# MDS UK PATIENT SUPPORT GROUP

## Details

- **Country:** England & Wales
- **Charity number:** 1145214
- **Other names:** MDS Support UK
- **Status:** Registered
- **Legal form:** CIO
- **Registered:** Dec. 22, 2011
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1145214


## Contact

- **Address:** Springboard Business Centre, 24 Ellerbrook Way, Stokesley Business Park, Stokesley
- **Postcode:** TS9 5LZ
- **Phone:** 02077337558
- **Email:** info@mdspatientsupport.org.uk
- **Website:** www.mdspatientsupport.org.uk



## Activities

**Objects:** 1)  TO RELIEVE SICKNESS AND PRESERVE, PROMOTE AND PROTECT HEALTH OF SUFFERERS OF MYELODYSPLASTIC SYNDROME (MDS) IN THE UNITED KINGDOM THROUGH THE PROVISION OF SUPPORT EDUCATION AND PRACTICAL ADVICE.2)  TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC 0001IN THE UNITED KINGDOM IN ALL AREAS IN RELATION TO MDS.3)  TO PROMOTE AND SUPPORT SCIENTIFIC RESEARCH INTO MDS, FOR THE TREATMENT OF MDS AND THE CARE OF SUFFERERS OF MDS, AND THOSE DISPOSED TO THE DEVELOPMENT OF SUFFERING MDS.

**Activities:** Support for those affected by Myelodysplastic Syndrome, ("MDS"), which is a rare blood cancer.  We provide: national & regional meetings with specialist speakers, a website & newsletter, campaigning for access to treatment, a networking service for MDS patients to share experiences & support; cooperate with all UK MDS clinical experts; support clinical trials and research into MDS.




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information
- **What:** The Advancement Of Health Or Saving Of Lives
- **Who:** Children/young People, Elderly/old People, People With Disabilities



## Areas of operation

- Northern Ireland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| March 31, 2025 | £254314 | £308068 | — | — |
| March 31, 2024 | £133420 | £226050 | — | — |
| March 31, 2023 | £402047 | £204117 | — | — |
| March 31, 2022 | £420583 | £107100 | — | — |
| March 31, 2021 | £180512 | £155999 | — | — |



## Trustees

- **Linda Patricia Holder** (Chair) — appointed Oct. 1, 2021
- Atashia Maria Winnie Gonsalves — appointed March 21, 2024
- Claudia Richards — appointed July 21, 2017
- Kes Grant — appointed Dec. 6, 2024
- Lynda Elizabeth Harris — appointed March 6, 2025
- Pauline Maeve MacRory — appointed April 13, 2024
- Russell Cook — appointed Jan. 23, 2015