## **Trustees’ Annual Report** For the period: **01 July 2024 to 30 June 2025**
## **Reference and Administration Details**
**Charity:** Foundation for Prader-Willi Research UK (FPWR UK) **Registered Charity Number:** 1141923 **Address:**
5 St Peters Close Bishop Auckland County Durham DL14 6DD
## **Trustees:**
- **Catherine Shaw** – Chairperson
- **Danica Matheson** – Treasurer
- **David Jack** – Secretary
- **Angela Saunders** – Trustee
- **Evelyn Close** – Trustee
## **Structure, Governance and Management**
**Governing Document:** Trust Deed **Charity Constitution:** Trust
**Trustee Appointment:** Trustees are appointed by existing trustees.
## **Objectives and Activities**
The objectives of FPWR UK are to advance the education of the public in general (and particularly amongst scientists) on the subject of Prader-Willi Syndrome and to promote research for the public benefit in all aspects of that subject and to publish the useful results.
Funds have been generated through the following initiatives:
- **Community Fundraising Events:**
- Bonus Balls, One Small Step Portsmouth, London Marathon, Manchester Marathon, 100 miles in May, MX Reality Raffle, Fashion Show, Dog walking for Research, Wheelie Race, Virtual Balloon Race, Auction 2024, Boiler Servicing Donations, 10 mile swim, Christmas Raffle, East London Synagogue and Petts Wood Bowl Charity of
the Year partnerships, Wild West Fundraiser, Art Classes & Exhibition, Ceilidh, Quiz Night, Kiltwalk Glasgow, One Small Step Stockport, and 2nd virtual screening of The Life We’re Given.
- **Collaborative Efforts:**
- Move It May with PWSA UK (including merchandise sales in May)
- **Online and Ongoing Support:**
- easyfundraising.org
- Givestar
- Stripe
- Justgiving
- DONR
- Charities trusts
All events were organised to raise funds and awareness to support PWS research. Trustees carefully considered the Charity Commission’s guidance on public benefit while setting objectives and planning activities.
## **Achievements and Performance**
During the financial year 2024-2025, FPWR UK contributed **£48,986.31** towards **the below research project** :
1. **Dr. Herve Mione (Institute of Genetics and Molecular and Cellular Biology)** – **$64,800** ( **£48,986.31)** contributed towards research on **Assessing DGKK Dysregulation in PraderWilli Syndrome** . Fully funded.
## **Financial Review**
FPWR UK maintains a **minimum reserve of £5,000** to cover approximately three months of essential operating costs , including staff wages and storage facility expenses. This reserve ensures the charity can continue to function effectively in the event of unexpected income shortfalls or delays. The reserve requirement is reviewed annually to reflect the charity’s financial commitments and operational needs.
FPWR UK confirms that **no funds are in material deficit.**
## **Declaration**
The trustees declare that they have approved the annual report outlined above.
## **Signed on behalf of the charity’s trustees:**
## **Catherine Shaw**
Chairperson
Date: 12th April 2026
## **FOUNDATION FOR**
## **PRADER-WILLI REASERCH**
## **UNITED KINGDOM**
**ACCOUNTS FOR THE YEAR TO 30 JUNE 2025**
**Registered Charity 1141923**
## **FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM CONTENTS ACCOUNTS FOR THE YEAR TO 30 JUNE 2025**
|Independent Examiners Report|1|
|---|---|
|Income & Expenditure|2|
|Balance Sheet|2|
|Notes to the Accounts|3|
|Declaration|4|
|**ANNEX**||
|Annual Report||
## **FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM INDEPENDENT REPORT TO THE TRUSTEES ACCOUNTS FOR THE YEAR TO 30 JUNE 2025**
I have been requested to report on the accounts of the Charity for the **year ended 30 June 2025.**
## **Respective responsibilities of Trustees and Examiner**
As the Charities trustees you are responsible for the preparation of the accounts: you consider that the audit requirements of section 43(2) of the Charities Act 1993 (the ACT) does not apply. It is my responsibility to state, on the basis of procedures specified in the General Directions given by the Charity Commissioners under section 43(7)9b) of the Act, whether particular matters have come to my attention.
## **Basis of Independent Examiners Report**
My examination was carried out in accordance with the General Directions given by the Charity Commissioners. An examination includes a review of the accounting records kept by the Charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all evidence that would be required in an audit, and consequently I do not express an audit opinion on the view given by the accounts
## **Independent Examiners Statement**
In connection with my examination, no matter has come to my attention:
1 which gives me reasonable cause to believe that in any material respect the requirements:-
to keep accounting records in accordance with section 41 of the Act: and
to prepare accounts which accord with the accounting records and to comply with the accounting requirements of the Act
have not been met: or
2 to which in my opinion, should be drawn in order to enable a proper understanding of the accounts reached.
**LYNDA ELIZABETH LEBETER** Date **18 April 2026**
## **Independent Examiner**
Willow House 20 Ryburn Close Canterbury Gardens Moorgate Park Clifton York YO30 4XH
Page 1
## **FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM**
## **BALANCE SHEET ACCOUNTS FOR THE YEAR TO 30 JUNE 2025**
|**2025**
**ACCUMULATED FUND**
Accumulated Surplus at 27 June 2024
12,872
Surplus/Deficit Income Over Expenditure
14,106
**TOTAL**
26,978
**REPRESENTED BY**
Cash at Bank and In Hand
26,978
Sundry Debtors
-
Sundry Creditors
-
26,978
**INCOME**
**Grants & Donations**
Grants
-
Donations
3,112
3,112
**Fee Income**
Fee Income
52,915
Fundraising Events
23,196
Other
3,370
79,481
**Investment Income**
Bank Interest
-
**TOTAL INCOME**
82,593
**EXPENDITURE**
**Direct Charitable Expenditure**
Repairs & Renewals
-
Rent
1,650
Salaries
11,005
Research Donations
48,986
Miscellaneous small items
1,330
Insurance
259
Advertising
74
63,303
**Other Expenditure**
Stationery & Postage
1,573
Miscellaneous administrative costs
324
Fundraising Costs
3,286
5,183
**TOTAL EXPENDITURE**
68,486
**Excess/(Deficit) Income Over Expenditure**
14,106
**2025**
**INCOME AND EXPENDITURE**
**ACCOUNTS FOR THE YEAR TO 30 JUNE 2025**|**2025**
**ACCUMULATED FUND**
Accumulated Surplus at 27 June 2024
12,872
Surplus/Deficit Income Over Expenditure
14,106
**TOTAL**
26,978
**REPRESENTED BY**
Cash at Bank and In Hand
26,978
Sundry Debtors
-
Sundry Creditors
-
26,978
**INCOME**
**Grants & Donations**
Grants
-
Donations
3,112
3,112
**Fee Income**
Fee Income
52,915
Fundraising Events
23,196
Other
3,370
79,481
**Investment Income**
Bank Interest
-
**TOTAL INCOME**
82,593
**EXPENDITURE**
**Direct Charitable Expenditure**
Repairs & Renewals
-
Rent
1,650
Salaries
11,005
Research Donations
48,986
Miscellaneous small items
1,330
Insurance
259
Advertising
74
63,303
**Other Expenditure**
Stationery & Postage
1,573
Miscellaneous administrative costs
324
Fundraising Costs
3,286
5,183
**TOTAL EXPENDITURE**
68,486
**Excess/(Deficit) Income Over Expenditure**
14,106
**2025**
**INCOME AND EXPENDITURE**
**ACCOUNTS FOR THE YEAR TO 30 JUNE 2025**|**2025**
12,872
14,106|**2024**
16,071
3,199
-
12,872
12,872
-
-
12,872
-
2,388
2,388
54,955
15,300
5,408
75,663
-
78,051
-
1,650
9,920
65,000
77
262
106
77,015
1,232
736
2,267
4,235
81,250
3,199
-
**2024**|**2024**
16,071
3,199
-|
|---|---|---|---|---|
|||26,978||12,872|
|||26,978
-
-||12,872
-
-|
|||26,978||12,872|
|||3,112
79,481
-||2,388
75,663
-|
||-
1,650
11,005
48,986
1,330
259
74||-
1,650
9,920
65,000
77
262
106||
|||82,593||78,051|
|||63,303
5,183||77,015
4,235|
||1,573
324
3,286||1,232
736
2,267||
||||||
|||68,486||81,250|
|||14,106||3,199
-|
Page 2
## **FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM NOTES TO THE ACCOUNTS ACCOUNTS FOR THE YEAR TO 30 JUNE 2025**
## **1 STATEMENT OF ACCOUNTING POLICIES**
The financial statements have been prepared under the historical cost convention and in accordance with the Financial Reporting Standard for Smaller Entities.
## **2 Debtors**
|Sundry Debtors
**3 Creditors**
Other Creditors
**4 Cash at Bank and in Hand**
Cash at Bank and in Hand|**2025**
**2024**
**£**
**£**
-
-|
|---|---|
||-
-|
||**2025**
**2024**
**£**
**£**
-
-|
||-
-|
||**2025**
**2024**
**£**
**£**
26,978
21,619|
||26,978
21,619|
Page 3
# **FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM DECLARATION OF THE TREASURER ACCOUNTS FOR THE YEAR TO 30 JUNE 2025**
We the Management Committee are responsible for the preparation of the financial statements for the **year ended 30 June 2025** set out on pages 1 to 3 and we consider that the Charity is exempt from an audit.
We have supplied all accounting records, documentation and information including full explanations for this purpose.
**----- Start of picture text -----**
………………………………………………….
**----- End of picture text -----**
Dated
## **TREASURER**
Page 4