# THE SOCIETY FOR MUCOPOLYSACCHARIDE DISEASES

## Details

- **Country:** England & Wales
- **Charity number:** 1143472
- **Other names:** WICKED GENES, MPS SOCIETY
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** Aug. 19, 2011
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1143472


## Contact

- **Address:** Mps House, Repton Place, White Lion Road, Amersham
- **Postcode:** HP7 9LP
- **Phone:** 07867596494
- **Email:** mps@mpssociety.org.uk
- **Website:** www.mpssociety.org.uk



## Activities

**Objects:** 1. THE RELIEF OF PERSONS SUFFERING FROM MUCOPOLYSACCHARIDE AND RELATED LYSOSOMAL DISEASES; AND2. TO ADVANCE MEDICAL RESEARCH INTO THE CAUSE, CURE, PREVENTION OR RELIEF OF SUCH DISEASES AND RELATED PAEDIATRIC NEURODEGENERATIVE BRAIN DISEASES PROVIDED THAT THE USEFUL RESULTS OF THE RESEARCH SHALL BE PUBLISHED.

**Activities:** THIS IS THE INCORPORATED SUCCESSOR CHARITY TO CHARITY NUMBER 287034, WHICH IS ITS UNINCORPORATED PREDECESSOR.The MPS Society is the only registered UK charity providing professional support to individuals, families and professionals affected by MPS and related diseases throughout the UK.




## Classification

- **How:** Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research
- **What:** Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** People With Disabilities



## Areas of operation

- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| Dec. 31, 2024 | £1934735 | £1862072 | £2418613 | 32 |
| Dec. 31, 2023 | £1812981 | £1996359 | £2345950 | 34 |
| Dec. 31, 2022 | £1721243 | £2010927 | £2529328 | 34 |
| Dec. 31, 2021 | £1443246 | £1581251 | £2819012 | 33 |
| Dec. 31, 2020 | £2055446 | £1513142 | £2414713 | 30 |



## Trustees

- DAVID MAURICE PATTON — appointed Dec. 2, 2017
- Dr FIONA JANE STEWART — appointed April 4, 2020
- Dr GLENN McKee — appointed Jan. 26, 2024
- JUDITH EVANS — appointed Aug. 16, 2011
- Katy Joanne Brown — appointed Nov. 28, 2020
- PROFESSOR BRYAN WINCHESTER — appointed Aug. 16, 2011
- PROFESSOR DERRALYNN ARLENE HUGHES — appointed Nov. 26, 2022
- PROFESSOR SIMON JAMES ROBERT HEALES — appointed Nov. 26, 2022
- Philip John Pearson — appointed Feb. 15, 2019
- SARAH BURGESS — appointed June 28, 2019
- WILMA ROBINS — appointed Aug. 19, 2011