# ICHTHYOSIS SUPPORT GROUP

## Details

- **Country:** England & Wales
- **Charity number:** 1142457
- **Other names:** ISG
- **Status:** Registered
- **Legal form:** Charitable company
- **Registered:** June 17, 2011
- **Register:** https://register-of-charities.charitycommission.gov.uk/en/charity-search/?p_p_id=uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet&p_p_lifecycle=0&p_p_state=maximized&p_p_mode=view&_uk_gov_ccew_onereg_charitydetails_web_portlet_CharityDetailsPortlet_regId=1142457


## Contact

- **Address:** 12 Manor Fields, Alrewas, BURTON-ON-TRENT, Staffordshire
- **Postcode:** DE13 7DA
- **Phone:** 08003689621
- **Email:** isg@ichthyosis.org.uk
- **Website:** www.ichthyosis.org.uk



## Activities

**Objects:** 3.1 TO PROMOTE AND PROTECT THE PHYSICAL AND MENTAL HEALTH OF SUFFERS OR ICHTHYOSIS AND NAY ASSOCIATED CONDITION IN THE UNITED KINGDOM AND THE REPUBLIC OF IRELAND THROUGH THE PROVISION OF FINANCIAL ASSISTANCE, SUPPORT, EDUCATION AND PRACTICAL ADVICE;3.2 TO ADVANCE THE EDUCATION OF THE GENERAL PUBLIC AND MEDICAL PROFESSION IN ALL AREAS RELATING TO ICHTHYOSIS AND ANY ASSOCIATED CONDITION, AND ITS IMPLICATION FOR THE FAMILY;3.3 TO PROMOTE RESEARCH INTO THE MANAGEMENT OF ICHTHYOSIS AND ANY ASSOCIATED CONDITION AND TO PUBLISH THE USEFUL RESULTS OF THAT RESEARCH, AND TO SUPPORT ORGANISATIONS WORLDWIDE PROMOTING RESEARCH INTO ICHTHYOSIS; AND3.4 SUCH OTHER PURPOSES AS ARE CHARITABLE ACCORDING TO THE LAWS OF ENGLAND AND WALES FOR THE BENEFIT OF THE PUBLIC.

**Activities:** To provide support for sufferers of ichthyosis and their families. To advance the education of the general public and medical profession in all areas relating to ichthoyosis. To promote research into the management and treatment of ichthyosis. Operates throughout the UK and Republic of Ireland.




## Classification

- **How:** Makes Grants To Organisations, Provides Services, Provides Advocacy/advice/information, Sponsors Or Undertakes Research, Other Charitable Activities
- **What:** General Charitable Purposes, Education/training, The Advancement Of Health Or Saving Of Lives, Disability
- **Who:** Children/young People, Elderly/old People, People With Disabilities, Other Charities Or Voluntary Bodies



## Areas of operation

- Ireland
- Northern Ireland
- Scotland
- Throughout England And Wales



## Finances

| Period end | Income | Expenditure | Assets | Employees |
|---|---|---|---|---|
| June 30, 2025 | £98494 | £123221 | — | — |
| June 30, 2024 | £91618 | £124341 | — | — |
| June 30, 2023 | £100059 | £73823 | — | — |
| June 30, 2022 | £68948 | £77921 | — | — |
| June 30, 2021 | £393719 | £42060 | — | — |



## Trustees

- **PAUL WILLIAM WHITEHOUSE** (Chair) — appointed May 19, 2011
- Baljinder Sohi — appointed June 10, 2023
- Kay Holby — appointed March 24, 2024
- Lee James Lancashire — appointed Feb. 26, 2017
- MARGARET ALDWIN — appointed May 19, 2011
- Mudassar Ulhaq — appointed Oct. 28, 2014
- RAYMOND JAMES ROWLEY — appointed May 19, 2011
- Simon Brown — appointed March 22, 2025
- Tejvir Sohi — appointed March 24, 2024