# MDS UK PATIENT SUPPORT GROUP

## Details

- **Country:** England &amp; Wales
- **Charity number:** 1145214
- **Other names:** MDS Support UK
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Dec. 22, 2011
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&amp;p_p_lifecycle=0&amp;p_p_state=maximized&amp;p_p_mode=view&amp;_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1145214


## Contact

- **Address:** Springboard Business Centre, 24 Ellerbrook Way, Stokesley Business Park, Stokesley
- **Postcode:** TS9 5LZ
- **Phone:** 020 7733 7558
- **Email:** info@mdspatientsupport.org.uk
- **Website:** www.mdspatientsupport.org.uk



## Activities

**Objects:** 1)  TO RELIEVE SICKNESS AND PRESERVE, PROMOTE AND PROTECT HEALTH OF SUFFERERS OF MYELODYSPLASTIC SYNDROME (MDS) IN THE UNITED KINGDOM THROUGH THE PROVISION OF SUPPORT EDUCATION AND PRACTICAL ADVICE.2)  TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC 0001IN THE UNITED KINGDOM IN ALL AREAS IN RELATION TO MDS.3)  TO PROMOTE AND SUPPORT SCIENTIFIC RESEARCH INTO MDS, FOR THE TREATMENT OF MDS AND THE CARE OF SUFFERERS OF MDS, AND THOSE DISPOSED TO THE DEVELOPMENT OF SUFFERING MDS.

**Activities:** Support for those affected by Myelodysplastic Syndrome, (&quot;MDS&quot;), which is a rare blood cancer.  We provide: national &amp; regional meetings with specialist speakers, a website &amp; newsletter, campaigning for access to treatment, a networking service for MDS patients to share experiences &amp; support; cooperate with all UK MDS clinical experts; support clinical trials and research into MDS.




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Children/young People, Elderly/old People, People With Disabilities



## Geography

- Northern Ireland
- Throughout England And Wales





## Trustees

| Name | Role | Appointed |
|---|---|---|
| **Linda Patricia Holder** | Chair | Oct. 1, 2021 |
| Atashia Maria Winnie Gonsalves |  | March 21, 2024 |
| Claudia Richards |  | July 21, 2017 |
| Kes Grant |  | Dec. 6, 2024 |
| Lynda Elizabeth Harris |  | March 6, 2025 |
| Pauline Maeve MacRory |  | April 13, 2024 |
| Russell Cook |  | Jan. 23, 2015 |




