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2021-12-31-accounts

J/ HUNTINGTON'S DISEASE YOUTH ORGANIZATION 2021 Annual Report SUPPORT, EDUCATE, EMPOWER

Commitment to Our Mission

The Huntington’s Disease Youth Organization is an international non-profit supporting, educating, and empowering young people up to 35 years, impacted by Huntington’s Disease (HD).

Our aim is to provide a safe place to support, educate & empower young people & their families. We do this through several online and in-person resources.

Who We Help:

HD impacts far more people than just those who have the disease. Impacted for us includes -

HDYO.org – The center of our support & education. 14 languages & huge range of content for different ages. Nov 2021, we launched our new redesigned website with the new branding & enhanced navigation.

Direct support is provided by our staff.

Educational Programs

JOIN-HD: The Juvenile-Onset Initiative for Huntington’s Disease - A Global Registry to connect the community of those affected by JOHD, increasing the understanding of the disease & encouraging future research. HDYO International Congress - A program of insightful talks, sharing, research updates, peer support & fun! Youth Mentorship Program in Partnership with HDSA - This program provides a young person (mentee) with one-on-one time with another person (mentor) who will receive training, & ongoing support International Ambassadors - Young people who bring real-life experiences to better advocate for the entire community. Research Video Series - In partnership with HD Buzz, we develop frequent videos to showcase the latest news in HD research. Breaking Down Barriers Series - We tackle the stigmas surrounding HD HDYou Community Stories - Featured interviews with members of the HD community.

Support

HD impacts each person differently, and this can lead to worry and uncertainty. HDYO is there to answer any questions from the community. There are a wide range of resources available. We help young people access peer support and connect to professionals in the community.

Enhanced Website Navigation & Support

From the Community

Youth Mentorship/Mentee Program

In partnership with the HDSA, the mentorship program is designed to support young people across the United States who face the everyday challenges of growing up in a family affected by HD. This program provides youth (mentee) with one-on-one time with another person (mentor) who will receive training, and ongoing support from a Youth Social Worker within the HDSA. We are actively accepting applications for mentors and mentees to expand this program future after our pilot.

In Partnership With

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HD.
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Bhairavi
Mentor - Michigan
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HDYO Impact By the Numbers

Event Participation

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Educate

HDYO strives to educate and provide resources for the community to support them through every part of their journey with Huntington’s Disease. In addition to the robust content on HDYO.org, a series of programs have been developed to bring important topics and concerns directly to young people.

Breaking Down Barriers Series

HD is a complicated disease. We aim to provide educational resources in an easy-tounderstand format. We also help young people make connections and communicate with others about their experiences to help others. Breaking Down Barriers was designed to tackle these roadblocks to arm young people and families with this information to help them throughout their journey.

Next Up in 2022 ...Talking to Children about HD, Access to Health & Research, Being a Young Caregiver, Behind the Scenes Laboratory Tour, Speaking to Children About HD.

Sponsored By

Matt’s Chats

Featured on social media, Matt’s Chats featured interviews with others in the HD community to discuss topics like juvenile onset HD, deciding to do genetic testing, latest in research and more.

Research Video Series

Special thanks to our sponsors!

Special thanks to our partner!

International Young Adult Congress

The HD community is incredibly diverse. There are vast discrepancies with the level and access of care, support and resources that are available, depending on your country and culture. HDYO has the unique ability to help young people across the world impacted by HD. We aimed to do that physically with our event in 2020. After re-imagining the original event to become virtual, HDYO hosted the first International Congress in March 2021.

This was the FIRST event of its kind because it brought together the HD community across the world in one place, virtually. Attendees heard from different research partners, learned from people in the community, got moving with yoga, dance and exercises, connected with others and walked away feeling inspired. All sessions are featured on YouTube for anyone to access at any time. This essential program was completely free for the community thanks to the generosity of our amazing sponsors. Feedback from young people in addition to pharmaceutical sponsors was extremely positive and 98% of respondents to our survey were excited to join another virtual congress in the next year.

Empower

At HDYO, our aim is to ensure all young people impacted by HD are empowered to help themselves and their families. We encourage them to be their own advocates by sharing their stories and connecting with others in the community.

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Clare raised funds by running a half marathon.
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HDYO Ambassadors

Our Ambassadors are a group of young people from across the world who are leaders and advocates in the HD community and can help us extend our reach being boots locally on the ground. This group volunteers, raises awareness of HD, advises and fundraises for HDYO. They are truly global coming from US, Canada, South America, Europe, Australia and the Middle East. This group launched after the success of congress in 2021 and meet monthly. They share their experiences and aim to connect the HD community to show they are not alone. They provide support to community members throughout the year including sharing Top Tips to help others, outlining their own journeys, and more. They also keep their fingers on the pulse of the latest in HD and the impacts on young people.

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Meet Some of Our Ambassadors!
Some Ambassadors Not Photographed
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Huntington’s Disease Community Advisory Board (HD-CAB)

The European Huntington Association (EHA), the International Huntington Association (IHA) and the Huntington’s Disease Youth Organization (HDYO) officially launched their new project, HD-CAB. As a coalition of partners, their mission is to represent the voice of the global HD community and provide HD community experience to regulators, industry, researchers and governing bodies.

HD-CAB is an instrument to facilitate patient-oriented research and clinical trials as well as fair processes to make treat ment accessible for all patients. For HDYO its so important to have the young persons voice heard as clinical trials look at early symptomatic and pre-symptomatic patien ts.

Hayley Hubberstey, HDYO Chair and Member of HD-CAB Management Team

Partnered Organizations

New Ways of Engagement

There are countless ways to give back and make your voice heard and represented in the HD community. HDYO has enhanced the various ways to give back to HDYO and to the community. These tactics will help diversify our methods of support while enhancing our mission.

Ways to Give

Personal Donations! Supporters can give monthly or monthly and can choose to donate in honor of a loved one.

Donate in Lieu of Gifts! For the next celebration or in memory of a loved one, people can make a donation and choose to send a gift receipt to a loved one.

Start a Facebook Fundraiser! This is the perfect way to celebrate a birthday or milestone while giving back! Host Your Own Fundraiser! From bake sales to bowling nights, to online parties and quizzes, there are may fun ways to Henley Mermaids Fundraiser gather to have fun and support HDYO.

Participate on Behalf of HDYO! Make HDYO the beneficiary for your next marathon or competition!

Get Your Workplace Involved! Whether you’re an employee or an employer, we’d be happy to chat about making HDYO an approved charity for your workplace giving programs. There are three main ways for employers to support nonprofits: payroll deductions, grant opportunities and matching gifts.

Make HDYO Your Beneficiary! From 401ks to IRAs and other investment accounts, you can make HDYO your beneficiary.

Become A Sponsor Your foundation or company can sponsor our programs that impact the lives of young people and families in the HD community globally. We also offer unique and custom sponsorship opportunities that allow companies and organizations to share their products and services, reach thousands of individuals and enhance their presence in the HD community.

Volunteer! From becoming an Ambassador to joining one of our committees, YOU can help so many others who have been impacted by this disease.

The HDYO team made great strides in our global Juvenile-onset HD Global Registry. This registry hopes to connect this under-served community and gather history to help support and direct future research for Juvenile onset Huntington’s Disease.

2021 Highlights

Presented At:

Awarded Scholarships:

HDYO Team: Scientific Oversight Committee

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Lauren Byrne
JOIN-HD Chief Oliver
Investigator Martha Nance Jean-Marc Burgunder Quarrell
Bonnie Hennig-
Trestman
HDYO research
co-chair
Helen
Leon Dure Santini Benjamin Wilfond
Rebecca Mason
JOIN-HD
coordinator
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What’s Next?

The registry will open and active recruitment will begin in the first months of 2022. Any family who has been impacted by juvenile-onset HD is encouraged to register to help connect the community together, identify unmet needs and gaps in care, and to help speed up research for this important community. Once registered, participants will go through a screening call with Dr. Mason and then will receive log in information to complete a series of questionnaires. For more questions and information, email registry@hdyo.org.

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Special thanks to our sponsors!
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Pre-Register Today!
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INC(hME Donations Grants 16,996.06 130,514.18 23,829.66 179,530.25 147,510.24 203,359.91 EXPENDITURE Grantsto HDYO UK Salaries Payroll costs Storage Postage & statlonery ITcosts 92,509.16 34,832.98 242.57 112.05 172.13 125,000.00 47.919.73 333.70 154.15 236.80 562.17 773.38 Telephone Insurance 171.94 236.54 728.63 1,002.38 173.04 Bank charges Office costs Accounts 125.78 599.17 1.987.43 824.28 2.750.00 132.044.01 179A03.99 Surplus for Year 15,466.23 23,955.92 Reserves B/F Surplus 236.886.04 23,955.92 Reserves CIF REPRESENTED BY :ASSErs 260,841.96 Checkin8 BankAccount Stocks 260,341.96 500.00

Research Volunteer Committee

Misty Daniel

Certified Clinical Research Coordinator, Scripps Health

Dr. Beth Ann Griffin

Senior Statistician, RAND Center for Causal Inference

Mustafa Mehkary PhD Student, University of Toronto

Marina Papoutsi

Biomarker Scientist, IXICO plc, Honorary senior research fellow, UCL

Marketing Volunteer Committee

Education Volunteer Committee

Angela Abell

HDYO Ambassador, Impacted by HD

Erika Brockhoff

Prenatal Genetic Counselor, Impacted by HD

Marc Osborn

High School Teacher, Impacted by HD

Bhairavi Srinageshwar

Post-Doc Research Associate

Brittany Stowers Student Studying Neuroscience and Psychology, Impacted by HD

Dr. Emma Yhnell

HD Researcher, Cardiff University

Emily Hadley Retail Buyer, World of Sweets

Jessi Way

Masters of Science, Licensed Professional Counselor, Impacted by HD

HUNTINGTON'S DISEASE YOUTH ORGANIZATION Join the Celebration in 20221 HDYouthOrg in @HDYO HDYOFeed @HDYOFeed HDYOFeed HDYO.ORG

Charfty Reglstration No. 1145781 Company Registration No. 07821651 IEngland and Wales) HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD ANNUAL REPORT AND UNAUDITED FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2021 McLintocks Xeinadin Group

HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD LEGAL AND ADMINISTRATIVE INFORMATION Trustees C Brailhwaile L Brynne H Ging B L Hennig-Treslman Or H E Hubb&isley C Martin U McNamara E Miller R Schaffrath D Spencer A Weiser Secretary Mr M J Ellison Charity numbèr 1145781 Company number 07821651 Regist&rèd offi¢e 28 Millais Close Bedworth Warwickshire CV12 8TH Independent examiner Helen Furlong FCCA McLintocks INW) Limited 46 Hamilton Square Biikenhea Wirral Merseyside CH415AR

HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD CONTENTS Page Trustees, rtsport Independent examiner's report Statement of finanual aCtI￿tieS Balaneè sheet Notes lo the financial statements 6-10

HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD TRUSTEES, REPORT (INCLUDING DIRECTORS. REPORT) FOR THE YEAR ENDED 31 DECEMBER 2021 The trustees present Iheir annual report and financial slalements for the year ended 31 December 2021. The financial slalemen15 have been prepared in accordancè with thè accounting policiès set out in note 1 to the financial statements and comply with the ch8rty's Memorandum and Articles of Assoei81ion, the Companies Act 2006 and "Accounting and RepDrting by Charities.. Slalemenl of Recommended Practice applicable lo charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland IFRS 1021" leffeclivo 1 January 2019). Objectives and actlvitles The rharily's objects are lo relieve the need of young people impacted by Huntington's Disease in partioularfy. but not exclusively. by thè provision of information and support. The tru5tee5 have paid due ￿gard to guidance issued by the Charity Cornmission in deciding what activities the charity should undertake. Achievements and performance During the year to 31 Dècembèr 2021 thè org8nis8tion laun¢h&d the new redesigned w&bsilé and èntèrèd into thè following Educational programmès.. JOIN-HD The juvellile-Qnset Inillative for Huntington's disease A Global Registry to connect the commuTrity of those affected by JOHD. increasing the understanding of the disease & encouraging future research Youth Mèntorship Program. Thi5 program provides a young person Imentee} wth one lo one time with another person Imenlorl who will Teceive training & ongoing support Inlemalional Arnba5sador5- Young people who bring real-lif8 experiences to better advocate for the entire ommunity. Research Wideo Series ~ In partnership wilh HD Buzz. we develop frequent videos to showcase the lalesl news in HD research. Breaking Down Barriers Series- We tacklè th8 stigmas surrounding HD. Flnancial reylew In the year to 31 De￿mber 2021 the charity had incoming ￿59[1ree$ of £104,12012020 £202,043) and expenditure of £85,46612D20 £205,855) giving a surplus of £18,654. A¢¢umulaled unr&slri¢ted fr8e rèsarvès at 31 Decembèr 2021 amountèd lo £42.683. 11 is the policy of the charity that unreslriGted funds which have not been designated for a specific use should be maintained at a level equivalent to be￿een thr9è 2nd six month's expènditure. The trustees consider that reserves al this level will ensure that. in the ev¢nl of a Significant drop in funding. they will be able lo continue the cha￿ly'S cuirenl activities while consideration is given to way5 in which additional funds may be raised. This level of reserves has been maintained throughout the year. Structure. governance and management The charity IS 8 company limited by guarantèe and is governed by the Memorandum and Articles of Assoclalion.

HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD TRUSTEES, REPORT {INCLUDING DIRECTORS. REPORT) (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2021 The trustees, who are also the directors for the purpose of company law, and who served durÈng the year and up to the date of signalurÈ of the financial stalernents were.. C Brailhwaite LBrynne H Ging B L Hennig-Treslm8n Dr H E Hubberstey C Martin U McNamara E Miller R Schaffralh D Spencer A Vveiser None of Ehe Iruslees has any benefiaal interest in the company. All of the trustees a￿ member5 of the company and guaianleg to contribute £10 in the event of a winding up. The trustegs, Teport was approved by the Board ol Trustees. Dr H E Hubbèrst8y Trustee 07/10/22 Date..

HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD INDEPENDENT EXAMINER'S REPORT TO THE TRUSTEES OF HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD I rèport to the Iruslees on my examination ol the financial statements of Hunlinglon's Disease Youth OTganisation Ltd Ithe charity) for the year ended 31 December 2021. Rèsponsibi15tses and basis of report As the Iruslees of the charity land also its directors for tha purposes ol company lawl you are responsible for th& preparation of the financial statemènts in accordancè with IhÈ requiremènts of thè Companiès Act 2006 (the 2006 Acti. Having satisfied mysew that thè finandal statèmènts of thè eharity 3r& not ￿qLl￿rÉd fo bè audltèd undèr Part 16 of the 2006 Ad and aTe eligible for independent exarninalion, I report in respect of rny examinatlDn of the charity's financial slalemerits carried OLrt under sedion 145 of the Charities Act 2011 (the 2011 Act). In carrying out my tsxamination I have followed all the applicable Dire¢tions givon by the Charfty Commission under seclion 145IS}Ib) of the 2011 Act. Indèpèndènt Èxamine￿$ statement I have compl¢led my examination. I confirm that no matters have corne lo my attention in connection with the examination giving me Gause lo believe that in any material respect.. accounting records werè not kèpt in rÈsped of IhÈ ch3rily a5 required by section 386 of the 2006 Att,. or the financial slatements do not accord with those rewrds- DI the finan￿31 slalemenls do not cornply with the accounting requirements ol section 398 of the 2006 Act other than any fequiremenl that the accounts give a true and fair view which is not a matter considered as part of an indèpèndent examination.. or the finan¢ial 51alotn8n15 have not been prepared in accordance with the rnelhods and principles of the Statement of Re¢omtnended Practice for accounting and Teporting by charities applicable lo charities preparing their aettounls in accordance with the Financial Reporting Standard applicable in the UK and RÈpublie ol Ireland IFRS 102). I have no concerns and have come across no other Matt￿ in eonnÈth"Dn with Ihè examination to which attention should be drawn in this report in ordor lo enable a proper understsnding of the Inancial slalements lo be reached. Helèn Furlong FCCA McLintocks INWI Limsted 46 Hamilton Square Birkenhead Wirral Merseyside CH415AR Dated: ..l.l...lQ....U..

HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD STATEMENT OF FINANCIAL ACTIVITIES INCLUDING INCOME AND EXPENDITURE ACCOUNT FOR THE YEAR ENDED 31 DECEMBER 2021 Unr&$trict¢d Unrestrlcted funds funds 2021 2020 Notès Income from: Donations and legacies Charitable aclivil*s Other trading activities 13,458 90,606 56 7,448 188,457 6,138 Totsl income 1 D4,120 202,043 Ex èndlturè on: Charikble activilies 85,466 205,855 Net In¢omellexp¢nditurel for the yearl Net movement in funds 18,654 13,8121 Fund balances at l January 2021 24,029 27,841 Fund balances at 31 December 2021 42.683 24,029 The 51alement of financial activities includes all gains and losses recognised in the year. All income and expenditure dEtiv¢ f¥om conlirhuing activities. The statement tsf financial activities also complies with the requirements for an income and expendiluie account nder the Cornpanies Act 2006.

HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD BALANCE SHEET AS AT31 DECEMBER 2021 2021 2020 Notes Current a¥sets Cash at bank and in hand 43,883 25,229 Creditors: amounts falling duè within one year 10 11,2001 17,2001 Nèt current assets 42,683 24,029 Income funds Unrestricted funds 42,683 24,029 42,683 24,029 The company 15 enlilled lo the exemplion Irom the audil r¢qulrsmenl ￿ntaIned in section 477 of the Companies Act 2006, for the year ended 31 December 2021. The directors acknowledga their rèsponsibilitiès for complyirig with the requirèmènts of the Companiès Aot 2006 wilh respect to accounting records and thè preparation of financial st#temÈnts. The fflelnbers have not iequired the company lo obtain an audit of its financial 51atemerbts forlhe year in question in accDrdance with section 476. These financAal statements have been prepared in accordance w¥th the provisions applicable to companies subject to thé small companies regimè. 07/10122 The financial statèmènts WÈ19 approved by the Trustees on ......................... Dr H E Hubbersley Trustee Company re9istration number 07821651

HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 DECEMBER 2021 Aceounting policiès Charity infomiatlon Huntington's Diseaso Youth Or9anisalion Ltd is a private company limited by guarantee inCOTpof8led in England and Wales. The registered oTrffice is 28 Millai5 Close, Bedworth. Watwicktshi￿. CV12 8TH. 1.1 Ac¢ountlng convention The financial stslemenfis h8ve been prepared in a¢cordance with the charivs Igoveming docurnenfl, the Companies A¢1 2006, FRS 102 The Financial Reporting Standard appli¢ablè in thé UK and Republic of Ireland" fFRS 102,) and the Charitses SORP "Accounting and Reporting by Charities: Ststement of R8commanded Practicè 3pplicabl& lo ehariliès prèparing thèir accounts in accordan￿ with the Financial Réporting Standard 8pplicable in the UK and Republic of Ireland IFRS 1021" 18ffective 1 January 20191. The d)arity is a Public Benefit Entity as defined by FRS IQ2. The charity has tak&n advantage of the prc*visions in Ihfj SORP for charities not to prepare a Slalemenl of Cash Fltsws. The financial slalemenls are prepared in sterling, which is the functional currèncy tsf thè charity. Monetary amounts in these financial statements are rounded to the nearest £. The financial statements have bèen preparèd under the historical cost convention. The principal acoounling policies adopted are s&t out below. 1.2 Going ¢on¢grn At the tima of approving thè financial statèmènts. the trustees hav& a reasonable expectation that the charsty has adoquale resourc¢s to continue in oporatioTrnal existence for th¢ foireseeable future. Thus the truslees onlinue lo adopt the going conoem basis of aGwunling in preparing the financial statements. 1.3 Charitablp funds Unrestricted funds a￿ available for use at the discretion of the trustees in furtherance of their Gha¥ilable objèotives. Rèstricted funds are subject to spècific conditions by donors as to how they may be used. The purposes and uses of the restrfcted funds are sel out In the notes lo the financSal slalemenls. 1.4 Incomè IncornE is reGogni5ed when the chatity is legally enliued lo it after any perfomance conditions have been mel, the arnoun15 can be measured reliably, and it is probable that income will be re¢eived. Cash donations are recognised on receipt. Other donations are recognised once the charity has beon riDlified of the donation, unless performance ￿nditionS requirè deferral of the amount. Income tax recoverable in relation to donations received undeT GiftAid or deeds of covenant is recognised al th¢ time of the donation. Legacies are recognised on receipt or otherwise if the charity has been notified of an impending dislribulion, the amount is knDwn, and recèipt is èXP8Cted. If thè amount is not known, the legacy is Irealed as a conlingenl 8ssel.

HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2021 Accounting policies (Continuedl 1.5 Expènditurè Expenditure is recognisèd once there is a legal or constructive obligation to Iransfer economic benefit to a third party. il is probable that a transfer of economic benèffts will bè rèquired in sètlèment, and thé amount of the obltgalion can be measured reliabty. Expenditure 15 classified by aclivily. The costs of each activity are made up of the total of direct costs and shared costs, induding support costs involved in undèrtaking èach activity. Direct costs xttribulable to a single activtty are allocated diieBtly lo that activity. ShaTed cos15 which contribute lo more than one activity and support ¢osts which are not attributable lo a single activity are apporboned be￿een those activities on a basts consi$lenl with the use of resources. Central staff oosts are allocated on the basis r)f lime spent, and depreciation charges are allocated on the portion ol the asset's use. 1.6 Cash and cash equivalents Cash and cash equivalents include cash in hand, dèposits held at call with banks. other short-t8rm liquid investments With original maturities of three months or less. and bank ovèrdrafts. Bank ovèrdrafts are shown within borrowings in current liabilities. Basie financlalassets Basic financial assets. which include debtors and cash and bank balancès, are initiAlly mèasured al transaction price including transaction ¢o&ls and are subsequently carfied al amortised cost using the effeBlive interest method unless the arrangèment ¢onstitule8 a financing Iran5aclion, where the transaction is measured al the presgnt value of the ILrture receipts dI￿ounted at a market rale of interest. Firiancial assets classified as receivable within onè year are nat amortised. Basic fJnanciTal liabfflitie¥ Basic financial liabilities, including erediiors and b8nk loans are in(ti8lly recognised at Iiansaolion price unless the arrangement constitutes a financing Ir8ns8¢1ion. where the debt in51rumenl 15 measured al the Pfesenl value of the future payments discounted at a maiket rate of interest. Financial liabilities classified a5 payable within one year are Dol artiortised. Dèbt instrurnen15 are subsequenlly carried at amorbsed cost, using the effodive intere51 rat¢ method. Trade Gredilors are obligations to pay for goods or seTrqces that have been acquired in the ordinary course of operations from supplièrs. Amounts payablè #re classrfied a5 current liabilities if payment is due within one year or less. If not, they are presented as non-current liabilities. Trade creditors are recognised initially at trans8Ction ptice and subsequently measured at amortised cost using thè eflaotive interèst mèthDd. Derecognffllion of financial liabilities Financial li3bilitleS are dere¢ognised when the charty's contradual obligations expire or are discharged or cancelled. 1.7 Employee bènefits The cost of any unused holiday entillemenl is recognised in the period in which the 6mployee's services are received. Temiination benefits are recognised immediately as an expense when the charity is denonslrabty comrnitted to terminate the employmènt of an employee or lo provide termination benefits. 1.8 Retlrement beneflts Payments to defined conlribuknon reliTemenl benefit schemes are charged as an expense as they fall due.

HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD NOTES TO THE FINANCIAL STATEMENTS (CONTINUED) FOR THE YEAR ENDED 31 DECEMBER 2021 Critical accounting èstimatès and judgèmènts In the application of the charity's accounting policies, the Iruslees are required lo make judgements, estimates and assumptions about thè e8rrying amount of assets and liabilities that are not readily app8rènt from other sources. The eslim81es and associated a55umplions are based on historical experience and other lactors that are considered to be relevant. Actual results may differ from Ih8sÉ estimates. The estimates and underlying assumptions are reviewed on an ongoing basis. Revisions tts a¢eounling estimates are recognised in the period in which the estimate is revised wher@ th@ revision affects only that period, or in the period of the ￿vIsion and fuluie periods where Ihe revision affects both current and fulu periods. Donatlons and lega¢les Unrestricted Unrestricted fund5 funds 2021 2020 Donations and 9ifts 13,458 7,448 Charitablè activiti•s 2021 2020 Grants received 90,606 188,457 Other trading activitie5 Unrestricted Unre$tricled funds funds 2021 2020 Events 6,138

HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD NOTES TO THE FINANCIAL STATEMENTS ICONTINUEDI FOR THE YEAR ENDED 31 DECEMBER 2021 Charitable activities 2021 2020 Mentorship projeot costs Research video costs 3.122 4,*3 8.085 Share of support costs Isee note 71 Sharè of governan￿ costs (see note 71 76.181 1.200 204.655 1.200 85,466 205,855 Support costs Support Governance costs osts 2021 Support costs Govemance osls 2020 staff costs Confer¢nGe costs Website costs IT ccY615 Travel 8nd 8C¢Dmodalion Printing, postage and stationèry Advertising Professional feès Administration expenses Bank charges 47,785 10,966 10,139 1,967 531 47,785 10,966 10,139 1,967 531 87,860 67,912 21,086 2,311 2.298 87,860 67,912 21,086 2,311 2,298 1,673 673 1,￿0 884 103 1,673 673 1,460 1,069 82 19,197 2,825 1,069 82 19,197 2,825 75 103 Independent examination fee5 1,200 1.200 1,200 1.200 76,181 1.200 77.381 204,655 1.200 205,855 Analysèd between Charitable activities 76,181 1,2CKI 77,381 204,655 1,200 205,855 Trustees Ntsne of the tmste¢s lor any persons connècted with them) received any remuneration or benefits from the charity during the year.

HUNTINGTON'S DISEASE YOUTH ORGANISATION LTD NOTES TO THE FINANCIAL STATEMENTS {CONTINUED> FOR THE YEAR ENDED 31 DECEMBER 2021 Employees The average monthly number of employees during the year was.. 2021 Number 2020 Number Employment Costs 2021 2020 Wages and salaries Other pension cosls 47,223 562 77.171 10,689 47,785 e7.860 ThèrÉ ware no employees whose annual remuneration was more than £60,000. 10 Creditors.. amounts falllng duè within on• year 2021 2020 Acertjals and defetred income 1,200 1,200 11 Relatgd party transactions There were no disclosable related party Iran5action5 during the year12020- none). 10