2020-12-31-accounts - The Society For Mucopolysaccharide Diseases

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				Page
Reference and administration details
Chairman's	statement
Trustee's report (including director's		report)
Independent	auditor's report			12
Consolidated	statement offinancial activities			15
Consolidated	and Charity statement	offinancial	position
Consolidated	statement ofcash flows			17
Notes to the	consolidated statement	ofcash flows		18
Notes to the	financial statements			19

Trustees 8 Directors
Katy Joanne Brown		Appointed	28	November 2020
Sarah Burgess
Judith Mary Evans
James Henry Garthwaite
Dr Gordon Robert Harvey
Prof Atui Bhanu Mehta
David Maurice Patton
Phillip John Pearson
Wilma Robins
Dr Fiona Jane Stewart		Appointed	4April 2020
Bryan Gordon Winchester
Registered Company	number
7726882 (England and	Wales)
Registered Charity number
1143472ISCO41012
Registered office
MPS House, Repton Place, White Lion Road, Amersham,				Buckinghamshire,	HP7 9LP
Company Secretary
Robert Stevens
Group Chief Executive	ONcer
Robert: Stevens

				Unrestricted	Restricted	2020	2019
				funds	funds	Total	Total
						funds	funds
			Note
INCOME
Voluntary income:
Donations 8 legacies				146,265	149,944	296,209	180,732
Actjvifies forgenerating		funds:
Charitable activities			4	114,794	595,310	710,104	512,817
Other trading activities			5	1,023,060		1,023,060	981,856
Investment income			6	26,073		26,073	23,362
TOTAL INCOME				1,310,192	745,254	2,055,446	1,698,767
EXPENDITURE
Raising funds:
Fundraising cost of	grants	8 donations		75,892		75,892	63,563
Fundraising activities				80,405		80,405	74,782
Trading activities				481,193		481,193	542,882
				637,490		637,490	681,227
Charitable activltiesr
Advocacy services 8 member events				12,297	475,874	488,171	720,761
Awareness raising				124,486		124,486	78,517
Trading activities				167,301		167,301
				304,084	475,874	779,958	799,278
Other costs				95,694		95,694	100,639
TOTAL EXPENDITURE				1,037,268	475,874	1,513,142	1,581,144
NET INCOMING RESOURCES				272,924	269,380	542,304	117,623
RECONCILIATION	OF FUNDS
Total funds brought	forward			2,366,043	48,670	2,414,713	2,297,090
TOTAL FUNDS CARRIED		FORWARD		2,638,967	318,050	2,957,017	2,414,7'l3

				2020	2020	2019	2019
			Note	Group	Charity f	Group	Charity
FIXEDASSETS
Tangible assets			17	1,089,612	1,089,040	1,123,517	1,121,313
Investments			18	310,897	310,899	306,100	306,102
				1,400,509	1,399,939	1,429,617	1,427,415
CURRENT ASSETS
Debtors			19	307,159	610,215	666,221	656,754
Cash at bank and	in	hand	20	2,027,320	1,007,555	851,560	429,153
				2,334,479	1,617,770	1,517,781	1,085,907
CREDITORS
Amounts falling due year		within one		777,971	60,692	532,685	98,609
NET CURRENT ASSETS				1,556,508	1,557,078	985,096	987,298
NET ASSETS				2,957,017	2,957,017	2,414,713	2,414,713
FUNDS			23
Unrestricted Funds:
General charitable		funds		750,000	750,000	752,815	752,815
Property funds				1,084,520	1,084,520	1,113,228	1,113,228
Designated funds				804,447	804,447	500,000	500,000
				2,638,967	2,638,967	2,366,043	2,366,043
Restricted Funds				318,050	318,050	48,670	48,670
TOTAL FUNDS				2,957,017	2,957,017	2,414,713	2,414,713

				2020	2019
			Notes
Cash flows from operating	activities:
Cash generated from operations				1,185,958	(21,840)
Interest paid				(5,401)	(3,062)
Net cash provided by (used fn) operating activities				1,180,557	(24,902)
Cash flows from investing	activities:
Purchase oftangible fixed assets					(8,756)
Investment in bonds				(4,797)	(300,000)
Net cash provided by (used in}investing activities				{4,797)	(308,756)
Change in cash and cash the reporting period	equivalents	In		1,175,760	(333,658)
Cash and cash equivalents beginning ofthe reporting	at the period			851,560	1,185,218
Cash and cash equivalents the reporting period	at the end	of		2,027,320	851,560

				2020	2019
				R
	Net income for the reporting period (as per the statement offinancial activities)			542,304	117,623
	Adjustments for:
	Interest received			5,401	3,062
	Depreciation			33,385	40,930
	Loss on disposal of	fixed assets		520
	Decrease/(increase)	in	debtors	359,063	(488,430)
	Increase/(decrease)	in	creditors	245,285	304,975
	Net cash provided activities	by	(used in) operating	1,185,958	(21,840)
2	ANALYSIS OF CHANGES IN NET FUNDS
				2020	2019
	Cash in hand			2,289	2,472
	Bank accounts			2,025,031	849,088
	Total cash and cash equivalents			2,027,320	851,560

		2020	2020	2020	2019	2019	2019
	Unrestricted		Restricted	Total	Unrestricted	Restricted	Total
		fund	fund	funds	fund	fund	funds
		E					F
Donations		146,265	40,567	186,832	164,170		164,170
Legacies			109,377	109,377	16,562		16,562
		146,265	149,944	296,209	180,732		180.732
INCOME FROM		CHARITABLE	ACTIVITIES
			2020		2020	2020	2019
			Unrestricted	Restricted		Total	Total
			fund		fund	funds	funds
			f			E	E
Advocacy support grants			93,194	561,810		655,004	236,465
Conferences	and Expert	meetings		33,500		33,500	157,750
Family support special events			11,600			11,600	25,000
Fundraising	events						91,845
Other income			10,000			10,000	1,757
			114,794	595,310		710,104	512,817

		2019	2019	2019
		Unrestricted	Restricted	Total
		fund	fund	funds
			K	f
Advocacy support grants			236,465	236,465
Conferences and Expert meetings			157,750	157,750
Family support	special events		25,000	25,000
Fundraising events		91,845		91,845
Other income		1,757		1,757
		93,602	419,215	512,817
5. OTHER	TRADING ACTIVITIES
			2020	2019
Survey income	in subsidiary		288,928	259,400
Management fees in subsidiary			733,316	720,988
Miscellaneous	trading		816	1,468
			1,023,060	981,856

	2020	2019
Rent receivable	20,672	20,300
Interest receivable	5,401	3,062
	26073	23,362

			Fundraising	Fundraising		Commercial
				Grants &	Fundraising	Trading	Total	Total
		Note		Donations	Events	Activity	2020	2019
					F.	f.	K
Staffcosts		15		24,080	44,977	390,369	459,426	456,252
Direct costs		10		32,475	16,092	59,286	107,853	86,041
Depreciation		11		3,227	3,226	1,111	7,564	10,506
Support costs		11		16,110	16,110	30,427	62,647	128,428
				75,892	80,405	481,193	637,490	681,227
Attributable	to:
Unrestricted		funds		75,892	80,405	481,193	637,490	681,227
Restricted	funds
				75,892	80,405	481,193	637,460	681,227
EXPENDITURE ON			RAISING FUNDS —2019COMPARATIVES
				Fundraising		Commercial
				Grants &	Fundraising		Trading	Total
		Note		Donations	Events		Activity	2019
						K
Staff costs			15	27,113		33,414	395,725	456,252
Direct costs			10	14,754		19,6?2	51,615	86,041
Depreciation			11	3,803		3,803	2,900	10,506
Support costs			11	17,893		17,893	92,642	128,428
				63,563		74,782	542,882	681,227
Attributable	to:
Unrestricted		funds		63,563		74,782	542,882	681,227
Restricted	funds
				83,563		74,782	542,882	681,227

				Advocacy		Commercial
				&Members	Awareness	Trading Activity	Total	Total
			Note	Events	Raising	Patient. Support	2020	2019
					R
Staff costs			15	296,353	83,099	16?,301	546,753	423,187
Direct costs			10	85,733	12,383		98,116	235,070
Research grants			12	9,400			9,400
Depreciation			11	16,139	4,841		20,980	24,?19
Support costs			11	80,546	24,163		104,709	116,302
				488 'I7'I	124,486	167,301	779,958	799,278
Attributabie	to:
Unrestricted		funds		12,297	124,486	167,301	304,084	353,313
Restricted	funds			475,874			475,874	445,965
				488,171	124,488	167,301	779,958	799,278

				Advocacy
				8 Members	Awareness	Total
			Note	Events	Raising	2019
					E
Staff costs			15	391,968	31,219	423, 'i 87
Direct costs			10	220,316	14,754	235,070
Depreciation			11	19,014	5,705	24,719
Support costs			11	89,463	26839	116,302
				720,761	78,617	799,278
Attributable	to:
Unrestricted		funds		445,965	78,517	353,313
Restricted		funds		274,796		445,966
				720,761	78,517	799,278

				IIanagement		Nlanagement
				&Governance	Total	&Governance	Total
			Note	2020	2020	2019	2019
						F
Staff costs			15	49,816	49,816	45,008	45,008
Direct costs			10	16,873	16,873	23,087	23,087
Depreciation			11	4,841	4,841	5,705	5,705
Support costs			11	24,164	24,164	26,839	26,839
				95,694	95,694	100,639	100,639
Attributable to:
Unrestricted funds				95,694	95,694	100,639	100,639
Restricted funds
				95,694	95,694	100,639	100,639
10. ALI OCATION OF			DIRECT	COSTS
						Total	Total
				Note		Funds	Funds
						2020	2019
Advocacy travel						3,210	25,157
Conference and expert		meetings				6,196	155,999
Support events						59,456	21,987
Communications						12,383	13,557
MPS awareness							14,754
Fundraising expenses						16,092	34,425
Donations and tributes		in	memory			3,208	901
Management & Governance						16,873	23,088
Survey costs						59,286	52,336
LSD collaborative						833	1,994
Grant consultancy	costs					32,475
Patient welfare gifts						12,830
						222,842	344,198
Attributable to raising funds				7		107,853	86,041
Attributable to charitable activities Attributable to other costs				8 9		98,116 16873	235,070 23087
						222,842	344,198

11. ALLOCATION OF	SUPPO	RT CO	STS
			Note	2020	2019
Recruitment &training costs				10,566	9,524
General office expenses				91,647	104,242
Insurance				11,180	6,235
Subscriptions				432	5,669
Staff welfare				10,081	8,417
Computer expenses and	software			32,469	34,980
Professional fees				7,812	8,951
Bank charges				5,887	3,439
Bad debts				42	1,001
Travel and subsistence				485	23,662
Consultancy expenses				13,499	57,758
Auditors remuneration				6,900	7,690
Depreciation				33,385	40,930
Loss on disposal ofasset				520
				224,905	312,499
Attributable to raising funds				70,211	138,934
Attributabie to charitable	activities			125,689	141,021
Attributable to other costs				29,005	32,544
				224,905	312,499
12. GRANTS PAYABLE
				2Q20	2Q19
Grants and donations				9,400
Grants payable to institutions
				2020	2019
				E
Salford Royal NHS Foundation		Trust		9,400

2020 these totailed f2,044 (2019:P 15. STAFF COSTS	5,300)for all trustees.
	Group		Charity
	2020	2019	2020	2019
		E
Wages and salaries	924,436	817,477	439,017	468,536
Social security costs	88,881	76,586	38,114	41,697
Other pension costs	42,677	30334	21,193	18,488
	1,055994	924,447	498 324	528,721

					1,055994	1,055994	1,055994	1,055994	924,4	47 498 324	47 498 324	528,721
The allocation ofpension costs between					funds follows the allocation				ofthe	associated employee		remuneration.
The average	monthly		number ofemployees			during	the year was as		foilows:
								Group			Charity
								2020		2019	2020
								E
Director								2		2	1
Administration								3		3	3
Advice, information		8	support					14		15	14	15
Commercial	trading	operation						11		9
								30			18	19
The number	ofhigher		paid employees	(excluding			employer	pension	costs)	was as follows:
							Group				Charity
							2020		2019		2020	2019
							K

				Unrestricted	Restricted	2019	2018
				funds	funds	Total funds	Total funds
			Note
INCOME
Voluntary Income:
Donations &legacies				180,732		180,732	144,477
Activities forgenerating		funds:
Charitable activities				93,602	419,215	512,817	634,878
Other trading activities				981,856		981,856	685,685
Investment income				23,362		23,362	37,613
TOTAL INCOME				1,279,552	419,215	1,698,767	1,502,653
EXPENDITURE
Raising funds:
Fundraising grants	&donations			63,563		63,563	61,628
Fundraising activities				74,782		74,782	61,152
Trading activities				542,882		542,882	440,093
				681,227		681,227	562,873
Charitable activities:
Advocacy services &member events				274,796	445,965	720,761	604,068
Awareness raising				78,517		?8,517	31,509
				353,313	445,965	799,278	635,577
Other costs				100,639		100,639	95,72?
TOTAL EXPENDITURE				1,135,179	445,965	1,581,144	1,294,177
NET INCOME I(EXPENDITURE}				144,373	(26,750)	117,623	208,476
RECONCILIATION	OF FUNDS
Total funds brought	forward			2,221,670	75,420	2,297,090	2,088,614
TOTAL FUNDS CARRIED		FORWARD		2,366,043	48,670	2,414,713	2,297,090

7. TANGIBLE FIXED ASSETS
Group	Freehold
	Land and	Plant and
	buildings	Equipment	Totals
		'E
COST
At 1 January 2019	1,436,389	269,840	1,705,229
Additions
Disposals		(212,073)	(212,073)
At 31 December 2020	1,435,389	57,767	1,493,156
DEPRECIATION
At 1 January 2019	322,160	259,552	581,712
Charge for year	28,709	4,676	33,385
Eliminated on disposal		(211,553)	{211,553)
At 31 December 2020	350,869	52,675	403,544
NET BOOK VALUE
At 31 December 2020	1,084,520	6,092	1,089,612
At 31 December 2019	1,113,229	10,288	1,123,517
Charity	Freehold
	Land and	Plant and
	buildings	Equipment	Totals
			E
COST
At 1 January 2019	1,435,389	221,636	1,657,025
Additions
Disposals		(172,575)	(172,675)
At 31 December 2020	1,435,389	49,061	1,484,450
DEPRECIATION
At 1 January 2019	322,160	213,552	535,712
Charge for year	28,709	3,564	32,273
Eliminated on disposal		(172,575)	(172,575)
At 31 December 2020	350,869	44,541	395,410
NET BOOKVALUE
At 31 December 2020	1,084,520	4,520	1,089,040
At 31 December 2019	1,113,229	8,084	1,121,313

18. FIXEDASSET INYESTINENTS	18. FIXEDASSET INYESTINENTS
									2020	2020		2019			2019
									Group	Charity		Group			Charity
									F	K					K
Shares in subsidiary										2					2
Donated jewellery Investments in bank bonds									6,100 304,797	6,100 304,797		6,100 300,000			6,100 300,000
									310,897	310,899		306,100			306,102
Investment in subsidiaries
			Company					Percentage		Class of		No of			Total
Subsidiary					No.			shareholding		shares		shares			value
MPS Commercial Limited Rare Disease Research Partners Limited			08621283 12249341						100 100	Ordinary R1 Ordinary E1		1 1
															R2
The wholly owned subsidiaries;	MPS		Commercial					Limited	and Rare	Disease Research Partners					Limited
and trading and dormant respectively. Both subsidiaries are incorporated in England and have the registered office of MPS House, Repton Place, White Lion Road,													Wales, and Amersham,
Buckingharnshire, HP7 9LP. All profits				generated				by subsidiaries		are distributed		via Gift	Aid		to the
parent charity under a Deed ofCovenant.
						MPS Commercial Limited					Rare Disease Research Partners Limited
								2020 2019				2020			2019
										E
Fixed assets								572 2,203
Current assets						1,318,376 1,046,602
Current liabilities						(1,318,947) (1,048,804)
Aggregate share capital and reserves												1			1
Net income from trading activities							350,042		416,643
There were no investment assets	outside			the	UK,
Donated jewellery
The donated jewellery is stated at the		valuation				arrived at			by DJ Warner Jewellers		in	2011.The			valuers
are independent ofthe Society. The trustees					continue			to use this basis		ofvaluation.
Investment in bank bonds
The Society for Mucopolysaccharide Diseases reinvested due to mature within less than one year, Of the f304,947									2304,947 in fixed business bonds, which are invested, E200,000 has been allocated to the
designated fund - 2150,000for the Research					Fund		and 850,000for the Service Development Fund.
19. DEBTORS: AMOuNTS FALLING			DUE		WITHIN ONE				YEAR
									2020	2020		2019			2019
									Group	Charity		Group			Charity
Trade debtors									249,503	20	592,495				127
Amounts owed by group undertakings										601,667				616,642
Other debtors									51,387	2,259		55,446			25,824
P repayments									6,269	6,269		18,280			14,160
								307,159		610,215	666,221			656,753

20.		CASH	AT BANK AND IN	HAND
				2020	2020	2019	2019
				Group	Charity	Group	Charity
							E
Cash		held	in parent charity	1,007,555	1,007,555	429,513	429,513
Cash		held	in subsidiary	1,019,765	-	422,407
				2,027,320	1,007,555	851,560	429,163
21.	CREDITORS: AMOUNTS			FALLING DUE WITHIN ONE YEAR
				2020	2020	2019	2019
				Group K	Charity f	Group E	Charity
Trade		creditors		16,282	5,337	76,014	11,392
Other		creditors		753,259	48,756	442,307	80,522
Accrued expenses				8,430	6,600	14,364	6,695
				777,971	60,692	532,685	98,609

		2020	2020	2020	2019	2019		2019
		Unrestricted	Restricted	Total	Unrestricted	Restricted		Total
		funds	funds	Funds	funds	Funds		Funds
		f.				E
Fixed assets		1,089,613		1,089,613	1,123,517			1,123,517
Investments		310,897		310,897	306,100			306,100
Current	assets	2,016,428	318,050	2,334,478	1,469,111	48,670		1,517,781
Current	liabilities	(777,971)		(777,971)	(532,685)			(532,685)
		2,638,967	318,050	2,967,017	2,366,043	48,670	'	2,414,713

orthe Year Ended 31 De	orthe Year Ended 31 De	cember 2020
23. STATEMENT OF		FUNDS
Group
		Funds at				Funds at 31
		1January			Fund	December
		2020	Income	Expenditure	Transfers	2020
Unrestricted funds
General charitable	fund	752,815	1,310,192	(959,614)	(353,393)	750,000
Property fund		1,113,228		(28,708)		1,084,520
Designated funds
Research fund Senfice development fund		250,000 150,000		(9,400) (39,546)	126,697 126,696	367,297 237,150
Building refurbishment fund		100,000				100,000
Christine Lavery memorial fund					'l00,000	100,000
		500,000		(48,946)	353,392	804,447
Total unrestricted funds		2,366,043	1 310,192	1 037,268		2638,967
Restncted funds
MPS restricted fund		31,921	635,877	(475,041)		192,757
LSD restricted fund Research restricted	fund	16,749	109,377	(833)		15,916 109,377
Total restricted funds		48,670	745,254	475,874		318,050
Total Funds		2,414,713	2,055,446	1,513,142)		2,957,017
Charity
		Funds at				Funds at 31
		1 January			Fund	December
		2020	Income	Expenditure	Transfers	2020
Unrestricted funds
General charitable	fund	752,815	661,699	(311,121)	(353,393)	750,000
Property fund		1,113,228		(28,708)		1,084,520
Designated funds
Research fund Service development fund		250,000 150,000		(9,400) (39,546)	126,697 126,696	367,297 237,150
Building refurbishment fund		100,000				100,000
Christine Lavery memorial fund					100,000	100,000
		500,000		(48,946)		804,446
Total unrestricted funds		2,366,043	661,699	388,775		2638967
Restricted funds
MPS restricted fund LSD restricted fund Research restricted	fund	31,921 16,749	635,877 109,377	(4?5,041) (833)		192,757 15,916 109,377
Total restricted funds		48,670	745254	475,8?4		318,050
Total Funds		2,414,713	1406953

Group
	Funds at				Funds at 31
	1January			Fund	December
	2019	Income	Expenditure	Transfers	2019
Unrestricted funds
General charitable fund	779,734	1,237,832	(1,064,751)	(200,000)	752,815
Property fund	1,141,936		(28,708)		1,113,228
Designated funds
Research fund Service development fund	100,000 100,000	41,?20	(41,720)	150,000 50,000	250,000 150,000
8uilding refurbishment fund	100,000				100,000
	300,000	41,720	(41,?20)	200,000	500,000
Total unrestricted funds	2,221,670	1,279,552	1,135,179		2,366,043
Restricted funds
MPS restricted fund	56,677	419,215	(443,971)		31,922
LSD restricted fund	18,743		(1,994)		16,749
Total restricted funds	75,420	4'l9,215	445965		48670
Total Funds	2,297,090	1,698,767	1,581,144		2,414,713
Charity
	Funds at				Funds at 31
	1January			Fund	December
	2019	Income	Expenditure	Transfers	2019
Unrestricted funds
General charitable fund	779,734	695,588	(522,507)	(200,000)	752,815
Property fund	1,141,936		(28,708)		1,113,228
Designated funds
Research fund	100,000	41,720	(41,720)	150,000	250,000
Service development fund	100,000			50,000	150,000
Building refurbishment fund	100,000				100,000
	300,000	41,720	(41,720)	200,000	500,000
Total unrestricted funds	2,221,670	737,308	592,935		2,366,043
Restricted funds
MPS restricted fund LSD restricted fund	56,677 18,743	419,215	(443,971) (1,994)		31,921 16,749
Total restricted funds	75,420	419,215	445,965		48,670
Total Funds	2,297,090	1,156,523	1„038,900		2,414 713