Company number 7904047 (England and Wales) Charity number 1147839
THE PERNICIOUS ANAEMIA SOCIETY
Financial Statements For the year ended 31st March 2023
THE PERNICIOUS ANAEMIA SOCIETY
Financial Statements For the year ended 31st March 2023
| CONTENTS | |
|---|---|
| PAGES | |
| Reference and Administrative Information | 1 |
| Report of the Trustees | 2-9 |
| Report of the Independent Examiner | 10 |
| Statement of Financial Activities | 11 |
| Balance Sheet | 12 |
| Notes to the Financial Statements | 13-19 |
THE PERNICIOUS ANAEMIA SOCIETY
REFERENCE AND ADMINISTRATIVE INFORMATION
| Charity Name | The Pernicious Anaemia Society | |
|---|---|---|
| Charity registration number | 1147839 | |
| Company registration number | 7904047 | |
| Registered Office and | Level 4 Brackla House | |
| operational address | Brackla Street Bridgend | |
| Glamorgan CF31 1BZ | ||
| Trustees | Martyn Vaughan Hooper MBE | (Chair resigned 9 May 2022) |
| Katrina Burchell | (Acting Chair from 9 May 2022) | |
| Michael John Stevenson | (Resigned 1 September 2022) | |
| David Connell-Smith | (Treasurer) | |
| Theresa Berta Taylor | ||
| Norman Edward Thomas | (Resigned 1 September 2022) | |
| Dr Lenira Ferreira Semedo | ||
| Dr Anna Guildford | ||
| Elise Dyer | (Resigned 1 September 2022) | |
| Stephen Ganter | ||
| Elizabeth Smart | (Appointed 10 September 2022) | |
| Dr John Pelham Warren | (Appointed 10 September 2022) |
Management Committee
Katrina Burchell David Connell-Smith (Treasurer) Karyl Carter Petra Visser Company Secretary David Connell-Smith
Independent Examiner Mrs H Rumsey Ensors Accountants LLP Connexions, 159 Princes Street Ipswich IP1 1QJ Bankers National Westminster Bank Plc 28 Adare Street Bridgend CF31 1EN
Page 1
THE PERNICIOUS ANAEMIA SOCIETY Report of the Trustees for the year ended 31st March 2023
The trustees present their report and the unaudited financial statements of the charity for the year ended 31 March 2023. The details on page one form part of this report.
The financial statements have been prepared in accordance with the accounting policies set out in note 1 to the accounts and comply with the charity's governing document, the Charities Act 2011 and 'Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and the Republic of Ireland (FRS102)'.
OBJECT OF THE CHARITY
To promote and protect the physical and mental health of sufferers of pernicious anaemia. Advance the education of the general public in all areas relating to pernicious anaemia. Promote and participate in research into the causes and treatment of pernicious anaemia.
PUBLIC BENEFIT
The trustees are aware of the Charity Commission's guidance in relation to delivering public benefit and believe the charity is fulfilling its requirements.
REVIEW OF THE YEAR - Chair's report
see pages 3 to 6
Page 2
THE PERNICIOUS ANAEMIA SOCIETY Year ended 31 March 2023
CHAIR’S REPORT
This last year has been a year of change and revision for the Society with the founder and former Chairman retiring in March 2023. During 2022 partly due to the absence of the chair due to illness, the management committee stepped up and began a more formal process of meeting, sharing responsibilities and setting goals by way of a workplan, encouraging greater involvement from the trustees and securing ways of working in terms of contacts, secure systems and passwords.
JAMES LIND ALLIANCE PRIORITY SETTING PARTNERSHIP ON PERNICIOUS ANAEMIA
The Top Ten uncertainties identified by the Priority Setting Partnership with the James Lind Alliance remains a core priority for the Society and further work needs to be done to identify sources who can drive through research projects on the questions.
NATIONAL INSTITUTE FOR HEALTH AND CARE EXCELLENCE GUIDELINE ON VITAMIN B12 DEFICIENCY INCLUDING PERNICIOUS ANAEMIA
NICE has unfortunately delayed the publication of the consultation documents and the eventual publication of the new guidelines which are not now expected until July 2023 and February 2024 respectively. We have grave concerns that the eventual guidelines will not significantly help our members get improved diagnosis and treatment.
CLUB-12
We provided financial support by sponsoring the first symposium held by Club-12 in Cambridge in September 2022. Three members of PAS attended this event. Club-12 was formed in January 2020 to facilitate the sharing of knowledge and co-ordinate research into Vitamin B12 between Scientists and Healthcare Professionals. The event was well attended by eminent physicians and researchers and included valuable presentations from respected and knowledgeable presenters and encouraged healthy debate. Members of the management committee continue to attend Club-12 meetings which are held by Zoom and contribute as a Patient Advocacy group by representing the needs and experiences of patients with or potentially with Pernicious Anaemia.
AGM 2022
The Annual General Meeting of the Society took place virtually on Saturday 10 September 2022.
Focussing on one of our core goals to provide support to members we improved the content of our newsletters, carried out training for support group co-ordinators, introduced new support groups including one in the USA which started at the beginning of 2023. We also engaged a social media expert to help improve our reach to members and potential members.
We have worked closely with the University of Surrey PhD student on a pilot study which in the coming year will be a full research study and have put in place an agreement with Norwich University for a further part time PhD research student focussing on Pernicious Anaemia and B12.
SEMINAR
Due to ongoing concerns on meetings in person post Covid we decided to not have a face-to-face conference and instead we held an online seminar on 15[th] October 2022 for our members with respected speakers including Heidi Seague, Kourosh Ahmadi and Martyn Hooper and chaired by Katrina Burchell. This seminar was well attended and received excellent feedback. The management committee decided to repeat this format annually if possible and re-visit in person conferences in the future. Page 3
THE PERNICIOUS ANAEMIA SOCIETY Year ended 31 March 2023 CHAIR’S REPORT (continued)
Membership
Total members on 31st March 2023: 8,396
Gold 496
Silver 1,627
Bronze 61
Healthcare Affiliate 71
Legacy² 6,141
²Legacy members are those who joined with a lifetime fee of £20. They do not
incur any annual membership renewal fee.
New members 01.04.22 - 31.03.23
Total 329
Gold 59
Silver 207
Bronze 57
HCA 6
HCA = Healthcare Professional Affiliates. HCA's are offered free membership if they
are currently treating or working with patients with Pernicious Anaemia.
432 cancellations and expirations.
GEODEMOGRAPHICS
80% of members are from the UK
9.5% of members are from the US
2.8% of members are from AUSTRALIA
1.5% of members are from CANADA
1.3% of members are from IE
4.9% of members are from elsewhere in the world Page 4
THE PERNICIOUS ANAEMIA SOCIETY Year ended 31 March 2023 CHAIR’S REPORT (continued)
Website analytics
Page Views 299,524
Users 102,805
New Users 92%
Sessions 137,509
Av Session Duration 00:02:36
Pages/Session 2.18
How did they find us?
Organic Search 75%
Direct 18%
Social Media 3%
Referral from other sites 4%
Most visited pages:
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Homepage
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Symptoms
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What is Pernicious Anaemia?
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Testing for Pernicious Anaemia
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B12 deficiency and pernicious anaemia
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Treatment
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Diagnosis
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Symptoms Checklist
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Long covid and PA
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Personal stories
Page 5
THE PERNICIOUS ANAEMIA SOCIETY Year ended 31 March 2023 CHAIR’S REPORT (continued)
Geo website visits
UK 55.1%
USA 26.4%
Australia 5.4%
Canada 2.2%
Ireland 1.3%
India 1%
Social Media
Facebook 8.7K likes • 9.1K followers
Instagram 800 followers
Twitter 1,655 Following (people/organisations followed by the charity) - 2,747 Followers (those who follow the charity)
The Future
We face a challenging 12-18 months as we await the outcome of NICE and restructure the organisation of the Society post Martyn Hooper’s departure. There are also challenges as donations to small charities are generally decreasing and our membership remains static. However, we have a small but committed team of volunteers and a few trustees who are willing to help and share their guidance for the Society.
Page 6
THE PERNICIOUS ANAEMIA SOCIETY
Report of the Trustees for the year ended 31st March 2023
STRUCTURE, GOVERNANCE AND MANAGEMENT
Governing Document
The Pernicious Anaemia Society is a registered charity and company limited by guarantee, governed by its Memorandum and Articles of Assocation. In accordance with the constitution of the company every member undertakes to contribute £1 to the company's assets should it be wound up.
Recruitment and Appointment of the Management Committee.
The directors of the company are also charity trustees for the purpose of charity law. All trustees give their time voluntarily and receive no benefits from the charity for their roles. The trustees appoint the members of the Management Committee, based on the skills and experience they feel will be of benefit to the charity.
Appointment of Directors/Trustees
As set out in the company's Articles of Association, the directors/(trustees) may, by ordinary resolution, appoint a person willing to serve in that capacity.
Induction and Training
New directors undergo a period of orientation to brief them on: their legal obligations under charity and company law, the Charity Commission guidance on public benefit and inform them of the content of the Memorandum and Articles of Association, the Committee and decision-making process, the current business plan and the recent financial performance of the organisation. They are encouraged to attend appropriate training events where these will facilitate the undertaking of their role.
Organisation
The board of trustees, which has a minimum of 5 members but no maximum, administers the organisation.
The day to day operations are delegated to the management committee members as and when necessary.
Page 7
THE PERNICIOUS ANAEMIA SOCIETY
Report of the Trustees for the year ended 31st March 2023
Trustees' responsibilities in relation to the financial statements
The charity trustees (who are also the directors of the Pernicious Anaemia Society for the purposes of company law) are responsible for preparing a trustees' annual report and financial statements in accordance with applicable law for each financial period which give a true and fair view of the state of affairs of the charity and of the incoming resources and application of resources, including the income and expenditure of that period.
In preparing those financial statements, the trustees are required to select suitable accounting policies, as described on pages 13 to 15, and then apply them consistently, observe the methods and principles in the Charities SORP and make judgements and estimates that are prudent and reasonable. The trustees must also prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charity will continue in operation.
The trustees are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the financial position of the charity and to enable them to ensure that the financial statements comply with the Charities Act 2011. They are also responsible for safeguarding the assets of the charity and hence for taking reasonable steps for the prevention and detection of fraud or other irregularities.
The trustees are responsible for the maintenance and integrity of the corporate and financial information included on the charity's website.
RISK MANAGEMENT
The Management Committee has conducted a review of the major risks to which the charity is exposed. Where appropriate, systems or procedures have been established to mitigate the risks the charity faces.
FINANCIAL REVIEW
The financial statements reflect the charity's activities for the year ended 31 March 2023. At the year end the movement on unrestricted funds amounted to a net deficit of £54,177 compared to a deficit for 2022 of £15,468.
The net movement on restricted funds amounted to a surplus of £4,671 compared to a surplus of £2,829 for 2022.
INVESTMENT POLICY
The trustees, having regard to the liquidity requirements of operating the society, have kept any surplus day to day funds in an interest bearing bank deposit account.
Page 8
THE PERNICIOUS ANAEMIA SOCIETY
Report of the Trustees for the year ended 31st March 2023
RESERVES POLICY
The Management Committee has examined the charity's requirements for reserves in light of the main risks to the organisation. It has established a policy whereby the unrestricted funds not committed or invested in tangible fixed assets held should be between 3 and 6 months of average unrestricted expenditure.
The unrestricted general funds at 31 March 2023 excluding fixed assets, amounted to £11,300 compared to £64,180 at 31st March 2022.
The charity has a reasonable expectation that the charity has adequate resources to continue operating for the forseeable future.
EMPLOYEE MATTERS
As the charity has no employees it does not yet have a policy in place relating to employee matters. The activities of the charity are carried out by unpaid volunteers.
By order of the board of trustees
….......................................
K Burchell
Approved by the trustees on:
16 September 2023
Page 9
THE PERNICIOUS ANAEMIA SOCIETY
INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES OF THE PERNICIOUS ANAEMIA SOCIETY Year ended 31 March 2023
I report to the charity trustees on my examination of the accounts of The Pernicious Anaemia Society for the year ended 31st March 2023.
Responsibilities and basis of report
As the charity's trustees (and also its directors for the purposes of company law) you are reponsible for the preparation of the accounts in accordance with the Companies Act 2006 (the 2006 Act).
Having satisfied myself that the accounts of the company are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of your charity's accounts as carried out under section 145 of the Charities Act 2011 (the 2011 Act). In carrying out my examination I have followed the Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act.
Independent examiners' statement
I have completed my examination. I confirm that no material matters have come to my attention in connection with the examination giving me cause to believe:
accounting records were not kept in respect of the Company as required by section 386 of the 2006 Act
the accounts do not accord with those records; or
the accounts do not comply with the accounting requirements of section 396 of the 2006 Act other than any requirement that the accounts give a true and fair view which is not a matter considered as part of an independent examination; or
the accounts have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK & Republic of Ireland (FRS102)
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
Helen Rumsey FCA Ensors Accountants LLP Date 26 October 2023 Connexions 159 Princes Street Ipswich, IP1 1QJ
Page 10
THE PERNICIOUS ANAEMIA SOCIETY
Statement of Financial Activities Year ended 31 March 2023
| NOTE Income and Endowment from: Grants and donations Gift Aid Charitable Activities 2 Investments Total Expenditure on: Charitable activities 3 Total Net (deficit)/surplus Reconciliation of Funds Total funds brought forward Total funds carried forward |
Unrestd Restd 2023 Funds Funds TOTAL £ £ £ 10,576 3,858 14,434 3,852 783 4,635 25,385 - 25,385 192 30 222 40,005 4,671 44,676 94,182 - 94,182 94,182 - 94,182 (54,177) 4,671 (49,506) 69,370 2,829 72,199 15,193 7,500 22,693 |
2022 TOTAL £ 12,602 5,504 29,901 6 |
|---|---|---|
| 48,013 | ||
| 63,481 | ||
| 63,481 | ||
| (15,468) 87,667 |
||
| 72,199 |
The statement of financial activities includes all gains and losses for the year All incoming resources and resources expended derive from continuing activities
The notes on pages 13 to 19 form part of these financial statements
Page 11
THE PERNICIOUS ANAEMIA SOCIETY
Balance Sheet as at 31st March 2023
| NOTE Fixed Assets Tangible assets 6 Current Assets Debtors 7 Cash at Bank Creditors: amounts falling due within one year 8 Net Current Assets Creditors -falling due in more than one year Net Assets Unrestricted funds Restricted fund Total Funds |
2023 £ £ 3,893 2,533 50,578 53,111 (12,100) 41,011 (22,211) 22,693 15,193 7,500 22,693 |
2022 £ £ 5,190 673 67,321 67,994 (985) 67,009 - 72,199 69,370 2,829 72,199 |
2022 £ £ 5,190 673 67,321 67,994 (985) 67,009 - 72,199 69,370 2,829 72,199 |
|---|---|---|---|
| 72,199 | |||
| 69,370 2,829 |
|||
| 72,199 |
For the financial year ended 31 March 2023 the company was entitled to exemption from audit under section 477 of the Companies Act 2006 relating to small companies.
The members have not required the charitable company to obtain an audit of the accounts for the year in question in accordance with section 476.
The directors acknowledge their responsibility for complying with the requirements of the Act with respect to accounting records and for the preparation of the accounts.
These accounts have been prepared in accordance with the provisions applicable to companies subject to the small companies regime.
These financial statements were approved by the trustees and are signed on their behalf by:
…............................. …............................ K Burchell David Connell-Smith
Date: …............................16 September 2023 The notes on pages 13 to 19 form part of these financial statements
Page 12
THE PERNICIOUS ANAEMIA SOCIETY
Notes to the accounts Year ended 31 March 2023
1 Accounting Policies
Basis of accounting
The accounts have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and the Republic of Ireland (FRS102).
The charity is a public benefit entity as defined by FRS102. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy notes.
The accounts are prepared in sterling, which is the functional currency of the charity. Monetary amounts in these accounts are rounded to the nearest £.
The accounts have been prepared on the going concern basis as the trustees have a reasonable expectation that the charity has adequate resources to continue operating for the forseeable future.
Fund accounting
Unrestricted funds are available for use at the discretion of the trustees in furtherance of the general objectives of the charity and which have not been designated for other purposes.
The restricted fund represents a fund started for research into the relationship between Stomach Cancer and Pernicious Anaemia. It will continue to grow until it reaches £10,000 when it will be handed over to Professor Mark Pritchard.
Fixed assets
Tangible fixed assets are initially measured at cost and subsequently measured at cost or valuation, net of depreciation and any impairment losses. Depreciation is provided to write off the cost of fixed assets over their useful lives at the rate of 25% on a reducing balance basis.
Impairment of assets
At each reporting date the charity reviews the carrying amounts of its tangible assets to determine whether there is any indication that those assets have suffered any impairment loss. If any such indication exists, the recoverable amount of the asset is estimated in order to determine the extent of impairment loss, (if any).
Page 13
THE PERNICIOUS ANAEMIA SOCIETY
Notes to the accounts Year ended 31st March 2023
Income
Income is recognised when there is entitlement to the funds, any performance conditions attached to the item have been met, it is probable that the income will be received and the amount can be measured reliably and it is not deferred.
Grants and donations are included when received.
Gift Aid is included on an accruals basis
Income from charitable activities is shown gross with associated costs included as charitable expenditure. The income is accounted for when received.
Expenditure
Expenditure is recognised once there is a legal or constructive obligation to make a payment to a third party, it is probable that settlement will be required, and the amount of the obligation can be measured reliably.
Charitable expenditure comprises those costs incurred by the charity in the delivery of its activities.
Governance costs include those costs associated with meeting the consititutional and statutory requirements of the charity and include the fees for the independent examination.
Other expenditure represents those items not falling into any other heading.
Cash at bank and in hand
Cash at bank and in hand represents highly liquid funds held in bank accounts.
Financial instruments
The charity only has financial assets and financial liabilities of a kind that qualify as basic financial instruments.
Basic financial instruments are recognised in the Balance Sheet when the charity becomes party to the contractual provision of the instrument.
Page 14
THE PERNICIOUS ANAEMIA SOCIETY
Notes to the accounts Year ended 31st March 2023
Accounting estimates and areas of judgment
Estimates and judgements are continually evaluated and are based on historical experience and other factors, including expectations of future events that are believed to be reasonable under the circumstances. There are no critical accounting estimates.
| 2 Income Charitable activities: Membership Fees Insurance proceeds 3 Expenditure Charitable Activities: Trustees' expenses Insurances Administration Communications Office costs Research Costs Website design and maintenance Motor expenses Car lease Symposium, conference costs Volunteer costs Promotion and fundraising Finance Charges Repairs and replacements Purchase of books Sundry costs Support Group costs Professional fees Depreciation Loss on disposals Governance - Independent examination |
2023 2022 £ £ 25,385 28,373 - 1,528 |
|---|---|
| 25,385 29,901 |
|
| 2023 2022 £ £ 417 944 1,628 1,600 407 1,450 2,063 1,998 718 1,412 31,244 12,587 12,309 11,067 - 293 1,244 3,566 5,000 916 478 - 678 647 782 90 - 884 550 480 73 25 53 31 31,006 22,660 1,297 1,726 - 270 4,235 835 |
|
| 94,182 63,481 |
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THE PERNICIOUS ANAEMIA SOCIETY
Notes to the accounts Year ended 31st March 2023
4 Trustee remuneration and related party transactions
Travel costs of £417 were reimbursed to two trustees (2022: £944).
Mrs K Burchell was reimbursed for a payment of £600 for legal fees. She made a donation of £600 to the charity. Gift Aid of £150 was claimed on the donation.
Donations from two other trustees amounted to £60 (2022: Nil)
Mr M V Hooper MBE, a Director/Trustee, received £1,500 (to 9 May 2022) for consultancy work carried out (2022: Full year £18,000).
5 Taxation
As a charity, The Pernicious Anaemia Society is exempt from tax on income and gains received within the categories covered under Part 11 of the Corporation Taxes Act 2010 or section 256 of the Taxation of Chargeable Gains Act 1992, to the extent that such income or gains are applied exclusively to charitable purposes.
6 Tangible fixed assets
| Cost At 1 April 2022 and 31 March 2023 Accumulated depreciation At 1 April 2022 Charge for the year At 31 March 2023 Net book value At 31 March 2023 At 31 March 2022 |
Equipment £ 13,614 |
|---|---|
| 8,424 1,297 |
|
| 9,721 | |
| 3,893 | |
| 5,190 |
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THE PERNICIOUS ANAEMIA SOCIETY
Notes to the accounts
Year ended 31st March 2023
| 7 | Debtors | 2023 | 2022 | |
|---|---|---|---|---|
| £ | £ | |||
| Gift Aid repayment | 412 | 673 | ||
| Prepayments | 2,121 | - | ||
| 2,533 | 673 | |||
| All debtors relate to unrestricted funds. | ||||
| 8 | Creditors: amounts falling due | 2023 | 2022 | |
| within one year. | £ | £ | ||
| Creditors and accruals | 12,100 | 985 | ||
| These include an accrual of £8,500 for funding to University of Surrey (see note 11) | ||||
| More than 1 year | 22,211 | - | ||
| Representing the balance of funding to University of Surrey (see note 11) | ||||
| All creditors relate to unrestricted funds. |
9 Allocation of funds
| Fixed assets Current assets Current liabilities Liabilities - due in more than one year Year ended 31 March 2022 Fixed assets Current assets Current liabilities |
UnRestd Restd £ £ 3,893 - 45,611 7,500 (12,100) - (22,211) - 15,193 7,500 UnRestd Restd £ £ 5,190 - 65,165 2,829 (985) - 69,370 2,829 |
TOTAL £ 3,893 53,111 (12,100) (22,211) |
|---|---|---|
| 22,693 | ||
| TOTAL £ 5,190 67,994 (985) |
||
| 72,199 |
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THE PERNICIOUS ANAEMIA SOCIETY
Notes to the accounts
Year ended 31st March 2023
10 Employee remuneration
There were no employees during the year ended 31 March 2023 (2022: Nil)
The charity relies on volunteer support to carry out its activities.
11 Funding commitments
The charity has commited to support a Phd student stipend for research at the University of Surrey for a period of 4 years. The agreement was entered into in October 2022 and will complete in March 2026.
The total funding of £30,711 has been included in creditors (see also note 8).
12 Post Balance Sheet events
In June 2023 the charity formally agreed to fund a research student at Norwich University at a cost of £2,300 per annum over a six year period.
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THE PERNICIOUS ANAEMIA SOCIETY
Statement of Financial Activities Year ended 31 March 2022
| NOTE Income and Endowment from: Grants and donations Gift Aid Charitable Activities 2 Investments Total Expenditure on: Charitable activities 3 Total Net (deficit)/surplus Reconciliation of Funds Total funds brought forward Total funds carried forward |
Unrestd Restd 2022 Funds Funds TOTAL £ £ £ 12,602 - 12,602 5,504 - 5,504 29,901 - 29,901 6 - 6 |
|---|---|
| 48,013 - 48,013 |
|
| 63,481 - 63,481 |
|
| 63,481 - 63,481 |
|
| (15,468) - (15,468) 84,838 2,829 87,667 |
|
| 69,370 2,829 72,199 |
The statement of financial activities includes all gains and losses for the year All incoming resources and resources expended derive from continuing activities
Page 19