Alpha-1 UK Support Group
Alpha-1 UK
- Country
- England & Wales
- Charity number
- 1146330
- Status
- Registered
- Registered
- March 12, 2012
- Legal form
- Other
- Area of benefit
- Undefined, In Principle National
Address
- Address
- 27 OLD GLOUCESTER STREET
HOLBORN
LONDON
WC1N 3AX
Contact
- Phone
- 00
- [email protected]
- Website
alpha1.org.uk
Activities
We provide a support group and website focusing on news, events, information and how better to cope with Alpha-1 aiming towards improving quality of life. Organise social gatherings to educate and unite the Alpha-1 community. Produce, publish and distribute information booklets to advance understanding and awareness. Support research and campaign for better access to treatment.
Objects: (1) To Relieve The Needs Of Individuals Suffering From The Genetic Condition Alpha-1 Antitrypsin Deficiency (Aatd), Their Families, Carers And Friends, In Particular, But Not Exclusively By:a) Providing Advice, Support And Equipment With A View To Improve The Quality Of Life Of Those Suffering With Aatd, Their Families, Carers And Friends;b) Advancing Awareness And Knowledge Of Aatd, In Particular Among Affected Patients And Medical Professions And Healthcare Provider Organisations;c) Fostering Improvements In Access And Equality Of Access To Clinical Expertise And Optimal Disease Management And Treatments For Aatd;d) Supporting Initiatives Aimed At Development, Introduction And Widespread Adoption Of Novel Therapies For Aatd, Including Research.e) Working Collaboratively With Our Members And Relevant External Individuals, Groups Of Individuals, Organisations And Institutions In Order To Achieve A) - D).
Classification
- How
- Makes Grants To Individuals, Provides Services, Provides Advocacy/advice/information
- What
- Education/training, The Advancement Of Health Or Saving Of Lives
- Who
- Children/young People, Elderly/old People, People With Disabilities, The General Public/mankind
Areas of operation
- Country
- Scotland
- Region
- Throughout England And Wales
Finances
| Period end | Income | Expenditure |
|---|---|---|
| March 31, 2025 | £24,757 | £5,985 |
| March 31, 2024 | £38,685 | £13,395 |
| March 31, 2023 | £19,356 | £3,092 |
| March 31, 2022 | £12,038 | £4,700 |
| March 31, 2021 | £10,464 | £3,252 |
Trustees
| Name | Appointed |
|---|---|
| Miss Karen O'hara (Chair) | June 13, 2013 |
| Dr Sandra Nestler-Parr | Dec. 31, 2014 |
| Samantha Sharp | May 31, 2025 |
| Tanya Jones | Sept. 30, 2018 |
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