
**Unaudited Financial Statements Year ended 31 March 2022** 

## **Leonard Gold Chartered Accountants** 



**Portsmouth Down Syndrome Association** 

## **Contents** 

Trustees’ Report and Financial Statements year ended 31 March 2022 …………………… 1 Independent Examiner’s Report to the Trustees on the Unaudited Financial Statements of Portsmouth Down Syndrome Association …………………………………………………... 22 Statement of Financial Activities for the year ended 31 March 2022 ……………………….. 23 Balance Sheet as at 31 March 2022 ……………………………………………………………. 24 Notes to the financial statements for the year ended 31 March 2022 ………………………. 25 




## **Portsmouth Down Syndrome Association Trustees’ Report and  Financial Statements for the Year Ended 31 March 2022** 

The trustees submit their Annual Report and the Statement of Financial Activities and Balance Sheet for the year ended 31 March 2022. 

## **Portsmouth Down Syndrome Association** 

Also known by the working name Portsmouth DSA Formerly known as Portsmouth Down Syndrome Support Group and Portsmouth Down Syndrome Association (Footprints) 

## **Registered Charity Number:** 1147355 

**Registered Address:** The Sarah Duffen Centre, Belmont St Building, Cottage Grove School Campus, Chivers Close, Portsmouth PO5 1HG 

## **Board of Trustees:** 

Rachael Ross MBE - Chair (Director of Fundraising & Education/Training, School Advisory Service and Training Director, Community Liaison – business, health, education) 

Ken Ross – Vice-chair (Development Officer, Fundraising, Community Liaison) 

Helen Nelson – Treasurer Kate Allen – Charity Secretary Simon Brock – Trustee 

**Bank:** HSBC, Commercial Road, Portsmouth, PO1 1EP 

## **Independent Examiner:** Mr A Chapman 

Leonard Gold, 24 Landport Terrace, Portsmouth PO1 2RG 

**Patrons:** We are very honoured to have the support of some wonderful individuals who lend their support to the charity and help us raise awareness. 

- Professor Sue Buckley OBE - world leading expert in education and development for children with Down syndrome, and renowned Chief Scientist of Down Syndrome Education International 

- Emma Barton (Actress) 



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## **Portsmouth Down Syndrome Association** 

- Scott Heffield (Adventurer and TV Presenter) 

- Tim Treloar (Adventurer and TV Presenter) 

- Liam Bairstow (Actor) 

- Tommy Jessop (Actor) 

- Gregory Jones QC and Alderman in the City of London 

## **Introduction** 

Portsmouth Down Syndrome Association is an award-winning charity, and we are very proud to have received royal approval for our ‘exemplary work’. 

Formerly established in May 2009,  Portsmouth Down Syndrome Association is committed to improving the lives of individuals across the South of England and beyond. We know our young people can succeed when given the opportunity with the right support, and we believe they deserve the same opportunities and right to be included and experience success as their peers. 

Portsmouth DSA provides a range of some of the best specialist services in the UK supporting development and education and offers training to assist families and professionals in providing effective support from the point of diagnosis. 

Our services are the only fully comprehensive and progressive services in the UK supporting the child’s education and development from diagnosis through to young adulthood with training to assist families and professionals in providing direct and effective support to improve outcomes.  We teach children the skills they  need  to  reach  their  developmental  milestones,  succeed  at  school,  and become  valued  and  productive  members  of  their  communities. Services  are provided at no charge to the community as we want to remove all financial barriers to access. 

Portsmouth  DSA  works  hard  to  raise  awareness,  champion  inclusion,  and celebrate diversity in all areas.  Life-expectancy and life in general is gradually improving for people with DS however, awareness in the community, provision and  regulations  have  not  kept  pace  with  this  progress  due  to  lack  of representation and interest at governmental levels and individuals continue to experience discrimination and exclusion on daily basis.  We strive to readdress the balance and promote equality for all by equipping individuals & families with the knowledge & skills they need to succeed in all areas, by raising awareness in all sectors of  society & sharing the skills  and knowledge required to enable meaningful inclusion. When children with Down syndrome are given opportunities to participate and be fully included, the whole community benefits. 

Our activities continue to be very well received by parents and professionals, our services capacity is full, and we continue to operate waiting lists due to high demand. 



We are currently still based at the Sarah Duffen Centre which in normal times is well  utilised  and  provides  an  invaluable  base  from  which  we  can  host  our educational groups, coffee mornings and meetings.  Membership has continued to steadily rise and with careful planning we have been able to cater for all our new families’ needs. We have seen an increase in the number of prospective parents with a diagnosis making contact, and as a first point of contact they have been put in touch with our Family Liaison Team. 

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## **Portsmouth Down Syndrome Association** 

## **Governance** 

## **Governing Document** 

Portsmouth Down Syndrome Association is governed by a constitution adopted on 16[th] November 2011 which has been approved by both HMRC and the Charity Commission. 

## **The Board of Trustees** 

The Board of Trustees of Portsmouth Down Syndrome Association has overall responsibility for the charity’s activities and finance.  There are currently five dedicated and experienced trustees  working either full time or  part  time on behalf of the charity, three of whom are parents of a child with Down syndrome. 

The Chair of the Board, **Rachael Ross MBE** , previously served on the Board of Trustees for Down Syndrome Education International for over five years, as well as on additional educational boards.  Rachael has experience of governance, fundraising, and issues concerning Down syndrome at a local and national level. As a qualified English, Geography and Drama teacher, and parent of a child with Down syndrome, she created the national reading scheme ‘Up for Reading’ for DSEI which was endorsed and supported by over 100 the UK’s top publishers and leading authors and helped to raise the profile of Down syndrome across the UK. Her educational and awareness articles have also been featured in national and regional publications, as well as county SEND publications for schools. 

Rachael is also a Founding Officer for the National Down Syndrome Policy Group acting as Secretariat to the All-Parliamentary Group on Down Syndrome, and BAFTA’s joint first Accessibility and Inclusion Patron. 

In recognition of her sustained contribution to education and Down syndrome, Rachael was awarded The Points of Light Award in 2015, The Portsmouth Civic Award in 2018 and was honoured with an MBE for ‘Services to Education and Down Syndrome’ in 2019. This year Rachael was honoured by HM the Queen, with  a  Platinum  Champions  Award  and  was  selected  as  one  of  the  top  70 exemplary volunteers in the UK. 

Rachael  oversees  the  smooth  running  of  the  charity  and  is  the  Director  of Educational Services. She manages the Schools Advisory and Training Service and is the charity’s Director of Fundraising.  She is also a Trustee for the National Down Syndrome Policy Group acting as Secretariat to the All-Parliamentary Group 



on Down Syndrome and has been elected BAFTA’s joint first Accessibility and Inclusion Patron. 

The charity’s Vice-Chairperson **Ken Ross** is the charity’s Development Officer. He has  worked  predominantly  as  an  entrepreneur  predominantly  in  the  real estate and film sectors. He is also a Founding Officer for the National Down Syndrome Policy Group acting as Secretariat to the All-Parliamentary Group on Down Syndrome, and BAFTA’s joint first Accessibility and Inclusion Patron.  Ken has significant experience in working with national bodies to provide solutions within his areas of expertise with a particular focus on learning disability inclusion within the Arts and real estate sectors, as well as working with various ‘think tanks’. This year we are proud that Ken was honoured by HM the Queen, with a Platinum  Champions  Award  and  was  selected  as  one  of  the  70  exemplary volunteers in the UK 

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## **Portsmouth Down Syndrome Association** 

**Helen Nelson** is the charity Treasurer.  Helen has been PDSA’s bookkeeper for several years and has been an enthusiastic volunteer supporting our previous events and fundraisers.  She comes from a senior banking background bringing knowledge and expertise to the role. 

This year we welcomed **Kate Allen** to the trustee board in the role of Charity Secretary. Kate was a former trustee with Down Syndrome Education International. She  comes  from  a  marketing  background  and  has  wealth  of experience of being a part of a wide range of committees and is also chair and trustee  of  her  local  village  hall.  She  s  also  a  committee  member  for  Down Syndrome Swimming GB.  Kate has a daughter with Down syndrome, and has been member of Portsmouth DSA for many years, actively supporting fundraisers and events. 

**Simon Brock** comes from a senior banking background and brings his expert knowledge of business and finance to the charity. 

Most board members carry out various managerial and administrative responsibilities as ‘professional volunteers’ in addition to their trustee role. 

This year, long-standing board members **Lucy Field** and **Catherine Crook** stood down as trustees. Lucy and Catherine have been valued members of the board since the charity’s inception. They have dedicated a huge amount of time and energy  to their roles, helping to  elevate the charity into one of the leading specialist charities in the UK. We would like to say a huge thank you to Lucy and Catherine for their 13 years of service, and we are pleased that Catherine will continue to support the charity through her role as Social Communication Group Manager and Lucy as Administration Manager. 

Charity Manager **Alice Osborne** became a member of the charity five years ago after her son was born. She played an active role and worked as a key volunteer for  several  years  managing  our  membership,  welcoming  new  families  and leading  our  community  team,  in  particular  educating  health  professionals  to effectively support new families.  Alice is a social worker by profession and has worked in the field of disability for over 17 years. 



The board is actively supported by a strong team of charity administrators and practitioners, the Parent and Community Liaison Team, the Events Team and the Social  Media  and  IT  ream,  as  well  as  additional  member  volunteers  and individuals from the community, all of whom provide valued support for the charity. 

## **New Patrons** 

We were delighted to welcome two new patrons to Portsmouth DSA. 

**Tommy Jessop** was the first British actor with Down syndrome to star in a primetime TV drama. He is  s a founding member of the award-winning integrated company Blue  Apple  Theatre,  and  the  first  person  with  Down  syndrome  to become a full-voting member of BAFTA, and the first to present an award at the BAFTA award ceremony. In 2021, Tommy was made a Doctor of Arts  (honoris causa) by the University of Winchester. 

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## **Portsmouth Down Syndrome Association** 

Tommy is also an advocate and campaigner for people with Down syndrome. He is an ambassador for the national Down Syndrome Policy Group and played an active role in the campaign for the Down Syndrome Act. Tommy says, “I really am honoured and proud to be a patron of the Portsmouth Down Syndrome Association  and  will  support  all  they do  helping people  living  with  Down syndrome to live their lives to the full.” 

**Gregory Jones QC** is a barrister and Alderman of the City of London. Greg’s eldest cousin had Down syndrome and as children in 1970’s, Gregory and his sister Angela joined in day trips organised by Mencap for youngsters with Down syndrome. Greg says, “I’ve been hugely impressed by the dynamic work of the PSDA in securing proper integration for young students with Down syndrome in schools. Their key role with the National Down Syndrome Policy Group has helped move things to a new level by securing the ‘game changing’ Down Syndrome Act 2022.” 

## **Portsmouth DSA Now Has Royal Approval** 

## **The Queen’s Award** 

It is always wonderful when the charity receives recognition for the hard work and achievements of its governance team, practitioners volunteers and members. 

We were greatly honoured when Portsmouth DSA was awarded the **Queen’s Award** for outstanding service in June last year. This award is the equivalent of the MBE for charities; the highest accolade for exemplary service for charities, which is awarded for life. The Deputy Lord-Lieutenant who nominated us let us 



know that we were selected from thousands of organisations, and the national judges were immensely impressed with our ‘exceptional’ work. 

Charity Chairperson Rachael Ross MBE says, _“We are extremely proud that the work of our outstanding team has been recognised by Her Majesty the Queen, and that our charity now has Royal Approval. Our volunteers work very hard, but it’s hugely rewarding, and we never fail to be amazed by all the children can achieve. This award is a tribute to the dedication of our brilliant team of trustees, our wonderful families, and the local community whose collective efforts and support have helped to make a real and positive difference to the lives of children with Down syndrome.”_ 

We  received  messages  of  congratulations  from  the  community  including  the Lord-Lieutenant who conveyed, “ _On behalf of HM the Queen….I am delighted that Portsmouth Down Syndrome Association has won the Queen’s Award. This award is very richly deserved….Please convey my personal congratulations to everyone involved.”_ 

_Caroline Dinenage MP said,_ “This prestigious award is well deserved recognition for  your  hard  work  over  many  years  transforming  lives  and  outcomes  by promoting inclusion and providing outstanding specialist services and training. Many congratulations to the Portsmouth DSA team!” 

## **Additional Awards and Acknowledgments** 

We were very proud to win the **Shaping Portsmouth Education Award 2020** for our outstanding contribution to the field of education in the region. We were also  thrilled to  win the **Persimmon Homes Best Educational  UK Charity Award** in 2019, beating over 3,500 national & local charities to the accolade and securing a substantial grant of £100,000. 

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## **Portsmouth Down Syndrome Association** 

Trustee Rachael, and former trustee Lucy have previously been awarded the **Points  of  Light  Award** by  former  PM,  David  Cameron,  in  recognition  of outstanding charity work. Rachael was also awarded the prestigious **Portsmouth Civic Award** for Services to Education and Down Syndrome in 2018, presented by the Lord Mayor of Portsmouth. In 2019 the charity’s work was further spot lighted when Chairperson Rachael was made an **MBE** by the Queen for services to education and the field of Down syndrome. 

This year we were delighted when the Charity Chairperson Rachael and Vicechair Ken were once again recognised by HM the Queen and made Platinum Champions as two of 70 of the most exemplary volunteers in the UK. 

Portsmouth  DSA  was  also  selected  a **finalist  for  the National  Diversity Awards** last year from over 52,000 entrants across the UK. 

These awards reflect the hard-working community at Portsmouth DSA. They have helped to increase awareness about Down syndrome and have also raised the profile of the charity which has in turn had a positive impact on fundraising and donations, and improved community relations. 



**Objects** 

The charity’s objects are set out in the charity’s governing document: 

- To offer support and social activities for families 

- To preserve and protect the health and welfare of children with Down syndrome 

- To advance the education of the medical profession and the public when appropriate about childhood disability 

## **Activities** 

Portsmouth Down Syndrome Association remains committed to improving the lives of children with Down syndrome and their families by providing invaluable support and friendship as well as essential services and training. We continue to directly support families schools and health professionals in Hampshire and the surrounding  counties  of  Dorset,  West  Sussex  and  Wiltshire,  and  we  have continued to receive further requests for support and information from across the UK and internationally, from individuals, support groups, health and education professionals and a variety of organisations. 

In the current economic climate, many families experience difficulties accessing specialist  services,  and  we  have  continued  to  see  a  steady  rise  in  families contacting our charity, particularly those living further afield as there are no DS support services in their areas. There has also been a notable rise in education professionals and particularly health and social care professionals making contact to ask for advice and support. 

It  is  reassuring  to  see  a  rise  in  new  support  groups  setting  up,  along  with established groups expanding their range of specialist service, and we continue to  signpost  families  to  their  closest  support  group  if  they  have  one  and  to relevant support services. Many of these alternative groups have used the PDSA services model and have asked for advice from our trustees and practitioners, and some have attended our sessions and training for guidance. 

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## **Portsmouth Down Syndrome Association** 

We are proud to be able to share our skills, experience and knowledge in such a positive way, and we actively encourage all support groups to do the same. 

This year we were once again been approached to support a family seeking asylum in the UK, and our volunteers have risen to the challenge, going above and beyond to ensure that individuals were warmly welcomed and continue to have the necessary resources and support they need. 

After the impact of the COVID pandemic on our activities, we were more than delighted to see our charity activities resume as usual.  Our social activities include coffee and information mornings, ‘Learn and Play’ sessions, social events, information sessions and our very popular seasonal parties. 



We also provide a wide range of specialist health, social and educational services to families and related organisations across Portsmouth, Hampshire, surrounding counties and beyond.  These activities include New Family Support Services, Baby Support Groups, Early Development Groups, Communication Groups, Social Communication Groups and an extensive Education Advisory Service for schools, nurseries and further education colleges.  These services are progressive and comprehensive, starting from the point of diagnosis which increasingly can be prenatally, and provide support for the child and their family throughout their time in education. 

Accompanying  the  services  are  specialist  training  packages  which  are  often bespoke to meet the specific needs of our young people, parents and related professionals. This year we have been delighted to receive invitations to train a wide  variety  of  professionals  including  teaching  and  support  staff,  doctors, maternity nurses and midwives, social workers, healthcare students, GPs and optometrists as well as parents and school students. 

## **Specialist Services** 

Portsmouth  DSA  provides  the  best  and  most  extensive  programme  of  free specialist social and educational support in the UK, delivered by leading experts in Down syndrome. It is a comprehensive and progressive package that starts from the point of diagnosis, and continues throughout childhood and beyond, offering support in all areas of social and educational need for young people, their families and related professionals. 

## **Pre-natal Support** 

We have found that developments in screening have led to an increase in prenatal  diagnoses,  leading  to  an  increase  in  the  number  of  families  and professionals contacting us at this time. Our Parent and Community Liaison Team offer  support  and  information  from  the  point  of  diagnosis  for  families  and professionals 

## **Portsmouth Down Syndrome Association** 

## **Parent and Community Liaison Initiative** 


In 2018 we were excited to expand our existing  support  network  for  parents and health professionals by introducing our Parent and Community Liaison initiative, which was launched at **Queen Alexandra Hospital** , with 

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the Lord  Mayor  of Portsmouth  in attendance. To  accompany  the  launch, the charity  produced  a  Parent  Welcome  Pack  for  new  parents  and  supporting literature for NHS health professionals including advice on ‘Delivering a Diagnosis of Down Syndrome’ and ‘Positive Language’ written by Chairperson Rachael Ross. The pack was produced at cost price by local design company **Design Image** who have been loyal supporters of our charity. World leading toy manufacturers **Jellycat** were  also  impressed  with  the  pack  and  were  keen  to  support  the initiative by donating a soft toy for each new family. We continue to distribute these packs to hospitals and maternity units across the region. This has been a big success and new parents are now regularly signposted to us. 

The initiative includes a comprehensive support system for new parents from the point of diagnosis. Our team make contact with new families in hospital, at home and or at our centre to answer any questions and offer advice and support. The team is also regularly working with midwives, nurses, paediatricians, GPs, social workers, portage workers and other relevant health professionals to ensure they have the information they need to effectively support families and colleagues. 

The programme also enables us to offer bespoke training to health professionals including our **‘Down Syndrome Today’** training and to date our team has had the  pleasure  of  delivering  training  to  over  300  trainee  midwives  at  the Bournemouth  University  Midwives  Conference,  as  well  as  hundreds  more midwives,  paediatricians,  maternity  nurses,  social  workers  and  other  related professionals. 

The team is led by **Alice Osborne** who comes from a social work background with  experience  of  working  with  individuals  with  a  learning  disability.  Alice continues  to  throw  herself  wholeheartedly  into  implementing  our  exciting initiative and has been busy meeting our lovely new families, developing and delivering training to health professionals and forging ever-stronger links with the health community.  Last year we were pleased to welcome **Dr Anjali Hoyle GP** to our training team this year, who has helped organize training for GP surgeries. 

We continue to receive excellent feedback from parents and health professionals about  our  initiative,  and  we  look  forward  to  expanding  this  further  over forthcoming months. 

_“After your amazing talk, I took the learning points back to my practice and we’ve updated our annual reviews for patients with Down syndrome. Already patients  and  relatives  have  given  great  feedback  and  we  have  picked  up hypoparathyroidism in the first week in a new patient to our practice who had never  had  a  review  with  his  previous  GP,  so  a  massive  thank  you”.   (GP, Hampshire)_ 

## **Portsmouth Down Syndrome Association** 

_'’The PDSA provides wonderful personal and practical advice to children and their families, right from the point of diagnosis.  As a group of paediatricians, we have also benefited from some fantastic teaching provided by the charity.  Forging a closer link between medical staff and the PDSA will undoubtedly enhance the experience for young people with Downs syndrome.’’ James Hammond, Paediatric Registrar, Wessex_ 

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_‘‘The PDSA guidelines are a great resource to help the neonatal team support the families in those wonderful and challenging first few days of life. 35 neonatal nursery nurses from the Thames Valley and Wessex Neonatal Network had the privilege of listening to PDSA representatives in a recent conference run by the Neonatal unit in Portsmouth. This session touched us all and had a very positive influence in the way we think about children with Down syndrome.’’_ Susi Hill, Practice Educator, Neonatal Intensive Care Unit QAH 

## **Baby Support Groups** 

We continue to offer support from birth, at what can be a difficult time for new parents. The Baby Support Groups are delivered by our expert practitioners and provide advice and information for parents with infants aged up to 18 months. Parents are advised of the services and checks they should be receiving, they receive advice in all areas of development, and learn activities to practise at home to aid their child’s development. 

## **Learn and Play Sessions** 


Our Learn and Play Sessions are for preschool                        families and are designed  to  introduce  stimulating  play and learning environments with an emphasis on sensory play to activate the child’s  senses  in a  fun  and relaxed setting.  The sessions are supported by volunteers,  meaning  that  our  staff  are free to chat with parents, offer 

advice  and  answer  any  questions  they might have. 

We received a generous grant from the **Hants and Isle of Wight Community Foundation** for £5,000 to help fund our EDGs and Learn and Play sessions. 

## **Early Development Groups** 

Early intervention sessions have proved 

to be invaluable for our pre-school children, teaching them a wide range of skills to enable them to achieve their early developmental 

milestones,  and  help  prepare  them  for  school.  The  groups  provide  regular structured activities which cover areas such as speech and language, reading, cognitive development, early number work, social skills and fine and gross motor skill development.  These sessions are provided monthly for the children who are under 24 months, and then increase to fortnightly.  Parents and their associated professionals are also invited to attend termly 

twilight training sessions covering a range of relevant topics, which this year have included developing early numeracy skills, social skills and behavior, and play and fine motor skills. 

## **Portsmouth Down Syndrome Association** 

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Specialist  resources  are  utilised  such  as  the **See  and  Learn  Reading  and Speech  and  Language  materials** ,  and **Numicon** equipment.  Parents  are encouraged  to  continue  activities  with  their  children  at  home  to  increase effectiveness.  The sessions not only benefit the children who take part, but also parents can experience new methods and resources which will support their child’s  development.  Groups  consist  of  only  two  to  four  children  to  enable maximum learning to take place. 

We received two grants towards our EDGs this year. One for £1,000 from **Tesco Groundworks Fratton** , and a further grant from the **Hants and Isle of Wight Community Foundation** (as above) for £5,000 to help fund our EDGs and Learn and Play sessions. 

## **Communication Groups** 

We run monthly Communication Groups for school age children aged 4 – 11 on Saturdays delivered by an experienced Speech and Language Therapist. Groups consist of three or four children with a focus on interaction and communication skills, with targets and activities set to practise at home throughout the month. Interventional strategies are used to support all areas of development, and aim to improve speaking and listening, language, reading and social skills. 

After struggling to find a suitably qualified replacement speech and language therapist due to a shortage in the field, we were delighted to welcome Emily Harnett to the team. Emily is Highly Specialist _Speech and Language_ Therapist working for Cognus Ltd with experience in supporting children with Down syndrome, and she has proved very popular with our members. This is unfortunately only a temporary measure and will provide a stop gap until we can hire an experienced permanent therapist, but nevertheless we are delighted to be able to continue to offer this invaluable service for our members. 

## **Social Communication Groups** 

The format for our Social Communication Groups for our senior members (aged 11  upwards)  has  evolved  to  consider  their changing needs  as  they get  older  and have been extremely successful. These groups are larger, and more informal with a maximum of 10 individuals. Parents are not present, and the young people take on more responsibility for their session; they set up the room and decide which topics they would like to discuss, they use iPads & 

iPhones, but the sessions continue to develop their speech, language, conversation and social skills. 

These  monthly  groups  are  led  by  our  new speech and language therapist Grace Anstey, who is suitably experienced in the field of DS, and supported by our new co-worker Tracy Leason who again has an abundance  of  experience  delivering  SALT  programmes  and  has  worked  with children with DS and SEND in an educational setting. Both Grace and Tracy have settled into their new roles and are well liked by the teenagers. For now, the groups  are  still  overseen  by  Leela  Baksi  (Symbol  UK)  specialist  Speech  and Language Therapist. The young people enjoy attending and the sessions they have been a big success. 

We are aware that a good friendship network is particularly important for our young people, and an aim of the group is to encourage these friendships. To 



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further facilitate this, we have set up a closed WhatsApp Group so the young people can communicate with each other in a 

## **Portsmouth Down Syndrome Association** 

safe  environment  on  social  media.  It  is  a  work  in  progress!  We  also  try  to organise monthly outings for the teenagers where they can socialise and have fun with friends, and some groups also go out locally after their monthly session. It has been lovely to watch these groups mature and friendships develop. 

## **Special Partnership with King Edward VI School** 


We have developed strong links with many schools in the region including **King Edward Vl School** who have been active supporters of our charity over past years, and who often take part in our Down Syndrome awareness celebrations each year. 

We know that our young people often don’t access the same social opportunities as their peers. This year we were thrilled to enter into an exciting new buddying partnership with some older students from King Edward Vl School who join us for our Social Communication Group outings with the aim of developing friendships and social skills. 

The partnership has been hugely successful so far, and the students and our teenagers have embraced the opportunity to engage with massive benefits to all taking part. Outings have included swimming, donutting at the ski slope and a barn  dance.  It  has  been  wonderful  to  watch  the  friendships  developing throughout the year. 

The year’s partnership ended in a successful summer camp at the end of August at  King  Edward  VI  School,  where  pupils  and  our  teenagers  took  part  in fun activities, and outings including trips to the zoo and a theme park.  We would like to thank Mark Miller and everyone at KES for working with us in partnership to provide such an exciting and unique opportunity for our teenagers. 

## **The School, College and Nursery Education Advisory Service** 



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Portsmouth  Down  Syndrome  Association  has  worked  hard  to  establish  and develop our flagship School, College and Nursery Service, which we believe it is now the best and most comprehensive example of its kind in the UK. 

## **Portsmouth Down Syndrome Association** 

In September 2012, we supported the successful inclusion of our children in over 21 mainstream schools in Portsmouth, Hampshire and surrounding counties. In March 2014, this figure rose to 40, and we currently now provide support for our members in 100+ nursery, primary, secondary and further education settings. 


We receive enquiries from non-member schools and schools in neighbouring counties  as  awareness  about  the  service spreads. The service is in high demand, and we operate waiting lists. 

This bespoke support service is a comprehensive package covering all aspects of education, assessment, development and inclusion, individualised to meet the needs of the child and school.  The child is visited in the school setting once a term, and school staff and parents receive advice in all areas of development including successful differentiation and teaching strategies, individual assessment and target setting.   An  annual  report  is  provided  to support  the  child’s  educational  needs  in their Annual Review. 

The package includes remote support for parents and staff throughout the year, as well as  bespoke training and a  trouble-shooting service to address  any problems which might arise over the year. 

As more of our children reach senior school age, service provision in this area is expected to grow rapidly which will impact on the charity’s costs. 

Whilst many primary schools have previously benefited from our support and have had experience of teaching a child with DS, this is largely a new area for many senior schools. 

Careful consideration has been given to this, and the service has been adapted accordingly.  The Senior Schools Advisory Package includes transition support, one full day visit a term, 

with additional twilight training or feedback after the visit, and each new school also receives an additional free training session at the start of the term, or just prior to this. Our education manager Vik Ralfs is an expert in Relationships & Sex Education, and we invite schools to take advantage of her expertise to run sessions for children or staff when required, and we also offer an additional RSE training session or similar for all our Year 7 pupils. 



Several termly training sessions are also included in the outreach programme on a variety of relevant topics delivered by our expert practioners or experts in the field of Down syndrome. This year, as well as our annual DS overview and learning  profile training,  we have featured topics  including ‘self-esteem  and emotional  well-being’,  ‘relationships  and  sexual  education’,  ‘behaviour’  and ‘supporting literacy’ and we have equipped schools with 

useful  resources  and  toolkits  to  facilitate  inclusion.  We  were  also  able  to circulate  our  online  training  brochure  featuring  films  to  support  successful inclusion made during COVID. 

All training is relevant and based on up-to-date and evidence-based research, and we are very pleased to say that our training evaluation sheets continue to be 100% positive. 

We have been delighted to have previously been joined by the SEND County Inspector, who attended our inclusion training. She was very impressed with the session and has since been actively recommending our services to schools. Our chairperson and director of education 

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## **Portsmouth Down Syndrome Association** 

was invited contribute to the **Hampshire Inspection and Advisory Service SEND  Publication** which  was  circulated  to  all  schools  in  the  county.  Our guidance was then featured in the national **Times Educational Supplement** with a circulation of 59,000 as well as online coverage. 

Having our work showcased in this way is a great opportunity for us to raise the profile of DS and the charity, and to spread our important message direct to schools and teaching staff who do not automatically receive the training they need to successfully include our children. 

Feedback has continued to show that our Nursery Advisory Service and Nursery Twilight Training Service remains very popular with our pre-school parents and related professionals.  Although the training takes place outside of working hours in the evening, the courses are always full.  Again, feedback has been 100% positive. 

The  School,  College  and Nursery  Service has  provided  an excellent  PR opportunity for the charity and has helped us develop and maintain strong links with the school communities with many of these schools holding fundraising or awareness days on our behalf particularly during Down Syndrome Awareness Week in March. Two new updated presentations about Down syndrome were prepared for schools specifically for awareness week. 

The charity has previosuly invested time into exploring alternative accreditations and exam courses which are more suitable for our young people, will offer more choice and opportunties, and will allow them to achieve meaningful, recognised qualifications. Inparticular, we identified the **WJEC examinations** board portfolio of alternative qualifications known as the Entry Pathways. 

The attraction of these qualifications for schools and pupils is that its prescribed content is more flexible allowing schools to more easily include a pupil in a GCSE class, and schools can more easily dual enter pupils for examinations. We have produced advice literature for parents and professionals about all the options available, and  an  explanitory  training  session for  schools  (and parents).  Our practitioners have allocated extra time to work with the relevant schools, to 



explain more about the options availiable and to help them plan. Our schools have been keen to explore these alternative pathways and they have embraced our training and guidance. These alternative options have revolutionised exam possibilities for our teenagers and can also be of benefit to other pupils in the school community, and as our eldest cohort of pupils reach exam age, they are leaving school with GCSEs and more meaningful quailifactions. 

We were delighted to receive a donation of £7,000 from the **Wates Foundation** to help us fund our school advisory service, and we are very greatful for their interest in our chairty and their continued support. 

## **Our Practitioners** 

Our services are all delivered by experienced and highly qualified experts in the field of Down    syndrome. **Vik Ralfs** , the charity’s inhouse education manager, is an expert educationalist and authority in DS and Relationships and Sex Education (RSE).   Vik  has  a  wealth  of  experience  and  has  worked  for  leading  UK organisations such as MENCAP and Symbol UK, as well as taking on the role of National Training and Education Manager for eight years for the Down Syndrome Association, where she also co-wrote the original ‘Tell it Right’ Programme and worked with the Royal College of Midwives over 3 years to develop the accredited national midwifery training programme on supporting expectant and new families of children with Down syndrome which was rolled out nationally. Vik co-delivers our Junior and Senior School Advisory Service and training, our RSE training, and training for NHS health professionals. Vik has worked with Portsmouth DSA since 2013. 

13 

## **Portsmouth Down Syndrome Association** 

**Allison Powell** has a background in secondary education, and further trained as a  specialist  advisory  teacher  with  Down  Syndrome  Education  International. Allison co-delivers our Junior and Senior School Advisory Service and training, is a recognised authority on the education of children with DS, formerly working with Ups  and  Downs,  Southwest.   Allison  has  worked  hard  to  develop  a  training programme and supporting literature to advise schools and parents on alternative  accreditations  and  exam  pathways  which  best  enable  our  young people to gain a wide range of recognised qualifications at school and our first cohort of senior school pupils are reaping the rewards of this and are studying for and  gaining  meaningful  qualifications  enabling  greater  options  at  further education level. 

**Becky Baxter** (LETS Go!, formerly Down Syndrome Education International) has over 20 years’ experience of working with children with Down syndrome. She is also a qualified speech and language therapist, specialising in Down syndrome, and is the Chair of the Clinical Excellence Network for Down Syndrome. Becky codelivers  our  Early  Development  Groups,  Nursery  and  Infant  School  Advisory Service along with practitioners **Sarah Holton, Sam Wood, Tracy Nye and Kate Dale** .  Becky and her team have been working with Portsmouth DSA since 2009. 

**Grace Anstey** joined our team in 2019 to deliver our Social Communication Groups for our teenagers. Grace is a qualified speech and language therapist with experience of working with young people with additional needs. She is supported by  co-worker **Tracy  Leason** who  joined  us  at  the  same  time.  Tracy  is  an experienced  speech  and  language  assistant  with  experience  of  supporting 



children  in  schools  with  SEND.  Tracy  has  also  attended  relevant  co-worker training courses to enhance her skills and actively supports Grace in her role. Both Grace and Tracy are very popular with our teenagers and have been a welcome addition to the team. 

**Leela Baksi** (Symbol UK) previously supervised the delivery of our senior Social Communication Groups (SCGs) and has remained in touch to offer advice. Leela is a qualified speech and language therapist with well over 20 years’ experience of working with children with DS, and is a specialist in eating and drinking disorders, and was the author of the national paper ‘How Much is Enough’ giving guidance about speech and language therapy for children with Down syndrome. We are very fortunate to benefit from her expertise. 

## **Emily Harnett** 

Emily joined our team this year to deliver our communication groups to our primary school-aged children. Emily is a highly specialist Speech and Language Therapist specialising in Down syndrome education and intervention. She has a wealth of experience working with children with Down syndrome and also works as part of the Cognus Therapies Team. 

**Alice Osborne** joined our staff in September 2019 after volunteering with us for several years. Alice is now employed on a part-time basis for the charity in the capacity of Charity Manager.  Alice also continues to regularly volunteer on a weekly basis.  Alice is a qualified social worker with experience of working with individuals with a learning disability, and her knowledge and professionalism has been an asset to the charity. 

Our Head Patron, **Professor Sue Buckley OBE** , is one of the foremost global experts in education and development for children with Down syndrome, and for well over 40 years, her pioneering work has been enabling children with DS to reach their full potential. Sue is always ready to offer her friendship and expert advice to the group. 

We are fortunate and very excited to continue to work with some of the top educationalists and DS experts in the UK, and the world. 

14 

## **Portsmouth Down Syndrome Association** 

## **Safeguarding** 

We take the issue of safeguarding our children very seriously.  Trustees and service providers have been approved by the Disclosure and Barring Service (DBS) which has replaced the Criminal Records Bureau disclosure (CRB checks). Using  the  DBS  update  service,  these  records  are  checked  regularly  for  any changes by our elected Child Protection Officer who has attended safeguarding training  and  shared  information  with  charity  workers.   Key  charity  staff  and volunteers  have  also  attended  relevant  training.  We  have  a  Child  Protection Policy with all relevant supporting documents and all trustees and relevant staff, practitioners and volunteers are familiar with this document and are aware of procedure should there be any concerns. 

## **Social Events and Parties** 



Many families with a child with a disability can feel isolated, so our social events and parties remain of key importance to provide families with opportunities to come together, have fun make friends and share experiences. 

Given the importance of our social events for our families, we recruited a new **Events  Manager** to  our  staff  this  year  who  takes  responsibility  for  events management and fundraising, and also leads our amazing **Events Team** . Stacey Brooks had been a member of the volunteer events team herself for many years, so is experienced and familiar with our events and was able to jump straight into the role. 

Events over the past financial year have included our very popular Easter party where children met their favourite characters and received chocolate eggs donated by Asda, Sainsburys and Tesco and soft toys donated by **TY Toys** who have supported our event for many years, a spooky Halloween party and a very successful outdoor event at Fairthorne Manor where children were given the opportunity to take part in activities such as kayaking, archery and climbing.  All our events are extremely popular and well attended. 

We would like to thank the **Portsmouth Carer’s Centre** for their kind donation of £500 to help fund our Halloween party this year. 

In December, we held a Christmas Party for pre-school children attended by the **Lord Mayor of Portsmouth** and also representatives from the **Zurich** team who very generously donated £500 towards the gifts for the children which were hugely popular with our children. The **Events Team** have been encouraged to take more responsibility for these activities over the year, and they excelled themselves with this event, making an amazing Santa’s Grotto and hosting a fantastic party for the children. 

15 

## **Portsmouth Down Syndrome Association** 

## **VOLUNTEERS** 

We encourage a community spirit within our membership, and a good percentage of our members volunteer either on a regular or ad hoc basis. We estimated that over 80 members formed part of our cheer teams or supported our event over the  Great  South  Run  weekend,  and  families  and  the  Events  Team  regularly volunteer to support collections and other charity activities. 

We have 5 volunteers who regularly help run our coffee mornings for parents and members of the community, and also a large events team of  volunteers who help plan and organise our many social and fundraising events. These teams have included members from the wider community, as well as parents. Their 



support  has  been  invaluable,  and  this  has  allowed  us  to  timetable  extra awareness events and fundraisers with our charity partners this year.  Our charity is largely run by volunteers,  and we are very  grateful to everyone for their support. 

We were delighted when Portsmouth DSA received the **Queen’s Award for Voluntary Service** this year academic year, and it is credit to our inspirational leadership team, many of whom are full and part-time volunteers themselves, and  our  wonderful army  of  volunteer  supporters.  We were  also  delighted  to receive an additional **Special COVID Recognition** honour for our work during the COVID  pandemic.   Each  volunteer received an individual Queen’s  Award certificate and a social covid recognition certificate, and this number included some of our teenagers with Down syndrome and their older siblings. 

## **Fundraising, Awareness and Community Support** 

We have been very successful in meeting our targets for fundraising once again this year due to our successful fundraising programme, and we have continued to maintain healthy reserves. 

We have organised several fundraising events, including the **Great South Run** in October. The run takes place annually in Portsmouth, and we continue to take advantage of its location to make it one of our largest annual fundraisers. There was a drop in numbers as expected as the community emerged from COVID, but we still had a strong team of 165 runners who joined us for the tenth year running. This was a great PR opportunity to spread awareness about the charity to the wider community, and we received some very positive feedback from the organisers and members of the public. It was wonderful to see so many of our green charity vests, and some of our runners were featured on the local news and radio. 

In particular, we were thrilled with the number of under 18s who turned out on the Saturday to support us, including many of our children, as well as athletes from the **SE Hants Special Olympic Team** who joined us for the 5k for the third year running.  We also had a huge team of volunteers as usual who encouraged runners at various cheer points around the course.We were certainly the best represented charity there on the day once  again. The weekend was a  huge success and saw sponsorship funds generated of £37,186.79 clear profit. 

We were very grateful to the **Rapid Relief Team** who provided free hot food and refreshments  to  hundreds  of  children,  families,  runners  and  supporters  on Saturday, and to the **Great South Run organisers** who once again donated a free marquee for our families on Saturday. 

## **Portsmouth Down Syndrome Association** 

Our annual black-tie dinner and auction on board HMS Warrior 1860 was well attended by 140 guests.  Over £18,900 profit was raised from the proceeds of the evening. As well as raising awareness, the dinner also generated new contacts for the charity. 

16 




We  have  worked  hard  over  the  years  to nurture strong links with our community, and support  from  the  business  community  has continued to be good, although many businesses are giving COVID as a reason for not  offering  donations  or  support,  and  in March  we  received  an  email  for  a  charity partner  citing  the  invasion  of  Ukraine  as  a reason they were diverting funds. 

Community and business donations included a donation of £500 from **Ineos** , £400 from the 

**Lord Mayor of Portsmouth Fund,** £1,000 from the **Arnold Clark Community Fund,** £1,500 from **CRBE Global,** as well as donations from local organisations like the **Hayling Legends Car Group** and local free mason lodges. 

We were very pleased our **Down Syndrome Awareness Week** Celebrations were  able  to  proceed  this  year.  Our  social  media  awareness  campaign  was generously sponsored by local solicitors Warner Goodman for the ninth consecutive  year,  which  meant  that  we  were  able  to  reach  a  much  wider audience. As usual our celebrations were well supported with schools, businesses and individuals holding awareness assemblies, events or fundraisers and our ‘Rock Your Socks’ awareness campaign was widely supported. 

We started a new charity partnership with **Perfect Skin Solutions** , who have visited our centre and will be adding runners to our Great South Run team. 

Local businesses have continued to offer the charity their expertise and support for  which  we  are  very  grateful.   Our  web  designers **Design  Image** have continued  to  offer  invaluable  help  and  support  in  all  areas,  and  we  are particularly grateful for their continued support. 

Our  parents  remain  supportive.  Many  took  part  in  the  Great  South  Run  or encouraged friends and colleagues to do so.  Some also held fundraising events on behalf of the charity, have taken part in sponsored challenges to raise funds or approached their employers to support us. We were very pleased to see lots of our families continuing to support the Warrior Dinner. We remain very grateful to our families for their support. 

The charity actively promotes inclusion and equality, and we believe that it is essential  for  individuals  with  Down  syndrome  and  learning  disabilities  to  be offered equal opportunities to be fairly represented & included the media world. We have continued our work with **BAFTA** on their diversity board to advise about inclusion in the TV and film industry and we are proud to have co-commissioned a review into inclusion policy and subsequent report. We also worked with our contacts to ensure the refurbished **BAFTA** building was fully accessible for all. The  report  will  promote  a  more  inclusive  media  community,  with  increased opportunities for individuals with LD; an exciting prospect, and we are proud to have encouraged and contributed to this. 

## **Portsmouth Down Syndrome Association** 

17 



Already as a direct result of our work and recommendations, the first actor with Down  syndrome,  Tommy  Jessop,   has  been  invited  onto  the  BAFTA  elevate programme, and is the first voting member of BAFTA and also the first to present an award at the BAFTAs! We were delighted when Tommy was selected for the programme, and his first meeting was with none other than Martin Scorsese! We look forward to seeing much more of Tommy on our screens. 

Our successful partnership with the producers of the multi-award-winning film, **My Feral Heart** created a wonderful opportunity to raise awareness, especially when our leading actor Steven Brandon (who some of you would have met at our special charity screening a few 

years ago) beat fellow nominees including Michael Fassbender, Eddie Redmayne, Ewan McGregor and Daniel Radcliffe amongst others, to win Best Actor in the **National Film Awards** . 

Following on from this, we have joined forces with **SweetDoh Productions** to produce a short film, **Innocence** , which offers leading roles to actors with Down syndrome and LD and is currently being submitted to film festivals. To date the film has won **The London Lift Off Film Festival Award,** and awards at the **International Lift Off Film Awards** , along with the **Don Quixote Award at the Krakow Film Festival** . As a result, we are currently producing a feature length script for the film, which we hope will be turned into a feature length film, providing further opportunities for individuals with DS to have leading roles in film. 

Three years ago, we were invited to team up with celebrity signing duo **‘Singing Hands’** for their newest ‘Singing Hands Goes Pop’ DVD. The charity is again acknowledged on the DVD. 

## **PR** 

Successful PR is important as it not only helps parents to know where they can find support, but also plays a key role in fundraising.  We continue to work hard to raise the profile of the charity in the local area.  We have established good communications with parents, schools and local organisations and continue to build a strong network of support. 

We have had several articles printed in the local news and local free papers about our events and services, and our Vice-chair Ken and Chair Rachael have also taken part in numerous radio and TV interviews over the year, along with some of our staff and members. 

We also think that it is important to share our knowledge and expertise with others,  and  we  were  delighted  when  we  were  approached  by  the  County Inspector for Inclusion after meeting with us at our centre and attending our training sessions, and invited to contribute to **Hampshire County Council’s HIAS  SEND  Publication** Rachael’s  article  ‘Key  Strategies  for  Successful Inclusion’ was circulated to all schools in the county which was sure to have raised  the  profile  of  the  charity.   Another  of  Rachael’s  articles  promoting successful inclusion was featured in the **Times Educational Publication** , with a huge national audience of educational professionals. 

The charity **Facebook** page (17,857  likes and 54 five-star positive reviews), **Twitter** page (2,448 followers) and **Instagram** (1,230 followers) pages have continued to help improve communication with our members, and also acted as a medium  where  businesses,  members  of  the  community  and  our  supporter’s families can find out more about what we do.  The members’ only Facebook Page is regularly utilized where members can share news and photos in a closed setting.  It  is  wonderful  to  see  families  sharing  news  about  their  child’s achievements for our ‘Proud Parent Moment (PPM)’ on 21[st] of each month. 



18 

## **Portsmouth Down Syndrome Association** 

We actively encourage our members to support our social media pages, as it is vitally  important  to  our  fundraising efforts  that  we have  a  strong and recognizable presence in the local community. 

Our interactive website, designed by graphic website designers **Design Image Limited** , has continued to be popular with both families and the community, and lists all our dates for events as well as showcasing our latest news. 

We think it is very important to liaise regularly to highlight issues surrounding DS with those in positions of authority, our local councillors and MPs. These issues have included service provision, screening and abuse, and we were cautiously pleased to see that our hard work lobbying the Secretary of State for Transport was rewarded with a review and update of the eligibility criteria for the Blue Badge for individuals with DS. 

Local councillors also receive a newsletter updating them with the work of the charity, and raising any issues our members are experiencing like access to SALT or  Blue  Badge  eligibility.  Many  of  them  take  part  in  our  Down  Syndrome Awareness Week celebrations, and you might even she a few rocking their socks with us, or joining our Great South Run team. 

We have regularly attended think tanks and also visited the Houses of Parliament where we have had the opportunity to discuss with policy makers the work we do and its importance. 

There are still great advancements to be made in this area to help our children access the support they need to thrive and to access the opportunities they deserve.  We would encourage all our members to have an active voice, stay in regular contact with their MPs and service providers and support our awareness campaigns. 

## **The National Down Syndrome Policy Group** 

Last year we were pleased to join forces with other key charity leaders to form the **Down  Syndrome  Policy  Group.** Ken  and  Rachael  are  two  of  the  15 founding officers who work towards supporting people with Down syndrome to have a say in the formation of policy in matters that impact their lives. The group is  supported  by  leading  national  organisations  such  as  Mencap  and  Down Syndrome  Education  International,  as  well  as  over  100  Down  Syndrome organisations. 

## **The Down Syndrome Act 2022** 

The first undertaking of the **National Down Syndrome Policy Group** was to lobby  for  a **Down  Syndrome  Act** to  improve  opportunities,  services  and outcomes for people with Down syndrome. They were delighted when Dr Liam Fox MP sponsored the Down Syndrome Bill. Rachael and Ken played a key role producing the initial draft of the Down Syndrome Bill, and working closely with Liam,  ministers,  civil  servants  and  ambassadors  with  Down  syndrome  at Parliament. After a huge campaign which was well supported by PDSA members and the wider community, including rallies outside Parliament, the Bill finally completed its journey to become a **Down Syndrome Act** , and England is the first country in the world to have passed such legislation. 



It was thought that a Down Syndrome Act was an impossible feat, but we are very proud to have championed this, and it demonstrates what can be achieved when our community joins together with one voice. 

19 

## **Portsmouth Down Syndrome Association** 

We  look  forward  to  contributing  to  the  Government  consultation  on  Down syndrome and helping in the formation of guidelines in the areas of: 

- **Community and wellbeing** 

- **Education** 

- **Employment** 

- **Healthcare and Research** 

- **Maternity Care** 

## **The All-Party Parliamentary Group on Down Syndrome** 

The **National Down Syndrome Policy Group** also provides the secretariat for the **All-Party Parliamentary Group on Down Syndrome (APPGDS)** and were instrumental in its re-establishment.  The APPGDS aims to raise awareness of issues affecting people with Down syndrome, and the prospects for improving life outcomes, and to campaign for changes to government policy to improve the lives  of  people  with  Down  syndrome.  We  were  delighted  when  APPGDS  MP members supported the Down Syndrome Bill on its journey through parliament. 

## **Finances** 

The annual accounts are compiled by **Leonard Gold Accountants** and we are very grateful to Leonard Gold for their valued support. 

Trustees are committed to raising the total estimated funds required to fund services  for  a  year  in  advance,  and  these  funds  will  now  be  built  upon  in preparation for the forthcoming year.  We are extremely grateful to Leonard Gold for their continued support. We are also grateful to Helen Nelson our charity bookkeeper, who meticulously maintains the charity’s books. 

There has been a slight rise in membership and members accessing services over the past year. It has become more evident that members living further afield are less active members as distance is an issue, and also our newer, younger families  are  not  as  engaged  as  previous  families  have  been.  We  have membership criteria in place, and families are regularly reminded that in line with our  criteria  there is an expectation that  families are  active and support the charity in any way they are able.  Very few members leave and there continues to  be  a  high  demand  for  our  services.  We  are  therefore  aware  that  going forwards, numbers and associated costs are almost certain to increase steadily and are unlikely to decline. 

Trustees remain mindful that fundraising is a key issue, as the future of the charity is wholly dependent on successful fundraising.  We are also aware that more of our children are now reaching senior school age, and these are the costliest of our services. We support our 



children from birth through to the end of school and further education, and we estimate  that  the  cost  for  very  basic  services  (baby  support  group,  early development group, 

communication  group  and  nursery/school  advisory  service  is  approximately £24,000  upwards  per  child  (not  including  assessments,  reports,  training  for parents and related professionals, trouble-shooting service, training for practitioners  and  staff, bespoke  training for schools,  SRE training,  resources, social events, drama so the real cost is probably £30,000+). 120 families are members,  and  our  aim  is  to  support  them  from  the  point  of  diagnosis  and throughout childhood. 

## 20 

## **Portsmouth Down Syndrome Association** 

We  also  provide  support  and  advice  for  non-member  families,  schools  and organisations in the community, and wider community. We therefore need to continue to ensure there are sufficient funds to meet this objective by increasing our  reserves  on  an  annual  basis  if  possible,  with  a  minimum  of  one  year’s running costs in reserve at any one time. 

## **The Year Ahead** 

We have continued with our search for a new, larger venue, and were delighted to  have  finally  found  a  suitable  building.  Unfortunately,  COVID  has  hugely impacted every step of the legal and building process, and we are now several months behind with our plans through no fault of our own, but we are still very excited of the prospect of a new centre, and hope the increased space will enable us to increase our staff base and activities. We estimate we will be able to move to our new centre late in the Autumn term. 

We very much look forward to working with our families and the local community over the forthcoming year, working towards a new future, and delivering a wide range of specialist services  which we hope will continue to make a  positive impact on the lives of children with Down syndrome and help enable them to develop the vital skills they need to become valued and productive members of their communities. 

This report was approved by the Board of Trustees on 12 August 2022. 

Signed by order of the Board of Trustees 


**Rachael Ross MBE** 



**Chair, Portsmouth Down Syndrome Association’s Board of Trustees** 

21 

## **Portsmouth Down Syndrome Association Independent  Examiner’s  Report  to  the  Trustees  on  the  Unaudited Financial Statements of Portsmouth Down Syndrome Association** 

I report on the accounts for the year ended 31 March 2022 set out on pages twenty to twenty five. 

## **Respective responsibilities of trustees and examiner** 

The charity's trustees are responsible for the preparation of the accounts. The charity's trustees consider that an audit is not required for this year (under Section 144(2) of the Charities Act 2011 (the 2011 Act)) and that an independent examination is required. 

It is my responsibility to: 

- examine the accounts under Section 145 of the 2011 Act 

- Commission (under Section 145(5)(b) of the 2011 Act); and 

- to state whether particular matters have come to my attention. 

## **Basis of the independent examiner's report** 

My examination was carried out in accordance with the General Directions given by the Charity Commission. An examination includes a review of the accounting records kept by the charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all the evidence that would  be  required  in  an  audit,  and  consequently  no  opinion  is  given  as  to whether the accounts present a 'true and fair view ' and the report is limited to those matters set out in the statements below. 

## **Independent examiner's statement** 

In connection with my examination, no matter has come to my attention: 

- (1) which gives me reasonable cause to believe that, in any material respect, the requirements 



- to keep accounting records in accordance with Section 130 of the 2011 Act; and 

- to  prepare  accounts  which  accord  with  the  accounting  records  and  to comply 

   - with  the accounting requirements of the 2011 Act 

have not been met; or 

- (2) to which, in my opinion, attention should be drawn in order to enable a proper understanding 

of the accounts to be reached. 


Mr A Chapman  FCA Leonard Gold Chartered Accountants 24 Landport Terrace Portsmouth Hampshire PO1 2RG 

Date:    1 September 2022 

22 

## **Portsmouth Down Syndrome Association** 

## **Statement of Financial Activities for the year ended 31 March 2022** 

|**Incoming Resources**<br>Donations and other<br>income<br>Government Grants<br>Investment Income<br>**Total Income**<br>**Resources Expended**<br>Raising Funds<br>Charitable Activities<br>Support Costs|Notes<br>3<br>4<br>5<br>6<br>7||**2022**<br>**Unrestric**<br>**ted**<br>180,354<br>13,599<br>417|**2022**<br>**Restric**<br>**ted**<br>13,900<br>-<br>-|**Total**<br>**2022**<br>194,25<br>4<br>13,599<br>41<br>7|**Total**<br>**2021**<br>_103,60_<br>_9_<br>_26,997_<br>_103_|
|---|---|---|---|---|---|---|
||||194,370|13,900|208,27<br>0|_130,70_<br>_9_|
||||25,576<br>110,955<br>43,555|-<br>13,900<br>-|25,576<br>124,85<br>5<br>43,555|_75_<br>_84,259_<br>_35,755_|





**Total Expenditure** 

180,086 13,900 193,98 _120,08_ 6 _9_ 

|**Net Income /**<br>**(Expenditure)**<br>**Gain on sale of**<br>**property**<br>Net movement in funds<br>**Reconciliation of**<br>**funds**<br>Total funds brought<br>forward<br>Total funds carried<br>forward|**14,284**<br>**-**<br>-<br>-<br>**14,284**<br>**-**<br>**_10,62_**<br>**_0_**<br>53,000|
|---|---|
||14,284<br>-<br>14,284<br>_63,620_|
||£614,032<br>-<br>£614,0<br>32<br>_£550,4_<br>_12_|
||**£628,316**<br>**-**<br>**£628,3**<br>**16**<br>**_£614,_**<br>**_032_**|



23 



## **Portsmouth Down Syndrome Association** 

## **Balance Sheet as at 31 March 2022** 

|**Current Assets**<br>Debtors<br>Prepayments<br>Cash at bank and in hand<br>**Total current assets**<br>**Creditors**<br>Amounts falling due within<br>one year<br>**Net Current Assets**<br>**Funds of the charity**<br>Unrestricted funds<br>Restricted funds|**Notes**<br>10<br>10<br>11|||**Total**<br>**2022**<br>-<br>79,37<br>5<br>549,6<br>79<br>629,0<br>54<br>(738)<br>£628,3<br>16<br>628,3<br>16<br>-<br>628,3<br>16||**Total**<br>**2021**<br>378,00<br>0<br>788<br>235,83<br>2<br>614,62<br>0<br>(588)|
|---|---|---|---|---|---|---|
|||||||£614,0<br>32|
|||||||614,03<br>2<br>-|
|||||||614,03<br>2|



Approved by the trustees on  12 August 2022 and signed on behalf of all trustees 


______________________________________    Ms R Ross  - TRUSTEE 




______________________________________     Ms H Nelson – TRUSTEE 

24 



**Portsmouth Down Syndrome Association** 

## **Notes to the financial statements for the year ended 31 March 2022** 

## 1. **ACCOUNTING POLICIES** 

## **Basis of Preparation of Accounts** 

The  financial  statements  have  been  prepared  in  accordance  with  the  Statement  of Recommended Practice: Accounting and Reporting by Charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102) issued on 16 July 2014 and with the Charities Act 2011. 

The charity constitutes a public benefit entity as defined by FRS102. 

## **Change of Accounting Policy** 

In previous years the charity has prepared its accounts using the receipts and payments method.  As the charity is looking to grow in the future the decision was made to now prepare the accounts using the accruals method.  Therefore from the 1 April 2018 the accruals method has been used.  The comparatives remain in the receipts and payments format, changing these to the accruals method would not make them materially different. 

## **Donations** 

Donations and sponsorships are recognised in the accounts when the charity becomes entitled  to  the  resources  and  the  monetary  value  can  be  measured  with  sufficient reliability. 

## **Government Grants** 

Grant income received under the Government’s Coronavirus Job Retention Scheme is recognised in the Statement of Financial Activities as income in the period to which the underlying furloughed staff costs relate. 

## **Expenditure** 

Resources expended are recognised where it is more than likely than not that there is a legal or constructive obligation committing the charity to pay out resources and the amounts of the obligation can be measured with reasonable certainty. 

## **Management and Administration Costs** 

Only those costs specifically identified as for the administration and management of the charity are included in the accounts as such costs. 

## 2 **.  EXPENDITURE IN FURTHERANCE OF THE OBJECTS OF THE CHARITY** 

All expenses paid in furtherance of the objects of the charity are donations. 

## 3. **DONATIONS AND OTHER INCOME** 

|<br>Donations and other income<br>Grants|2022<br>  <br>180,35<br>4<br>13,900<br>194,25<br>4|2021<br>133,209<br>(29,600<br>)<br>103,609|2021|
|---|---|---|---|





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## **Portsmouth Down Syndrome Association** 

## 4. **GOVERNMENT GRANTS** 

|Coronavirus Job Retention<br>Scheme<br>5.**RAISING FUNDS**<br>HMS Warrior Event<br>Great South Run<br>6. C**HARITABLE ACTIVITIES**<br>School Services<br>Communication Groups<br>Drama Groups<br>Early Development Groups<br>Staf Costs<br>Social Events &<br>Entertainment<br>General Expenses<br>Nursery Outreach Service<br>7. S**UPPORT COSTS**<br>Accountancy<br>Bookkeeping<br>Insurance<br>Bank charges<br>IT Costs<br>Rent and Utilities<br>Postage<br>Stationery & Printing<br>General<br>Cleaning<br>Venue Hire<br>Training<br>Consulting<br>Legal costs<br>Repairs & Renewals|2022<br>  <br>13,599<br>13,599<br> 2022<br>  <br>20,328<br>5,248<br>25,576<br> 2022<br>  <br>85,614<br>6,994<br>-<br>7,275<br>12,249<br>5,512<br>2,568<br>4,643<br>124,85<br>5<br> 2022<br>  <br>720<br>905<br>825<br>27<br>714<br>9,560<br>60<br>729<br>903<br>-<br>1,416<br>19,019<br>-<br>7,831<br>846<br>43,555|2021<br>26,997<br>26,997<br> 2021<br>-<br>75<br>75<br> 2021<br>63,485<br>2,190<br>100<br>2,517<br>10,394<br>630<br>1,922<br>3,021<br>84,259<br> 2021<br>500<br>1,689<br>778<br>-<br>739<br>6,320<br>119<br>630<br>475<br>-<br>16<br>12,797<br>-<br>-<br>11,692<br>35,755|
|---|---|---|





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## **8.  TRUSTEES REMUNERATION** 

There were no trustees’ remuneration or benefits for the year ended 31 March 2022 nor for the    year ended 31 March 2021. 

## **Portsmouth Down Syndrome Association** 

## 9.  S **TAFF COSTS** 

|Wages and Salaries<br>Social Security Costs<br>Pension Costs<br>Total wages Costs<br>No employee earned £60,000 pa or more.<br>The average number of employees during the year was 3.|2022<br>  <br>58,306<br>414<br>1,116<br>-<br>59,836|2021<br>53,318<br>-<br>898<br>-<br>54,216|2021|
|---|---|---|---|



## 10. **DEBTORS: AMOUNTS FALLING DUE WITHIN ONE YEAR** 

|2022<br> <br>2021<br>Debtors<br>Prepayments<br>-<br>79,375<br>79,375<br>Included in prepayments is £39,250 that is due after more than one year.<br>11. C**REDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR**<br> 2022<br>  <br>Accruals<br>738<br>738|378,00<br>0<br>788<br>378,<br>788<br> 2021<br>588<br>588|378,00<br>0<br>788<br>378,<br>788<br> 2021<br>588<br>588|
|---|---|---|
||||
|||588<br>588|



## 12 **. ANALYSIS OF NET ASSETS BETWEEN FUNDS** 

|Current Assets<br>Current Liabilities<br>**MOVEMENT IN FUNDS**||**2022**<br>**Unrestrict**<br>**ed**<br>629,054<br>(738)|**2022**<br>**Restricte**<br>**d**<br>-<br>-|**Total**<br>**2022**<br>629,054<br>(738)|**Total**<br>**2021**<br>614,620<br>(588)|
|---|---|---|---|---|---|
|||628,316|-|628,316|614,032|
|||**At 1.4.21**|**Incoming**|**Resourc**<br>**es**|**At**<br>**31.3.22**|



Unrestricted Funds 



|General Fund<br>Restricted Funds<br>Miscellanous Funds|614,032<br>-<br>194,370<br>13,900<br>(180,086)<br>(13,900)<br>628,316<br>-|
|---|---|
||614,032<br>208,270<br>(193,986)<br>628,316|



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