2021-03-31-accounts

THE PERNICIOUS ANAEMIA SOCIETY (A company limited by guarantee)

Report and Financial Statements
For the year ended 31st March 2021
Charity number 1147839
Company number 7904047

THE PERNICIOUS ANAEMIA SOCIETY

(A company limited by guarantee)

Financial Statements For the year ended 31st March 2021

CONTENTS
Report of the Management Committee	Pages 1 - 11
Report of the Independent Examiner	Pages 12 - 13
Statement of Financial Activities	Page 14
Balance Sheet	Pages 15 - 16
Notes forming part of the financial statements	Pages 17 - 20

THE PERNICIOUS ANAEMIA SOCIETY Report of the Management Committee for the year ended 31st March 2021

The management committee are pleased to present their annual directors' report with the financial statements of the charity for the year ended 31st March 2021 which are also prepared to meet the requirements for a directors' report and accounts for Companies Act purposes.

The financial statements comply with the Charities Act 2011, the Companies Act 2006, the Memorandum and Articles of Association and Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard for Smaller Entities.

CHAIR'S REPORT

The year 2020/2021 will be remembered as the time when the UK, like the rest of the world, saw normal life activities coming to an end due to the arrival of the Covid-19 virus; a worldwide pandemic was the result.

Just as the virus affected the economy in general it meant that the way in which the society operated had to change. The offices were closed and my travelling to meet with health decision makers and health researchers was ended abruptly. Meetings that had taken months to arrange were suddenly cancelled and hastily rearranged using Zoom conferencing. Soon, meetings became the new norm and gradually I began to carry on my work and that of the society via virtual conferences. We were to become overwhelmed by requests for help from members who had been told that their injections of replacement therapy B12 would be stopped for the foreseeable future due to the need to reduce face-to-face contact between nurses and patients (see below). Support Group meetings were cancelled though later on in the year some groups started to meet virtually which meant that the problem with members feeling isolated and alone was alleviated to a certain degree. Throughout the pandemic our Telephone Helpline and Website continued to carry on doing what they do - provide information, help and support to patients with pernicious anaemia and their friends and family.

The following website and related statistics relate to the financial year 2020/2021.

Membership

New members 01.04.20 - 31.03.21

Total	695
Gold	83
Silver	497
Bronze	115
HCA¹	13

HCA = Healthcare Professional Affiliates. HCA's are offered free membership if they are currently treating or working with patients with Pernicious Anaemia.

Page 1

THE PERNICIOUS ANAEMIA SOCIETY Report of the Management Committee for the year ended 31st March 2021

CHAIR'S REPORT (contd)

Total members on 31st March 2021: 8,331

Gold	373
Silver	1,623
Bronze	121
Healthcare Affiliate	59
Legacy²	6,155

²Legacy members are those who joined with a lifetime fee of £20. They do not incur any annual membership renewal fee.

GEODEMOGRAPHICS

81% of members are from the UK 9.6% of members are from the US 3% of members are from AUSTRALIA 1.5% of members are from CANADA 1.4% of members are from IE 3.5% of members are from elsewhere in the world

WEBSITE DATA

Page Views	814,886
Users	317,961	(84% of those are new users)
Sessions	420,504
Average time on the site	00:02:13
Viewing avg.	2 pages

Source of traffic per country

73% UK 15% US 3% AUS 1.60% Canada 1.50% India 1% Ireland 0.60% South Africa 0.46% Netherlands 0.40% New Zealand 0.20% Philippines

Page 2

THE PERNICIOUS ANAEMIA SOCIETY Report of the Management Committee for the year ended 31st March 2021

CHAIR'S REPORT (contd)

Source by city UK

London	9%
Glasgow	2%
Birmingham	1.60%
Cardiff	1.50%
Liverpool	1.50%

How did they find us?

Organic Search	68%
Direct	21%
Social	8%
Referral	1.70%

Most viewed pages

Symptoms (page): 85,096 unique page views B12 injections stopped due to Covid-19 (article): 68,105 B12 deficiency and PA (page): 40,383 Homepage: 30,113 What is pernicious anaemia?: (page) 23,938 Treatment of pernicious anaemia: (page) 19,591 Diagnosis: (page) 18,643 Who is most at risk? (page) 12,229 FAQ (page) 12,229 Symptom Checklist (article) 11,837

Most read news posts

1. BSH guidance on treating PA during Covid changed: 65,345 unique page views

2. Recent developments regarding injections being stopped: 45,414

3. COVD-19 and Pernicious Anaemia: 44,468

4. COVID-19: letter to the health ministers and injections being stopped 31,213

5. Continuing: Treating Pernicious Anaemia during COVID-19 5,699

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THE PERNICIOUS ANAEMIA SOCIETY Report of the Management Committee for the year ended 31st March 2021

CHAIR'S REPORT (contd)

SOCIAL MEDIA

Facebook

Followers: Reach: 33,695 Page Likes: 8.3k Fans: men/women Age: 45-54: 34%/ 35-44: 27.5%/ 55-64: 16.5%/ 25-34; 12%/ 65+: 8.5% Countries: UK (68%) US (16%) AUS (4%) IE (2%) Canada (1.4%) NL (1%)

Most popular posts:

If you live in the UK, have Pernicious Anaemia, and your treatment has been changed during the pandemic, (survey link) 13.6k reach.

BSH guidance on B12 during COVID changed (link to news post) 8k.

Statement on current COVID pandemic and treatment being stopped: 6.2k (link to news post)

PA treatment during COVD (link to news post) 5.8k @NHSGrampian suspended B12 injections in March 5.7k (shared from press) Gloucestershire NHS tells patient to take tablets: (shared post) 4.6k Join us! Become part of a society that is actively campaigning to change how Pernicious ….. (post) 4.4k

Twitter

New followers: 162 Total impressions 110.135

Top tweets

@PASOC has written to all Chief Medical Officers "We are aware that too many…..patients' B12 injections have been stopped; Pernicious Anaemia patients risk permanent neurological damage if injections are discontinued (Evening Telegraph)

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THE PERNICIOUS ANAEMIA SOCIETY Report of the Management Committee for the year ended 31st March 2021

CHAIR'S REPORT (contd)

Instagram Reach: 299 Followers: 435 Women: 94% Men: 6% Countries: UK(45%) US (12.6%) AUS (3%) IE (2.5%) France (1.1%) Age: 35-44: 34%/ 45-54: 27%/ 25-34: 23%/ 55-64: 7.3%/ 18-24: 5% Top post: @PASOC has written to health ministers 347 reach

Linkedin (new March)

Followers: 79 UK 71.43%

Covid-19 and Pernicious Anaemia

The spread of the Covid-19 virus into the UK coincided with the new financial year. And it is fair to say that for the whole of the summer and early autumn, the consequences of the virus on the work of the society stretched our resources due to the following problems.

Treatment Stopped

During April and May we were inundated with telephone calls and emails from patients, or the families of patients, who had had their injections stopped due to the risk of cross contamination during the treatment process. These calls were often from very frightened and nervous people who were rightly worried about their symptoms worsening and faced the very real danger of suffering irreversible nerve damage. This was not helped by a statement issued by the British Society for Haematology who had issued a statement that said patients could "store B12 in their liver for a year or two." We immediately contacted the BSH and a Zoom meeting was arranged where two Healthcare professionals affiliated to this society also attended. It was pointed out that saying patients could store B12 was wrong. The statement was amended but by then the harm had been done. We issued our own statement soon after.

All through the summer months we were contacted about patients who were really struggling after their injections had been stopped. Some patients contacted us directly though it was often family members who turned to us for help. Some reported a return of symptoms, others reported neurological issues, incontinence, severe depression etc. Some of these stories shocked even us and it became clear that stopping injections was not an option. It was something that we discussed during several Zoom meetings with MPs in June.

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THE PERNICIOUS ANAEMIA SOCIETY Report of the Management Committee for the year ended 31st March 2021

CHAIR'S REPORT (contd)

NICE Guideline and the James Lind Alliance priority setting partnership

1. NICE Guideline on the Diagnosis and Management of pernicious Anaemia

During the Spring we asked our members to write to their elected representatives, at all levels, to ask him or her to write to the Director of Guidelines at NICE to make the planned Guideline on Pernicious Anaemia a priority. In September, we heard from NICE that they had commissioned the Guideline on the Diagnosis and Management of Pernicious Anaemia. This was announced two years after we had made our case to NICE that there was a need for such a guideline. There will now follow a two to three-year consultation in a series of meetings and workshops between clinicians, researchers and patients. Participants must be representatives of an institution or charity and must register as a Stakeholder for the Guideline. A list of registered stakeholders can be seen here:

https://www.nice.org.uk/guidance/gid-ng10176/documents/stakeholder-list

2. James Lind Alliance

In October, we initiated a programme to fully evaluate just how effective different delivery methods were in treating Pernicious Anaemia. Nobody has ever investigated just how effective sub-lingual sprays and lozenges are in treating PA, nor has the nasal sprays, patches or ointments been evaluated. We contacted many of our Healthcare Affiliate members and set in motion the application process for a research grant to enable this research. We were told very early on that we would be ideal candidates for establishing a Priority Setting Partnership with the James Lind Alliance.

https://www.jla.nihr.ac.uk

We had a series of meetings online with officials of the JLA and then formed a Priority Setting Partnership which will use surveys to identify ten "uncertainties" relating to the Diagnosis and Treatment of Pernicious Anaemia. A Steering Group was set up and it was at these meetings that the first stages of identifying ten "uncertainties" surrounding the Diagnosis and Treatment of PA were discussed and a survey compiled. The aim is to identify ten "uncertainties" surrounding the diagnosis and treatment of pernicious anaemia and these uncertainties will be publicised as being in need of serious researching. The ten uncertainties should be published in early autumn 2021.

We have engaged two part-time self employed consultants to advise on the process and to analyse the data from the surveys.

I was appointed as a part-time self employed Expert Consultant to oversee and steer the development of the NICE Guideline on behalf of the Society. I continue my work as Chairman of the Society on a voluntary basis.

All three posts will be funded by a ring-fenced legacy from one of our late members.

Both the NICE Guideline and the JLA process are incredibly important developments that will

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THE PERNICIOUS ANAEMIA SOCIETY Report of the Management Committee for the year ended 31st March 2021

CHAIR'S REPORT (contd)

hopefully bring about much-needed improvements in the way in which pernicious anaemia is both diagnosed and treated.

Annual General Meeting

The society's Annual general Meeting of Trustees was held online via Zoom in September 2020.

Management Committee

Also, in October 2020, the first Management Committee meeting was held. The Management Committee is made up of members who have experience in management positions and will be identifying the needs of the society for the next three to five years and putting in place a strategy to ensure that the society stays healthy in the long term.

Telephone Helpline Training

We continue to take calls from patients and their families as well as medical professionals even though the society's offices remain closed. This has been made possible by a new computer - based telephone system. We have successfully recruited volunteers to help us extend the hours that the telephone Helpline is available and in late October 2020, again using Zoom, we held our first telephone helpline training session. As we receive more offers to help, another session will be held that will enable us to offer an even better helpline service.

Patient Safety

The Recruitment to the NICE Guideline Stakeholder Group has meant that several teaching hospitals have contacted us and, in the middle of November, we were delighted to hear from the Head of Patient Safety at a large University Teaching Hospital, who wants to fully investigate just how patients are being harmed by their late diagnosis and poor treatment or non-treatment. We held an online meeting in the middle of November and another is scheduled for early January. We are highly optimistic that the issue of Patient Safety will be addressed in the NICE Guideline.

CluB12 - Global Conference

In late November 2020, an international conference was held via Zoom on "B12 Analogues and Possible Human Disease" We were delighted to be invited and though we were unable to comment on the incredibly complex science involved, we are positive that future research will

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THE PERNICIOUS ANAEMIA SOCIETY Report of the Management Committee for the year ended 31st March 2021

CHAIR'S REPORT (contd)

be guided by the discussions that took place.

The Future

This is going to be an incredibly busy year with the James Lind Alliance to identify ten possible research programmes that address the uncertainties with the diagnosis and treatment of pernicious anaemia. That will involve a regular series of meetings, producing and collating evidence of uncertainties and will culminate in a full day workshop that will bring together (hopefully in person) all those who have volunteered to be part of the Priority Setting Partnership.

And then there's the NICE Guideline which will start to take form. Again, we will be attending regular workshops and other meetings to ensure that NICE are fully aware of the problems that we face as patients.

On top of dealing with these priorities, we will keep on providing information, advice and support to our members and their families and friends via telephone calls, emails and support group meetings. And as the year progresses it is envisaged that the Management Committee will start to become more involved with the work of the society.

Martyn Hooper MBE Chairman

FINANCIAL REVIEW

The charity, with the aid of sound financial management and the support of volunteers, generated a very positive financial outcome for the year resulting in total funds of £46,939 (2020 = £116,038) being received.

INVESTMENT POLICY

The trustees, having regard to the liquidity requirements of operating the society, have kept any surplus day to funds in an interest bearing bank deposit account.

RESERVES POLICY

The Management Committee has examined the charity's requirements for reserves in light of the main risks to the organisation. It has established a policy whereby the unrestricted funds not committed or invested in tangible fixed assets held should be between 3 and 6 months of average unrestricted expenditure.

For this year, this would have amounted to between £13,500 - £27,000.

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THE PERNICIOUS ANAEMIA SOCIETY Report of the Management Committee for the year ended 31st March 2021

RESERVES POLICY (Contd)

Excluding the investment in fixed assets at the year end of £7,186, the unrestricted general funds amount to £77,652 at 31st March 2021.

The reserves policy has therefore been satisfied at 31st March 2021.

REFERENCE AND ADMINISTRATIVE INFORMATION

Charity Name The Pernicious Anaemia Society Charity registration number 1147839 Company registration number 7904047 Registered Office and Level 4 Brackla House operational address Brackla Street Bridgend Glamorgan CF31 1BZ

Management Committee

Martyn Vaughan Hooper MBE (Chair) Michael John Stevenson (Secretary) David Connell-Smith (Treasurer) Theresa Berta Taylor Norman Edward Thomas Louise Jones Dr Lenira Ferreira Dr Anna Guildford Dr Nicola Ward Elsie Dyer Nicola Allen Katrina Burchell (Appointed 12.09.2020) Stephen Ganter (Appointed 12.09.2020)

Secretary

Michael John Stevenson Independent Examiner George A Kitcher FCA Chartered Accountant Regus. 15th Floor, Brunel House Cardiff CF24 0EB Bankers National Westminster Bank Plc 28 Adare Street Bridgend CF31 1EN

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THE PERNICIOUS ANAEMIA SOCIETY Report of the Management Committee for the year ended 31st March 2021

STRUCTURE, GOVERNANCE AND MANAGEMENT

Governing Document

The Pernicious Anaemia Society is a company limited by guarantee governed by its Memorandum and Articles of Association dated 10th January 2014. It is also a registered charity with the Charity Commission.

Recruitment and Appointment of the Management Committee.

The directors of the company are also charity trustees for the purpose of charity law and under the company's Articles are known as the Management Committee. All members of the Management Committee give their time voluntarily and receive no benefits from the charity for their roles.

Appointment of Directors/Trustees

As set out in the Articles of Association, the charity may by ordinary resolution appoint a person who is willing to act in that capacity.

Induction and Training

New directors undergo a period of orientation to brief them on: their legal obligations under charity and company law, the Charity Commission guidance on public benefit and inform them of the content of the Memorandum and Articles of Association, the Committee and decision-making process, the current business plan and the recent financial performance of the organisation. They are encouraged to attend appropriate training events where these will facilitate the undertaking of their role.

Organisation

The board of trustees, which has a minimum of 3 members but no maximum, administers the organisation.

The day to day operations are delegated to the Chair who liaises with the other board members as and when necessary.

RISK MANAGEMENT

The Management Committee has conducted a review of the major risk to which the charity is exposed. Where appropriate, systems or procedures have been established to mitigate the risks the charity faces.

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THE PERNICIOUS ANAEMIA SOCIETY Report of the Management Committee for the year ended 31st March 2021

Trustees' responsibilities in relation to the financial statements

The charity trustees (who are also the directors of the Pernicious Anaemia Society for the purposes of company law) are responsible for preparing a trustees' annual report and financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice)

Company law requires the charity trustees to prepare financial statements in each year which give a true and fair view of the state of affairs of the charitable company and of the incoming resources and application of resources for that period. In preparing the financial statements, the trustees are required to:

• select suitable accounting policies and then apply them consistently;

• • observe the methods and principles in the Charities SORP;

• make judgments and estimates that are reasonable and prudent;

• • state whether applicable UK accounting standards have been followed, subject to any material departures disclosed and explained in the financial statements;
• • prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charity will continue in business.

The trustees are responsible for keeping proper accounting records that disclose with reasonable accuracy at any time the financial position of the charity and to enable them to ensure that the financial statements comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the charity and hence taking reasonable steps for the prevention and detection of fraud or other irregularities.

The trustees are responsible for the maintenance of integrity of the corporate and financial information included on the charitable company's website. Legislation in the UK governing the preparation and dissemination of financial statements may differ from legislation in other jurisdictions.

Statement as to disclosure to the independent examiner

In so far as the trustees are aware at the time of approving our trustees' annual report:

• there is no relevant information, being information needed by the independent examiner in connection with preparing their report, of which they are aware.

• the trustees, having made enquiries of fellow directors that they ought to have individually taken, have each taken all steps that he/she is obliged to take as a director to make themselves aware of any relevant information and to establish that the independent examiner is aware of that information.

By order of the board of trustees

Date:

Page 11

INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES OF:

THE PERNICIOUS ANAEMIA SOCIETY

I report on the accounts of the charity for the year ended 31st March 2021 which comprise the Statement of Financial activities, the Balance Sheet and related notes.

This report is made to the Trustees, as a body, in accordance with the terms of my engagement. My work has been undertaken so that I might carry out an Independent Examination of the financial statements in accordance with the General Directions given by the Charity Commissioners. To the fullest extent permitted by law, I do not accept or assume responsibility to anyone other than the Charity and the Charity's Trustees, as a body, for my work or for this report.

RESPECTIVE RESPONSIBILITIES OF TRUSTEES AND EXAMINER

The trustees (who are also the directors of the company for the purposes of company law) are responsible for the preparation of the accounts. The trustees consider that an audit is not required for this year under section 144(2) of the Charities Act 2011 (the 2011 Act) and that an independent examination is needed.

Having satisfied myself that the charity is not subject to audit under company law and is eligible for independent examination, it is my responsibility to:

• examine the accounts under section 145 of the 2011 Act;

• • to follow the procedures laid down in the general directions given by the Charity Commission under section 145(5)(b) of the 2011 Act; and

• to state whether particular matters have come to my attention.

BASIS OF INDEPENDENT EXAMINER'S REPORT

My examination was carried out in accordance with the general directions given by the Charity Commission. An examination includes a review of the accounting records kept by the charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would be required in an audit and consequently no opinion is given as to whether the accounts present a "true and fair view" and the report is limited to those matters set out in the statement below.

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INDEPENDENT EXAMINER'S STATEMENT

In connection with my examination, no matter has come to my attention:

• 1 which gives me reasonable cause to believe that in any material respect the requirements

• to keep accounting records in accordance with section 386 of the Companies Act 2006; and

• • to prepare accounts which accord with the accounting records, comply with the accounting requirements of section 396 of the Companies Act 2006 and with the methods and principles of the Statement of Recommended Practice: Accounting and reporting by Charities.

have not been met; or

• 2 to which, in my opinion, attention should be drawn in order to enable a proper understanding of the accounts to be reached.

Regus. 15th Floor Brunel House George Kitcher FCA 2 Fitzalan Road Chartered Accountant Cardiff CF24 0EB Date

Page 13

The Pernicious Anaemia Society

Statement of Financial Activities (including Income and Expenditure Account) for the year ended 31st March 2021

					2020
		Un/restd	Restd	TOTAL	TOTAL
	NOTE	Funds	Funds	FUNDS	FUNDS
		£	£	£	£
Incoming Resources from
charitable activities:	1
Grants	1	0	0	0	0
Voluntary Income		46,938	1	46,939	116,038
Total Incoming Resources		46,938	1	46,939	116,038
Resources expended	1
Charitable activities	3	42,787	0	42,787	48,558
Governance costs	4	785	0	785	954
Total Resources Expended		43,572	0	43,572	49,512
Net Income for the Year		3,366	1	3,367	66,526
Reconciliation of Funds
Total funds brought forward		81,472	2,828	84,300	17,774
Total funds carried forward		84,838	2,829	87,667	84,300

The statement of financial activities includes all gains and losses for the year. All incoming resources and resources expended derive from continuing activities.

Page 14

THE PERNICIOUS ANAEMIA SOCIETY

Balance Sheet as at 31st March 2021

				2020
	NOTE	£	£	£	£
Fixed Assets	7
Tangible assets			7,186		3,864
Current Assets
Debtors	8	699		463
Cash at Bank		80,702		80,788
		81,401		81,251
Creditors: amounts falling due
within one year	9	-920		-815
Net Current Assets			80,481		80,436
Net Assets			87,667		84,300
Unrestricted funds
General funds	1		84,838		81,472
Restricted funds			2,829		2,828
Total Funds			87,667		84,300

The charitable company is entitled to exemption from audit under section 477 of the Companies Act 2006 for the year ended 31st March 2021.

The members have not required the charitable company to obtain an audit of its financial statements for the year ended 31st March 2021 in accordance with section 476 of the Companies Act 2006.

The trustees acknowledge their responsibility for:

• (a) ensuring that the charitable company keeps accounting records that comply with sections 386 and 387 of the Companies Act 2006 and

• (b) preparing financial statements which give a true and fair view of the state of affairs of the charitable company as at the end of each financial year and of its surplus or deficit for each financial year in accordance with the requirements of sections 394 and 395 and which otherwise comply with the requirements of the Companies Act 2006 relating to financial statements, so far as applicable to the charitable company.

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THE PERNICIOUS ANAEMIA SOCIETY

Balance Sheet as at 31st March 2021 (contd)

These financial statements have been prepared in accordance with the special provisions of Part 15 of the Companies Act 2006 relating to small charitable companies and with the Financial Reporting Standard for Smaller Entities (effective April 2008)

The financial statements were approved by the directors on

and signed on their behalf by:

........................................................

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THE PERNICIOUS ANAEMIA SOCIETY

Notes to the accounts Year ended 31st March 2021

1 Accounting Policies

The principal accounting policies are summarised below. The accounting policies have been applied consistently throughout the year.

(a) Basis of accounting

The financial statements have been prepared under the historic cost convention and in accordance with the Companies Act 1985 and the Statement of Recommended Practice: Accounting and Reporting by Charities issued in March 2005

(b) Fund accounting

• Unrestricted funds are available for use at the discretion of the trustees in furtherance of the general objectives of the charity.

• The restricted funds represents a fund started for research into the relationship between Stomach Cancer and Pernicious Anaemia. It will continue to grow until it reaches £10,000 when it will be handed over to Prof. Mark Pritchard.

(c) incoming resources

All incoming resources are included in the statement of financial activities when the charity is entitled to, and virtually certain to receive, the income and the amount can be quantified with reasonable accuracy. The following polices are applied to particular categories of income:

• Subscriptions and donations are included when received.

• Gift Aid is included on an accruals basis

(d) Resources expended

Expenditure is included on an accruals basis as a liability is incurred. Expenditure includes VAT which cannot be recovered and is reported as part of the expenditure to which it relates.

• Charitable expenditure comprises those costs incurred by the charity in the delivery of its activities.

• Governance costs include those costs associated with meeting the constitutional and statutory requirements of the charity and include the fees for the independent examination.

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THE PERNICIOUS ANAEMIA SOCIETY

Notes to the accounts Year ended 31st March 2021

(e) Depreciation

Depreciation is provided to write off the cost of fixed assets over their useful lives at the rate of 25% on a reducing balance basis.

2	Voluntary income	2021	2020
		£	£
	Donations and subscriptions	8,510	94,876
	Membership Fees	31,923	15,937
	Gift Aid receipts	6,476	3,876
	Interest	29	71
	Rent	0	500
	Restricted Funds	1	778
		46,939	116,038
3	Resources expended	2021	2020
		£	£
	Trustees' expenses	537	8,771
	Insurances	1,351	1,229
	Administration	3,096	1,703
	Communications	2,364	1,365
	Office costs	543	413
	Research Costs	98	266
	Website design and Maintenance	9,061	7,124
	Volunteer expenses	0	1,536
	Motor Expenses	331	0
	Conference/Open Day costs	228	13,587
	Depreciation	2,403	1,291
	Promotion/Fundraising	1,851	3,349
	Finance Charges	0	544
	Repairs, Additions, Replacements	1,829	2,478
	Purchase of Books	919	640
	Refreshments	0	241
	Support Group Costs	40	222
	Professional Fees	14,575	243
	Car Lease	3,561	3,556
		42,787	48,558

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THE PERNICIOUS ANAEMIA SOCIETY

Notes to the accounts

Year ended 31st March 2021

4	Governance costs	2021	2020
		£	£
	Independent examination	785	780
	Annual General Meeting	0	174
		785	954

5 Trustee Remuneration & Related Party Transactions

Travel costs of £537 (2020 = £8,771) were reimbursed to trustees.

Mr S Ganter, a Director/Trustee, received £600 (2020 = £nil) for professional works undertaken during the year.

Mr M V Hooper MBE, a Director/Trustee, received £10,500 (2020 = £nil) for consultancy work carried out during the year.

6 Taxation

As a charity, The Pernicious Anaemia Society is exempt from tax on income and gains received within the categories covered under Part 11 of the Corporation Taxes Act 2010 or section 256 of the Taxation of Chargeable Gains Act 1992, to the extent that such income or gains are applied exclusively to charitable purposes.

7 Tangible Fixed Assets

Tangible Fixed Assets
	Equipment
	£
Cost
Balance as at 01.04.2020	10,086
Additions	5,725
Sales	0
Balance as at 31.03.21	15,811
Accumulated depreciation
Balance as at 01.04.2020	6,222
Charge for the year	2,403
Eliminated on disposals	0
Balance as at 31.03.21	8,625
Net book value
At 31.03.21	7,186
At 31.03.20	3,864	Page 19

THE PERNICIOUS ANAEMIA SOCIETY

Notes to the accounts Year ended 31st March 2021

8	Debtors	2021	2020
		£	£
	Gift Aid repayment due	699	463
	Conference Deposit	0	0
		699	463

All debtors for 2021 and 2020 relate to unrestricted funds.

9	Creditors: amounts falling due
	within one year.	2021	2020
		£	£
	Creditors and accruals	920	815

All creditors for 2021 and 2020 relate to unrestricted funds.

10 Allocation of Funds

	Un/Restd	Restd	TOTAL
	£	£	£
Fixed assets	7,186	0	7,186
Current assets	78,572	2,829	81,401
Current liabilities	-920	0	-920
	84,838	2,829	87,667

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