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2021-12-31-accounts

Page
Reference and administration
details
Chairman's statement
Trustee's
report (including
director's		 report)
Independent auditor's
report		 12
Consolidated statement
offinancial		 activities
Consolidated and Charity statement offinancial position 16
Consolidated statement
ofcash flows		 17
Notes to the consolidated
statement		 ofcash flows 18
Notes to the financial statements 19

Unrestricted Restricted 2021 2020
funds funds Total Total
funds funds
Note 6 F
INCOME
Voluntaryincome:
Donations
& legacies		 207,415 207,415 296,209
Activities forgenerating funds:
Charitable
activities		 52,163 282,355 334,518 710,104
Other trading
activities		 871,319 871,319 1,023,060
Investment
income		 29,994 29,994 26,073
TOTAL INCOME 1,160,891 282,355 1,443,246 2,055,446
EXPENDITURE
Raising funds:
Fundraising
cost of		 grants 8, donations 71,148 71,148 75,892
Fundraising
activities		 69,045 69,045 80,405
Trading
activities		 457,695 457,695 481,193
597,888 597,888 637,490
Charitable
activities:
Advocacy services 8 member events 45,533 425,003 470,536 488,171
Awareness
raising		 160,353 160,353 124,486
Trading
activities —Patients		 support 256,206 256,206 167,301
462,092 425,003 887,095 779,958
Other costs 9 96,268 96,268 95,694
TOTAL EXPENDITURE 1,156,248 425,003 1,581,251 1,513,142
NET INCOME/(EXPENDITURE) 4,643 (142,648) (138,005) 542,304
RECONCILIATION OF FUNDS
Total funds
brought		 forward 2,638,967 318,050 2,957,017 2,414,713
TOTAL FUNDS CARRIED FORWARD 2,643,610 175,402 2,819,012 2,957,017

31 December 2 02 1
2021 2021 2020 2020
Note Groupf Charityf Groupf Charityf
FIXEDASSETS
Tangible assets 17 1,061,737 1,060,465 1,089,612 1,089,040
Investments 18 315,348 315,350 310,897 310,899
1,377,085 1,375,815 1,400,509 1,399,939
CURRENT ASSETS
Debtors 19 315,097 354,679 307,159 610,215
Cash at bank and in hand 20 1,701,427 1,160,157 2,027,320 1,007,555
2,016,524 1,514,836 2,334,479 1,617,770
CREDITORS
Amounts
falling due within one
year		 574,597 71,639 777,971 60,692
NET CURRENT ASSETS 1,441,927 1,443,197 1,556,508 1,557,078
NET ASSETS 2,819,012 2,819,012 2,957,017 2,957,017
FUNDS 23
Unrestricted
Funds:
General charitable funds 750,000 750,000 750,000 750,000
Property
funds		 1,055,811 1,055,811 1,084,520 1,084,520
Designated
funds		 837,799 837,799 804,447 804,447
2,643,610 2,643,610 2,638,967 2,638,967
Restricted
Funds		 175,402 175,402 318,050 318,050
TOTAL FUNDS 2,819,012 2,819,012 2,957,017 2,957,017

2021 2020
Notes 6
Cash flows from operating activities:
Cash generated
from operations		 (315,733) 1,185,958
Interest paid (5,401)
Net cash provided
by (used in) operating
activities		 (315,733) 1,180,557
Cash flows from investing activities:
Purchase oftangible
fixed assets		 (5,709)
Investment
in bonds		 (4,451) (4,797)
Net cash provided
by (used in) investing
activities		 (10,150) (4,797)
Change
in cash and cash
the reporting
period		 equivalents in (325,893) 1,175,760
Cash and cash equivalents
beginning
ofthe reporting		 at the
period		 2,027,320 851,560
Cash and cash equivalents
the reporting
period		 at the end of 1,701,427 2,027,320

2021 2020
K E
Net income for the reporting
period (as per the
statement
offinancial activities)		 (138,005) 542,304
Adjustments
for:
Interest paid 5,401
Depreciation 33,584 33,385
Loss on disposal of fixed assets 520
Decrease/(increase) in debtors (7,938) 359,063
Increase/(decrease) in creditors (203,374) 245,285
Net cash provided
activities		 by (used in) operating (315,733) 1,185,958
2 ANALYSIS OF CHANGES
IN NET FUNDS
2021 2020
E
Cash
in hand		 1,791 2,289
Bank accounts 1,699,636 2,025,031
Total cash and cash equivalents 1,701,427 2,027,320

2021 2021 2021 2020 2020 2020
Unrestricted Restricted Total Unrestricted Restricted Total
fund
f		 fund
f		 funds fund fundf fundsf
Donations 189,116 189,116 146,265 40,567 186,832
Legacies 18,299 18,299 109,377 109,377
207,415 207,415 146,265 149,944 296,209
INCOME FROM CHARITABLE ACTIVITIES
2021 2021 2021 2020
Unrestricted Restricted Total Total
fund fund funds funds
F f f
Advocacy support grants 52,163 238,830 290,993 655,004
Conferences and Expert meetings 6,025 6,025 33,500
Physiological support 32,500 32,500
MPS awareness 5,000 5,000
Family support special events 11,600
Other income 10,000
52,163 282,355 334,518 710,104

2020 2020 2020
Unrestricted Restricted Total
fund fund funds
Advocacy support grants 93,194 561,810 655,004
Conferences and Expert meetings 33,500 33,500
Family support special events 11,600 11,600
Other income 10,000 10,000
114,794 595,310 710,104
5.
OTHER		 TRADING ACTIVITIES
2021f 2020
f
Survey income in subsidiary 240,394 288,928
Management fees in subsidiary 630,428 733,316
Miscellaneous trading 497 816
871,319 1,023,060

2021 2020
F 6
Rent receivable 25,424 20,672
Interest receivable 4,570 5,401
29,994 26,073
All investment income is recorded in the unrestricted fund.
7.
EXPENDITURE ON		 RAISING FUNDS
Fundraising Commercial
Grants & Fundraising Trading Total Total
Note Donations Events Activity 2021 2020
E E 6 6
Staff costs 15 20,356 37,269 384,310 441,935 459,426
Direct costs 10 33,480 14,464 43,482 91,426 107,853
Depreciation 17 3,273 3,273 1,208 7,754 7,564
Support costs 11 14,039 14,039 28,695 56,773 62,647
71,148 69,045 457,695 597,888 637,490
Attributable to:
Unrestricted funds 71,148 69,045 457,695 597,888 637,490
Restricted funds
71,148 69,045 457,695 597,888 637,490
EXPENDITURE ON RAISING FUNDS —2020 COMPARATIVES
Fundraising Commercial
Grants & Fundraising Trading Total
Note Donations Events Activity 2020
E E f
Staff costs 15 24,080 44,977 390,369 459,426
Direct costs 10 32,475 16,092 59,286 107,853
Depreciation 17 3,227 3,226 1,111 7,564
Support costs 11 16,110 16,110 30,427 62,647
75,892 80,405 481,193 637,490
Attributable to:
Unrestricted funds 75,892 80,405 481,193 637,490
Restricted funds
75,892 80,405 481,193 637,490

Advocacy Commercial Commercial
&Members Awareness Trading Activity Total Total
Note Events Raising
8		 Patient Support
F		 2021 2020
Staff costs
Direct costs		 15
10		 355,318
28,654		 97,527
36,857		 256,206 709,051
65,511		 546,753
98,116
Research grants
Depreciation		 12
17		 16,368 4,910 21,278 9,400
20,980
Support costs 11 70,196 21,059 91,255 104,709
470,536 160,353 256,206 887,095 779,958
Attributable to:
Unrestricted funds 45,533 160,353 256,206 462,092 304,084
Restricted funds 425,003 425,003 475,874
470,536 160,353 256,206 887,095 779,958
EXPENDITURE ON CHARITABLE ACTIVITIES —2020 COMPARATIVES
Advocacy Commercial Commercial
&Members Awareness Trading Activity Total
Note Events
f		 Raising
F		 Patient Support 2020
f
Staff costs 15 296,353 83,099 167,301 546,753
Direct costs 10 85,733 12,383 98,116
Research grants 12 9,400 9,400
Depreciation 17 16,139 4,841 20,980
Support costs 11 80,546 24,163 104,709
488,171 124,486 167,301 779,958
Attributable to:
Unrestricted funds 12,297 124,486 167,301 304,084
Restricted funds 475,874 475,874
488,171 124,486 167,301 779,958

Management Management
&Governance Total &Governance Total
Note 2021 2021 2020 2020
E E
Staff costs 15 49,504 49,504 49,816 49,816
Direct costs 10 20,794 20,794 16,873 16,873
Depreciation 17 4,552 4,552 4,841 4,841
Support costs 11 21,418 21,418 24,164 24,164
96,268 96,268 95,694 95,694
Attributable to:
Unrestricted funds 96,268 96,268 95,694 95,694
Restricted funds
96,268 96,268 95,694 95,694
10.
ALLOCATION
O		 F DIRECT COSTS
Total Total
Note Funds Funds
2021 2020
Advocacy travel 3,210
Conference
and expert		 meetings 1,876 6,196
Support
& support events		 14,586 59,456
Communications 40,047 12,383
MPS awareness 8,459
Fundraising
expenses		 14,464 16,092
Donations
and tributes		 in memory 224 3,208
Management
&Governance		 20,794 16,873
Survey costs 43,482 59,286
LSD collaborative 833
Grant consultancy
costs		 33,480 32,475
Patient welfare gifts 319 12,830
177,731 222,842
Attributable
to raising funds		 7 91,426 107,853
Attributable
to charitable		 activities 8 65,511 98,116
Attributable
to other costs		 9 20,794 16,873
177,731 222,842

the Year Ended 31December 2021 the Year Ended 31December 2021 the Year Ended 31December 2021 the Year Ended 31December 2021 the Year Ended 31December 2021 the Year Ended 31December 2021
11.
ALLOCATION
OF SUPPORT COSTS
Note 2021 2020
E
Recruitment
&training costs		 18,139 10,566
General office expenses 58,652 91,647
Insurance 19,936 11,180
Subscriptions 437 432
Staff welfare 8,788 10,081
Computer
expenses
and		 software 24,784 32,469
Professional
fees		 12,350 7,812
Bank charges 7,432 5,887
Bad debts 42
Travel and subsistence 2,411 485
Consultancy
expenses		 9,317 13,499
Auditors
remuneration		 7,200 6,900
Loss on disposal ofasset 520
169,446 191,520
Attributable
to raising funds		 56,773 62,647
Attributable
to charitable		 actiwties 91,255 104,709
Attributable
to other costs		 21,418 24,164
169,446 191,520
12.
GRANTS PAYABLE
2021 2020
6
Grants and donations 9,400
Grants payable to institutions
2021 2020
f 6
Salford Royal NHS Foundation Trust 9,400
In 2020, grants
were awarded		 for research into the use of a digital microfluidics plafform for the rapid
assessment
of lysosomal		 enzyme activity and research into how hydrotherapy can help alleviate pain and
improve
mobility
in patients		 with MPS conditions. Grants payable costs have all been attributed to
charitable
activity expenditure.
13.
NET INCOME/(EXPENDITURE)
Net income/(expenditure) is stated after charging/(crediting):
2021 2020
6
Auditors'
remuneration		 6,000 6,900
Auditors'
remuneration		 —non audit services 1,200
Depreciation 33,584 33,385

2021 t
5.		 hese totalled F1,560 (2020:F
STAFF COSTS		 2,044) for all trustees.
Group Charity
2021 2020 2021 2020
E E E
Wages and salaries 1,051,363 924,436 493,156 439,017
Social security costs 101,771 88,881 44,105 38,114
Other pension costs 47,356 42,677 22,713 21,193
1,200,490 1,055,994 559,974 498,324
Group Group
2021 2020
Chief executives 2 2 1 1
Administration 4 3 4 3
Advice, information & support 12 14 12 14
Commercial trading operation 15 11
33 30 17 18
The number of higher paid employees (excluding employer pension costs) was as follows:
Group Charity
2021 2020 2021 2020
E E E E

16.
2020 COMPARATIVES		 16.
2020 COMPARATIVES		 16.
2020 COMPARATIVES		 FOR THE STATEMENT OF FINANCIAL STATEMENT OF FINANCIAL ACTIVITIES
Unrestricted Restricted 2020 2019
funds funds Total
funds		 Total
funds
Note 6 6 6 6
INCOME
Voluntaryincome:
Donations
&legacies		 3 146,265 149,944 296,209 180,732
Activities forgenerating funds:
Charitable
activities		 4 114,794 595,310 710,104 512,817
Other trading
activities		 1,023,060 1,023,060 981,856
Investment
income		 6 26,073 26,073 23,362
TOTAL INCOME 1,310,192 745,254 2,055,446 1,698,767
EXPENDITURE
Raising funds:
Fundraising
grants		 & donations 63,563 63,563 63,563
Fundraising
activities		 74,782 74,782 74,782
Trading
activities		 542,882 542,882 542,882
681,227 681,227 681,227
Charitable
activities:
Advocacy services & member events 12,297 475,874 488,171 720,761
Awareness
raising		 124,486 124,486 78,517
Trading
activities		 167,301 167,301
304,084 475,874 779,958 799,278
Other costs 95,694 95,694 100,639
TOTAL EXPENDITURE 1,037,268 475,874 1,513,142 1,581,144
NET INCOME I(EXPENDITURE) 272,924 269,380 542,304 117,623
RECONCILIATION OF FUNDS
Total funds
brought		 forward 2,366,043 48,670 2,414,713 2,229,090
TOTAL FUNDS CARRIED FORWARD 2,638,967 318,050 2,957,017 2,414,713

7.
TANGIBLE FIXEDASSETS
Group Freehold
Land and Plant and
buildings Equipment Totals
E F
COST
At 1 January 2021 1,435,389 57,767 1,493,156
Additions 5,709 5,709
Disposals
At 31 December 2021 1,435,389 63,476 1,498,865
DEPRECIATION
At 1 January 2021 350,869 52,675 403,544
Charge for year 28,708 4,876 33,584
Eliminated
on disposal
At 31 December 2021 379,577 57,551 437,128
NET BOOK VALUE
At 31 December 2021 1,055,812 5,925 1,061,737
At 31 December 2020 1,084,520 5,092 1,089,612
Charity Freehold
Land and Plant and
buildings Equipment Totals
E f 8
COST
At 1 January 2021 1,435,389 49,061 1,484,450
Additions 3,801 3,801
Disposals
At 31 December 2021 1,435,389 52,862 1,488,251
DEPRECIATION
At 1 January 2021 350,869 44,541 395,410
Charge for year 28,708 3,668 32,376
Eliminated
on disposal
At 31 December 2021 379,577 48,209 427,786
NET BOOK VALUE
At 31 December 2021 1,055,812 4,653 1,060,465
At 31 December 2020 1,084,520 4,520 1,089,040

he Year Ended 31 December 20 he Year Ended 31 December 20 he Year Ended 31 December 20 he Year Ended 31 December 20 21
18.
FIXEDASSET INVESTMENTS
2021 2021 2020 2020
Group
F		 Charity
F		 Groupf Charityf
Shares
in subsidiary		 2 2
Donated jewellery 6,100 6,100 6,100 6,100
Investments
in bank bonds		 309,248 309,248 304,797 304,797
315,348 315,350 310,897 310,899
Investment
in subsidiaries
Company Percentage Class of No of Total
Subsidiary No. shareholding shares shares value
MPS Commercial
Limited		 08621283 100 Ordinary F1
Rare Disease Research Partners
Limited		 12249341 100 Ordinary f1
F2
The wholly
owned subsidiaries;		 MPS Commercial Limited and Rare Disease Research Partners Limited
and trading
and dormant		 respectively. Both subsidiaries are incorporated in England and Wales, and
have
the
registered		 office of MPS House, Repton Place, White Lion Road, Amersham,
Buckinghamshire,
HP7		 9LP. All profits generated by subsidiaries are distributed via Gift Aid to the
parent charity under a Deed of Covenant.
MPS Commercial
Limited		 Rare Disease Research
Partners
Limited
2021
f		 2020
f		 2021
f		 2020
f
Fixed assets 1,272 572
Current assets 942,831 1,318,376 1 1
Current
habilities		 (944,102) (1,318,947)
Aggregate
share capital and		 reserves
Net income from trading
activities		 133,218 350042

19. DEBT O RS: AMOUNTS FALLING DUE WITHIN ONE YEAR FALLING DUE WITHIN ONE YEAR FALLING DUE WITHIN ONE YEAR
2021 2021 2020 2020
Group Charity Group Charity
6 6 6
Trade debtors 260,428 120 249,503 20
Amounts
owed by group undertakings		 333,217 601,667
Other debtors 10,257 6,930 51,387 2,259
Prepayments and accrued income 44,412 14,412 6,269 6,269
315,097 354,679 307,159 610,215
20. CASH AT BANK AND IN HAND
2021 2021 2020 2020
Group Charity Group Charity
6 6 6
Cash held in parent charity 1,160,156 1,160,157 1,007,555 1,007,555
Cash held in subsidiary 541,271 - 1,019,765
1,701,427 1,160,157 2,027,320 1,007,555
21. CREDITORS: AMOUNTS FALLING DUE WITHIN ONE YEAR
2021 2021 2020 2020
Group Charity Group Charity
F F 6 6
Trade creditors 19,087 6,013 16,282 5,337
Other creditors 546,205 58,321 753,259 48,755
Accrued expenses 9,305 7,305 8,430 6,600
574,597 71,639 777,971 60,692

2021 2021 2021 2020 2020 2020
Unrestricted Restricted Total Unrestricted Restricted Total
funds funds Funds funds Funds Funds
6 Z F f 6
Fixed assets 1,061,737 1,061,737 1,089,613 1,089,612
Investments 315,348 315,348 310,897 310,897
Current assets 1,841,122 175,402 2,016,524 2,016,428 318,050 2,334,479
Current
liabilities		 (574,597) (574,597) (777,971) (777,971)
2,643,610 175,402 2,819,012 2,638,967 318,050 2,957,017

Group
Funds at Funds at 31
1 January Fund December
2021 Income Expenditure Transfers 2021
Unrestricted
funds
General charitable fund 750,000 1,160,891 (1,127,539) (33,352) 750,000
Property
fund		 1,084,520 (28,709) 1,055,811
Designated
funds
Research fund 367,297 367,297
Service development
fund		 237,150 33,352 270,502
Building
refurbishment
fund		 100,000 100,000
Christine
Lavery
memorial
fund		 100,000 100,000
804,447 33,352 837,799
Total unrestricted funds 2,638,967 1,160,891 1,156,248 2,643,610
Restricted funds
MPS restricted
fund		 192,757 282,355 (425,003) 50,109
LSD restricted
fund		 15,916 15,916
Research restricted fund 109,377 109,377
Total restricted
funds		 318,050 282,355 ~425,003 175,402
Total Funds 2,957,017 1,443,246 ~1,581,252 2,819,012
Charity
Funds at Funds at 31
1January Fund December
2021 Income Expenditure Transfers 2021
Unrestricted
funds
General charitable fund 750,000 446,990 (413,638) (33,352) 750,000
Property
fund		 1,084,520 (28,709) 1,055,811
Designated
funds
Research fund 367,297 367,267
Service development
fund		 237,150 33,352 270,502
Building
refurbishment
fund		 100,000 100,000
Christine
Lavery
memcnal
fund		 100,000 100,000
804,446 837,799
Total unrestricted funds 2,638,967 1,160,881 ~1,156,248 2,643,610
Restricted funds
MPS restricted
fund		 192,757 282,355 (425,003) 50,109
LSD restricted
fund		 15,916 15,916
Research restricted fund 109,377 109,377
Total restricted
funds		 318,050 282,355 ~425,003 175,402
Total Funds 2,957,017 1,443,246 ~1,582,2523 2,819,012

Group
Funds at Funds at 31
1 January Fund December
2020 Income Expenditure Transfers 2020
Unrestricted
funds
General
charitable		 752,815 1,310,192 (959,614) (353,393) 750,000
Property
fund		 1,113,228 (28,708) 1,084,520
Research fund 250,000 (9,400) 126,697 367,297
Service development 150,000 (39,546) 126,696 237,150
Building
refurbishment		 100,000 100,000
Christine
Lavery		 100000 100,000
500,000 (48,946) 353,392 804,447
Total unrestricted 2,366,043 1,310,192 ~7,037,268 2,638,967
Restri cted funds
MPS restricted 31,921 635,877 (475,041) 192,757
LSD restricted 16,749 (833) 15,916
Research
restricted		 109,377 109,377
7 11
\1
I 01		 0 48670 745,254 475,874 318050
TotalFunds 2,414,713 2,055,446 ~7,523,742 2,957,017
Charity
Funds at Funds at 31
1 January Fund December
2020 Income Expenditure Transfers 2020
Unrestricted
funds
General
charitable		 752,815 661,699 (311,121) (353,393) 750,000
Property
fund		 1,113,228 (28,708) 1,084,520
Research fund 250,000 (9,400) 126,697 367,297
Service development 150,000 (39,546) 126,696 237,150
Building
refurbishment		 100,000 100,000
Christine
Lavery		 100,000 100,000
500,000 (48,946) 804,446
Total unrestricted 2,366,043 661,699 ~388,775 2,638,967
Restricted funds
MPS restricted 31,921 635,877 (475,041) 192,757
LSD restricted 16,749 (833) 15,916
Research restricted 109,377 109,377
Total restricted 48,670 745,254 ~475,874 318,050
Total Funds 2,414,713 1,4tt6,953 ~7864,649 2,957,017