Country

England & Wales

Charity number

1150058

Status

Registered

Registered

Dec. 5, 2012

Legal form

Trust

Address

Contact

Activities

Collect donations. Made donations towards supporting LND family to include subsistence, cost of treatment and specialist equipment. Made donation to graduate studying LND behaviours and conducting research.

Objects: (1) To Relieve The Needs Of Individuals With Lesch-Nyhan Syndrome, Their Families And Carers In Particular, But Not Exclusively, Through (I) The Provision And Facilitation Of Support, Care And Treatment, (Ii) Educational And Developmental Tools, AIDS And Equipment (Iii) Networking To Exchange Experiences And Knowledge, And (Iv) Respite Care.(2) To Educate The Public About Lesch-Nyhan Syndrome Through, In Particular, But Not Exclusively (I) Funding Research Into Lesch-Nyhan Syndrome, Its Diagnosis, Its Treatment And To Progress Towards The Development Of A Cure (Ii) Raising Awareness Of Lesch-Nyhan Syndrome (Iii) Co-Ordinating A Central Database Of Lesch-Nyhan Syndrome Families, Experienced Professionals, Medicines, Treatments And Specialist Equipment.

Classification

How

Makes Grants To Individuals, Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research

What

Education/training, The Advancement Of Health Or Saving Of Lives

Who

Children/young People, People With Disabilities

Areas of operation

Region

Throughout England And Wales

Finances

Trustees

Nearby

• Astwood Bank Primary School PTA 0.1 mi
• 1St Church Hill Scout Group 0.2 mi
• Redditch District Scout Council 0.2 mi
• The Astwood Bank And District Welfare Association 0.3 mi
• The Stephen Burman Charitable Trust 0.6 mi

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