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2022-12-31-accounts

HUNTINGTON'S DISEASE YOUTH ORGANIZATION HDYO 2022 Year End Report SUPPORT, EDUCATE, EMPOWER

A Letter from HDYO

Dear HDYO Community,

As we prepare to say goodbye to 2022, we hope this letter finds you healthy, safe and happy. Each year, we take time to reflect on the impact that HDYO has on the thousands of young people and families we help. While the year’s stories are not quite completed, we are excited to highlight some of our truly impactful successes and updates.

We saw a shift in 2022 as the world transitioned back to in-person events. Nothing can replace the warm embraces and connections you get to make while seeing someone face to face. That did, however, encourage us to propel our in-person programs forward at a rapid pace while still serving the community through our unique programs.

2022 Impact Highlights

One of the major highlights was the development of our Five Year Strategy that shows the path forward for HDYO and how we can partner and collaborate with the global community.

As you read through this report, we hope that you feel the optimism and passion that the Huntington’s Disease Youth Organization has brought to our community. This is only possible with the tireless efforts of our team, and through the generosity of our volunteers and donors.

Thank you for your continued support to allow us to support, educate and empower young people impacted by HD.

Hayley Hubberstey, HDYO Chair

Table of Contents

In Their Own Words

I started crying and crying until I became severely depressed. I didn't talk to anyone. My depression lasted for two months. I decided to send my story to HDYO. This was the best decision I made in my life. It changed my whole life. They told me not to be afraid and that they would help me find a doctor. They sent me the name of a doctor from Egypt. My thinking changed radically after I got to know HDYO and my thinking became positive about the disease.”

Young Adult, Iraq

A life with HD has been incredibly tough to accept. Things have definitely been hard, and I don’t think I could have gotten to where I am today without the support of HDYO. I am so incredibly grateful for always being there if I need anything and for connecting me with so many other young people and a team of ambassadors who can truly understand everything a life impacted by HD brings. Young Adult, Wales

I’m so glad for the outreach. It’s hard adjusting to so many things. I never knew. Jenna is very sweet and kind. I think a lot about all that she and HDYO has done so far to help me. Such an amazing resource in my life.

Young Adult, US

HDYO has been a really positive experience and resource in my life. After getting in contact with them during Congress in 2022, everyone has been so welcoming and nice. They also have been there for me when I was down.

Young Adult, Scotland

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||||| |---|---|---|---| |2022 Financials & Impact| |Total Income|$375,270| |Total General & Administrative Expenses|$73,9391| |Total Fundraising Expenses|$61,105| |Total Expenses Dedicated to Programs|$212,537| |HDYO UK Grants|$83,905| |Mentorship|$15,485| |Research Video Series|$6,446| |General Programs (Ambassadors, etc)|$18,667| |JOIN-HD Registry|$36,824| |Congress|$19,496| |Breaking Down Barriers|$16,443| |Community Scholarships|$10,375| |By the Numbers| |As we moved into a full two years of virtual support and educational programs, we| |found that out impact and reach extended well beyond what has been traditionally| |known as key HDYO programs. We have seen our programs live on past inception| |dates to truly make an impact in the HD community across the globe.| |Outreach and Participants| |�����������������| |2021|2022| |�������������|Registered Congress| |Participants|685|465| |��| |���|������������|Post Congress Participants| |���| |(YouTube)|6862|7309| |������������| |Online Educational| |�����|Programs|16,928|46,551| |���| |Total Participants|24,471|54,325|

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This report details the main marketing presence. We are in the process of building up our LinkedIn and TikTok presence.

Twitter

Instagram

Facebook

Email

Partnership With

In partnership with the HDSA, the mentorship program is designed to support young people across the United States who face the everyday challenges of growing up in a family affected by HD.

2022 Highlights

In-Person Training

Recruitment

Mentor Demographics

Mentees

Breaking Down Barriers

HD is a complicated disease. We aim to provide educational resources in an easy-tounderstand format. We also help young people make connections and communicate with others about their experiences to help others.

Breaking Down Barriers was designed to tackle these roadblocks to arm young people and families with this information to help them throughout their journey.

HDYO continued this program with 2 more produced videos and the launch of our casual conversations around different barriers and stigmas.

Future Projects Depending on Funding

Special thanks to our sponsors!

2022 has been a pivotal year for HD research with some highs and definite lows. This series continues to be one of the more popular resources we provide not only to educate but to also provide the hope through different research accomplishments. Our aim is to do monthly videos, but this is dependent on the different articles and topics published through HDBuzz. So far in 2022, we have created 10 videos with the 11[th] in production currently.

Special thanks to our sponsors!

Special thanks to our partner!

This year’s virtual HDYO Congress was a huge success! While our numbers were slightly lower than in 2021, we had a wider variety of attendees from more countries, and roughly half of the attendees had not participated in the 2021 event. We have also had continual views of our sessions and use these as an educational tools for our programs. These videos are also available in closed captioning in multiple languages. We improved the participant experience with chat rooms, social media wall, contests and more.

Overall

Self-Identified Attendees

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Our Ambassadors celebrated their first full year in May. During that monthly meeting, notable community members shared their gratitude. That included Charles Sabine, Dr. Bonnie, Astri Arnesen (EHA), Seth Rotberg, BJ Viau and Jimmy Pollard. Several associations have expressed their want to partner and develop similar programs. Pharmaceutical companies have used their experiences to help educate their internal teams.

2022 Highlights

Special thanks to our sponsors!

The European Huntington Association (EHA), the International Huntington Association (IHA) and the Huntington’s Disease Youth Organization (HDYO) officially launched HD-CAB in September 2021. As a coalition of partners, this group’s mission is to represent the voice of the global HD community and provide HD community experience to regulators, industry, researchers and governing bodies.

HD-CAB is an instrument to facilitate patient-oriented research and clinical trials as well as fair processes to make treatment accessible for all patients. For HDYO, its so important to have the young person’s voice heard as clinical trials look at early symptomatic and also presymptomatic patients.

In its first year, HD-CAB Boasts:

  1. Recruited 26 members in 20 countries offering diverse relationships to HD

  2. Provided training and education to advocates

3. Hosted two virtual (Novartis & PTC) and three in-person Advisory Boards (PTC, uniQure and Annexon)

4. Pushed industry to consider the global perspective and community access concerns

5. Partnered with HSG to help facilitate Annexon advisory board meeting

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I have been involved in the planning of many advisory board
meetings. It’s an important endeavor, but it’s always a lot of
work. Through their proactive approach, HD-CAB made it much
easier. They helped us understand how important it is to work
together and inspired us to keep moving forward. We at uniQure
came away with invaluable insights and got the chance to share
more of our work with the community we’re working for.
Daniel Leonard
uniQure
Partnered Organizations
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Fundraisers
3 Peaks Challenge
Raised ~£4,000
Jenna Runs a 10K
Grandpa Stamps
Raised $4,000
Holiday Cards
Raises ~$600 annually
Mt. Kilimanjaro Climbs
February 2023
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2022 Highlights

Current Data

Desire for Wider Support Network

HDYO Team:

Scientific Oversight Committee

Lauren Byrne Bonnie Hennig- JOIN-HD Chief Trestman Martha Nance Jean-Marc Burgunder Investigator HDYO Research Co-Chair

Oliver Quarrell

Helen Benjamin Wilfond Santini

Leon Dure

Jenna Heilman Kelly Atkins HDYO Executive HDYO Research Director Co-Chair

Peg Ferdinando Nopoulos Squitieri

Lauren Youngborg HDYO Education Co-Chair

Special thanks to our sponsors!

k) In-Person Representation Snapshot Support LS Llpcoml ¢vnJr• IPPORT, EDUCATE, EMPOWEI

First In-Person HDYO International Congress

Planning is well underway for the first ever in-person Congress held in Glasgow, Scotland. Scholarship recipients from 2020 are carried over to this event, and we are currently finalizing sponsors, logistics, and activities. Highlights include Enroll-HD hosting a celebration event the Saturday of Congress for their 10-year anniversary.

STRIVE – S upporting and TR aining I nternational V oices to E xcel

As the dedicated advocate for young people impacted by HD, we have a responsibility to champion support needed for professionals helping youth and young people across the globe. This network would pool resources & provide support (not financially) for the international programs. That includes:

Survey Series

The need and manner in which the HD community searches for & receives resources has been greatly impacted by the pandemic. In addition, there is a lot that we need to further understand for how HD impacts a young person’s journey throughout the major milestones in their life. We will be implementing a series of surveys to help in certain key areas & we are currently finalizing our IRB approval and hope to start dissemination in February and at Congress. This information will be published to train professionals on effective outreach methods.

Camps

The flagship program of HDYO has been camps. We will aim to host camps every other year in a different country starting in North America in 2024. Planning has already begun for this event and will continue full-speed in 2023.

Next Steps:

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Full-Time
8 Hours/Week 4 Hours/Week
Education & Advocacy Committee
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Research Volunteer Committee

Misty Daniel

Certified Clinical Research Coordinator, Scripps Health

Dr. Beth Ann Griffin

Senior Statistician, RAND Center for Causal Inference

Mustafa Mehkary

PhD Student, University of Toronto

Marina Papoutsi

Biomarker Scientist, IXICO plc, Honorary senior research fellow, UCL

Bhairavi Srinageshwar

Post-Doc Research Associate

Education Volunteer Committee

Erika Brockhoff

Prenatal Genetic Counselor, Impacted by HD

Bhairavi Srinageshwar Post-Doc Research Associate

Brittany Stowers

Neuroscience and Psychology, Impacted by HD

Dr. Emma Yhnell

HD Researcher, Cardiff University

Jessi Way

Licensed Professional Counselor, Impacted by HD

Wes Solem

Genetic Counselor, HD Genetics

Charity Registration No. 1145781

Company Registration No. 07821651 (England and Wales)

HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD ANNUAL REPORT AND UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2022

HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD

LEGAL AND ADMINISTRATIVE INFORMATION

Trustees

C Braithwaite L Byrne B L Hennig-Trestman Dr H E Hubberstey A Clarke J Harte K Atkins J Strydom T Randall L Youngborg M Shore

(Appointed 17 August 2022) (Appointed 27 July 2022) (Appointed 27 July 2022) (Appointed 27 July 2022) (Appointed 27 July 2022)

Secretary Mr M J Ellison

Charity number 1145781 Company number 07821651 Registered office 28 Millais Close Bedworth Warwickshire CV12 8TH Independent examiner Helen Furlong FCCA McLintocks (NW) Limited 46 Hamilton Square Birkenhead Wirral Merseyside CH41 5AR

HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD

CONTENTS

Page
Trustees' report 1 - 2
Independent examiner's report 3
Statement of financial activities 4
Balance sheet 5
Notes to the financial statements 6 - 11

HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD

TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) FOR THE YEAR ENDED 31 DECEMBER 2022

The trustees present their annual report and financial statements for the year ended 31 December 2022.

The financial statements have been prepared in accordance with the accounting policies set out in note 1 to the financial statements and comply with the charity's Memorandum and Articles of Association, the Companies Act 2006 and "Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)" (effective 1 January 2019).

Objectives and activities

The charity's objects are to relieve the need of young people impacted by Huntington's Disease in particularly, but not exclusively, by the provision of information and support.

The trustees have paid due regard to guidance issued by the Charity Commission in deciding what activities the charity should undertake.

Achievements and performance

During the year to 31 December 2022 the organisation continued with the following educational programmes:

Financial review

In the year to 31 December 2022 the charity had incoming resources of £83,097 (2021 £104,120) and expenditure of £75,809 (2021 £85,466) giving a surplus of £7,288 (2021 £18,654). Accumulated unrestricted free reserves at 31 December 2022 amounted to £49,971.

It is the policy of the charity that unrestricted funds which have not been designated for a specific use should be maintained at a level equivalent to between three and six month’s expenditure. The trustees consider that reserves at this level will ensure that, in the event of a significant drop in funding, they will be able to continue the charity’s current activities while consideration is given to ways in which additional funds may be raised. This level of reserves has been maintained throughout the year.

Structure, governance and management

The charity is a company limited by guarantee and is governed by the Memorandum and Articles of Association.

HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD

TRUSTEES' REPORT (INCLUDING DIRECTORS' REPORT) (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022

The trustees, who are also the directors for the purpose of company law, and who served during the year and up to the date of signature of the financial statements were:

C Braithwaite L Byrne B L Hennig-Trestman Dr H E Hubberstey E Miller (Resigned 30 September 2022) R Schaffrath (Resigned 30 October 2022) D Spencer (Resigned 30 December 2022) A Clarke J Harte K Atkins (Appointed 17 August 2022) J Strydom (Appointed 27 July 2022) T Randall (Appointed 27 July 2022) L Youngborg (Appointed 27 July 2022) M Shore (Appointed 27 July 2022)

None of the trustees has any beneficial interest in the company. All of the trustees are members of the company and guarantee to contribute £10 in the event of a winding up.

The trustees ' report was approved by the Board of Trustees.

. ............................. Dr H E Hubberstey Trustee

26/9/23

Date: .............................................

HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD

INDEPENDENT EXAMINER'S REPORT

TO THE TRUSTEES OF HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD

I report to the trustees on my examination of the financial statements of Huntington's Disease Youth Organisation Ltd (the charity) for the year ended 31 December 2022.

Responsibilities and basis of report

As the trustees of the charity (and also its directors for the purposes of company law) you are responsible for the preparation of the financial statements in accordance with the requirements of the Companies Act 2006 (the 2006 Act).

Having satisfied myself that the financial statements of the charity are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of the charity’s financial statements carried out under section 145 of the Charities Act 2011 (the 2011 Act). In carrying out my examination I have followed all the applicable Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act.

Independent examiner's statement

I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe that in any material respect:

I have no concerns and have come across no other matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the financial statements to be reached.

Helen Furlong FCCA McLintocks (NW) Limited

46 Hamilton Square Birkenhead Wirral Merseyside CH41 5AR

Dated: .........................

HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD

STATEMENT OF FINANCIAL ACTIVITIES INCLUDING INCOME AND EXPENDITURE ACCOUNT

FOR THE YEAR ENDED 31 DECEMBER 2022

**Unrestricted ** Unrestricted
funds funds
2022 2021
Notes £ £
Income from:
Donations and legacies 3 19,442 13,458
Charitable activities 4 63,655 90,606
Other trading activities 5 - 56
Total income 83,097 104,120
Expenditure on:
Charitable activities 6 75,809 85,466
Net income for the year/
Net movement in funds 7,288 18,654
Fund balances at 1 January 2022 42,683 24,029
Fund balances at 31 December 2022 49,971 42,683

The statement of financial activities includes all gains and losses recognised in the year.

All income and expenditure derive from continuing activities.

The statement of financial activities also complies with the requirements for an income and expenditure account under the Companies Act 2006.

HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD

BALANCE SHEET

AS AT 31 DECEMBER 2022

2022 2021
Notes £ £ £ £
Current assets
Debtors 11 7,086 -
Cash at bank and in hand 44,085 43,883
51,171 43,883
Creditors: amounts falling due within
one year 12 (1,200) (1,200)
Net current assets 49,971 42,683
Income funds
Unrestricted funds 49,971 42,683
49,971 42,683

The company is entitled to the exemption from the audit requirement contained in section 477 of the Companies Act 2006, for the year ended 31 December 2022.

The directors acknowledge their responsibilities for complying with the requirements of the Companies Act 2006 with respect to accounting records and the preparation of financial statements.

The members have not required the company to obtain an audit of its financial statements for the year in question in accordance with section 476.

These financial statements have been prepared in accordance with the provisions applicable to companies subject to the small companies regime.

The financial statement s were approved by the Trustees on .........................26/9/23

.............................. D r H E H u bb ers t ey Trustee

Company registration number 07821651

HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2022

1 Accounting policies

Charity information

Huntington's Disease Youth Organisation Ltd is a private company limited by guarantee incorporated in England and Wales. The registered office is 28 Millais Close, Bedworth, Warwickshire, CV12 8TH.

1.1 Accounting convention

The financial statements have been prepared in accordance with the charity's [governing document], the Companies Act 2006, FRS 102 “The Financial Reporting Standard applicable in the UK and Republic of Ireland” (“FRS 102”) and the Charities SORP "Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102)" (effective 1 January 2019). The charity is a Public Benefit Entity as defined by FRS 102.

The charity has taken advantage of the provisions in the SORP for charities not to prepare a Statement of Cash Flows.

The financial statements are prepared in sterling, which is the functional currency of the charity. Monetary amounts in these financial statements are rounded to the nearest £.

The financial statements have been prepared under the historical cost convention. The principal accounting policies adopted are set out below.

1.2 Going concern

At the time of approving the financial statements, the trustees have a reasonable expectation that the charity has adequate resources to continue in operational existence for the foreseeable future. Thus the trustees continue to adopt the going concern basis of accounting in preparing the financial statements.

1.3 Charitable funds

Unrestricted funds are available for use at the discretion of the trustees in furtherance of their charitable objectives.

Restricted funds are subject to specific conditions by donors as to how they may be used. The purposes and uses of the restricted funds are set out in the notes to the financial statements.

1.4 Income

Income is recognised when the charity is legally entitled to it after any performance conditions have been met, the amounts can be measured reliably, and it is probable that income will be received.

Cash donations are recognised on receipt. Other donations are recognised once the charity has been notified of the donation, unless performance conditions require deferral of the amount. Income tax recoverable in relation to donations received under Gift Aid or deeds of covenant is recognised at the time of the donation.

Legacies are recognised on receipt or otherwise if the charity has been notified of an impending distribution, the amount is known, and receipt is expected. If the amount is not known, the legacy is treated as a contingent asset.

HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022

1 Accounting policies

(Continued)

1.5 Expenditure

Expenditure is recognised once there is a legal or constructive obligation to transfer economic benefit to a third party, it is probable that a transfer of economic benefits will be required in settlement, and the amount of the obligation can be measured reliably.

Expenditure is classified by activity. The costs of each activity are made up of the total of direct costs and shared costs, including support costs involved in undertaking each activity. Direct costs attributable to a single activity are allocated directly to that activity. Shared costs which contribute to more than one activity and support costs which are not attributable to a single activity are apportioned between those activities on a basis consistent with the use of resources. Central staff costs are allocated on the basis of time spent, and depreciation charges are allocated on the portion of the asset’s use.

1.6 Cash and cash equivalents

Cash and cash equivalents include cash in hand, deposits held at call with banks, other short-term liquid investments with original maturities of three months or less, and bank overdrafts. Bank overdrafts are shown within borrowings in current liabilities.

1.7 Financial instruments

The charity has elected to apply the provisions of Section 11 ‘Basic Financial Instruments’ and Section 12 ‘Other Financial Instruments Issues’ of FRS 102 to all of its financial instruments.

Financial instruments are recognised in the charity's balance sheet when the charity becomes party to the contractual provisions of the instrument.

Financial assets and liabilities are offset, with the net amounts presented in the financial statements, when there is a legally enforceable right to set off the recognised amounts and there is an intention to settle on a net basis or to realise the asset and settle the liability simultaneously.

Basic financial assets

Basic financial assets, which include debtors and cash and bank balances, are initially measured at transaction price including transaction costs and are subsequently carried at amortised cost using the effective interest method unless the arrangement constitutes a financing transaction, where the transaction is measured at the present value of the future receipts discounted at a market rate of interest. Financial assets classified as receivable within one year are not amortised.

Basic financial liabilities

Basic financial liabilities, including creditors and bank loans are initially recognised at transaction price unless the arrangement constitutes a financing transaction, where the debt instrument is measured at the present value of the future payments discounted at a market rate of interest. Financial liabilities classified as payable within one year are not amortised.

Debt instruments are subsequently carried at amortised cost, using the effective interest rate method.

Trade creditors are obligations to pay for goods or services that have been acquired in the ordinary course of operations from suppliers. Amounts payable are classified as current liabilities if payment is due within one year or less. If not, they are presented as non-current liabilities. Trade creditors are recognised initially at transaction price and subsequently measured at amortised cost using the effective interest method.

Derecognition of financial liabilities

Financial liabilities are derecognised when the charity’s contractual obligations expire or are discharged or cancelled.

HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022

1 Accounting policies

(Continued)

1.8 Employee benefits

The cost of any unused holiday entitlement is recognised in the period in which the employee’s services are received.

Termination benefits are recognised immediately as an expense when the charity is demonstrably committed to terminate the employment of an employee or to provide termination benefits.

1.9 Retirement benefits

Payments to defined contribution retirement benefit schemes are charged as an expense as they fall due.

2 Critical accounting estimates and judgements

In the application of the charity’s accounting policies, the trustees are required to make judgements, estimates and assumptions about the carrying amount of assets and liabilities that are not readily apparent from other sources. The estimates and associated assumptions are based on historical experience and other factors that are considered to be relevant. Actual results may differ from these estimates.

The estimates and underlying assumptions are reviewed on an ongoing basis. Revisions to accounting estimates are recognised in the period in which the estimate is revised where the revision affects only that period, or in the period of the revision and future periods where the revision affects both current and future periods.

3 Donations and legacies

**Unrestricted ** Unrestricted
funds funds
2022 2021
£ £
Donations and gifts 19,442 13,458

4 Charitable activities

2022 2021
£ £
Grants received 63,655 90,606

HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022

5 Other trading activities

**Total ** Unrestricted Unrestricted
funds
2022 2021
£ £
Events - 56
Charitable activities
2022 2021
£ £
Mentorship project costs 1,116 3,122
Research video costs 3,785 4,963
JOIN - HD costs 127 -
Breaking Down Barriers costs 2,830 -
Virtual Congress costs 11,023 -
18,881 8,085
Share of support costs (see note 7) 55,728 76,181
Share of governance costs (see note 7) 1,200 1,200
75,809 85,466

6 Charitable activities

HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022

7 Support costs

Support costs
Support
Governance		 2022Support costs Governance 2021
costs costs costs
£ £ £ £ £ £
Staff costs 31,436 - 31,436 47,785 - 47,785
Conference costs - - - 10,966 - 10,966
Website costs 8,760 - 8,760 10,139 - 10,139
IT costs 3,302 - 3,302 1,967 - 1,967
Travel and accomodation - - - 531 - 531
Printing, postage and
stationery 186 - 186 1,673 - 1,673
Advertising 618 - 618 673 - 673
Professional fees 6,234 - 6,234 1,460 - 1,460
Administration expenses 531 - 531 884 - 884
Bank charges 279 - 279 103 - 103
Accountancy and payroll
costs 4,382 - 4,382 - - -
Independent examination
fees - 1,200 1,200 - 1,200 1,200
55,728 1,200 56,928 76,181 1,200 77,381
Analysed between
Charitable activities 55,728 1,200 56,928 76,181 1,200 77,381

8 Trustees

None of the trustees (or any persons connected with them) received any remuneration or benefits from the charity during the year.

9 Employees

The average monthly number of employees during the year was:

2022 2021
Number Number
2 2
Employment costs 2022 2021
£ £
Wages and salaries 31,246 47,223
Other pension costs 190 562
31,436 47,785

There were no employees whose annual remuneration was more than £60,000.

HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD

NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2022

10 Taxation

The charity is exempt from tax on income and gains falling within section 505 of the Taxes Act 1988 or section 252 of the Taxationof Chargeable Gains Act 1992 to the extent that these are applied to its charitable objects.

11 Debtors

11 Debtors
2022 2021
Amounts falling due within one year: £ £
Other debtors 6,598 -
Prepayments and accrued income 488 -
7,086 -
12 Creditors: amounts falling due within one year
2022 2021
£ £
Accruals and deferred income 1,200 1,200

13 Related party transactions

There were no disclosable related party transactions during the year (2021 - none).