Together for Short Lives
and
Financial Statements
For the year ended 31 March 2022
Registered company number: 7783702
Registered charity numbers: 1144022 (England & Wales) SC044139 (Scotland)
1
TOGETHER FOR SHORT LIVES
(A Company Limited by Guarantee)
CONTENTS
| Page | ||||||
|---|---|---|---|---|---|---|
| Reference and Administrative Details | of the Charity, its Trustees and | 1 - 2 | ||||
| Advisers | ||||||
| 3 | ||||||
| Trustees' Report | 4 22 |
|||||
| Independent Auditors' Report | 23 25 |
|||||
| Consolidated | Statement of Financial Activities | 26 | ||||
| Consolidated | Balance Sheet | 27 | ||||
| Company Balance Sheet | 28 | |||||
| Consolidated | Statement of Cash flows | 29 | ||||
| Notes to the Financial Statements | 30 46 |
2
TOGETHER FOR SHORT LIVES
(A Company Limited by Guarantee)
REFERENCE AND ADMINISTRATIVE DETAILS OF THE COMPANY, ITS TRUSTEES AND ADVISERS FOR THE YEAR ENDED 31 MARCH 2022
Trustees
Dr Hilary Cass OBE, Chair Sarah Talbot-Williams, Vice Chair (re-appointed 19 May 2021) Bernie Watson, Treasurer (re-appointed 22 November 2021) Arlene Honeyman Paul Obey Sue Hogg Tracy Tait Toby Porter Jo Laddie Adam Smith Stephanie Nimmo Alaana Linney (resigned 15 May 2021)
Company registered number
7783702
Charity registered numbers
1144022 (England & Wales) SCO44139 (Scotland)
Registered office
Suite 1b, Whitefriars, Lewins Mead, Bristol, BS1 2NT
Chief executive officer
Andy Fletcher
Executive team
Nick Carroll Dr Helena Dunbar Andy Fletcher Myra Johnson Mala Langdon
Independent auditor
Haysmacintyre LLP, 10 Queen Street Place, London, EC4R 1AG
Bankers
NatWest Plc, 32 Corn Street, Bristol, BS99 7UG CCLA, Senator House, 85 Queen Victoria Street, London, EC4V 4ET
1
TOGETHER FOR SHORT LIVES
(A Company Limited by Guarantee)
REFERENCE AND ADMINISTRATIVE DETAILS OF THE COMPANY, ITS TRUSTEES AND ADVISERS FOR THE YEAR ENDED 31 MARCH 2022
Investment managers
Sarasin & Partners LLP, Juxon House, 100 St Paul's Churchyard, London, EC4M 8BU
Solicitors
Veale Wasbrough Vizards, Narrow Quay House, Narrow Quay, Bristol BS1 4QA
2
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
TRUSTEES' REPORT FOR THE YEAR ENDED 31 MARCH 2022
-22.
It has been another extraordinary, exciting and challenging year for us all. The impact of COVID-19 has continued to be felt by the children, young people and families at the centre of our work as well all charities, the pandemic has presented continued uncertainty for Together for Short Lives.
But while it has been a challenging time in many ways, we are very proud of what we have achieved this year. The impact of our family hub has continued to grow, reaching families with support via our helpline, peer support, Voices for Families legal advocacy service and our Butterfly grants for children who have lost a child. We have supported professionals and services to share innovative ways of working, particularly in reaching families and providing care in different ways and advocated for continued sustainability funding through this uncertain period.
Despite the uncertainty, our fundraising performance has been strong. We are delighted to have ership is a unique opportunity to reach more families, particularly those from under-represented groups. We want to build on the potential for increased e and to build greater understanding of what they need. In addition, we have worked with national partners to explore testing a new model of integrated care, bringing together health, social care and co-ordination.
We know the number of children with life-limiting and life-threatening conditions is growing. And that many of them are living with greater medical complexity, putting additional pressure on families, professionals and the wider sector.
We are more determined than ever to shine a light on what these children and families need and ensure that they get the right support. This year we have begun work on a new vision and strategy to meet the challenge head on, to reach more families so they can access palliative care, to improve the quality and consistency of care and ensure it is sustainable for the long term.
As ever, we have been indebted to our amazing supporters, staff and volunteers who have enabled us to deliver so much this year. As a consequence of their generous support and our prudent management of costs, we will end the year in a good financial position and ready to step up to the challenge of growing need and demand.
While there will be challenges ahead, we know that by working collaboratively with our partners, we can meet them and ensure that more children and families receive the support they need, when and where they need it.
Dr Hilary Cass OBE Chair of Trustees
Andy Fletcher Chief Executive
3
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2022
The trustees (who are also directors of the charity for the purposes of the Companies Act) present their annual report together with the audited financial statements of Together for Short Lives (the charity) for the year ended 31 March 2022.
The trustees confirm that the Annual Report and Financial Statements of the charity comply with the current statutory requirements, the requirements of the charity's governing document and the provisions of the Statement of Recommended Practice (SORP) "Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (second addition - effective 1 January 2019)".
Structure, Governance and Management
Objectives of the charity
The objectives of the charity are promoting for the public benefit the support of children and young people with life-limiting conditions such that:
-
children and young people and their families have as fulfilling lives as possible; and
-
children and young people receive the best care at the end of life.
Constitution
Together for Short Lives is a registered charity and was incorporated as a company limited by guarantee on 4th October 2011. The constitution of the charity is set out in the Memorandum and Articles of Association. Trustees are also directors of the charity for the purposes of the Companies Act.
The charity has one wholly owned subsidiary charity: Together for Short Lives (Trading) Ltd (Company number 06434214), a company which is registered in England and Wales and is used for fundraising activities.
Board of Trustees
The charity is governed by its Board of Trustees, which is detailed on page 1. All trustees give of their time freely and no trustee remuneration was paid in the year. Details of trustee expenses and related party transactions are disclosed in note 7 and note 20 to the accounts.
Trustees may hold office for three years. At the end of their first term, they can be re-elected for one further three-year term. Any Trustee who has served two terms of office is not eligible for reappointment as a Trustee unless there are exceptional reasons. In July 2020, because of the stability required in the pandemic, the trustees voted to waive the two-term restriction to re-elect Hilary Cass for a shorter third term of two years. The third term will end on 31 March 2023. We will begin the open process to recruit a new Chair in the summer of 2022 to enable an effective handover and transition.
The charity aims to appoint trustees across a wide range of backgrounds, skills, and regions.
4
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2022
Induction and training of trustees
On appointment, new trustees receive an induction pack containing key information about the charity and its governance structure. To support their induction, new trustees are matched with an existing In addition, new trustees are encouraged to meet with other existing eet with the Executive Team and other staff.
Ongoing training for trustees is given as required; in general, all trustees are encouraged to maintain or enhance their knowledge, especially in areas in which they are not expert. There is a trustee development session at each full Board meeting exploring issues such as current trends in fundraising
Sub Committees of the Board
The trustees perform their governance role via the full Board which meets at least four times a year. During the year there have been three committees which are formally constituted as committees of the Board of Trustees and the Board approves the Terms of Reference.
-
Finance, Governance and Fundraising Committee
-
Appointments Committee
-
Clinical Strategy and Quality Assurance Committee
The recorded actions and minutes of committee meetings are submitted to the Board of Trustees at its next meeting. There is a written scheme of delegation that sets out which decisions are made by the Board, committees, or staff and this is reviewed regularly. The committees therefore have certain delegated authority within their areas of responsibility, and these are subsequently reported to the Board for information. However, in other areas, they are only able to make recommendations to the Board.
Committees are able to co-opt to their membership other individuals who may bring particular expertise to that committee.
The Clinical Strategy and Quality Assurance Committee was established in March 2022, following a oversees the assurance and governance arrangements related to activities involving direct service provision. The committee will make recommendations to the Board of the quality of provision of these services to children, young people and families. In doing so, the Committee will ensure that any risks associated with service provision are managed and mitigated appropriately. The focus of the committee is on strategy, performance and assurance rather than operational matters.
Advisory Council
The Advisory Council was established in 2019 to ensure that our work was better informed by those the UK. Young people, parents of children with life-limiting conditions and representatives from across the affecting children's palliative care to inform and advise the work of Together for Short Lives. It is an integral part of the strategic and operational planning for the charity.
5
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2022
Remuneration for key management staff
The charity aims to ensure that appropriate remuneration packages are set to attract, retain and motivate an appropriate calibre of employees.
Salary benchmarking is undertaken to compare roles with similar positions within the charity and not for profit sector.
Decisions on setting pay levels are made as follows:
-
For staff apart from Senior Managers and the Chief Executive, by Senior Managers in conjunction with the Director of Finance & Resources
-
For Senior Managers other than Chief Executive, by the Chief Executive
-
For the Chief Executive, by the Board of Trustees.
The Board has final approval of all pay rises across the organisation.
The numbers of higher paid employees are:
| In the band £60,001 | - £70,000 | 3 | 3 |
|---|---|---|---|
| In the band £70,001 | - £80,000 | 1 | 1 |
| In the band £80,001 | - £90,000 | 1 | 1 |
| ---------------- | ---------------- | ||
| 5 | 5 | ||
| ======== | ======= |
Safeguarding
Together for Short Lives has a duty to keep children and vulnerable groups safe and must fulfil its legal and regulatory responsibilities in relation to protecting children, young people and vulnerable adults at risk. In addition, beneficiaries, staff, volunteers, and everyone in contact with the organisation should feel that they are in a safe, supportive and inclusive environment.
Following a benchmarking exercise conducted in May 2021 using the Children England Guidance uarding for Trustees several changes were made: -
-
New designated safeguarding lead role in the organisation with clinical background Updated safeguarding policy
-
Level 1 safeguarding training delivered to all staff, volunteers, trustees Level 1 safeguarding training pre-recording and quiz for induction of all new staff Establishment of a new subcommittee of the Board of Trustees that oversees assurance and
-
governance arrangements involving direct service provision and all matters relating to child and adult safeguarding.
We also have a whistle blowing procedure, so anyone can confidentially raise any concerns they have. Safeguarding is a standing agenda item at every Executive Team meeting.
We carry out DBS record checks for all new staff and volunteers and an enhanced check for those working on our helpline service with families. The designated lead for safeguarding and the helpline staff have additional enhanced safeguarding training.
6
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2022
As our service is remote rather than face to face, we have specific procedures that relate to a helpline service. commendation for our safeguarding processes and procedures, in particular our new reflective process and proforma to regularly assess how helpline advisors handle their contacts.
Safeguarding concerns are logged securely on our Case Manager System. We had four safeguarding concerns raised over the year, two of which were thread alerts from our Facebook group. In all cases procedures were followed and support offered, there was no need for further escalation outside of the organisation.
Equity, Diversity and Inclusion
Like many charities, we know we have work to do before we are a fully inclusive organisation where everybody can be themselves and feel that they belong.
We started this work by joining nclusion (ENEI) and using their tools to benchmark ourselves against others and also develop action plans to improve. We have continued to work with our staff EDI group, designed to take forward the action plan. This group also has a key role in sharing ideas and good practice. We have implemented changes to our recruitment processes, showing all salaries and removing requirements for a degree unless it is a necessity and removing all names, schools and universities from applications.
We have also made changes to our annual leave policy to give all staff flexibility in how they take public holidays, removing the necessity to take time at Christmas and Easter but instead have more choice in when they take time off.
Feedback from our annual staff survey suggests we are making progress in being more inclusive. In his figure had risen to 83%. While we are encouraged by this progress, we will continue to develop and roll out our plans to be a more inclusive organisation.
As well as making internal change, we know that we must develop more inclusive services and supp We know from evidence that there is a higher prevalence of children with life-limiting and lifethreatening conditions among Black, Asian and Minority Ethnic families, particularly those from Pakistani and South Asian communities. This year we undertook a review of literature around challenges and what potentially can be done to overcome them. The report will help to inform our
Membership
The charity operates a membership scheme for organisations and professionals working in the 655 associate members who have signed up to receive information from us. We launched a new online discussion forum for professionals, which has grown steadily over the year and now has 275 members. There have been discussions on a range of topics, for example, the use of controlled drugs,
7
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2022
Public benefit
The objects of the organisation are for children and young people with life-limiting conditions to have as fulfilling lives as possible and the best care at the end of life. The Trustees confirm that they have referred to the guidance contained in the general guidance on public benefit nning our strategic priorities
and activities for the year.
Whilst there is greater elaboration below, our strategic priorities to fulfil the public benefit are outlined as follows.
-
A strong and sustainable palliative care sector.
-
Supporting and empowering children, young people and families who require palliative care
-
services.
-
Striving for joined up policy, services, care and support for children and families.
The way in which we have achieved the public benefit Activities, Achievements and Performance section below.
Our Strategy
Our vision
For children and young people with life-limiting conditions to have as fulfilling lives as possible, and the best care at the end of life.
Underpinning this vision is a commitment to the rights of all children and young people to a fulfilling life, regardless of their health, ethnicity, social or economic circumstances.
Our mission
Our mission is to secure the best quality of life and best end of life care for children who will have short lives.
Our values
Our values enable us to deliver our strategy:
We listen to families and our work is shaped by what they tell us
Families are at the heart of everything we do. We listen to children, young people and families and our work is shaped by their experiences and needs.
We are compassionate and responsive
We are compassionate and caring about everything we do. We are open, honest and responsive to the needs of children, young people and families, and everyone we work with.
8
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2022
We will collaborate and bring people together
ve care sector together so that we can achieve more for children, young people and families. We will work in partnership, collaborate, share expertise and bring a
We are innovative, creative and will act as a catalyst for change
We are innovative, creative and unafraid to challenge the status quo. We will always go the extra mile and explore new ways of working to deliver the very best for children, young people and families.
We are passionate and determined
We are passionate, determined, and ambitious about helping children, young people and families to live as full lives as possible. We will not stop until every family gets the care, support and services that they need.
Our strategic priorities
There are 99,000+ children and young people living in the UK with health conditions that are life-limiting or life-threatening and the number is rising.
These children and their families rely on a network of many excellent and invaluable services which make up childr -makers, therapists, psychologists, sibling workers, bereavement counsellors and many, many more. Our five-year strategy aims to provide a voice for these children and their families and to enable much needed support to the sector.
99,000+
There are serious risks to the long-term sustainab number of babies, children and young people with life-limiting and life-threatening conditions is growing, and they are living longer with complex conditions. Policy and funding are not keeping pace with their needs, and many individuals and vital charities struggle to develop new and sustainable fundraising income. As a result, services are overstretched, and family support is inadequate.
Supported and empowered children, young people and families
The support children and families receive is patchy and variable. Choice remains a laudable public policy aim but is severely limited by the availability of funded services. Families face a postcode lottery of support, and many of them struggle to get access to the services and support they need. This can leave families feeling frustrated, isolated and alone while facing the challenge of providing 24/7 care for their child.
Joined up policy, services, care and support for children and families
Services are not adequately or consistently joined up around the family and their needs. Policymakers, funders and commissioners too often operate independently leading to inefficient or ineffective funding arrangements. Families and professionals continue to be frustrated by the lack of co-ordination across health and wider care services, which significantly increases the burden on those seeking care and those providing care.
9
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2022
palliative care
There is a lowarenas. Too often knowledge of hospice and palliative care is focused on end of life, as opposed to also achieving a quality of life. This creates barriers to good policy making, efficient and effective care and support. There is a cultural and societal fear of death and discomfort with talking about it, ion and loneliness.
Activities, Achievements and Performance for the public benefit
We have detailed below under each of our strategic headings our activities and achievements for the year.
99,000+
In 2021/22 we campaigned for seriously ill children and young people and their families to have wider access to the lifeline palliative care and support they need:
As a result of our joint campaigning with Marie Curie, Hospice UK, Sue Ryder and Society, the government decided to introduce a new legal duty for local NHS organisations in England (integrated care boards, or ICBs) to plan and fund the palliative care they consider appropriate for meeting the needs of local people. This includes children and young people.
Influencing Group (HPIG), ministers placed another legal duty on ICBs to set out the steps they will take to address the needs of children and young people under the age of 25 in their forward plans.
We have analysed freedom of information request returns from NHS clinical commissioning groups in care networks. This has helped met around the clock and how services are planned, funded and delivered. We plan to publish this and campaign for better a
and sustainably. -27), we published our Pushed to The Limits hospices in England is not enough to make sure all seriously ill children and their families can access the short breaks they desperately parliamentary questions to press the government for sustainable short breaks funding. As a result of £30 million for additional short breaks.
organisations to their local NHS integrated care systems (ICS) to help grant in shared ICS areas, guiding and supporting them in conducting the negotiations. When these were complete,
10
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2022
we shared the outcomes with NHSE and pressed officials to implement a smooth transition from the previous distribution model to the new one.
In Wales, we took part in online meetings with new members of the Senedd following the elections in . This is the first time additional will receive around 21% of their care costs.
The process to write the care services. We have been part of working groups set up by officials and have been able to involve our members in shaping and influencing it. We have also successfully bid for an NHSE tender to
-19 vaccinations for health and care community. The government later decided not to implement the mandate and has asked parliament to revoke the regulations.
Supported and empowered children, young people and families
We have continued to grow our Family Support core offer to reach more families living with a seriously ill child, investing in our helpline and resources for families. We responded to 601 queries from families and those supporting them via our helpline and information service (286), our Livechat facility (169) and email (146). This year we have seen a small increase in the number of families requiring more enhanced support as a result of the initial call. These callers have received follow up support to access appropriate services in their locality, funding and have been referred onto our legal advice and support.
This year we invested into the Helpline Partnership accreditation process and were delighted to be awarded The Helplines Standard - a nationally recognised quality standard which defines and accredits best practice in helpline work.
advice and support service and 58 new cases were opened throughout the year. With 42 cases closed in this period, at year end 67 were being actively supported. This service, delivered in partnership with LawWorks, provides a volunteer legal professional to support families to advocate for their needs when they are faced with difficult issues such as inadequate care packages or inappropriate housing. In the latter quarter of the year we have also piloted a monthly online legal clinic with 6 new cases picked up via this route. Families attending clinic often had questions relating to Powers of Attorney and Guardianship. We have worked with the Office of the Public Guardian to respond to some of most frequently asked questions to compile information that will be disseminated early this year.
We rolled out our Butterfly Fund nationally to all our member organisations so that they could make referrals on behalf of families. We also launched a webpage through which other professionals and families themselves could submit enquiries. This Fund provides a £300 grant to families whose child has died. This year we have provided 282 grants to families a 63% increase on the previous year.
We continue to provide financial support through our existing informal and formal partnerships which include Turn2us (16 applicati handful of member services for whom we are able to make family referrals to e.g. Reubens Retreat.
11
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2022
We also saw a growth in membership of our private Together for Short Lives Family Facebook group, welcomed one new parent moderator this year.
We know that timely, accurate information in a variety of formats is highly valued by families, and we continue to review and update our family information offer to families both online and in print. In addition to the new information to support families make informed decisions on applying for Power of Attorney, we have worked with a small group of parents to review the format and language used on the family pages of our website. This year we received Patient Information Forum (PIF) TICK the UK-wide Quality Mark for Health Information. Through this process we can assure families that information we produce has been professional and robustly reviewed and developed.
Throughout the year 75 individual family members joined one of 10 online workshops on a variety of themes. From supporting siblings, transition to adult services to accessing grants and legal support, these workshops received positive feedback and will continue this year.
Alongside the Family Hub we support family members who volunteer their time to influence campaigns members through the year and are given monthly opportunities to engage with the sector, sharing their alliative care.
Joined up policy, services, care and support for children and families
We hold a variety of meetings and forums for professionals, including those working in practice education roles (97 members), Family Support roles (52 members) and one for Leaders of Care within jointly with Association for Paediatric Palliative Medicine. In addition to these member Forums, we also hold meetings for the Chai
to date with relevant policy and practice issues that might affect services in their region.
Having moved many of these forums to virtual platforms during Covid, we have been able to extend in NHS settings. We held five topic-focussed webinars last year, focussing on the safe use of medicines, reaching families from ethnic minority backgrounds, transition to adult services and two research-focussed sessions. In total these webinars were attended by 368 delegates.
We launched a new online discussion forum for professionals, which has grown steadily over the year and now has 275 members. There have been discussions on a range of topics, for example, the use new posts.
During 2021-22 we produced an important resource for professionals on the Safe use of Medicines, to follow best practice in the administration, storage and disposal of medications. This is particularly important for senior nurses who are increasingly moving into roles where they prescribe medicines for children.
This year also saw the completion of our Improving Transition for Young People programme, which funded ten projects to pilot new approaches to supporting young adults into adult services. We produced an evaluation report from this Programme which captured the learning and also
12
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2022
commissioned an economic evaluation to demonstrate the potential benefits of adopting these approaches in terms of potential cost savings and outcomes for young adults and their families.
We have continued to influence the governm Disability (SEND) system. Keegan to work together to set out a vision for joined up plans, assessments and services for disabled children in England across education, health and social care. This was during an online meeting co-ordinated by the Council for Disabled Children. We have also reacted to the Department We welcomed choose a school from a list of appropriate placements could potentially restrict their choice. We asked for assurances that the proposal for compulsory mediation where parents and local authorities disagree does not restrict access to the SEND tribunal and make it harder for parents to get the support they need.
We have continued to collaborate closely with a range of organisations to improve the co-ordination of support for children and young people with life-limiting illness. In addition to being steering group members of artnership, we have continued to be active members of:
the Ambitions Partnership for Palliative and End of Life Care
-
the NHSE/I Children and Young People Stakeholder Council
-
the National Influencing Group.
Changing hearts and minds: Greater understanding and support for
During the year we raised awareness of the needs of children and families and the services they rely on, sharing stories on our website and through proactive media and social media campaigns. Although lockdown was beginning to ease, many families caring for vulnerable children continued to shield, so we found creative ways through our social media approach, to reach out to families encouraging them to call our helpline, access legal support and join our online support webinars. More recently our awareness raising and campaigning has focused on the cost-of-living crisis and its impact on the families we are here for, including working with the Daily Express on a campaign to end the disability bills crisis.
We have campaigned to ensure families can access to the right services, where and when they need them and invested in marketing and awareness campaigns to reach the growing numbers of children with life-limiting conditions and their families. We have stepped up our story telling, using powerful video content to connect with families. In April last year, we launched a powerful new film, funded on and how they felt lost and alone until they got in touch with Together for Short Lives.
We have engaged with high profile media stories about children with life-limiting conditions, like Ayazlia Cain, daughter to footballer Ashley Cain, who sadly died last year. We reached out to
13
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2022
others like them. As a result, we had over 90 pieces of national coverage that included our comment and helpline contact number. Our media reach has been the highest ever this year, with 1400 items of coverage and a reach of 9 billion. The high numbers reflect some high-profile events and campaigns, including our fundraising Ball in partnership with M&S Food and launching a three-year partnership with Morrisons.
-profile coverage, supporting our awareness-raising and fundraising. On Christmas Eve, our Patron Mason Mount, in partnership with Combat Gaming, gave four special families some memories to last a lifetime, when he challenged some children to join him for a livestream online gaming experience. Our Patrons and celebrity friends have supported many awareness and fundraising campaigns including our Ball, and Holly Willoughby, Mason Mount and Alesha Dixon represented our charity at the BGC Charity Day in September. In September Mason Mount created more precious memories when we took him to visit -Bowen for the first time, who made two engaging firms for our charity in support of our partnership with Morrisons.
Alongside our own awareness campaigning we have engaged with sector wide campaigns to increase our reach to families including through, Baby Loss Awareness Week, Dying Matters Week, or specific conditions like Batten, Trisomy and Rett Disease.
198,143,947 across media.
We also released important new dat fall this year. Our radio campaign during the week including 16 interviews, played across 26 different radio stations, with an impressive audience of 3.65M. In total we delivered 352 pieces of press coverage, reaching an audience of 49 million during the week. On Twitter the Children Hospice Week hashtag was used in 3,637 tweets, by 2,009 contributors. These tweets were delivered to timelines on 21,478,284 occasions, reaching a total of 11,918,522 users. On Instagram our Patron Holly the first time, with a video made by Mason Mount being viewed 168,000 times, with 37,000 likes during the week.
Our online support hub for families and professionals has grown this year. During the year website visits were around 143,000, with 57,000 visits to our Family Support Hub, nearly 17,000 visits to our online services directory and over 25,000 downloads of our resources and publications. We have grown supporter awareness and engagement online, with online donations rising from £23K last year to over £30K this year.
We have invested in improving family user journeys via the website and making our online information more accessible and moving away from traditional PDF documents to accessible online content. We have improved our health information for families and professional and successfully what they are reading, watching or listening to is evidence-based, understandable, jargon-free, up-todate and produced to the best possible standard.
14
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2022
Financial review
Overall Financial Performance
The Statement of Financial Activities shows Designated Funds, Unrestricted Funds, Restricted Funds (excluding the National Fundraising Scheme (NFS)) and NFS. The Designated Fund is shown separately from the Unrestricted Fund as it is ring fenced for specific activities (see below). The National Fundraising Scheme is shown as a separate restricted fund as its activities are concerned
The net deficit for all funds for the year was £213k (2021: net deficit of £27k). As we reported last year, income was lower than normal due to Covid and the associated restrictions on fundraising.
Funds for our core work
Funds relating to our core work, as opposed to the NFS, are shown in the 2 columns in the Statement of Financial Acti
Income
We achieved gross income of £1,881k (2021: £1,452k).
Designated Fund
The money from the large legacy received in 2019 and 2020 has been ringfenced by the trustees in a Designated Fund. The specific activities on which this fund can be spent must be approved by the trustees and if an ongoing activity, must be self-sustaining within 2 years.
Phase one of our planned spend was focussed on building capacity. While we have spent money on ongoing direct services, there has been a focus on building a sustainable base from which to support children and their families and professionals in the sector in the long term. This includes implementing our five year fundraising strategy as well developing digital tools to extend our reach.
Activities this year have included investment in:
-
Direct support to families via the Family hub
-
Brand definition and development
-
Major Giving development
-
Data systems and digital development
Expenditure
Expenditure on our core work for the year was £2,227 (2021: £1,669k), considerably higher than the prior year. Of this, £1,392k was spent on our charitable activities (2021: £1,309k) with the remaining £835k (2020: £361k) spent on raising funds.
National Fundraising Scheme (NFS)
This scheme raises income and awareness through national corporate partnerships, and the net income rai
be able to access national partnerships.
15
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2022
The scheme raised £1,272k (2021 £1,757k) during the year from its various fundraising campaigns After a deduction for direct costs, and a contribution to our core costs, £707k (2020: £1,151k) was distributed across 39
Grant Making Policy
Having launched a pilot programme in 2019, has been rolled out nationally this year. The fund provides a £300 grant to families whose child has died. Funding is provided by a number of trusts and foundations, individuals and companies.
We anticipate growing our grant making in 2022-23, with the development of a new projects to reach more children and families with integrated care and support.
Fundraising Strategy
This was year two of our five-year fundraising strategy a sustainable growth plan that looks to deliver increased income to enable us to fund our projects and services in line with the growing prevalence and unmet need.
At the heart of our strategy is the ambition to become a great fundraising organisation a whole organisation approach to raising transformational amounts of income for our mission.
We developed a new fundraising ambition and an emotional and uncompromising proposition; an this to our everyday work and seen the success in how it has inspired our team, donors, and prospects; and led to some notable wins.
We have made common sense decisions to invest in personal development and new talent, as well as building an ambitious plan for philanthropy including a giving circle, and a development board, and set aside funds to deal with our digital deficit.
Fundraising performance
We continued to feel the impact of COVID on our income in the early part of the year and reforecast accordingly, however by the second half of the year things began to improve and we saw an uplift in our core income, resulting in a slightly higher than forecast close of £1,388k vs £1,367k.
The underlying performance of our core fundraising channels remains strong, and we have a professional and committed team. We have invested in training and development this year and brought in new faces, increasing the diversity, experience, and fresh thinking.
2021-22 was something of a period of re-setting for our Trust and Foundations team with slightly lower income than the previous year, where we benefited from funders looking to support our COVID-19 response. We have a new Head of Trusts in role who has established a robust strategy and prospect pipeline and our income looks very strong for 2022-23.
In philanthropy we had a strong year thanks to the generosity of our donors and patrons and the agility of the team, managing to deliver our Gala Ball in a COVID safe environment and raise more funds and
16
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2022
coverage than ever before.
Corporate partnerships continued to be influenced heavily by the impact of COVID-19 on the retail sector, and our performance was down on the previous year; although this was planned as the previous year had been buoyed by a one-off gift from M&S. Our long-term partners continued to deliver significant amounts of income across this period, and we are very grateful for their generosity. We charity of the year for the next three years a partnership worth over £10m.
The charity undertakes fundraising activity with its supporters through corporate partnerships, challenge events, a gala ball, payroll giving, and other activities in line with the Fundraising Code of Practice set by Fundraising Regulator. Our privacy policy, (which is available on our website), states that:
usually collect your name, contact details, and whether you would like to be contacted, and how we would do so.
We use this information to thank you for supporting us and to provide you with further communications about our activities according to your preferences and interests. We also use it to fulfil our legal responsibilities for financial and Gift Aid reporting.
We will keep your data only fo
We work with partner organisations so that supporters can take part in professionally organised personal details for any other reason.
The charity is registered with the Fundraising Regulator and adheres to the standards of the Fundraising Code of Practice. No complaints about our fundraising activity were received in the year.
Reserves policy
The trustees of the charity review the reserves policy each year. The policy states that the charity will hold Unrestricted Funds, excluding Designated Funds and those which are tied up in functional fixed assets, sufficient to cover:
-
A potential shortfall in income by the amounts that hav
-
Additional costs, if specifically identified risks on the risk register with a high cost attached to them, do occur.
The policy states that the target reserves should be within 15% of the amount calculated through this method. This would enable the charity to continue its activities during a period of reduced income due to changes in fundraising success or other factors. It should also ensure that the reserves, as calculated above, are sufficient to cover the expected liabilities if the charity were to be wound up. Following this calculation for 2021-22, the policy states that the target reserves for the charity should be between £933k and £1,262k (2021: £975k-£1,319k). At 31st March 2022 general reserves (unrestricted reserves excluding designated reserves) totaled £1,520kk (2021: £1,536k), which is
17
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2022
above the target range.
Although the level of reserves is higher than the stated policy, the trustees consider the balance on the unrestricted reserves to be prudent during economically volatile times especially since the recession due in the latter part of 2022, there is a high probability that fundraising income will drop. It is also likely that many vulnerable families which the charity supports will require additional support over the next two years. During this forthcoming period of financial turbulence and recurring costs increasing outside the control of the organization, the Trustees consider it sensible to hold a slightly higher level of reserves. They will maintain a sharp focus on the reserves however, and should it become prudent to draw down the amount held, will do so.
COVID-19 and Going Concern
The financial effect of COVID-19 has been mitigated as far as possible by emergency funding and prudent financial management, so that the net effect on the results of the charity are not significant in the years to come. The trustees are confident that the charity continues to be a going concern, particularly with the additional income secured under both the Morrisons and Kentown partnerships.
There were no significant events in year that had a financial impact on the charity.
Investment Policy and Performance
For working capital, in order to ensure adequate cash flow, the equivalent of at least three sits.
Any additional funds held on a temporary basis, such as money raised for members through the National Fundraising Scheme, will be invested in cash deposits over an appropriate period so as to maximise return while ensuring the money is available when needed.
-
Funds held in excess of the above will be invested over the longer term with the overall aim to achieve long term capital growth. The aim is to ensure that the reserves maintain their real capital value in the long term and should at least exceed inflation (as measured by RPI). The investment policy also includes an ethical policy, which states that the trustees choose to invest only in funds that have ethical investment principles and policies, and that are managed by asset managers who have publi
-
the investments within the portfolio at least annually.
-
The funds (including Designated Funds) available for long term investment are placed with Sarasin & Partners, in their Endowments Fund for Charities. The fund is measured against a bespoke benchmark and performance against this benchmark is monitored by the Finance & Governance Committee twice per year. The trustees c last year to have been acceptable .
The charity measures its performance by monitoring various key performance indicators (KPIs) which are reported to the board and sub-committees on a quarterly basis. These reports are also reviewed by cross-departmental groups that focus on each of the four strategic aims. Numerical targets are used where appropriate and performance monitored against these.
18
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2022
During the year we have begun work to review our core Purpose and Theory of Change, working with the external agency Trust Impact. This work is crucial to our plans to better evidence and measure the difference we make and improve how we prioritise our work.
Risk management
The risk register is reviewed at every Executive Team meeting, Finance, Governance and Fundraising Committee meeting and Board of T charity is exposed together with the actions and systems in place to mitigate or reduce the exposure to those risks.
The principal risks and uncertainties at the time of writing, and plans and strategies for managing them are:
-
Reputational risk from adverse publicity: Risk assessments are in place for all our key programmes and events which may have reputational impact. We have a robust and regularly reviewed Crisis Management policy and plan in place. .We keep our Patrons and Ambassadors Strategy aunder regular review.
-
Loss of key staff; Together for Short Lives strives to be a flexible and responsive employer, and recent staff survey bears this out. There has been a renewed focus in training and development in the last year, and we endeavour to provide development opportunities in house. As a relatively small organisation this is not always possible, and we celebrate the career progression of leavers while ensuring that we have sufficient succession planning in place.
-
Failure to deliver sufficient core income: We have a robust five-year fundraising strategy in place with net income models and a test and learn approach before rollout. Progress is reviewed quarterly at Finance, Fundraising and Governance Committee (FF&G) and the Executive Team.
Plans for the future
The forthcoming year promises to be an exciting one for Together for Short Lives as we deliver significant impactful programmes and develop a new strategy to improve access to quality palliative care for all children and families who need it.
Supporting families
-
We will continue to develop and extend our Family Hub Support Core Offer to include extension of our Helpline hours and increased legal support. We will aim to reach more families, particularly those from marginalised groups where there is higher prevalence of children and young people with life-limiting conditions. We will develop new resources and information for parents and develop further peer support opportunities. As we look ahead to inflation potentially reaching 11% and the ongoing cost of living crisis, we will continue to advocate for families of seriously ill children to get specific support with energy bills.
-
We will continue work to improve reach and support for families from marginalised communities. We will build on what we have learned from our review this year to identify ways to break down on barriers to access. We will also develop community outreach projects in partnership with Morrisons to ensure more children and families get the support they need.
19
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2022
Supporting professionals and services
-
We will hold a two day conference
-
professionals and services from across the sector to explore how we can meet the challenge of growing demand with high quality care for all who need it.
-
We will extend our programme of professional engagement and build awareness of good practice and find new ways to reach non-specialist professionals.
-
We will publish the evaluation of our Improving Transitions for Young People programme. We will cascade learning and support the rollout of successful innovations through a programme of education, consultancy and lobbying, both at a local and national level.
-
We will update key professional resources , including our Perinatal Pathway and our guide people with life-limiting conditions.
-
We will continue explore how we can increase investment in new models of integrated care and support. We will collaborate with key national and local partners to pilot an integrated model, bringing together clinical, social care and co-ordination support.
-
We will continue to support work to , investing in our public communications and collaborating with partners to improve how
Campaigning for change
-
We will launch our report into the availability of 24/7 care and support at the end of life, following our work to map the extent to which local areas are meeting the NICE guidelines. The secure sufficient funding and develop a workforce to deliver care.
-
We will work with the All-Party Parliamentary Group (APPG) for Children Who Need Palliative Care at Westminster to ensure parliamentarians are aware of the barriers that prevent seriously ill children and their families from accessing palliative care. With the APPG, liative care and continue our campaign for
-
sustainable funding for short breaks.
-
We will advocate for continued fair funding and improved sustainability palliative care, in all four nations including meeting the £300 million fund gap and securing
Future vision and strategy
20
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2022
With our current strategy ending in 2023, we will spend the coming year defining a new strategy. This will include setting a longer term vision and what change we want to see over the next decade, along with a rolling 2-3 operational plan which can adapt and change depending on the external environment. sustainability of support. We will engage with families and those with lived experience and re to shape these priorities.
To ensure we maximise our impact, we will also review our Theory of Change to better define the difference we are trying to make and how we create change. Finally, to support the delivery of the strategy we will review our organisational values.
Acknowledgements
Delivering through partnership
We place great value on a collaborative approach, particularly with partners representing palliative and end of life care and disabled children. These include Hospice UK, the Council for Disabled Children, the Association of Paediatric Palliative Medicine, the European Association for Palliative Care, and the International Children's Palliative Care Network. We also seek to work collaboratively with UK and country governments and departments to ensure that the voice of children, young people and their families is heard and the view of our members better represented.
Role of Volunteers
Together for Short Lives benefits from the time and commitment given by volunteers who have helped with administrative duties for the charity on a regular basis, as well as helping on an ad hoc basis. The charity is very grateful to all our volunteers for their time, support and flexibility. and hopes to create further opportunities for volunteer involvement in the future.
Statement of trustees' responsibilities
The trustees (who are also directors of Together for Short Lives for the purposes of company law) are responsible for preparing the Trustees' Report and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).
Company and charity law require the trustees to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the charitable company and of the incoming resources and application of resources, including the income and expenditure, of the charitable company for that period. In preparing these financial statements, the trustees are required to:
-
select suitable accounting policies and then apply them consistently.
-
observe the methods and principles in the Charities SORP.
-
make judgments and estimates that are reasonable and prudent.
-
state whether applicable UK accounting standards have been followed, subject to any material departures disclosed and explained in the financial statements; and
21
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2022
- prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charitable company will continue in operation.
The trustees are responsible for keeping adequate accounting records that disclose with reasonable accuracy at any time the financial position of the charitable company and enable them to ensure that the financial statements comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the charitable company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.
The trustees are responsible for the maintenance and integrity of the corporate and financial the preparation and dissemination of financial statements may differ from legislation in other jurisdictions.
Provision of information to auditors
Each of the persons who are trustees at the time when this Trustees' Report is approved has confirmed that:
-
so far as that trustee is aware, there is no relevant audit information of which the charitable company's auditors are unaware, and
-
that the trustee has taken all the steps that ought to have been taken as a trustee in order to be aware of any information needed by the charitable company's auditors in connection with preparing their report and to establish that the charitable company's auditors are aware of that information.
Small Company Provisions
The directors have prepared this report in accordance with the special provisions of Statutory Instrument 2008/409 under the Companies Act 2006 relating to small companies.
This report was approved by the trustees on and signed on their behalf by:
Dr Hilary Cass OBE. Chair Date
22
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
INDEPENDENT AUDITORS' REPORT TO THE MEMBERS OF TOGETHER FOR SHORT LIVES
Opinion
We have audited the financial statements of Together for Short Lives for the year ended 31 March 2022 which comprise the Consolidated Statement of Financial Activity, the Consolidated and Charity Balance Sheets, the Consolidated Statement of Cash Flows and the related notes including a summary of significant accounting policies. The financial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards including Financial Reporting Standard 102: The Financial Reporting Standard applicable in the UK and Republic of Ireland (United Kingdom Generally Accepted Accounting Practice).
In our opinion, the financial statements:
-
affairs as at 31 March 2022
-
in funds, including the income and expenditure, for the year then ended;
-
have been properly prepared in accordance with United Kingdom Generally Accepted Accounting Practice; and
-
have been prepared in accordance with the requirements of the Companies Act 2006 and the Charities and Trustee Investment (Scotland) Act 2005 and regulation 8 of the Charities Accounts (Scotland) Regulations 2006.
Basis for opinion
We conducted our audit in accordance with International Standards on Auditing (UK) (ISAs (UK)) and applicable law. Our responsibilities under those standards are further d responsibilities for the audit of the financial statements section of our report. We are independent of the group in accordance with the ethical requirements that are relevant to our audit of the financial statements in the UK, in
responsibilities in accordance with these requirements. We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basis for our opinion.
Conclusions relating to going concern
basis of accounting in the preparation of the financial statements is appropriate.
Based on the work we have performed, we have not identified any material uncertainties relating to events or conditions that, individually or collectively, may cast significant doubt on the group's ability to continue as a going concern for a period of at least twelve months from when the financial statements are authorised for issue.
Our responsibilities and the responsibilities of the trustees with respect to going concern are described in the relevant sections of this report.
Other information
The trustees are responsible for the other information. The other information comprises the information information and, except to the extent otherwise explicitly stated in our report, we do not express any form of assurance conclusion thereon.
In connection with our audit of the financial statements, our responsibility is to read the other information and, in doing so, consider whether the other information is materially inconsistent with the financial statements or our knowledge obtained in the audit or otherwise appears to be materially misstated. If we identify such material inconsistencies or apparent material misstatements, we are required to determine whether there is a material misstatement in the financial statements or a material misstatement of the other information. If, based on the work we have performed, we conclude that there is a material misstatement of this other information, we are required to report that fact. We have nothing to report in this regard.
23
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
INDEPENDENT AUDITORS' REPORT TO THE MEMBERS OF TOGETHER FOR SHORT LIVES
Opinions on other matters prescribed by the Companies Act 2006
In our opinion, based on the work undertaken in the course of the audit:
-
direc consistent with the financial statements; and
-
prepared in accordance with applicable legal requirements.
Matters on which we are required to report by exception
In the light of the knowledge and understanding of the group and the parent charitable company and its environment obtained in the course of the audit, we have not identified material misstatements in
We have nothing to report in respect of the following matters in relation to which the Companies Act 2006 and the Charity Accounts (Scotland) Regulations (as amended) require us to report to you if, in our opinion:
-
adequate accounting records have not been kept by the parent charitable company; or
-
the parent charitable company financial statements are not in agreement with the accounting records and returns; or
-
we have not received all the information and explanations we require for our audit
Responsibilities of trustees for the financial statements
As set out on page 22, the trustees (who are also the directors of the charitable company for the purposes of company law) are responsible for the preparation of the financial statements and for being satisfied that they give a true and fair view, and for such internal control as the trustees determine is necessary to enable the preparation of financial statements that are free from material misstatement, whether due to fraud or error.
and the
related to going concern and using the going concern basis of accounting unless the trustees either intend to liquidate the group or the parent charitable company or to cease operations, or have no realistic alternative but to do so.
Our objectives are to obtain reasonable assurance about whether the financial statements as a whole includes our opinion. Reasonable assurance is a high level of assurance, but is not a guarantee that an audit conducted in accordance with ISAs (UK) will always detect a material misstatement when it exists. Misstatements can arise from fraud or error and are considered material if, individually or in the aggregate, they could reasonably be expected to influence the economic decisions of users taken on the basis of these financial statements.
Irregularities, including fraud, are instances of non-compliance with laws and regulations. We design procedures in line with our responsibilities, outlined above, to detect material misstatements in respect of irregularities, including fraud. The extent to which our procedures are capable of detecting irregularities, including fraud is detailed below.
Based on our understanding of the group and the environment in which it operates, we identified that the principal risks of non-compliance with laws and regulations related to charity and company law applicable in England, Wales and Scotland, and we considered the extent to which non-compliance might have a material effect on the financial statements. We also considered those laws and
24
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
INDEPENDENT AUDITORS' REPORT TO THE MEMBERS OF TOGETHER FOR SHORT LIVES
regulations that have a direct impact on the preparation of the financial statements such as the Companies Act 2006, the Charities Act 2011 and the Charities and Trustee Investment (Scotland) Act 2005.
statements (including the risk of override of controls) and determined that the principal risks were related to revenue recognition, and management override of controls. Audit procedures performed by the engagement team included:
-
Inspecting correspondence with regulators and tax authorities;
-
Discussions with management including consideration of known or suspected instances of noncompliance with laws and regulation and fraud;
-
Reviewing the controls and procedures of the charity relevant to the preparation of the financial statements to ensure these were in place throughout the year, including during the Covid-19 remote working period;
-
Identifying and testing journals, in particular journal entries posted with unusual account combinations, postings by unusual users or with unusual descriptions; and
-
Challenging assumptions and judgements made by management in their critical accounting estimates.
Because of the inherent limitations of an audit, there is a risk that we will not detect all irregularities, including those leading to a material misstatement in the financial statements or non-compliance with regulation. This risk increases the more that compliance with a law or regulation is removed from the events and transactions reflected in the financial statements, as we will be less likely to become aware of instances of non-compliance. The risk is also greater regarding irregularities occurring due to fraud rather than error, as fraud involves intentional concealment, forgery, collusion, omission or misrepresentation.
A further description of our responsibilities for the audit of the financial statements is located on the www.frc.org.uk/auditorsresponsibilities. This description
Use of our report
This report is made solely to the charitable company's members, as a body, in accordance with Chapter 3 of Part 16 of the Companies Act 2006, section 44(1)(c) of the Charities and Trustee Investment (Scotland) Act 2005 and regulation 10 of the Charities Accounts (Scotland) Regulations 2006. Our audit work has been undertaken so that we might state to the charitable company's members those matters we are required to state to them in an Auditor's report and for no other purpose. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than the charitable company and the charitable company's members as a body, for our audit work, for this report, or for the opinions we have formed.
Jane Askew (Senior Statutory Auditor) 10 Queen Street Place for and on behalf of London Haysmacintyre LLP EC4R 1AG Statutory Auditors
Date: 27.09.2022
25
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
CONSOLIDATED STATEMENT OF FINANCIAL ACTIVITIES (incorporating an income and expenditure account) FOR THE YEAR ENDED 31 MARCH 2022
| Restricted | |||||||
|---|---|---|---|---|---|---|---|
| Designated | Other | Funds | |||||
| funds - | unrestricted | excluding | Restricted | Total | Total | ||
| legacy | funds | NFS | Funds NFS | funds | funds | ||
| 2022 | 2022 | 2022 | 2022 | 2022 | 2021 | ||
| Note | £ | £ | £ | £ | £ | £ | |
| INCOME FROM: | |||||||
| Donations and legacies | 2 | - | 558,158 | 382,805 | 845,773 | 1,786,736 | 2,764,006 |
| Other trading activities | 2 | - | 577,745 | 264,034 | 426,280 | 1,268,059 | 333,841 |
| Investments | 2 | - | 55,759 | - | - | 55,759 | 51,269 |
| Charitable activities | 2 | - | 34,066 | - | - | 34,066 | 34,802 |
| Other income | 2 | - | 8,530 | - | - | 8,530 | 24,204 |
| --------------------- | --------------------- | ----------------- | ----------------- | -------------------- | -------------------- | ||
| TOTAL INCOME | 2 | - | 1,234,258 | 646,839 | 1,272,054 | 3,153,150 | 3,208,122 |
| --------------------- | --------------------- | ----------------- | ----------------- | -------------------- | -------------------- | ||
| EXPENDITURE ON: | |||||||
| Raising funds | 236,024 | 598,702 | - | 73,356 | 908,082 | 423,032 | |
| Charitable activities | 118,818 | 699,722 | 573,272 | 1,066,418 | 2,458,230 | 2,812,240 | |
| --------------------- | --------------------- | ----------------- | ----------------- | ------------------- | ------------------- | ||
| TOTAL EXPENDITURE | 4 | 354,842 | 1,298,424 | 573,272 | 1,139,774 | 3,366,311 | 3,235,272 |
| --------------------- | --------------------- | ----------------- | ----------------- | -------------------- | -------------------- | ||
| Net income/(expenditure) | |||||||
| before revaluation | (354,842) | (64,166) | 73,567 | 132,279 | (213,162) | (27,150) | |
| Gains on revaluations of | |||||||
| investment assets | - | 42,851 | - | - | 42,851 | 274,227 | |
| ------------------- | --------------------- | --------------- | --------------- | --------------- | --------------- | ||
| NET | |||||||
| INCOME/(EXPENDITURE) | (354,842) | (21,315) | 73,567 | 132,279 | (170,311) | 247,077 | |
| Transfers between Funds | 16 | 43,554 | 38,725 | 50,000 | (132,279) | - | - |
| ------------------- | --------------------- | --------------- | ----------------- | ------------------- | ------------------- | ||
| NET MOVEMENT IN | |||||||
| FUNDS FOR THE YEAR | (311,288) | 17,410 | 123,567 | - | (170,311) | 247,077 | |
| Total funds at start of year | 2,615,636 | 1,520,483 | 177,546 | - | 4,313,665 | 4,066,588 | |
| **---------------------- ** | ---------------------- | ----------------- | **---------------- ** | **--------------------- ** | --------------------- | ||
| TOTAL FUNDS AT END OF | |||||||
| YEAR | 2,304,348 | 1,537,893 | 301,113 | **- ** | 4,143,354 | 4,313,665 | |
| ====================== | ======== | **======== ** | **========== ** | ========== |
All activities relate to continuing operations.
The accompanying notes form part of these financial statements.
Full comparatives for the year to 31 March 2021 are shown in notes 2 and 4.
26
TOGETHER FOR SHORT LIVES
(A Company Limited by Guarantee)
REGISTERED NUMBER: 07783702
CONSOLIDATED BALANCE SHEET AS AT 31 MARCH 2022
| 2022 | 2021 | ||||
|---|---|---|---|---|---|
| Note | £ | £ | £ | £ | |
| FIXED ASSETS | |||||
| Tangible assets | 11 | 42,648 | 15,081 | ||
| Investments | 12 | 3,645,743 | 3,602,892 | ||
| -------------------- | -------------------- | ||||
| 3,688,391 | 3,617,973 | ||||
| CURRENT ASSETS | |||||
| Debtors | 13 | 1,113,458 | 1,223,488 | ||
| Cash at bank | 454,308 | 871,405 | |||
| ----------------- | ----------------- | ||||
| 1,567,766 | 2,094,893 | ||||
| CREDITORS:amounts falling due within | |||||
| one year | 14 | (1,112,803) | (1,399,201) | ||
| ----------------- | ----------------------- | ||||
| NET CURRENT ASSETS | 454,963 | 695,692 | |||
| ------------------- | ------------------- | ||||
| NET ASSETS | 4,143,354 | 4,313,665 | |||
| ========= | ========== | ||||
| CHARITY FUNDS | |||||
| Restricted funds NFS | 16 | - | - | ||
| Restricted funds excluding NFS | 16 | 301,113 | 177,546 | ||
| Designated fund - legacy | 2,304,348 | 2,600,555 | |||
| Other unrestricted funds | 16 | 1,520,483 | 1,535,564 | ||
| ------------------- | ------------------- | ||||
| TOTAL FUNDS | 4,143,354 | 4,313,665 | |||
| ========= | ========== |
The financial statements were approved by the trustees on
B Watson, Treasurer
Dr H Cass OBE, Chair
The accompanying notes form part of these financial statements.
27
(A Company Limited by Guarantee)
TOGETHER FOR SHORT LIVES
REGISTERED NUMBER: 07783702
CHARITY BALANCE SHEET AS AT 31 MARCH 2022
| 2022 | 2021 | ||||
|---|---|---|---|---|---|
| Note | £ | £ | £ | £ | |
| FIXED ASSETS | |||||
| Tangible assets | 11 | 42,648 | 15,081 | ||
| Investments | 12 | 3,650,743 | 3,607,892 | ||
| -------------------- | -------------------- | ||||
| 3,693,391 | 3,622,973 | ||||
| CURRENT ASSETS | |||||
| Debtors | 13 | 1,089,677 | 1,284,579 | ||
| Cash at bank | 396,573 | 796,167 | |||
| ----------------- | ----------------- | ||||
| 1,486,250 | 2,080,746 | ||||
| CREDITORS:amounts falling due within | |||||
| one year | 14 | (1,036,287) | (1,390,054) | ||
| ----------------- | ----------------------- | ||||
| NET CURRENT ASSETS | 449,963 | 690,692 | |||
| ------------------- | ------------------- | ||||
| NET ASSETS | 4,143,354 | 4,313,665 | |||
| ========= | ========== | ||||
| CHARITY FUNDS | |||||
| Restricted funds NFS | 16 | - | - | ||
| Restricted funds excluding NFS | 16 | 301,113 | 177,546 | ||
| Designated fund - legacy | 2,304,348 | 2,600,555 | |||
| Other unrestricted funds | 16 | 1,520,483 | 1,535,564 | ||
| ------------------- | ------------------- | ||||
| TOTAL FUNDS | 4,143,354 | 4,313,665 | |||
| ========= | ========== |
The financial statements were approved by the trustees on
B Watson, Treasurer
Dr H Cass OBE, Chair
The accompanying notes form part of these financial statements.
The surplus of the parent charity was £170,310 (2021: deficit of £246,902).
28
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
GROUP STATEMENT OF CASH FLOWS
FOR THE YEAR ENDED 31 MARCH 2022
| Note | 2022 | 2021 | |
|---|---|---|---|
| £ | £ | ||
| Cash inflow from operating activities | a | (429,302) | (295,121) |
| ========== | ========== | ||
| Cash flows from investing activities | |||
| Interest income | 52 | 322 | |
| Investment income | 55,707 | 50,947 | |
| Purchase of tangible fixed assets | (43,554) | (6,141) | |
| Purchase of investments | - | (1,000,000) | |
| Sale of investments | - | 1,500,000 | |
| ---------------------- | ---------------------- | ||
| Cash used in investing activities | 12,205 | 545,128 | |
| Increase in cash and cash equivalents in the | (417,097) | 250,007 | |
| year | |||
| Cash and short term investments at the beginning | 871,405 | 621,398 | |
| of the year | |||
| ---------------------- | ---------------------- | ||
| TOTAL CASH AND SHORT TERM | |||
| INVESTMENTS AT THE END OF THE YEAR | 454,308 | 871,405 | |
| ========== | ========== |
a. RECONCILIATION OF NET MOVEMENT IN FUNDS TO NET CASH INFLOW FROM OPERATING ACTIVITIES
| 2022 | 2021 | |
|---|---|---|
| £ | £ | |
| Net income/(expenditure) | (170,311) | 247,077 |
| Depreciation charge | 15,987 | 27,064 |
| Interest income | (52) | (322) |
| Investment income | (55,707) | (50,947) |
| Gain on investments | (42,851) | (274,227) |
| (Increase)/decrease in debtors | 110,030 | (915,660) |
| Increase in creditors | (286,398) | 671,894 |
| ---------------------- | ---------------------- | |
| Net cash inflow from operating activities | (429,302) | (295,121) |
| ========== | ========== |
29
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2022
1. ACCOUNTING POLICIES
The principal accounting policies adopted, judgements and key sources of estimation uncertainty in the preparation of the financial statements are as follows:
1.1. Basis of preparation of the financial statements
The consolidated financial statements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (effective 1 January 2016) - (Charities SORP (FRS 102)), the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) and the Companies Act 2006.
Together for Short Lives meets the definition of a public benefit entity under FRS 102. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy notes.
1.2. Preparation of accounts on a going concern basis
The review of our financial position since the introduction of the COVID-19 control measures has included forecasting income, expenditure and cashflow, access to available unrestricted funds and detailed planning for potential future events, The trustees consider there are no in excess of 12 months from the approval date of these accounts.
1.3. Company Status
Together for Short Lives is a company limited by guarantee, registered as a company in England and Wales (company number 7783702). The members of the company are the trustees named on page 1. In the event of the Together for Short Lives being wound up, the liability in respect of the guarantee is limited to £10 per member of Together for Short Lives.
1.4. Income
All income is recognised once the charity has entitlement to income, it is probable that income will be received and the amount of income receivable can be measured reliably.
Donations and legacies
Donations and gifts are included in full in the Statement of Financial Activities when there is entitlement, probability of receipt and the amount of income receivable can be measured reliably.
Gifts in kind
Gifts in kind represent assets donated for distribution or use by the charity. Assets given for distribution are recognised as income only when distributed. Assets given for use by the charity are recognised when receivable. Gifts in kind are valued at the amount actually realised from the disposal of the assets or at the price the charity would otherwise have paid for the assets.
Grants
Grants are recognised in full in the Statement of Financial Activities in the year in which the charity has entitlement to the income, the amount of income receivable can be measured reliably and there is probability of receipt.
30
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2022
1. ACCOUNTING POLICIES (continued)
Income from charitable activities
Income from charitable activities is recognised as earned as the related services are provided. Income from other trading activities is recognised as earned as the related goods are provided.
Investment income
Investment income is recognised on a receivable basis once the amounts can be measured reliably.
1.5. Expenditure
Expenditure is recognised once there is a legal or constructive obligation to make a payment to a third party, it is probable that settlement will be required and the amount of the obligation can be measured reliably. Expenditure is classified under the following activity headings:
-
Costs of raising funds
-
Expenditure on charitable activities
Irrecoverable VAT is charged as a cost against the activity for which the expenditure was incurred.
Expenditure is allocated to the particular activity where the cost relates directly to that activity. However, the cost of overall direction and administration of each activity, comprising the salary and overhead costs of the central function, is apportioned based on staff time attributable to each activity.
Expenditure on raising funds for costs that we incur in supporting the children's palliative care sector and so are part of delivering our charitable purpose.
1.6. Allocation of costs
- Staff costs are allocated between direct charitable expenditure and support costs based on the time spent on these activities. Other costs are allocated directly to the relevant heading.
1.7. Operating leases Rental charges are charged on a straight-line basis over the life of the lease.
1.8. Fund accounting
General funds are unrestricted funds which are available for use at the discretion of the trustees in furtherance of the general objectives of the company and which have not been designated for other purposes.
Designated funds comprise unrestricted funds that have been set aside by the trustees for particular purposes. The aim and use of each designated fund is set out in the notes to the financial statements.
31
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2022
1. ACCOUNTING POLICIES (continued)
Restricted funds are funds which are to be used in accordance with specific restrictions imposed by donors or which have been raised by the company for particular purposes. The costs of raising and administering such funds are charged against the specific fund. The aim and use of each restricted fund is set out in the notes to the financial statements.
Investment income, gains and losses are allocated to the appropriate fund.
1.6.Employee benefits
Short term benefits
Short term benefits including holiday pay are recognised as an expense in the period in which the service is received.
Employee termination benefits
Termination benefits are accounted for on an accruals basis and in line with FRS 102. Pension scheme
Together for Short Lives operates a defined contribution pension scheme for the benefit of its employees. The assets of the scheme are held independently from those of the Charity in an independently administered fund. The pensions costs charged in the financial statements represent the contributions payable during the year.
1.7. Basis of consolidation
The financial statements consolidate the accounts of Together for Short Lives and its subsidiary undertaking Together for Short Lives (Trading) Ltd. The company has taken advantage of the exemption contained within 408 of the Companies Act 2006 not to present its own Income and Expenditure Account.
1.8. Investments
Investments are stated at market value at the balance sheet date. The Statement of Financial Activities includes the net gains and losses arising on revaluations and disposals throughout the year.
Investments in subsidiaries are valued at cost less provision for impairment. Monies held in deposit accounts are classified as investments within current assets.
1.9. Tangible fixed Assets and depreciation
Fixed assets are initially recorded at cost. Expenditure on fixed assets costing £1,000 or less is written off as incurred.
Tangible fixed assets are stated at cost less depreciation. Depreciation is provided at rates calculated to write off the cost of fixed assets, less their estimated residual value, over their expected useful lives on the following bases:
- Leasehold improvements Straight line over the period of the lease - Fixtures and fittings 25% straight line - Office equipment 33.3% straight line
1.10. Debtors
Trade and other debtors are recognised at the settlement amount due after any trade discount offered. Prepayments are valued at the amount prepaid net of any trade discounts due.
32
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2022
1. ACCOUNTING POLICIES (continued)
1.11. Creditors and provisions
Creditors and provisions are recognised where the charity has a present obligation resulting from a past event that will probably result in the transfer of funds to a third party and the amount due to settle the obligation can be measured or estimated reliably. Creditors and provisions are normally recognised at their settlement amount after allowing for any trade discounts due.
1.12. Critical accounting judgements and key sources of estimation uncertainty
In the application of the charity's accounting policies, the Trustees are required to make judgements, estimates and assumptions about the carrying amounts of assets and liabilities that are not readily apparent from other sources. The estimates and associated assumptions are based on historical experience and other factors that are considered to be relevant. Actual results may differ from these estimates. The estimates and underlying assumptions are reviewed on an ongoing basis. Revisions to accounting estimates are recognised in the period in which the estimate is revised if the revision affects only that period, or in the period of the revision and future periods if the revision affects both current and future periods.
Critical judgements legacy income recognition
During the year, the charity received notification of a residual legacy. The administration of the estate remains ongoing. In the Trustees judgement there is insufficient information available to measure the legacy due to the charity and therefore only the interim distribution received after the year end has been recognised in these accounts.
The trustees do not consider there are any other critical judgements or sources of estimation uncertainty requiring disclosure beyond the accounting policies listed above.
33
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2022
2. ANALYSIS OF INCOME
| Restricted | ||||||
|---|---|---|---|---|---|---|
| Funds | ||||||
| Unrestricted | Designated |
excluding | Restricted | Total | Total | |
| funds | Funds | NFS | Funds NFS | funds | funds | |
| 2022 | 2022 | 2022 | 2022 | 2022 | 2021 | |
| £ | £ | £ | £ | £ | £ | |
| Donations and | ||||||
| legacies | ||||||
| Donations | 306,246 | - | 319,968 | 840,773 | 1,466,987 | 2,047,152 |
| Legacies | 24,718 | - | - | - | 24,718 | 29,163 |
| Grants | 227,195 | - | 62,837 | 5,000 | 295,032 | 687,691 |
| ------------------- | ------------------- | ------------------- | ------------------- | ------------------- | ------------------- | |
| 558,159 | - | 382,805 | 845,773 | 1,786,736 | 2,764,006 | |
| ------------------- | ------------------- | ------------------- | ------------------- | ------------------- | ------------------- | |
| Other trading | ||||||
| activities | ||||||
| Licensing | 70,028 | - | 264,034 | 291,541 | 625,603 | 48,608 |
| Fundraising events | 507,717 | - | 134,739 | 642,456 | 285,233 | |
| ------------------- | ------------------- | ------------------- | ------------------- | ------------------- | ------------------- | |
| 577,745 | - | 264,034 | 426,280 | 1,268,059 | 333,841 | |
| ------------------- | ------------------- | ------------------- | ------------------- | ------------------- | ------------------- | |
| Investments | ||||||
| Bank interest | 52 | - | - | - | 52 | 322 |
| Investment income | 55,707 | - | - | - | 55,707 | 50,947 |
| ------------------- | ------------------- | ------------------- | ------------------- | ------------------- | ------------------- | |
| 55,759 | - | - | - | 55,759 | 51,269 | |
| ------------------- | ------------------- | ------------------- | ------------------- | ------------------- | ------------------- | |
| Charitable activities | ||||||
| Membership fees | 34,066 | - | - | - | 34,066 | 34,802 |
| Conferences | - | - | - | - | - | - |
| ------------------- | ------------------- | ------------------- | ------------------- | ------------------- | ------------------- | |
| 34,066 | - | - | - | 34,066 | 34,802 | |
| ------------------- | ------------------- | ------------------- | ------------------- | ------------------- | ------------------- | |
| Other income | 8,530 | - | - | - | 8,530 | 24,204 |
| ------------------- | ------------------- | ------------------- | ------------------- | ------------------- | ------------------- | |
| Total income | 1,234,258 | - | 646,839 | 1,272,053 | 3,153,150 | 3,208,122 |
| ========= | ========= | ========= | ========= | ========= | ========== |
Comparative analysis for 2021
.
34
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2022
3. NET INCOME FROM TRADING ACTIVITIES OF SUBSIDIARY
Together for Short Lives owns 100% of the called up share capital of Together for Short Lives (Trading) Limited, a trading company registered in England and Wales, company number 06434214. A summary of the trading results of Together for Short Lives (Trading) Limited for the year ended 31 March 2022 is shown below. All taxable profits have been transferred to the Charity.
| 2022 | 2021 | |||
|---|---|---|---|---|
| £ | £ | |||
| Turnover | 624,222 | 47,124 | ||
| Administrative expenses | (17,077) | (9,188) | ||
| ----------------- | ----------------- | |||
| Profit after tax | 607,145 | 37,936 | ||
| Payment under gift aid | (607,145) | (37,936) | ||
| ------------------ | ------------------ | |||
| Retained profit carried forward | - | - | ||
| ========= | ========== |
At 31 March 2022 the total of share capital and reserves for the company was £5,000 (2021: £5,000). Net assets were £710,369 (2021: £75,236) and net liabilities were £705,369 (2020: £70,236).
4. ANALYSIS OF EXPENDITURE
| Direct costs | Direct costs | Support | |||
|---|---|---|---|---|---|
| Grants | Other costs | costs | Total | Total | |
| 2022 | 2022 | 2022 | 2022 | 2021 | |
| £ | £ | £ | £ | £ | |
| Raising funds | |||||
| Raising funds for our core work | - | 650,287 | 184,438 | 834,725 | 360,695 |
| Raising funds for NFS income | - | 54,922 | 18,434 | 73,356 | 62,337 |
| ------------------ | ------------------ | ----------------- | ------------------- | ------------------- | |
| - | 705,209 | 202,872 | 908,081 | 423,032 | |
| Charitable Activities | |||||
| National Charitable Activities | 94,450 | 716,301 | 202,871 | 1,013,622 | 963,418 |
| Cost of generating income for | 260,577 | 98,566 | 359,143 | 353,244 | |
| Cost of generating income for Grants National Fundraising Scheme (NFS) |
707,276 | 248,585 - |
- | 248,585 707,276 |
1,150,478 |
| Grants Improving Transition for Young People Awards |
- | - | - | - | 160,500 |
| Grants Butterfly Fund |
129,604 | - | - | 129,604 | 84,600 |
| Grants Relief Fund |
- | - | - | - | 100,000 |
| ------------------ | ------------------ | ----------------- | ------------------- | ------------------- | |
| Charitable activities | 931,330 | 1,225,464 | 301,437 | 2,458,230 | 2,812,240 |
| ------------------ | ------------------ | ----------------- | ------------------- | ------------------- | |
| ------------------ | ------------------- | ----------------- | ------------------- | ------------------- | |
| 931,330 | 1,930,672 | 504,309 | 3,366,311 | 3,235,272 | |
| ========= | ========= | ======== | ========= | ========= |
35
TOGETHER FOR SHORT LIVES
(A Company Limited by Guarantee)
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2022
4. ANALYSIS OF EXPENDITURE (Continued)
| Direct costs | Direct costs | Support | |||
|---|---|---|---|---|---|
| Grants | Other costs | costs | Total | ||
| 2021 | 2021 | 2021 | 2021 | ||
| Comparative analysis for 2021 | £ | £ | £ | £ | |
| Raising funds | |||||
| Raising funds for our core work | - | 247,297 | 113,398 | 360,695 | |
| Raising funds for NFS income | - | 44,787 | 17,550 | 62,337 | |
| ------------------ | ------------------ | ----------------- | ------------------- | ||
| - | 292,084 | 130,948 | 423,032 | ||
| Charitable Activities | |||||
| National Charitable | Activities | - | 660,530 | 302,888 | 963,418 |
| hospice (NFS) | - | 253,794 | 99,450 | 353,244 | |
| Grants National Fundraising Scheme (NFS) 1,150,478 |
- | - | 1,150,478 | ||
| Grants Improving People Awards |
Transition for | Young 327,123 |
- | - | 160,500 |
| Butterfly Fund Grants | 84,600 | 84,600 | |||
| Grants Relief Fund |
100,000 | - | - | 100,000 | |
| ------------------ | ------------------ | ----------------- | ------------------- | ||
| Charitable activities | 1,495,578 | 914,325 | 402,337 | 2,812,240 | |
| ------------------ | ------------------ | ----------------- | ------------------- | ||
| ------------------ | ------------------- | ----------------- | ------------------- | ||
| 1,495,578 | 1,206,409 | 533,285 | 3,235,272 | ||
| ========= | ========= | ======== | ========= |
In 2021, £62,337 of expenditure on raising funds was restricted to NFS, and £360,695 was unrestricted.
£1,495,578 of expenditure on charitable activities was restricted, £353,244 was restricted to NFS and £963,418 was unrestricted.
5. ANALYSIS OF SUPPORT COSTS
| ANALYSIS OF SUPPORT COSTS | ||
|---|---|---|
| Total | Total | |
| 2022 | 2021 | |
| £ | £ | |
| Staff costs | 301,898 | 281,999 |
| Depreciation | 15,987 | 27,065 |
| Governance costs | 48,292 | 42,560 |
| Other administrative costs | 138,132 | 181,661 |
| ----------------- | ----------------- | |
| 504,309 | 533,285 | |
| ========= | ========= |
36
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2022
6. GRANTS TO INSTITUTIONS
| Unrestricted | Unrestricted | Restricted | Restricted | Total Funds | Total Funds | |
|---|---|---|---|---|---|---|
| Funds | 2022 | Funds | Funds NFS | 2022 | 2021 | |
| £ | excluding | 2022 | £ | £ | ||
| NFS 2022 | £ | |||||
| £ | ||||||
| National Fundraising | ||||||
| Scheme (NFS) | - | - | 707,276 | 707,276 | 1,150,478 | |
| Improving Transitions for | ||||||
| Young People Fund | - | 32,068 | - | 32,068 | 160,500 | |
| Butterfly Fund Grants | - | 129,604 | - | 129,604 | 84,600 | |
| Relief Fund Grants | - | - | - | - | 100,000 | |
| ------------------- | ---------------- | ---------------- | ---------------- | ---------------- | ||
| - | 161,672 | 707,276 | 868,948 | 1,495,578 | ||
| ========== | ======== | ======= | ======== | ========= |
Grants payable under the National Fundraising Scheme are made to member charities providing children's palliative care services across the UK in line with donor wishes.
| 7. | GOVERNANCE COSTS | GOVERNANCE COSTS | GOVERNANCE COSTS | Total | Total |
|---|---|---|---|---|---|
| funds | funds | ||||
| 2022 | 2021 | ||||
| £ | £ | ||||
| Auditors' remuneration | 14,260 | 14,360 | |||
| Meeting costs | 942 | - | |||
| Trustees travel reimbursed | 2,901 | - | |||
| Wages and salaries | 25,095 | 23,441 | |||
| Employers NI | 3,463 | 3,235 | |||
| Pension costs | 1,631 | 1,524 | |||
| ---------------- | ---------------- | ||||
| 48,292 | 42,560 | ||||
| ======== | ========= | ||||
| 8. | NET INCOME/(EXPENDITURE) | 2022 | 2021 | ||
| £ | £ | ||||
| This | is stated after charging: | ||||
| Depreciation of tangible fixed assets: | 15,987 | 27,064 | |||
| 14,460 | 14,360 | ||||
| Operating lease payments | 4,621 | 31,371 | |||
| ======== | ========= |
During the year, no trustees received any remuneration (2021 no trustees ). During the year, no trustees received any benefits in kind (2021 no trustees).
During the year, 9 trustees received reimbursement of expenses amounting to £2,901 for travel, accommodation and subsistence (2021: 0 trustees).
37
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2022
| 9. | 2022 | 2021 | |||
|---|---|---|---|---|---|
| £ | £ | ||||
| Fees | payable to the charity's auditor for the audit of the charity's | ||||
| annual accounts | 9,550 | 8,925 | |||
| Fees | payable to the charity's auditor in respect of: | ||||
| Together for Short Lives (Trading) Ltd | 2,500 | 2,335 | |||
| Non audit services | 2,210 | 2,100 | |||
| ======== | ========= | ||||
| 10. | STAFF COSTS | 2022 | 2021 | ||
| £ | £ | ||||
| Staff | costs were as follows: | ||||
| Wages and salaries | 1,141,731 | 1,046,612 | |||
| Social security costs | 125,156 | 101,655 | |||
| Other pension costs | 73,380 | 64,450 | |||
| --------------------- | --------------------- | ||||
| 1,340,267 | 1,212,717 | ||||
| ========== | ========== | ||||
| The average monthly number of employees during the year was as follows: | |||||
| No. | No. | ||||
| 27 | 25 | ||||
| ======== | ======= | ||||
| The number of higher paid employees was: | |||||
| In the band £60,001 - £70,000 | 3 | 3 | |||
| In the band £70,001 - £80,000 | 3 | 2 | |||
| In the band £80,001 - £90,000 | - | - | |||
| In the band £90,001 - £100,000 | 1 | 1 | |||
| ---------------- | ---------------- | ||||
| 7 | 6 | ||||
| ======== | ======= |
Key management remuneration
The total employee benefits of the key management personnel of the Group were £521,391 (2021: £389,932).
38
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2022
11. TANGIBLE FIXED ASSETS
| Leasehold | Leasehold | |||||
|---|---|---|---|---|---|---|
| property | Fixtures and |
Office | ||||
| improvements | fittings | equipment | Total | |||
| Group and Charity | £ | £ | £ | £ | ||
| Cost | ||||||
| At 1 April 2021 | 85,059 | 18,512 | 95,210 | 198,781 | ||
| Additions | 30,494 | - | 13,060 | 43,554 | ||
| ---------------- | ----------------- | ---------------- | ---------------- | |||
| At 31 March 2022 | 115,553 | 18,512 | 108,270 | 242,335 | ||
| ---------------- | ----------------- | ---------------- | ---------------- | |||
| Depreciation | ||||||
| At 1 April 2021 | 85,059 | 18,512 | 80,129 | 183,700 | ||
| Charge for the year | 4,524 | - | 11,463 | 15,987 | ||
| ---------------- | ----------------- | ---------------- | ---------------- | |||
| At 31 March 2022 | 89,583 | 18,512 | 91,592 | 199,687 | ||
| ---------------- | ----------------- | ---------------- | ---------------- | |||
| Net book value | ||||||
| At 31 March 2022 | 25,970 | - | 16,678 | 42,648 | ||
| ======== | ======== | ======== | ======== | |||
| At 31 March 2021 | - | - | 15,081 | 15,081 | ||
| ======== | ======== | ======== | ======== | |||
| 12. | FIXED ASSET INVESTMENTS | |||||
| Money Market | Listed | |||||
| Fund | securities | Total | Total | |||
| 2022 | 2022 | 2022 | 2021 | |||
| £ | £ | £ | £ | |||
| Group | ||||||
| Market value | ||||||
| At 1 April | 1,608,302 | 1,994,590 | 3,602,892 | 3,828,665 | ||
| Additions | - | - | - | 1,000,000 | ||
| Disposals | - | - | - | (1,500,000) | ||
| Revaluations | - | 42,851 | 42,851 | 274,227 | ||
| -------------------- | -------------------- | -------------------- | -------------------- | |||
| At 31 March | 1,608,302 | 2,037,441 | 3,645,743 | 3,602,892 | ||
| ========= | ========= | ========= | ========= | |||
| Group investments at market value comprise: | 2022 | 2021 | ||||
| £ | £ | |||||
| Money Market Fund | 2,037,441 | 1,994,590 | ||||
| Listed investments | 1,608,302 | 1,608,302 | ||||
| ========== | ========== |
All the fixed asset investments are held in the UK
39
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2022
| 12. | FIXED ASSET INVESTMENTS (continued) | FIXED ASSET INVESTMENTS (continued) | |||
|---|---|---|---|---|---|
| Money Market | Listed | Investments | |||
| Fund | securities | in subsidiary | Total | ||
| 2022 | 2022 | 2022 | 2022 | ||
| £ | £ | £ | £ | ||
| Charity | |||||
| Market value | |||||
| At 1 April | 1,608,302 | 1,994,590 | 5,000 | 3,607,892 | |
| Additions | - | - | - | - | |
| Disposals | - | - | - | - | |
| Revaluations | - | 42,851 | - | 42,851 | |
| -------------------- | -------------------- | -------------------- | -------------------- | ||
| At 31 March | 1,608,302 | 2,037,441 | 5,000 | 3,650,743 | |
| ========= | ========= | ========= | ========= |
All the fixed asset investments are held in the UK.
Comparative analysis for 2021
| Money Market | Listed | Investments | |||
|---|---|---|---|---|---|
| Fund | securities | in subsidiary | Total | ||
| 2021 | 2021 | 2021 | 2021 | ||
| £ | £ | £ | £ | ||
| Charity | |||||
| Market value | |||||
| At 1 April | 721,118 | 3,107,547 | 5,000 | 3,833,665 | |
| Additions | 1,000,000 | - | - | 1,000,000 | |
| Disposals | - | (1,500,000) | (1,500,000) | ||
| Revaluations | 273,472 | 755 | - | 274,227 | |
| -------------------- | -------------------- | --------------- | -------------------- | ||
| At 31 March | 1,994,590 | 1,608,302 | 5,000 | 3,607,892 | |
| ========= | ========= | ======= | ========= | ||
| All the fixed asset investments are held | in the UK. | ||||
| 13. | DEBTORS | Group | Charity | ||
| 2022 | 2021 | 2022 | 2021 | ||
| £ | £ | £ | £ | ||
| Trade debtors | 396,610 | 19,350 | 8,010 | 19,350 | |
| Amounts owed by group undertakings | - | - | 628,853 | 61,091 | |
| Other debtors | 1,432 | 12,912 | 1,432 | 12,912 | |
| Prepayments and accrued income | 715,416 | 1,191,226 | 451,382 | 1,191,226 | |
| ----------------- | ----------------- | ------------------- | ------------------- | ||
| 1,113,458 | 1,223,488 | 1,089,677 | 1,284,579 | ||
| ======== | ======== | ========= | ======== |
40
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2022
| 14. | CREDITORS: amounts falling due | Group | Group | Charity | Charity |
|---|---|---|---|---|---|
| within one year | 2022 | 2021 | 2022 | 2021 | |
| £ | £ | £ | £ | ||
| Trade creditors | 66,758 | 54,168 | 66,758 | 54,168 | |
| Other taxation and social security | 36,467 | 36,244 | 36,467 | 30,553 | |
| Other creditors | 152,341 | 23,695 | 81,010 | 23,695 | |
| Accruals and deferred income | 857,237 | 1,285,094 | 852,052 | 1,281,638 | |
| ----------------- | ----------------- | ----------------- | ----------------- | ||
| 1,112,803 | 1,399,201 | 1,036,287 | 1,390,054 | ||
| ========= | ========= | ========= | ======== | ||
| 15. | ANALYSIS OF DEFERRED INCOME | Group | Charity | ||
| 2022 | 2021 | 2022 | 2021 | ||
| £ | £ | £ | £ | ||
| Deferred income at 1 April | 1,519 | 68,153 | 1,519 | 68,153 | |
| Released to income in the year | (1,519) | (68,153) | (1,519) | (68,153) | |
| Deferred in the year | 4,740 | 1,519 | 4,740 | 1,519 | |
| ----------------- | ----------------- | ----------------- | ----------------- | ||
| Deferred income at 31 March | 4,740 | 1,519 | 4,740 | 1,519 | |
| ======== | ========= | ======== | ======== |
Deferred income in 2022 relates to conference income, ball income and income from the Association for Paediatric Palliative Medicine (APPM).
Deferred income in 2021 related to income from the Association for Paediatric Palliative Medicine (APPM).
41
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2022
16. STATEMENT OF FUNDS
| Brought | Transfers | Gains/ | Carried | |||
|---|---|---|---|---|---|---|
| Forward | Income | Expenditure | in/(out) | (Losses) | Forward | |
| £ | £ | £ | £ | £ | £ | |
| Designated funds | ||||||
| Designated fund - Legacy | 2,600,555 | - | (338,855) | - | 2,261,700 | |
| Fixed asset fund | 15,081 | - | (15,987) | 43,554 | - | 42,648 |
| General funds | 1,520,483 | 1,234,258 | (1,298,424) | 38,725 | 42,851 | 1,537,894 |
| General Funds | ||||||
| ------------------- | ----------------- | --------------------- | ------------------ | ------------------ | ------------------- | |
| Total Unrestricted funds | 4,136,119 | 1,234,258 | (1,653,266) | 82,279 | 42,851 | 3,842,241 |
| ---------------------- | ----------------- | --------------------- | ------------------ | ------------------ | ------------------- |
Purpose of designated funds
The Fixed Asset fund
This fund relates to fixed assets and therefore is not available to cover the ongoing costs of the Charity, the balance is equal to the net book value in the accounts of fixed assets held by the charity.
Legacy fund
The trustees have designated this legacy to be invested in key strategic areas for children's palliative care
| Brought | Transfers | Gains/ | Carried | |||
|---|---|---|---|---|---|---|
| Forward | Income | Expenditure | in/(out) | (Losses) | Forward | |
| £ | £ | £ | £ | £ | £ | |
| Restricted funds: National | ||||||
| Fundraising Scheme | ||||||
| Restricted NFS | - | 1,272,054 | (1,139,775) | (132,279) | - | - |
| ---------------------- | ----------------- | ----------------- | ------------------ | ------------------ | ------------------- | |
| Other restricted funds | ||||||
| Butterfly Fund | 13,283 | 30,370 | (150,290) | - | - | (106,637) |
| Transition Grants | 132,272 | - | (59,385) | - | - | 72,887 |
| Family information & support | (1,900) | - | (13,880) | - | - | (15,780) |
| National Lottery | 93 | - | (914) | - | - | (821) |
| Disney | - | 100,000 | (4,319) | 50,000 | - | 145,681 |
| Morrisons (Hospices) | - | 191,847 | (248,585) | - | - | (56,738) |
| Morrisons (Project) | - | 264,034 | (33,866) | - | - | 230,168 |
| Other restricted funds | 33,798 | 60,587 | (62,032) | - | - | 32,353 |
| ------------------- | ----------------- | ----------------- | ------------------ | ------------------ | ------------------- | |
| 177,546 | 646,839 | (573,271) | 50,000 | - | 301,113 | |
| ---------------------- | ----------------- | ----------------- | ------------------ | ------------------ | ------------------- |
42
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2022
16. STATEMENT OF FUNDS (CONTINUED)
Purpose of Restricted funds
Restricted NFS
The hospice services. Further details on the income and costs of the scheme can be found in notes 2, 4 and 6.
Butterfly fund
This Fund provides grants of £300 to bereaved families, and the intention is that it is fully funded by a number of supporters. The current deficit balance represents the gap between fundraising receipts and the 63% increase in grant distribution this year. The trustees will keep the fund under close scrutiny, whilst maintaining the objective of reaching every bereaved family.
Transition Grants
This is our funding programme which seeks to address the significant difference in care experienced
Family Information and Support
We also received generous support for our Family Information and Support work this year from a number of funders supporting our helpline, advocacy service and information and resources that we provide for families. The deficit at the end of the year will be covered by income received in 2021-22.
Relief fund
The Relief fund was established in May 2020 in response to COVID-19 to provide 500 grants of £200 to families in need. The funding was provided by a number of trusts and foundations, individuals and companies and all the funds were distributed within 3 months.
National Lottery
This grant has enabled us to support families during COVID-19 by increasing capacity and access to the helpline (including LiveChat), expanding peer support and online communities, providing up to date information on COVID-19 and connecting and supporting the palliative care services that the families use.
Other restricted funds
Other restricted funds are immaterial amounts granted for restricted purposes; these include grants awarded by NHS England, the Scottish Government and Hospice UK.
Fund Transfers
The transfers from the general fund to the Fixed Asset Designated fund, was required to maintain the balance in the Fixed Asset Fund equal to the net book value of fixed assets in the balance sheet.
The transfer from the National Fundraising Scheme (NFS) Fund to the General Fund represents the share of NFS net income that will go towards the core work of the charity. The proportion of NFS income that is used for our core work varies among the different corporate partners, but is usually 15% of the total net income raised.
The transfer to the Disney Fund from the General Fund represents a balance carried forward at the end of the 2021 financial year which should have been disclosed as a restricted fund. As the amount is not material for the purpose of preparing these accounts it has been corrected within the current financial year. The funds have been applied in accordance with the wishes of the donor.
43
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2022
16. STATEMENT OF FUNDS (CONTINUED)
Comparative analysis for 2021
| Brought | Transfers | Gains/ | Carried | |||
|---|---|---|---|---|---|---|
| Forward | Income | Expenditure | in/(out) | (Losses) | Forward | |
| £ | £ | £ | £ | £ | £ | |
| Designated funds | ||||||
| Designated fund - Legacy | 2,672,000 | - | (71,445) | - | - | 2,600,555 |
| Fixed asset fund | 36,004 | - | (27,065) | 6,142 | - | 15,081 |
| General funds | ||||||
| General Funds | 1,218,477 | 936,727 | (1,065,694) | 156,746 | 274,227 | 1,520,483 |
| ------------------- | ----------------- | --------------------- | ------------------ | ------------------ | ------------------- | |
| Total Unrestricted funds | 3,926,481 | 936,727 | (1,164,204) | 162,888 | 274,227 | 4,136,119 |
| ---------------------- | ----------------- | --------------------- | ------------------ | ------------------ | ------------------- | |
| Brought | Transfers | Gains/ | Carried | |||
| Forward | Income | Expenditure | in/(out) | (Losses) | Forward | |
| £ | £ | £ | £ | £ | £ | |
| Restricted funds: National | ||||||
| Fundraising Scheme | ||||||
| Restricted NFS | (40,548) | 1,757,504 | (1,566,059) | (150,897) | - | - |
| ---------------------- | ----------------- | ----------------- | ------------------ | ------------------ | ------------------- | |
| Other restricted funds | ||||||
| Butterfly Fund | 56,948 | 31,992 | (103,046) | 27,389 | - | 13,283 |
| Transition Grants | 98,307 | 243,787 | (223,711) | 13,889 | - | 132,272 |
| Family information & support | 25,400 | - | - | (27,300) | - | (1,900) |
| Relief Fund | - | 100,000 | (100,000) | - | - | - |
| National Lottery | - | 46,799 | (32,580) | (14,126) | - | 93 |
| Other restricted funds | - | 91,313 | (45,672) | (11,843) | - | 33,798 |
| ------------------- | ----------------- | ----------------- | ------------------ | ------------------ | ------------------- | |
| 180,655 | 513,891 | (505,009) | (11,991) | - | 177,546 | |
| ---------------------- | ----------------- | ----------------- | ------------------ | ------------------ | ------------------- |
44
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2022
17. ANALYSIS OF NET ASSETS BETWEEN FUNDS
| Restricted | ||||
|---|---|---|---|---|
| Unrestricted | Funds | Restricted | Total | |
| funds | excluding NFS | Funds NFS | funds | |
| 2022 | 2022 | 2022 | 2022 | |
| £ | £ | £ | £ | |
| Tangible fixed assets | 42,648 | - | - | 42,648 |
| Fixed asset investments | 3,645,743 | - | - | 3,645,743 |
| Current assets | 1,233,570 | 301,113 | - | 1,534,883 |
| Creditors due within one year | (1,079,720) | - | - | (1,079,720) |
| -------------------- | ---------------- | ---------------- | --------------------- | |
| 3,842,241 | 301,113 | - | 4,143,354 | |
| ========== | ======== | ======== | ========== | |
| Comparative analysis for 2021: | ||||
| Restricted | ||||
| Unrestricted | Funds | Restricted | Total | |
| funds | excluding NFS | Funds NFS | funds | |
| 2021 | 2021 | 2021 | 2021 | |
| £ | £ | £ | £ | |
| Tangible fixed assets | 15,081 | - | - | 15,081 |
| Fixed asset investments | 3,602,892 | - | - | 3,602,892 |
| Current assets | 1,917,347 | 177,546 | - | 2,094,893 |
| Creditors due within one year | (1,399,201) | - | - | (1,399,201) |
| -------------------- | ---------------- | ---------------- | --------------------- | |
| 4,136,119 | 177,546 | - | 4,313,665 | |
| ========== | ======== | ======== | ========== |
18. PENSION COMMITMENTS
Employer's pension contributions paid in the year ended 31 March 2022 were £73,380 (2021: £60,450). Amounts shown in other creditors at the balance sheet date in respect of pension contributions outstanding were £12,686 (2021: £10,793).
45
TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)
NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2022
19. OPERATING LEASE COMMITMENTS
At 31 March 2022 the group had annual commitments under non-cancellable operating leases as follows:
| follows: | ||||
|---|---|---|---|---|
| Land and | buildings | Equipment | ||
| 2022 | 2021 | 2022 | 2021 | |
| Group and charity | £ | £ | £ | £ |
| Within 1 year | 21,364 | - | 530 | 1,060 |
| Between 2 and 5 years | 69,433 | - | - | 530 |
| ------------------ | ------------------ | ------------------- | ------------------- | |
| 90,797 | - | 530 | 1,590 | |
| ========= | ========= | ========= | ========= |
At 31 March 2022 the group was entitled to receive the following income under non-cancellable operating leases:
| 2022 | 2021 | ||
|---|---|---|---|
| Group | and Charity | £ | £ |
| Within | 1 year | - | - |
| ------------------ | ------------------ | ||
| - | - | ||
| ========= | ========= |
20. RELATED PARTY TRANSACTIONS
Several trustees of Together for Short Lives are also either trustees or employees of member charities. Some of these charity members benefit from grants under the National Fundraising Scheme (NFS), but the trustees do not benefit personally. Trustees set the rules of the scheme which determine how the money raised is shared among members, but they are not involved in specific decisions about how NFS money is distributed.
During the year the charity charged its trading subsidiary, Together for Short Lives Trading Limited, £10,779 (2021: £4,897) for management and licensing costs.
£nil donations relating to a charity auction were received from trustees in the year (2021: £50 donations were received from trustees in the year).
46