Charity Registration No. 1145781
Company Registration No. 07821651 (England and Wales)
HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD ANNUAL REPORT AND UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2023
HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD
LEGAL AND ADMINISTRATIVE INFORMATION
| Trustees | C Braithwaite | |
|---|---|---|
| L Byrne | ||
| B L Hennig-Trestman | ||
| Dr H E Hubberstey | ||
| A Clarke | ||
| J Harte | ||
| K Atkins | ||
| J Strydom | ||
| T Randall | ||
| L Youngborg | ||
| M Shore | ||
| A Mullin - Chair | (Appointed 31 October 2023) | |
| Secretary | M J Ellison | |
| Charity number | 1145781 | |
| Company number | 07821651 | |
| Registered office | 28 Millais Close | |
| Bedworth | ||
| Warwickshire | ||
| CV12 8TH | ||
| Independent examiner | Helen Furlong FCCA | |
| McLintocks (NW) Limited | ||
| 46 Hamilton Square | ||
| Birkenhead | ||
| Wirral | ||
| Merseyside | ||
| CH41 5AR |
HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD
CONTENTS
| Page | |
|---|---|
| Trustees' report | 1 - 2 |
| Independent examiner's report | 3 |
| Statement of financial activities | 4 |
| Balance sheet | 5 |
| Notes to the financial statements | 6 - 11 |
HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) FOR THE YEAR ENDED 31 DECEMBER 2023
The trustees present their annual report and financial statements for the year ended 31 December 2023.
The financial statements have been prepared in accordance with the accounting policies set out in note 1 to the financial statements and comply with the charity's Memorandum and Articles of Association, the Companies Act 2006 and "Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)" (effective 1 January 2019).
Objectives and activities
The charity's objects are to relieve the need of young people impacted by Huntington's Disease in particularly, but not exclusively, by the provision of information and support.
The trustees have paid due regard to guidance issued by the Charity Commission in deciding what activities the charity should undertake.
Achievements and performance
During the year to 31 December 2023 the organisation continued with the following educational programmes:
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JOIN-HD The juvenile-Onset Initiative for Huntington's disease - A Global Registry to connect the community of those affected by JOHD, increasing the understanding of the disease & encouraging future research
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Youth Mentorship Program. This program provides a young person (mentee) with one to one time with another person (mentor) who will receive training & ongoing support
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International Ambassadors - Young people who bring real-life experiences to better advocate for the entire community.
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Research Video Series - In partnership with HD Buzz, we develop frequent videos to showcase the latest news in HD research.
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Breaking Down Barriers Series - We tackle the stigmas surrounding HD.
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International Young Adult Congress - This was held in March 2023 in Glasgow and had 340 participants representing 6 continents.
Financial review
In the year to 31 December 2023 the charity had incoming resources of £77,639 (2022 £83,097) and expenditure of £102,041 (2022 £75,809) giving a deficit of £24,402 (2022 surplus £7,288). Accumulated unrestricted free reserves at 31 December 2023 amounted to £25,569.
Reserves policy
It is the policy of the charity that unrestricted funds which have not been designated for a specific use should be maintained at a level equivalent to between three and six month’s expenditure. The trustees consider that reserves at this level will ensure that, in the event of a significant drop in funding, they will be able to continue the charity’s current activities while consideration is given to ways in which additional funds may be raised. This level of reserves has been maintained throughout the year.
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HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD
TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2023
Structure, governance and management
The charity is a company limited by guarantee and is governed by the Memorandum and Articles of Association.
The trustees, who are also the directors for the purpose of company law, and who served during the year and up to the date of signature of the financial statements were:
C Braithwaite L Byrne B L Hennig-Trestman Dr H E Hubberstey A Clarke J Harte K Atkins J Strydom T Randall L Youngborg M Shore A Mullin - Chair (Appointed 31 October 2023)
None of the trustees has any beneficial interest in the company. All of the trustees are members of the company and guarantee to contribute £10 in the event of a winding up.
The memorandum and articles of association state that the minimum number of trustees should be 3.
The trustees' report was approved by the Board of Trustees.
Dr H E Hubberstey Trustee
28 September 2024
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HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD
INDEPENDENT EXAMINER'S REPORT
TO THE TRUSTEES OF HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD
I report to the trustees on my examination of the financial statements of Huntington's Disease Youth Organisation Ltd (the charity) for the year ended 31 December 2023.
Responsibilities and basis of report
As the trustees of the charity (and also its directors for the purposes of company law) you are responsible for the preparation of the financial statements in accordance with the requirements of the Companies Act 2006 (the 2006 Act).
Having satisfied myself that the financial statements of the charity are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of the charity’s financial statements carried out under section 145 of the Charities Act 2011 (the 2011 Act). In carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act.
Independent examiner's statement
I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:
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1 accounting records were not kept in respect of the charity as required by section 386 of the 2006 Act; or
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2 the financial statements do not accord with those records; or
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3 the financial statements do not comply with the accounting requirements of section 396 of the 2006 Act other than any requirement that the accounts give a true and fair view which is not a matter considered as part of an independent examination; or
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4 the financial statements have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102).
I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the financial statements to be reached.
Helen Furlong FCCA McLintocks (NW) Limited
46 Hamilton Square Birkenhead Wirral Merseyside CH41 5AR
Dated: 28 September 2024
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HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD
STATEMENT OF FINANCIAL ACTIVITIES INCLUDING INCOME AND EXPENDITURE ACCOUNT
FOR THE YEAR ENDED 31 DECEMBER 2023
| Unrestricted | Unrestricted | ||
|---|---|---|---|
| funds | funds | ||
| 2023 | 2022 | ||
| Notes | £ | £ | |
| Income from: | |||
| Donations and legacies | 3 | 17,983 | 19,442 |
| Charitable activities | 4 | 59,656 | 63,655 |
| Total income | 77,639 | 83,097 | |
| Expenditure on: | |||
| Charitable activities | 5 | 102,041 | 75,809 |
| Total expenditure | 102,041 | 75,809 | |
| Net income/(expenditure) and movement in funds | (24,402) | 7,288 | |
| Reconciliation of funds: | |||
| Fund balances at 1 January 2023 | 49,971 | 42,683 | |
| Fund balances at 31 December 2023 | 25,569 | 49,971 |
The statement of financial activities includes all gains and losses recognised in the year. All income and expenditure derive from continuing activities.
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HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD
BALANCE SHEET
AS AT 31 DECEMBER 2023
| Notes Current assets Debtors 11 Cash at bank and in hand Creditors: amounts falling due within one year 12 Net current assets Net assets The funds of the charity Unrestricted funds |
2023 £ 7,101 19,788 26,889 (1,320) |
£ 25,569 25,569 25,569 25,569 |
2022 £ 7,086 44,085 51,171 (1,200) |
£ 49,971 |
|---|---|---|---|---|
| 49,971 | ||||
| 49,971 | ||||
| 49,971 |
The company is entitled to the exemption from the audit requirement contained in section 477 of the Companies Act 2006, for the year ended 31 December 2023.
The directors acknowledge their responsibilities for complying with the requirements of the Companies Act 2006 with respect to accounting records and the preparation of financial statements.
The members have not required the company to obtain an audit of its financial statements for the year in question in accordance with section 476.
These financial statements have been prepared in accordance with the provisions applicable to companies subject to the small companies regime.
The financial statements were approved by the trustees on 28 September 2024
Dr H E Hubberstey
Trustee
Company registration number 07821651 (England and Wales)
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HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2023
1 Accounting policies
Charity information
Huntington's Disease Youth Organisation Ltd is a private company limited by guarantee incorporated in England and Wales. The registered office is 28 Millais Close, Bedworth, Warwickshire, CV12 8TH.
1.1 Accounting convention
The financial statements have been prepared in accordance with the charity's [governing document], the Companies Act 2006, FRS 102 “The Financial Reporting Standard applicable in the UK and Republic of Ireland” (“FRS 102”) and the Charities SORP "Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)" (effective 1 January 2019). The charity is a Public Benefit Entity as defined by FRS 102.
The charity has taken advantage of the provisions in the SORP for charities not to prepare a Statement of Cash Flows.
The financial statements are prepared in sterling, which is the functional currency of the charity. Monetary amounts in these financial statements are rounded to the nearest £.
The financial statements have been prepared under the historical cost convention. The principal accounting policies adopted are set out below.
1.2 Going concern
At the time of approving the financial statements, the trustees have a reasonable expectation that the charity has adequate resources to continue in operational existence for the foreseeable future. Thus the trustees continue to adopt the going concern basis of accounting in preparing the financial statements.
1.3 Charitable funds
Unrestricted funds are available for use at the discretion of the trustees in furtherance of their charitable objectives.
Restricted funds are subject to specific conditions by donors or grantors as to how they may be used. The purposes and uses of the restricted funds are set out in the notes to the financial statements.
1.4 Income
Income is recognised when the charity is legally entitled to it after any performance conditions have been met, the amounts can be measured reliably, and it is probable that income will be received.
Cash donations are recognised on receipt. Other donations are recognised once the charity has been notified of the donation, unless performance conditions require deferral of the amount. Income tax recoverable in relation to donations received under Gift Aid or deeds of covenant is recognised at the time of the donation.
Legacies are recognised on receipt or otherwise if the charity has been notified of an impending distribution, the amount is known, and receipt is expected. If the amount is not known, the legacy is treated as a contingent asset.
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HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2023
1 Accounting policies
(Continued)
1.5 Expenditure
Expenditure is recognised once there is a legal or constructive obligation to transfer economic benefit to a third party, it is probable that a transfer of economic benefits will be required in settlement, and the amount of the obligation can be measured reliably.
Expenditure is classified by activity. The costs of each activity are made up of the total of direct costs and shared costs, including support costs involved in undertaking each activity. Direct costs attributable to a single activity are allocated directly to that activity. Shared costs which contribute to more than one activity and support costs which are not attributable to a single activity are apportioned between those activities on a basis consistent with the use of resources. Central staff costs are allocated on the basis of time spent, and depreciation charges are allocated on the portion of the asset’s use.
1.6 Cash and cash equivalents
Cash and cash equivalents include cash in hand, deposits held at call with banks, other short-term liquid investments with original maturities of three months or less, and bank overdrafts. Bank overdrafts are shown within borrowings in current liabilities.
1.7 Financial instruments
The charity has elected to apply the provisions of Section 11 ‘Basic Financial Instruments’ and Section 12 ‘Other Financial Instruments Issues’ of FRS 102 to all of its financial instruments.
Financial instruments are recognised in the charity's balance sheet when the charity becomes party to the contractual provisions of the instrument.
Financial assets and liabilities are offset, with the net amounts presented in the financial statements, when there is a legally enforceable right to set off the recognised amounts and there is an intention to settle on a net basis or to realise the asset and settle the liability simultaneously.
Basic financial assets
Basic financial assets, which include debtors and cash and bank balances, are initially measured at transaction price including transaction costs and are subsequently carried at amortised cost using the effective interest method unless the arrangement constitutes a financing transaction, where the transaction is measured at the present value of the future receipts discounted at a market rate of interest. Financial assets classified as receivable within one year are not amortised.
Basic financial liabilities
Basic financial liabilities, including creditors and bank loans are initially recognised at transaction price unless the arrangement constitutes a financing transaction, where the debt instrument is measured at the present value of the future payments discounted at a market rate of interest. Financial liabilities classified as payable within one year are not amortised.
Debt instruments are subsequently carried at amortised cost, using the effective interest rate method.
Trade creditors are obligations to pay for goods or services that have been acquired in the ordinary course of operations from suppliers. Amounts payable are classified as current liabilities if payment is due within one year or less. If not, they are presented as non-current liabilities. Trade creditors are recognised initially at transaction price and subsequently measured at amortised cost using the effective interest method.
Derecognition of financial liabilities
Financial liabilities are derecognised when the charity’s contractual obligations expire or are discharged or cancelled.
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HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2023
1 Accounting policies
(Continued)
1.8 Employee benefits
The cost of any unused holiday entitlement is recognised in the period in which the employee’s services are received.
Termination benefits are recognised immediately as an expense when the charity is demonstrably committed to terminate the employment of an employee or to provide termination benefits.
1.9 Retirement benefits
Payments to defined contribution retirement benefit schemes are charged as an expense as they fall due.
2 Critical accounting estimates and judgements
In the application of the charity’s accounting policies, the trustees are required to make judgements, estimates and assumptions about the carrying amount of assets and liabilities that are not readily apparent from other sources. The estimates and associated assumptions are based on historical experience and other factors that are considered to be relevant. Actual results may differ from these estimates.
The estimates and underlying assumptions are reviewed on an ongoing basis. Revisions to accounting estimates are recognised in the period in which the estimate is revised where the revision affects only that period, or in the period of the revision and future periods where the revision affects both current and future periods.
3 Income from donations and legacies
| Unrestricted | Unrestricted | |
|---|---|---|
| funds | funds | |
| 2023 | 2022 | |
| £ | £ | |
| Donations and gifts | 17,983 | 19,442 |
4 Income from charitable activities
| Unrestricted | Unrestricted | |
|---|---|---|
| funds | funds | |
| 2023 | 2022 | |
| £ | £ | |
| Sale of goods | 1,804 | - |
| Grants received | 57,852 | 63,655 |
| 59,656 | 63,655 |
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HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2023
5 Expenditure on charitable activities
| Direct costs Mentorship project costs Research video costs JOIN - HD costs Breaking Down Barriers costs Congress costs Share of support and governance costs (see note 6) Support Governance Analysis by fund Unrestricted funds |
2023 £ 1,310 4,063 414 - 57,753 63,540 37,181 1,320 102,041 102,041 |
2022 £ 1,116 3,785 127 2,830 11,023 |
|---|---|---|
| 18,881 55,728 1,200 |
||
| 75,809 | ||
| 75,809 |
6 Support costs
| Support costs | |||
|---|---|---|---|
| Staff costs Website costs IT costs Printing, postage and stationery Advertising Professional fees Administration expenses Bank charges Accountancy and payroll costs Independent examination fees |
Support costs Governance costs £ £ 28,808 - - - 3,866 - 2,086 - - - 144 - 877 - 248 - 1,152 - - 1,320 37,181 1,320 |
2023Support costs Governance costs £ £ £ 28,808 31,436 - - 8,760 - 3,866 3,302 - 2,086 186 - - 618 - 144 6,234 - 877 531 - 248 279 - 1,152 4,382 - 1,320 - 1,200 38,501 55,728 1,200 |
2022 £ 31,436 8,760 3,302 186 618 6,234 531 279 4,382 1,200 |
| 56,928 |
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HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2023
| 7 | Net movement in funds | 2023 | 2022 |
|---|---|---|---|
| £ | £ | ||
| The net movement in funds is stated after charging/(crediting): | |||
| Fees payable for the independent examination of the charity's financial | |||
| statements | 1,320 | 1,200 |
8 Trustees
None of the trustees (or any persons connected with them) received any remuneration or benefits from the charity during the year.
9 Employees
The average monthly number of employees during the year was:
| 2023 | 2022 | |
|---|---|---|
| Number | Number | |
| 2 | 2 | |
| Employment costs | 2023 | 2022 |
| £ | £ | |
| Wages and salaries | 28,672 | 31,246 |
| Other pension costs | 136 | 190 |
| 28,808 | 31,436 |
There were no employees whose annual remuneration was more than £60,000.
10 Taxation
The charity is exempt from taxation on its activities because all its income is applied for charitable purposes.
11 Debtors
| Debtors | ||
|---|---|---|
| Amounts falling due within one year: Other debtors Prepayments and accrued income |
2023 £ 6,598 503 7,101 |
2022 £ 6,598 488 |
| 7,086 |
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HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD
NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2023
12 Creditors: amounts falling due within one year
| 12 Creditors: amounts falling due within one year |
||
|---|---|---|
| Accruals and deferred income 13 Retirement benefit schemes Defined contribution schemes Charge to profit or loss in respect of defined contribution schemes |
2023 £ 1,320 2023 £ 136 |
2022 £ 1,200 |
| 2022 £ 190 |
The charity operates a defined contribution pension scheme for all qualifying employees. The assets of the scheme are held separately from those of the charity in an independently administered fund.
14 Unrestricted funds
The unrestricted funds of the charity comprise the unexpended balances of donations and grants which are not subject to specific conditions by donors and grantors as to how they may be used. These include designated funds which have been set aside out of unrestricted funds by the trustees for specific purposes.
| At 1 General funds Previous year: At 1 General funds |
January 2023 Incoming resources Resources expended At 31 December 2023 £ £ £ £ 49,971 77,639 (102,041) 25,569 January 2022 Incoming resources Resources expended At 31 December 2022 £ £ £ £ 42,683 83,097 (75,809) 49,971 |
|---|---|
15 Related party transactions
There were no disclosable related party transactions during the year (2022 - none).
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