Ichthyosis Support Group
(a Company Limited by Guarantee)
Trustees’ Report and Financial Statements for the year ended 30 June 2025
Registered Company number 07609904 Registered Charity number 1142457
Ichthyosis Support Group Financial Statements for the year ended 30 June 2025
| Index | |
|---|---|
| Page | |
| Report of the Trustees | 3-9 |
| Statement of Trustees responsibilities | 10 |
| Report of the independent examiner | 11 |
| Statement of financial activities (incorporating an Income & Expenditure Account) | 12 |
| Balance sheet | 13 |
| Principal Accounting Policies | 14-16 |
| Notes to the financial statements | 16-23 |
2
Ichthyosis Support Group Financial Statements for the year ended 30 June 2025
Report of the Trustees
The directors of Ichthyosis Group Support Ltd (“the charitable company”) are its Trustees for the purpose of charity law and throughout this report are collectively referred to as its Trustees. The financial statements comply with the Charities Act 2011, the Companies Act 2006, the Memorandum and Articles of Association, and Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102) (updated 1 January 2019).
The Trustees have pleasure in presenting the charitable company’s report and financial statements for the year ended 30 June 2025.
OBJECTIVES AND ACTIVITIES
Objects of the Charity as set out in the governing document.
The objects of the Charity are to:
-
Promote and protect the physical and mental health of people affected by Ichthyosis and any associated condition in the United Kingdom and the Republic of Ireland through the provision of financial assistance, support, education, and practical advice.
-
Advance the education of the general public and medical profession in all areas relating to Ichthyosis and related conditions, including the implications for affected families.
-
Promote research into the management of Ichthyosis and any associated condition, publish the useful results of that research, and support organisations worldwide that promote research into Ichthyosis.
-
Further such other charitable purposes according to the laws of England and Wales for the benefit of the public.
Activities during the Period to Achieve the Charity’s Objects and Obligations of Public Benefit:
During the period, the Charity undertook a wide range of activities in support of its charitable purposes, including:
-
Maintaining a telephone helpline available 24 hours a day, 7 days a week.
-
Engaging with new members to understand the support they may require.
-
Maintaining the ISG website and social media channels, including Facebook, X/Twitter, Instagram, and LinkedIn, as well as the email helpline.
-
Producing regular newsletters for members and supporters.
-
Holding regular directors’ meetings at the office, in addition to bi-monthly conference calls.
-
Delivering both in-person and online member events, including:
-
8 August 2024 – Online X-linked Ichthyosis presentation and Q&A.
-
14 September 2024 – Scottish Information Day at Leonardo Boutique Huntingtower Perth, with a day trip to PGL Dalguise for children and on-site activities for younger members.
-
29–30 October 2024 – Irish Family Conference at Barretstown, County Kildare, Ireland.
3
Ichthyosis Support Group Financial Statements for the year ended 30 June 2025
Report of the Trustees (continued)
The Charity also:
-
Worked closely with its Medical Advisory Board, comprising consultant dermatologists, a dermatology nurse, and an ophthalmologist, who provide expert information and respond to questions from individuals affected by Ichthyosis and members of the public.
-
Worked closely with the British Association of Dermatologists on dermatology issues affecting people living with Ichthyosis.
-
Encouraged and supported fundraising efforts through promotional materials and by sharing individuals’ online fundraising pages through social media and other channels.
-
Applied for grants from external funding organisations, including for the Faces of ISG photoshoot project. An application to the British Association of Dermatologists was successful, securing £3,628.
-
Continued to raise awareness of Ichthyosis, particularly during Ichthyosis Awareness Month in May.
-
Continued filming with a number of families for the Charity’s video stories project.
-
Ensured directors and members represented ISG at professional conferences, including the British Association of Dermatologists Annual Meeting and the British Dermatological Nursing Group Annual Conference, where they staffed stands to raise awareness of Ichthyosis and the work of ISG.
-
Supported presentations delivered by the Medical and Communications Manager at a number of professional events, including:
-
British Association of Dermatologists Conference, Manchester, July 2024 our Medical and Communications Manager, was invited to present in a plenary session with Professor Jemima Mellerio. Together they delivered “Scales of the Unexpected”, reflecting both healthcare professional and patient perspectives on the challenges of living with Ichthyosis.
-
European Society for Dermatological Research, Lisbon, 3–4 September 2024 – We co-presented “Challenged by Ichthyosis” with Ichthyosis advocate Karin Veldman and Dr Antoni Gosynski as part of the Patient Symposium.
-
British Dermatological Nursing Group Meeting, Harrogate, 18 September 2024 – We presented “Scales of the Unexpected.”
-
May and June 2024 –Delivered online teaching sessions for paediatricians, junior dermatologists, and other healthcare professionals on two separate paediatric dermatology courses.
-
12 November 2024 – Presented at the Genomics for Dermatology Course at Hinxton Hall Conference Centre, Cambridgeshire.
-
26 March 2025 – Presented as part of the online course Fundamentals of Dermatology for Nurses and Paramedics.
-
Liaised with researchers and companies to share research news and developments, actively recruit prospective participants for studies, and keep members informed of clinical trial developments.
-
Continued attending the monthly Ichthyosis clinic at Birmingham Children’s Hospital on the first Thursday of each month.
-
Commenced attendance at a monthly Ichthyosis clinic at Great Ormond Street Hospital.
-
On 18 March 2025, supported wider awareness activity when our Medical and Communications Manager shared her personal journey of living with Netherton Syndrome through filming with Quoin Pharmaceuticals as part of the Netherton NOW campaign.
-
Relocated the Charity’s office in July 2024 from Denmark Street, Wokingham, to Rubra One, Mulberry Business Park, Wokingham, following a tenancy change and rehousing by Wokingham Council. The PO Box was cancelled and the correspondence address was changed to match this address.
4
Ichthyosis Support Group Financial Statements for the year ended 30 June 2025
Report of the Trustees (continued)
Grant Making
Where suitable project applications are received and funds allow, the Charity makes grants for research projects. The amount available is determined from year to year. Applications are welcomed and assessed by the Medical Advisory Board.
Volunteers’ Contribution
Unpaid volunteers made a significant and valued contribution to the Charity throughout the year. They supported affected families through peer networking, assisted with fundraising activities, and provided practical help at the national conference and other regional events. Volunteers also offered administrative support to the office, strengthening the dayto-day running of the Charity.
The Charity is fortunate to benefit from a dedicated group of volunteers who play an active role in delivering the annual national conference and children’s residential camps, helping to ensure these events are safe, inclusive, and welcoming for all participants.
In addition, the Charity’s Ambassadors continue to provide peer support to members, promote awareness of Ichthyosis, and represent ISG within their communities, thereby extending the Charity’s reach and impact across the UK and Ireland.
ACHIEVEMENTS AND PERFORMANCE
In exercising their duties to achieve the Charity’s objectives, the directors have paid due regard to the Charity Commission’s guidance on public benefit when determining the Charity’s activities.
The major achievements of the Charity during the reporting period and subsequent period include:
-
Membership growth – ISG membership continues to grow, with over 1,400 families in the UK and Ireland and a further 550 affected families worldwide.
-
Provision of support and information – The Charity continued to provide an important reference and support service to the general public and to those affected by ichthyosis through its helpline, website, and social media channels, drawing on both lived experience and the expertise of the Medical Advisory Board.
-
Raising awareness – ISG continued to increase public awareness of ichthyosis by working with media outlets and affected individuals to highlight the condition, resulting in national media exposure.
-
Engagement with industry and research partners – The Charity maintained dialogue with pharmaceutical companies to encourage grant support, greater research activity, and stronger commitment to improving treatments for ichthyosis.
-
Clinical and NHS engagement – ISG continued to liaise with hospitals and NHS England to support the development of specialised clinics for ichthyosis and other rare genetic skin conditions. The Charity now attends two paediatric clinics each month: Birmingham Children’s Hospital on the first Thursday of the month, and Great Ormond Street Hospital on the fourth Thursday of the month.
-
Unity Lottery – Continued participation in Unity Lottery has helped to secure a regular monthly income stream for the Charity.
5
Ichthyosis Support Group Financial Statements for the year ended 30 June 2025
Report of the Trustees (continued)
-
Annual national event – Since 1999, ISG has organised a national event bringing together members of all ages and with varying forms and severity of ichthyosis. These events offer information, education, peer support, and opportunities to hear from medical professionals and pharmaceutical companies about developments relevant to life with a rare genetic skin condition.
-
ISG children’s camps – Since 2014, ISG has offered children’s camps through PGL for affected children and their siblings. These camps provide opportunities to take part in activities such as zip wire, orienteering, and climbing, while also helping children build confidence, work as a team, and connect with peers who understand the challenges of living with a rare skin condition.
-
Fundraising – The Charity benefited from a range of fundraising activities during the year, including:
-
December 2024 – ISG online Visufund Christmas fundraiser, “Light Up the Christmas Tree” (£200).
-
March–June 2024 – Fundraising by member Demi-Lea for her son with X-linked ichthyosis, including a cake sale, 5k walk, and “guess the name of the dinosaur” fundraiser (£593.90).
-
January 2025 – Fundraising by the Kenny family in Ireland (£12,394.58).
-
May 2025 – Dr Ioannis, Dermatology Registrar, and two friends ran the Battersea Half Marathon for Ichthyosis Awareness Month (£1,425).
-
June 2025 – Consultant Dermatologist Gordon Hale ran an ultramarathon (£2,096).
-
Grants and sponsorship – The Charity secured support from a number of organisations, including but not limited to:
-
Quoin Pharmaceuticals – £7,500 (Irish event), £25,000 (unrestricted), and £5,000 (Family Conference 2025)
-
Timber Pharmaceuticals / Biocryst – £2,000
-
Alliance – £1,500
-
Dermal – £1,000 and £3,594.40
-
Sponsorship of 13 newsletters (Menarini – £1,211.70)
FUTURE PLANS
The Charity remains committed to expanding its operational capacity and broadening the support and services it can offer to members, subject to available resources and funding.
Planned activities include:
-
Delivering the Family Conference in Duxford in October 2025.
-
Continuing to develop the Charity’s operational structure so that projects and initiatives that were previously beyond available capacity can be implemented in future.
-
Sustaining and growing support services, awareness activity, education for healthcare professionals, and engagement with research and clinical partners.
-
Continuing to seek grant funding, sponsorship, and fundraising support to strengthen long-term sustainability and expand impact.
6
Ichthyosis Support Group Financial Statements for the year ended 30 June 2025
Report of the Trustees (continued)
FINANCIAL REVIEW
As shown in the Statement of Financial Activities on page 12, the Charity holds unrestricted funds just below £390,000, largely as a result of a significant legacy received in 2021/22. The directors are carefully considering how to best apply these resources in furtherance of the Charity’s objectives. Areas under consideration include:
-
Investment.
-
Research grants.
-
Grants for individuals affected by Ichthyosis.
-
Development of an Ichthyosis registry.
-
Securing the future of the ISG through support for core costs.
Restricted funds of £13,426 remain to be spent in future years in accordance with their assigned purpose. After designated funds of £20,000 have been set aside for grants for research purposes and £25,000 for salary costs, general funds of £55,496 in addition to the legacy fund of £288,971 are available for ongoing charitable purpose. Depending on future decisions regarding the use of the legacy funds, further amounts may be designated in due course.
Although the Charity has benefited from this generous legacy, once these funds have been committed or invested, ISG will continue to rely on income generated through member and supporter fundraising, together with successful grant applications. This means the Charity may remain vulnerable to fluctuations in income in future years. The directors therefore recognise the importance of continuing to manage resources prudently, while maintaining and strengthening fundraising and grant income wherever possible
General Reserve Policy
In view of the fact that much of the charity’s income arises from grants, proceeds of special events, sponsorships and other fundraising efforts on a “one-off” basis, the reoccurrence of which cannot be guaranteed from one year to another, it is considered desirable to maintain a General Reserve Level equal to the core expenditure and other known commitments budgeted to occur in the following accounting year, less anticipated regular income in that year. This would require an amount of around £65,000. As at 30[th] June 2025, un-restricted free reserves were £56,996, which is short of that required by our policy.
Review of the Reserve Policy
The Reserve Policy is reviewed annually after the end of the financial year in the light of the results for that financial year, or earlier if there is any substantial change in the Charity’s financial circumstances.
7
Ichthyosis Support Group Financial Statements for the year ended 30 June 2025
Report of the Trustees (continued)
Risk Assessment
Trustees endeavor to identify the major risks to which the Charity is exposed and put in place procedures to manage such risks on an on-going basis. Appropriate insurance cover is held or taken out covering employment risks and such other risks that may be identified from time to time.
FUNDS HELD AS A CUSTODIAN TRUSTEE
No such funds are held.
STRUCTURE, GOVERNANCE AND MANAGEMENT
Organisational Structure and Decision Making
The Board of directors meet a minimum of four times a year in person, or more often as necessary, in addition to numerous conference calls. They administer the Charity and take major and strategic decisions. Day-to-day functions are carried out by the Administrator and by some Board members.
Governing Document
The governing document is the Articles of Association and subject to the provisions set out in the Companies Act 2006 and the Charities Act 2011, where applicable.
Method of Recruitment and Appointment of Directors
Directors must be a member of the Charity and not be disqualified as a Director or Trustee by the Articles. No body or individual external to the Charity is permitted to appoint directors. Members are invited to put themselves forward or be nominated by other members as directors by means of newsletters circulated to all members by post or electronically, and invited to do so at General Meetings.
Directors are elected by the members at General Meetings for a term of three years. Directors may offer themselves for re-election at the end of their term of office.
The Board may at any time co-opt any individual who is qualified to be appointed as a director to fill a vacancy in their number or as an additional director. A co-opted director holds office until the next General Meeting at which they must stand for election by the members.
Induction and Training of Directors
Once appointed, new directors receive appropriate training in their duties and responsibilities by reference to relevant literature including publications issued by the Charity Commissioners and advice and assistance from existing directors. Where possible, directors are encouraged to attend related training courses and seminars.
REFERENCE AND ADMINISTRATIVE INFORMATION
Trustees Margaret Aldwin Baljinder Sohi Raymond James Rowley Tejvir Sohi Paul William Whitehouse Kay Holby Mudassar Ulhaq Simon Brown (appointed 22 March 2025) Lee James Lancashire
8
Ichthyosis Support Group Financial Statements for the year ended 30 June 2025
Report of the Trustees (continued)
Registered Office
Ichthyosis Support Group Also known as “ISG” 12 Manor Fields Alrewas Burton on Trent DE13 7DA
Company Registration Number : 07609904
Charity Registration Number: 1142457
Office and Postal Address
Ichthyosis Support Group Rubra One Mulberry Business Park Wokingham RG41 2QL
Bankers
CAF Bank Limited HSBC 25 Kings Hill Avenue 16-17 The Broadway Kings Hill Thatcham West Malling Newbury Kent, ME19 4JQ Berkshire, RG19 4HX
Independent Examiner
Solicitors
Karen Hanlan Blandy and Blandy LLP Karen Hanlan Independent Examiner Ltd One Friar Street 1 Saracen Close Reading Ettington Berkshire CV37 7SZ RG1 1DA Approved by the Board and signed on its behalf by:
Lee Lancashire Date: 12/3/2026 Trustee
9
Ichthyosis Support Group Financial Statements for the year ended 30 June 2025
Statement of Trustees’ responsibilities
The Trustees are required to prepare financial statements for each financial year which give a true and fair view of the state of the affairs of the charitable company and of the surplus or deficit incurred by the charitable company for that year. In preparing those financial statements the Trustees are required to:
-
select suitable accounting policies and then apply them consistently;
-
make judgments and estimates that are reasonable and prudent;
-
state whether applicable accounting standards have been followed, subject to any material departures disclosed and explained in the accounts; and
-
prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charitable company will continue to exist.
The Trustees have overall responsibility for ensuring that the charitable company has an appropriate system of controls, financial and otherwise.
The Trustees are responsible for keeping proper accounting records which disclose with reasonable accuracy, at any time, the financial position of the charitable company and to enable them to ensure that the financial statements comply with the Companies Act 2006.
They are also responsible for safeguarding the assets of the charitable company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities and to provide reasonable assurance that:
-
the charitable company is operating efficiently and effectively;
-
its assets are safeguarded against un-authorised use or disposition;
-
proper records are maintained and financial information used within the charity or for publication is reliable;
-
the charitable company complies with relevant laws and regulations.
10
Ichthyosis Support Group Financial Statements for the year ended 30 June 2025
Independent Examiner’s Report to the Trustees of Ichthyosis Support Group (‘the Company’)
I report to the charity trustees on my examination of the accounts of the Company for the year ended 30 June 2025 which are set out on pages 12 to 23.
Responsibilities and basis of report
As the charity trustees of the Company (and also its directors for the purposes of company law) you are responsible for the preparation of the accounts in accordance with the requirements of the Companies Act 2006 (‘the 2006 Act’).
Having satisfied myself that the accounts of the Company are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of your charity’s accounts as carried out under section 145 of the Charities Act 2011 (‘the 2011 Act’). In carrying out my examination I have followed the Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act.
Independent examiner’s statement
I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe:
-
1) accounting records were not kept in respect of the Company as required by section 386 of the 2006 Act; or
-
2) the accounts do not accord with those records; or
-
3) the accounts do not comply with the accounting requirements of section 396 of the 2006 Act other than any requirement that the accounts give a ‘true and fair view’ which is not a matter considered as part of an independent examination; or
-
4) the accounts have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102).
I have no concerns and have come across no matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
Karen Hanlan, Date: 12/3/2026 Member of Institute of Chartered Accountants England & Wales Karen Hanlan Independent Examiner Ltd
1 Saracen Close Ettington CV37 7SZ
11
Ichthyosis Support Group Financial Statements for the year ended 30 June 2025
Statement of Financial Activities (including an Income & Expenditure Account)
| Income from: Note Donations and legacies 1 Charitable Activities 2 Trading Activities 3 Investments 4 Total income Expenditure on: Raising funds 5 Charitable activities 6 Total Expenditure Net (expenditure)/income and net movement in funds for year Reconciliation of funds Total funds brought forward Total funds carried forward |
Un- restricted funds 2025 Restricted funds 2025 Total 2025 Total 2024 £ £ £ £ 41,690 3,628 45,318 57,481 27,187 - 27,187 27,293 21,303 - 21,303 3,767 4,686 - 4,686 3,077 |
|---|---|
| 94,866 3,628 98,494 91,618 |
|
| 6,004 - 6,004 5,238 116,267 950 117,217 119,103 |
|
| 122,271 950 123,221 124,341 |
|
| (27,405) 2,678 (24,727) (32,723) 416,872 10,748 427,620 460,343 |
|
| 389,467 13,426 402,893 427,620 |
The statement of financial activities includes all gains and losses recognised in the year. All income and expenditure derive from continuing activities.
12
Ichthyosis Support Group Financial Statements for the year ended 30 June 2025
Balance sheet
| Company registered number 07609904 Notes Fixed Assets Tangible assets 9 Current Assets Debtors 10 Cash at bank and in hand Current Liabilities Creditors: amounts falling due within one year 11 Net current assets Net assets The funds of the Charity: Restricted Funds 12 Unrestricted Funds - general - designated grant fund - designated salary fund - designated legacy fund Total charity funds |
2025 2024 £ £ 1,099 1,088 |
|---|---|
| 1,099 1,088 14,659 3,369 403,103 429,648 |
|
| 417,762 433,017 (15,968) (6,485) |
|
| 401,794 426,532 |
|
| 402,893 427,620 |
|
| 13,426 10,748 55,496 64,142 20,000 9,953 25,000 - 288,971 342,777 |
|
| 389,467 416,872 |
|
| 402,893 427,620 |
The accompanying accounting policies and notes form part of these financial statements.
For the year ended 30 June 2025 the company was entitled to exemption from audit under section 477 of the Companies Act 2006 relating to small companies.
Responsibilities of directors/Trustees:
(a) The members have not required the charitable company to obtain an audit of its financial statements for the year in question in accordance with section 476 of the Companies Act 2006 - however, in accordance with section 145 of the Charities Act 2011 the financial statements have been examined by an independent examiner whose report appears on page 11.
(b) The directors/Trustees acknowledge their responsibility for complying with the requirements of the Companies Act with respect to accounting records and the preparation of accounts.
These financial statements have been prepared in accordance with the provisions applicable to companies subject to the small companies’ regime.
Approved by the Trustees and signed on their behalf by: Date:12/3/2026 Lee Lancashire, Trustee
13
Ichthyosis Support Group Financial Statements for the year ended 30 June 2025
Principal accounting policies
Status of the company
The charitable company is limited by guarantee and does not have share capital. The liability of members is limited to £10 per member.
Basis of preparation
The financial statements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102) (updated 1 January 2019) - (Charities SORP (FRS102)), the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102) and the Companies Act 2006.
Ichthyosis Support Group meets the definition of a public benefit entity under FRS 102. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy note(s).
Going concern statement
The financial statements have been prepared on a going concern basis which assumes that the Charitable Company will continue to operate. The validity of this assumption is dependent upon the continuance of support from the Charitable Company's supporters and donors. The Charitable Company's current business plan shows that the Charitable Company will be able to operate in the foreseeable future. Based on this understanding, the directors believe that it remains appropriate to prepare the financial statements on a going concern basis. The financial statements do not include any adjustments, which would result from the basis of preparation being inappropriate.
Funds
Unrestricted funds are available to spend on activities that further any of the purposes of the charity. Designated funds are unrestricted funds of the charity which the trustees have decided at their discretion to set aside to use for a specific purpose. Restricted funds are donations and grants subject to conditions imposed by the provider or by specific terms of the appeal under which the funds were raised. The restrictive conditions are binding upon the Charitable Company.
Income
Income is recognised when the charitable company has entitlement to the funds, any performance conditions attached to the item(s) of income have been met, it is probable that the income will be received and the amount can be measured reliably.
Income relating to future periods, as a result of donor imposed conditions specifying the time period, has been treated as deferred income.
Income dependent on certain conditions, amounting to more than mere administrative requirements, is recognised when the conditions have been fulfilled.
14
Ichthyosis Support Group Financial Statements for the year ended 30 June 2025
Principal accounting policies (continued)
Donated services and facilities
Donated professional services and donated facilities are recognised as income when the charity has control over the item, any conditions associated with the donated item have been met, the receipt of economic benefit from the use by the charitable company of the item is probable and the economic benefit can be measured reliably. In accordance with the Charities SORP FRS102, general volunteer time is not recognised.
On receipt, donated professional services and donated facilities are recognised on the basis of the value of the gift to the charitable company which is the amount the charitable company would have been willing to pay to obtain the services or facilities of equivalent economic benefit on the open market; a corresponding amount is then recognised in expenditure in the period of receipt.
Investment income receivable
Bank interest and dividends are shown on the basis of amounts receivable in the year.
Expenditure
Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charitable company to the expenditure. All expenditure is accounted for on an accruals basis. Expenditure is classified under the following activity headings:
-
Costs of raising funds comprises the costs of staff time, publicity and other costs associated with raising income.
-
Expenditure on charitable activities includes the costs of direct charitable activities undertaken to further the purposes of the charity and their associated support & governance costs.
Tangible fixed assets
Depreciation is provided at a rate calculated to write off the cost on a straight line basis over a period of less than the estimated useful life of the assets as follows:
Computer equipment, Office equipment & furniture 4 years Fixed asset purchases above £500 are capitalised.
Cash and cash equivalents
Cash and cash equivalents include cash at bank and in hand and short term deposits repayable within a three month notice period.
Debtors
Trade and other debtors are recognised at the settlement amount due after any trade discount offered. Prepayments are valued at the amount prepaid net of any trade discounts due.
Creditors
Creditors are recognised where the charity has a present obligation resulting from a past event that will probably result in the transfer of funds to a third party and the amount due to settle the obligation can be measured or estimated reliably.
Taxation
As a registered charity with no trading activities, no provision is considered necessary for taxation.
15
Ichthyosis Support Group Financial Statements for the year ended 30 June 2025
Principal accounting policies (continued)
Pension costs
The charity contributes into a Group Personal Pension Plan for employees. This pension plan is defined contribution in nature and as required under FRS102 the annual cost is recognised as incurred and included in the Statement of Financial Activities.
Foreign exchange movements
The charity has a Euro bank account to receive funds raised by members in the Republic of Ireland. The balance is converted to sterling at the year end rate and any exchange movements are taken to the Statement of Financial Activities and treated as ‘Other income/Expense’.
Cash flow
Under Charities SORP FRS102, update bulletin 1, as a small charity there is no requirement to produce a cashflow statement.
Notes to the financial statements
1. Income from donations and legacies
| Un-restricted: Donations Grants Gifts in kind Total un-restricted grants & donations Restricted grants & donations: British Association of Dermatologists Total restricted grants Total income from donations and legacies |
2025 2024 £ £ 11,690 24,981 25,000 25,000 5,000 7,500 |
|---|---|
| 41,690 57,481 3,628 - |
|
| 3,628 - |
|
| 45,318 57,481 |
Gifts in kind relates to subsidised office & meetings space provided.
16
Ichthyosis Support Group Financial Statements for the year ended 30 June 2025
Notes to the financial statements (continued)
2. Income from charitable activities
| Corporate sponsorship Other charitable services provided Total income from charitable activities 3. Income from trading activities Promotional material Unity Lottery Fundraising events Total income from trading activities 4. Income from investments Bank interest 5. Analysis of expenditure on raising funds Staff costs Other fundraising costs Total cost of raising funds |
2025 2024 £ £ 26,085 26,904 1,102 389 |
|---|---|
| 27,187 27,293 |
|
| 2025 2024 £ £ 5,374 2,721 1,104 1,046 14,825 - |
|
| 21,303 3,767 |
|
| 2025 2024 £ £ 4,686 3,077 |
|
| 2025 2024 £ £ 5,000 5,012 1,004 226 |
|
| 6,004 5,238 |
17
Ichthyosis Support Group Financial Statements for the year ended 30 June 2025
Notes to the financial statements (continued)
6. Analysis of expenditure on charitable activities
| Analysis of expenditure on charitable activities | ||
|---|---|---|
| 2025 Staff costs Family day/Conference/Youth Camp inc. merchandise Research grant Training costs Office overheads & administration Rent – in kind Insurance Website costs Newsletter production & postage Telephone, postage & IT costs Travel & accommodation CRM Membership fees Trustee expenses Independent examiner fees Bank charges Depreciation Total expenditure on charitable activities 2024 Staff costs Family day/Conference/Youth Camp Research grant Video project Office overheads & administration Rent – in kind Insurance Website costs Newsletter production & postage Telephone, postage & IT costs Travel & accommodation CRM Membership fees Trustee expenses Independent examiner fees Legal/professional fees Bank charges Depreciation Total expenditure on charitable activities |
Un- restricted Designated Restricted Total £ £ £ £ 34,241 8,806 - 43,047 20,011 - 950 20,961 9,918 9,953 - 19,871 955 - - 955 4,030 - - 4,030 5,000 - - 5,000 583 - - 583 4,563 - - 4,563 4,354 - - 4,354 2,977 - - 2,977 3,468 - - 3,468 1,809 - - 1,809 360 - - 360 3,393 - - 3,393 1,100 - - 1,100 258 - - 258 488 - - 488 |
|
| 97,508 18,759 950 117,217 |
||
| Un- restricted Designated Restricted Total £ £ £ £ 20,047 - - 20,047 41,204 - - 41,204 - 1,000 - 1,000 - - 5,405 5,405 13,581 - - 13,581 7,500 - - 7,500 564 - - 564 4,145 - - 4,145 6,203 - - 6,203 1,447 - - 1,447 3,979 - - 3,979 1,086 - - 1,086 449 - - 449 8,117 - - 8,117 1,100 - - 1,100 1,272 - - 1,272 269 - - 269 1,735 - - 1,735 |
||
| 112,698 1,000 5,405 119,103 |
18
Ichthyosis Support Group Financial Statements for the year ended 30 June 2025
Notes to the financial statements (continued)
| 7. Net expenditure for the year Net expenditure for the year is stated after charging: Depreciation Independent examiners fees - Independent examination Accountancy services 8. Analysis of staff costs, trustee remuneration and expenses Salaries National Insurance Pension Total Staff Numbers Average number of full-time equivalent excluding Trustees |
2025 2024 £ £ 488 1,735 940 940 160 160 |
|
|---|---|---|
| 2025 2024 £ £ 47,011 24,511 - - 1,036 548 |
||
| 48,047 25,059 |
||
| Number Number 1 0.67 |
No employees had employee benefits in excess of £60,000 (2024: nil).
The charitable company’s trustees were not paid or received any other benefits from employment with the charity in the year. Trustee expenses of £5,104 for travel, subsistence and family day costs were reimbursed to 7 Trustees during the year (2024: £6,988, 9 Trustees).
The key management personnel of the charity comprise the trustees and the part time Operations Manager, Trustees receive no remuneration or other benefits from the charity. The remuneration of key management personnel (including pension contributions) for the year was £24,485 (2024: £25,059).
19
Ichthyosis Support Group Financial Statements for the year ended 30 June 2025
Notes to the financial statements (continued)
9. Tangible fixed assets
| 9. Tangible fixed assets | |||
|---|---|---|---|
| Cost At beginning of year Additions At end of year Depreciation At beginning of year Charge for the year At end of year Net Book Value At end of year 10. Debtors Trade debtors Prepayments 11. Creditors: amounts falling due within one year Trade Creditors Taxation and social security Accruals Deferred income |
2025 Fixture, fittings & equipment £ 9,133 499 |
2024 Fixtures, fittings & equipment £ 7,682 1,451 |
|
| 9,632 | 9,133 | ||
| 8,045 488 |
6,310 1,735 |
||
| 8,533 | 8,045 | ||
| 1,099 | 1,088 | ||
| 2025 £ 6,380 8,279 14,659 |
2024 £ - 3,369 |
||
| 3,369 | |||
| 2025 £ 1 1,867 1,100 13,000 |
2024 £ 1,564 1,121 2,300 1,500 |
||
| 15,968 | 6,485 |
20
Ichthyosis Support Group Financial Statements for the year ended 30 June 2025
Notes to the financial statements (continued)
12. Funds
| 2025 Restricted funds BAD Video project Boehringer Video project BAD – Faces of ISG project Goldsmiths My Story Scottish Event Unrestricted funds Designated grant fund Designated legacy fund Designated salary fund General fund Total Funds 2024 Restricted funds BAD Video project Boehringer Video project Goldsmiths My Story Scottish Event Unrestricted funds Designated grant fund Designated legacy fund General fund Total Funds |
Balance at beginning of year £ 1,528 8,270 - 433 517 |
Income Expenditure £ £ - - - - 3,628 - - (433) - (517) |
Transfers Balance at end of year £ £ - 1,528 - 8,270 - 3,628 - - - - |
|---|---|---|---|
| 10,748 | 3,628 (950) |
- 13,426 |
|
| 9,953 342,777 - 64,142 |
- (9,953) - (8,806) - - 94,866 (103,512) |
20,000 20,000 (45,000) 288,971 25,000 25,000 - 55,496 |
|
| 416,872 | 94,866 (122,271) |
- 389,467 |
|
| 427,620 | 98,494 (123,221) |
- 402,893 |
|
| Balance at beginning of year £ 6,933 8,270 433 517 |
Income Expenditure £ £ - (5,405) - - - - - - |
Balance at end of year £ 1,528 8,270 433 517 10,748 9,953 342,777 64,142 416,872 427,620 |
|
| 16,153 | - (5,405) |
||
| 10,953 342,777 90,460 |
- (1,000) - - 91,618 (117,936) |
||
| 444,190 | 91,618 (118,936) |
||
| 460,343 | 91,618 (124,341) |
Restricted funds are for the following purposes:
Video Project – funded by BAD & Boehringer Ingleheim to produce a range of videos giving insight into the lives of people/families affected by Ichthyosis, sharing the experiences & challenges they face.
BAD (British Association of Dermatologists) – grant towards a project highlighting the work of ISG
21
Ichthyosis Support Group Financial Statements for the year ended 30 June 2025
Notes to the financial statements (continued)
Goldsmiths My Story – Grant from the Goldsmiths charity to cover the cost of writing and creating the ISG My story booklet.
Designated funds are for the following purposes:
Designated Grant fund – grants for research purposes
Designated salary fund – funds for one years salary costs for the Medical & Communications manager Legacy fund – legacy money set aside whilst review conducted to agree its use
13. Analysis of net assets between funds
| 2025 Fixed assets Debtors Cash at bank and in hand Creditors Funds 2024 Fixed assets Debtors Cash at bank and in hand Creditors Funds |
Un- restricted Designated Restricted Total £ £ £ £ 1,099 - - 1,099 14,659 - - 14,659 55,706 333,971 13,426 403,103 (15,968) - - (15,968) |
|---|---|
| 55,496 333,971 13,426 402,893 |
|
| Un- restricted Designated Restricted Total £ £ £ £ 1,088 - - 1,088 3,369 - - 3,369 66,170 352,730 10,748 429,648 (6,485) - - (6,485) |
|
| 64,142 352,730 10,748 427,620 |
15. Related party transactions
Mandy Aldwin-Easton, the daughter of Margaret Aldwin, was paid £25,563, including pension contributions for employment as Medical and Marketing manager during the year. A fair and open recruitment campaign was carried out for the position and neither Mrs Aldwin-Easton or Mrs M Aldwin were part of the decision making process. Remuneration was set by the other trustees & at a level applicable to the role in the marketplace.
There were no further transactions with related parties during the year.
16. Controlling Interests
The charity is controlled by the Trustees.
22
Ichthyosis Support Group Financial Statements for the year ended 30 June 2025
Notes to the financial statements (continued)
17. Prior year comparative Statement of Financial Activities
| Income from: Donations and legacies Charitable Activities Trading Activities Investments Total income Expenditure on: Raising funds Charitable activities Total Expenditure Net expenditure and net movement in funds for year Reconciliation of funds Total funds brought forward Total funds carried forward |
Un- restricted funds 2024 Restricted funds 2024 Total 2024 £ £ £ 57,481 - 57,481 27,293 - 27,293 3,767 - 3,767 3,077 - 3,077 |
|---|---|
| 91,618 - 91,618 |
|
| 5,238 - 5,238 113,698 5,405 119,103 |
|
| 118,936 5,405 124,341 |
|
| (27,318) (5,405) (32,723) 444,190 16,153 460,343 |
|
| 416,872 10,748 427,620 |
23