the victims of social exclusion in Sub-Saharan Africa, which has led to witchcraft-fuelled murder and marginalisation from health and education services. Our work with this group centres around several programmatic areas: Skin Cancer Prevention, Vision and Education, Trauma Recovery, Economic Empowerment and Advocacy. Through our core programmes our support is holistic and comprehensive to reflect the complex needs of people with albinism in their local context. We achieve our objectives by collaborating with a network of local stakeholders (such as government bodies, local community groups and international NGOs). All of our initiatives promote the social inclusion of people with albinism by:

The trustees of Standing Voice declare that they have had regard to both the Charity Commission guidance on public benefit and section 17(5) of the Charities Act 2011 on public benefit in carrying out their duties to achieve the charity’s objectives.

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Standing Voice Report of the Trustees 1st January 2020 - 31st December 2020

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A family with albinism on Ukerewe Island, Tanzania
Photo credit: Imogen Freeland
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Standing Voice Report of the Trustees 1st January 2020 - 31st December 2020

Principal Activities

Broadly, Standing Voice works across five programmatic areas: Skin Cancer Prevention, Vision & Education, Economic Empowerment, Trauma Recovery and Advocacy. We have made significant advances in each of these areas throughout 2020.

SKIN CANCER PREVENTION

Our Skin Cancer Prevention Programme (SCPP) trains local dermatologists to deliver health information and treatment to 7,148 people with albinism at 73 clinical locations across Tanzania and Malawi. Clinics are held in hospitals and health centres, and provide patients with skin cancer screening; liquid nitrogen cryotherapy; health education; sun-protective clothing; surgery referral where necessary; and a regular supply of sunscreen. In Tanzania, the programme has been endorsed by the Government and the United Nations, and has reduced cancer prevalence by as much as 85% in locations where it has operated longest.

Following the outbreak of COVID-19, the Governments of Tanzania and Malawi took steps to control the spread of the virus, banning public gatherings, closing educational institutions and suspending international travel. These measures restricted our ability to deliver typical SCPP activities, forcing us to reevaluate and consider new approaches to service delivery. As well as postponing non-urgent activities like training workshops, we had to prepare for the possibility that the government health workers could be pulled away from the SCPP to support the countries’ responses to COVID-19.

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Standing Voice Report of the Trustees 1st January 2020 - 31st December 2020

We accordingly invested considerable time and resources in the development of a comprehensive action plan, which would prepare us for different eventualities, mitigating the risk of infection while continuing to provide life-saving services and support to people with albinism. Throughout the pandemic, we have managed to maintain our skin cancer services in Tanzania with COVID-19 management measures in place. These have included social distancing, increased hygiene and sanitation, and protective masks at places where gatherings are unavoidable. We have also supported tailors with albinism at our Umoja Training Centre to sew face masks, which have been distributed at clinics and directly in communities. We have integrated COVID-19 prevention into our health education sessions, and developed an information leaflet on COVID-19, sun protection, skin cancer and albinism, which we are distributing to thousands of people with albinism. In addition, we have established a helpline so people with albinism and their caregivers can directly contact us with any concerns relating to their health, social situation or security.

In Malawi, where government regulations have been stricter, we have been forced to adapt the SCPP delivery more significantly. Our team has travelled directly to patients’ communities to distribute health packages containing sunscreen, protective masks, soap and sanitary pads, and an information leaflet about albinism, skin cancer, and COVID-19. We have reduced patients’ travelling distances; limited the number of patients seen at one location; visited a wider network of health centres; and restricted clinical examinations only to high-risk patients. As in Tanzania, we have integrated COVID-19 prevention into our health education sessions and established a 24-hour helpline so patients and their caregivers can directly contact our team.

Despite the outbreak of COVID-19, 2020 has still seen our total number of registered patients climb to 6,549 in Tanzania. Of these, 3,693 patients receive our full clinical service, while 884 are remotely supported and 1,972 are served through sunscreen distribution only. Clinics have been delivered in 11 regions of Tanzania this year: Mwanza; Simiyu; Tabora; Geita; Singida; Dodoma; Shinyanga; Mara; Kagera; Kigoma; and Katavi. In Malawi, our registered patient total has reached 795 across five districts: Mangochi; Machinga; Nkhotakota; Salima and Lilongwe. The programme has also demonstrated extraordinary clinical impact in 2020, with reductions in rates of skin cancer and other malignant skin conditions across Tanzania and Malawi. In Tanzania, the average prevalence of harmful skin conditions has reduced by 6% in 2020 and the majority of patients requiring surgical intervention are now treated on-site by SV-trained dermatologists (rather than being referred to major hospitals). In situations where advanced cancer is diagnosed, Standing Voice has continued to coordinate referrals for life-saving treatment. 24 patients have been referred for further care through the SCPP this year. In both countries, compliance in the adoption of sun-protective behaviours has increased in 2020, growing to 87% in Tanzania and 76% in Malawi. As patients and their families absorb the messages and practices recommended in our educational sessions, we are beginning to see a population better equipped to protect its own welfare.

Where a patient’s diagnosis is terminal, Standing Voice continues to provide comprehensive palliative care and psychosocial support for patients and their families. We have tragically lost 5 patients this year, while 5 continue to receive end-of-life support.

Standing Voice is committed to expanding the Skin Cancer Prevention Programme internationally, to make high-quality dermatological healthcare a continental reality for people with albinism across Africa. With the continued support of our patients and partners, we will work hard to realise this ambition in the months and years ahead.

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Standing Voice
Report of the Trustees
1st January 2020 - 31st December 2020
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A patient with albinism undergoing cryotherapy at one 10
of our Skin Cancer Prevention clinics
Photo credit: Owen Mchekeni
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Standing Voice Report of the Trustees 1st January 2020 - 31st December 2020

VISION & EDUCATION

In many African countries, the low vision that people with albinism experience as a result of their melanin deficiency is widely misunderstood and rarely accommodated by health and education providers. This damages the participation and performance of many children with albinism in school, and restricts opportunities for professional development and income generation among many adults with albinism.

Since 2014, Standing Voice has partnered with the Government of Tanzania to establish a nationwide network of clinics providing vision care and education to 3,882 people with albinism across 9 regions of Tanzania. We target schools to improve educational performance and promote inclusive teaching practice, and have trained hundreds of teachers as ‘Vision Ambassadors’ tasked with promoting the rights of students with albinism in schools. Sadly in 2020 large-scale clinics were untenable due to the outbreak of COVID-19 in Tanzania and across the globe. Subsequently, Standing Voice turned our attention to strengthening the quality and sustainability of the Vision Programme through the training of teachers. Many

A patient with albinism being examined by an optometrist at a Vision Event in Tanzania

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Standing Voice Report of the Trustees 1st January 2020 - 31st December 2020

students with albinism in Tanzania underperform academically and grow up to be unskilled, unemployed and trapped in a structural cycle of poverty. By training teachers to nurture success and confidence among students with albinism at an early age, support networks are created for previously isolated individuals, creating role models and reversing stigma to ensure long-term integration and improved socio-economic security.

At the end of the year, and in partnership with the British and Foreign School Society, the Vision Programme team visited 15 schools across four regions of Tanzania to deliver training and provide remote support to 144 teachers. The programme benefitted 372 students with albinism across the 15 schools, with 86 students participating in focus group discussions to share their experiences and reflect on how their learning experience could be improved. In 2021, as a continuation of the partnership we hope to provide vision screening services to all students with albinism at the same 15 schools, and provide them with low vision assistive devices such as eye glasses, magnifiers and telescope monoculars.

Alongside our teacher training and school outreach in 2020, Standing Voice has also provided particularly close support for beneficiaries of our Education Scholarship Programme, which sponsors children and young adults with albinism to study at inclusive and high-achieving schools and universities. Following the closure of educational institutions due to COVID-19, our first priority was to ensure safe passage of these students to their home communities across Tanzania. This process was facilitated by our team, who maintained regular contact with all 20 students and regularly monitored their evolving needs and wellbeing during their time at home. Following the reopening of schools, all grantees have now safely returned to their respective schools to continue their education.

With the generous support of our funders and supporters, we hope to restart our Vision Programme clinical cycle next year to continue enhancing the lives of our patient network and improving the quality of education and further employment for students with albinism across Tanzania.

TRAUMA RECOVERY

In Malawi, 2020 has seen the launch of Standing Voice’s new trauma rehabilitation initiative for people with albinism. Funded by the United Nations Voluntary Fund for Victims of Torture, the project provides tailored material assistance to people with albinism who have survived physical and psychological violence in Malawi. The project has begun with an extensive mapping exercise, with our team visiting vulnerable people with albinism to undertake needs assessments and define priorities for further support, which may include housing and home security measures, micro-finance and livelihood support, medical or school supplies, facilitation of trauma recovery or family reconciliation, and direct advocacy interventions in situations of risk, conflict or exclusion.

In response to the outbreak of COVID-19, interviewers have explored the impact of the pandemic on beneficiaries’ needs and distributed information about the virus to beneficiaries and their families. Social distancing and enhanced sanitisation measures have been observed during the execution of needs assessments. The project is currently being piloted with 30 beneficiaries impacted by torture, but is due to be scaled up from 2021.

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Standing Voice Report of the Trustees 1st January 2020 - 31st December 2020

ECONOMIC EMPOWERMENT

Economic security and access to livelihoods are a pivotal (and often overlooked) challenge facing people with albinism. Stigma and discrimination—exacerbated by high rates of skin cancer, and neglected vision needs in classrooms and workplaces—deprive many people with albinism of income-generating opportunities and pathways of professional development. In 2013, SV built and founded the Umoja Training Centre (UTC): a facility providing formal training initiatives to promote integration and shared prosperity for the community of Ukerewe Island on Lake Victoria. Built in collaboration with the Ukerewe Albinism Society, the UTC is a hub of community integration and a centre of healing for vulnerable people with albinism who have experienced discrimination and violence. Today the UTC delivers vocational training in a range of disciplines including tailoring, photography, radio, storytelling and performance, print-making, batik, soap-making and art.

The outbreak of COVID-19 has made it more difficult for training groups to convene at the UTC and strengthen their skills in chosen disciplines. Our implementation of social distancing measures at the UTC has limited the number of people able to use UTC facilities at the same time.

Despite these restrictions, 2020 has seen the UTC training groups achieve significant progress in honing their skills, marketing their products, and generating income. In response to the pandemic, the ‘Tunajitambua Tailors’ have produced 550 protective masks and 930 wide-brimmed hats for distribution in the care packages provided through our Skin Cancer Prevention Programme. The soap-making group has similarly produced handmade soap, which is being sold directly to the Ukerewe community from the UTC. In May 2020, the tailoring, soapmaking and radio broadcasting groups legally registered as district social development groups: a significant achievement that allows participants to operate in community settings and apply for interest-free support loans from the district council. The Young Reporters Group also broadcast 22 radio programmes across three local stations, airing their voices to thousands of people in the Lake Zone.

For two years, the UTC Community Library has brought together all parts of the community through their love of reading including children and adults, students and teachers, farmers, community activists, entrepreneurs, local leaders and politicians. In 2020, 3,780 adults and children visited the library (530 of whom were people with albinism) and 122 books were borrowed from a collection of over 10,000 books and newspapers, with 2,668 new books being added to the library this year.

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A woman with albinism participates in a
Standing Voice tailoring course
Photo credit: Ebrahim Mirmalek
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Standing Voice Report of the Trustees 1st January 2020 - 31st December 2020

ADVOCACY

Standing Voice creates platforms for people with albinism to speak out against violence and assert their own rights. We advocate locally and globally for the welfare of people with albinism through documentary films, academic publications, interdisciplinary symposia and stakeholder consultations. Our organisation has special consultative status with the United Nations Economic and Social Council, with annual accreditation to attend and participate in a wide programme of human rights events across the globe.

Despite severe travel restrictions across the globe, in 2020 we have continued to advocate for the rights of people with albinism everywhere. Prior to the outbreak of COVID-19, Standing Voice’s Country Director for Malawi attended a historic meeting in Paris, where activists from six regions of the world voted unanimously to form a global albinism alliance. The vote was an important step toward building solidarity among albinism groups around the world. In March, we also returned to Geneva, where we presented our work in an address to the 43rd Session of the United Nations Human Rights Council. In June–despite a changing advocacy landscape in the wake of Covid-19–we joined with albinism advocates and organisations around the world in a virtual commemoration of International Albinism Awareness Day.

March this year also saw the launch of our latest local advocacy initiative funded by the Wellcome Trust. Using data generated by the Skin Cancer Prevention Programme, Standing Voice is working in partnership with the Bagamoyo Creative Arts Institute to empower people with albinism to engage with their own health data and explore creative responses to questions around albinism and skin cancer. The project began with training workshops in March, and, following a hiatus caused by COVID-19, resumed in November.

2020 also saw exciting steps toward the adoption and implementation of Tanzania’s National Action Plan on Albinism. Created under the supervision of the Prime Minister’s Office in the Ministry of Labour, Youth, Employment and Persons with Disabilities (PMO-LYED), the action plan was developed by a Coordinating Committee of which Standing Voice is the appointed Chair. Following extensive consultation and drafting throughout 2019, the plan was submitted to the Government of Tanzania for formal review in early 2020. The draft has since been assessed by the PMO-LYED Technical Committee, who have requested a final meeting with the Coordinating Committee to finalise the document and complete the government approval process. The plan provides the first official framework for monitoring and eradicating the discrimination and violence facing people with albinism in Tanzania. It will increase coordination between albinism organisations, and act as a crucial advocacy tool in holding the Government of Tanzania to account.

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Inaugural meeting of the Global Albinism
Alliance in Paris
Photo credit: Global Albinism Alliance
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Standing Voice Report of the Trustees 1st January 2020 - 31st December 2020

FUNDING MATTERS

GRANT-MAKING POLICY

The charity's policy is to make grants to collaborating organisations who are in need of funds to deliver a service in partnership with Standing Voice. On occasion the trustees may decide to give a grant to a beneficiary organisation that is not working in partnership with Standing Voice, but is working towards a shared objective of the charity.

In line with our current activities the organisation or service funded must promote the wellbeing and social inclusion of people with albinism in Africa through advancing health, education or community-based services.

All grants are awarded on the condition of robust accounting and financial reporting standards being adhered to by grant recipients.

FUNDRAISING ACTIVITIES IN THE UK

Standing Voice applies for grants from trust funds, grant-giving foundations and institutions, and corporate donors. Standing Voice also raises funds donated by individuals reached through direct approaches and by holding planned fundraising events and campaigns.

The charity's principal sources of funding during the year have consisted of grant funders and philanthropists donating to specific projects. Our plans for sponsored events have been restricted due to Covid-19.

We are proud to be funded by some of the most innovative grant funders who are active today including the Pierre Fabre Foundation, the Wellcome Trust, the International Foundation for Dermatology (IFD) and the United Nations Voluntary Fund for Victims of Torture (UNVFVT).

The trustees extend their sincere gratitude to all individuals and grant-givers who have donated to the organisation this year to ensure we continue our vital work.

FINANCIAL PERFORMANCE

Income during the period 1st January 2020 to 31st December 2020 amounted to £498,154 (1st April 2019-31st December 2019: £611,245). Voluntary income was £498,024 (December 2019 accounts: £606,393). Of the total income, £431,947 (December 2019 accounts: £511,022) was restricted and £66,207 (December 2019 accounts: £100,223) unrestricted. The restricted income consists of donated funds from grant funders and individuals. £356,148 (December 2019 accounts: £338,932) of restricted funding was carried forward. Unrestricted income was mainly from individual donations.

Expenditure amounted to £487,778 (December 2019 accounts: £515,490) of which £423,206 was project expenditure (December 2019 accounts: £463,495), £62,408 was fundraising expenditure (December 2019

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Standing Voice Report of the Trustees 1st January 2020 - 31st December 2020

accounts: £49,106) and £2,164 was governance costs (December 2019 accounts: £2,889). Of the total project expenditure, £414,731 was restricted expenditure (December 2019 accounts: £439,651) and £73,047 was unrestricted expenditure (December 2019 accounts: £75,839).

Standing Voice exercises a policy of setting aside 6 months of administration salaries and expenses as reserves to cover core costs in the event of the organisation encountering a period of reduced income. At the end of the financial year ending 31st December 2020 the charity carried forward a balance of £419,996 (December 2019 accounts: £409,620), and the organisation awaited funding responses from major grant funders. The trustees deemed reserve funds held to be sufficient, keeping in consideration the status of funding negotiations with key funders.

EXPENDITURE SUPPORTING KEY OBJECTIVES

The charity’s expenditure this year has promoted the wellbeing and social inclusion of people with albinism as a marginalised group, and as such has been consistent with the charity’s objectives.

People with albinism in Tanzania and Malawi have benefitted from vastly developed capacity; improved dermatological and low vision health services; increased access to education; and major advances in local and international awareness about societal reactions to albinism resulting from Standing Voice’s project activity. Through our training and coordination of Tanzanian and Malawian professionals we are proud to be building a sustained, locally driven response to the multi-faceted challenges experienced by this group whilst fortifying positive perceptions of albinism in society. This has been achieved by pursuing our purpose and objectives as a charity.

Tragically, people with albinism in Tanzania and Malawi do however remain the target of violent attacks resulting from their ostracism in society. In addition to tackling the root causes of these atrocities, during this reporting period we have supported many individuals and communities who have endured trauma, including child attack survivors and family members of victims.

By investing in structured initiatives in the period between December 2019-December 2020, the charity has met its overarching objective of assisting those who are socially excluded by advancing their integration in society. Ultimately we have achieved this through programmes that engage wider society, and local professionals, in tangible action that elevates people with albinism in their community.

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A mother and her baby with albinism at the Standing Voice Umoja Training Centre Standing Voice Photo credit: Innocent Mwandu Report of the Trustees 1st January 2020 - 31st December 2020

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Standing Voice Report of the Trustees 1st January 2020 - 31st December 2020

GOVERNANCE AND RISK

FUTURE PLANS OF THE CHARITY

In 2021, we will expand the geographical reach of our Skin Cancer Prevention Programme in both Tanzania and Malawi. We will accelerate further our training of community leaders, teachers, health professionals, people with albinism and their families. Our work to build the capacity of our beneficiaries will also develop through increasing these individuals’ access to information on their own welfare, and providing opportunities for them to communicate their own perspectives to key stakeholders who influence welfare outcomes. We will also continue adapting our dermatology services to allow for the inclusion of complimentary support at clinics, specifically psychosocial support and counselling. This will involve training a team of ‘first responders’ equipped to provide such services, led by Standing Voice staff members but also including other community stakeholders such as mothers of children with albinism, teachers, social workers and civil society leaders.

The expansion of our services in Malawi and Tanzania, both in terms of geographic scope and impact, will be combined with our sustained efforts to catalyse affirmative action from national governments. We will achieve this through our advocacy work within and beyond these countries of operation.

RISK

At present the primary risk to the internal management and administration of the charity is that of insufficient funding paired with pressures to meet growing challenges experienced by our beneficiary population.

We manage this risk through maintaining a varied portfolio of benefactor relationships, and the regular submission of new grant applications, combined with regular scrutinisation of our expenditure pipeline. The board holds regular financial planning discussions to assess the financial health of the organisation and plan accordingly. We consider the viability of programmatic action for the year considering both financial viability and Value for Money principles (‘economy, efficiency and effectiveness’).

Additionally, Standing Voice manages the risk of maladministration at the point of implementation through routine monitoring of our in-country teams in Tanzania and Malawi. Finance and activity reports are regularly scrutinised, and our UK trustees and management visit Standing Voice local offices and project areas. We hope to resume quarterly country visits following the easing of Covid-19 travel restrictions. Executive Management also monitors the flow of funds from the UK to our country offices through a twostep approval system involving the scrutiny and approval of all international transfers.

RESPONSIBILITIES OF THE BOARD OF TRUSTEES

The Trustees are responsible for managing the affairs of the CIO and may for that purpose exercise all the powers of the CIO. It is the duty of each charity trustee:

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Standing Voice Report of the Trustees 1st January 2020 - 31st December 2020

The charity Trustees are responsible for complying with the requirements of the Charities Act 2011 with regard to the keeping of accounting records, to the preparation and scrutiny of statements of account, and to the preparation of annual reports and returns for submission to the Charity Commission.

PUBLIC BENEFIT

In accordance with section 17 of the Charities Act 2011 the Trustees confirm that they have had regard to the Charity Commission’s guidance in relation to public benefit. The Trustees have referred to the Charity Commission’s general guidance on public benefit when reviewing the charity’s aims and objectives and in planning the charity’s future activities. In particular, the Trustees have considered how planned activities will contribute to the aims and objectives they have set.

TRUSTEES’ DECLARATION

So far as the Trustees are aware, there is no relevant information of which the charity independent examiner is unaware, and each Trustee has taken all the steps that he/she ought to have taken as a Trustee in order to make himself/herself aware of any relevant audit information and to establish that the charity’s independent examiner is aware of that information.

Approved by the Board of Trustees and signed on its behalf by:

Sabine Zetteler

Chair of the Board of Trustees 28/10/2021

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One of our patients in consultation with a doctor in Tanzania Photo credit: Innocent Mwandu

Standing Voice Report of the Trustees 1st January 2020 - 31st December 2020

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Standing Voice Report of the Trustees 1st January 2020 - 31st December 2020

ACCOUNTS

Independent Examiner’s Report to the Trustees of Standing Voice

I report on the accounts of the charitable company for the year to 31st December 2020 which are set out on the following pages.

Respective responsibilities of trustees and examiner

The trustees (who are also the directors of the company for the purposes of company law) are responsible for the preparation of the accounts. The trustees consider that an audit is not required for this year under section 114(2) of the Charities Act 2011 (the 2011 Act) and that an independent examination is needed.

The charity’s gross income exceeded £250,000 and I am qualified to undertake the examination by being a member of ICAEW.

independent examination, it is my responsibility to:

Basis of independent examiner’s report

My examination was carried out in accordance with the general directions given by the Charities Commission. An examination includes a review of the accounting records kept by the charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit and consequently no opinion is given as to whether the accounts present a ‘true and fair view’ and the report is limited to those matters set out in the statement below.

Independent examiner’s statement

In connection with my examination, no matter has come to my attention;

Martin R Vincent FCA

Astrum Accountants Ltd Maple House Cleeve Bristol BS49 4FS

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Standing Voice Report of the Trustees 1st January 2020 - 31st December 2020

Statement of Financial Activities (SoFA)

Statement of Financial Activities (Incorporating an Income and Expenditure Account) for the period ended 31 December 2020:

Notes Unrestricted
funds (£)
Restricted
income funds (£)
Total
2020 (£)
Total
2019 (£)
Unrestricted
funds (£)
Restricted
income funds (£)
Total
2020 (£)
Total
2019 (£)
Unrestricted
funds (£)
Restricted
income funds (£)
Total
2020 (£)
Total
2019 (£)
Unrestricted
funds (£)
Restricted
income funds (£)
Total
2020 (£)
Total
2019 (£)
Income and endowments from:
Donations and legacies
Other trading activities
Income from investments
Income from charitable activities
Other income
66,077
-
130
-
-
431,947
-
-
-
-
498,024
-
130
-
-
606,393
4,749
103
-
-
Total income and endowments 2 66,207 431,947 498,154 611,245
Expenditure on:
Raising funds
Charitable activities
Other expenditure
6,596
64,287
2,164
55,812
358,919
-
62,408
423,206
2,164
49,106
463,495
2,889
Total expenditure 3 73,047 414,731 487,778 515,490
Net income/(expenditure) and
net movement in funds for the
year
Net income/(expenditure) before
other recognised gains/(losses)
Other recognised gains/(losses)
Gains and losses on revaluation of
fxed assets for charity’s own use
Gains and losses on investment
assets
Net income/(expenditure) and
movement in funds for the year
Total funds brought forward
-6,840 17,216 10,376 95,755
-6,840
-
-
17,216
-
-
10,376
-
-
95,755
-
-
-6,840
70,688
17,216
338,932
10,376
409,620
95,755
313,865
Total funds carried forward 63,848 356,148 419,996 409,620

The Statement of Financial Activities includes all gains and losses recognised in the year. All the activities derive from continuing operations during the above periods.

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Standing Voice Report of the Trustees 1st January 2020 - 31st December 2020

BALANCE SHEET

Balance Sheet as at 31 December 2020

Notes Unrestricted
funds (£)
Restricted
income funds (£)
Period to 31
December
2020 (£)
Period to 31
December
2019 (£)
Unrestricted
funds (£)
Restricted
income funds (£)
Period to 31
December
2020 (£)
Period to 31
December
2019 (£)
Unrestricted
funds (£)
Restricted
income funds (£)
Period to 31
December
2020 (£)
Period to 31
December
2019 (£)
Unrestricted
funds (£)
Restricted
income funds (£)
Period to 31
December
2020 (£)
Period to 31
December
2019 (£)
Fixed assets
Tangible investments
Intangible investments
- 13,776 13,776 -
Total fxed assets - 13,776 13,776 -
Current assets
Debtors and prepayments
5
Cash at bank and in hand
58,425
21,711
16,528
345,190
74,953
366,901
101,455
336,421
Total current assets 80,136 361,718 441,854 437,876
Liabilities
Creditors: amounts falling due
within one year
6
Net current assets/(liabilities)
(16,288) (19,346) (35,634) (28,256)
63,848 342,372 406,220 409,620
Total assets less current
liabilities
63,848 356,148 419,996 409,620
Creditors: amounts falling due
after one year
Provisions for liabilities and
charges
-
-
-
-
-
-
-
-
Net assets 63,848 356,148 419,996 409,620
Funds of the charity
Unrestricted funds
Restricted income funds
7
Endowment funds
63,848 356,148 63,848
356,148
-
70,688
338,932
-
Total funds 63,848 356,148 419,996 409,620

The financial statements were approved and authorised for issue by the Trustees on 28/10/2021 and signed on their behalf by:

Gurmeet Kaur

Treasurer of the Board of Trustees

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Standing Voice Report of the Trustees 1st January 2020 - 31st December 2020

BASIS OF PREPARATION

Basis of preparation and accounting policies 1st January to 31st December 2020

The financial statements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2015) – Charities SORP (FRS 102) and the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102). Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy notes.

1. ACCOUNTING POLICIES

This list of accounting policies has been applied by the charity.

Incoming Resources Incoming Resources
Recognition of incoming
resources
These are included in the Statement of Financial Activities (SoFA) when:
- the charity becomes entitled to the resources;
- the trustees are virtually certain they will receive the resources; and
- the monetary value can be measured with sufcient reliability
Incoming resources with
related expenditure
Where incoming resources have related expenditure (as with fundraising or contract
income) the incoming resources and related expenditure are reported gross in the
SoFA.
Grants and donations Grants and donations are only included in the SoFA when the charity has
unconditional entitlement to the resources.
Tax reclaims on donations
and gifts
Incoming resources from tax reclaims are included in the SoFA at the same time as
the gift to which they relate.
Contractual income and
performance-related grants
This is only included in the SoFA once the related goods or services have been
delivered.
Gifts in kind Gifts in kind are accounted for at a reasonable estimate of their value to the charity or
the amount actually realised.
Gifts in kind for sale or distribution are included in the accounts as gifts only when
sold or distributed by the charity.
Gifts in kind for use by the charity are included in the SoFA as incoming resources
when receivable.
Donated services and
facilities
These are only included in incoming resources (with an equivalent amount in
resources expended) where the beneft to the charity is reasonably quantifable,
measurable and material. The value placed on these resources is the estimated value
to the charity of the service or facility received.
Volunteer help The value of any voluntary help received is not included in the accounts but is
described in the trustees’ annual report.
Investment income This is included in the accounts when receivable.
Investment gains and
losses
This includes any gain or loss on the sale of investments and any gain or loss
resulting from revaluing investments to market value at the end of the year.

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Standing Voice Report of the Trustees 1st January 2020 - 31st December 2020

Expenditure and Liabilities Expenditure and Liabilities
Liability recognition Liabilities are recognised as soon as there is a legal or constructive obligation
committing the charity to pay out resources.
Governance costs Include costs of the preparation and examination of statutory accounts, the costs of
trustee meetings and cost of any legal advice to trustees on governance or
constitutional matters.
Grants with performance
conditions
Where the charity gives a grant with conditions for its payment being a specifc level of
service or output to be provided, such grants are only recognised in the SoFA once
the recipient of the grant has provided the specifed service or output.
Grants payable without
performance conditions
These are only recognised in the accounts when a commitment has been made and
there are no conditions to be met relating to the grant which remain in the control of
the charity.
Support Costs Support costs include central functions and have been allocated to activity cost
categories on a basis consistent with the use of resources, e.g. allocating property
costs by foor areas, or per capita, staf costs by the time spent and other costs by
their usage.
Assets
Tangible fxed assets for use These are capitalised if they can be used for more than one year, and cost at least
by charity £500. They are valued at cost or a reasonable value on receipt.
Investments quoted on a recognised stock exchange are valued at market value at the
Investments year-end. Other investment assets are included at trustees' best estimate of market
value.
Stocks and work in progress These are valued at the lower of cost or market value.

2. ANALYSIS OF INCOME AND ENDOWMENTS

Analysis Analysis 2020 (£)
2019 (£)
2020 (£)
2019 (£)
Donations and Legacies Restricted income
Unrestricted income
431,947
66,077
511,022
95,371
498,024 606,393
Other trading activities
Income from investments
Other income
Bank interest -
130
-
4,749
103
-
Total income and endowments 498,154 611,245

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Standing Voice Report of the Trustees 1st January 2020 - 31st December 2020

3. ANALYSIS OF RESOURCES EXPENDED

Analysis Analysis 2020 (£)
2019 (£)
2020 (£)
2019 (£)
Costs of generating voluntary
income
Staf costs
Support costs
53,351
9,057
37,400
11,706
62,408 49,106
Charitable activities
Governance costs
Staf costs
Support costs
Direct project costs
Independent examiner’s fee
Accounting advice & payroll services
Trustees’ expenses
Trustee meeting
124,386
21,132
277,688
87,267
28,277
347,951
423,206 463,495
1,200
964
-
-
1,200
876
300
513
2,164 2,889
Total 487,778 515,490

4. TANGIBLE FIXED ASSETS

Freehold land
and buildings
(£)
Other land and
buildings (£)
Plant,
machinery and
motor vehicles
(£)
Fixtures, fttings
and equipment
(£)
Total (£)
Freehold land
and buildings
(£)
Other land and
buildings (£)
Plant,
machinery and
motor vehicles
(£)
Fixtures, fttings
and equipment
(£)
Total (£)
Freehold land
and buildings
(£)
Other land and
buildings (£)
Plant,
machinery and
motor vehicles
(£)
Fixtures, fttings
and equipment
(£)
Total (£)
Freehold land
and buildings
(£)
Other land and
buildings (£)
Plant,
machinery and
motor vehicles
(£)
Fixtures, fttings
and equipment
(£)
Total (£)
Freehold land
and buildings
(£)
Other land and
buildings (£)
Plant,
machinery and
motor vehicles
(£)
Fixtures, fttings
and equipment
(£)
Total (£)
Freehold land
and buildings
(£)
Other land and
buildings (£)
Plant,
machinery and
motor vehicles
(£)
Fixtures, fttings
and equipment
(£)
Total (£)
Cost
At 1 January 2020
Additions
Disposals
-
-
-
-
-
-
-
14,608
-
-
-
-
-
14,608
-
At 31 December
2020
- - 14,608 - 14,608
Depreciation
At 1 January 2020
Charge for the year
Disposals
-
-
-
-
-
-
-
832
-
-
-
-
-
832
-
At 31 December
2020
- - 832 - 832
Net Book Value
At 31 December
2020
- - 13,776 - 13,776
At 1 January 2020 - - - - -

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Standing Voice Report of the Trustees 1st January 2020 - 31st December 2020

5. DEBTORS AND PREPAYMENTS

Analysis of debtors
Amounts falling due
within one year (£)
Amounts falling due after
more than one year (£)
Analysis of debtors
Amounts falling due
within one year (£)
Amounts falling due after
more than one year (£)
Analysis of debtors
Amounts falling due
within one year (£)
Amounts falling due after
more than one year (£)
Analysis of debtors
Amounts falling due
within one year (£)
Amounts falling due after
more than one year (£)
Analysis of debtors
Amounts falling due
within one year (£)
Amounts falling due after
more than one year (£)
2020
2019
2020
2019
Trade debtors
Amounts due from subsidiary and associated
undertakings
Other debtors
Prepayments and accrued income
-
10,958
63,995
-
60
93,154
8,241
-
-
-
-
-
-
-
-
Total 74,953 101,455 - -

6. CREDITORS AND ACCRUALS

Analysis of creditors Amounts falling due
within one year (£)
Amounts falling due after
more than one year (£)
Amounts falling due
within one year (£)
Amounts falling due after
more than one year (£)
Amounts falling due
within one year (£)
Amounts falling due after
more than one year (£)
Amounts falling due
within one year (£)
Amounts falling due after
more than one year (£)
2020
2019
2020
2019
Loans and overdrafts
Trade creditors
Amounts due to subsidiary and associated undertakings
PAYE
Other creditors
Accruals and deferred income
-
-
-
-
5,157
30,477
-
-
330
-
6,989
20,937
-
-
-
-
-
-
-
-
-
-
-
-
Total 35,634 28,256 - -

7. RESTRICTED FUNDS

Fund Name Purpose and Restrictions Skin Cancer Prevention Skin cancer prevention services for people with albinism in Tanzania and Malawi (Restricted)

Research (Restricted) Research into access to health for people with albinism in Tanzania Creating and promoting positive imagery of people with albinism in Africa to raise Awareness Raising (Restricted) awareness Vision Programme (Restricted) Vision services for people with albinism in Tanzania

Umoja Children Centre Building of a centre for learning and healing for children with albinism in Tanzania

Training, learning resources and tailored support to improve social inclusion for Tailoring Project (UTC) people with albinism in Tanzania

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Standing Voice Report of the Trustees 1st January 2020 - 31st December 2020

Movement of major funds:

Fund names
Fund
balances
brought
forward 1
January
2020 (£)
Incoming
resources
(£)
Outgoing
resources
(£)
Transfers
(£)
Gains and
losses (£)
Fund
balances
carried
forward 31
December
2020 (£)
Fund names
Fund
balances
brought
forward 1
January
2020 (£)
Incoming
resources
(£)
Outgoing
resources
(£)
Transfers
(£)
Gains and
losses (£)
Fund
balances
carried
forward 31
December
2020 (£)
Fund names
Fund
balances
brought
forward 1
January
2020 (£)
Incoming
resources
(£)
Outgoing
resources
(£)
Transfers
(£)
Gains and
losses (£)
Fund
balances
carried
forward 31
December
2020 (£)
Fund names
Fund
balances
brought
forward 1
January
2020 (£)
Incoming
resources
(£)
Outgoing
resources
(£)
Transfers
(£)
Gains and
losses (£)
Fund
balances
carried
forward 31
December
2020 (£)
Fund names
Fund
balances
brought
forward 1
January
2020 (£)
Incoming
resources
(£)
Outgoing
resources
(£)
Transfers
(£)
Gains and
losses (£)
Fund
balances
carried
forward 31
December
2020 (£)
Fund names
Fund
balances
brought
forward 1
January
2020 (£)
Incoming
resources
(£)
Outgoing
resources
(£)
Transfers
(£)
Gains and
losses (£)
Fund
balances
carried
forward 31
December
2020 (£)
Fund names
Fund
balances
brought
forward 1
January
2020 (£)
Incoming
resources
(£)
Outgoing
resources
(£)
Transfers
(£)
Gains and
losses (£)
Fund
balances
carried
forward 31
December
2020 (£)
Skin Cancer Prevention
Research
Awareness Raising
Vision Programme
Umoja Children Centre
Malawi Operations
Victim Support
Core Costs
58,073
33,617
71,812
12,763
121,546
201
22,127
18,793
88,590
-
-
54,209
-
18,069
271,079
122,210
13,630
13,169
52,073
-44
14,472
10,112
189,109
-
-
-
-
-
-
-
-
-
-
-
-
24,453
19,987
58,643
14,899
121,590
3,798
12,015
100,763
Total Restricted Funds 338,932 431,947 414,731 - - 356,148

8. DETAILS OF CERTAIN ITEMS OF EXPENDITURE

Trustee expenses
2020 (£)
2019 (£)
Trustee expenses
2020 (£)
2019 (£)
Trustee expenses
2020 (£)
2019 (£)
Number of trustees who were paid expenses
Nature of the expenses
1
Bill payments
1
Bill payments
Total amount paid (£) 357 300
Fees for examination of the accounts
2020 (£)
2019 (£)
Independent examiner’s or auditor’s fees for reporting on the accounts
Other fees (for example: advice, consultancy, accountancy services) paid to
the independent examiner or auditor
1,200
964
1,200
876

9. STAFF COSTS

Staf costs
2020 (£)
2019 (£)
Staf costs
2020 (£)
2019 (£)
Staf costs
2020 (£)
2019 (£)
Gross wages, salaries and benefts in kind
Employer’s National Insurance costs
Pension costs
159,736
14,802
3,199
112,829
10,325
2,257
Total staf costs 177,737 125,411

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Standing Voice Report of the Trustees 1st January 2020 - 31st December 2020

Average number of full-time equivalent employees in the year
2020 (£)
2019 (£)
Average number of full-time equivalent employees in the year
2020 (£)
2019 (£)
Average number of full-time equivalent employees in the year
2020 (£)
2019 (£)
The parts of the charity in which the employees work:
Fundraising
Charitable activities
Governance
Other
2
3
1
-
1
4
1
-
Total 6 6

10. GRANT-MAKING

Grants made to individuals/institutions Grants made to individuals/institutions Grants made to individuals/institutions
Purpose for which grants made
2020
2019
Amount (£)
Amount (£)
Health services / skin cancer prevention treatments and manufacturing of sunscreen 827 6,000
Total 827 6,000

There were no support costs associated with the charity’s grant-making.

11. TRANSACTIONS WITH RELATED PARTIES

Amounts paid or beneft value Amounts paid or beneft value Amounts paid or beneft value Amounts paid or beneft value
Name of trustee or connected party
Legal authority (e.g. order, governing
document)
2020 (£)
2019 (£)
Harry Freeland Governing document 44,412 33,750

There are no amounts owing to or from the charity’s trustees or other related parties by the charity at the year end. All transactions undertaken by (or on behalf of) the charity in which a trustee or related party has a material interest have been disclosed in the Notes to the Accounts.

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Standing Voice
Report of the Trustees
1st January 2020 - 31st December 2020
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A group of patients waiting to be seen at a clinic in Tanzania

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