Ichthyosis Support Group
(a Company Limited by Guarantee)
Trustees’ Report and Financial Statements for the year ended 30 June 2024
Registered Company number 07609904 Registered Charity number 1142457
Ichthyosis Support Group Financial Statements for the year ended 30 June 2024
|Index||
|---|---|
||Page|
|Report of the Trustees|3-8|
|Statement of Trustees responsibilities|9|
|Report of the independent examiner|10|
|Statement of financial activities (incorporating an Income & Expenditure Account)|11|
|Balance sheet|12|
|Principal Accounting Policies|13-15|
|Notes to the financial statements|15-23|
2
Ichthyosis Support Group Financial Statements for the year ended 30 June 2024
## **Report of the Trustees**
The directors of Ichthyosis Group Support Ltd (“the charitable company”) are its Trustees for the purpose of charity law and throughout this report are collectively referred to as its Trustees. The financial statements comply with the Charities Act 2011, the Companies Act 2006, the Memorandum and Articles of Association, and Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102) (updated 1 January 2019).
The Trustees have pleasure in presenting the charitable company’s report and financial statements for the year ended 30 June 2024.
## **OBJECTIVES AND ACTIVITIES**
## **Objects of the Charity as set out in the governing document:**
1. Promote and protect the physical and mental health of sufferers of ichthyosis and any associated condition in the United Kingdom and the Republic of Ireland through the provision of financial assistance, support, education and practical advice;
2. Advance the education of the general public and medical profession in all areas relating to ichthyosis and any related condition, and its implication for the family;
3. Promote research into the management of ichthyosis and any associated condition and to publish the useful results of that research, and to support organisations worldwide promoting research into ichthyosis, and
4. Such other purposes as are charitable according to the laws of England and Wales for the benefit of the public.
## **Activities during the Period to Achieve its Objects and Obligations of Public Benefit:**
- a) Maintain the telephone helpline available 24 hours per day, 7 days a week.
- b) Engage with new members to understand the support they may need.
- c) Maintain the ISG website, Facebook, Twitter, Instagram, LinkedIn and email helpline.
- d) Produce regular newsletters.
- e) Regular directors’ meetings at the office in addition to bi-monthly conference calls.
- f) Stage in person and online member events- for example:
- June 2024 Family Day, Beaulieu Motor Museum
- August 2023 Children’s activity camp – PGL Osmington Bay, Dorset
- September 2023 Family Conference, Shrewsbury
- October 2023 Children’s activity camp – PGL Caythorpe Court, Lincolnshire
3
Ichthyosis Support Group Financial Statements for the year ended 30 June 2024
## **Report of the Trustees (continued)**
- a) Worked closely with a team of consultant dermatologists, dermatology nurse and an ophthalmologist known as the Medical Advisory Board, who provide appropriate information and answer questions posed by individuals affected by ichthyosis and the public.
- b) Worked closely with the Dermatology Council for England on dermatology issues affecting ichthyosis patients.
- c) Encourage and support all fund-raising efforts by way of promotional materials and sharing individuals’ online fundraising pages via social media and other outlets.
- d) Applied for grants from other funding organisations.
- e) Continually raise awareness of ichthyosis particularly during the month of May, Ichthyosis Awareness Month.
- f) Filming commenced with a number of families for our video stories project.
- g) Directors and members representing ISG attended conferences, such as the British Association of Dermatologists (BAD) Annual meeting, and the British Dermatological Nursing Group (BDNG) Annual Conference in person, manning a stand advocating ichthyosis and the Ichthyosis Support Group.
- h) At the BDNG meeting, a director recorded a podcast with an ISG member. We also participated in a pharmaceutical industry meeting during the same event.
- i) A director presented online educating pediatricians, junior dermatologists and other healthcare professionals in May and June on 2 different pediatric dermatology courses.
- j) Liaised with researchers to share research news and developments including actively recruiting prospective participants.
- k) Continued attending the monthly ichthyosis clinic at Birmingham Children’s hospital on the 1[st] Thursday of each month.
- l) Represented the Ichthyosis Support Group at international dermatology meetings including the 2[nd] World Congress on Rare Skin Diseases in Paris, the European Academy of Dermatology and Venereology (EADV) meeting in Berlin and the ERN-Skin Board Meeting in Paris.
- m) Input, feedback and subsequent sharing of various survey and research projects related to physical and/or mental health from other organisations relevant to our members.
## **Grant Making**
Should we receive suitable project applications and if funds allow, the Charity makes a grant for an amount to be decided from year to year and to be available for research projects. Applications are welcomed and assessed by the Medical Advisory Board.
Awarded grants of £20,116 to the Epidemiological Study of People Living with Ichthyoses in England, which will be paid in the next financial year and £1000 to the Genetic Skin Disease Database in Scotland.
## **Volunteer’s Contribution**
Unpaid volunteers made valuable contributions to the efforts of the Charity during the year by networking with affected families, by raising funds and providing help at our national and other events, and to our Office Manager in the ISG office. We also have a number of dedicated volunteers that participate and are actively involved during our annual national event and children’s camps. The dedicated team of ‘Ambassadors ‘continue to support ISG members and activities.
4
Ichthyosis Support Group Financial Statements for the year ended 30 June 2024
## **Report of the Trustees (continued)**
## **ACHIEVEMENTS AND PERFORMANCE**
In exercising their duties to achieve the objectives of the Charity as set out above, the directors have paid due regard to the Charity Commissioners’ guidance on public benefit in deciding what the activities should be.
The following are the major achievements of the Charity during the reporting and subsequent period in fulfilling its objects and duty of public benefit:
- **ISG membership** continues to grow with over 1400 families from the UK and Ireland and a further 550 affected families worldwide;
- **The on-going reference service** to the general public on questions arising in relation to ichthyosis, through our help line, website and social networking, providing information from personal experiences and the professional knowledge of our Medical Advisory Board;
- **Increasing awareness** of ichthyosis amongst the general public by liaising with the media and known affected individuals to highlight the condition, resulting in nationwide media exposure;
- **Liaison with a number of pharmaceutical companies** to encourage grant provision, more research and commitment into better treatments for ichthyosis;
- **Liaison with hospitals** and NHS England to assist and advise their development of specialised clinics for ichthyosis and other rare genetic skin conditions;
- **Unity Lottery** . Maintain involvement to secure a regular monthly income for the charity;
- **Annual national event** . Since 1999, the ISG has organised and run a national event, welcoming members of all ages and severity of ichthyosis, to come together for either an informative and educational conference, or a relaxed Family Day at a suitable venue. These events are key in bringing individuals and families affected by ichthyosis together to gain and share knowledge about living with and managing ichthyosis. These events include medical professionals and pharmaceutical companies who bring their knowledge to help inform members on how better to live with ichthyosis, and to provide relevant updates on subjects related to managing life with a rare genetic skin condition;
- **ISG Youth Camps** . The ISG has since 2014 used PGL organised Youth Camps for young, affected individuals and their siblings. Organised activities include zip wire, orienteering, climbing etc. which helps the children meet with other affected children where they would not usually due to the rarity of the condition, increase their confidence, work as a team, and participate in ISG led discussions on social/psychological issues;
- **Fundraising.** Fundraising events were held including: Jeff Keen Virtual Golf Challenge (£6,160), Shane Kennedy, ISG Member ran the Cork Marathon (£2,300), Thames Bridges Trek 2023 (£632.40) Members IAM fundraising (£573.60), Member Barkwood House Christmas fundraiser (£829.43 online plus offline donations), Dan Butler, ISG Member ‘Thresholds Race to the Stones’ (£847).
- **Grants and Sponsorship.** We obtained support from but not limited to Quoin Pharmaceuticals (£25,000), Timber Pharmaceuticals (£2,000), Almirall (£7,500); Alliance (£2,972) and CeraVe & La Roche-Posay (£3,103.88), and Dermal (£3,328.18) in sponsorship of 3 newsletters.
- **Website.** The ISG’s website continues to be maintained and developed.
5
Ichthyosis Support Group Financial Statements for the year ended 30 June 2024
## **Report of the Trustees (continued)**
## **FUTURE PLANS**
We have organised an Ichthyosis Information Day in Perth, Scotland in September 2024 and an Ichthyosis Event at Barretstown, Ireland in October 2024. To make plans to expand the ISG’s operational structure and activities and implement projects that resources and funds had not previously allowed.
## **FINANCIAL REVIEW**
As can be seen from the Statement of Financial Activities on page 11, largely due to a sizeable legacy received in 2021/22, there are unrestricted funds in excess of £416,000. To utilize our resource we are considering the following:
- Investment.
- Research grants.
- Grants for individuals affected by ichthyosis.
- Ichthyosis registry.
- Securing the future of the ISG via core costs.
Restricted funds of £10,748 remain to be spent in future years. After designated funds of £9,953 set aside for grants for research purposes, general funds of £64,142 in addition to the legacy fund of £342,777 are available for ongoing charitable purpose. Depending on decisions to be made with the legacy monies, additional funds may be allocated accordingly in the future.
Even though we received a generous legacy amount, once this is invested, we remain reliant on individual members and others carrying out fundraising efforts on the Charity’s behalf, and our success at winning grants. In the future this could leave us vulnerable to substantial fluctuations of income and therefore we need to rigorously continue our efforts to keep them in good shape.
## **General Reserve Policy**
In view of the fact that much of the charity’s income arises from grants, proceeds of special events, sponsorships and other fundraising efforts on a “one-off” basis, the reoccurrence of which cannot be guaranteed from one year to another, it is considered desirable to maintain a General Reserve Level equal to the core expenditure and other known commitments budgeted to occur in the following accounting year, less anticipated regular income in that year. This would require an amount of around £65,000. As at 30[th] June 2024, un-restricted free reserves were £63,054, which is just short of that required by our policy.
## **Review of the Reserve Policy**
The Reserve Policy is reviewed annually after the end of the financial year in the light of the results for that financial year, or earlier if there is any substantial change in the Charity’s financial circumstances.
6
Ichthyosis Support Group Financial Statements for the year ended 30 June 2024
## **Report of the Trustees (continued)**
## **Risk Assessment**
Trustees endeavour to identify the major risks to which the Charity is exposed and put in place procedures to manage such risks on an on-going basis. Appropriate insurance cover is held or taken out covering employment risks and such other risks that may be identified from time to time.
## **FUNDS HELD AS A CUSTODIAN TRUSTEE**
No such funds are held.
## **STRUCTURE, GOVERNANCE AND MANAGEMENT**
## **Organisational Structure and Decision Making**
The Board of directors meet a minimum of four times a year in person, or more often as necessary, in addition to numerous conference calls. They administer the Charity and take major and strategic decisions. Day-to-day functions are carried out by the Administrator and by some Board members.
## **Governing Document**
The governing document is the Articles of Association and subject to the provisions set out in the Companies Act 2006 and the Charities Act 2011, where applicable.
## **Method of Recruitment and Appointment of Directors**
Directors must be a member of the Charity and not be disqualified as a Director or Trustee by the Articles. No body or individual external to the Charity is permitted to appoint directors. Members are invited to put themselves forward or be nominated by other members as directors by means of newsletters circulated to all members by post or electronically, and invited to do so at General Meetings.
Directors are elected by the members at General Meetings for a term of three years. Directors may offer themselves for re-election at the end of their term of office.
The Board may at any time co-opt any individual who is qualified to be appointed as a director to fill a vacancy in their number or as an additional director. A co-opted director holds office until the next General Meeting at which they must stand for election by the members.
## **Induction and Training of Directors**
Once appointed, new directors receive appropriate training in their duties and responsibilities by reference to relevant literature including publications issued by the Charity Commissioners and advice and assistance from existing directors. Where possible, directors are encouraged to attend related training courses and seminars.
## **REFERENCE AND ADMINISTRATIVE INFORMATION**
## **Trustees**
Mandy Helen Aldwin-Easton (resigned 1 April 2024) Margaret Aldwin Raymond James Rowley Paul William Whitehouse Mudassar Ulhaq Lee James Lancashire
Baljinder Sohi Sarah Griffiths-Little (resigned 19 March 2024) Tejvir Sohi (appointed 31 March 2024) Kay Holby (appointed 31 March 2024)
7
Ichthyosis Support Group Financial Statements for the year ended 30 June 2024
## **Report of the Trustees (continued)**
## **Registered Office**
Ichthyosis Support Group Also known as “ISG” 562 Wokingham Road Earley Reading Berkshire RG6 7JB
**Company Registration Number** : 07609904
**Charity Registration Number:** 1142457
**Office Address (storage only)**
**Postal Address Office Address (storage only)** Ichthyosis Support Group Ichthyosis Support Group PO Box 1242 Unit 7 Beacontree Plaza Yateley Gillette Way GU47 7FL Reading RG2 0BS
**Office Address**
1st Floor Left 3 The Court Yard Denmark Street Wokingham RG40 2AZ
## **Bankers**
CAF Bank Limited HSBC 25 Kings Hill Avenue 16-17 The Broadway Kings Hill Thatcham West Malling Newbury Kent, ME19 4JQ Berkshire, RG19 4HX
## **Independent Examiner**
## **Solicitors**
Karen Hanlan Blandy and Blandy LLP Karen Hanlan Independent Examiner Ltd One Friar Street 1 Saracen Close Reading Ettington Berkshire CV37 7SZ RG1 1DA
Approved by the Board and signed on its behalf by:
Date: 24/3/25
Lee Lancashire
_Trustee_
8
Ichthyosis Support Group Financial Statements for the year ended 30 June 2024
## **Statement of Trustees’ responsibilities**
The Trustees are required to prepare financial statements for each financial year which give a true and fair view of the state of the affairs of the charitable company and of the surplus or deficit incurred by the charitable company for that year. In preparing those financial statements the Trustees are required to:
- select suitable accounting policies and then apply them consistently;
- make judgments and estimates that are reasonable and prudent;
- state whether applicable accounting standards have been followed, subject to any material departures disclosed and explained in the accounts; and
- prepare the financial statements on the going concern basis unless it is inappropriate to presume that the charitable company will continue to exist.
The Trustees have overall responsibility for ensuring that the charitable company has an appropriate system of controls, financial and otherwise.
The Trustees are responsible for keeping proper accounting records which disclose with reasonable accuracy, at any time, the financial position of the charitable company and to enable them to ensure that the financial statements comply with the Companies Act 2006.
They are also responsible for safeguarding the assets of the charitable company and hence for taking reasonable steps for the prevention and detection of fraud and other irregularities and to provide reasonable assurance that:
- the charitable company is operating efficiently and effectively;
- its assets are safeguarded against un-authorised use or disposition;
- proper records are maintained and financial information used within the charity or for publication is reliable;
- the charitable company complies with relevant laws and regulations.
9
Ichthyosis Support Group Financial Statements for the year ended 30 June 2024
## **Independent Examiner’s Report to the Trustees of Ichthyosis Support Group (‘the Company’)**
I report to the charity trustees on my examination of the accounts of the Company for the year ended 30 June 2024 which are set out on pages 11 to 23.
## **Responsibilities and basis of report**
As the charity trustees of the Company (and also its directors for the purposes of company law) you are responsible for the preparation of the accounts in accordance with the requirements of the Companies Act 2006 (‘the 2006 Act’).
Having satisfied myself that the accounts of the Company are not required to be audited under Part 16 of the 2006 Act and are eligible for independent examination, I report in respect of my examination of your charity’s accounts as carried out under section 145 of the Charities Act 2011 (‘the 2011 Act’). In carrying out my examination I have followed the Directions given by the Charity Commission under section 145(5)(b) of the 2011 Act.
## **Independent examiner’s statement**
I have completed my examination. I confirm that no matters have come to my attention in connection with the examination giving me cause to believe:
- 1) accounting records were not kept in respect of the Company as required by section 386 of the 2006 Act; or
- 2) the accounts do not accord with those records; or
- 3) the accounts do not comply with the accounting requirements of section 396 of the 2006 Act other than any requirement that the accounts give a ‘true and fair view’ which is not a matter considered as part of an independent examination; or
- 4) the accounts have not been prepared in accordance with the methods and principles of the Statement of Recommended Practice for accounting and reporting by charities applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102).
I have no concerns and have come across no matters in connection with the examination to which attention should be drawn in this report in order to enable a proper understanding of the accounts to be reached.
Karen Hanlan, Date: 24/3/25 Member of Institute of Chartered Accountants England & Wales Karen Hanlan Independent Examiner Ltd
1 Saracen Close Ettington CV37 7SZ
10
Ichthyosis Support Group Financial Statements for the year ended 30 June 2024
## **Statement of Financial Activities (including an Income & Expenditure Account)**
|**Income from:**
**Note**
Donations and legacies
1
Charitable Activities
2
Trading Activities
3
Investments
4
**Total income**
**Expenditure on:**
Raising funds
5
Charitable activities
6
**Total Expenditure**
**Net (expenditure)/income and**
**net movement in funds for**
**year**
**Reconciliation of funds**
Total funds brought forward
**Total funds carried forward**|**Un-**
**restricted**
**funds**
**2024**
**Restricted**
**funds**
**2024**
**Total**
**2024**
**Total**
**2023**
**£**
**£**
**£**
£
57,481
-
**57,481**
55,063
27,293
-
**27,293**
42,500
3,767
-
**3,767**
1,534
3,077
-
**3,077**
962|
|---|---|
||91,618
-
**91,618**
100,059|
||5,238
-
**5,238**
5,770
113,698
5,405
**119,103**
68,053|
||118,936
5,405
**124,341**
73,823|
||(27,318)
(5,405)
**(32,723)**
26,236
444,190
16,153
460,343
434,107|
||**416,872**
**10,748**
**427,620**
460,343|
The statement of financial activities includes all gains and losses recognised in the year. All income and expenditure derive from continuing activities.
11
Ichthyosis Support Group Financial Statements for the year ended 30 June 2024
## **Balance sheet**
|Company registered number 07609904
Notes
**Fixed Assets**
Tangible assets
9
**Current Assets**
Debtors
10
Cash at bank and in hand
**Current Liabilities**
Creditors: amounts falling due within one year
11
Net current assets
**Net assets**
**The funds of the Charity:**
Restricted Funds
12
Unrestricted Funds
-
general
-
designated grant fund
-
designated legacy fund
**Total charity funds**|**2024**
2023
**£**
£
**1,088**
1,372|
|---|---|
||**1,088**
1,372
**3,369**
5,409
**429,648**
468,488|
||**433,017**
473,897
**(6,485)**
(14,926)|
||**426,532**
458,971|
||**427,620**
460,343|
||**10,748**
16,153
**64,142**
90,460
**9,953**
10,953
**342,777**
342,777|
||**416,872**
444,190|
||**427,620**
460,343|
The accompanying accounting policies and notes form part of these financial statements.
For the year ended 30 June 2024 the company was entitled to exemption from audit under section 477 of the Companies Act 2006 relating to small companies.
Responsibilities of directors/Trustees:
(a) The members have not required the charitable company to obtain an audit of its financial statements for the year in question in accordance with section 476 of the Companies Act 2006 - however, in accordance with section 145 of the Charities Act 2011 the financial statements have been examined by an independent examiner whose report appears on page 10.
(b) The directors/Trustees acknowledge their responsibility for complying with the requirements of the Companies Act with respect to accounting records and the preparation of accounts.
These financial statements have been prepared in accordance with the provisions applicable to companies subject to the small companies’ regime.
Approved by the Trustees and signed on their behalf by: Date: 24/3/25
Lee Lancashire, Trustee
12
Ichthyosis Support Group Financial Statements for the year ended 30 June 2024
## **Principal accounting policies**
## **Status of the company**
The charitable company is limited by guarantee and does not have share capital. The liability of members is limited to £10 per member.
## **Basis of preparation**
The financial statements have been prepared in accordance with Accounting and Reporting by Charities: Statement of Recommended Practice applicable to charities preparing their accounts in accordance with the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102) (updated 1 January 2019) - (Charities SORP (FRS102)), the Financial Reporting Standard applicable in the UK and Republic of Ireland (FRS102) and the Companies Act 2006.
Ichthyosis Support Group meets the definition of a public benefit entity under FRS 102. Assets and liabilities are initially recognised at historical cost or transaction value unless otherwise stated in the relevant accounting policy note(s).
## **Going concern statement**
The financial statements have been prepared on a going concern basis which assumes that the Charitable Company will continue to operate. The validity of this assumption is dependent upon the continuance of support from the Charitable Company's supporters and donors. The Charitable Company's current business plan shows that the Charitable Company will be able to operate in the foreseeable future. Based on this understanding, the directors believe that it remains appropriate to prepare the financial statements on a going concern basis. The financial statements do not include any adjustments, which would result from the basis of preparation being inappropriate.
## **Funds**
Unrestricted funds are available to spend on activities that further any of the purposes of the charity. Designated funds are unrestricted funds of the charity which the trustees have decided at their discretion to set aside to use for a specific purpose. Restricted funds are donations and grants subject to conditions imposed by the provider or by specific terms of the appeal under which the funds were raised. The restrictive conditions are binding upon the Charitable Company.
## **Income**
Income is recognised when the charitable company has entitlement to the funds, any performance conditions attached to the item(s) of income have been met, it is probable that the income will be received and the amount can be measured reliably.
Income relating to future periods, as a result of donor imposed conditions specifying the time period, has been treated as deferred income.
Income dependent on certain conditions, amounting to more than mere administrative requirements, is recognised when the conditions have been fulfilled.
13
Ichthyosis Support Group Financial Statements for the year ended 30 June 2024
## **Principal accounting policies (continued)**
## **Donated services and facilities**
Donated professional services and donated facilities are recognised as income when the charity has control over the item, any conditions associated with the donated item have been met, the receipt of economic benefit from the use by the charitable company of the item is probable and the economic benefit can be measured reliably. In accordance with the Charities SORP FRS102, general volunteer time is not recognised.
On receipt, donated professional services and donated facilities are recognised on the basis of the value of the gift to the charitable company which is the amount the charitable company would have been willing to pay to obtain the services or facilities of equivalent economic benefit on the open market; a corresponding amount is then recognised in expenditure in the period of receipt.
## **Investment income receivable**
Bank interest and dividends are shown on the basis of amounts receivable in the year.
## **Expenditure**
Liabilities are recognised as expenditure as soon as there is a legal or constructive obligation committing the charitable company to the expenditure. All expenditure is accounted for on an accruals basis. Expenditure is classified under the following activity headings:
- Costs of raising funds comprises the costs of staff time, publicity and other costs associated with raising income.
- Expenditure on charitable activities includes the costs of direct charitable activities undertaken to further the purposes of the charity and their associated support & governance costs.
## **Tangible fixed assets**
Depreciation is provided at a rate calculated to write off the cost on a straight line basis over a period of less than the estimated useful life of the assets as follows:
Computer equipment, Office equipment & furniture 20% per annum Fixed asset purchases above £500 are capitalised.
## **Fixed asset investments**
Fixed asset investments comprise listed investments and are included at market value. Listed investments are included at closing mid-market value at the balance sheet date. Any gain or loss on revaluation is taken to the Statement of Financial Activities.
## **Cash and cash equivalents**
Cash and cash equivalents include cash at bank and in hand and short term deposits repayable within a three month notice period.
## **Debtors**
Trade and other debtors are recognised at the settlement amount due after any trade discount offered. Prepayments are valued at the amount prepaid net of any trade discounts due.
14
Ichthyosis Support Group Financial Statements for the year ended 30 June 2024
## **Principal accounting policies (continued)**
## **Creditors**
Creditors are recognised where the charity has a present obligation resulting from a past event that will probably result in the transfer of funds to a third party and the amount due to settle the obligation can be measured or estimated reliably.
## **Taxation**
As a registered charity with no trading activities, no provision is considered necessary for taxation.
## **Pension costs**
The charity contributes into a Group Personal Pension Plan for employees. This pension plan is defined contribution in nature and as required under FRS102 the annual cost is recognised as incurred and included in the Statement of Financial Activities.
## **Foreign exchange movements**
The charity has a Euro bank account to receive funds raised by members in the Republic of Ireland. The balance is converted to sterling at the year end rate and any exchange movements are taken to the Statement of Financial Activities and treated as ‘Other income/Expense’.
## **Cash flow**
Under Charities SORP FRS102, update bulletin 1, as a small charity there is no requirement to produce a cashflow statement.
## **Notes to the financial statements**
## **1. Income from donations and legacies**
|**Un-restricted:**
Donations
Grants
Gifts in kind
Total un-restricted grants & donations
**Restricted grants & donations:**
British Association of Dermatologists (‘BAD’)
Boehringer Ingelheim International GmbH
Total restricted grants
**Total income from donations and legacies**|**2024**
2023
**£**
£
**49,981**
29,498
**-**
2,862
**7,500**
7,500|
|---|---|
||**57,481**
39,860
**-**
6,933
**-**
8,270|
||**-**
15,203|
||**57,481**
55,063|
Gifts in kind relate to office & meetings space provided free of charge.
15
Ichthyosis Support Group Financial Statements
for the year ended 30 June 2024
## **Notes to the financial statements (continued)**
## **2. Income from charitable activities**
|Corporate sponsorship
Other charitable services provided
**Total income from charitable activities**
**3. Income from trading activities**
Promotional material
Unity Lottery
**Total income from trading activities**
**4. Income from investments**
Bank interest
Dividends
**Total income from investments**
**5. Analysis of expenditure on raising funds**
Staff costs
Other fundraising costs
**Total cost of raising funds**|**2024**
2023
**£**
£
**26,904**
42,500
**389**
-|
|---|---|
||**27,293**
42,500|
||**2024**
2023
**£**
£
**2,721**
436
**1,046**
1,098|
||**3,767**
1,534|
||**2024**
2023
**£**
£
**3,077**
334
**-**
628|
||**3,077**
962|
||**2024**
2023
**£**
£
**5,012**
5,239
**226**
531|
||**5,238**
5,770|
16
Ichthyosis Support Group Financial Statements for the year ended 30 June 2024
## **Notes to the financial statements (continued)**
## **6. Analysis of expenditure on charitable activities**
|**Analysis of expenditure on charitable activities**||
|---|---|
|**2024**
Staff costs
Family day/Conference/Youth Camp
Research grant
Video project
Printing, office and administration costs
Rent – in kind
Insurance
Newsletter production & postage
Telephone, postage & IT costs
Travel & accommodation
CRM
Membership fees
Trustee expenses
Independent examiner fees
Legal/professional fees
Bank charges
Depreciation
**Total expenditure on charitable activities**|**Un-**
**restricted**
**Designated**
**Restricted**
**Total**
**£**
**£**
**£**
**£**
20,047
-
-
**20,047**
41,204
-
-
**41,204**
-
1,000
-
**1,000**
-
-
5,405
**5,405**
13,581
-
-
**13,581**
7,500
-
-
**7,500**
564
-
-
**564**
6,203
-
-
**6,203**
5,593
-
-
**5,593**
3,979
-
-
**3,979**
1,086
-
-
**1,086**
449
-
-
**449**
8,117
-
-
**8,117**
1,100
-
-
**1,100**
1,272
-
-
**1,272**
268
-
-
**268**
1,735
**-**
**-**
**1,735**|
||**112,698**
**1,000**
**5,405**
**119,103**|
17
Ichthyosis Support Group Financial Statements for the year ended 30 June 2024
## **Notes to the financial statements (continued)**
|**2023**
Staff costs
Family day/Conference/Youth Camp
Training
Research grant
Printing, office and administration costs
Rent – in kind
Insurance
Newsletter production & postage
Telephone, postage & IT costs
Travel & accommodation
CRM
Membership fees
Trustee expenses
Independent examiner fees
Legal/professional fees
Bank charges
Depreciation
**Total expenditure on charitable activities**
**7. Net expenditure for the year**|**Un-**
**restricted**
**Designated**
**Restricted**
**Total**
**£**
**£**
**£**
**£**
20,957
-
**20,957**
7,349
-
**7,349**
300
-
**300**
-
1,200
-
**1,200**
5,768
520
**6,288**
7,500
-
**7,500**
573
-
**573**
9,632
-
**9,632**
3,063
57
**3,120**
180
-
**180**
417
-
**417**
212
-
**212**
5,730
-
**5,730**
1,100
-
**1,100**
1,835
-
**1,835**
287
-
**287**
1,373
**-**
**1,373**|
|---|---|
||**66,276**
**1,200**
**577**
**68,053**|
|||
|**Net expenditure for the year**|||
|---|---|---|
||**2024**|**2023**|
|Net expenditure for the year is stated after charging:|**£**|**£**|
|Depreciation|**1,735**|1,373|
|Independent examiners fees -|||
|Independent examination|**940**|940|
|Accountancy services|**160**|160|
18
Ichthyosis Support Group Financial Statements for the year ended 30 June 2024
## **Notes to the financial statements (continued)**
## **8. Analysis of staff costs, trustee remuneration and expenses**
|**8. Analysis of staff costs, trustee remuneration and expenses**||
|---|---|
|Salaries
National Insurance
Pension
Payments in respect of prior years
Total
**Staff Numbers**
Average number of full-time equivalent excluding Trustees|**2024**
**2023**
**£**
**£**
**24,511**
23,965
**-**
1,601
**548**
532
**-**
98|
||**25,059**
26,196|
||**Number**
Number
0.67
0.67|
No employees had employee benefits in excess of £60,000 (2023: nil).
The charitable company’s trustees were not paid or received any other benefits from employment with the charity in the year. Trustee expenses of £6,988 for travel, subsistence and family day costs were reimbursed to 9 Trustees during the year (2023: £5,590, 9 Trustees).
The key management personnel of the charity comprise the trustees and the part time Office Manager, Trustees receive no remuneration or other benefits from the charity. The remuneration of key management personnel (including pension contributions) for the year was £25,059 (2023: £26,098).
19
Ichthyosis Support Group Financial Statements for the year ended 30 June 2024
## **Notes to the financial statements (continued)**
|**9. Tangible fixed assets**
**Cost**
At beginning of year
Additions
At end of year
**Depreciation**
At beginning of year
Charge for the year
At end of year
**Net Book Value**
**At end of year**
**10. Debtors**
Prepayments
**11. Creditors: amounts falling due within one year**
Trade Creditors
Taxation and social security
Accruals
Deferred income
Overpayment|**2024**
**Fixture,**
**fittings &**
**equipment**
**£**
2023
Fixtures,
fittings &
equipment
£
**7,682**
7,682
**1,451**
-
**9,133**
7,682
**6,310**
4,937
**1,735**
1,373
**8,045**
6,310
**1,088**
1,372
**2024**
**2023**
**£**
**£**
**3,369**
5,409
**3,369**
5,409
**2024**
2023
**£**
£
**1,564**
4,124
**1,121**
1,102
**2,300**
2,200
**1,500**
-
**-**
7,500
**6,485**
14,926|**2024**
**Fixture,**
**fittings &**
**equipment**
**£**
2023
Fixtures,
fittings &
equipment
£
**7,682**
7,682
**1,451**
-
**9,133**
7,682
**6,310**
4,937
**1,735**
1,373
**8,045**
6,310
**1,088**
1,372
**2024**
**2023**
**£**
**£**
**3,369**
5,409
**3,369**
5,409
**2024**
2023
**£**
£
**1,564**
4,124
**1,121**
1,102
**2,300**
2,200
**1,500**
-
**-**
7,500
**6,485**
14,926|
|---|---|---|
||||
|||**6,485**
14,926|
20
Ichthyosis Support Group Financial Statements for the year ended 30 June 2024
## **Notes to the financial statements (continued)**
## **12. Funds**
|**2024**
**Restricted funds**
BAD Video project
Boehringer Video project
Goldsmiths My Story
Scottish Event
**Unrestricted funds**
Designated grant fund
Designated legacy fund
General fund
**Total Funds**
**2023**
**Restricted funds**
BAD Telecon
BAD Quickbooks
BAD Video project
Boehringer Video project
Goldsmiths My Story
Scottish Event
**Unrestricted funds**
Designated grant fund
Designated legacy fund
General fund
**Total Funds**|Balance at
beginning of
year
£
6,933
8,270
433
517|**Income**
**Expenditure**
**£**
**£**
-
(5,405)
-
-
-
-
-
-|**Balance**
**at end of**
**year**
**£**
**1,528**
**8,270**
**433**
**517**|
|---|---|---|---|
||16,153|-
(5,405)|**10,748**|
||10,953
342,777
90,460|-
(1,000)
-
-
91,618
(117,936)|**9,953**
**342,777**
**64,142**|
||444,190|91,618
(118,936)|**416,872**|
||460,343|91,618
(124,341)|**427,620**|
||Balance at
beginning of
year
£
520
57
-
-
433
517|**Income**
**Expenditure**
**£**
**£**
-
(520)
-
(57)
6,933
-
8,270
-
-
-
-
-|**Balance**
**at end of**
**year**
**£**
**-**
**-**
**6,933**
**8,270**
**433**
**517**|
||1,527|15,203
(577)|**16,153**|
||12,153
342,777
77,650|-
(1,200)
-
-
84,856
(72,046)|**10,953**
**342,777**
**90,460**|
||432,580|84,856
(73,246)|**444,190**|
||434,107|100,059
(73,823)|**460,343**|
## **Restricted funds are for the following purposes:**
Video Project – funded by BAD & Boehringer Ingleheim to produce a range of videos giving insight into the lives of people/families affected by ichthyosis, sharing the experiences & challenges they face. BAD grants - Grants from BAD Quickbooks, Zoom & Zoho for ongoing subscriptions
21
Ichthyosis Support Group Financial Statements for the year ended 30 June 2024
## **Notes to the financial statements (continued)**
Goldsmiths My Story – Grant from the Goldsmiths charity to cover the cost of writing and creating the ISG My story booklet.
## **Designated funds are for the following purposes:**
General Grant fund – grants for research purposes
Legacy fund – legacy money set aside whilst review conducted to agree its use
## **13. Analysis of net assets between funds**
|**2024**
Fixed assets
Debtors
Cash at bank and in hand
Creditors
**Funds**
**2023**
Fixed assets
Debtors
Cash at bank and in hand
Creditors
**Funds**|**Un-**
**restricted**
**Designated**
**Restricted**
**Total**
**£**
**£**
**£**
**£**
1,088
-
-
1,088
3,369
-
-
3,369
66,170
352,730
10,748
429,648
(6,485)
-
-
(6,485)|
|---|---|
||**64,142**
**352,730**
**10,748**
**427,620**|
||**Un-**
**restricted**
**Designated**
**Restricted**
**Total**
**£**
**£**
**£**
**£**
1,372
-
-
1,372
5,409
-
-
5,409
98,605
353,730
16,153
468,488
(14,926)
-
-
(14,926)|
||**90,460**
**353,730**
**16,153**
**460,343**|
## **15. Related party transactions**
Mandy Aldwin-Easton, a Trustee to 1 April 2024 and daughter of Margaret Aldwin, was paid £6,293 including pension contributions for employment as Medical and Communications manager from 1 April 2024. A fair and open recruitment campaign was carried out for the position and neither Mrs Aldwin-Easton or Mrs M Aldwin were part of the decision making process. Remuneration was set by the other trustees & at a level applicable to the role in the marketplace. Mrs Aldwin-Easton resigned as Trustee in order to take up the role.
There were no further transactions with related parties during the year.
## **16. Controlling Interests**
The charity is controlled by the Trustees.
22
Ichthyosis Support Group Financial Statements for the year ended 30 June 2024
## **Notes to the financial statements (continued)**
## **17. Prior year comparative Statement of Financial Activities**
|**Income from:**
Donations and legacies
Charitable Activities
Trading Activities
Investments
**Total income**
**Expenditure on:**
Raising funds
Charitable activities
**Total Expenditure**
**Net income and net movement in**
**funds for year**
**Reconciliation of funds**
Total funds brought forward
**Total funds carried forward**|**Un-**
**restricted**
**funds**
**2023**
**Restricted**
**funds**
**2023**
**Total**
**2023**
**£**
**£**
**£**
39,860
15,203
**55,063**
42,500
-
**42,500**
1,534
-
**1,534**
962
-
**962**|
|---|---|
||84,856
15,203
**100,059**|
||5,770
-
**5,770**
67,476
577
**68,053**|
||73,246
577
**73,823**|
||11,610
14,626
**26,236**
432,580
1,527
434,107|
||**444,190**
**16,153**
**460,343**|
23