Company number 7904047 (England and Wales) Charity number 1147839
THE PERNICIOUS ANAEMIA SOCIETY
Financial Statements For the year ended 31st March 2024
THE PERNICIOUS ANAEMIA SOCIETY
Financial Statements For the year ended 31st March 2024
| CONTENTS | |
|---|---|
| PAGES | |
| Reference and Administrative Information | 1 |
| Report of the Trustees | 2-11 |
| Report of the Independent Examiner | 12 |
| Statement of Financial Activities | 13 |
| Balance Sheet | 14 |
| Notes to the Financial Statements | 15-21 |
THE PERNICIOUS ANAEMIA SOCIETY
REFERENCE AND ADMINISTRATIVE INFORMATION
Charity Name Charity registration number 1147839 Company registration number 7904047 Registered Office and Brackla House operational address Brackla Street Bridgend Glamorgan CF31 1BZ
The Pernicious Anaemia Society
Trustees
(Resigned 7 December 2023) (Chair from 16 September 2023) (Treasurer to 16 September 2023)
Katrina Burchell (Resigned 7 December 2023) Elizabeth Smart (Chair from 16 September 2023) David Connell-Smith (Treasurer to 16 September 2023) Theresa Berta Taylor Dr Lenira Ferreira Semedo (Resigned 16 September 2023) Dr Anna Guildford (Resigned 16 September 2023) Stephen Ganter Dr John Pelham Warren Tara Tierney (Appointed 16 September 2023) Andrew Emerson (Appointed 16 September 2023) Alex David (Appointed 16 September 2023)
Management Committee
Katrina Burchell (CEO from 16 September 2023) David Connell-Smith (To 16 September 2023) Karyl Carter Petra Visser Nicola Finck (Treasurer from 16 September 2023) Company Secretary David Connell-Smith (To 16 September 2023) Nicola Finck (From 16 September 2023) Independent Examiner Mrs H Rumsey Ensors Accountants LLP Connexions, 159 Princes Street Ipswich IP1 1QJ Bankers National Westminster Bank Plc 28 Adare Street Bridgend CF31 1EN
Page 1
THE PERNICIOUS ANAEMIA SOCIETY Report of the Trustees for the year ended 31st March 2024
The trustees present their report and the unaudited financial statements of the charity for the year ended 31 March 2024. The details on page one form part of this report.
The financial statements have been prepared in accordance with the accounting policies set out in note 1 to the accounts and comply with the charity's governing document, the Charities Act 2011 and 'Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and the Republic of Ireland (FRS102)'. They are also prepared in accordance with the Companies Act 2008.
OBJECT OF THE CHARITY
To promote and protect the physical and mental health of sufferers of pernicious anaemia. Advance the education of the general public in all areas relating to pernicious anaemia. Promote and participate in research into the causes and treatment of pernicious anaemia.
PUBLIC BENEFIT
The trustees are aware of the Charity Commission's guidance in relation to delivering public benefit and believe the charity is fulfilling its requirements.
REVIEW OF THE YEAR - Chair's report
see pages 3 to 8
Page 2
THE PERNICIOUS ANAEMIA SOCIETY Year ended 31 March 2024
Chair of Trustees Annual Report
Charity name – Pernicious Anaemia Society Registered charity number - 1147839 Charity’s principal address - The Pernicious Anaemia Society Brackla House, Brackla Street Bridgend, CF31 1BZ
Trustees – Alex Aitcheson-David, David Connell-Smith, Andrew Emerson, Stephen Ganter, Liz Smart (Chair), Theresa Taylor, Tara Tierney, Dr. John Warren
Summary of the purposes of the charity
To offer and provide information about Pernicious Anaemia, its causes, effects, and treatment. To offer and provide help and support to sufferers of Pernicious Anaemia and their families.
Our main activities are to promote and participate in research into the causes and treatment of Pernicious Anaemia to improve the diagnosis and treatment of the condition.
We are focused on our service users. Our ethos reflects this, and we concentrate on the dignity of individuals who have the right to participate in the design and monitoring of their treatment.
Trustees are identified by the executive and are invited to produce a CV. Final selection is made by the Board of Trustees. On appointment, all the Trustees are issued guidance by the Charity Commission on public benefit.
The contribution made by volunteers is substantial. All the work of the Society is carried out by volunteers. The small group who forms the Executive carry out the majority of the work of the Society which is substantial including responding to email enquiries from members. The helpline and support group volunteers along with the Trustees are all committed to the aims of the Society. Further, the Trustees aim to help with the Society’s new business plan e.g. fundraising, supporting the finance manager, writing blogs etc.
The Society, despite its size has achieved much in the previous year. New alliances have been forged which will support the aims of the Society. New support groups have been established, one in the USA. The long-awaited NICE Guideline on B12 deficiency was finally published and identified the lack of research on the topic. The Guideline omitted to use the term Pernicious Anaemia in its title, however our Society continues to support research and the Priority Setting Partnership in conjunction with the James Lind Alliance has identified the Top Ten uncertainties of Pernicious Anaemia. The Society, despite its limited budget, is funding two PHD students which will add to the knowledge base on Pernicious Anaemia.
The Charity’s financial position at the end of the period. As with most charities this year has been difficult; membership levels had been dropping as more and more online information became available. Grants and funding became more difficult to come by and were often focused on specific areas of health or social issues which excluded the specialist nature of our condition. This combined with the legacy expenditure committed by the founder of PAS before he left the organisation, which paid for the JLA research but which was also allocated to pay for two PhD students to carry out research over the next 4-5 years has resulted in a need to concentrate our focus on fundraising in order to meet our objectives.
Page 3
THE PERNICIOUS ANAEMIA SOCIETY Year ended 31 March 2024 CHAIR’S REPORT (continued)
CHIEF EXECUTIVE OFFICER’S REPORT
This last year has been a very busy and exciting one for the charity. We embarked on drafting our 3- year business plan with help from the trustees and on an in-depth review of our goals and missions, our fundraising and communication plans thanks to the very generous help of ZS Consultancy who have freely and willingly given up their time to help us. The outcome of this work and the long list of “to do” items it generated has enthused the management committee and will significantly benefit members and people with pernicious anaemia worldwide. There is still work to do on finalising the documentation but during this past year we have started building on some of the foundations these discussions have recommended. This last financial year was the first under our new structure with a more formalised board of Trustees, a Chief Executive Officer and a Management Committee with well-defined roles and meeting schedules.
JAMES LIND ALLIANCE PRIORITY SETTING PARTNERSHIP ON PERNICIOUS ANAEMIA and RESEARCH The Top Ten uncertainties identified by the Priority Setting Partnership with the James Lind Alliance remains a core priority for the Society and together with the University of Surrey and the PhD student we are supporting, we have made strides into some of the key questions. We continue to work with numerous other research bodies looking for other opportunities to further research in this area. I was involved in the GW4 Fatigue Study workshops and further work needs to be done to identify sources who can drive research projects on the questions which are so important to our members. We are starting work with the PhD student we are partially funding in Norwich which will be looking at a very interesting area of B12 Deficiency.
NATIONAL INSTITUTE FOR HEALTH AND CARE EXCELLENCE GUIDELINE ON VITAMIN B12 DEFICIENCY
NICE encountered challenges in getting sufficient expertise and relevant research to work on the drafting of the guidelines and regrettably, in our view, they dropped the reference to Pernicious Anaemia in the title and the remit excluded B12 deficiency in under 16s. The publication of the Draft in August 2023 gave the Society as stakeholders the opportunity to give feedback and we sent in more than 44 pages of comments backed up by patient experience and links to research. The guidelines were published on 6[th] March 2024 and the Society issued a statement and press release. The statement can be found on our website. Through our membership of the B12-Alliance and with myself as chair of that organisation we were also able to benefit from the social media campaign that organisation ran alongside ours. There is much to do regarding further research and education of the health care profession which is part of our future focus.
CLUB-12
Our involvement with Club-12 continues and I regularly attend the twice monthly meetings of the wider organisation and the research meetings of the PA sub-group. During 2023 the B12-Alliance was formed which is a group representing the not-for-profit patient advocacy sector and I was appointed the first chair. Working together with other organisations gives us the opportunity to speak with a louder voice in some instances but still enables us to speak to our own specific issues under the banner of our own organisation. As chair of the B12-Alliance I helped set up the working group which has now commenced work on the Education programme for the Health Care Professionals on B12 Deficiency including Pernicious Anaemia, this is going to be vitally important for doctors, healthcare workers and patients alike.
Page 4
THE PERNICIOUS ANAEMIA SOCIETY Year ended 31 March 2024 CHAIR’S REPORT (continued)
AGM 2022
The Annual General Meeting of the Society took place virtually on Saturday, 16[th] September 2023.
PA DAY and SEMINAR
We introduced in a low-key way, the concept of a day specifically recognising Pernicious Anaemia and settled on 12[th] October 2023. We plan to make this bigger over the coming years hopefully generating fundraising and raising awareness activities. We held a Seminar on 14[th] October 2023 where the speakers were Kourosh Ahmadi, Alfie Thain and Nicola Ward.
MANAGEMENT COMMITTEE
During the last financial year, the management committee has been focussed on a number of vital tasks required to update our systems particularly in the area of accounting and reporting. This has been a huge amount of work, especially for our Treasurer, not least with challenges we faced from NatWest Bank whose policy and approach to charity accounts required us to go to the Ombudsman to get our bank account updated with signatories and trustee names. A huge amount of effort was made by both our former and the existing treasurer and eventually NatWest complied with what they were legally required to do. Escalating costs of insurance and many services which the charity has to fund from our membership subscriptions has been a challenge during this financial year but, recognising the challenges for PA patients in their own journey which sometimes means they cannot work, we have kept the subscription rates the same. Our social media policy introduced in the previous year is beginning to show dividends. A large amount of work has been done by our office manager on training of support group co-ordinators, help desk volunteers and three of our volunteers took part in Expert Witness training. Our newsletter content continues to go from strength to strength and I introduced a series of blogs written by experts in the field which have been warmly received with excellent feedback from our members and are frequently shared on the social media pages of other organisations all helping to raise awareness of the charity and Pernicious Anaemia. We have issued two updated help sheet guidelines and continued to update the material on our website.
Membership
Total members on 31st March 2024: 8,552
----- Start of picture text -----
Total Members
7000 61416134
6000
5000
4000
3000
16271721
2000
496 544
1000 61 80 71 73
0
Gold Silver Bronze Healthcare Legacy
Affiliate
as at 31 March 2023 as at 31 March 2024
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²Legacy members are those who joined with a lifetime fee of £20. They do not incur any annual membership renewal fee.
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THE PERNICIOUS ANAEMIA SOCIETY Year ended 31 March 2024 CHAIR’S REPORT (continued)
New members 01.04.22 - 31.03.23 Total 329
----- Start of picture text -----
New Members
273
300
207
200
82
100 59 50 57
6 2
0
Gold Silver Bronze Healthcare
Affiliate
as at 31 March 2023 as at 31 March 2024
----- End of picture text -----
HCA = Healthcare Professional Affiliates. HCA's are offered free membership if they are currently treating or working with patients with Pernicious Anaemia. 432 cancellations and expirations.
GEODEMOGRAPHICS
Membership geodemographics
----- Start of picture text -----
100%
80%80%
80%
60%
40% 9.50% 2.80% 1.50% 1.30% 4.90%
20% 9.80% 2.80% 1.50% 1.30% 4.80%
0%
UK USA Australia Canada Ireland Rest of the
world
as at 31 March 2023 as at 31 March 2024
----- End of picture text -----
Geo website visits
----- Start of picture text -----
By Country
55.1%
70.0% 59.0%
60.0%
50.0%
26.4%
40.0%
30.0% 25.0% 5.4% 2.2% 1.3% 1.0%
20.0%
6.0%
10.0% 2.6% 2.0% 1.4% 1.1% 1.0% 1.0% 0.7% 2.2%
0.0%
as at 31 March 2023 as at 31 March 2024
----- End of picture text -----
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THE PERNICIOUS ANAEMIA SOCIETY Year ended 31 March 2024 CHAIR’S REPORT (continued)
Website analytics
| Website analytics | Website analytics | Website analytics |
|---|---|---|
| User Analytics | ||
| as at 31 March 2023 | as at 31 March 2024 | |
| Page Views | 299,524 | No data available |
| Users | 102,805 | 98000 |
| New Users | 92% | No data available |
| Sessions | 137509 | No data available |
| Average Session Duration | 00:02:36 | 00:02:53 |
| Pages/Session | 2.18 | 2.26 |
How did they find us?
| How did they find us? | ||
|---|---|---|
| as at 31 March 2023 | as at 31 March 2024 | |
| Organic Search | 75% | 57.80% |
| Direct | 18% | 22.30% |
| Social Media | 3% | 15% |
| Referral from other sites | 4% | 4.9% |
-
2024 Most visited website pages:
-
1 Homepage
-
2 Symptoms
-
3 Testing for Pernicious Anaemia
-
4 What is Pernicious Anaemia?
-
5 Only one chance (blog post)
-
6 B12 deficiency and pernicious anaemia
-
7 Diagnosis
-
8 Treatment
-
9 Member login
-
10 Personal stories
Social Media
Overall Top Performing Content 2024
-
1 Symptoms of Pernicious Anaemia
-
2 PA Misconceptions
-
3 Unravelling the mystery: How B12 works in the body
-
4 NICE guideline: Vitamin B12 deficiency in over 16s: diagnosis and management
-
5 NICE National Institute for Health and Care Excellence
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----- Start of picture text -----
Followers of PAS on Social Media
12000
9881
10000 9100
8000
6000
4000 2747
2000 800 1102
0
Facebook Instagram Twitter
2023 2024
----- End of picture text -----
The Future
The new year has started to see some improvements, our social media strategy is beginning to pay dividends as membership numbers have gradually started to increase and some of our existing members have converted their legacy membership to either the Annual or Lifetime memberships. Our online seminar on 24[th] April 2024, for which there was a small charge, was well attended and helped to cover the cost of running it. We are continuing to introduce new fundraising ideas including applying for grants and funding, which we believe, that armed with our new clear business plan and detailed strategy report, both of which are of a considerably higher standard than previously, will pay dividends during 2025 and ongoing. We will still face the challenges that many small charities face, but with the continued support of our members and our committed management committee and volunteers, we aim to improve and stabilise our financial situation and work towards a future where we can support more research to provide brighter tomorrows for our membership and all pernicious anaemia sufferers. Alongside our financial growth, we need to grow our dedicated and specialist volunteers to help realise our goals of making a significant impact in the next few years.
Page 8
THE PERNICIOUS ANAEMIA SOCIETY
Report of the Trustees for the year ended 31st March 2024
STRUCTURE, GOVERNANCE AND MANAGEMENT
Governing Document
The Pernicious Anaemia Society is a registered charity and company limited by guarantee, governed by its Memorandum and Articles of Assocation. In accordance with the constitution of the company every member undertakes to contribute £1 to the company's assets should it be wound up.
Recruitment and Appointment of the Management Committee.
The directors of the company are also charity trustees for the purpose of charity law. All trustees give their time voluntarily and receive no benefits from the charity for their roles. The trustees appoint the members of the Management Committee, based on the skills and experience they feel will be of benefit to the charity.
Appointment of Directors/Trustees
As set out in the company's Articles of Association, the directors/(trustees) may, by ordinary resolution, appoint a person willing to serve in that capacity.
Induction and Training
New directors undergo a period of orientation to brief them on: their legal obligations under charity and company law, the Charity Commission guidance on public benefit and inform them of the content of the Memorandum and Articles of Association, the Committee and decision-making process, the current business plan and the recent financial performance of the organisation. They are encouraged to attend appropriate training events where these will facilitate the undertaking of their role.
Organisation
The board of trustees, which has a minimum of 5 members but no maximum, administers the organisation.
The day to day operations are delegated to the management committee members as and when necessary.
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THE PERNICIOUS ANAEMIA SOCIETY
Report of the Trustees for the year ended 31st March 2024
Trustees' responsibilities in relation to the financial statements
The charity trustees (who are also the directors of the Pernicious Anaemia Society for the purposes of company law) are responsible for preparing a trustees' annual report and financial statements in accordance with applicable law for each financial period which give a true and fair view of the state of affairs of the charity and of the incoming resources and application of resources, including the income and expenditure of that period.
In preparing those financial statements, the trustees are required to select suitable accounting policies, as described on pages 15 to 17, and then apply them consistently, observe the methods and principles in the Charities SORP and make judgements and estimates that are prudent and reasonable. The trustees must also prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charity will continue in operation.
The trustees are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the financial position of the charity and to enable them to ensure that the financial statements comply with the Charities Act 2011. They are also responsible for safeguarding the assets of the charity and hence for taking reasonable steps for the prevention and detection of fraud or other irregularities.
The trustees are responsible for the maintenance and integrity of the corporate and financial information included on the charity's website.
RISK MANAGEMENT
The Management Committee has conducted a review of the major risks to which the charity is exposed. Where appropriate, systems or procedures have been established to mitigate the risks the charity faces.
FINANCIAL REVIEW
The financial statements reflect the charity's activities for the year ended 31 March 2024. At the year end the movement on unrestricted funds amounted to a net deficit of £20,529 compared to a deficit for 2023 of £54,177.
The net movement on restricted funds amounted to a surplus of £116 compared to a surplus of £4,671 for 2023.
INVESTMENT POLICY
The trustees, having regard to the liquidity requirements of operating the society, have kept any surplus day to day funds in an interest bearing bank deposit account.
Page 10
THE PERNICIOUS ANAEMIA SOCIETY
Report of the Trustees for the year ended 31st March 2024
RESERVES POLICY
The Management Committee has examined the charity's requirements for reserves in light of the main risks to the organisation. It has established a policy whereby the unrestricted funds not committed or invested in tangible fixed assets held should be between 3 and 6 months of average unrestricted expenditure.
The unrestricted general reserves at 31 March 2023 excluding fixed assets, amounted to a deficit of £7,146 compared to £11,300 at 31st March 2023.
GOING CONCERN
The financial results indicate that the charity may not be a going concern but since the year end there has been an inprovement in the finances of the charity and further funds are anticipated. The trustees are reliant on the success of their plans to enable them to fulfil the ongoing grant commitments and meet the anticipated operational cost of the charity. They have a reasonable expectation that there will be adequate resources to continue operating for the forseeable future.
EMPLOYEE MATTERS
The charity had no employees in 2023/24 but it does have a policy in place relating to employee matters. The trustees are responsible for the appointment of employees and other related staff matters.
A payroll scheme will operate from 1 April 2024 and pension contributions are to be made through a NEST scheme.
The activities of the charity are mainly carried out by unpaid volunteers.
By order of the board of trustees
…....................................... Elizabeth Smart Chair
26 October 2024
Page 11
THE PERNICIOUS ANAEMIA SOCIETY
INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES OF THE PERNICIOUS ANAEMIA SOCIETY Year ended 31 March 2024
I report to the charity trustees on my examination of the accounts of The Pernicious Anaemia Society for the year ended 31st March 2024.
Responsibilities and basis of report
As the charity's trustees (and also its directors for the purposes of company law) you are reponsible for the preparation of the accounts in accordance with the Companies Act 2006 (the 2006 Act).
Having satisfied myself that the accounts of the company are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of your charity's accounts as carried out under section 145 of the Charities Act 2011 (the 2011 Act). In carrying out my examination I have followed the Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act.
Independent examiners' statement
I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe:
accounting records were not kept in respect of the Company as required by section 386 of the 2006 Act
the accounts do not accord with those records; or
the accounts do not comply with the accounting requirements of section 396 of the 2006 Act other than any requirement that the accounts give a true and fair view which is not a matter considered as part of an independent examination; or
the accounts have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK & Republic of Ireland (FRS102)
I draw attention to the going concern basis on which, the accounts have been prepared. This is reliant on the success of the trustees' plans as referred to in Note 1.
I have no other concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
Helen Rumsey FCA Ensors Accountants LLP
Connexions, 159 Princes Street 13 November 2024 Ipswich, IP1 1QJ
Page 12
THE PERNICIOUS ANAEMIA SOCIETY
Statement of Financial Activities Year ended 31 March 2024
| NOTE Income and Endowment from: Grants and donations Gift Aid Charitable Activities 2 Investments Total Expenditure on: Charitable activities 3 Total Net (deficit)/surplus Reconciliation of Funds Total funds brought forward Total funds carried forward |
Unrestd Restd 2024 Funds Funds TOTAL £ £ £ 12,368 15 12,383 3,498 - 3,498 26,224 - 26,224 446 101 547 42,536 116 42,652 63,065 - 63,065 63,065 - 63,065 (20,529) 116 (20,413) 15,193 7,500 22,693 (5,336) 7,616 2,280 |
2023 TOTAL £ 14,434 4,635 25,385 222 |
|---|---|---|
| 44,676 | ||
| 94,182 | ||
| 94,182 | ||
| (49,506) 72,199 |
||
| 22,693 |
The statement of financial activities includes all gains and losses for the year All incoming resources and resources expended derive from continuing activities
The notes on pages 15 to 21 form part of these financial statements
Page 13
THE PERNICIOUS ANAEMIA SOCIETY
Balance Sheet as at 31st March 2024
| NOTE Fixed Assets Tangible assets 6 Current Assets Debtors 7 Cash at Bank Creditors: amounts falling due within one year 8 Net Current Assets Creditors -falling due in more than one year Net Assets Unrestricted funds Restricted fund Total Funds |
2024 2023 £ £ £ £ 1,810 3,893 2,344 2,533 30,328 50,578 32,672 53,111 (17,358) (12,100) 15,314 41,011 (14,844) (22,211) 2,280 22,693 (5,336) 15,193 7,616 7,500 2,280 22,693 |
|---|---|
For the financial year ended 31 March 2024 the company was entitled to exemption from audit under section 477 of the Companies Act 2006 relating to small companies.
The members have not required the charitable company to obtain an audit of the accounts for the year in question in accordance with section 476.
The directors acknowledge their responsibility for complying with the requirements of the Act with respect to accounting records and for the preparation of the accounts.
These accounts have been prepared in accordance with the provisions applicable to companies subject to the small companies regime.
These financial statements were approved by the trustees and are signed on their behalf by:
…............................. …............................ Elizabeth Smart Stephen Ganter Chair Date: …26 October 2024............................ The notes on pages 15 to 21 form part of these financial statements
Page 14
THE PERNICIOUS ANAEMIA SOCIETY
Notes to the accounts Year ended 31 March 2024
1 Accounting Policies
Basis of accounting
The accounts have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and the Republic of Ireland (FRS102).
The charity is a public benefit entity as defined by FRS102. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy notes.
The accounts are prepared in sterling, which is the functional currency of the charity. Monetary amounts in these accounts are rounded to the nearest £.
The accounts have been prepared on the going concern basis. However, this is reliant on the success of the trustee's plans to fulfil their ongoing grant commitments and anticipated operational costs. They have a reasonable expectation that there will be adequate funding to continue operating for the forseeable future.
Fund accounting
Unrestricted funds are available for use at the discretion of the trustees in furtherance of the general objectives of the charity and which have not been designated for other purposes.
The restricted fund represents a fund started for research into the relationship between Stomach Cancer and Pernicious Anaemia. It will continue to grow until it reaches £10,000 when it will be handed over to Professor Mark Pritchard.
Fixed assets
Tangible fixed assets are initially measured at cost and subsequently measured at cost or valuation, net of depreciation and any impairment losses. Depreciation is provided to write off the cost of fixed assets over their useful lives at the rate of 25% on a reducing balance basis.
Impairment of assets
At each reporting date the charity reviews the carrying amounts of its tangible assets to determine whether there is any indication that those assets have suffered any impairment loss. If any such indication exists, the recoverable amount of the asset is estimated in order to determine the extent of impairment loss, (if any).
Page 15
THE PERNICIOUS ANAEMIA SOCIETY
Notes to the accounts Year ended 31st March 2024
Income
Income is recognised when there is entitlement to the funds, any performance conditions attached to the item have been met, it is probable that the income will be received and the amount can be measured reliably and it is not deferred.
Grants and donations are included when received.
Gift Aid is included on an accruals basis
Income from charitable activities is shown gross with associated costs included as charitable expenditure. The income is accounted for when received.
Expenditure
Expenditure is recognised once there is a legal or constructive obligation to make a payment to a third party, it is probable that settlement will be required, and the amount of the obligation can be measured reliably.
Charitable expenditure comprises those costs incurred by the charity in the delivery of its activities.
Governance costs include those costs associated with meeting the consititutional and statutory requirements of the charity and include the fees for the independent examination.
Other expenditure represents those items not falling into any other heading.
Cash at bank and in hand
Cash at bank and in hand represents highly liquid funds held in bank accounts.
Financial instruments
The charity only has financial assets and financial liabilities of a kind that qualify as basic financial instruments.
Basic financial instruments are recognised in the Balance Sheet when the charity becomes party to the contractual provision of the instrument.
Page 16
THE PERNICIOUS ANAEMIA SOCIETY
Notes to the accounts
Year ended 31st March 2024
Accounting estimates and areas of judgement
Estimates and judgements are continually evaluated and are based on historical experience and other factors, including expectations of future events that are believed to be reasonable under the circumstances. There are no critical accounting estimates.
| 2 Income Charitable activities: Membership Fees Book Sales 3 Expenditure Charitable Activities: Trustees' expenses Insurances Administration Communications Office costs Research Costs (note 12) Website design and maintenance Car lease Symposium, conference costs Volunteer costs Promotion and fundraising Finance Charges Purchase of books Sundry costs Support Group costs Professional fees Depreciation Loss on disposals Governance - Independent examination Governance -Other matters |
2024 2023 £ £ 26,174 25,385 50 - |
|---|---|
| 26,224 25,385 |
|
| 2024 2023 £ £ 622 417 1,989 1,628 1,652 407 1,595 2,063 791 718 22,543 31,244 14,788 12,309 - 1,244 273 5,000 221 478 440 678 970 782 1,769 550 1,206 73 - 53 6,093 31,006 603 1,297 1,480 - 4,800 4,235 1,230 - |
|
| 63,065 94,182 |
Page 17
THE PERNICIOUS ANAEMIA SOCIETY
Notes to the accounts Year ended 31st March 2024
4 Trustee remuneration and related party transactions
No remuneration was paid to trustees during the year (2023: NIL)
Donations from trustees amounted to £120 (2023: £60)
Travel and conference costs of £843 were reimbursed to a trustee (2023: £417 to 2 trustees)
During the year ended 31 March 2023 Mrs K Burchell was reimbursed for a payment for legal fees of £600. She then donated £600 on which Gift aid of £150 was claimed. (2024: NIL)
During the year ended 31 March 2023 Mr MV Hooper MBE, a director/trustee (until 9 May 20 received £1,500 for consultancy fees. (2024: NIL)
Excellence in Report Writing/Expert Witness training provided for 3 volunteers at £1,206 is included in Sundry costs.
5 Taxation
As a charity, The Pernicious Anaemia Society is exempt from tax on income and gains received within the categories covered under Part 11 of the Corporation Taxes Act 2010 or section 256 of the Taxation of Chargeable Gains Act 1992, to the extent that such income or gains are applied exclusively to charitable purposes.
| 6 Tangible fixed assets Cost At 1 April 2023 Disposal of assets At 31 March 2024 Accumulated depreciation At 1 April 2023 Charge for the year On disposals At 31 March 2024 Net book value At 31 March 2024 At 31 March 2023 |
Equipment £ 13,614 (7,889) |
|---|---|
| 5,725 | |
| 9,721 603 (6,409) |
|
| 3,915 | |
| 1,810 | |
| 3,893 |
Page 18
THE PERNICIOUS ANAEMIA SOCIETY
Notes to the accounts Year ended 31st March 2024
| 2024 | 2023 | ||
|---|---|---|---|
| 7 | £ | £ | |
| Debtors | |||
| Gift Aid repayment | 321 | 412 | |
| Prepayments | 2,023 | 2,121 | |
| 2,344 | 2,533 | ||
| All debtors relate to unrestricted funds. | |||
| 2024 | 2023 | ||
| 8 | Creditors: amounts falling due | £ | £ |
| within one year. | |||
| Creditors and accruals | 17,358 | 12,100 | |
| These include an accrual of £11,458 for funding to University of Surrey and £2,300 | |||
| for funding to Norwich University (see note 11) | |||
| £ | £ | ||
| More than 1 year | 14,844 | 22,211 | |
| Representing the balance of funding to University of Surrey and to Norwich | |||
| University (see note 11) |
All creditors relate to unrestricted funds.
9 Allocation of funds
| Fixed assets Current assets Current liabilities Liabilities - due in more than one year Year ended 31 March 2023 Fixed assets Current assets Current liabilities Liabilities - due in more than one year |
UnRestd Restd TOTAL £ £ £ 1,810 - 1,810 25,056 7,616 32,672 (17,358) - (17,358) (14,844) - (14,844) (5,336) 7,616 2,280 UnRestd Restd TOTAL £ £ £ 3,893 - 3,893 45,611 7,500 53,111 (12,100) - (12,100) (22,211) - (22,211) 15,193 7,500 22,693 |
|---|---|
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THE PERNICIOUS ANAEMIA SOCIETY
Notes to the accounts Year ended 31st March 2024
10 Employee remuneration
There were no employees during the year ended 31 March 2024 (2023: Nil)
The charity relies on volunteer support to carry out its activities.
11 Funding commitments
The charity has commited to support a Phd student stipend for research at the University of Surrey for a period of 4 years. The agreement was entered into in October 2022 and will complete in March 2025.
The balance outstanding at 31 March 2024 amounted to £17,102
In June 2023 the charity formally agreed to fund a research student at Norwich University at a cost of £2,300 per annum over a six year period.
A balance of £11,500 remains outstanding at 31 March 2024
12 Grants payable
| Grants payable | |
|---|---|
| (Included in Research costs) University of Surrey Norwich University |
2024 2023 £ £ 8,359 30,711 13,800 - |
| 22,159 30,711 |
13 Members Guarantee
The charitable company is limited by guarantee, governed by its Memorandum and Articles of Association. In accordance with the constitution of the company every member undertakes to contribute such amount (not exceeding £1) to the company's assets should it be wound up.
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THE PERNICIOUS ANAEMIA SOCIETY
Statement of Financial Activities Year ended 31 March 2023
| NOTE Income and Endowment from: Grants and donations Gift Aid Charitable Activities 2 Investments Total Expenditure on: Charitable activities 3 Total Net (deficit)/surplus Reconciliation of Funds Total funds brought forward Total funds carried forward |
Unrestd Restd 2023 Funds Funds TOTAL £ £ £ 10,576 3,858 14,434 3,852 783 4,635 25,385 - 25,385 192 30 222 |
|---|---|
| 40,005 4,671 44,676 |
|
| 94,182 - 94,182 |
|
| 94,182 - 94,182 |
|
| (54,177) 4,671 (49,506) 69,370 2,829 72,199 |
|
| 15,193 7,500 22,693 |
The statement of financial activities includes all gains and losses for the year All incoming resources and resources expended derive from continuing activities
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