# BEACON: FOR RARE DISEASES LTD

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1149646
- **Other names:** FINDACURE FOUNDATION
- **Status:** Registered
- **Legal form:** Charitable company
- **Company number:** [08174973](https://find-and-update.company-information.service.gov.uk/company/08174973)
- **Registered:** Nov. 7, 2012
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1149646


## Contact

- **Address:** 66 DEVONSHIRE ROAD, CAMBRIDGE
- **Postcode:** CB1 2BL
- **Phone:** 01223 222767
- **Email:** admin@rarebeacon.org
- **Website:** www.rarebeacon.org



## Activities

**Objects:** (1) TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC IN ALL AREAS RELATING TO FUNDAMENTAL DISEASES AND THEIR CAUSES, EFFECTS AND TREATMENTS; (2) TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERERS OF FUNDAMENTAL DISEASES AND THEIR CARERS THROUGH THE PROVISION OF SUPPORT, EDUCATION AND PRACTICAL ADVICE; (3) TO SUPPORT RESEARCH INTO THE CAUSES, EFFECTS, TREATMENT AND MANAGEMENT OF FUNDAMENTAL DISEASES AND THEIR APPLICATION TO COMMON DISEASES, AND DISSEMINATE THE USEFUL RESULTS THEREOF.

**Activities:** Findacure works to:Empower patient groups to build their patient community, develop as a charity, and drive treatment research and development.Promote collaboration between rare disease stakeholders to facilitate treatment development for all.




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Acts As An Umbrella Or Resource Body
- **What:** General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, Elderly/old People, People With Disabilities, Other Charities Or Voluntary Bodies, The General Public/mankind



## Geography

- **Area of benefit:** NATIONAL
- Northern Ireland
- Scotland
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| ANDREW MILLIGAN |  | Oct. 11, 2012 |
| Dr ANTHONY KENT HALL |  | Oct. 11, 2012 |
| Dr Rebecca Godfrey |  | Dec. 3, 2025 |
| Joanne Patra Pisani |  | Oct. 11, 2019 |
| Kamlesh Kanaiyalal Sheth |  | Dec. 3, 2025 |
| Michael Paul Wilbur |  | Dec. 3, 2025 |
| Scott Robin Hutchings |  | Dec. 3, 2025 |
| Shannon Marie Gunn |  | Dec. 3, 2025 |
| Sophie Costello |  | Oct. 11, 2019 |




