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2022-12-31-accounts

ICP Support Trustees’ Annual Report 1 January 2022–31 December 2022

ICP Support

Trustees’ Annual Report for the period 1 January 2022–31 December 2022

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ICP Support Trustees’ Annual Report 1 January 2022–31 December 2022

Contents

Reference and administration details 3
Structure, governance and management 3
Foreword by Co-Chairs of Trustees 4
Summary of the year from the CEO 5
Objectives and activities 6
The focus of our work and how we demonstrate public
benefit 7
Financial review 11
Declaration 13

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ICP Support Trustees’ Annual Report 1 January 2022–31 December 2022

Reference and administration details

Charity name ICP Support Registered charity number 1146449 Charity’s address 69 Mere Green Road, Sutton Coldfield, B75 5BY

Names of the charity trustees who manage the charity

Trustee name Office (if any) Judith Gray Jenny Chambers CEO Peter Dixon Jenny Hastings Co-Chair Katy Crabbe Tracey Smith Co-Chair Emily Rees – resigned 09/11/2022 Treasurer

Structure, governance and management Description of the charity’s trusts

Type of governing document – Articles & Memorandum of dated 1/11/16 Association How the charity is constituted Company Limited by Guarantee Trustee selection methods Elected by members

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ICP Support Trustees’ Annual Report 1 January 2022–31 December 2022

Foreword by Co-Chairs of Trustees

2022 has proved to be a very challenging year for ICP support in terms of fundraising. Coming off the back of our 30th Anniversary year, where £50,000 was raised, the small charities sector finds itself affected by the ongoing cost-of-living crisis and a difficult climate in which to secure grants. ICP Support has continued in its efforts and also tried to cut its costs to ensure that the charity continues to deliver on its aims. We thank all of our supporters who have donated to ICP over 2022 – we could not provide the services we do without your help – and it means we can continue to help fund research, support women and their families, and enable us to fulfil our aim that every ICP baby is born safely.

As Co-Chairs who took over this role in April 2020, we can honestly say that this last year has definitely been a tough one, but we remain honoured to be a part of such a fantastic charity and look forward to 2023 with positivity and optimism.

Jenny Hastings and Tracey Smith (Co-Chairs)

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ICP Support Trustees’ Annual Report 1 January 2022–31 December 2022

Summary of the year from the CEO

After the financial challenges of 2021 I didn’t think it could get any harder to raise money in 2022 – but it did!

Yet while our income for 2022 was only half of what we had for the previous year we were still able to deliver our services with some great ‘firsts’ and highlights.

In February, BBC1’s ‘Call the Midwife’ featured ICP in the penultimate and final episode of Series 11. I had been contacted over a year before to be told that the writers wanted to feature the condition and would appreciate my help in ensuring that the storyline was as accurate as it could be for the period in which it was being set (1968). This included using the correct name for the condition, as the only country in the world at that time using the term OC (obstetric cholestasis) was Australia, whereas the rest of the world was using ICP. I was delighted to do the research, but it was very hard keeping everything a secret – I was not allowed to tell anyone! The episodes reached an average of just under 8 million viewers in the UK and resulted in a spike of website visits of almost 1,000 visitors – five times the normal daily amount.

As part of our aims to reach health professionals I am delighted that we have been able to work with universities to deliver presentations on ICP to student midwives that encompass the history of ICP in the UK and an overview of the condition, and which also explore how charities can work with health professionals to support them, in and out of the clinical care space. By the end of 2022 I had given 13 presentations on ICP attended by just over 600 student midwives with great feedback from them.

Jenny was fantastic – engaging, dynamic, really informative and inspiring in sharing how her own personal experience spurred her on to move into research and awareness raising re ICP.

The charity was involved in helping to bring together the new EASL Clinical Practice Guidelines on the management of liver diseases in pregnancy, and this will be published in 2023.

I have continued to attend online meetings for organisations that ICP Support belongs to, such as the Pregnancy and Baby Charities Network, the Baby Loss Awareness Week group, EASL (European Association for the

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ICP Support Trustees’ Annual Report 1 January 2022–31 December 2022

study of the Liver, and others. I have been delivering presentations on ICP to student midwives, and these have been well received.

We ended the year with a Christmas Appeal, ‘Not Every Baby Cries’, and exceeded our (modest) target of £5,000 by raising £6,487. I want to thank Charlotte and Simon Baker who so very kindly led the appeal by sharing their own devastating experience of stillbirth caused by ICP.

We will continue to work hard to ensure that anyone affected by ICP can access our services and we hope that 2023 will see us sustain the level or services that we currently supply.

Jenny Chambers (CEO)

Objectives and activities

Intrahepatic cholestasis of pregnancy (ICP) is a liver condition of pregnancy that affects around 5,500 women a year in the UK. Its main symptom, itching, can be debilitating for the mother-to-be, and in severe cases it can also cause the death of the baby just before birth (stillbirth).

The aims of the charity are:

The work of the charity is to ensure that all pregnant women and all health professionals who provide care for them are aware of this potentially

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ICP Support Trustees’ Annual Report 1 January 2022–31 December 2022

devastating condition. This is vital if unborn ICP babies are to be better protected.

We aim to achieve this by raising the profile of the condition in the public sector and by working with health professionals to facilitate what is considered to be best practice. We will continue to provide support to all people affected by the condition and to promote and fund research into understanding the condition.

We are guided by recommendations from the Charity Commission, and we currently meet five times a year. In between those times we also hold telephone conferences to plan activities that will contribute towards the established aims and objectives.

The focus of our work and how we demonstrate public benefit

To provide information and support to people affected by the condition

Social media and our Support and Information line continue to be the channels through which we provide information and support and deliver public benefit.

Our most popular point of access for information and support on ICP is still through our social media groups. We have several Facebook groups and a Facebook page. At the end of 2022 the main group had 8,790 members – an increase of 29%. This compares with 26% for 2021. The Facebook page had 6,562 followers, an increase of 482 from 2021.

Membership of the regional Facebook groups has continued to grow slowly. Despite the much-reduced influence of the covid-19 pandemic, there has continued to be no progress in using these groups to facilitate in-person meetings.

The Beyond Birth (postnatal) Facebook group (1,852 members) has continued to grow rapidly, its membership rising by 71% from 1,080 at the end of 2021. There is clearly a demand for providing support to women who continue to have ICP-related issues after their babies are born, right the way through to menopause. The Health Professionals group has grown from 344 members to 394, but activity is still light.

Information is also disseminated through Twitter and Instagram, where engagement continues to increase substantially. Twitter followers have

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ICP Support Trustees’ Annual Report 1 January 2022–31 December 2022

increased from 1,239 to 1,440 (16%), while the number of Instagram followers has grown significantly, up by 32% from 2,620 followers to 3,102.

Other sources of information continue to be through our website and our generic information leaflet.

The number of visitors to the website (see chart) fell during the middle of the year but appears to have recovered. The reason for this is unknown.

ICP Support website visits

The trend towards accessing the website by mobile phone appears to have halted, with 80.7% of visitors doing so (compared with a peak of 82.2% in 2021. However, this is still well ahead of the 73% who used smartphones in 2017). Apple’s iPhone share remains unchanged at 65.4% of mobile visits. Minor changes continue to be made to the site to improve its usability.

Infographics

We have continued to fulfil our aims of raising awareness and providing information on ICP to anyone affected by ICP, and these infographics continue to be well received. Many infographics are now available on the website for use by others, subject to due acknowledgement of ICP Support as the source.

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ICP Support Trustees’ Annual Report 1 January 2022–31 December 2022

Support and Information Line

The charity runs a telephone support line that operates Monday–Friday. We do not give medical advice; nor do we provide counselling, but the person who currently takes the calls is a trained counsellor. We also provide online support and email support. We are grateful to the James Tudor Foundation and the Eleanor Rathbone Charitable Trust for their support in helping to continue this service.

To raise awareness of the condition (advancing education)

Leaflets

Our generic leaflet has primarily become a digital leaflet. It continues to help raise awareness of ICP, and provides up-to-date information on the condition. Printed leaflets are still available and can be distributed at

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ICP Support Trustees’ Annual Report 1 January 2022–31 December 2022

conferences. We are currently working to source funding that will enable us to translate our leaflet into different languages to meet the needs of the diverse communities who access our support.

Conferences and talks

We have continued with delivering information about ICP to health professionals via online presentations and will continue with this approach during 2023.

Collaboration

We have continued our collaborative work with other organisations, and this year the organisations we have worked with include:

Promoting, supporting and raising funds for research

Promoting and supporting research

The NIHR (National Institute for Health Research) has an expectation that research conducted in the UK involves the patients (or patient organisations) representing the condition being researched. This is referred to as PPI (Patient and Public Involvement), and ICP Support has been at the forefront of PPI since the charity’s inception in the 1990s. This takes the form of being involved with the design of studies into ICP, conducting surveys that help researchers to know whether their research intentions are feasible and facilitating the recruitment of participants to the actual studies. This year we worked with Professor Catherine Williamson from King’s College London and Mirum Pharmaceuticals to give feedback on a potential new medication (Volixibat) for treating ICP. We have also continued our work with Professor Bill Hague from Adelaide, Australia, and our founder Jenny Chambers has been invited to speak at the Society of Obstetric Medicine of Australia and New Zealand (SOMANZ) Conference in October 2023.

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ICP Support Trustees’ Annual Report 1 January 2022–31 December 2022

Raising funds for research

Promoting, supporting and raising funds for research enables us to deliver public benefit, as the work carried out may have a direct benefit for women suffering from ICP. This year we were unable to fund any research due to the financial challenges we faced, but we hope that this will change soon.

Grant Awards to ICP Support

We are very grateful to the following organisations for grants received this year which support the running and development of our Information and Support Hub.

James Tudor Foundation: £5,000

Eleanor Rathbone Charitable Trust: £1,000

Financial review

The charity started the year with unrestricted cash reserves of £112,065 available to finance the day-to-day operations of the charity, the balance being higher than usual due to the higher reserves retained from the covid-19 pandemic time, and also boosted by a large donation via Helen George (Patron) who competed in a television programme on our behalf. This left cash reserves representing approximately 17/18 months expenditure.

The charity’s focus for 2022 continued to be on fundraising to try to ensure that the operational costs to the charity were met and to provide a basis for growth in the future. Income for 2022 was £51,602, which was substantially lower than the previous year. This was due to a downturn in fundraising and grant monies received. 2022 was a challenging year for ICP Support, as indeed it was for many other charities, large and small. The costof-living increases and changes to the amount of funds available through grant providers made fundraising especially difficult. As ever, we are proud of the amount raised and thankful for the continued generosity of our donors and patrons, particularly in such a difficult year in the charity sector.

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ICP Support Trustees’ Annual Report 1 January 2022–31 December 2022

The trustees continue to operate with a Finance Committee that oversees and discusses the financial objectives of the charity, looks at pay and remuneration, and monitors future income and expenditure. The committee continues to meet approximately two weeks before each Trustees meeting, where any final proposals are approved, and where the Chair summarises the discussion points from the Finance Committee meeting.

Staff continued to work as normal during 2022. Two notable differences were that the Engagement Officer was on maternity leave for the majority of 2022 and a new member of the team was recruited at the beginning of the year in the role of Support and Engagement Officer. Unfortunately, due to family and other work commitments, she resigned and left at the end of 2022. Expenditure continued to be on operational activities overall, with less spent on fundraising activities, as per 2021. It is worth noting, however, that some of the sporting fundraising events have started to return.

Overall, the charity had a deficit of income over expenditure of £60,978, which takes into account donations of £31,384 made to research projects, funded from the large reserves gained in 2021 due to the anniversary appeal and which was always earmarked for research. This means that at the end of 2022 the charity had cash reserves of £51,087. This gives ICP Support sufficient funds to continue to support our aims in 2023. In line with the Trustees’ pledge that 10% of any surplus of income over expenditure is earmarked for research, it was agreed at the Finance Committee and Trustees’ meetings to transfer £3,626 into a restricted reserve. This will be distributed when a suitable application is received.

It is the opinion of the Trustees that the charity ended 2022 in a strong financial position, but mindful that raising funds in the future may still prove to be challenging. It ensured that there is enough current and future cashflow to ensure that the operational activities can continue.

Policy & Reserves

An average unrestricted cash balance of at least three months’ expenditure will always be maintained. There are no plans to invest any of the monies held.

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ICP Support Trustees’ Annual Report 1 January 2022–31 December 2022

Declaration

The trustees declare that they have approved the trustees’ report above.

Signed on behalf of the charity’s trustees:

Full name(s) Jenny Chambers Jenny Hastings Tracey Smith
Position CEO Co-Chair Co-Chairs
Signature(s)
Date: 28/09/2023 28/09/2023 28/09/2023

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ICP Support

Accounts for the year to 31 December 2022

Charity registration number 1146449. Limited company registered in England and Wales 07817408

Statement of Financial Activities incorporating income and expenditure Statement of Financial Activities incorporating income and expenditure Statement of Financial Activities incorporating income and expenditure
Year ending Year ending
31 December 2022 31 December 2021
£ £
Receipts
Donations and sale of goods 45,602
 101,591
Grants 6,000
 14,542
Total Receipts 51,602
 116,133
Payments
Raising Funds
Grant application costs 9,360
 3,937
Fundraising Costs 1,995
 331
Lottery Winners 1,091
 1,445
Charitable activities
Donations for research 31,384
 3,000
Conferences and exhibitions 847
 -
Newsletter/Surveys 598
 981
Salaries and staff costs 54,137
 55,376
Payroll Administration 867
 279
Rent 3,000
 3,000
Insurance 460
 622
IT support 6,835
 6,855
Website hosting costs 293
 352
Office equipment -
 1,075
Statutory costs 13
 63
Subscriptions/membership 232
 377
Sundry 628
 517
Postage, telephones, and stationery 655
 674
Training 44
 601
Travel 68
 5
Trustee expenses 73 -
Trustee meetings -
 216
Total Payments 112,580 79,706
Net receipts/ (payments) (60,978) 36,427

Accounts for the year to 31 December 2022

Charity registration number 1146449. Limited company registered in England and Wales 07817408

Balance Sheet
Current Assets
Debtors
Cash at Bank and in hand
Total current assets
Creditors:amounts falling due within one year
Net current assets
Total net assets
Funds of the charity
Restricted income funds
Unrestricted funds
Total funds		 31 December
2022
£
975
51,447		 31 December
2021
£
942
111,708
112,650
585
112,065
112,065
-
112,065
112,065
52,422
1,335
51,087
51,087
-
51,087
51,087

For the financial year in question the company was entitled to exemption under section 477 of the Companies Act 2006 relating to small companies. No members have required the company to obtain an audit of its accounts for the year in question in accordance with section 476 of the Companies Act 2006. The directors acknowledge their responsibilities for complying with the requirements of the Act with respect to accounting records and the preparation of accounts.

These accounts have been prepared in accordance with the provisions applicable to companies subject to the small companies’ regime.

Approved by the Board of Trustees on 20/09/2023 and signed on its behalf by:

[Signature]

[Name] Charlie Manchester

[Role] Trustee

[Date] 20/09/2023

[Signature]

[Name] Dr Peter Dixon

[Role] Trustee

[Date] 20/09/2023

Accounts for the year to 31 December 2022

Charity registration number 1146449. Limited company registered in England and Wales 07817408

Notes to the accounts

Note 1: basis of preparation

1.1 Basis of accounting

These accounts have been prepared under the historical cost convention with items recognised at cost or transaction value.

These accounts have been prepared in accordance with the Statement of Recommended Practice: Accounting and reporting by Charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and republic of Ireland (FRS 102) issued on 16[th] July 2014 and with the Charities Act 2011.

The charity constitutes a public benefit as defined by FRS102

1.2 Going concern

There are no material uncertainties related to events or conditions that cast significant doubt on the charity’s ability to continue as a going concern.

1.3 Change of accounting policy

The accounts present a true and fair view and the accounting policies adopted are those outlined in note 2.

1.4 Change to accounting estimates

No changes to accounting estimates have occurred in the reporting period.

1.5 Material prior year errors

No material prior year errors have been identified in the reporting period.

Note 2: Accounting Policies

2.1 Income

Income is included in the Statement of Financial activities (SoFA) when the charity becomes entitled to the resources, it is more likely than not that the trustees with receive the resources and the monetary value can be measured with sufficient reliability.

There has been no offsetting of assets and liabilities or income and expenses.

Grants and donations are only included in the SoFA when the general income recognition criteria are met.

Accounts for the year to 31 December 2022

Charity registration number 1146449. Limited company registered in England and Wales 07817408

Gift Aid receivable in included in income when there is a valid declaration from the donor. Any Gift Aid amount recovered on a donation is considered to be part of that gift and is treated as an addition to the same fund as the initial donation unless the donor has specified otherwise.

The value of any voluntary help received is not included in the accounts but is described in the trustee’s annual report.

2.2 Expenditure and Liabilities

Liabilities are recognised where it is more likely than not that there is a legal or constructive obligation committing the charity to pay out resources and the amount of the obligation can be measured with reasonable certainty.

The charity made no redundancy payments during the reporting period.

No material item of deferred income has been included in the accounts

The charity has creditors which are measured at settlement amount.

A liability is measured on recognition at its historical cost and then subsequently measured at the best estimate of the amount required to settle the obligation at the reporting date.

2.3 Assets

The charity has no tangible fixed assets. These would be capitalised if they could be used for more than one year and cost at least £5,000.

The charity has no intangible fixed assets, that is, non-monetary assets that do not have physical substance, but are identifiable and are controlled by the charity through custody or legal rights.

The charity has no investments in quoted shares, unlisted investments, traded bonds or similar.

Debtors are measured on initial recognition at settlement amount. Subsequently they are measured at the cash received.

Note 3: Details of certain items of expenditure

3.1 Fees for the examination of the accounts

There were no fees incurred for any statutory external scrutiny of the accounts

Note 4: Paid Employees

4.1 Average head count for the year

4.1 Average head count for the year
2022
FTE		 2021
FTE
Fundraising - -
Charitable activities 2.53 1.12
Total staff costs 2.53 2.12

Accounts for the year to 31 December 2022

Charity registration number 1146449. Limited company registered in England and Wales 07817408

Note 5: Pension contributions

The charity contributes towards a pension scheme for its employees. Its pension provider is People Pension.

Note 6: Grant making

The charity has made the following grants to institutions.

Names of institution Purpose Total amount of
grants paid
£
University of Adelaide Investigate into impact of maternal ICP on the
outcome of their children		 6,010
Kings College London Fat issueproject 14,978
Kings College London Scoping post-pregnancyhealth trail 4,396
Kings College London MedSciNet database 6,000
31,334

Note 7: Debtors and prepayment

7.1 Analysis of debtors

7.1 Analysis of debtors
2022
£		 2021
£
Gift Aid 957 942
Prepayments and accrued income - -
Other debtors - -
Total 957 942

Note 8: Creditors and accruals

8.1 Analysis of creditors

All creditors are payable within one year

All creditors are payable within one year
2022
£		 2021
£
Trade creditors 1,335 585
Accruals and deferred income - -
Social security - -
Total 1,335 585

Accounts for the year to 31 December 2022

Charity registration number 1146449. Limited company registered in England and Wales 07817408

Note 9: Cash at bank and in hand

Note 9: Cash at bank and in hand
2022
£		 2021
£
Cash at bank or in hand 51,447 111,708
Total 51,447 111,708

Note 10: Charity Funds

10.1 Details of material funds held and movements between funds during the current period

Fund names Type* Fund balances
brought
forward
£		 Income
£		 Expenditure
£		 Transfers Fund balances
carried forward
£
General funds UR 112,065 51,602 112,580 - 51,087
Total Funds 112,065 51,602 112,580 51,087

*Key

R = restricted

UR = unrestricted

Note 11: Transactions with trustees and related parties

11.1 Trustee remuneration and benefit

None of the trustees have been paid any remuneration or received any other benefits from and employments with their charity or a related benefit

11.2 Trustees expenses

The charity has paid the following trustee expenses for fulfilling their duties.

Types of expenses 2022
£		 2021
£
Travel 73 -
Total 73 -

1 trustee (Ms K Crabbe) have been reimbursed for travel expenses incurred going to a Trustees’ meeting

11.3 Transaction with related parties

The following related party transactions have taken place

Name of related
party		 Relationship to the charity Description of the transaction amount
£
Mr Ian Kingston Husband of Chief executive
Officer		 Provision of IT Support, maintain
website and social mediapages.		 6,835

Independent examiner's report on the accounts

Section A Independent Examiner’s Report

Report to the trustees Charity Name ICP Support On accounts for the year 31 December 2022 Charity no 1146449 ended (if any) Set out on pages I report to the trustees on my examination of the accounts of the above charity (“the Trust”) for the year ended 31/12/2022. Responsibilities and As the charity's trustees, you are responsible for the preparation of the basis of report accounts in accordance with the requirements of the Charities Act 2011 (“the Act”).

I report in respect of my examination of the Trust’s accounts carried out under section 145 of the 2011 Act and in carrying out my examination, I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the Act.

Independent I have completed my examination. I confirm that no material matters have examiner's statement come to my attention in connection with the examination which gives me cause to believe that in, any material respect:

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.

Signed: Date: 11/09/2023 Name: Tracey Worton Relevant professional Chartered Institute of Management Accountants qualification(s) or body (if any): Address: 41 Lambeth Drive, Telford, Shropshire, TF3 1QW

Oct 2018

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IER

Section B Disclosure

Only complete if the examiner needs to highlight material matters of concern (see CC32, Independent examination of charity accounts: directions and guidance for examiners).

Give here brief details of any items that the examiner wishes to disclose .

None

Oct 2018

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IER