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2022-03-31-accounts

THE PERNICIOUS ANAEMIA SOCIETY (A company limited by guarantee)

Report and Financial Statements For the year ended 31st March 2022 Charity number 1147839 Company number 7904047

THE PERNICIOUS ANAEMIA SOCIETY (A company limited by guarantee)

Financial Statements For the year ended 31st March 2022

CONTENTS
Report of the trustees Pages 1 - 9
Report of the Independent Examiner Pages 10 - 11
Statement of Financial Activities Page 12
Balance Sheet Pages 13 - 14
Notes forming part of the financial statements Pages 15 - 18

THE PERNICIOUS ANAEMIA SOCIETY Report of the Trustees for the year ended 31st March 2022

The management committee are pleased to present their annual directors' report with the financial statements of the charity for the year ended 31st March 2022 which are also prepared to meet the requirements for a directors' report and accounts for Companies Act purposes.

The financial statements comply with the Charities Act 2011, the Companies Act 2006, the Memorandum and Articles of Association and Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard for Smaller Entities.

CHAIR'S REPORT

JAMES LIND ALLIANCE PRIORITY SETTING PARTNERSHIP ON PERNICOUS ANAEMIA

On Thursday 16th December 2021 an online seminar was held to reveal and discuss the Top Ten "uncertainties" relating to the diagnosing and treatment of Pernicious Anaemia that had been identified by doctors, clinicians and patients by the Priority Setting Partnership we formed with the James Lind Alliance in the autumn of 2020. These Top Ten uncertainties were the product of a year's worth of online discussions between healthcare professionals, patients and others with an interest in improving the way in which pernicious anaemia is diagnosed and treated and each individual uncertainty will form the basis for a series of research projects that will ultimately not only improve the lived experience of patients with the desease, but also improve the diagnostic tools and processes that are used by doctors.

The Priority Setting Partnership (PSP) dominated the work of the Society, though we still managed to continue to provide information, advice and support for patients and their families and friends. And, whereas the cost of the PSP is usually £30-40,000, online meetings and seminars meant that transport and accommodation costs were a fraction of what they should have been and the whole process was completed for just under £10,000, the majority of which was paid in the essential consulting fees.

The importance of the Society undergoing the whole James Lind Alliance Priority Setting Partnership cannot be understated. After all, it addresses the main aim of the society that was established in the early days of the charity's existence which is namely to bring about improvements to the way in which patients are diagnosed and treated - not only for the patients' benefits but also to help doctors to do their job better. It was a lengthy and time-consuming process and, although the process is now complete, my focus is on bringing together researchers with an interest in the complex issues involved in diagnosing an treating the desease and facilitating meetings of these teams to apply for funding to take the ten uncertainties and produce answers to the questions relating to them. The process is now well underway but there is still a lot of work to be done.

Page 1

THE PERNICIOUS ANAEMIA SOCIETY Report of the Trustees for the year ended 31st March 2022

CHAIR'S REPORT (contd)

NATIONAL INSTITUTE FOR HEALTH AND CARE EXCELLENCE GUIDELINE ON VITAMIN B12 DEFICIENCY INCLUDING PERNICIOUS ANAEMIA.

In September of 2021 NICE began its scoping exercise to begin gathering evidence of the problems associated with the diagnosis and treatment of B12 deficiency which will include the biggest cause of any deficiency - pernicious anaemia. Although I was interviewed by NICE to take part in the project I was not selected because of a possible "conflict of interest". I will continue to provide NICE with any information and advice whenever I am asked as the process is well underway towards producing a guideline. As NICE will not look at any papers associated with the assays associated with B12 Deficiency and Pernicious Anaemia, I have been busy facilitating the publication of new-reviewed papers that will review past scientific papers that have addressed the problems with the diagnosis and to a certain extent the treatment of pernicious anaemia. It is hoped that these two papers will be published over the summer.

AGM 2021

The Annual General Meeting of the Society took place virtually on Saturday 11th September 2021

As well as working on the PSP and liaising with NICE, the Society still continued to provide help and support to patients and clinicians via the website, telephone helpline and support groups. The figures below give the statistics relating to the website along with details of the channels through which this help and support was provided.

Membership

Total members on 31st March 2022: 8,395

Gold 435
Silver 1,638
Bronze 108
Healthcare Affiliate 65
Legacy² 6,149

²Legacy members are those who joined with a lifetime fee of £20. They do not incur any annual membership renewal fee.

Page 2

THE PERNICIOUS ANAEMIA SOCIETY Report of the Trustees for the year ended 31st March 2022

CHAIR'S REPORT (contd)

New members 01.04.21 - 31.03.22

Total 427
Gold 62
Silver 261
Bronze 98
HCA 6

HCA = Healthcare Professional Affiliates. HCA's are offered free membership if they are currently treating or working with patients with Pernicious Anaemia.

433 cancellations and expirations.

GEODEMOGRAPHICS

80% of members are from the UK 6,816
9.5% of members are from the US 802
2.8% of members are from AUSTRALIA 240
1.5% of members are from CANADA 129
1.3% of members are from IE 117
4.9% of members are from elsewhere in the world 291

Annual membership, website and social media report

Website analytics

Page Views 226,344
Users 74,084
New Users 85%
Sessions 100,893
Av Session Duration 00:02:40
Pages/Session 2.24

How did they find us?

Organic Search 71%
Direct 20%
Social Media 6%
Referral from other sites 3.60%

Page 3

THE PERNICIOUS ANAEMIA SOCIETY Report of the Trustees for the year ended 31st March 2022

CHAIR'S REPORT (contd)

Source by city UK

London 6,713
Glasgow 1,314
Sydney 1,111
Manchester 1,007
Birmingham 997
Melbourne 951
Cardiff 833
Liverpool 749
Croydon 660
Pageviews
1 Symptoms of Pernicious Anaemia 27,226
2 Pernicious Anaemia Society (homepage) 16,561
3 What is Pernicious Anaemia 14,817
4 Diagnosis for Pernicious Anaemia 10,537
5 The difference between B12 Deficiency & Pernicious Anaemia 9,809
6 Treatment of Pernicious Anaemia 9,705
7 Symptoms Checklist 9,201
8 Testing for Pernicious Anaemia 8,346
9 Member Login 7,866
10 Long Covid and Pernicious Anaemia blogpost 7,400
11 PA Society the Diagnosis and Treatment 6,269
12 Who is most at risk? 5,956
13 Frequently asked questions about Pernicious Anaemia 5,800
14 Pernicious Anaemia and the Coronavirus blogpost 5,561
15 Leaflets and Articles about Pernicious Anaemia 4,657
16 B12 injections stopped in parts of UK due to Covid-19 virus 3,669
17 Member Home Page 3,542
18 Become a Member of the Pernicious Anaemia Society 3,407
19 Pernicious Anaemia Forum 3,285
20 Pernicious Anaemia information for healthcare professionals 2,905

Page 4

THE PERNICIOUS ANAEMIA SOCIETY Report of the Trustees for the year ended 31st March 2022

CHAIR'S REPORT (contd)

Most viewed pages

Social Media
Facebook Linkedin
Facebook Page Reach 22,280
Facebook Page Likes 8,500
Facebook Page Visits 3,330
111 followers
Instagram
Instagram reach 1,262
Instagram Followers 622
Instagram Profile Visits 2,219

Top posts

The Coalition for Personalized Care has welcomed PAS with a profile of Martyn Hooper MBE - 6,499

Do you have Pernicious Anaemia? Please complete this short survey led by a team at De Montford University looking at COVID and long-COVID in people with Pernicious Anaemia - 5,371

Today's the day! The Top 10 Research Priorities for Pernicious Anaemia have been published - 4,243

A psychotherapist - and professional ballroom dancer - describes the challenges he faced getting diagnosed and treated for Pernicious Anaemia - 4,219

Yes! We now have the Top 10 Priorities for Pernicious Anaemia - 3,975

The Future

This will be my last report as Chairman of the PA Society. Recent health issues have meant that I now have to concentrate on transitioning to a new role as consultant and build on the good work of the James Lind Alliance Priority Setting Partnership, attend various conferences in the next nine months and generally liaise with external agencies, organisations and other charities that have a shared interest to some extent or another with this Society.

My thanks go to all those who have helped me over the last 17 years that I have been chairman.

Page 5

THE PERNICIOUS ANAEMIA SOCIETY

Report of the Trustees for the year ended 31st March 2022

FINANCIAL REVIEW

The charity, with the aid of sound financial management and the support of volunteers, generated a very positive financial outcome for the year resulting in total funds of £48,013 (2021 = £46,939) being received.

INVESTMENT POLICY

The trustees, having regard to the liquidity requirements of operating the society, have kept any surplus day to funds in an interest bearing bank deposit account.

RESERVES POLICY

The Management Committee has examined the charity's requirements for reserves in light of the main risks to the organisation. It has established a policy whereby the unrestricted funds not committed or invested in tangible fixed assets held should be between 3 and 6 months of average unrestricted expenditure.

For this year, this would have amounted to between £15,500 - £31,000.

Excluding the investment in fixed assets at the year end of £5,190 the unrestricted general funds amount to £64,180 at 31st March 2022.

The reserves policy has therefore been satisfied at 31st March 2022.

Page 6

THE PERNICIOUS ANAEMIA SOCIETY Report of the Trustees for the year ended 31st March 2022

REFERENCE AND ADMINISTRATIVE INFORMATION

Charity Name The Pernicious Anaemia Society Charity registration number 1147839 Company registration number 7904047 Registered Office and Level 4 Brackla House operational address Brackla Street Bridgend Glamorgan CF31 1BZ Trustees Martyn Vaughan Hooper MBE (Chair) Resigned May 2022 Katrina Burchell (Acting chair) Michael John Stevenson David Connell-Smith (Company Secretary/Treasurer) Theresa Berta Taylor Norman Edward Thomas Dr Lenira Ferreira Dr Anna Guildford Dr Nicola Ward Resigned October 2021 Elsie Dyer Nicola Allen Resigned July 2021 Stephen Ganter Management Committee Katrina Burchell David Connell-Smith Karyl Carter Petra Visser Company Secretary David Connell-Smith Independent Examiner George A Kitcher FCA Chartered Accountant Regus. 15th Floor, Brunel House Cardiff CF24 0EB Bankers National Westminster Bank Plc 28 Adare Street Bridgend CF31 1EN

Page 7

THE PERNICIOUS ANAEMIA SOCIETY Report of the Trustees for the year ended 31st March 2022

STRUCTURE, GOVERNANCE AND MANAGEMENT

Governing Document

The Pernicious Anaemia Society is a company limited by guarantee governed by its Memorandum and Articles of Association dated 10th January 2014. It is also a registered charity with the Charity Commission.

Recruitment and Appointment of the Management Committee.

The directors of the company are also charity trustees for the purpose of charity law All tustees give their time voluntarily and receive no benefits from the charity for their roles.

Appointment of Directors/Trustees

As set out in the Articles of Association, the charity may by ordinary resolution appoint a person who is willing to act in that capacity.

Induction and Training

New directors undergo a period of orientation to brief them on: their legal obligations under charity and company law, the Charity Commission guidance on public benefit and inform them of the content of the Memorandum and Articles of Association, the Committee and decision-making process, the current business plan and the recent financial performance of the organisation. They are encouraged to attend appropriate training events where these will facilitate the undertaking of their role.

Organisation

The board of trustees, which has a minimum of 5 members but no maximum, administers the organisation.

The day to day operations are delegated to the management committee. members as and when necessary.

RISK MANAGEMENT

The Management Committee has conducted a review of the major risk to which the charity is exposed. Where appropriate, systems or procedures have been established to mitigate the risks the charity faces.

Page 8

THE PERNICIOUS ANAEMIA SOCIETY Report of the Trustees for the year ended 31st March 2022

Trustees' responsibilities in relation to the financial statements

The charity trustees (who are also the directors of the Pernicious Anaemia Society for the purposes of company law) are responsible for preparing a trustees' annual report and financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice)

Company law requires the charity trustees to prepare financial statements in each year which give a true and fair view of the state of affairs of the charitable company and of the incoming resources and application of resources for that period. In preparing the financial statements, the trustees are required to:

The trustees are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the financial position of the charity and to enable them to ensure that the financial statements comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the charity and hence taking reasonable steps for the prevention and detection of fraud or other irregularities.

The trustees are responsible for the maintenance of integrity of the corporate and financial information included on the charitable company's website. Legislation in the UK governing the preparation and dissemination of financial statements may differ from legislation in other jurisdictions.

Statement as to disclosure to the independent examiner

In so far as the trustees are aware at the time of approving our trustees' annual report:

By order of the board of trustees

Date:

Page 9

INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES OF:

THE PERNICIOUS ANAEMIA SOCIETY

I report on the accounts of the charity for the year ended 31st March 2022 which comprise the Statement of Financial activities, the Balance Sheet and related notes.

This report is made to the Trustees, as a body, in accordance with the terms of my engagement. My work has been undertaken so that I might carry out an Independent Examination of the financial statements in accordance with the General Directions given by the Charity Commissioners. To the fullest extent permitted by law, I do not accept or assume responsibility to anyone other than the Charity and the Charity's Trustees, as a body, for my work or for this report.

RESPECTIVE RESPONSIBILITIES OF TRUSTEES AND EXAMINER

The trustees (who are also the directors of the company for the purposes of company law) are responsible for the preparation of the accounts. The trustees consider that an audit is not required for this year under section 144(2) of the Charities Act 2011 (the 2011 Act) and that an independent examination is needed.

Having satisfied myself that the charity is not subject to audit under company law and is eligible for independent examination, it is my responsibility to:

BASIS OF INDEPENDENT EXAMINER'S REPORT

My examination was carried out in accordance with the general directions given by the Charity Commission. An examination includes a review of the accounting records kept by the charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit and consequently no opinion is given as to whether the accounts present a "true and fair view" and the report is limited to those matters set out in the statement below.

Page 10

INDEPENDENT EXAMINER'S STATEMENT

In connection with my examination, no matter has come to my attention:

have not been met; or

Regus. 15th Floor Brunel House George Kitcher FCA 2 Fitzalan Road Chartered Accountant Cardiff CF24 0EB Date

Page 11

The Pernicious Anaemia Society

Statement of Financial Activities (including Income and Expenditure Account) for the year ended 31st March 2022

2021
Un/restd Restd TOTAL TOTAL
NOTE Funds Funds FUNDS FUNDS
£ £ £ £
Incoming Resources from
charitable activities: 1
Grants 1 0 0 0 0
Voluntary Income 48,013 0 48,013 46,939
Total Incoming Resources 48,013 0 48,013 46,939
Resources expended 1
Charitable activities 3 62,646 0 62,646 42,787
Governance costs 4 835 0 835 785
Total Resources Expended 63,481 0 63,481 43,572
Net Income for the Year -15,468 0 -15,468 3,367
Reconciliation of Funds
Total funds brought forward 84,838 2,829 87,667 84,300
Total funds carried forward 69,370 2,829 72,199 87,667

The statement of financial activities includes all gains and losses for the year. All incoming resources and resources expended derive from continuing activities.

Page 12

THE PERNICIOUS ANAEMIA SOCIETY

Balance Sheet as at 31st March 2022

2021
NOTE £ £ £ £
Fixed Assets 7
Tangible assets 5,190 7,186
Current Assets
Debtors 8 673 699
Cash at Bank 67,321 80,702
67,994 81,401
Creditors: amounts falling due
within one year 9 -985 -920
Net Current Assets 67,009 80,481
Net Assets 72,199 87,667
Unrestricted funds
General funds 1 69,370 84,838
Restricted funds 2,829 2,829
Total Funds 72,199 87,667

The charitable company is entitled to exemption from audit under section 477 of the Companies Act 2006 for the year ended 31st March 2022.

The members have not required the charitable company to obtain an audit of its financial statements for the year ended 31st March 2022 in accordance with section 476 of the Companies Act 2006.

The trustees acknowledge their responsibility for:

Page 13

THE PERNICIOUS ANAEMIA SOCIETY

Balance Sheet as at 31st March 2022 (contd)

These financial statements have been prepared in accordance with the special provisions of Part 15 of the Companies Act 2006 relating to small charitable companies and with the Financial Reporting Standard for Smaller Entities (effective April 2008)

The financial statements were approved by the directors on

and signed on their behalf by:

........................................................

Page 14

THE PERNICIOUS ANAEMIA SOCIETY

Notes to the accounts Year ended 31st March 2022

1 Accounting Policies

The principal accounting policies are summarised below. The accounting policies have been applied consistently throughout the year.

(a) Basis of accounting

The financial statements have been prepared under the historic cost convention and in accordance with the Companies Act 1985 and the Statement of Recommended Practice: Accounting and Reporting by Charities issued in March 2005

(b) Fund accounting

(c) incoming resources

All incoming resources are included in the statement of financial activities when the charity is entitled to, and virtually certain to receive, the income and the amount can be quantified with reasonable accuracy. The following polices are applied to particular categories of income:

(d) Resources expended

Expenditure is included on an accruals basis as a liability is incurred. Expenditure includes VAT which cannot be recovered and is reported as part of the expenditure to which it relates.

Page 15

THE PERNICIOUS ANAEMIA SOCIETY

Notes to the accounts Year ended 31st March 2022

(e) Depreciation

Depreciation is provided to write off the cost of fixed assets over their useful lives at the rate of 25% on a reducing balance basis.

2 Voluntary income 2022 2021
£ £
Donations and subscriptions 12,602 8,510
Membership Fees 28,373 31,923
Gift Aid receipts 5,504 6,476
Interest 6 29
Restricted Funds 0 1
Insurance Proceeds 1,528 0
48,013 46,939
3 Resources expended 2022 2021
£ £
Trustees' expenses 944 537
Insurances 1,600 1,351
Administration 1,450 3,096
Communications 1,998 2,364
Office costs 1,412 543
Research Costs 12,587 98
Website design and Maintenance 11,067 9,061
Volunteer expenses 0 0
Motor Expenses 293 331
Conference/Open Day costs 916 228
Depreciation 1,726 2,403
Promotion/Fundraising 647 1,851
Finance Charges 90 0
Repairs, Additions, Replacements 884 1,829
Purchase of Books 480 919
Refreshments 25 0
Support Group Costs 31 40
Professional Fees 22,660 14,575
Car Lease 3,566 3,561
Loss on Disposals 270 0
62,646 42,787

Page 16

THE PERNICIOUS ANAEMIA SOCIETY

Notes to the accounts

Year ended 31st March 2022

4 Governance costs 2022 2021
£ £
Independent examination 835 785
Annual General Meeting 0 0
835 785

5 Trustee Remuneration & Related Party Transactions

Travel costs of £944 (2021 = £537) were reimbursed to trustees.

Mr. S Ganter, a Director/Trustee, received £nil (2021 = £600) for professional works undertaken during the year.

Mr M V Hooper MBE, a Director/Trustee, received £18,000 (2021 = £10,500) for consultancy work carried out during the year.

6 Taxation

As a charity, The Pernicious Anaemia Society is exempt from tax on income and gains received within the categories covered under Part 11 of the Corporation Taxes Act 2010 or section 256 of the Taxation of Chargeable Gains Act 1992, to the extent that such income or gains are applied exclusively to charitable purposes.

7 Tangible Fixed Assets

Tangible Fixed Assets
Equipment
£
Cost
Balance as at 01.04.2021 15,811
Additions 0
Disposals -2,197
Balance as at 31.03.22 13,614
Accumulated depreciation
Balance as at 01.04.2021 8,625
Charge for the year 1,726
Eliminated on disposals -1,927
Balance as at 31.03.22 8,424
Net book value
At 31.03.22 5,190
At 31.03.21 7,186 Page 17

THE PERNICIOUS ANAEMIA SOCIETY

Notes to the accounts

Year ended 31st March 2022

8 Debtors 2022 2021
£ £
Gift Aid repayment due 673 699

All debtors for 2022 and 2021 relate to unrestricted funds.

9 Creditors: amounts falling due
within one year. 2022 2021
£ £
Creditors and accruals 985 920

All creditors for 2022 and 2021 relate to unrestricted funds.

10 Allocation of Funds

Un/Restd Restd TOTAL
£ £ £
Fixed assets 5,190 0 5,190
Current assets 65,165 2,829 67,994
Current liabilities -985 0 -985
69,370 2,829 72,199

Page 18