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|England|&|Wa/es|Chan'ty registration|Chan'ty registration|Chan'ty registration|number.|1144406||||
|---|---|---|---|---|---|---|---|---|---|---|
|Scotland|Charity||registration||number.||SC045407||||
|Company|registration|||number:|||07775835||||
|Trustees|(Directors):||||||Helen Carter (Co-Chair)||||
||||||||Joella Melville (Co-Chair)||||
||||||||Dr William Evans|(Resigned|as Chair, November|2022)|
||||||||Dave Roberts||||
||||||||Janice Brooks||||
||||||||Bill Owen||||
||||||||Dr David Holton||||
||||||||Jacqueline
Imrie||||
||||||||Fiona Donne||||
||||||||Thomas Kirkegaard||||
|Chief Executive:|||||||Toni Mathieson||||
|Co-opted|Members:||||||Claire Fyvie||||
||||||||Prof. Frances Platt||||
||||||||Anthony
Mead-Wynne||||
|Bankers:|||||||HSBC||||
||||||||33Town Square,||||
||||||||Basildon, Essex||||
||||||||SS141BA||||
|Investment||Managers:|||||Investec Wealth|& Investment|Limited||
||||||||5 George Square||||
||||||||Glasgow||||
||||||||G2 1DY||||
|Independent||Examiners:|||||James Anderson|&Co|||
||||||||Pentland
Estate||||
||||||||Straiton||||
||||||||Edinburgh||||
||||||||EH20 9QH||||
|Registered||address:|||||Suite 2 Vermont|House|||
||||||||Concord||||
||||||||Washington||||
||||||||Tyne &Wear||||
||||||||NE37 2SQ||||
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||||Unrestricted|Restricted|Endowment|Total||
|---|---|---|---|---|---|---|---|
|||Notes|Funds|Fund|Fund|Funds|2022|
||||6|8|6|6|6|
|Income and endowments|from:|||||||
|Donations
and legacies|||101,425|4,000||105,425|76,315|
|Charitable
activities|||10,991|75,215||86,206|228,718|
|Other trading
activities|||108,370|||108,370|106,893|
|Investments|||6,593|||6,593|4,477|
|Total income|||227,379|79,215||306,594|416,403|
|Expenditure
on:||||||||
|Raising funds|||16,454|||16,454|11,754|
|Charitable
activities||7|254,146|169,772||423,918|326,073|
|Total expenditure|||270,600|169,772||440,372|337,827|
|Net income Iexpenditure|before|||||||
|losses on investments|||(43,221)|(90,557)||(133,778)|78,576|
|Net gains I(losses) on investments|||||(16,400)|(16,400)|(9,157)|
|Net movement
in funds|||(43,221)|(90,557)|(16,400)|(150,178)|69,419|
|Reconciliation
offunds:||||||||
|Total funds brought
forward|||265,692|92,557|218,333|576,582|507,163|
|Total funds carried forward||15|222,471|2,000|201,933|426,404|576,582|
|Balance Sheet||||
|---|---|---|---|
|As at 30April 2023||||
||Notes|2023
F|2022f|
|Fixed Assets||||
|Tangible fixed assets||||
|Investments||201,933|218,333|
|||201,933|218,333|
|Current Assets||||
|Debtors|10|11,613|5,175|
|Bank &cash||227,489|373,147|
|||239,102|378,322|
|Creditors||||
|Amounts
falling due within one year||14,631|20,073|
|Net Current Assets||224,471|358,249|
|Net Assets||426,404|576,582|
|Funds|15|||
|General
fund||210,305|241,360|
|Designated
fund||12,166|24,332|
|Unrestricted
funds||222,471|265,692|
|Endowment
fund||201,993|218,333|
|Restricted
funds||2,000|92,557|
|||426,404|576,582|
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|||2023|2022|
|---|---|---|---|
|Income from donations|&legacies|6|6|
|General fund - unrestn'cted||||
|Conference
income and grants||64,993|23,295|
|Voluntary
donations||36,432|49,020|
|Restricted fund||||
|Voluntary
donations||4,000|4,000|
|||105,425|76,315|
##
|without
any control or infl|uen|ce over the content ofthe|programme
or the selection ofs|peakers.|
|---|---|---|---|---|
||||2023|2022|
|Income from charitable|activities||F|6|
|General fund - unrestricted|||||
|Kickstart|||10,990|3,120|
|Restricted
fund|||||
|Charities
Aid Foundation|||41,472|129,417|
|National
Lottery Community||Fund||9,827|
|Big Lottery Fund|||||
|BBCChildren
in Need|||31,743|20,491|
|Hollie Foundation|||2,000|11,063|
|Pears Foundation||||9,800|
|Orphazyme||||45,000|
||||86,205|228,718|
|Income from other trading||activities|||
|General fund - unrestricted|||||
|Fundraising
events|||108,370|106,893|
|Investment
income|||||
|General fund - unrestricted|||||
|Bank interest|||1,487|49|
|Dividend
income|||5,106|4,428|
||||6,593|4,477|
##
||||||2023|2022|
|---|---|---|---|---|---|---|
|Expenditure
on charitable||||activities|F||
|Helpline
/ family support||/ travel|||137,287|129,640|
|Information
-social media|||&|publications|47,332|38,861|
|Conference costs|||||71,562|2,690|
|Research costs|||||37,785|53,931|
|Central office wages|||||73,113|70,358|
|Upkeep computer|||||977|594|
|Rent &rates|||||12,042|11,086|
|Other administration|costs||||14,503|12,420|
|Insurance
& subscription|||||2,932|2,120|
|Bank charges|||||188|186|
|Executive &management|||meetings||5,135||
|Strategic review meeting|||||15,844|1,110|
|Independent
examiner's||fee|||2,520|1,800|
|Management
&staff|meetings||||2,696|1,277|
||||||423,918|326,073|
|Charged to - General|fund||-|unrestricted|254,146|182,212|
|-Restricted||fund|||169,772|143,861|
|Tangible assets|||||||
||||||Equipment||
||||||F||
|Cost|||||||
|At 30 April 2022 and|2023||||4,158||
|Depreciation|||||||
|At 30 April 2022 and|2023||||4,158||
|Net Book Value|||||||
|At 30 April 2022 and|2023||||||
||||||2023|2022|
|Fixed asset investments|||||6|6|
|Balance brought
forward|||||218,333|227,490|
|(Impairment)
/ Increase||in|value||(16,400)|(9,157)|
|Market value at 30 April||2023|||201,933|218,333|
|Historical cost of investments|||||||
|held at 30 April 2023|||||220,000|220,000|
|Investments
at fair value||comprise:|||||
||||||2023||
|Fixed interest|||||32.32%||
|Securities|||||3475%||
|Property|||||8.69%||
|Alternatives|||||19.68%||
|Cash|||||4 57%||
##
|The total minimum
future lease payments
under non-cancel|lable
operating
leases are a|s follows:|
|---|---|---|
||2023f|2022f|
|Expiry date|||
|Not later than one year|10,800|10,800|
|Later than one and not later than five years|12,600|1,500|
||23,400|12,300|
##
||||Balance||||Gains|/|Balance|
|---|---|---|---|---|---|---|---|---|---|
|2022-2023|||30/4/2022f|Income
F.|Expenditure
F|Transfer
6|(Losses)
6||30/4/2023
6|
|General
fund|||241,360|227,379|270,600|12,166|||210,305|
|Designated
fund|||24,332|||(12,166)|||12,166|
|Total unrestricted|funds||265,692|227,379|270,600||||222,471|
|Endowment
fund|||218,333||||(16,400)||201,933|
|Restricted funds||||||||||
|SBCChildren
in Need||||31,743|31,743|||||
|Charities
Aid Foundation||1|65,490|36,472|101,962|||||
|Charities
Aid Foundation||2|8,975|5,000|13,975|||||
|Stewardship
Fund||||3,000|3,000|||||
|Hollie Foundation||||2,000|2,000|||||
|Lesley Carlton Jones|||2,000|1,000|1,000||||2,000|
|Orphazyme|||16,092||16,092|||||
|Total restricted funds|||92,557|79,215|169,772||||2,000|
|Total funds|||576,582|306,594|440,372||(16,400)||426,404|
||||Balance||||Gains|/|Balance|
|2021-2022|||30/4/2021f|Income
F.|Expenditure
F|Transfer
6|(Losses)
6||30/4/2022
6|
|General
fund|||199,677|186,805|193,966|48,884|||241,360|
|Designated
fund|||73,176|||(48,844)|||24,332|
|Total unrestricted|funds||272,853|186,805|193,966||||265,692|
|Endowment
fund|||227,490||||(9,157)||218,333|
|Restricted funds||||||||||
|Big Lottery Fund|||5,820||5,820|||||
|National Letter Community|||Fund|9,827|9,827|||||
|SBCChildren
in Need||||20,491|20,491|||||
|Charities
Aid Foundation||1||109,417|43,927||||65,490|
|Charities
Aid Foundation||2||10,000|1,025||||8,975|
|Charities
Aid Foundation||3||10,000|10,000|||||
|Pears Foundation||||9,800|9,800|||||
|Stewardship
Fund||||3,000|3,000|||||
|Hollie Foundation||||11,063|11,063|||||
|Lesley Carlton Jones|||1,000|1,000|||||2,000|
|Orphazyme||||45,000|28,908||||16,092|
|Total restricted funds|||6,820|229,598|143,861||||92,557|
|Total funds|||507,163|416,403|337,827||(9,157)||576,582|
##
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|Big Lottery Fund|||Shaping|our future together||||||
|---|---|---|---|---|---|---|---|---|---|
|National
Lottery Community||Fund|Mental
health
&wellbeing|||||||
|BBCChildren
in Need|||Continuation
funding
towards the post|||of Clinical Nurse||Specialist||
|Charities
Aid Foundation|1||Towards|continuation
and development||ofservices||||
|Charities
Aid Foundation|2||Towards|strengthening
organisation||||||
|Charities
Aid Foundation|3||Towards|core salaries||||||
|Pears Foundation|||Covid-19|funding
for salary costs, overheads|||&family support|||
|Stewardship
fund|||Research|||||||
|Hollie Foundation|||Funding|of Family Officer||||||
|Lesley Carlton Jones|||Peter Carlton Jones award|||||||
|Orphazyme|||Towards|the collection
of patient|evidence||to support|submissions|to|
||||regulator|in support of drug efficacy||||||
##
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|||Unrestricted|Restricted|Endowment|Total|
|---|---|---|---|---|---|
|||Funds|Funds|Funds|Funds|
|||6|6|6|6|
|2023||||||
|Fixed asset investments||||201,933|201,933|
|Current|assets|237,102|2,000||239,102|
|Current|liabilities|(14,631)|||(14,631)|
|Net assets at 30 April 2023||222,471|2,000|201,933|426,404|
|||Unrestricted|Restricted|Endowment|Total|
|||Funds|Funds|Funds|Funds|
|||5|6|6|6|
|2022||||||
|Fixed asset investments||||218,333|218,333|
|Current|assets|285,766|92,557||378,323|
|Current|liabilities|(20,074)|||(20,074)|
|Net assets at 30 April 2022||265,692|92,557|218,333|576,582|
##
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|The transactions|in the year and the year end balances are|as follows:||
|---|---|---|---|
|||2023|2022|
|||8|8|
|With INPDA||||
|Wages||4,393|4,113|
|Other costs||7,162|1,263|
|Reimbursement|ofresearch costs received|8,611|7,170|
|Sum due to NPUK (note 10)||2,699|968|
|With INPDR||||
|Wages||11,113|11,073|
|Other costs||3,365|3,622|
|Sum due to NPUK||2,497|449|