Connecting the Children's Heart Community EVELINA CHILDREN'S HEART ORGANISATION LIMITED IA Company Limited by Cuaranteel Régistered Charity Numbep. l 146494 Company Number. 7867592 REPORT OF THE BOARD OF TRusfEE DIRECTORS FOR THE PERIOD I JANUARY 2020 TO 31 DECEMBER 2020 - - - - - - - - - - - ECHO oryanisational structure- 2020 ConnKting the Chlldr•n's H••rt Communlty A¢CQUMTA•ILITV ORGANISATIONAL STRUCTURE. 2020 PAtsJÉ¢75 ¥QLUtITEERS CQMIIUMICATIOMS VOLUMttlAIM •o*po AIIA¢t Ind•p•nd•nt A¢¢ountanL. Drive Business Services 52 Crown Drive, Inverness, IV2 3QG Bank. CAF Bank 25 Kings Hill Avenue, Kings Hill. West Malling. Kent. ME19 4JQ Our mission, vision and values: Mission.. to support children affected by heart disease & treated by the Evellna London Children's Hospital networks, and their familie5. Vision: a world where the emotional. social. financial and medical needs of heart families aro met. Values.. Resilient. Empowering. Supportive. Open & Homst. Resourceful. Impactful About ECHO: ECHO supports children with heart conditions and their families at everystageof their heart journey. helping from diagnosis (often during pregnancy) through to a child's teenage years and beyond as they transition to adult cardiology services. ECHO connects the children's heart community by bringing tO9ether children and young peoF4e with heart conditions. their families and medical - - - - - - - - - - - - - - - Support for Dads.. Documentary film offering advice and reassurance to fathers and male carers of a child with a heart condition. Support for Siblings: Annual ECHO Sibling Day gathering, plus information and guidance designed specifically for sibling& ECHO Teen&. information & guidance. fun activities and helping young people transition to adult hospital seNices. Bereavement Support.. Remembrance gatherings and small beroavement grants. Toys & Crafts: Toys and crafts for children at Evelina London Children's Hospital. Equipment which cannot be provided by the NHS Small, practical equipment that cannot be funded by the NHS COVID-19 Crisis & ECHO'S Response 2020 has been a challenging year for everyone arKI ECHO has been no exception. During the pandemic. we have made a priority of listening to the heart community including parents. carers. patients, professionals and supporters. We initially focused on kwping our ¢ommunlty saf4 closing the office and ensuring all staff were able to work from home. and also withdrawing all ECHO face to face volunteers from frontline services. This was a challenge for ECHO as we required additional laptops, chairs and resources that we had previously not needed or implemented. We saw our income from community events and individual donations dropping. Traditional income Streams dried up overnight and we had r)0 choice but to utilise the government furlough scheme and COVID-19 •m•rg•n¢y app•als. We launched an emergency fundraising appeal, letting our community know th• very real problems faced by ECHO du• to the pandemic. "Smaller charities, in particular, are at risk of imminent c105ure if adequate support Is not provided" - UK Govornm•nt. ECHO'S services: • t)uring 2020. ECHO welcomed 175 new families to the ECHO heart community-we also welcomed families who were previously treated at the Royal Brompton and Harefield Hospitals When we didn't get a shielding letter I had no idea where to turn. my GP told me to be patient but my child's life was at risk...ECHO was able to reassure me and get the information I needed to mako decisions. it turns out my child did need to isolate and we were able to keep them safe at home- We launched a dedicated COV11￿19 web pageand provided direct support to families by email. phone and via our online community groupas well as hosting online sessions for parents to connect with others and with the ECHO team. The ECHO team pulled together to support more people than w• •v•r hav•- an incrvs• of 1600¢J6 ov•r th• first 6 months of the pandemic. "ECHO helped us during the pandemic with keeping us up to date on recommendations for children with heart conditions."_ ECHO member We launched the ECHO Car•$ packs to support cardiac families in hospital, sending 150 packs every 3 months. Through the ECHO Cares pack. we are ensuring that we reduce isolation for families in hospital by welcoming them to ECHO with a beautiful cotton bag, packed with a comfy eye mask. cuddly ECHO teddy bear, hand sanitiser, notepad and pen plus information on support available from ECHO. useful hospital Contacts list, and a postcard to send love from hospital, to those at home wlio have been unable to be with them due to COV1￿7 9 hospital visitor restrictions. "Knowing my son needed open heart surgery and I wouldn't be at his side was traumatic, I wanted to support my wife and hold my sons hand but couldn't I spent 7 day5 Outside the ho5Pltal hoping not to get a call that my 50n didn't make it - instead 15poke to ECHO and they helped my find a place to stay when I thought the world was c105ed - thank you ECHO" In 2020, ECHO funded, designed and opened a new Cardla¢ Psychology and Play Spactr. . at Evelina London. IIIIIIWINwr 'The Lodge,. a new cardiac psychology room funded by ECHO opened earlier this year has been a very safe. quiet place for psychology sessions to happen when I have met families in hospital. It has really helped to have a separate. dedicated room especially foryoung people to access. away from the ward. to talk through how they are feeling. I'd like to thank everyone who donated to ECHO and made this room possible. - Niki Gr•gg. Clinical Psychologist We moved our popular ECHO Cardiac Ant•n•tal Class•s onlin• and launched n r£sources, with information for newly diagnosed heart parènts about their care and delivery. guidance about the Neonatal Intensive Care Unit. messages and stories from other heart parents, and suggestions of how to prepare for their hospital stay. "I found the ECHO antenatal classes l attended by zoom amazing. I was able to meet other parents facing similar situations and I connected with another mum who was expecting a little boy with the same condition as my baby. We have remained friends and supported each other through this challenging time."_ ECHO m•mb•r We launched the E£HQUap￿Ub. where we have shared fun. inspiring and uplifting actlvities for families to take part in during lockdown including a vidt30 from our patron Mister Maker and videos from scientists at King's College London. "I have been Ilvlng as a single parent for eight months, my husband moved out to keep my daughter safe and just sees us through the window. ECHO called to check in with me and had some fun activities online that really helped me-. - ECHO m•mb•r ECHO & Evelina LondonlGuy's and St Thomas Hospital Trust Throughout the year, we kept our community up to date with the latest information relating to COVI D.19. holding weekly meetlngs wlth Evellna Londorfs senlor cardlac team vs our usual monthly meetings. to address parent concems and keep in the loop with hospitsl changes. We directed noTrmedical calls away from the hospital to ECHO over covid-19 via specialist nurses answ•rphon We began plans for a Clinical Nurse EducatorlECHO programme of wellness activities for Nurses & Introduction to ECHO With input from cardiac teams. we shared the latest government NHS and British Cong•nital Cardiac Association advic• on our dedicated Coronavirus web page, social media, and our e-newsletter. We sent goodie bags and 180 aft•rnoon into hospital. encouraging staff, patients and parents to take five minutes to reflect over the year as part of our Virtual Together for Tea. initiative. On Mothers Day and Fathfs Day. ECHO sent l 00 gift packs for parents staylng In hospltal at Evelina London. Each pack was put together by volunteers and filled with sweet treats. personal hygiene item5 and reusable coffee mug5 plus a reminder of how parents can reach out to ECHO for information or to connecL "We are going through so much when we are in the cardiology ward with our babies... Thank you is not enough for everything you guy5 do to make our day lighter-_ ECHO member ECHO supported the new Sky ward by consulting with parents to design the new space. W• love the light & airy design with more access to nursing desks. W• championed a new 'quiet space. away from the hustle and bustle of the ward, as well as a dedicated parent's space and breastfeeding room. In resF)onse to the incredible dedication and hard work ofcardiac team5 across the Evelina London. Royal Brompton and their network hospitals. together with the Evelina London cardiac team ECHO made plans in mid-2020 to launch the'ECHO Excellence Award¥ in 2021. celebrating all the wonderful cardiac NHS staff who treat and care for the children in our community. In 2020, ECHO started a network hospital project with the Evelina London Congenital Heart Disease Network to improve cardiac patient experience. ECHO supported the development of a network scoping project to connect and gather information from each Evelina London network hospitsl- the project began in early 2021 and will be carried out by dedicated ECHO volunt••rs. ECHO supported one of our members Emma who came up with a brilliant idea to create a banner full of photos of ECHO families to say thank you to Evelina London Cardiology team. ECHO families joined together by sharing photos of their heart heroes for a large banner display in front of the ECHO office. opposite the hospital. We know how hard all staff are working right now and we hope this is a cheerful reminder about how much the ECHO community values their support and care. Staff and families hav• been stopping by for a photo wh•n th￿ are nearby. Inecting the Children's Heart (-ommunity Media & Communications Website We spoke to medical experts on the frontline tackling COVID-19. producèd letters for schools and employers, created a web e for COVIL¥I 9 information and worked hard to reassure or seek guidance for our community. In the first 6 months of the pandemic. the ECHO website was visited l 0.000 more times than the same perK>d in the previous year. In response to the ECHO cardiac antenatsl class moving online and parents facing unprecedented isolation while in hospital, ECHO expanded our cardiac ant• rces including messages from parents. advice on what to take with you to hospital and a guide to the neonatal unit. 2020 newsletter mailout Reflecting on 2020, we sent 1300 ECHO member families an end of year postal newslotter with a printed card featuring word art of the important words which cam• up within the ECHO hoart community during the onset of th• covir>i g pandemic. 'Chall8nging'. 'Isolating' and 'Scaty were some of the words used. but amongst the fear we were also part ofsome amazing resilience and strength. LlNErnZX￿Ip ,&OL￿ELY! .1 IMANITr. EATIVITYrnI• VOLUNTEÈQS LUCHARITY-:. HAPPINESS MO - WINFcJftM A ¥IFAMI Y￿E m.cbi ,BUBBLE pesiLIENCÈ-OVERW LMINf UPLVQTI The newsletter featured storles from membws of the ECHO heart community about thelr experience during the COV1Tr19 pandemic including Evelina London cardiac staff, ECHO famllles, fundraisers, volunteers and trustees. We saw the wonderful ways people in the cardiac community SUPF)Orted each other and our online groups and volunteers supported those who needed it quickly, reducing isolation and fear. io Festive Fortnight On social media. together with the Evelina Cardiology team. we wblished a daily'Festive Calendar, for 2 weeks over the festive holidays full of photos, videos and messages from members of the ECHO heart community including cardiac staff. ECHO fundraisers. volunteers, partner organisations and families to celebrate community achievements and share positive mossages during a time whèn we could not be together. Fundraising & Events Heart Month Party Pre COVID-19 In F•bruary, ECHO held the annual Heart Month party at the Evellna London. 7 ECHO volunteers helped run the dayand make it fun for children and parents in hospital. including running an ECHO 1eafle￿1nforrnation table. LECO activity table. arts and crafts. refreshments and a photo booth. We also provided Heart Month decorations for the hospital's parent rooms. Bloom & Grow community workshop Also in February, Pr￿cOV10-19, ECHO held a new event - Bloom & Grow Flow•r Workshop- a paid session for families to come along for a hands-on flower workshop in aid of ECHO, while connecting with others. Canc•ll•d •v•nts Since national lockdown rules were established in March in response to COV1￿19. social distancing made delivering services harder and more costly. This, together with the vulnerability of the children and families we serve, meant we had to take the painful decision to postpone or cancel all face-to-face activities and events throughout 2020. We saw our Income from community events and indlvldual donatlons dropping. Traditlonal income streams dried up overnight and we had no choice but to utilise the government furlough scheme and COVID-19 emergency appeals.Throughout 2020. whilst we increased income from emergency COVIL>I 9 appeals and trusts and foundations. w• lost ov•r £9QOOO from Indlvldual •vents and fundralslng. ECHO arranged our first sclence nlght sleepover at the Sclence Museum on 7th March- this was cancelled due to COVID-19- but we had 19 young people signed up to attend as well as 8 medical volunteers. ECHO support•rs and oryanisations including in the hospitality sector had events planned in their workplaces. communities restaurants. This included an evening dinner event and members coordinating with their workplace to encourage fundraising in their offico Unfortunately. due to COVID-19 restrictions offices. restaurants and other hospitality companies were forced to close. 12 meanwhile fundraising for ECHO could no longer go ahead. As offices and restaurants. cafes and shops reopen arKI many employees return to working in the office at least some of their working week, we look forward to these fundraising opportunities resuming. Onlln• •v•nts Breakfast with ECHO & alpacas In response to families facing isolation due to shielding, distancing arKI hospltal COVID-19 restrictions, we wanted to give families a space online to take a break and do something fun and relaxing whilè from home. Children and families met our sp•cial alpaca guests in a morning Ilv•str•am from th•ir fami In K•nt- getting to see them close up IvirtuallW.K ask questions about their lifestyle and win prizes like a cuddly alpao toy. We received feedback from parents that their children hugely enjoyed these sessions both while in hospital and at home. and families l¢)oked foNrfard to joining each session. Virtual games night In July, ECHO supporter Gary and the BNI Keane networf( held an online Sp•ctacular Gam•show Mashup. invitlng people to donate and enjoy a night of onlin• games as we all navigated a world without face to face fundraising events. "We have heard first-hand about the wonderful work that ECHO doe5 through regular meetings with Charity Chief Executive Sam. The support lamilies receive from ECHO is invaluable. We want to help support more families in their times of need." l in l 00 campaign In summer 2020, TI ECHO members from across the country. all sUPPOrted by ECHO and treated by the Evelina London Cardiac Team. are featured in a parent-created #l inl 00 music video appeal to raise awareness and vital funding to help other children with heart condition5. Families shared their personal experience of Congenital Heart Disease in order to support new families receiving a diagnosis and showing the public the story behind the journey. The 77 children featured in the appeal video l Am Home. sung by Byron and the Stratford East Singers. 13 were connected by Evelina Cardiology Mum Caroline. Together. the families raised over £1 0,000 as well as promoted awareness of CHD and the journey families tske. TrLY 2.6 Challenge Families and supporters took part in the national 2.6 Challenge, a response to the charity sector's struggle after events were cancelled. ECHO sUPPOrt•rs ran. cycl•d. bak•d and •v•n play•d ch•ssl Secret Santa appeal In December we would normally visit the hospital to drop off gifts and invite our volunteer Elves to meet children staying in the hospital. Instead we focused our S•¢r•t Santa app•al on bringing fun and play to chlldren In hospltal by providing arts and ¢raft pxks for children and young people and festive treats for parents and staff supporting them in hospital. Through Facebook and a website aP￿al. we raised £1495 which we used to provide play workers with the arts and craft packs to run l..l arty sessions with heart children at the bedside. Thes• 14 sessions give children a much-needed distraction from their treatment and recovery, and help them to express their thoughts in a safe and creative space with a dedicated specialist. Yeo ValleyAward ECHO was nominated by a momber of our community for the Yeo Valley Award, and we were selected as one of their 'charities of the quarterf in Winter 2020. We provided a blurb and photo and were featured on the Yeo Valley website, which meant shoppers purchasing Yeo Valley products could give their'yeokens, to a charity of their choice. The charity which received the most 'yeokens' would receive a £1.500 priz• and vrfe were delighted that ECHO received the most yeokens. This award is with a big thanks to our community of families and supporters who think of us when coming across charity projects like this one. ECHO Team Our small part-time team also faced the same concerns over COVID-19 as everyone else, impacting on what we were able to do and when. The team pulled together to work out of their"normal hours", balancing working from home. home schooling and the increased needs of members and ECHO'S services to ensure our vital work could continue. ECHO'S board meetings changed from quarterly to monthly virtual meetings in order to support the CEO in strategic thinking and decision making. Like manycharities we are fighting for surlival and we are unsure of where our income forthe next year or two will come from. Hovrfever. for th• moment we can be proud of what we achieved throughout 2020. especially in the dedication of the small team. volunteers, board and professionals we work with - wlthout th•s• strong r•latlonshlps w• slmpty wouldn't b• h•r•. Volunteers 72 volunteers helped achieve our mission pre-COVIL>I g, they supported us in the office. provided admin help to community fundraisers. visited parents in the hospitsl. ran support groups, dressed as Christmas Elves. and created the fun and friendship at our activities and events - we miss you all and hope to see you in the future once thing5 are safe. 15 In light of the national lockdown all face to face volunteering setvices were paused, this included antenatal volunteers. ward visits. office, admin and communications volunteering roles. ECHO'S communlcatlons voluntser remained in the role throughout the summer, working remotely to SUPF)Ort writing social media posts. design content and family stories for the website. At the end of 2020, ECHO volunteers each received a gift and not• from us with a reminder of how much we appreciate them, dèspit• not being able to be tog•th•r this year. The gift was a heart Shap￿ 'seed bomb., which oncè planted gmws into wildflowers. S¥LW ECHO member story Tracy's story. e found out about Isabella's diagnosis from the 2Trweek scan and a later scan diagnosed VSD. On hearing Isabella may need surgery soon after birth, we were shocked but on hearing the words open heart surgery. it felt even scarier. Despite COVID-19, apart from a delay to the fetsl MRI we have been lucky with all appointments going ahead as planned. We went to the main diagnosis scan appointments together but all follow up scans I went by myself. due to hospital COV1Tr19 restrictions. which wa5 hard for us both. 16 l first joined ECHO and the ECHO Facebook group following advice from the cardiac nurse. It was really helpful. from s•eing that you'r• not alon• in your Situation to advice from oth•rfs •xp•ri•nc•s. l joined the ECHO antenatal class which was being run on Zoom instead of at st Thomas, Hospital - it was strange at first but was really good and the information was helpful. We were on the cardiac ward with another couple from the class. so that was nice to be able to see their progress and a friendly face. In these strange times it was a comforting way of making th• best of th• situation. I was due for a planned induction but our little one arrived a few days early. Throughout our time in the hospital. being able to have only one of us with Isabella at a time was really difficult, especially for support, although all of the staff were wonderful. We have been lucky 50 far and Isabella hasn't had to have any surgery. We're loving the addition to cur family,. her personality is growing and she's becoming more alert with the biggest beautiful smile and we couldn't love her mor•." Financial Review Our total income in 2020 was £581363 Our total from Facebook Fundraising was £21803.65 Our total from online fundraising platforms was £21799.91 from JustGiving and £91,437.46 from Virgin Money Giving Together on Facebook, Virgin Money Giving and Justciving our income was: £137,041.02 17 - - - - - - - - - - - - - - - - - - Stay at Home with Scientists "Throughout the summer. our researchers had fvn creating short videos about their work for the 'Stay at Hom• wlth Sci•ntisW series shared on ECHO'S social media, which aim to inspire the next generation of scientists. We are also currently creating some other exciting projects with ECHO - including fun science games and cartoons for ECHO'S new magazina ft)r children visiting Evelina London, as well as some relaxing and engaging online workshops for parents too.". King S Coll•ge London 'Echoes' heartbeat app In summ•r 2020. ECHO support•d the King's College London team by r•cruiting par•nts and young p•opl• to tak• part in onlin• fa•dback s•ssions on their new digital project. an app. Using the app, you can place your phone on your chest and hear and visualise the beauty ofyour heartbeat. or your loved ones heatbeats. At ECHO we are grateful to all of our members who kindly gave their time and experience to take part in workshops prior to the app's launch to talk about their ideas and give feedback to the researchers and developers to help them shape the app. Klngs Coll•g• London. H•alth Psychology Mast•rs Pla¢•m•nt Progrnmmtr. In January 2020, ECHO hosted a student from King's College London for our second annual Health Psychology placement- the student supported ECHO by carrying out interviews and in-depth rèsearch into the Impact of th• ECHO ￿¥dIa¢ antsnatal Class ¢>n par•nts who att•nd•d. From March- May 2020 the placement was carried out remotely. with online supervisions and meetings taking place and the student produced a full report on her findings. "I hadn't really enjoyed my pregnancy and I was very worried and kind of cama out lof the ECHO Cardiac Antenatal Cla55J feeling a bit more relaxed". ECHO parent Hous• Committ••- Ev•lina Ronald McDonald Houstr. Regular communication around thè COVID-19 restrictions and th• impact on parentslcarers and siblings Discussions with the accommodation coordinator for RMH & Evelina London 19 Patient Parent Voice- Evelina CHD Network. Attending CHD Network meeting- reps from local hospitsls Reach out to the network hospitals thorough development of newsletter Supporting more Cardi￿ families in the community BNI N•tworking: Raising awareness of children's heart diseas• and the journey familiès make to cèntral London Hospitsls from the hom• counties and further Recruiting volunteers to help with the CHD network scoping work Building relationships with business owners Raising money through charity of the year connections. individual direct debits and individual givers CHD Charity N•twork Mwting: ECHO, Little Hearts Matter, Heartline, SommeNille Foundation, Tiny Tickers , Children's Heart Federation & Max appeal Regular opportunities to dixuss national and local seNices and issues facing the heart community from pre-natal to adulthood. CHARLOThE. ECHO aMbas￿￿or ECHO ambassador Charlotte has made a big impact in her fi￿t year supporting ECHO- after sh• released her stunning single"All My Life-. which she wrote when her nephew Archie was diagnosed with Congenital Heart Disease ICHDI and required heart surgery at jUSt 6 days old. In October 2020. Charlotte. family and friends including X-factor finalist Calum Scott Ipictured here) climbed the Yorkshire Three Peaks for ECHO in a grueling 24 mile climb in tumultuous weather. raising almost £13.000 for ECHO heart familie5. "Becoming an ECHO Ambassador has been a really special way for me to feel c105er to my nephew. Archie. It's a shame that thi5 pandemic ha5 made it more difficult to fvndraise and to connect with the community in pe￿On. However. I'm really glad I got to complete one fundraising event and look forward to doing much more and meeting many more ofyou neXtyea￿. 20 Southbank University With ECHO'S support, the university has worked with parents and heart siblings to explore their experiences and build our 'heArt sibLings impact Study IALPSk as there is generally not much information about how having a heart child in the family affects siblings. hank you to ECHO for spreading the word. all the incredible families who have already been in touch and the amazing siblings I have béen tslking to thes8 last few months. l am very privileged to learn more about this topic and hope to b• able to improve support for siblings in the futur8 based on our findings-. Lizzie Bichard, SBU Looking forward to 2021 We are excited to launch a monthly ECHO Twns Fllm Club in 2021 - for young people aged 11-17 with a heart condition and their siblings Young people will be able to learn filmmaking skills from professionals. have fun and connect with other young people. W• look forward to w•l¢¢)mlng ECHO Tmn volunt••r Karan to th• vlrtual ECHO Tmns Fllm Club wh•n It laU￿h•S In •arly 2021: "I mlss the face-to-face Interactlons when volunteering with our ECHO Teens group, drawlng upon my own personal experience with CHD in order to mentor young people. siblings and parents on how to cope living with such a complex condition. I miss sharing my story on transition days and working with the lovely staff members in the office. Although there 15 no 5ub5titute for human contact. I relish the challenge that the new environment presents and look ft)rward to supporting our ECHO Teens in a virtual 5etting."_ Karan, ECHO Teen Volunteei We look forward to launching actlvlty 1K￿klets for children who are staying in hospital. These booklets aim to provide distraction and relaxation while they undergo treatment and rècovery. and will bè project-led by a young person with a heart condition with input from th• cardiac teams and scientists. In 2021 we also look forward to creating our strategy and planning for a new ECHO forum - way of connecting parents. Part of this project will be the recruitment of a dedicated Community Coordinator. ECHO oryanisational structure- 2021 Chlldv•n'i H•art Community OFIGANISATIONAL STRUCTUFIE.. 2021 Structure, Governance and Management The charity Is a prlvate company Ilmited by guarantee {company number 78675921. The company was incorporated on l December 2011 las amended by special resolution registered at Companies House on 6 March 20121and registered a5a charity on 21 March 2012. The companywas established under a Memorandum of Association which established the objects and powers of the charitable company and is governed under its Articles of Association. Recruitment and appointment of trustee directors The directors of the company are a150 charity trustees for the purposes of charity law. Under the r•quiroments of the Momorandum and Articles of Association th• trustoe diroctors must r•tir• at th• first Annual General Meeting IACMI and subsequently èach trust•0 director may be èlèctèd to sèrve for a period of three years after which they must be re-elected at the next ACM. The minimum number of trustee directors is 5 and there is no maximum. The trustee directors can be appointed in general meeting or by the other directors. Questions arising at a meeting shall be decided by majority votes. The trustee directors are resFM)nsible for the general control and management of the charity. They give their time freely and receive no remuneration or other benefits. Any expenses reclaimed from the charity are set out in the accounts. The trustees meet approximately every 12 weeks Ithis has been more frequent during the COVID-19 pandemic) and are responsible for decisions made in relation to the running of the charity. Members of the committee may join alternate meetings. Any trustee director may call a meeting of the trustee directors provided reasonable notice is given. Risk management The trustee directors have assewd the risks the charity faces and has put in place policies to manage the risks. For example, the charity has plans in place to protect against a downturn in the level of our income, finances are kept under review. Disclosure and Barring SeNice IDBSI checks ar• made. all members of stsff have a contract of employment and comprehénsive staff handbook which outlines all terms and conditions of employment and staff and volunteers working directly with children, young people or vulnerable adults are DBS checked. In 2019. we worked with Tom Searle of Britrisk Safety Limited to Nn risk assessment training to ECHO staff and reviewed our Health and Safety & organisation's Risk Policy. Declaration Th• trust•• dir•ctors d•clar• that they hav• approv•d th• trust•• dirKtors' r•port abov•. Signed on b•half of th• ¢harlty's trust•• dlr•¢tors: Jan• Ward (Acoffipanyllmited ty8uarnnteel Re•i#ertd ¢)artiy J146494 Ctyyrry F*Jmber7861592 lJCCOUPllS FOR THE PERIOD FIOPI IJAPIUARY 2020TO 31 Of(fMBER2020 Eyelina Children'5 Heart (kganisation Limital Accomtslor the from ljanuary 2020 to 31 De(￿nber 2020 Charlty Name Evellna thildrert's Heart lknni%abon bmited W¢Ykin8 Name ECHO Charity Number 1146494 ompany Number 7867592 Registered Office antertxjry House, l Royal StreeL LoThJ)n. SEI 7LL Board of Trustee Directors James Plncus Patrfcia Jane Ward Joanna fyeson Alex Blckrdl Stephen wood Fkrry Independeni Accountaftt DI￿$tor￿ 8Ltslne55 Se￿Ces Ltd 52 Crown Drlve. In¥eme55. IV2 Bank CAF eank 25 Kln8s Hlll A¥enue. Hill. West m1lli￿ KthL ME194JQ TOTAL TOTAL FUNDS Endqd 325.778 204.575 GffrAh Invtstrnertln¢on¥J Job Retefitl￿ Grant &SSP Tot•1 Inc¢NnknirnMwff• 130 3J47 3347 Co&ts•lPrn¥th¥Chwltab* Illot•41 73,638 124,82B IA03 IIA891 thbrlt•blektK*¢s Grfygrnance Prknr Y*¥r*dlw%tmRnt Total Fwdsbro4ht fonvird 31 Detember 2020 31 ciecem￿r 2019 IPl(ts 51 CurrentAss*ts Debtors Cash at bank and In h•nd Totsl CurNrt•ssets 6,978 238.757 37.223 Credltors falllng due withlft om INot• (S.f￿) 119671 Funds olthèCh•rlty Unrestrlrted Funds Restrlcted Fynd5 Prevlous year(red￿orWrlIten b•ck Total Fundi 233,299 6.832 26,701 (Nat• 7,957 Forth¢ yearendlng 31 Detember2020 Companle5 Att ￿￿tIngtO sm•ll cornpanles. COm￿nYwa$t￿t￿d to*xemptknn from *Jdlt under sectlon 477 ofthe • The memter5 hab* iequlred th?tomp•rytoobtaln an •udftotitsat£ountsfor In quesdon In accordancè wth sect￿476 • The dlrertQrsackrth￿ed8¢ thttr responslbllltbEsforcomplyln8wlth the ￿vITements ofthe *£t wlth respttt to accotsntlng records and the weparath)n ofaccwni& These acry>unts ha¥e been ￿Pared In with ts provtsh)ns •pplkaL4tto comp8n￿s*jbJecttQthe small companles, reglme eJ&A ollc>lltsLI Evelina Children's Heart Organi&￿10Th Limited Notes to the A¢counts Note I: Accountin Policies The principal accounting policies are summarised below. The accounting policies have been applied con515tently throughout the period. Basis f Accountin The financial statements have been prepared on the basis of the historic cost convention and in accordance with the Companies Act 2006 and the Statement of Recommended PractI￿- Accounting and Reporting by Charities ISORP 20051 issued in March 2005. Fund A countin Unrestricted funds are available for use at the discretion of the trustees in furtherance of the general objective5 of the charity. Restrirted fvnds are subjected to restrirtions on their expenditure imposed by the Inc min source All incoming resources are recognised once the Charity has entitlement to the resources, it Is certain that the resources will be received and the monetary value of incoming resources can be measured with sufficient Grants and donations are included in the SOFA when the charity has unconditional entitlement to the resources and incomin8 resources from tax reclalms are included at the same time as the gift to which they Investment income is included when recelvable. Resources ex nde Expenditure is recognised on an accrual basis ès a liability is incurred. Costs of generating funds are those cost5 incurred in attracting voluntary income. Choritable expenditu￿ comprises those costs incurred by the chartty in the delivery of its activities and services for115 members. It iniludes both costs that cart be allocated directly to such activtties and those Governance costs include those costs a5￿clated wlth meeting the constitutional and statutory reqU1￿MentS of the charity and include independent examination fees and costs linked to the strateglc management of the All costs are allocated between the expenditu￿ categorles of the SOFA on a basis designed to reflect the use of the resource. Costs relating to a particular activity are directly allocated. Foxed assets Tangible fixed assets a￿ stated at cost less depreciation. Depreciation is provided at rates calculated to write off the cost less estimated residual value of each asset over its expected useful life as follows:_ Computer equipment- 33.33% straight Ilne basis Remuneratlon No remuneration was paid to the tnjstees in the 12 month period ended 31 December 2020. No expenses were paid during the period. Totsl Funds 12 month perlod to 31 Dtternber 2020 Anal Voluntary Income.. Unrestrlcted donations Restrlcted donations Gift Ald Government JRS Investment income.. Bank Interest Totsl 325.778 53.IiJ) 3,347 138 12 fntyrth prlod to 31 December 2020 Note 4: Ana charftable actlvltles Back OFficelAdmln Volunteers Inft)rmation Member Support Total 29,493 257 6,300 99,226 Note S: fixed Assets No fixed assets are owned by the company. Note 6: Ana Debt HMRC 7:A I Isofcredltors Accruals Trade credltors PAYE, NIC 2.586 3.018 e8:Rln nced I Balance BIF Ringfenced Donations Expenditure 8alance CIF 53,IlJ) 146.2681 Independent examinerfs report on the accounts Section A Independent Examiner's Report Report to Iho trustttsl membors of EIELITri4 CHILOREN'S HEART ORGANISATION LIMITED On accounts for the year end 31 DECEMBER 2020 Charity no 1145494 S¢t ¢)n po Respactive The Charity's trustees ar& reswnSIb￿ for the preparation of the accounts. sponsibilities of The charity's truslees COn￿der that an audrt is not required for this year trustees and •xaminer under section 144 of the Charities Act 2011 Ith& Charities Act) and that an indeFervJent examinati￿ is needod. tt is my lo: examine the acC￿￿ts u￿lef secllon 145 of the Chariti8s Act. lo fdlN the prttodur8s laKI down in ￿ general Directtons given by the Charty Commission (under sedim 14515)Ibl of the Charrties Act, and to state whother pthlar matteryJ have ¢c￿e to my attention. Basls of Ind•wnd¢nt My examination was carried ¢)ut in acrnTdan￿ with general Directions grven oxaminerfs stst•m•nt by the Charity Commiswn. An examination includ&s a review of th8 acwnliNJ records ketrt by the charity al￿ a comparison of th8 ac￿unIS esentsd with those records. 11 also indudes consideration of any unu8ual items or disdosures in th accounts. and seekiry explanations from th8 trustees concwnir& any s￿h matters. pro¢edure8 undertaken do not proV￿e dl the evIler￿ that would be required in an audit. arKf consequenty no oynion is gr¥en as lo whellw th8 ac￿unIS pre88nt a 'true and fairf ard the report is fimrt&J to those mallers sat out In the statement tdow. Ind•pndent In wnnectm with my examinath)n, matter has come to my attention •xamln•rf$ *tatomont 1. ￿lch gNes me Toasonable cause lo bel￿¥6 that in, any material respeel, the requirements." lo keep accountiw r￿4Xd5 in ac¢(Kdan￿ with sec*on 130 of the charit￿ Art arh1 to wepare acctyjnts whth xccKd the accounlirKJ records and CoM￿Y wth the accounting wuirements of the Charities Act have not been met: 01 2. to whrc*. in my OFinion. attention should be dr¥4vn in order to enable proper understandirvJ of the accounts to b8 reaGhed. Signgd: Date: 28th Augusl 2021 MELZA UNFIELD FCA ICAEW qualificatlon(s) or body lrfany) IER March 2012 (rf any).. Address: Danestone Business servI￿s Ltd 52 Crown Drive Invemess IV2 3QG Section B Disclosure Only complete if the examiner needs to highlight material matters of GOn￿M (see CC32, Independent examination of charty accounts.. directions and guidance for examiners). Glve here brlef detall• of any itam8 that the oxamlner wlshe• to disclo8•. IER Oct 2018