## **Trustees’ Annual Report**
## For the period: **27 June 2023 to 26 June 2024**
## **Reference and Administration Details**
**Charity:** Foundation for Prader-Willi Research UK (FPWR UK) **Registered Charity Number:** 1141923 **Address:**
5 St Peters Close Bishop Auckland County Durham DL14 6DD
## **Trustees:**
- **Catherine Shaw** – Chairperson
- **Danica Matheson** – Treasurer
- **David Jack** – Secretary
- **Angela Saunders** – Trustee
## **Structure, Governance and Management**
**Governing Document:** Trust Deed **Charity Constitution:** Trust
**Trustee Appointment:** Trustees are appointed by existing trustees.
## **Objectives and Activities**
The objectives of FPWR UK are to advance the education of the public in general (and particularly amongst scientists) on the subject of Prader-Willi Syndrome and to promote research for the public benefit in all aspects of that subject and to publish the useful results.
Funds have been generated through the following initiatives:
- **Community Fundraising Events:**
- Bonus Balls, 2 Million Yard Challenge, Lakeland Ultra 100, Alaska Expedition, Butterbowl Family Day, Hednesford Festival, 15 for Peewee, Crochet Peewee Raffle, One Small Step Portsmouth, Cake and Coffee Morning, Cardiff Half Marathon, Virtual Duck Race, Auction 2023, Movember Challenge, Boiler Servicing Donations, Christmas Raffle, Ceilidh, Quiz Night, March Mini Auction, Kiltwalk Glasgow,
Snowdon Climb, One Small Step Lake District, and The Life You’re Given Documentary Screening, Father’s day donations, Pamper day
- **Collaborative Efforts:**
- Move It May with PWSA UK (including merchandise sales in May)
- **Online and Ongoing Support:**
- easyfundraising.org
All events were organised to raise funds and awareness to support PWS research. Trustees carefully considered the Charity Commission’s guidance on public benefit while setting objectives and planning activities.
## **Achievements and Performance**
During the financial year 2023-2024, FPWR UK contributed **£65,000** towards **three key research projects** :
1. **Dr. Tollervey (University of Edinburgh)** – **£25,000** contributed towards research on **noncoding RNAs in neuronal differentiation and PWS** (Year 2). The total project cost was **$159,347** .
2. **Dr. Evans (Bucknell University)** – **£25,000** contributed towards a study examining **obsessivecompulsive and psychotic-like behaviours across PWS subtypes** . The total project cost was **$72,984** .
3. **Rachel Gilmore (Post-Doctoral Fellowship)** – **£15,000** contributed towards a **three-year research fellowship** studying methods to test for **MAGEL2 gene activity in cells** , in collaboration with **Dr. Schaff in Heidelberg** .
## **Financial Review**
FPWR UK maintains a **minimum reserve of £3,000** to cover approximately three months of essential operating costs , including staff wages and storage facility expenses. This reserve ensures the charity can continue to function effectively in the event of unexpected income shortfalls or delays. The reserve requirement is reviewed annually to reflect the charity’s financial commitments and operational needs.
## FPWR UK confirms that **no funds are in material deficit.**
## **Declaration**
The trustees declare that they have approved the annual report outlined above.
## **Signed on behalf of the charity’s trustees:**
**Catherine Shaw** Chairperson **Date:** 1st April 2025
## **FOUNDATION FOR**
## **PRADER-WILLI REASERCH**
## **UNITED KINGDOM**
**ACCOUNTS FOR THE YEAR TO 30 JUNE 2024**
**Registered Charity 1141923**
## **FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM CONTENTS ACCOUNTS FOR THE YEAR TO 30 JUNE 2024**
|Independent Examiners Report|1|
|---|---|
|Income & Expenditure|2|
|Balance Sheet|2|
|Notes to the Accounts|3|
|Declaration|4|
|**ANNEX**||
|Annual Report||
## **FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM INDEPENDENT REPORT TO THE TRUSTEES ACCOUNTS FOR THE YEAR TO 30 JUNE 2024**
I have been requested to report on the accounts of the Charity for the **year ended 30 June 2024.**
## **Respective responsibilities of Trustees and Examiner**
As the Charities trustees you are responsible for the preparation of the accounts: you consider that the audit requirements of section 43(2) of the Charities Act 1993 (the ACT) does not apply. It is my responsibility to state, on the basis of procedures specified in the General Directions given by the Charity Commissioners under section 43(7)9b) of the Act, whether particular matters have come to my attention.
## **Basis of Independent Examiners Report**
My examination was carried out in accordance with the General Directions given by the Charity Commissioners. An examination includes a review of the accounting records kept by the Charity and a comparison of the accounts presented with those records. It also includes consideration of any unusual items or disclosures in the accounts, and seeking explanations from you as trustees concerning any such matters. The procedures undertaken do not provide all evidence that would be required in an audit, and consequently I do not express an audit opinion on the view given by the accounts
## **Independent Examiners Statement**
In connection with my examination, no matter has come to my attention:
1 which gives me reasonable cause to believe that in any material respect the requirements:-
to keep accounting records in accordance with section 41 of the Act: and
to prepare accounts which accord with the accounting records and to comply with the accounting requirements of the Act
have not been met: or
2 to which in my opinion, should be drawn in order to enable a proper understanding of the accounts reached.
**LYNDA ELIZABETH LEBETER** Date
## **05 March 2025**
## **Independent Examiner**
Willow House
20 Ryburn Close Canterbury Gardens Moorgate Park Clifton York YO30 4XH
Page 1
## **FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM**
## **BALANCE SHEET ACCOUNTS FOR THE YEAR TO 30 JUNE 2024**
|**2024**
**ACCUMULATED FUND**
Accumulated Surplus at 27 June 2023
16,071
Surplus/Deficit Income Over Expenditure
3,199
-
**TOTAL**
12,872
**REPRESENTED BY**
Cash at Bank and In Hand
12,872
Sundry Debtors
-
Sundry Creditors
-
12,872
**INCOME**
**Grants & Donations**
Grants
-
Donations
2,388
2,388
**Fee Income**
Fee Income
54,955
Fundraising Events
15,300
Other
5,408
75,663
**Investment Income**
Bank Interest
-
**TOTAL INCOME**
78,051
**EXPENDITURE**
**Direct Charitable Expenditure**
Repairs & Renewals
-
Rent
1,650
Salaries
9,920
Research Donations
65,000
Miscellaneous small items
77
Insurance
262
Advertising
106
77,016
**Other Expenditure**
Stationery & Postage
1,232
Miscellaneous administrative costs
736
Fundraising Costs
2,267
4,235
**TOTAL EXPENDITURE**
81,250
**Excess/(Deficit) Income Over Expenditure**
3,199
-
**2024**
**INCOME AND EXPENDITURE**
**ACCOUNTS FOR THE YEAR TO 30 JUNE 2024**|**2024**
**ACCUMULATED FUND**
Accumulated Surplus at 27 June 2023
16,071
Surplus/Deficit Income Over Expenditure
3,199
-
**TOTAL**
12,872
**REPRESENTED BY**
Cash at Bank and In Hand
12,872
Sundry Debtors
-
Sundry Creditors
-
12,872
**INCOME**
**Grants & Donations**
Grants
-
Donations
2,388
2,388
**Fee Income**
Fee Income
54,955
Fundraising Events
15,300
Other
5,408
75,663
**Investment Income**
Bank Interest
-
**TOTAL INCOME**
78,051
**EXPENDITURE**
**Direct Charitable Expenditure**
Repairs & Renewals
-
Rent
1,650
Salaries
9,920
Research Donations
65,000
Miscellaneous small items
77
Insurance
262
Advertising
106
77,016
**Other Expenditure**
Stationery & Postage
1,232
Miscellaneous administrative costs
736
Fundraising Costs
2,267
4,235
**TOTAL EXPENDITURE**
81,250
**Excess/(Deficit) Income Over Expenditure**
3,199
-
**2024**
**INCOME AND EXPENDITURE**
**ACCOUNTS FOR THE YEAR TO 30 JUNE 2024**|**2024**
16,071
3,199
-|**2023**
21,619
5,548
-
16,071
16,071
-
-
16,071
-
4,891
4,891
46,462
18,398
773
65,633
-
70,524
-
1,606
5,566
57,000
86
432
735
65,425
978
234
9,435
10,647
76,072
5,548
-
**2023**|**2023**
21,619
5,548
-|
|---|---|---|---|---|
|||12,872||16,071|
|||12,872
-
-||16,071
-
-|
|||12,872||16,071|
|||2,388
75,663
-||4,891
65,633
-|
||-
1,650
9,920
65,000
77
262
106||-
1,606
5,566
57,000
86
432
735||
|||78,051||70,524|
|||77,016
4,235||65,425
10,647|
||1,232
736
2,267||978
234
9,435||
||||||
|||81,250||76,072|
|||3,199
-||5,548
-|
Page 2
## **FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM NOTES TO THE ACCOUNTS ACCOUNTS FOR THE YEAR TO 30 JUNE 2024**
## **1 STATEMENT OF ACCOUNTING POLICIES**
The financial statements have been prepared under the historical cost convention and in accordance with the Financial Reporting Standard for Smaller Entities.
## **2 Debtors**
|Sundry Debtors
**3 Creditors**
Other Creditors
**4 Cash at Bank and in Hand**
Cash at Bank and in Hand|**2024**
**2023**
**£**
**£**
-
-|
|---|---|
||-
-|
||**2024**
**2023**
**£**
**£**
-
-|
||-
-|
||**2024**
**2023**
**£**
**£**
12,872
21,619|
||12,872
21,619|
Page 3
## **FOUNDATION FOR PRADER-WILLI RESEARCH UNITED KINGDOM DECLARATION OF THE TREASURER ACCOUNTS FOR THE YEAR TO 30 JUNE 2024**
We the Management Committee are responsible for the preparation of the financial statements for the **year ended 30 June 2024** set out on pages 1 to 3 and we consider that the Charity is exempt from an audit.
We have supplied all accounting records, documentation and information including full explanations for this purpose.
………………………………………………….
Dated
## **TREASURER**
Page 4