# RUBINSTEIN-TAYBI SYNDROME SUPPORT GROUP

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1147765
- **Other names:** RTS SUPPORT GROUP
- **Status:** Registered
- **Legal form:** Charitable company
- **Company number:** [07866190](https://find-and-update.company-information.service.gov.uk/company/07866190)
- **Registered:** June 20, 2012
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1147765


## Contact

- **Address:** 169 Watford Road, Croxley Green, RICKMANSWORTH, Hertfordshire
- **Postcode:** WD3 3ED
- **Phone:** 07812 567647
- **Email:** info@rtsuk.org.uk
- **Website:** www.rtsuk.org.uk



## Activities

**Objects:** 1) THE RELIEF OF THE PERSONS AFFECTED BY RUBINSTEIN TAYBI SYNDROME.2) TO ADVANCE MEDICAL RESEARCH INTO THE CAUSE, CURE, PREVENTION OR RELIEF OF SUCH CONDITIONS PROVIDED THAT THE USEFUL RESULTS OF THE RESEARCH SHALL BE PUBLISHED.

**Activities:** We seek to create a positive supportive network of parents, families and professionals in order to share information and experiences and to give emotional support. Activities include hosting regular get-togethers to support families of those affected by RTS; and the publication of an information booklet, regular newsletters and a website.




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability, Other Charitable Purposes
- **Who:** People With Disabilities, Other Defined Groups



## Geography

- Northern Ireland
- Scotland
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| ABBAS MEGHJEE |  | Feb. 8, 2021 |
| Danielle McInerney-Jlassia |  | Sept. 11, 2025 |
| Elisabeth Catherine Bach |  | April 14, 2024 |
| Joanna Faye Mullins |  | Feb. 8, 2021 |
| Julian Richard Smith |  | Sept. 22, 2020 |
| Richard Kell |  | Sept. 11, 2025 |
| Roseanna INGHAM |  | Oct. 23, 2022 |
| Zohra Lakha |  | Sept. 22, 2020 |




