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2021-03-31-accounts

Together for Short Lives

Trustees’ Report

and

Financial Statements

For the year ended 31 March 2021

Registered company number: 7783702 Registered charity numbers: 1144022 (England & Wales) SC044139 (Scotland)

TOGETHER FOR SHORT LIVES

(A Company Limited by Guarantee)

CONTENTS

Page
Reference and Administrative Details of the Charity, its Trustees and 1 - 2
Advisers
Chair and Chief Executive’s Introduction 3 – 4
Trustees' Report 5 – 23
Independent Auditors' Report 24 – 26
Consolidated Statement of Financial Activities 27
Consolidated Balance Sheet 28
Company Balance Sheet 29
Consolidated Statement of Cash flows 30
Notes to the Financial Statements 31 – 47

TOGETHER FOR SHORT LIVES

(A Company Limited by Guarantee)

REFERENCE AND ADMINISTRATIVE DETAILS OF THE COMPANY, ITS TRUSTEES AND ADVISERS FOR THE YEAR ENDED 31 MARCH 2021

Trustees

Dr Hilary Cass OBE, Chair (re-appointed 30 July 2020 for two year term – see page 5) Sarah Talbot-Williams, Vice Chair Bernie Watson, Treasurer Arlene Honeyman (re-appointed 10 November 2020) Paul Obey (re-appointed 10 November 2020) Sue Hogg Tracy Tait Toby Porter Jo Laddie Adam Smith Stephanie Nimmo Alaana Linney (resigned 15 May 2021)

Company registered number

7783702

Charity registered numbers

1144022 (England & Wales) SCO44139 (Scotland)

Registered office

Second Floor, New Bond House, Bond Street, Bristol, BS2 9AG

Chief executive officer

Andy Fletcher

Executive team

Andy Fletcher Nick Carroll Lizzie Chambers Myra Johnson Mala Langdon Dr Helena Dunbar (from 1 March 2021)

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TOGETHER FOR SHORT LIVES

(A Company Limited by Guarantee)

REFERENCE AND ADMINISTRATIVE DETAILS OF THE COMPANY, ITS TRUSTEES AND ADVISERS FOR THE YEAR ENDED 31 MARCH 2021

Independent auditor

Haysmacintyre LLP, 10 Queen Street Place, London, EC4R 1AG

Bankers

NatWest Plc, 32 Corn Street, Bristol, BS99 7UG CCLA, Senator House, 85 Queen Victoria Street, London, EC4V 4ET

Investment managers

Sarasin & Partners LLP, Juxon House, 100 St Paul's Churchyard, London, EC4M 8BU

Solicitors

Veale Wasbrough Vizards, Narrow Quay House, Narrow Quay, Bristol BS1 4Q

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TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)

TRUSTEES' REPORT FOR THE YEAR ENDED 31 MARCH 2021

Chair and Chief Executive’s introduction

Welcome to Together for Short Lives’ Annual Report and Accounts for 2020-21. We are here for the 99,000 children and young people living in the UK with life-limiting conditions and their families. We know they face many challenges – many require 24/7 care, much of it provided by families at home which can leave them feeling exhausted, isolated and alone. This loneliness has only been intensified by the pandemic, with many families shielding at home, anxious about the impact of COVID-19 on the wellbeing of their child and family. We believe no family should struggle through their child’s short life alone, but instead be able to treasure every moment they have together.

This has been, without doubt, the most extraordinary and challenging year for everyone involved with Together for Short Lives – our committed team, the brilliant professionals and services delivering children’s palliative care locally and the children and families we are here for.

But while it has been tumultuous for us all, we are very proud of what we have achieved this year. We have supported more families through our family hub, developing new ways to engage and support them during the pandemic. This included pivoting to a COVID-19 response service, developing online peer to peer opportunities for families to talk to one another and a hardship fund to support families in financial need.

We have supported professionals and services to weather the storm, successfully advocating for sustainability funding, providing information and advice and opportunities to share and spread new and innovative ways of delivering care during this extraordinary period. All this against the backdrop of uncertainty for all charities as restrictions impacted on our ability to fundraise.

It has been a year where the size and the scale of the challenge that we face, has been laid bare by new evidence. In April, we saw the publication of data on the prevalence of children and young people with life-limiting and life-threatening illness from the Martin House Research Centre at the University of York. It showed that the number of such children and young people in England had trebled in the last 20 years and is set to continue to grow by up to a further 70% over the next decade. We know that this trend is the same across the UK, with around 99,000 children living with these conditions.

We also know that many families are living increasingly challenging and complex lives, with a high proportion living in areas of social and economic disadvantage and many feeling isolated and lonely. We also have new evidence this year about the impact on parental physical and mental health, with mothers of children with life-limiting illness being 50% more likely to die prematurely.

This is absolutely not acceptable, nor is it unavoidable. We can do something about this if we choose to prioritise it with:

This focus on securing round the clock support for these children and families will drive our work over the coming year – whether in campaigning for sustainable levels of funding, supporting professionals to increase their knowledge and skills, sharing good practice and reaching more families with information and advice.

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TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)

TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2021

We have been indebted to our amazing supporters, staff and volunteers who have enabled us to deliver so much this year. As a consequence of their generous support and our prudent management of costs, we will end the year in a good financial position and ready to step up to the challenge of growing need and demand.

We know there is much to do, and it will not be easy. We have not yet seen the long-term psychological impact of the pandemic on children and families or on professionals working in the NHS and voluntary sector. And the future of fundraising is also uncertain as we emerge from a year of restrictions. While there will be challenges ahead, we are confident we can meet them, working closely with our partners to improve our impact. We will not rest until children, young people and families get consistent and sustainable support, wherever they live and for as long as they need it.

Dr Hilary Cass OBE Chair of Trustees

Andy Fletcher

Chief Executive

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TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)

TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2021

Trustees’ Annual Report

The trustees (who are also directors of the charity for the purposes of the Companies Act) present their annual report together with the audited financial statements of Together for Short Lives (the charity) for the year ended 31 March 2021.

The trustees confirm that the Annual Report and Financial Statements of the charity comply with the current statutory requirements, the requirements of the charity's governing document and the provisions of the Statement of Recommended Practice (SORP) "Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS 102) (second addition - effective 1 January 2019)".

Structure, Governance and Management

Objectives of the charity

The objectives of the charity are promoting for the public benefit the support of children and young people with life-limiting conditions such that:

Constitution

Together for Short Lives is a registered charity and was incorporated as a company limited by guarantee on 4th October 2011. The constitution of the charity is set out in the Memorandum and Articles of Association. Trustees are also directors of the charity for the purposes of the Companies Act.

The charity has one wholly owned subsidiary charity: Together for Short Lives (Trading) Ltd (Company number 06434214), a company which is registered in England and Wales and is used for fundraising activities.

Board of Trustees

The charity is governed by its Board of Trustees, which is detailed on page 1. All trustees give of their time freely and no trustee remuneration was paid in the year. Details of trustee expenses and related party transactions are disclosed in note 8 and note 20 to the accounts.

Trustees may hold office for three years. At the end of their first term, they can be re-elected for one further three-year term. Any Trustee who has served two terms of office is not eligible for reappointment as a Trustee unless there are exceptional reasons. In July 2020, because of the stability required in the pandemic, the trustees voted to waive the two-term restriction to re-elect Hilary Cass for a shorter third term of two years. The third term will end on 31 March 2023.

The charity aims to appoint trustees to the board across a wide range of backgrounds, skills, and regions.

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TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2021

Induction and training of trustees

On appointment, new trustees receive an induction pack containing key information about the charity and its governance structure. To support their induction, new trustees are matched with an existing trustee in a “buddy scheme”. In addition, new trustees are encouraged to meet with other existing trustees and are invited to visit the charity’s offices to meet with the Executive Team and other staff.

Ongoing training for trustees is given as required; in general, all trustees are encouraged to maintain or enhance their knowledge, especially in areas in which they are not expert. There is a trustee development session at each full Board meeting exploring issues such as current trends in fundraising and children’s palliative care policy and practice.

Sub Committees of the Board

The trustees perform their governance role via the full Board which meets at least four times a year. During the year there have been three committees which are formally constituted as committees of the Board of Trustees and the Board approves the Terms of Reference.

The recorded actions and minutes of committee meetings are submitted to the Board of Trustees at its next meeting. There is a written scheme of delegation that sets out which decisions are made by the Board, committees, or staff and this is reviewed regularly. The committees therefore have certain delegated authority within their areas of responsibility, and these are subsequently reported to the Board for information. However, in other areas, they are only able to make recommendations to the Board.

Committees are able to co-opt to their membership other individuals who may bring particular expertise to that committee.

Advisory Council

Following a Governance structural review, in autumn 2019, the Advisory Council was established to be more representative of the membership. Representatives from across the children’s palliative care sector contribute their expertise and communicate their views on issues affecting children's palliative care to inform and advise the work of Together for Short Lives. It is an integral part of the strategic planning for the charity.

Remuneration for key management staff

The charity aims to ensure that appropriate remuneration packages are set to attract, retain and motivate an appropriate calibre of employees. The Pay and Reward policy is currently under review for fairness, transparency and equity.

Salary benchmarking is undertaken to compare roles with similar positions within the charity and not for profit sector.

Decisions on setting pay levels are made as follows:

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TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2021

The Board has final approval of all pay rises across the organisation.

The numbers of higher paid employees are:

In the band £60,001 - £70,000 3 3
In the band £70,001 - £80,000 1 -
In the band £80,001 - £90,000 1 1
---------------- ----------------
5 4
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Safeguarding

Together for Short Lives is committed to protecting children and vulnerable adults from harm, promoting their health and welfare and minimizing the adverse consequences of neglect or abuse.

We have a safeguarding policy and a whistle blowing procedure, so anyone can raise any concerns they have confidentially. These policies are reviewed annually. We have a designated safeguarding lead within the staff team. Safeguarding is a standing agenda item at every Executive Team meeting. We carry out DBS record checks for all new staff and volunteers and an enhanced check for those working on our helpline service with families.

We believe that safeguarding is everybody’s business, and we provide safeguarding training as part of the induction process, which provides information on the process for raising concerns and escalating any issues. This year, staff who work directly on the helpline have attended additional training on safeguarding relating to helplines and the designated safeguarding lead attended an NSPCC training course.

As our service is remote rather than face to face, we have specific procedures that relate to a helpline service. During the year we installed a new Case Manager system for our helpline, which means that any safeguarding concerns can be logged securely on the system. Our new call handling system means that the telephone number of service users could be traced by the police if there are serious concerns. We had 8 safeguarding concerns raised over the year, mainly due to concerns over parental mental health In all cases procedures were followed, support offered, and concerns were escalated to the relevant safeguarding partnership organisation as appropriate. We use the ASIST (Applied Suicide Intervention Skills Training) as a process if a caller states that they feel suicidal.

Diversity and Inclusion

In common with many others in the sector, we have a good deal of work to do before we are a fully inclusive organisation where everybody can be themselves and feel that they belong.

We have started our journey by:

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TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2021

Equality, Diversity and inclusion will continue to be a priority in our work in two key areas:

Membership

The charity operates a membership scheme for organisations and professionals working in the children’s palliative care sector. We work with 62 organisations that are involved in caring for and supporting children and young people across the UK, including all 38 organisations which run children’s hospice services. We also work with over 100 professionals, including doctors, nurses, play and social care professionals, therapists, teachers, carers and students. There is a membership fee structure for most of our organisational and professional members.

Public benefit

The trustees have taken account of the Charity Commission’s guidance on public benefit and are satisfied that the activities undertaken in the year are in line with this guidance, as evidenced in the Activities, Achievements and Performance section below.

Our Strategy

Our vision

For children and young people with life-limiting conditions to have as fulfilling lives as possible, and the best care at the end of life.

Underpinning this vision is a commitment to the rights of all children and young people to a fulfilling life, regardless of their health, ethnicity, social or economic circumstances.

Our mission

Our mission is to secure the best quality of life and best end of life care for children who will have short lives.

Our values

Our values enable us to deliver our strategy:

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TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2021

We listen to families and our work is shaped by what they tell us

Families are at the heart of everything we do. We listen to children, young people and families and our work is shaped by their experiences and needs.

We are compassionate and responsive

We are compassionate and caring about everything we do. We are open, honest and responsive to the needs of children, young people and families, and everyone we work with.

We will collaborate and bring people together

We will bring the children’s palliative care sector together so that we can achieve more for children, young people and families. We will work in partnership, collaborate, share expertise and bring a unifying spirit to children’s palliative care.

We are innovative, creative and will act as a catalyst for change

We are innovative, creative and unafraid to challenge the status quo. We will always go the extra mile and explore new ways of working to deliver the very best for children, young people and families.

We are passionate and determined

We are passionate, determined, and ambitious about helping children, young people and families to live as full lives as possible. We will not stop until every family gets the care, support and services that they need.

Our strategic priorities

There are 99,000+ children and young people are living in the UK with health conditions that are lifelimiting or life-threatening and the number is rising.

These children and their families rely on a network of many excellent and invaluable services which make up children’s palliative care which is available across the UK: hospitals, children’s hospices, community children’s nurses, social care providers, educators, wish-makers, therapists, psychologists, sibling workers, bereavement counsellors and many, many more. Our five-year strategy aims to provide a voice for these children and their families and to enable much needed support to the sector.

A strong and sustainable children’s palliative care sector for the 99,000+

There are serious risks to the long-term sustainability of the children’s palliative care sector. The number of babies, children and young people with life-limiting and life-threatening conditions is growing, and they are living longer with complex conditions. Policy and funding are not keeping pace with their needs, and many individuals and vital charities struggle to develop new and sustainable fundraising income. As a result, services are overstretched, and family support is inadequate.

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TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2021

Supported and empowered children, young people and families

The support children and families receive is patchy and variable. Choice remains a laudable public policy aim but is severely limited by the availability of funded services. Families face a postcode lottery of support, and many of them struggle to get access to the services and support they need. This can leave families feeling frustrated, isolated and alone while facing the challenge of providing 24/7 care for their child.

Joined up policy, services, care and support for children and families

Services are not adequately or consistently joined up around the family and their needs. Policymakers, funders and commissioners too often operate independently leading to inefficient or ineffective funding arrangements. Families and professionals continue to be frustrated by the lack of co-ordination across health and wider care services, which significantly increases the burden on those seeking care and those providing care.

Changing hearts and minds: Greater understanding and support for children’s palliative care

There is a low-level understanding of children’s palliative care in both public and wider professional arenas. Too often knowledge of hospice and palliative care is focused on end of life, as opposed to also achieving a quality of life. This creates barriers to good policy making, efficient and effective care and support. There is a cultural and societal fear of death and discomfort with talking about it, especially in relation to children. This compounds families’ sense of isolation and loneliness.

Activities, Achievements and Performance

We have detailed below under each of our strategic headings our activities and achievements for the year.

A strong and sustainable children’s palliative care sector for the 99,000+

The pandemic had an unprecedented impact on the way in which children’s palliative care providers were funded during 2020-21.

Recognising the potential impact of funding reductions for children’s hospices and other voluntary providers of children’s palliative care, we worked in partnership with Hospice UK, Marie Curie and Sue Ryder Care to emphasise the important role hospices could play in supporting the NHS during the first wave of the pandemic. We very much welcomed the UK Government’s subsequent decision to allocate up to £200 million for children's and adult hospices from April until July 2020 – and a subsequent £125 million package between December and March 2021. Consequential funding for hospices was agreed by the Northern Ireland Executive and the Scottish and Welsh Governments. We helped some other, non-hospice voluntary sector children’s palliative care providers to gain access to this vital funding and worked with national infrastructure organisations to press for wider funding for vital charities.

We have been active members of the NHSE/I Children and Young People’s (CYP) Palliative and End of Life Care (PEoLC) Governance Group. Through this, we have helped officials to develop a proposal for a capitated approach to allocating the Children’s Hospice Grant, informed by existing data on the number of cases of life-limiting and life-threatening conditions in CYP in local areas across England. We have encouraged our VCS and statutory sector members to work together to

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TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2021

apply for NHSE/I children’s palliative care match funding. This has led to some vital services receiving new NHS funding from their local CCGs.

Ahead of the 2021 Senedd elections, we joined Tŷ Hafan and Tŷ Gobaith in calling for a new sustainable ‘Lifeline Fund’ for children’s hospices in Wales and for funding parity with the rest of the UK. We also highlighted the dearth of community children’s nurses (CCNs) in Wales with the skills and experience needed to provide palliative care to children and young people. We calculated that the current shortfall in CCNs stands at 240.

We supported Children’s Hospices Across Scotland’s call for a fresh, sustainable funding settlement from the Scottish Government ahead of the Scottish Parliamentary elections in May 2021.

In October, we launched our #GiveMeABreak campaign following the publication of our new report with Julia’s House Children’s Hospice. This included new research by Pro Bono Economics, in association with volunteers from Compass Lexecon, which set out the positive impact that short breaks have. The research has estimated that 11% of parents of children who need respite delivered by children’s palliative care providers would experience significantly less stress as a result of receiving breaks – improving their physical and mental health, reducing number of GP visits, reducing demand for mental health services and reducing in the number of days taken off work by around 2-3 days per year. Working with the MPs and peers through the relaunched All-Party Parliamentary Group for Children Who Need Palliative Care, we campaigned for the government to create an annual ringfenced £434 million grant for local councils to fill the funding gap in social care services for disabled children.

Supported and empowered children, young people and families

COVID-19 has had a big impact on the ways that we have supported families this year. Many families lost earnings and had increased costs due to the pandemic and in response to this we secured funding to provide a £200 Relief Grant to 500 families. We also worked with a corporate partner to provide food parcels to families at the beginning of the pandemic

We secured funding to enable us to develop new ways of connecting families and we piloted a range of virtual platforms to enable peer support, with a ‘Virtual Cuppa’ group for mums and a Brew’s Brothers’ group for dads. The outbreak of COVID-19 meant that many families caring for seriously ill children were more isolated than ever and these groups provided a valuable regular meeting for them to talk to other parents. Alongside peer support groups, we trialled holding a informational webinar, hosted by two parents with doctors providing information about the impact of COVID-19 for families caring for a life limited child.

We also saw a growth in membership of our “Families Together” private Facebook group, which now has 293 members. We also host a Facebook group for bereaved parents, “Still Their Parent” and a small group for male carers “Brews Brothers”. We support parents to moderate these groups themselves.

We have continued to grow our Family Support Hub to reach more families living with a seriously ill child, investing in our helpline and resources for families. We responded to 881 queries from families and young people via our helpline and information service and introduced new systems enable Livechat and for the helpline to be delivered from home.

At the year-end we had 57 families that we were continuing to support through our ‘Voices for Families’ legal advice and support service and 43 cases that were completed during the year. This

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TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2021

service, delivered in partnership with LawWorks, provides a volunteer legal professional to support families to advocate for their needs when they are faced with difficult issues such as inadequate care packages or inappropriate housing. Due to COVID-19, we saw the take up of this service dip as families were shielding and taking on extra caring burdens, but there has been a sudden spike in referrals from March.

We extended the Butterfly Fund that we had piloted the previous year and rolled this out nationally to all our member organisations so that they could make referrals on behalf of families. This Fund provides a £300 grant to families whose child has died. This year we have provided 282 grants to families.

We have continued to push for policy change to improve the lives of families. With our fellow steering group members of the Disabled Children’s Partnership (DCP), we have called on the UK Government to develop a COVID-19 recovery fund. This sought to re-establish the lifeline therapies that disabled children, including those who need palliative care, were unable to access during the pandemic.

We have also continued to take part in discussions with the Department of Work and Pensions about the future of the disability living allowance (DLA) benefit. This examined the process of claiming DLA; how the government currently defines terminal illness for the purpose of fast tracking benefit claims; and the legal barrier that children under the age of three who rely on bulky medical equipment face in accessing the DLA mobility component.

Joined up policy, services, care and support for children and families

We have continued to respond to the needs of professionals during COVID-19 and throughout the year we hosted meetings to bring together various professional forums such as Leaders of Care, Practice Education Leads and Family Support Leads, which were an invaluable platform for sharing new practice and ways of safely manging services during COVID-19.

We were forced to cancel our national face-to-face conference which was due to take place at the end of March 2020, but packaged up some of the key content and delivered a series of six webinars for professionals. The webinars covered topics such as dealing with changing demographics, challenging cases, ethics and defining what we mean by children’s palliative care given the changing demographics. These were very well attended – with 965 delegates joining the sessions.

Throughout the year we hosted meetings to bring together various professional forums such as Leaders of Care, Practice Education Leads and Family Support Leads, which were an invaluable platform for sharing new practice and ways of safely manging services during COVID-19.

We were commissioned by Hospice UK to deliver a series of virtual workshops to help children’s hospices manage the impact of the pandemic. These workshops covered a range of topics including how to:

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TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2021

Children’s hospices were grateful for the opportunities to hear from officials and from their peers to understand best practice and discuss how to implement it within their own organisations.

In the early part of the pandemic, we worked closely with NHSE/I to press for children’s hospices to receive regular weekly supplies of personal protective equipment (PPE). We helped NHSE/I to convene an expert group to advise officials in writing a standard operating procedure (SOP) for children’s palliative care in the community and in children’s hospices during the pandemic. This was significantly delayed, but following our work to engage MPs, peers and senior officials, we were successful in our campaign to get the SOP published for our sector to use in June.

We have continued to work with the innovation projects funded through our ‘Improving Transitions for Young People Fund’ . All but two of the projects have completed by the end of this year and had extensions to their projects due to the impact of COVID-19. These projects will finish in the summer, and we will be carrying out an evaluation to capture and share learning that we hope will:

As well as direct support to the projects, we have continued to facilitate sharing and learning events to spread emerging knowledge of what works.

We have also actively engaged in the new NHSE/I PEoLC programme, which aims to make access to care more sustainable and equitable. We have linked the existing children’s palliative care networks with seven new regional PEoLC strategic clinical networks (SCNs). These new bodies could play a crucial role in bringing new NHS integrated care systems (ICSs) together to jointly plan and fund children’s palliative care across hospital, community and children’s hospice settings. We have helped to shape the criteria by which NHSE/I will hold SCNs to account, which include appointing a funded children’s palliative care lead in each SCN region.

We have continued to collaborate closely with a range of organisations to improve the co-ordination of support for children and young people with life-limiting illness. In addition to being steering group members of the Disabled Children’s Partnership, we have continued to be active members of:

Changing hearts and minds: Greater understanding and support for children’s palliative care

During the year we raised awareness of the needs of children and families and the services they need, sharing stories on our website and through proactive media and social media campaigns. We have focused on sharing powerful stories that showed the impact of the pandemic on vulnerable

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TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2021

families caring for a seriously ill child, exacerbating feelings of isolation and loneliness. We have reached out to these families through PR and social media channels, to help them feel less alone, providing the latest guidance on COVID-19, and helping them get the right support. Over the year we have promoted new ways of supporting families including our new online chat service and Butterfly Fund for grieving families.

We delivered key awareness campaign moments, including promoting new research showing that the number of seriously ill children has doubled over the last 20 years, and our Forgotten Families study that revealed 93% of families caring for seriously ill children and families felt isolated alone in lockdown. Whilst gaining media traction has been challenging this year, we secured 1,440 items of positive coverage, with a reach of around 365 million people, far exceeding last year’s reach.

We continue to support families and the sector via our social channels and website. Website unique visits have grown by about 11% this year to around 157,000 visits. There were around 69,000 visits to our family support pages and over 50,000 family resources viewed and 27,000 publications downloads. We have invested in improving family user journeys via the website and making our online information more accessible. We have grown supporter awareness and engagement online with a 200% increase in donation transactions, raising about £23,000.

We delivered Children’s Hospice Week in June 2020, our annual awareness and fundraising campaign, bringing together the 54 children’s hospices across the UK. Although delivering the campaign at the height of the pandemic was challenging, the reach, engagement and impact was far greater. In terms of media reach, we delivered 857 items of PR coverage for Children’s Hospice Week reaching an audience of 227 million, compared to 739 clips and a reach of 88 million in 2019. The campaign theme focused on the impact of the pandemic on seriously ill children and families and the extraordinary way hospices have gone the extra mile to support vulnerable families while taking the pressure off the NHS. Children’s Hospice Week attracted some very high-profile support celebrity and Royal support, with HRH Duchess of Cambridge, HRH Duchess of Cornwall and HRH Countess of Wessex adding their voice and support to the campaign. Plus our patrons Holly Willoughby and Mason Mount delivered personal video messages of support, increasing our reach and engagement.

Together for Short Lives has grown its Patrons Programme, launching Chelsea and England football player Mason Mount’s patronage in January 2021. Mason has already had a big impact on our work with children and families, both through his own fundraising and awareness and helping Together for Short Lives reach new audiences, which should enhance our ability to raise funds and awareness.

We have re-launched the All-Party Parliamentary Group (APPG) for Children Who Need Palliative Care at Westminster. Co-chaired by Conservative MP Dr Caroline Johnson and Labour MP Siobhain McDonagh, the APPG will work with us to make sure parliamentarians are aware of the barriers that prevent seriously ill children and their families from accessing palliative care. With the APPG, we plan to highlight the gaps in 24/7 children’s palliative care and continue our campaign for sustainable funding for short breaks.

Despite the restrictions on holding face to face meetings, we have exceeded our annual target for conversations with politicians and officials, which have all been held virtually. We had 270 two-way interactions in 2020-21, including 187 with government and NHS officials, two with Care Minister Helen Whately and 71 with other MPs.

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TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2021

Financial review

Overall Financial Performance

The Statement of Financial Activities shows Designated Funds, Unrestricted Funds, Restricted Funds (excluding the National Fundraising Scheme (NFS)) and NFS. The Designated Fund is shown separately from the Unrestricted Fund as it is ring fenced for specific activities (see below). The National Fundraising Scheme is shown as a separate restricted fund as its activities are concerned with raising funds for distribution to children’s hospice services, as detailed in note 16.

The net deficit for all funds for the year before investment revaluations was £27k (2020: net income of £1,292k). The fall from last year is mostly due to £1,272k (the final tranche of the exceptional designated legacy income) being received in 2020. Excluding this legacy income, the net income for 2020 was £20k. As we had budgeted a large deficit, we are delighted to be reporting a much smaller one; this is due to better than expected levels of income (especially emergency COVID-19 funding) and depressed or delayed spending. Our Unrestricted Funds (excluding Designated Funds) remain above the target range at year-end.

The unrealised gain on investments has resulted in total funds carried forward increasing to £4,314k (2020: £4,067k). This was allocated amongst the various funds as follows:

Funds for our core work

Funds relating to our core work, as opposed to the National Fundraising Scheme, are shown in the 2 columns in the Statement of Financial Activities labelled “Unrestricted Funds” and “Restricted Funds (excluding NFS)”.

Income

We achieved gross income of £1,452k (2020: £2,156k excluding the large legacy income of £1,272k). which is £704k lower than the prior year. In 2020, approximately c£250k of Gift in Kind income was recognised; as this amount recognised a large volume of one off gifts, the amount has fallen this year to £12k. To ensure we remain sustainable, we continue to grow our core income streams, especially that of philanthropy, in the coming year. The trading subsidiary made a profit of £38k (2020: £57k) which was donated to the charity under covenant.

Designated Fund

The money from the large legacy received in 2019 and 2020 has been ringfenced by the trustees in a Designated Fund. The specific activities on which this fund can be spent must be approved by the trustees and if an ongoing activity, must be self-sustaining within 2 years.

Phase one of our planned spend was focussed on building capacity. While we have spent money on ongoing direct services, there has been a focus on building a sustainable base from which to support children and their families and professionals in the sector in the long term. This includes

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TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)

TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2021

implementing our five year fundraising strategy as well developing digital tools to extend our reach.

Activities this year have included investment in

COVID-19 meant that we achieved less than we had planned in 20-21 so many of the activities have been rolled over into 21-22. Additionally, we gained third party support for much of the IT work that we were able to do.

Expenditure

Expenditure on our core work for the year was £1,669k (2020: £2,221k), considerably lower than the prior year. Of this, £1,309k was spent on our charitable activities (2020: £1,517k) with the remaining £361k (2020: £704k) spent on raising funds.

Details of our achievements during the year can be seen in the section of this report headed ‘Activities, Achievements and Performance’.

National Fundraising Scheme (NFS)

This scheme raises income and awareness through national corporate partnerships, and the net income raised is shared with local children’s hospice services across the UK who would not otherwise be able to access national partnerships.

The scheme raised £1,758k (2020 £963k) during the year from its various fundraising campaigns, including £1m from M&S Food. After a deduction for direct costs, and a contribution to our core costs, £1,151k (2020: £466k) was distributed across 39 children’s hospices.

Following a strategic review of the scheme in December 2019, the member driven Strategic Advisory Group has been established, and there has been investment in brand development culminating in the “Pushed to the Limits” campaign.

Grant Making Policy

Our major grant making programme, ‘Improving Transitions for Young People Fund’, came to an end in 2021. Further details of this grant scheme can be found under Activities, Achievements and Performance. Funding for this scheme was given by three trusts.

Having launched a pilot programme in 2019, the ‘ Butterfly Fund’ has been rolled out nationally this year. The fund provides a £300 grant to families whose child has died. Funding is provided by a number of trusts and foundations, individuals and companies.

As an urgent response to COVID-19, in May 2020 we launched a “ Relief Fund” providing 500 grants of £200 to families in need. Again, funding was provided by a number of trusts and foundations, individuals and companies.

Fundraising Strategy

This was the first year of our new five-year fundraising strategy which focuses on driving more sustainable growth. We revisited our plans during the year to ensure that we were able to react appropriately to the impact of COVID-19. The objectives of the strategy remain sound, and we have made good progress particularly with developing a clearer fundraising brand for our core work to

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TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)

TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2021

attract new support, which was rolled out successfully at Christmas.

Our focus continues to be on the development of scalable, long-term programmes for funding and investing in the development of certain areas, including growing our philanthropy programme, and improving our online fundraising and individual giving.

We have invested in these areas to ensure we can secure sustainable income in future years and believe that they remain the right areas of focus to mitigate any impact from COVID-19 or any subsequent recession.

Fundraising approach and performance

Thanks to our generous supporters, and our ability to react quickly we were able to lessen the impact of COVID-19 on our fundraised income. We had expected to be about 30% worse off than budget but have managed to bring reduce this to around 20%. However, we believe the year ahead will be challenging due to increased competition for funds and less emergency funding available.

The underlying performance of our core fundraising channels remains strong, and we have a professional and passionate team. A key focus continues to be ensuring the long-term stability of our income and diversifying our income streams. This year we had notable success in fundraising for our bereavement fund, and our emergency relief fund for families. We saw strong support come from the trust and foundation sector, a range of support for our first Christmas appeal in several years, including gifts from our corporate supporters, online and patrons and philanthropists.

Despite 2020-21 being a tough business for many of our corporates, with them having to close their businesses to the public, we had a remarkable year of fundraising for the National Fundraising Scheme, with nearly £1.8 million raised. This is in part due to the generosity of the customers and supporters at the amazing businesses that partner with us, plus the significant support we had from our two newest partners: M&S Food and Premier Foods.

The charity undertakes fundraising activity with its supporters through corporate partnerships, challenge events, a gala ball, payroll giving, and other activities in line with the Fundraising Code of Practice set by Fundraising Regulator. Our privacy policy, (which is available on our website), states that:

“If you support us, for example by signing up to an event, donating or signing up to a campaign, we will usually collect your name, contact details, and whether you would like to be contacted, and how we would do so.

We use this information to thank you for supporting us and to provide you with further communications about our activities according to your preferences and interests. We also use it to fulfil our legal responsibilities for financial and Gift Aid reporting.

We will keep your data only for as long as necessary.”

We work with partner organisations so that supporters can take part in professionally organised challenge events and we have clear agreements with those companies who will not use participants’ personal details for any other reason.

The charity is registered with the Fundraising Regulator and adheres to the standards of the Fundraising Code of Practice. No complaints about our fundraising activity were received in the year.

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TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)

TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2021

Reserves policy

The trustees of the charity review the reserves policy each year. The policy states that the charity will hold Unrestricted Funds, excluding Designated Funds and those which are tied up in functional fixed assets, sufficient to cover:

The policy states that the target reserves should be within 15% of the amount calculated through this method. This would enable the charity to continue its activities during a period of reduced income due to changes in fundraising success or other factors. It should also ensure that the reserves, as calculated above, are sufficient to cover the expected liabilities if the charity were to be wound up.

Following this calculation for 2020-21, the policy states that the target reserves for the charity should be between £975k and £1,319k (2020: £868k-£1,175k). At 31st March 2021 general reserves (unrestricted reserves excluding designated reserves) totalled £1,520k (2020: £1,218k), which is above the target range. The trustees have considered this and agreed to some funding in 21-22 from the Designated Fund. They consider the balance on the unrestricted reserves to be prudent during economically volatile times.

As at 31[st] March 2021, the charity has restricted reserves of £178k. These reserves are all committed to be spent in the next financial year. In addition to the general reserves discussed above, there is a designated fund equivalent to the value of our fixed assets of £15k.

COVID-19 and Going Concern

The financial effect of COVID-19 has been mitigated as far as possible by emergency funding and prudent financial management, so that the net effect on the results of the charity are not significant in the years to come. The trustees are confident that the charity continues to be a going concern.

There were no significant events in year that had a financial impact on the charity.

Investment Policy and Performance

The organisation’s investment policy was last reviewed in October 2020 and is as follows:

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TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)

TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2021

Charity’s measure of performance

The charity measures its performance by monitoring various key performance indicators (KPIs) which are reported to the board and sub-committees on a quarterly basis. These reports are also reviewed by cross-departmental groups that focus on each of the four strategic aims. Numerical targets are used where appropriate and performance monitored against these.

Risk management

The risk register is reviewed at every Executive Team meeting, Finance, Governance amd Fundraising Committee meeting and Board of Trustees’ meeting. The register identifies the major risks to which the charity is exposed together with the actions and systems in place to mitigate or reduce the exposure to those risks.

The principal risks and uncertainties at the time of writing, and plans and strategies for managing them are:

Plans for the future

Over the coming year we will continue to support families and the professionals and services that care for them in a number of ways

Supporting families

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TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)

TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2021

tailored information and support to families, wherever they are in their child’s palliative care journey.

Supporting professionals and services

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TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)

TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2021

Campaigning for change

Future vision and strategy

We are approaching the end of our strategy which has itself been significantly impacted by the pandemic.

Over the coming year we will review our vision, purpose and values to ensure we are fit for purpose to support as many families, services and professionals as possible. This first phase will be about getting the central building blocks in place, setting a long term ambition and purpose which focuses our work and energizes our team. It will involve participation and input from all the team, our partners in the sector and crucially those with lived experience of children’s palliative care. In this first phase we will review and define our vision and purpose and develop a rolling 2-3 year plan to deliver it.

Acknowledgements

Delivering through partnership

We place great value on a collaborative approach, particularly with partners representing palliative and end of life care and disabled children. These include Hospice UK, the Council for Disabled Children, the Association of Paediatric Palliative Medicine, the European Association for Palliative Care, and the International Children's Palliative Care Network. We also seek to work collaboratively with UK and country governments and departments to ensure that the voice of children, young people and their families is heard and the view of our members better represented.

Role of Volunteers

Together for Short Lives benefits from the time and commitment given by volunteers who have

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TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)

TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2021

helped with administrative duties for the charity on a regular basis, as well as helping on an ad hoc basis. The charity is very grateful to all our volunteers for their time, support and flexibility. and hopes to create further opportunities for volunteer involvement in the future.

Statement of trustees' responsibilities

The trustees (who are also directors of Together for Short Lives for the purposes of company law) are responsible for preparing the Trustees' Report and the financial statements in accordance with applicable law and United Kingdom Accounting Standards (United Kingdom Generally Accepted Accounting Practice).

Company and charity law require the trustees to prepare financial statements for each financial year which give a true and fair view of the state of affairs of the charitable company and of the incoming resources and application of resources, including the income and expenditure, of the charitable company for that period. In preparing these financial statements, the trustees are required to:

The trustees are responsible for keeping adequate accounting records that disclose with reasonable accuracy at any time the financial position of the charitable company and enable them to ensure that the financial statements comply with the Companies Act 2006. They are also responsible for safeguarding the assets of the charitable company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities.

The trustees are responsible for the maintenance and integrity of the corporate and financial information included on the charitable company’s website. Legislation in the United Kingdom governing the preparation and dissemination of financial statements may differ from legislation in other jurisdictions.

Provision of information to auditors

Each of the persons who are trustees at the time when this Trustees' Report is approved has confirmed that:

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TOGETHER FOR SHORT LIVES

(A Company Limited by Guarantee)

TRUSTEES' REPORT (continued) FOR THE YEAR ENDED 31 MARCH 2021

Small Company Provisions

The directors have prepared this report in accordance with the special provisions of Statutory Instrument 2008/409 under the Companies Act 2006 relating to small companies.

This report was approved by the trustees on and signed on their behalf by:

Dr Hilary Cass OBE. Chair Date: 28 July 2021

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TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee) INDEPENDENT AUDITORS' REPORT TO THE MEMBERS OF TOGETHER FOR SHORT LIVES

Opinion

We have audited the financial statements of Together for Short Lives for the year ended 31 March 2021 which comprise the Consolidated Statement of Financial Activity, the Consolidated and Charity Balance Sheets, the Consolidated Statement of Cash Flows and the related notes including a summary of significant accounting policies. The financial reporting framework that has been applied in their preparation is applicable law and United Kingdom Accounting Standards including Financial Reporting Standard 102: The Financial Reporting Standard applicable in the UK and Republic of Ireland (United Kingdom Generally Accepted Accounting Practice).

In our opinion, the financial statements:

Basis for opinion

We conducted our audit in accordance with International Standards on Auditing (UK) (ISAs (UK)) and applicable law. Our responsibilities under those standards are further described in the Auditor’s responsibilities for the audit of the financial statements section of our report. We are independent of the group in accordance with the ethical requirements that are relevant to our audit of the financial statements in the UK, including the FRC’s Ethical Standard, and we have fulfilled our other ethical responsibilities in accordance with these requirements. We believe that the audit evidence we have obtained is sufficient and appropriate to provide a basis for our opinion.

Conclusions relating to going concern

In auditing the financial statements, we have concluded that the trustees’ use of the going concern basis of accounting in the preparation of the financial statements is appropriate.

Based on the work we have performed, we have not identified any material uncertainties relating to events or conditions that, individually or collectively, may cast significant doubt on the group's ability to continue as a going concern for a period of at least twelve months from when the financial statements are authorised for issue.

Our responsibilities and the responsibilities of the trustees with respect to going concern are described in the relevant sections of this report.

Other information

The trustees are responsible for the other information. The other information comprises the information included in the Trustees’ Report. Our opinion on the financial statements does not cover the other information and, except to the extent otherwise explicitly stated in our report, we do not express any form of assurance conclusion thereon.

In connection with our audit of the financial statements, our responsibility is to read the other information and, in doing so, consider whether the other information is materially inconsistent with the financial statements or our knowledge obtained in the audit or otherwise appears to be materially misstated. If we identify such material inconsistencies or apparent material misstatements, we are required to determine whether there is a material misstatement in the financial statements or a material misstatement of the other information. If, based on the work we have performed, we conclude that there is a material misstatement of this other information, we are required to report that fact. We have nothing to report in this regard.

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TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)

INDEPENDENT AUDITORS' REPORT TO THE MEMBERS OF TOGETHER FOR SHORT LIVES

Opinions on other matters prescribed by the Companies Act 2006

In our opinion, based on the work undertaken in the course of the audit:

Matters on which we are required to report by exception

In the light of the knowledge and understanding of the group and the parent charitable company and its environment obtained in the course of the audit, we have not identified material misstatements in the Trustees’ Report (which incorporates the strategic report and the directors’ report).

We have nothing to report in respect of the following matters in relation to which the Companies Act 2006 and the Charity Accounts (Scotland) Regulations (as amended) require us to report to you if, in our opinion:

Responsibilities of trustees for the financial statements

As explained more fully in the trustees’ responsibilities statement set out on page 22, the trustees (who are also the directors of the charitable company for the purposes of company law) are responsible for the preparation of the financial statements and for being satisfied that they give a true and fair view, and for such internal control as the trustees determine is necessary to enable the preparation of financial statements that are free from material misstatement, whether due to fraud or error.

In preparing the financial statements, the trustees are responsible for assessing the group’s and the parent charitable company’s ability to continue as a going concern, disclosing, as applicable, matters related to going concern and using the going concern basis of accounting unless the trustees either intend to liquidate the group or the parent charitable company or to cease operations, or have no realistic alternative but to do so.

Auditor’s responsibilities for the audit of the financial statements

Our objectives are to obtain reasonable assurance about whether the financial statements as a whole are free from material misstatement, whether due to fraud or error, and to issue an auditor’s report that includes our opinion. Reasonable assurance is a high level of assurance, but is not a guarantee that an audit conducted in accordance with ISAs (UK) will always detect a material misstatement when it exists. Misstatements can arise from fraud or error and are considered material if, individually or in the aggregate, they could reasonably be expected to influence the economic decisions of users taken on the basis of these financial statements.

Irregularities, including fraud, are instances of non-compliance with laws and regulations. We design procedures in line with our responsibilities, outlined above, to detect material misstatements in respect of irregularities, including fraud. The extent to which our procedures are capable of detecting irregularities, including fraud is detailed below.

Based on our understanding of the group and the environment in which it operates, we identified that the principal risks of non-compliance with laws and regulations related to charity and company law applicable in England, Wales and Scotland, and we considered the extent to which non-compliance

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TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)

INDEPENDENT AUDITORS' REPORT TO THE MEMBERS OF TOGETHER FOR SHORT LIVES

might have a material effect on the financial statements. We also considered those laws and regulations that have a direct impact on the preparation of the financial statements such as the Companies Act 2006, the Charities Act 2011 and the Charities and Trustee Investment (Scotland) Act 2005.

We evaluated management’s incentives and opportunities for fraudulent manipulation of the financial statements (including the risk of override of controls) and determined that the principal risks were related to revenue recognition, and management override of controls. Audit procedures performed by the engagement team included:

A further description of our responsibilities for the audit of the financial statements is located on the Financial Reporting Council’s website at: www.frc.org.uk/auditorsresponsibilities. This description forms part of our auditor’s report.

Use of our report

This report is made solely to the charitable company's members, as a body, in accordance with Chapter 3 of Part 16 of the Companies Act 2006, section 44(1)(c) of the Charities and Trustee Investment (Scotland) Act 2005 and regulation 10 of the Charities Accounts (Scotland) Regulations 2006. Our audit work has been undertaken so that we might state to the charitable company's members those matters we are required to state to them in an Auditor's report and for no other purpose. To the fullest extent permitted by law, we do not accept or assume responsibility to anyone other than the charitable company and the charitable company's members as a body, for our audit work, for this report, or for the opinions we have formed.

Jane Askew (Senior Statutory Auditor) 10 Queen Street Place for and on behalf of London Haysmacintyre LLP EC4R 1AG Statutory Auditors Date: 23 September 2021

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TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)

CONSOLIDATED STATEMENT OF FINANCIAL ACTIVITIES (incorporating an income and expenditure account) FOR THE YEAR ENDED 31 MARCH 2021

----- Start of picture text -----
||||||||| |---|---|---|---|---|---|---|---| |Restricted| |Designated|Other|Funds| |funds -|unrestricted|excluding|Restricted|Total|Total| |legacy|funds|NFS|Funds NFS|funds|funds| |2021|2021|2021|2021|2021|2020| |Note|£|£|£|£|£|£| |INCOME FROM:| |Donations and legacies|2|-|500,775|513,891 1,749,340 2,764,006 3,553,012| |Other trading activities|2|-|325,677|-|8,164|333,841|723,340| |Investments|2|-|51,269|-|-|51,269|29,252| |Charitable activities|2|-|34,802|-|-|34,802|34,944| |Other income|2|-|24,204|-|-|24,204|50,515| |--------------------- ---------------------|-----------------|----------------- -------------------- --------------------| |TOTAL INCOME|2|-|936,727|513,891 1,757,504 3,208,122 4,391,063| |--------------------- ---------------------|-----------------|----------------- -------------------- --------------------| |EXPENDITURE ON:| |Raising funds|41,395|319,300|-|62,337|423,032|777,998| |Charitable activities|30,050|773,459|505,009|1,503,722 2,812,240 2,321,290| |--------------------- ---------------------|-----------------|----------------- -------------------|-------------------| |TOTAL EXPENDITURE|4|71,445 1,092,759|505,009|1,566,059 3,235,272 3,099,288| |--------------------- ---------------------|-----------------|----------------- -------------------- --------------------| |Net income/(expenditure)| |before revaluation|(71,445)|(156,032)|8,882|191,445|(27,150) 1,291,775| |Gains on revaluations of| |investment assets|-|274,227|-|-|274,227|(29,751)| |------------------- ---------------------|---------------|---------------|---------------|---------------| |NET| |INCOME/(EXPENDITURE)|(71,445)|118,195|8,882|191,445|247,077 1,262,024| |Transfers between Funds|16|-|162,888|(11,991)|(150,897)|-|-| |------------------- ---------------------|---------------|----------------- -------------------|-------------------| |NET MOVEMENT IN| |FUNDS FOR THE YEAR|(71,445)|281,083|(3,109)|40,548|247,077 1,262,024| |Total funds at start of year|2,672,000 1,254,481|180,655|(40,548) 4,066,588 2,804,564| |---------------------- ----------------------|-----------------|---------------- --------------------- ---------------------| |TOTAL FUNDS AT END OF| |YEAR|2,600,555 1,535,564|177,546|- 4,313,665 4,066,588| |=========== ===========|========|======== ========== ==========|

----- End of picture text -----

All activities relate to continuing operations.

The accompanying notes form part of these financial statements.

Full comparatives for the year to 31 March 2020 are shown in notes 2 and 4.

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TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)

REGISTERED NUMBER: 07783702

CONSOLIDATED BALANCE SHEET AS AT 31 MARCH 2021

2021 2020
Note £ £ £ £
FIXED ASSETS
Tangible assets 11 15,081 36,004
Investments 12 3,602,892 3,828,665
-------------------- --------------------
3,617,973 3,864,669
CURRENT ASSETS
Debtors 13 1,223,488 307,828
Cash at bank 871,405 621,398
----------------- -----------------
2,094,893 929,226
CREDITORS:amounts falling due within
one year 14 (1,399,201) (727,307)
----------------- -----------------------
NET CURRENT ASSETS 695,692 201,919
------------------- -------------------
NET ASSETS 4,313,665 4,066,588
========= ==========
CHARITY FUNDS
Restricted funds NFS 16 - (40,548)
Restricted funds excluding NFS 16 177,546 180,655
Designated fund - legacy 2,600,555 2,672,000
Other unrestricted funds 16 1,535,564 1,254,481
------------------- -------------------
TOTAL FUNDS 4,313,665 4,066,588
========= ==========

The financial statements were approved by the trustees on 28 July 2021 and signed on their behalf, by:

Dr H Cass OBE, Chair

The accompanying notes form part of these financial statements.

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TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)

REGISTERED NUMBER: 07783702

CHARITY BALANCE SHEET AS AT 31 MARCH 2021

2021 2020
Note £ £ £ £
FIXED ASSETS
Tangible assets 11 15,081 36,004
Investments 12 3,607,892 3,833,665
-------------------- --------------------
3,622,973 3,869,669
CURRENT ASSETS
Debtors 13 1,284,579 383,456
Cash at bank 796,167 537,244
----------------- -----------------
2,080,746 920,700
CREDITORS:amounts falling due within
one year 14 (1,390,054) (723,781)
----------------- -----------------------
NET CURRENT ASSETS 690,692 196,919
------------------- -------------------
NET ASSETS 4,313,665 4,066,588
========= ==========
CHARITY FUNDS
Restricted funds NFS 16 - (40,548)
Restricted funds excluding NFS 16 177,546 180,655
Designated fund - legacy 2,600,555 2,672,000
Other unrestricted funds 16 1,535,564 1,254,481
------------------- -------------------
TOTAL FUNDS 4,313,665 4,066,588
========= ==========

The financial statements were approved by the trustees on 28 July 2021 and signed on their behalf, by:

Dr H Cass OBE, Chair

The accompanying notes form part of these financial statements.

The surplus of the parent charity was £246,902 (2020: deficit of £41,669).

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TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)

GROUP STATEMENT OF CASH FLOWS

FOR THE YEAR ENDED 31 MARCH 2021

Note 2021 2020
£ £
Cash inflow from operating activities a (295,121) 3,120,953
========== ==========
Cash flows from investing activities
Interest income 322 3,161
Investment income 50,947 26,091
Purchase of tangible fixed assets (6,141) (8,561)
Purchase of investments (1,000,000) (3,100,000)
Sale of investments 1,500,000 -
---------------------- ----------------------
Cash used in investing activities 545,128 (3,079,309)
Increase in cash and cash equivalents in the 250,007 41,644
year
Cash and short term investments at the beginning 621,398 579,754
of the year
---------------------- ----------------------
TOTAL CASH AND SHORT TERM
INVESTMENTS AT THE END OF THE YEAR 871,405 621,398
========== ==========

a. RECONCILIATION OF NET MOVEMENT IN FUNDS TO NET CASH INFLOW FROM OPERATING ACTIVITIES

2021 2020
£ £
Net income 247,077 1,262,024
Depreciation charge 27,064 37,836
Interest income (322) (3,161)
Investment income (50,947) (26,091)
Gain on investments (274,227) 29,751
(Increase)/decrease in debtors (915,660) 1,379,472
Increase in creditors 671,894 441,122
---------------------- ----------------------
Net cash inflow from operating activities (295,121) 3,120,953
========== ==========

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TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee) NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2021

1. ACCOUNTING POLICIES

The principal accounting policies adopted, judgements and key sources of estimation uncertainty in the preparation of the financial statements are as follows:

1.1. Basis of preparation of the financial statements

Together for Short Lives meets the definition of a public benefit entity under FRS 102. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy notes.

1.2. Preparation of accounts on a going concern basis

The review of our financial position since the introduction of the COVID-19 control measures has included forecasting income, expenditure and cashflow, access to available unrestricted funds and detailed planning for potential future events, The trustees consider there are no material uncertainties about the Charity’s ability to continue as a going concern for a period in excess of 12 months from the approval date of these accounts.

1.3. Company Status

Together for Short Lives is a company limited by guarantee, registered as a company in England and Wales (company number 7783702). The members of the company are the trustees named on page 1. In the event of the Together for Short Lives being wound up, the liability in respect of the guarantee is limited to £10 per member of Together for Short Lives.

1.4. Income

All income is recognised once the charity has entitlement to income, it is probable that income will be received and the amount of income receivable can be measured reliably.

Donations and legacies

Donations and gifts are included in full in the Statement of Financial Activities when there is entitlement, probability of receipt and the amount of income receivable can be measured reliably.

Gifts in kind

Gifts in kind represent assets donated for distribution or use by the charity. Assets given for distribution are recognised as income only when distributed. Assets given for use by the charity are recognised when receivable. Gifts in kind are valued at the amount actually realised from the disposal of the assets or at the price the charity would otherwise have paid for the assets.

Grants

Grants are recognised in full in the Statement of Financial Activities in the year in which the charity has entitlement to the income, the amount of income receivable can be measured reliably and there is probability of receipt.

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TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee) NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2021

1. ACCOUNTING POLICIES (continued)

Income from charitable activities

Income from charitable activities is recognised as earned as the related services are provided. Income from other trading activities is recognised as earned as the related goods are provided.

Investment income

Investment income is recognised on a receivable basis once the amounts can be measured reliably.

1.5. Expenditure

Expenditure is recognised once there is a legal or constructive obligation to make a payment to a third party, it is probable that settlement will be required and the amount of the obligation can be measured reliably. Expenditure is classified under the following activity headings:

Irrecoverable VAT is charged as a cost against the activity for which the expenditure was incurred.

Expenditure is allocated to the particular activity where the cost relates directly to that activity. However, the cost of overall direction and administration of each activity, comprising the salary and overhead costs of the central function, is apportioned based on staff time attributable to each activity.

Expenditure on raising funds for children’s hospice services through the National Fundraising Scheme (NFS) is included under “Expenditure on charitable activities”, as these are costs that we incur in supporting the children's palliative care sector and so are part of delivering our charitable purpose.

1.6. Allocation of costs

Staff costs are allocated between direct charitable expenditure and support costs based on the time spent on these activities. Other costs are allocated directly to the relevant heading.

1.7. Operating leases

1.8. Fund accounting

General funds are unrestricted funds which are available for use at the discretion of the trustees in furtherance of the general objectives of the company and which have not been designated for other purposes.

Designated funds comprise unrestricted funds that have been set aside by the trustees for particular purposes. The aim and use of each designated fund is set out in the notes to the financial statements.

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TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee) NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2021

1. ACCOUNTING POLICIES (continued)

Restricted funds are funds which are to be used in accordance with specific restrictions imposed by donors or which have been raised by the company for particular purposes. The costs of raising and administering such funds are charged against the specific fund. The aim and use of each restricted fund is set out in the notes to the financial statements.

Investment income, gains and losses are allocated to the appropriate fund.

1.6. Employee benefits

Short term benefits

Short term benefits including holiday pay are recognised as an expense in the period in which the service is received.

Employee termination benefits

Termination benefits are accounted for on an accruals basis and in line with FRS 102. Pension scheme

Together for Short Lives operates a defined contribution pension scheme for the benefit of its employees. The assets of the scheme are held independently from those of the Charity in an independently administered fund. The pensions costs charged in the financial statements represent the contributions payable during the year.

1.7. Basis of consolidation

The financial statements consolidate the accounts of Together for Short Lives and its subsidiary undertaking Together for Short Lives (Trading) Ltd. The company has taken advantage of the exemption contained within 408 of the Companies Act 2006 not to present its own Income and Expenditure Account.

1.8. Investments

Investments are stated at market value at the balance sheet date. The Statement of Financial Activities includes the net gains and losses arising on revaluations and disposals throughout the year.

Investments in subsidiaries are valued at cost less provision for impairment. Monies held in deposit accounts are classified as investments within current assets.

1.9. Tangible fixed Assets and depreciation

Fixed assets are initially recorded at cost. Expenditure on fixed assets costing £1,000 or less is written off as incurred.

Tangible fixed assets are stated at cost less depreciation. Depreciation is provided at rates calculated to write off the cost of fixed assets, less their estimated residual value, over their expected useful lives on the following bases:

Leasehold improvements - Straight line over the period of the lease Fixtures and fittings - 25% straight line Office equipment - 33.3% straight line

1.10. Debtors

Trade and other debtors are recognised at the settlement amount due after any trade discount offered. Prepayments are valued at the amount prepaid net of any trade discounts due.

33

TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee) NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2021

1. ACCOUNTING POLICIES (continued)

1.11. Creditors and provisions

Creditors and provisions are recognised where the charity has a present obligation resulting from a past event that will probably result in the transfer of funds to a third party and the amount due to settle the obligation can be measured or estimated reliably. Creditors and provisions are normally recognised at their settlement amount after allowing for any trade discounts due.

1.12. Critical accounting judgements and key sources of estimation uncertainty

In the application of the charity's accounting policies, the Trustees are required to make judgements, estimates and assumptions about the carrying amounts of assets and liabilities that are not readily apparent from other sources. The estimates and associated assumptions are based on historical experience and other factors that are considered to be relevant. Actual results may differ from these estimates. The estimates and underlying assumptions are reviewed on an ongoing basis. Revisions to accounting estimates are recognised in the period in which the estimate is revised if the revision affects only that period, or in the period of the revision and future periods if the revision affects both current and future periods.

Critical judgements – legacy income recognition

During the year, the charity received notification of a residual legacy. The administration of the estate remains ongoing. In the Trustees judgement there is insufficient information available to measure the legacy due to the charity and therefore only the interim distribution received after the year end has been recognised in these accounts.

The trustees do not consider there are any other critical judgements or sources of estimation uncertainty requiring disclosure beyond the accounting policies listed above.

34

TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee) NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2021

2. ANALYSIS OF INCOME

Restricted
Funds
Unrestricted
Designated		 excluding Restricted Total Total
funds Funds NFS Funds NFS funds funds
2021 2021 2021 2021 2021 2020
£ £ £ £ £ £
Donations and
legacies
Donations 133,844 - 163,968 1,749,340 2,047,152 1,409,680
Legacies 29,163 - - - 29,163 1,379,578
Grants 337,768 - 349,923 - 687,691 763,753
------------------- ------------------- ------------------- ------------------- ------------------- -------------------
500,775 - 513,891 1,749,340 2,764,006 3,553,011
------------------- ------------------- ------------------- ------------------- ------------------- -------------------
Other trading
activities
Licensing 40,444 - - 8,164 48,608 141,947
Fundraising events 285,233 - - - 285,233 581,393
------------------- ------------------- ------------------- ------------------- ------------------- -------------------
325,677 - - 8,164 333,841 723,340
------------------- ------------------- ------------------- ------------------- ------------------- -------------------
Investments
Bank interest 322 - - - 322 3,161
Investment income 50,947 - - - 50,947 26,091
------------------- ------------------- ------------------- ------------------- ------------------- -------------------
51,269 - - - 51,269 29,252
------------------- ------------------- ------------------- ------------------- ------------------- -------------------
Charitable activities
Membership fees 34,802 - - - 34,802 34,944
Conferences - - - - - -
------------------- ------------------- ------------------- ------------------- ------------------- -------------------
34,802 - - - 34,802 34,944
------------------- ------------------- ------------------- ------------------- ------------------- -------------------
Other income 24,204 - - - 24,204 50,515
------------------- ------------------- ------------------- ------------------- ------------------- -------------------
Total income 936,727 - 513,891 1,757,504 3,208,122 4,391,063
========= ========= ========= ========= ========= ==========

Comparative analysis for 2020

In 2020, no donations income in 2020 was restricted (excluding NFS), £869,041 was restricted to NFS and £540,639 was unrestricted with £nil recognised in designated funds.

£93,790 of fundraising events income was restricted to NFS.

£349,923 of Grants income was restricted (excluding NFS). All other income in 2020 was unrestricted.

35

TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee) NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2021

3. NET INCOME FROM TRADING ACTIVITIES OF SUBSIDIARY

Together for Short Lives owns 100% of the called up share capital of Together for Short Lives (Trading) Limited, a trading company registered in England and Wales, company number 06434214. A summary of the trading results of Together for Short Lives (Trading) Limited for the year ended 31 March 2021 is shown below. All taxable profits have been transferred to the Charity.

2021 2020
£ £
Turnover 47,124 66,620
Administrative expenses (9,188) (9,250)
----------------- -----------------
Profit after tax 37,936 57,370
Payment under gift aid (37,936) (57,370)
------------------ ------------------
Retained profit carried forward - -
========= ==========

At 31 March 2021 the total of share capital and reserves for the company was £5,000 (2020: £5,000). Net assets were £75,236 (2020: £84,154) and net liabilities were £70,236 (2020: £79,154).

4. ANALYSIS OF EXPENDITURE

Direct costs Direct costs Support
Grants Other costs costs Total Total
2021 2021 2021 2021 2020
£ £ £ £ £
Raising funds
Raising funds for our core work - 247,297 113,398 360,695 703,559
Raising funds for NFS income - 44,787 17,550 62,337 74,439
------------------ ------------------ ----------------- ------------------- -------------------
- 292,084 130,948 423,032 777,998
Charitable Activities
National Charitable Activities - 660,530 302,888 963,418 1,172,339
Cost of generating income for
children’s hospice (NFS)		 - 253,794 99,450 353,244 338,394
Grants – National Fundraising
Scheme (NFS)		 1,150,478 - - 1,150,478 465,734
Grants – Improving Transition for
Young People Awards		 160,500 - - 160,500 327,123
Grants – Butterfly Fund 84,600 - - 84,600 17,700
Grants – Relief Fund 100,000 - - 100,000 -
------------------ ------------------ ----------------- ------------------- -------------------
Charitable activities 1,495,578 914,325 402,337 2,812,240 2,321,290
------------------ ------------------ ----------------- ------------------- -------------------
------------------ ------------------- ----------------- ------------------- -------------------
1,495,578 1,206,409 533,285 3,235,272 3,099,288
========= ========= ======== ========= =========

36

TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2021

4. ANALYSIS OF EXPENDITURE (Continued)

Direct costs Direct costs Support
Grants Other costs costs Total
2020 2020 2020 2020
Comparative analysis for 2020 £ £ £ £
Raising funds
Raising funds for our core work - 423,011 280,548 703,559
Raising funds for NFS income - 56,852 17,587 74,439
------------------ ------------------ ----------------- -------------------
- 479,863 298,135 777,998
Charitable Activities
National Charitable Activities - 926,743 245,596 1,172,339
Cost of generating income for children’s
hospice (NFS)		 - 238,981 99,413 338,394
Grants – National Fundraising Scheme (NFS) 465,734 - - 465,734
Grants – Improving Transition for Young
People Awards		 327,123 - - 327,123
Butterfly Fund Grants 17,700 - - 17,700
------------------ ------------------ ----------------- -------------------
Charitable activities 810,557 1,165,724 345,009 2,321,290
------------------ ------------------ ----------------- -------------------
------------------ ------------------- ----------------- -------------------
810,557 1,645,587 643,144 3,099,288
========= ========= ======== =========

In 2020, £74,439 of expenditure on raising funds was restricted to NFS, and £703,559 was unrestricted.

£810,557 of expenditure on charitable activities was restricted, £338,394 was restricted to NFS and £1,172,339 was unrestricted.

5. ANALYSIS OF SUPPORT COSTS

.
ANALYSIS OF SUPPORT COSTS
Total Total
2021 2020
£ £
Staff costs 281,999 269,350
Depreciation 27,065 37,836
Governance costs 42,560 51,763
Other administrative costs 181,661 284,195
----------------- -----------------
533,285 643,144
========= =========

37

TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2021

6. GRANTS TO INSTITUTIONS

Unrestricted Unrestricted Restricted Restricted Total Funds Total Funds
Funds 2021 Funds Funds NFS 2021 2020
£ excluding 2021 £ £
NFS 2021 £
£
National Fundraising
Scheme (NFS) - - 1,150,478 1,150,478 465,734
Improving Transitions for
Young People Fund - 160,500 - 160,500 327,173
Butterfly Fund Grants - 84,600 - 84,600 17,700
Relief Fund Grants - 100,000 - 100,000 -
------------------- ---------------- ---------------- ---------------- ----------------
- 345,100 1,150,478 1,495,578 810,557
========== ======== ======= ======== =========

Grants payable under the National Fundraising Scheme are made to member charities providing children's palliative care services across the UK in line with donor wishes.

We continued to award grants from our Improving Transitions for Young People Fund. We have secured a total of £1m for this fund that will be distributed over the next year.

7. GOVERNANCE COSTS Total Total
funds funds
2021 2020
£ £
Auditors' remuneration 14,360 15,109
Meeting costs - 3,304
Trustees travel reimbursed - 6,415
Wages and salaries 23,441 22,390
Employers NI 3,235 3,090
Pension costs 1,524 1,455
---------------- ----------------
42,560 51,763
======== =========
8. NET INCOME/(EXPENDITURE) 2021 2020
£ £
This is stated after charging:
Depreciation of tangible fixed assets: 27,064 37,836
Auditors’ remuneration 14,360 13,495
Operating lease payments 31,371 50,517
======== =========

During the year, no trustees received any remuneration (2020 - no trustees). During the year, no trustees received any benefits in kind (2020 – no trustees).

During the year, no trustees received any reimbursement of expenses for travel, accommodation and subsistence (2020: 15 trustees - £6,416).

38

TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee) NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2021

9. AUDITORS’ REMUNERATION 2021 2020
£ £
Fees payable to the charity's auditor for the audit of the charity's
annual accounts 8,925 8,450
Fees payable to the charity's auditor in respect of:
Together for Short Lives (Trading) Ltd 3,335 2,225
Non audit services 2,100 2,820
======== =========
10. STAFF COSTS 2021 2020
£ £
Staff costs were as follows:
Wages and salaries 1,046,612 1,053,005
Social security costs 101,655 102,917
Other pension costs 64,450 70,483
--------------------- ---------------------
1,212,717 1,226,405
========== ==========
The average monthly number of employees during the year was as follows:
No. No.
25 30
======== =======
The number of higher paid employees was:
In the band £60,001 - £70,000 3 2
In the band £70,001 - £80,000 2 -
In the band £80,001 - £90,000 1
In the band £90,001 - £100,000 1 -
---------------- ----------------
6 3
======== =======

Key management remuneration

The total employee benefits of the key management personnel of the Group were £389,932 (2020: £343,728).

39

TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2021

11. TANGIBLE FIXED ASSETS

Leasehold Leasehold
property
Fixtures and		 Office
improvements fittings equipment Total
Group and Charity £ £ £ £
Cost
At 1 April 2020 85,059 18,512 89,069 192,640
Additions - - 6,141 6,141
---------------- ----------------- ---------------- ----------------
At 31 March 2021 85,059 18,512 95,210 198,781
---------------- ----------------- ---------------- ----------------
Depreciation
At 1 April 2020 74,095 18,512 64,029 156,636
Charge for the year 10,964 - 16,100 27,064
---------------- ----------------- ---------------- ----------------
At 31 March 2021 85,059 18,512 80,129 183,700
---------------- ----------------- ---------------- ----------------
Net book value
At 31 March 2021 - - 15,081 15,081
======== ======== ======== ========
At 31 March 2020 10,964 - 25,040 36,004
======== ======== ======== ========
12. FIXED ASSET INVESTMENTS
Money Market Listed
Fund securities Total Total
2021 2021 2021 2020
£ £ £ £
Group
Market value
At 1 April 721,118 3,107,547 3,828,665 758,416
Additions 1,000,000 - 1,000,000 3,100,000
Disposals - (1,500,000) (1,500,000) -
Revaluations 273,472 755 274,227 (29,751)
-------------------- -------------------- -------------------- --------------------
At 31 March 1,994,590 1,608,302 3,602,892 3,828,665
========= ========= ========= =========
Group investments at market value comprise: 2021 2020
£ £
Money Market Fund 1,994,590 3,107,547
Listed investments 1,608,302 721,118
========== ==========

All the fixed asset investments are held in the UK

40

TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2021

12. FIXED ASSET INVESTMENTS (continued) FIXED ASSET INVESTMENTS (continued)
Money Market Listed Investments
Fund securities in subsidiary Total
2021 2021 2021 2021
£ £ £ £
Charity
Market value
At 1 April 721,118 3,107,547 5,000 3,833,665
Additions 1,000,000 - - 1,000,000
Disposals - (1,500,000) - (1,500,000)
Revaluations 273,472 755 - 274,227
-------------------- -------------------- -------------------- --------------------
At 31 March 1,994,590 1,608,302 5,000 3,607,892
========= ========= ========= =========

All the fixed asset investments are held in the UK.

Comparative analysis for 2020

Money Market Listed Investments
Fund securities in subsidiary Total
2020 2020 2020 2020
£ £ £ £
Charity
Market value
At 1 April - 758,416 5000 763416
Additions 3,100,000 - - 3,100,000
Revaluations 7,547 (37,298) - (29,751)
-------------------- -------------------- --------------- --------------------
At 31 March 3,107,547 721,118 5,000 3,833,665
========= ========= ======= =========
All the fixed asset investments are held in the UK.
13. DEBTORS Group Charity
2021 2020 2021 2020
£ £ £ £
Trade debtors 19,350 13,764 19,350 13,764
Amounts owed by group undertakings - - 61,091 75,629
Other debtors 12,912 9,784 12,912 9,783
Prepayments and accrued income 1,191,226 284,280 1,191,226 284,280
----------------- ----------------- ------------------- -------------------
1,223,488 307,828 1,284,579 383,456
======== ======== ========= ========

41

TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2021

14. CREDITORS: amounts falling due Group Group Charity Charity
within one year 2021 2020 2021 2020
£ £ £ £
Trade creditors 54,168 37,158 54,168 37,158
Other taxation and social security 36,244 34,301 30,553 34,301
Other creditors 23,695 21,073 23,695 21,073
Accruals and deferred income 1,285,094 634,775 1,281,638 631,249
----------------- ----------------- ----------------- -----------------
1,399,201 727,307 1,390,054 723,781
========= ========= ========= ========
15. ANALYSIS OF DEFERRED INCOME Group Charity
2021 2020 2021 2020
£ £ £ £
Deferred income at 1 April 68,153 110,729 68,153 110,729
Released to income in the year (68,153) (110,729) (68,153) (110,729)
Deferred in the year 1,519 68,153 1,519 68,153
----------------- ----------------- ----------------- -----------------
Deferred income at 31 March 1,519 68,153 1,519 68,153
======== ========= ======== ========

Deferred income in 2021 relates to income from the Association for Paediatric Palliative Medicine (APPM). Deferred income in 2020 related to grants received in advance and conference income.

42

TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2021

16. STATEMENT OF FUNDS

----- Start of picture text -----
|||||||| |---|---|---|---|---|---|---| |Brought|Transfers|Gains/|Carried| |Forward|Income|Expenditure|in/(out)|(Losses)|Forward| |£|£|£|£|£|£| |Designated funds| |Designated fund - Legacy|2,672,000|-|(71,445)|-|-|2,600,555| |Fixed asset fund|36,004|-|(27,065)|6,142|-|15,081| |General funds| |General Funds|1,218,477|936,727 (1,065,694)|156,746|274,227|1,520,483| |-------------------|----------------- ---------------------|------------------|------------------|-------------------| |Total Unrestricted funds|3,926,481|936,727 (1,164,204)|162,888|274,227|4,136,119| |----------------------|----------------- ---------------------|------------------|------------------|-------------------|

----- End of picture text -----

Purpose of designated funds

The Fixed Asset fund

This fund relates to fixed assets and therefore is not available to cover the ongoing costs of the Charity, the balance is equal to the net book value in the accounts of fixed assets held by the charity.

Legacy fund

During the year the charity received the second and final payment of £1,272k of the large legacy notified in 2020. The trustees have designated this legacy to be invested in key strategic areas for children's palliative care – see Trustees’ Annual Report.

----- Start of picture text -----
||||||||| |---|---|---|---|---|---|---|---| |Brought|Transfers|Gains/|Carried| |Forward|Income|Expenditure|in/(out)|(Losses)|Forward| |£|£|£|£|£|£| |Restricted funds: National| |Fundraising Scheme| |Restricted NFS|(40,548) 1,757,504 (1,566,059)|(150,897)|-|-| |----------------------|-----------------|-----------------|------------------|------------------|-------------------| |Other restricted funds| |B|utterfly Fund|56,948|31,992|(103,046)|27,389|-|13,283| |Transition Grants|98,307|243,787|(223,711)|13,889|-|132,272| |Family information & support|25,400|-|-|(27,300)|-|(1,900)| |Relief Fund|-|100,000|(100,000)|-|-|-| |National Lottery|-|46,799|(32,580)|(14,126)|-|93| |Other restricted funds|-|91,313|(45,672)|(11,843)|-|33,798| |-------------------|-----------------|-----------------|------------------|------------------|-------------------| |180,655|513,891|(505,009)|(11,991)|-|177,546| |----------------------|-----------------|-----------------|------------------|------------------|-------------------|

----- End of picture text -----

43

TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2021

16. STATEMENT OF FUNDS (CONTINUED)

Purpose of Restricted funds

Restricted NFS

The National Fundraising Scheme (NFS) is concerned with raising funds for distribution to children’s hospice services. Further details on the income and costs of the scheme can be found in notes 2, 4 and 6.

Butterfly fund

This Fund provides grants of £300 to bereaved families, and is fully funded by a number of supporters.

Transition Grants

This is our funding programme which seeks to address the significant difference in care experienced by young adults in their transition from children’s to adult services.

Family Information and Support

We also received generous support for our Family Information and Support work this year from a number of funders supporting our helpline, advocacy service and information and resources that we provide for families. The deficit at the end of the year will be covered by income received in 2021-22.

Relief fund

The Relief fund was established in May 2020 in response to COVID-19 to provide 500 grants of £200 to families in need. The funding was provided by a number of trusts and foundations, individuals and companies and all the funds were distributed within 3 months.

National Lottery

This grant has enabled us to support families during COVID-19 by increasing capacity and access to the helpline (including LiveChat), expanding peer support and online communities, providing up to date information on COVID-19 and connecting and supporting the palliative care services that the families use.

Other restricted funds

Other restricted funds are immaterial amounts granted for restricted purposes; these include grants awarded by NHS England, the Scottish Government and Hospice UK.

Fund Transfers

The transfers from the general fund to the Fixed Asset Designated fund, was required to maintain the balance in the Fixed Asset Fund equal to the net book value of fixed assets in the balance sheet.

The transfer from the National Fundraising Scheme (NFS) Fund to the General Fund represents the share of NFS net income that will go towards the core work of the charity. The proportion of NFS income that is used for our core work varies among the different corporate partners, but is usually 15% of the total net income raised.

The transfer into the Butterfly fund from the general fund represents running costs of the fund. Both the Family and Information and Support and Voices for Families funds were included in the Transitions fund balance in 2019-20. These have been separated out in 20-21.

Funds representing the marketing and materials and support costs for the National Lottery Fund have been transferred from that fund into the general fund.

44

TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee)

NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2021

16. STATEMENT OF FUNDS (CONTINUED)

Comparative analysis for 2020

Brought Transfers Gains/ Carried
Forward Income Expenditure in/(out) (Losses) Forward
£ £ £ £ £ £
Designated funds
Fixed asset fund 65,280 - (37,836) 8,561 - 36,004
Designated fund - Legacy 1,400,000 1,272,000 - - - 2,672,000
General funds
General Funds 1,331,711 1,736,275 (1,811,148) 73,830 (29,751) 1,300,918
------------------- ----------------- --------------------- ------------------ ------------------ -------------------
Total Unrestricted funds 2,796,991 3,008,275 (1,848,984) 82,391 (29,751) 4,008,922
---------------------- ----------------- --------------------- ------------------ ------------------ -------------------
Restricted funds: National
Fundraising Scheme
Restricted NFS (42,421) 962,831 (960,958) (82,391) - (122,939)
---------------------- ----------------- ----------------- ------------------ ------------------ -------------------
Other restricted funds
Transition Grants 52,294 400,000 (353,987) - - 98,307
Butterfly Fund - 74,648 (17,750) - - 56,898
Family information & support (2,300) 27,700 - - - 25,400
------------------- ----------------- ----------------- ------------------ ------------------ -------------------
49,994 502,348 (371,737) - - 180,605
---------------------- ----------------- ----------------- ------------------ ------------------ -------------------

45

TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee) NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2021

17. ANALYSIS OF NET ASSETS BETWEEN FUNDS

Restricted
Unrestricted Funds Restricted Total
funds excluding NFS Funds NFS funds
2021 2021 2021 2021
£ £ £ £
Tangible fixed assets 15,081 - - 15,081
Fixed asset investments 3,602,892 - - 3,602,892
Current assets 1,917,347 177,546 - 2,094,893
Creditors due within one year (1,399,201) - - (1,399,201)
-------------------- ---------------- ---------------- ---------------------
4,136,119 177,546 - 4,313,665
========== ======== ======== ==========
rative analysis for 2020:
Restricted
Unrestricted Funds Restricted Total
funds excluding NFS Funds NFS funds
2020 2020 2020 2020
£ £ £ £
Tangible fixed assets 36,004 - - 36,004
Fixed asset investments 3,828,665 - - 3,828,665
Current assets 789,119 180,555 (40,548) 929,226
Creditors due within one year (727,307) - - (727,307)
-------------------- ---------------- ---------------- ---------------------
3,926,481 180,555 (40,548) 4,066,588
========== ======== ======== ==========

Comparative analysis for 2020:

18. PENSION COMMITMENTS

Employer's pension contributions paid in the year ended 31 March 2021 were £60,450 (2020: £70,483). Amounts shown in other creditors at the balance sheet date in respect of pension contributions outstanding were £10,793 (2020: £9,095).

46

TOGETHER FOR SHORT LIVES (A Company Limited by Guarantee) NOTES TO THE FINANCIAL STATEMENTS FOR THE YEAR ENDED 31 MARCH 2021

19. OPERATING LEASE COMMITMENTS

At 31 March 2021 the group had annual commitments under non-cancellable operating leases as follows:

follows:
Land and buildings Equipment
2021 2020 2021 2020
Group and charity £ £ £ £
Within 1 year - 30,311 1,060 1,060
Between 2 and 5 years - - 530 1,590
------------------ ------------------ ------------------- -------------------
- 30,311 1,590 2,650
========= ========= ========= =========

At 31 March 2021 the group was entitled to receive the following income under non-cancellable operating leases:

2021 2020
Group and Charity £ £
Within 1 year - 11,513
------------------ ------------------
- 11,513
========= =========

20. RELATED PARTY TRANSACTIONS

Several trustees of Together for Short Lives are also either trustees or employees of member charities. Some of these charity members benefit from grants under the National Fundraising Scheme (NFS), but the trustees do not benefit personally. Trustees set the rules of the scheme which determine how the money raised is shared among members, but they are not involved in specific decisions about how NFS money is distributed.

During the year the charity charged its trading subsidiary, Together for Short Lives Trading Limited, £4,897 (2020: £4,707) for management and licensing costs.

£50 donations relating to a charity auction were received from trustees in the year (2020: £1,500 donations were received from trustees in the year).

47